NINDS CDE Huntington's Disease Behavioral Psychology Subgroup ...

More documents

Recommendations

Info

Description of Frontal Systems Behavior Scale forHD Common Data ElementsTranslations available: Not available.References: Key Reference: Grace J, Malloy PF. Frontal Systems Behavior ScaleProfessional Manual. Lutz, FL: Psychological Assessment Resources, Inc. 2001.Other References: Stout JC, Ready RE, Grace J, Malloy PF, Paulsen JS.Factor Analysis of the Frontal Systems Behavior Scale (FrSBe). Assessment2003; 10: 79-85.Duff K, Paulsen JS, Beglinger LJ et al. ‘Frontal Behaviors’ before the diagnosis ofHuntington’s disease and their relationship to markers of disease progression:evidence of early lack of awareness. J Neuropsychiatry Clin Neurosci. 2010;22(2): 196-207.HD Version 1.0 Page 3 of 3
Description of Hospital and Anxiety Depression Scale forHD Common Data ElementsInstrument Name:Classification:Hospital Anxiety and Depression Scale (HADS)SupplementalShort Description ofInstrument:Summary/ Overview of Instrument: The scale was designed to screen formood disorders in general (non-psychiatric) medical outpatients. It focuses onsubjective disturbances of mood rather than physical signs, and aims atdistinguishing depression from anxiety. Compared to other instruments scales, itfocuses on emotional aspects of anxiety disturbances, as opposed to somatic andcognitive symptoms.Construct measured: Anxiety and depressionGeneric vs. disease specific: GenericIntended use of instrument/ purpose of tool: Clinical Trials, ObservationalStudiesMeans of administration: Self- administeredLocation of administration: Clinic, home, telephoneIntended respondent: Patient# of items: 14 – Anxiety (7 items), Depression (7 items)# of subscales and names of sub-scales: 2 – Anxiety, DepressionScoring Scoring: Items are rated on a 4 -point Likert-type scale ranging from 0 t o 3,generating a scale range of 0 to 42 points, with higher scores representing greatersymptom severity. The anxiety subscale has 3 items that refer to panic and 4 togeneralized anxiety.MeasurementsPsychometricPropertiesAdd the A questions to get a score for anxiety and the D questions for depression.Scores of 0-7 indicate normal levels of anxiety and depression; 8-10 indicateborderline abnormal anxiety and depression levels and 11-21 suggest abnormallevels of anxiety and depression.Standardization of scores to a reference population (z scores, T scores, etc):Not available.If scores have been standardized to a reference population, indicate frameof reference for scoring (general population, HD subjects, other disease groups,etc). N/AType of scale used to describe individual items and total/subscale scores:OrdinalReliability:Internal consistency described for patients with cancer (Moorey et al 1991):Anxiety subscale Cronbach’s alpha = 0.93; Depression subscale alpha= 0.9. Inhealthy UK sample, internal consistency for Anxiety, Depression and Total scoresHD Version 1.0 Page 1 of 2
Page 4: NINDS Huntington’s Disease Common
Page 7 and 8: Description of Apathy Evaluation Sc
Page 9: Description of Apathy Scale forHD C
Page 12 and 13: Description of Cambridge Brain Repa
Page 16 and 17: Description of Frontal Systems Beha
Page 20: Description of Hospital and Anxiety
Page 23: Description of Padua Inventory- Was
Page 26 and 27: Description of Pittsburgh Sleep Qua
Page 28 and 29: Description of Problem Behaviours A
Page 30 and 31: Description of Problem Behaviours A
Page 32 and 33: Description of Scale for Outcomes o

NINDS CDE Huntington's Disease Behavioral Psychology Subgroup ...

Create successful ePaper yourself

Delete template?

Save as template?