33. Hills, J., Paice, J. A., Cameron, J. R., & Shott, S., (2005). Spirituality and distress in palliative care consultation. Journal <strong>of</strong>Palliative Medicine (1096-6218), 8 (4), 782. Pilot study measuring facets <strong>of</strong> spirituality with several scales including RCOPE,FACIT-Sp, FICA, and POMS-SF. DOI: 10.1089/jpm.2005.8.782.34. Baggini, J., & Pym, M. (2005). End-<strong>of</strong>-life: The humanist view. The Lancet, 366(9492), 1235-1237.DOI: 10.1016/S0140-6736(05)67486-7.35. Markwell, H. (2005). End-<strong>of</strong>-life: A Catholic view. The Lancet, 366(9491), 1132-1135. DOI: 10.1016/S0140-6736(05)67425-9.36. Engelhardt, H. T., & Iltis, A. S., (2005). End-<strong>of</strong>-life: The traditional Christian view. The Lancet, 366(9490), 1045-1049.DOI: 10.1016/S0140-6736(05)67383-7.37. Keown, D. (2005). End-<strong>of</strong>-life: The Buddhist view. The Lancet, 366(9489), 952-955. DOI: 10.1016/S0140-6736(05)67323-0.38. Dorff, E. N. (2005). End-<strong>of</strong>-life: Jewish perspectives. The Lancet, 366(9488), 862-865. DOI: 10.1016/S0140-6736(05)67219-4.39. Sachedina, A. (2005). End-<strong>of</strong>-life: The Islamic view. The Lancet, 366(9487), 774-779. DOI: 10.1016/S0140-6736(05)67183-8.40. Firth, S. (2005). End-<strong>of</strong>-life: A Hindu view. The Lancet, 366(9486), 682-685. DOI: 10.1016/S0140-6736(05)67141-3.41. Puchalski, C., & Romer, A. L., (2000). Taking a spiritual history allows clinicians to understand patients more fully. Journal<strong>of</strong> Palliative Medicine (1096-6218), 3 (1), 129. FICA tool.Educational <strong>Materials</strong>/Curriculum1. Completing a Life: A <strong>Resource</strong> for Taking Charge, Finding Comfort, Reaching Closure- An interactive CD inviting patients and families to learn about the practical, emotional, spiritual, and medical issuesfaced by those dealing with advanced illness. The CD is available through the Instructional Media <strong>Center</strong> at MichiganState University. For ordering information call (517) 353-9229 or http://www.completingalife.msu.edu/.2. Core Curriculum for Holistic Nursing - American Holistic Nurses Association- Nurses are increasingly aware <strong>of</strong> the need to blend tech<strong>no</strong>logy, mind, and spirit in creating optimal circumstances forhealing. Barbara Dossey, a pioneer and leader in the field, has created a core curriculum that will provide a blueprintfor what it means to be a holistic nurse. <strong>Order</strong> online at http://www.jbpub.com/catalog/0834208709/.3. FACIT Questionnaires- Functional Assessment <strong>of</strong> Chronic Illness Therapy, (FACIT), manages questionnaires that measure health-relatedquality <strong>of</strong> life for people with chronic illnesses. The first questionnaire, The Functional Assessment <strong>of</strong> Cancer Therapy-General (FACT-G), was developed and validated over 10 years ago, and has been used in hundreds <strong>of</strong> studiesworldwide. Since then over 40 questionnaires have been developed and selected questionnaires translated into over 45different languages. There are three questionnaires relating to spirituality: the FACIT-Sp (Functional Assessment <strong>of</strong>Chronic Illness Therapy - Spiritual Well-Being), FACIT-Sp-12 (12-item Spiritual Well-Being Scale), FACIT-Sp-Ex(Spiritual Well-Being, Expanded version). Website: http://www.facit.org/FACITOrg/Questionnaires.4. Fast Facts and Concepts – End <strong>of</strong> Life/Palliative Education <strong>Resource</strong> <strong>Center</strong> (EPERC), Milwaukee, WIFor a complete listing <strong>of</strong> Fast Facts and Concepts see http://www.mcw.edu/EPERC/FastFactsandConcepts- Taking a Spiritual History- Music Therapy- Physicians and Prayer Requests- <strong>Pain</strong>, Suffering and Spiritual Assessment5. Interfaith Care for the Ill – Mobile Application- This app is for healthcare pr<strong>of</strong>essionals looking for the right words <strong>of</strong> spiritual comfort in difficult circumstancesrelating to death or illness. It <strong>of</strong>fers overviews <strong>of</strong> central beliefs, traditional prayers, and descriptions <strong>of</strong> commonpractices relating to illness and end-<strong>of</strong>-life care for Buddhism, Christianity, Hinduism, Islam, and Judaism.Available at iTunes http://itunes.apple.com/us/app/interfaith-care-for-the-ill/id421099962?mt=8.14
