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NINDS CDE Huntington's Disease Behavioral Psychology Subgroup ...

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Description of Pittsburgh Sleep Quality Index forHD Common Data ElementsInstrument Name:Classification:Short Description ofInstrument:ScoringPittsburgh Sleep Quality Index (PSQI)SupplementalSummary/ Overview of Instrument: A self-rated questionnaire that primarilyassesses nighttime sleep problems. I t focuses on sleep experiences over thepast month. It has 19 s elf-rated questions and 5 ad ditional questions for a bedpartner or roommate.Construct measured: Sleep quality, sleep habits and s leep disturbances.Seven component scores: subjective sleep quality, sleep latency, sleep duration,habitual sleep efficiency, sleep disturbances, use of sleeping medication, daytimedysfunctionGeneric vs. disease specific: Has been used in many different populations; it isnot disease specific.Intended use of instrument/ purpose of tool: Can be us ed as a s creeninginstrument for nighttime sleep disturbance or for clinical studies. It cannot beused to diagnose specific sleep disorders, but instead may help distinguish “good”versus “poor” sleepers.Means of administration: Paper and PencilLocation of administration: Clinic, HomeIntended respondent: Patient (with 5 supplemental questions for a bed partneror roommate)# of items: 24 (19 self-rated items, and 5 supplemental items to be rated by abed partner or roommate)# of subscales and names of sub-scales: 7 – Subjective sleep quality, sleeplatency, sleep duration, habitual sleep efficiency, sleep disturbances, use ofsleeping medication, daytime dysfunctionScoring: Seven component scores are calculated, each scored from 0 to 3, thetotal score ranges from 0 to 21, with higher scores indicating more severe sleepproblems in many areas. Scoring requires following closely a complex algorithmand is not a simple summation of answers. A cutoff of 5/6 for the total score isused in general populations to distinguish between “good” and “ poor” sleepers.Scoring can be time consuming.Standardization of scores to a reference population (z scores, T scores, etc):The PSQI scores are not standardized to a particular population but thisinstrument has been used in many different populationsIf scores have been standardized to a reference population, indicate frameof reference for scoring (general population, HD subjects, other disease groups,etc). (See above.) While the scores are not standardized to a particular referencepopulation, the cutoff of 5/6 for “good” versus “poor” sleepers was developed fromHD Version 1.0 Page 1 of 3

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