47. From Cancer Patient to Cancer Survivor: Lost in Transition- Hewitt, M., Greenfield, S., & Stoval, E. (2005). DC: The National Academies Press. ISBN: 309095956.Website: http://books.nap.edu/catalog.php?record_id=11468#toc. Read online FREE!Educational <strong>Materials</strong>/Curriculum1. Cancer Survival Toolbox - National Coalition for Cancer Survivorship- The Cancer Survival Toolbox is a free, self-learning audio program that has been developed by leading cancerorganizations to help people develop important skills to better meet and understand the challenges <strong>of</strong> their illness.You can read or listen to the Toolbox in English and Spanish or download the files to read or listen later. Chinesetranscripts are also available. Website: http://www.canceradvocacy.org/toolbox/.2. Coping with Cancer: Supportive and Palliative Care - National Cancer Institute- Includes sections on Fatigue, <strong>Pain</strong>, Complications/Side Effects, Nutritional Concerns, Emotional Concerns, TreatmentRelated Issues, Clinical Trials, Information for Caregivers and Loved Ones, Survivorship and End <strong>of</strong> Life Issues.Website: http://www.cancer.gov/cancertopics/coping.3. Facing Forward – Life after Cancer Treatment – National Cancer Institute- This booklet shares what the NCI has learned from cancer survivors about life after cancer including practical ways <strong>of</strong>dealing with common problems and guidelines for managing your physical, social, and emotional health. Also available inSpanish. Website: http://www.cancer.gov/cancertopics/life-after-treatment.4. Survivorship: During and After Treatment – American Cancer Society- Tips on staying active and healthy during and after cancer treatment. You can also get information on dealing with thepossibility <strong>of</strong> cancer recurrence, and find inspiration and hope in stories about other people whose lives have been touchedby cancer. Website: http://www.cancer.org/Treatment/SurvivorshipDuringandAfterTreatment/index.1.Guidelines/Clinical PathwaysLong-Term Follow Up Guidelines for Survivors <strong>of</strong> Childhood, Adolescent, and Young Adult Cancers - CureSearch- The Long-Term Follow-Up Guidelines were developed as a resource for clinicians who provide ongoing healthcare tosurvivors <strong>of</strong> pediatric cancer. Website: http://www.survivorshipguidelines.org.2. NCCN Clinical Practice Guidelines – National Comprehensive Cancer Network- NCCN Guidelines have become the most widely used guidelines in oncology practice and have been requested by cancercare pr<strong>of</strong>essionals in over 115 countries. There has also been substantial international interest in translating the guidelinesinto a variety <strong>of</strong> languages. Select NCCN Guidelines have been translated into Chinese, German, Italian, Japanese,Russian, and Spanish. Website: http://www.nccn.org/pr<strong>of</strong>essionals/physician_gls/f_guidelines.asp.3. The National Action Plan for Cancer Survivorship – <strong>Center</strong>s for Disease Control and Prevention & Lance Armstrong Foundation- Developed to identify and prioritize cancer survivorship needs that will advance cancer survivorship in national, state, andcommunity-level public health organizations.Website: http://www.cdc.gov/cancer/survivorship/what_cdc_is_doing/action_plan.htm.Other Organizational LinksA Lion in the HouseAmerican Cancer SocietyCancerCareCancer Support CommunityCancer Survivors OnlineCancer Survivor ToolboxCureTodayFertile HopeInstitute <strong>of</strong> MedicineInternational Society for Quality <strong>of</strong> Life Researchhttp://www.aquariusproductions.com/lion/http://www.cancer.orghttp://www.cancercare.orghttp://www.cancersupportcommunity.org/http://www.cancersurvivors.orghttp://www.canceradvocacy.org/toolbox/http://www.curetoday.comhttp://www.fertilehope.org/healthcare-pr<strong>of</strong>essionals/index.cfmhttp://www.iom.eduhttp://www.isoqol.org/10
