DbI Review 35 - Deafblind International

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Deafb lind Per sons in Croatia“It was a night of glamour, aspecial night for all deafblindpersons in Croatia, the nightthat witnessed that dreams canbe realized ”Zagreb made speeches ofwelcome to the group.William Green, the presidentof Deafblind International,and Lex Grandia, SecretaryGeneral of World Fe d e r a t i o nof The Deafblind, both friendsof Dodir, made special andwarm speeches. Members ofthe theatre studio ofdeafblind persons performedone act of the play,Cinderella.There were severalmarvellous surprises as well!We received a great presentfrom the Ministry of Healthand Social Welfare. It was acheque for half a millionkunas for the adaptation ofDodir office space. We alsoreceived the certificate for“extraordinary achievementsin advancing the rights ofdeafblind people in Croatia”from Sense International. Wesang our thanks and afteranother inspirational closingspeech the dancing began. Asthe red and white balloonswere falling around, Mrs.Sanja Tarczay and Mr.Zvonimir Costar, the Head ofthe City Health, Labour andWelfare Department led thedancing to the sounds ofw a l t z .We danced and sangt o g e t h e r, with all oursupporters from all parts ofs o c i e t y, until it was time toblow out the first ten candleson our very special birthdayc a k e !It was a night of glamour, aspecial night for all deafblindpersons in Croatia, the nightthat witnessed that dreamscan be realized. And we areonly ten years old…Lex Grandíaof WFDbThe teamfrom Dodir1 6 • DbI Review • JA N U A R Y – JU N E 2 0 0 5
C E S S AC E SSA – Special EducationCentre for deafblind childrenand teenagersWe continue our series of articles about work with deafblind children andyoung people in France. This time Christine Tap describes the work of CESSACESSA is located on theoutskirts of Po i t i e r s ,and is currentlyattended by 29 children, 4 to20 years old, coming from allover France. This is because ofthe low incidence of thishandicap.All the children attendingCESSA have a dual sensoryloss, seriously affecting theirhearing and sight, so they canb e :– profoundly deaf and blind– profoundly deaf andpartially sighted– hearing-impaired and blind– hearing-impaired (hard-ofhearingto severely deaf)and– partially sightedIn addition, they could haveone or several otherassociated impairments( m o t o r, intellectualimpairment, or personality orbehaviour disorders, but alsoother sensory impairments).Most of them needconsiderable medicalsupervision and daily care.As to the origin of theird i s a b i l i t y, the children arecurrently distributed in thefollowing manner:AetiologyNumberof childrenCongenital rubella 3CHARGE syndrome 8Infantile REFSUM syndrome 2WOLFRAM syndrome 1KID syndrome 1USHER syndrome 4Aftereffects of encephalopathyand prematurity 5Unknown aetiology 5Two thirds of the currentapplications for admission arefrom youngsters in a situationof emergency, who haveeither been deprived of anysupport – sometimes forseveral years – or are gettingto the end of the standardintegration school systemand, in order to progress,need a very individualizedsupport using very specialtools, and/or multipletechniques. (Sign Language/Braille) So, those who arearriving now are youngsterswho are losing their sight, orcoming out of psychiatriccare, or for whom the originalschool “gave in” because ofthe complexity of theirhandicap and the supportn e e d e d .For several years already wehave tried to be “there” forthese youngsters and theirfamilies. However, this year,we will have to reject manyapplications, because CESSAalready has 4 pupils morethan the number authorizedby the social securitya p p r o v a l .Characteristics ofChild CareOur educational, teachingand therapy project is basedon having the child in thecentre of the system, not inorder to “repair” hishandicap, but in order to helphim/her to live with it in thebest possible way. Our aim isto guide him/her towardsadult autonomy and, whereDirector ofCESSA,Christine TapJA N U A R Y – JU N E 2 0 0 5 • DbI Review • 1 7
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DbI Review 35 - Deafblind International

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