Genetics Conference Presentation Dr Ghazala Mir and Dr Katie Spicer

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Conclusion• Importance of a broader approach, responsive tospecifics of local context• Design and delivery of a genetics service must betailored to local situations, needs and perspectives• Vital to address challenges in delivering healthcare and support to women and families fromminority ethnic groups• These challenges are likely to play out in thedelivery of a genetics service and could threaten itssuccess
Discussion questionWhat should a strategy for reducing infantmortality in the Pakistani community looklike?How might this address:– deprivation: low birth weight, prematurity– access to support– genetic risk factors/termination decisions– quality of healthcare– specialist support services?
Page 2 and 3: Background• Social exclusion and
Page 4 and 5: Workshop Outline• Review of infan
Page 6: Scarf Diagram
Page 9 and 10: Existing evidenceEvidence for compl
Page 11 and 12: Social support and infant mortality
Page 13 and 14: Key Informant Interviews: Ethnicity
Page 15 and 16: Genetics and infant death• Consan
Page 17: Religion and ‘risk factors’•

Genetics Conference Presentation Dr Ghazala Mir and Dr Katie Spicer

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