The Information Book Edition 3 - Paediatric Integrated Cancer Service

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Camp QualityCancerCouncilCanTeenChallengeChildren’sCancer CentreFoundationCIKA —Auxiliaryof the RCHServices for childrenSupport organisation for 0 – 13 year oldsRecreational supportKids and family campsFamily fun days, siblings daysFinancial supportHoliday accommodationEducation and puppets programGeneric cancer educational materialFree work shopsFamily ConnectPhone support and support services HelplineFinancial supportFind a support groupSupport organisation for 12 – 24 year oldsliving with cancerSupport to patients, siblings, offspringPeer support camps and recreational daysOnline and printed educationaland support resourcesCampsFamily activity days and playgroupParent supportHospital supportEducational and musical scholarshipsHoliday accommodationFinancial supportChallenge Family Centre –massage, artand music therapy, counselling, informationseminars, childhood cancer libraryPhilanthropic group funding clinical care,basic laboratory and translational research,and hospital-based activities for cancerpatients at RCH and MMCFundraise for solid tumour researchContact detailswww.campquality.com.auvic@campquality.org.auPhone 9329 6566www.cancervic.org.auPhone 13 1120www.canteen.org.auvicadmin@canteen.org.auPhone 9329 5288www.challenge.org.aumail@challenge.org.auPhone 9329 8474www.cccf.org.auinfo@cccf.org.auPhone 9635 6605president@cika.org.auPhone 9345 4855KOALA KidsPhilanthropic group, part of the Children’sCancer Centre Foundation, funding hospitalbasedactivities and providing the small thingsthat make a difference to the lives of cancerpatients and their familieswww.cccf.org.aukoalakids@cccf.org.auPhone 9635 6605Support and assistance Sec.6.7Updated July 2012
LARCH —Auxiliaryof the RCHLeukaemiaFoundationMake A WishMyRoomRedkiteRonaldMcDonaldHouseServices for childrenFundraise to support researchGeneric education programsTransport assistanceSome accommodationSome practical supportWish granting for children from 3 – 17 yearsold Toy hampers for children under 3 yearsPhilanthropic group funding research, socialwork and clinical programsFinancial assistance and counsellingSupport a social worker positionBook clubTelephone and email supportTelegroupsEducation grantsAccommodationEducation scholarshipsRonald McDonald learning programFamily holiday accommodationFamily retreatsContact detailslarch1@optusnet.com.auPhone 9345 4855info@leukaemia.org.auwww.leukaemia.org.auPhone 9949 5800wishes@makeawish.org.auPhone 1800 032 260www.myroom.com.auPhone 9345 4855support@redkite.org.auwww.redkite.org.auPhone 1300 722 644www.rmdh.org.auPhone 9345 6300Starlight Wish granting up to the age of 18Starlight Express Room at the RCHTeenage programsLivewirewww.starlight.com.auPhone 1300 727 827Strike a Chord Music for Life grants www.strikeachordfor children.orgPhone (08) 9227 7930Very SpecialKidsRespite careFamily activity daysSibling supportCounselling and emotional supportmail@vsk.org.auwww.vsk.org.auPhone 9804 6222WACK(Wimmeraagainst Cancerin Kids)Food and petrol vouchers for families fromthe Wimmera DistrictRonald McDonald HousePhone 9345 6300RCH Social Work DepartmentPhone 9345 9300Sec.6.8 Support and assistanceUpdated July 2012
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The Information Book has been devel
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4Updated July 2012
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2.2.1 Monash Children’s2.2.2 The
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4 ContentsUpdated July 2012
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CCC fax 9345 6524RCH Consumer liais
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Ronald McDonald House - Monash Medi
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Social WorkSocial Work Department 9
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YOUR CHILD’S DIAGNOSIS:Your child
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Your child’s treatment plan or pr
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Sec.1:6 Your ChildUpdated July 2012
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The ward - Kookaburra WardLocation:
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WaitingSometimes there can be a wai
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At the hospitalThe following table
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ServicesOthersFamily Resource and R
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• Meals prepared at home must be
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• Encourage your child to partici
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Quick HelpIf you are concerned abou
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The wardLocation: Level 4, Main bui
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Children have a variety of treatmen
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ServicesLaundry Available in the Ro
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Being with your childParents are we
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Discharge planningPlanning for disc
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Quick HelpIf you are concerned abou
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The wardLocation: 9th Floor, Tower
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If you and your child have not met
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At the hospitalThe following table
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ServicesOthersActivity cupboard - g
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School-age children and adolescents
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Hospital locations, VictoriaRegiona
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Over the past fifteen years, the cu
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Tests and procedures to diagnose ca
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Lumbar punctureWith some cancers, s
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Cancer treatmentsOnce it is establi
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SurgeryMany children with cancer wi
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Hints to help your child take table
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Complementary medicine and alternat
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Side effects and what to doTreatmen
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Platelet countPlatelets are needed
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A number of medicines called ‘ant
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Hints for managing weight loss:•
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Other drugs containing Aspirin or I
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What are the benefits from particip
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• What will happen if I or my chi
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What is LTF?Long term follow-up is
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Page 103 and 104: Chickenpox, Measles and MumpsThese
Page 105 and 106: Helping your child cope with illnes
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Page 109 and 110: • Breathing/relaxation: Telling y
Page 111 and 112: Offer a balanced dietGood nutrition
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Page 115 and 116: • Keep raw meats away from all ot
Page 117 and 118: Oral and dental careMouth careDurin
Page 119 and 120: How schools can support young peopl
Page 121 and 122: Suggestions to maintain links inclu
Page 123 and 124: Other educational support available
Page 125 and 126: Things to remember• A consistent
Page 127 and 128: Exercise and activity during treatm
Page 129 and 130: Taking care of your relationshipsHa
Page 131 and 132: • Some siblings benefit from canc
Page 133 and 134: With your workmatesSometimes, conti
Page 135 and 136: Sec.4.34 Caring for your child and
Page 137 and 138: Other Medical StaffClinical fellows
Page 139 and 140: Mental health clinicianMental healt
Page 141 and 142: Support StaffAdministrative staffTh
Page 143 and 144: Sec.5.8 Your child's treating teamU
Page 145 and 146: Other assistanceAmbulance transport
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Page 149: Childhood Cancer Support GroupsList
Page 153 and 154: Sec.6.10 Support and assistanceUpda
Page 155 and 156: Make A WishMyRoomRedkiteRonaldMcDon
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Page 160 and 161: • Use blogging provider sites wit
Page 162 and 163: 8 Frequentlyasked questionsDuring y
Page 164 and 165: What is a high-energy drink for whe
Page 166 and 167: 9 GlossaryWhat does that word mean?
Page 168 and 169: DRUG LEVELS - drug levels in the bl
Page 170 and 171: OSTEOSARCOMA - a cancer of the bone
Page 172 and 173: What does that abbreviation mean?AL
Page 174 and 175: Options for providing feedbackI wan
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