TABLE OF CONTENTSI. Quality <strong>of</strong> Life and Cancer Survivorship..……………………………………………….. 3II. Spirituality………………………………………………………………………………... 11III. Palliative Care/End-<strong>of</strong>-Life/Bereavement………………………………………………... 16A. Palliative Surgery………………………………………………………………….….. 27IV. <strong>Pain</strong> and Symptom ManagementA. <strong>Pain</strong> Assessment Tools……………………………………………………………….. 30B. Pharmacology/Policies and Procedures…………………………………………….. 32C. Complimentary, Alternative and Integrative Approaches ………………………..… 38V. Special PopulationsA. Family Caregiving…………………………………………………………………… 43B. <strong>Pain</strong> Management, Palliative, and Long-Term Care in the Elderly.……………….. 52C. Pediatrics……………………………………………………………………………… 56D. Cultural Considerations in Palliative Care……..…………………………………… 67E. Sickle Cell Disease…………………………………………………………………… 72F. HIV/AIDS…………………………………………………………………………….. 75G. Chronic Non-Malignant <strong>Pain</strong> & Headache ………………………………………… 78VI. EducationA. Pr<strong>of</strong>essional Competencies and Educational Programs……………………..…….. 81B. Patient and Family Education.………………………………………………………. 86VII. Quality Improvement……………………………………………………………………... 92A. Cost Effectiveness…………………………………………………………………….. 94VIII. Ethical and Legal Issues………………………………………………………………..… 95IX. Research Instruments/<strong>Resource</strong>s………………………………………………………… 97X. Other <strong>Resource</strong>s…………………………………………………………………………...101A. Related Organizations and Websites ……………………………………………….. 1042
CITY OF HOPE PAIN & PALLIATIVE CARE RESOURCE CENTER<strong>Index</strong> <strong>of</strong> <strong>Materials</strong>Unless otherwise <strong>no</strong>ted, all materials are $3.00 each copy to cover our expenses for copyrightcharges, printing and mailing. <strong>Please</strong> <strong>no</strong>te that most all items are available at <strong>no</strong> cost on our website(http://prc.coh.org). Under each section, materials are organized under the following categories:City <strong>of</strong> Hope PublicationsRecommended PublicationsEducational <strong>Materials</strong>/CurriculumGuidelines/Clinical PathwaysOther Organizational LinksKey ReferencesPosition Statements/StandardsI. Quality <strong>of</strong> Life and Cancer SurvivorshipSection Description: This section includes City <strong>of</strong> Hope publications and figures <strong>of</strong> the City <strong>of</strong> Hope Quality <strong>of</strong> Life conceptualmodels. The section also includes City <strong>of</strong> Hope Publications related to Quality <strong>of</strong> Life in specific populations <strong>of</strong> ovarian cancer,breast cancer, cancer survivors, and Hematopoietic cell transplantation.For more information on measurement tools, refer to Section IX. Research Instruments/<strong>Resource</strong>s.Quality <strong>of</strong> Life Models – all <strong>of</strong> the models include a list <strong>of</strong> references (see online PRC for links to models)- Quality <strong>of</strong> Life Breast Cancer Model- Quality <strong>of</strong> Life Cancer Survivor Model- Quality <strong>of</strong> Life Ovarian Cancer Model- Quality <strong>of</strong> Life Family Caregiver- Quality <strong>of</strong> Life Fatigue- Quality <strong>of</strong> Life Hematopoietic Cell Transplant (Bone Marrow Transplant)- Quality <strong>of</strong> Life Ostomy Model- Quality <strong>of</strong> Life <strong>Pain</strong>City <strong>of</strong> Hope Publications1. Smith, T., Temin, S., Alesi, E., Abernethy, A., Balboni, T., Basch, E., Ferrell, B. R., Loscalzo, M., Meier, D., Paice, J.,Peppercorn, J., Somerfield, M., Stovall, E., & Von Roenn, J. (2012). American Society <strong>of</strong> Clinical Oncology ProvisionalClinical Opinion: The integration <strong>of</strong> palliative care into standard oncology care. Journal <strong>of</strong> Clinical Oncology, 30(8), 880-887.doi: 10.1200/JCO.2011.38.5161.2. Borneman, T., Piper, B., Koczywas, M., Munevar, C., Sun, V., Uman, G., & Ferrell, B. R. (2012). A qualitative analysis <strong>of</strong>cancer-related fatigue in cancer-related fatigue in ambulatory oncology. Clinical Journal <strong>of</strong> Oncology Nursing, 16(1), E26-E32.doi: 10.1188/12.CJON.E26-E32.3. Grant, M., Eco<strong>no</strong>mou, D., Ferrell, B. R., & Uman, G. (2012). Educating health care pr<strong>of</strong>essionals to provide institutionalchanges in cancer survivorship care. Journal <strong>of</strong> Cancer Education, Published online 24 January 2012.4. Cooke, L., Chung, C., & Grant, M. (2011). Psychosocial care for adolescent and young adult hematopoietic cell transplantpatients. Journal <strong>of</strong> Psychosocial Oncology, 29(4), 394-414. DOI: 10.1080/07347332.2011.582636.5. Gemmill, R., Kravits, K., Ortiz, M., Anderson, C., Lai, L., & Grant, M. (2011). What do surgical oncology staff nurses k<strong>no</strong>wabout colorectal cancer ostomy care? The Journal <strong>of</strong> Continuing Education in Nursing, 42(2), 81-89. DOI: 10.3928/00220124-20101101-04.3
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M.A.G.N.U.M. Awareness GroupMigrain
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Emerging Solutions in Pain Legal an
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American Chronic Pain Association (
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TMJ Association - http://www.tmj.or
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