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Parenting A Child With Autism Parenting A Child With Autism ...

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29-Jul-12<strong>Parenting</strong> A <strong>Child</strong> <strong>With</strong> <strong>Autism</strong><strong>Parenting</strong> A <strong>Child</strong> <strong>With</strong> <strong>Autism</strong>Michael PhuangTaiping, Perak08 June 2012<strong>Parenting</strong>StressCaring And ServicesParental InvolvementNECIC 2012 Sibu Malaysia 1NECIC 2012 Sibu Malaysia2<strong>Parenting</strong>This job is filled with emotions. The terror andsadness upon realising that your child issuffering from a lifelong disability, to theunbelievable joy when you see your childrespond as their name is called, there is noother job in this world like parenting an autisticchild and it isn't anyone's choice of careers.Stress…Families with autistic children are likely toencounter problems :• getting referrals• coordinating care• receiving support.NECIC 2012 Sibu Malaysia 3NECIC 2012 Sibu Malaysia4Our concern…Many doctors dismiss the parents’ concernsor don’t take them seriously, believingthat parents are just being overly anxious,which contributed to delayed diagnosticprocess.Completely clueless to any form ofcommunication, unable to understandspoken words. Lack of social skill andhyperactivityNECIC 2012 Sibu Malaysia 5NECIC 2012 Sibu Malaysia6NECIC 2012 Sibu Malaysia 1


29-Jul-12More Stress…Upon diagnosis, the treatment phase is alsostressful and frustrating because of theamount of therapy needed for the differentdevelopmental and physical challengesassociated with autism.Lacking…Lack of professional services in districthospitals and among private practitionersin smaller towns is rubbing salt into theparents’ wound.NECIC 2012 Sibu Malaysia 7NECIC 2012 Sibu Malaysia8Caring And ServicesContinuously learning effective ways to helpthem, sourcing appropriate services and neverlosing hope. As, “There is no hopeless child, onlyhopeless parents”Early InterventionServicesEarly Intervention effectively improves achild’s developmental levels and is crucialas it helps to make a difference in theirfuture.Phuang ZhiQiangwith his teacherNECIC 2012 Sibu Malaysia 9NECIC 2012 Sibu Malaysia10Parental InvolvementEarly Intervention Centres operated by NGOs.Many children benefited from the perseveranceof countless care-givers, teachers, volunteersand donors.Participation in NGOs and Early InterventionProgram will further enhance a child’sachievement.NEW HORIZONS SOCIETYFor Services to <strong>Child</strong>ren <strong>With</strong> DisabilitiesCaring and Helping Individuals with Learning Disabilities Society(CHILD Society)NECIC 2012 Sibu Malaysia 11NECIC 2012 Sibu Malaysia12NECIC 2012 Sibu Malaysia 2


29-Jul-12Passing the batonParents should be more proactive in fosteringself-help rather than waiting for such services tocome to you.R E S U L T S…16 months into EIPPicture Exchange CommunicationSystem (PECs)- A tool for communicationNECIC 2012 Sibu Malaysia 13NECIC 2012 Sibu Malaysia14Thank YouNECIC 2012 Sibu Malaysia15NECIC 2012 Sibu Malaysia 3

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