Journey ForwardLeukemia & Lymphoma SocietyLIVESTRONG: Lance Armstrong FoundationLiving Beyond CancerMemorial Sloan-Kettering Cancer <strong>Center</strong>National Cancer Institute: Cancer Survivorship ResearchNational Coalition for Cancer SurvivorshipOncology Nursing SocietyOpen to OptionsPlanet CancerQuality <strong>of</strong> Life with Cancer Supportive CareSAMfund (Young Adult Survivors <strong>of</strong> Cancer)UCLA Cancer <strong>Center</strong> SurvivorshipWhat Every Young Adult Cancer Survivor Needs to K<strong>no</strong>wYoung Survival Coalitionhttp://www.journeyforward.org/index.htmlhttp://www.leukemia-lymphoma.org/hm_llshttp://www.livestrong.org/cancersupport/http://www.mskcc.org/mskcc/html/58022.cfmhttp://www.mskcc.org/mskcc/html/58022.cfmhttp://dccps.nci.nih.gov/ocs/http://www.canceradvocacy.orghttp://www.ons.org/Clinical<strong>Resource</strong>s/Psychosocial/Survivorshiphttp://cancersupportcommunity.org/open2optionshttp://www.planetcancer.org/http://www.cancersupportivecare.com/qol.html#TOChttp://www.thesamfund.orghttp://www.cancer.ucla.edu/<strong>Index</strong>.aspx?page=6http://www.survivoralert.org/modules.htmlhttp://www.youngsurvival.orgII. SpiritualitySection Description: This section includes City <strong>of</strong> Hope publications and other resources relating to spirituality in health careincluding articles relating to cross-cultural topics. There is a listing <strong>of</strong> tools for assessing spirituality and spiritual concerns,links to organizational position statements relating to spirituality, and recommended publications.City <strong>of</strong> Hope Publications1. Otis-Green, S., Ferrell, B. R., Borneman, T., Puchalski, C., Uman, G., & Garcia, A. (2012). Integrating spiritual care withinpalliative care: An overview <strong>of</strong> nine demonstration projects. Journal <strong>of</strong> Palliative Medicine, 15(2), 154-163.DOI: 10.1089/jpm.2011.0211. Website: http://online.liebertpub.com/doi/pdf/10.1089/jpm.2011.0211.2. Borneman, T., Ferrell, B. R., & Puchalski, C. M. (2010). Evaluation <strong>of</strong> the FICA tool for spiritual assessment. Journal <strong>of</strong> Panand Symptom Management, 40(20), 163-173. DOI: 10.1016/j.jpainsymman.2009.12.019.3. Wong, F. L., Fransisco, L., Togawa, K., Bosworth, A., Golzales, M., Hanby, C., Sabado, M., Grant, M., <strong>Form</strong>an, S. J., &Bhatia, S., (2010). Long-term recovery after hematopoietic cell transplantation: Predictors <strong>of</strong> quality-<strong>of</strong>-life concerns. Blood,115(12), 2508-2519. DOI: 10.1182/blood-2009-06-225631.Website: http://bloodjournal.hematologylibrary.org/cgi/reprint/115/12/2508.4. Puchalski, C., Ferrell, B. R., Virani, R., Otis-Green, S., Baird, P., Bull, J. et al., (2009). Improving the quality <strong>of</strong> spiritual careas a dimension <strong>of</strong> palliative care: The report <strong>of</strong> the consensus conference. Journal <strong>of</strong> Palliative Medicine, 12(10), 885-904.DOI: 10.1089=jpm.2009.0142. Website: http://www.liebertonline.com/doi/pdfplus/10.1089/jpm.2009.0142.5. Baldwin, C. M., Grant, M., Wendel, C. Rawl, S., Schmidt, C. M., Ko, C., & Krouse, R. S. (2008). Influence <strong>of</strong> intestinal stomalon spiritual quality <strong>of</strong> life <strong>of</strong> U.S. veterans. Journal <strong>of</strong> Holistic Nursing, 26(3), 185-194.DOI: 10.1177/0898010108315185.6. Crane-Okada, R. (2007). A compass for the cancer journey: Scientific, spiritual, and practical directives. Oncology NursingForum, 34(5), 945-954. DOI: 10.1188/07.ONF.945-955.7. Ferrell, B. R. (2007). Meeting spiritual needs: What is an oncologist to do? Journal <strong>of</strong> Clinical Oncology, 25(5), 467-468.DOI: 10.1200/JCO.2006.09.3724.8. Mularski, R. A., Dy, S. M., Shugarman, L. R., Wilkinson, A. M., Lynn, J., Shekelle, P. G., Morton, S. C., Sun, V. C., Hughes,R. G., Hilton, L. K., et al., (2007). A systematic review <strong>of</strong> measures <strong>of</strong> end-<strong>of</strong>-life care and its outcomes. Health ServicesResearch, 42(5), 1848-1870. DOI: 10.1111/j.1475-6773.2007.00721.x.9. Otis-Green, S. (2006). Spiritual palliative care. Journal <strong>of</strong> Palliative Medicine, 9, 1477-1478.11
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