6. GWish SOERCE: Educational and clinical resources in spirituality, religion, and health.- An amazing array <strong>of</strong> resources on spirituality, religion, and health. Supported by a grant from The John TempletonFoundation, GWish created SORECE to build the online infrastructure to support medical educators and other healthpr<strong>of</strong>essionals in their quest to teach about spirituality and health by providing educational materials and resources.SOERCE covers an array <strong>of</strong> topics including spiritual assessment, end <strong>of</strong> life care, palliative care, spiritual distressmanagement and interventions, articles on major faith traditions, educational modules, presentations, and videos.Website: http://www.gwumc.edu/gwish/soerce/.7. Marie Curie Cancer Care - London: Marie Curie Cancer Care- Spiritual & religious care competencies assessment tools for specialists in palliative care.Website: http://www.mariecurie.org.uk/Documents/HEALTHCARE-PROFESSIONALS/spritual-religious-carecompetencies.pdf.8. Passport to Comfort: Reducing Barriers to <strong>Pain</strong> & Fatigue Management – City <strong>of</strong> Hope, Duarte, CA- This model addresses patient, pr<strong>of</strong>essional and system barriers to the relief <strong>of</strong> pain and fatigue and is based onestablished guidelines developed by the National Comprehensive Cancer Network (NCCN). An NCI supportedprogram. Most available in English and Spanish. Website: http://prc.coh.org/Pt-familyEd.asp #27.- Patient Spiritual Care Card- Spirituality Card9. Spiritual Care at the End <strong>of</strong> Life- Growth House provides several spiritual care training modules and assessment tools for palliative and end <strong>of</strong> life careincluding a spiritual training module for healthcare workers and chaplains that is specific to palliative and end <strong>of</strong> lifecare. There is an educational training module, pre-tests and post-tests, as well as the spiritualityquestionnaires/exercises for clergy and for health care pr<strong>of</strong>essionals. Website: http://www.growthhouse.org/spirit/.10. Toolkit <strong>of</strong> Instruments to Measure End <strong>of</strong> Life Care (TIME)- This is an extensive website, funded by the Robert Wood Johnson Foundation, and developed and maintained by JoanTe<strong>no</strong>, MD, MS at Brown University. It includes an Executive Summary reporting the status and need <strong>of</strong> Instruments inend <strong>of</strong> life care along with listings, links, and access to various instruments measuring various aspects <strong>of</strong> EOL care.Slide presentations, new instruments and old draft instruments are also available on the website. Instrument sections aredivided as follows: Quality <strong>of</strong> Life, <strong>Pain</strong> and Other Symptoms, Emotional and Cognitive Symptoms, Functional Status,Survival Time and Aggressive Care, Advance Care Planning, Continuity <strong>of</strong> Care, Spirituality, Grief and Bereavement,Caregiver Well-being, and Patient <strong>Center</strong>ed Reports and Rankings (e.g. satisfaction) with Quality <strong>of</strong> Care. Website:http://www.chcr.brown.edu/pcoc/toolkit.htm.Other Organizational LinksAmerican Holistic Nurses AssociationAssociation <strong>of</strong> Pr<strong>of</strong>essional ChaplainsCanadian Society for Spirituality & Social WorkJohn C. Oakley <strong>Pain</strong> & Spirituality <strong>Center</strong>National <strong>Center</strong> for Complementary & Alternative MedicineSpiritual Care Collaborativehttp://www.ahna.org/http://www.pr<strong>of</strong>essionalchaplains.org/index.aspx?id=127http://w3.stu.ca/stu/sites/spirituality/index.htmlhttp://www.painfoundation.org/learn/living/spirituality/http://nccam.nih.govhttp://www.spiritualcarecollaborative.org/default.aspPosition Statements/Standards1. American Holistic Medical Association (AHMA)Website: http://www.holisticmedicine.org/associations/6785/files/ahma-ethics-2009.pdf.2. American Holistic Nurses Association (AHNA) Position StatementsWebsite: http://www.ahna.org/<strong>Resource</strong>s/Publications/PositionStatements/tabid/1926/Default.aspx#P1.3. Hospice and Palliative Nurses Association (HPNA) Position StatementsSpiritual Care Website: http://www.hpna.org/DisplayPage.aspx?Title1=Position%20Statements.4. The Joint CommissionWebsite: http://www.jointcommission.org/.15
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- Page 9 and 10: 30. Handbook of Cancer Survivorship
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- Page 17 and 18: 15. Grant, M., Elk, R., Ferrell, B.
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13. Zempsky, W. T., Loiselle, K. A.
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Sickle Cell Disease Association of
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6. Fibromyalgia: The Complete Guide
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M.A.G.N.U.M. Awareness GroupMigrain
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Education Materials/Curriculum1. Ad
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- Pain Resource Nurse Role: Descrip
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25. Patient Medication Information
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5. Suffering- Ferrell, B. R. (1996)
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Other Organizations LinksCenter to
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Emerging Solutions in Pain Legal an
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American Chronic Pain Association (
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Elizabeth Glaser Pediatric AIDS Fou
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National Cancer Institute - http://
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TMJ Association - http://www.tmj.or