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Chapter Carries Legacy of Support to Caregivers - Alzheimer's ...

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Making A Connection<br />

With Minority Community<br />

By Regina McDonald<br />

Multicultural Outreach<br />

Coordina<strong>to</strong>r<br />

R<br />

4 • Corners<strong>to</strong>ne • Spring 2008<br />

ecent studies indicate that African-Americans<br />

appear <strong>to</strong> be at greater risk for developing<br />

dementia-type diseases due <strong>to</strong> genetic and<br />

environmental risk fac<strong>to</strong>rs such as cardiovascular<br />

disease, high blood pressure and cholesterol, obesity<br />

and diabetes.<br />

A similar correlation between health risk fac<strong>to</strong>rs<br />

and dementia in the Hispanic/Latino population is also<br />

being found in many new studies. This is particularly<br />

alarming given the fact that Hispanic/Latinos are the<br />

fasting growing minority population in the United<br />

States. Recent reports also indicate that strokes may be a contributing fac<strong>to</strong>r<br />

for developing Alzheimer’s disease and other dementing illnesses within the<br />

African-American community.<br />

Currently, the Alzheimer’s Association, the American Heart Association<br />

and the American Stroke Association are partnering <strong>to</strong> create greater public<br />

awareness about the connection between cardiovascular risks and brain health.<br />

Cardiovascular diseases are prevalent within many minority populations which<br />

can put many African-Americans, Hispanic/Latinos and other minorities at<br />

risk for developing vascular related dementia and Alzheimer’s disease.<br />

Celebrating 25 years <strong>of</strong> service, the Alzheimer’s Association <strong>of</strong> Greater<br />

Cincinnati is here <strong>to</strong> help and provide hope <strong>to</strong> those dealing with dementia.<br />

We <strong>of</strong>fer a variety <strong>of</strong> programs and services targeting many phases <strong>of</strong> the care<br />

giving journey. April is Minority Health Month and it is important <strong>to</strong> not only<br />

recognize but <strong>to</strong> target health care needs <strong>of</strong> the minority community. A number<br />

<strong>of</strong> our chapter programs specifically address the needs and concerns <strong>of</strong> African-<br />

Americans and Hispanic/Latinos, such as our African-American Caregiver<br />

Forum and our community Promo<strong>to</strong>ra de Salud education program.<br />

We also provide early educational intervention in the elementary, middle<br />

and high schools through health education. Alzheimer’s disease does not<br />

discriminate between the rich and the poor, the well educated and the<br />

uneducated, or African American, Hispanic/Latino and White. The Alzheimer’s<br />

Association is here <strong>to</strong> provide education, help and hope <strong>to</strong> all – let’s make the<br />

connection!<br />

Please mark your calendar – the 2008 African-American Family Caregiver<br />

Forum will be held on Friday, Oct. 31. Further details on the forum will be<br />

announced later this summer.<br />

For more information on our programs and services, please contact me at<br />

(513) 721-4284 or email: regina.mcdonald@alz.org.<br />

he Alzheimer’s Association<br />

<strong>of</strong> Greater Cincinnati<br />

recently welcomed Connie<br />

Drews, MSW, as the new Branch<br />

Program Manager for Northern<br />

Kentucky.<br />

Ms. Drews will be responsible<br />

for providing chapter programs<br />

and services <strong>to</strong> families affected<br />

by Alzheimer’s disease in the<br />

chapter’s nine-county service area<br />

<strong>of</strong> Northern Kentucky.<br />

“We are very pleased <strong>to</strong> have<br />

Connie join our staff,” said<br />

Executive Direc<strong>to</strong>r Clarissa Rentz.<br />

Caregiver News<br />

Drews Named N. Ky. Program Manager<br />

Connie Drews<br />

T<br />

T<br />

Cincinnati <strong>Chapter</strong> Unveils<br />

New Web Site<br />

he Alzheimer’s Association<br />

<strong>of</strong> Greater Cincinnati has a<br />

Web site with a new look<br />

and a new address.<br />

The updated Web site was<br />

unveiled in January with a new<br />

address: www.alz.org/cincinnati. The<br />

site features complete information<br />

on local programs and services as<br />

well as special events.<br />

“For a growing segment <strong>of</strong> the<br />

public, the Internet is becoming a<br />

primary source <strong>of</strong> information on<br />

Alzheimer’s disease,” said Steve Olding, <strong>Chapter</strong> Communications direc<strong>to</strong>r.<br />

“Usage <strong>of</strong> our chapter Web site, for example, has doubled in the past three years<br />

while calls <strong>to</strong> our Helpline have stayed about the same in number. More people<br />

are coming <strong>to</strong> us for information, but a growing percentage <strong>of</strong> people are using<br />

a different method <strong>to</strong> obtain information from us.”<br />

During the past fiscal year, the chapter site recorded more than 1.4 million<br />

hits from 30,000 individual users.<br />

A<br />

Alzhemed Clinical Trial<br />

Results Disappointing<br />

fter consulting with the U.S. Food and Drug Administration (FDA) on<br />

revising its statistical model, Neurochem has completed its statistical<br />

analysis and released the results <strong>of</strong> the company’s first Phase III clinical<br />

trial <strong>of</strong> Tramiprosate (Alzhemed) which was held in the United States<br />

and Canada.<br />

While the trials found numerical differences between people taking the<br />

drug and those taking a placebo, the results, both on cognitive functioning and<br />

daily activities, did not reach statistical significance.<br />

The trial results highlight the important need for more volunteers <strong>to</strong><br />

participate in Alzheimer’s clinical studies. Recruiting and retaining study<br />

participants is one <strong>of</strong> the greatest impediments <strong>to</strong> developing the next<br />

generation <strong>of</strong> Alzheimer treatments.<br />

For more information on clinical trials, visit: www.alz.org, Clinical Trials<br />

Index.<br />

“She knows Northern Kentucky well and understands our mission<br />

<strong>of</strong> service.”<br />

As an adult learner, Ms. Drews earned a degree in Social Work<br />

from Northern Kentucky University and a master’s degree in Social<br />

Work from the University <strong>of</strong> Kentucky. A certified social worker in<br />

Kentucky, she has a personal connection <strong>to</strong> dementia. Last year, her<br />

mother, Agnes, was diagnosed with dementia.<br />

“I am honored <strong>to</strong> join the Alzheimer’s Association and look<br />

forward <strong>to</strong> helping families in Northern Kentucky,” said Ms. Drews.<br />

“I know that there is a great need in Northern Kentucky for many<br />

families and I hope <strong>to</strong> be a source <strong>of</strong> support for them.”<br />

Ms. Drews has two children, Deanna and Debbie, and three<br />

step-children, Gary, Nicki and Bob. She and her husband, Gary,<br />

reside in Taylor Mill.

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