Genetics Conference Presentation Dr Ghazala Mir and Dr Katie Spicer

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Research and ethnicity• Research role in Family Nurse Partnershipprogramme - exclusion of young BME women withlanguage needs and risk factors not explored ifwith family (migration, isolation, deprivation,access)• Parallel intervention suggested for BME women –ie targeted programme of comprehensive support• Lack of local research a reason for lack of localaction (cf teenage pregnancy pathway).• Feedback mechanisms for service developmentunderrepresent BME women
Religion and ‘risk factors’• Supportive: eg Muslim chaplains/religious authorities supportingbreastfeeding advice; mosques disseminating health promotionmaterials.• Supporting women/conflicting with professionals: Somereligious authorities perceived to be ‘in denial’ about geneticexplanations for infant mortality. Muslim staff seen as ‘dissuading’post mortems considered ‘very important indeed’ by doctors repotential for informing about future pregnancies. Religiousteachings on terminations• Stereotypes/prejudicial views of Islam may be promotedamongst professional actors – influenced by ethnic and socialclass as well as religious differences. Professional relationshipwith individual women may be influenced by their perception ofwomen’s social identity before interaction has even taken place
Page 2 and 3: Background• Social exclusion and
Page 4 and 5: Workshop Outline• Review of infan
Page 6: Scarf Diagram
Page 9 and 10: Existing evidenceEvidence for compl
Page 11 and 12: Social support and infant mortality
Page 13 and 14: Key Informant Interviews: Ethnicity
Page 15: Genetics and infant death• Consan
Page 19 and 20: Discussion questionWhat should a st

Genetics Conference Presentation Dr Ghazala Mir and Dr Katie Spicer

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