NINDS CDE Huntington's Disease Behavioral Psychology Subgroup ...

Description of Apathy Evaluation Scale forHD Common Data ElementsInstrument Name:Classification:Short Description ofInstrument:ScoringMeasurementsPsychometricPropertiesApathy Evaluation ScaleCoreSummary/ Overview of Instrument: Semi-structures interview with 18 questionsassessing apathy in the past four weeks. This scale was originally designed forpatients with Parkinson’s disease or Alzheimer’s disease.Construct measured: ApathyGeneric vs. disease specific: GenericIntended use of instrument/ purpose of tool: Assessment of severity of apathyMeans of administration: Paper and pencilLocation of administration: Clinic or homeIntended respondent: Patient/self (AES-S), Informant (AES-I) and Clinician(AES-C) version# of items: 18# of subscales and names of sub-scales: NoneScoring: Rating of each item is based on a semi-structured interview. Theinterview should begin with a description of the subject’s interest, activities anddaily routine. The items should be anwered based on the subject’s thoughts,emotions, and actions; based on both verbal and non-verbal information of thepast 4 weeks. For each item ratings should be judged: 4 possible responses foreach question: ‘not at all’, ‘slightly’, ‘somewhat’, ‘a lot’.Standardization of scores to a reference population (z scores, T scores, etc):Not availableIf scores have been standardized to a reference population, indicate frameof reference for scoring (general population, HD subjects, other disease groups,etc). Not availableType of scale used to describe individual items and total/subscale scores:ContinuousReliability:Test-retest or intra-interview (within rater) reliability: AES-S = 0.76; AES-I = 0.94;AES-C = 0.88Inter-interview (between-rater) reliability (as applicable): Inter-rater reliability wasonly tested for the AES-C and w as found to be go od (intraclass correlationcoefficient = 0.94 (Marin, 1991).Internal consistency: Coefficient alpha: AES-S = 0.86; AES-I = 0.94; AES-C =0.90HD Version 1.0 Page 1 of 2