The Information Book Edition 3 - Paediatric Integrated Cancer Service

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2.3 Your child’s hospitalPeter MacCallumCancer CentrePeter Mac in East Melbourne is the only hospital in Victoria that provides aspecialised radiation therapy service for children and adolescents. Your childwill need to go to Peter Mac if he/she requires radiotherapy as part of thecancer treatment.This section is about Peter Mac and contains information regarding the ward,outpatients and the cancer care team. It also provides information on things tobring to the hospital when your child is admitted here and services and facilitiesavailable at the hospital during your stay.Peter Mac is located at St Andrew’s Place, corner Lansdowne Street,East Melbourne. Melway Reference MAP 2G: A2.Your child’s hospital – Peter Mac Sec.2.3:1Updated July 2012
The wardLocation: 9th Floor, Tower Block via lifts at the end of red carpet tileson Ground floorWard 9 at Peter Mac is where your child stays if he/she is having total bodyirradiation (TBI). Ward 9 is on the 9th floor of the Tower Block. You get to ward9 via the lifts at the end of the red carpet tiles on the ground floor. Your childwill have his/her own single room. Your child will be admitted on the afternoonof the day before starting TBI and will be transferred back to your hospital afterthe final TBI treatment.How the ward worksThe Nurse Unit Manager (NUM) is the overall leader on the ward and isusually there during business hours. The NUM makes sure that the ward runssmoothly and that your child is cared for properly. If you have any concernsplease talk to the unit manager.The Associate Unit Managers (AUM) runs the ward in shifts, 24 hours, sevendays a week. They are also the people to talk to if you have any concernsor questions.The consultant radiation oncologist meets with the registrars and theydiscuss all the children on the ward. The consultant or registrar will seeyour child each day with the Peter Mac nurse coordinator. The medical andnursing staff communicate closely to support and care for your child.StaffThe paediatric service at Peter Mac includes medical staff, nursing staff,radiation therapists, social work, pastoral care and music therapy. The PeterMac team works closely with the team at your child’s referring hospital (TheRoyal Children’s Hospital, Monash Children’s and other private hospitals).The telephone numbers of your child’s Peter Mac team are listed on the HotNumbers page in the front of this book.The consultant radiation oncologist is a specialist in the delivery of radiationtreatment to children and adolescents with cancer.A senior radiation oncology registrar is present at Wednesday clinics.If your child is admitted to Peter Mac for Total Body Irradiation (TBI), the registrarwill review your child each day while he/she is an inpatient at Peter Mac.Sec.2.3:2 Your child’s hospital – Peter MacUpdated July 2012
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The Information Book has been devel
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Page 7 and 8: 2.2.1 Monash Children’s2.2.2 The
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Page 13 and 14: CCC fax 9345 6524RCH Consumer liais
Page 19 and 20: Ronald McDonald House - Monash Medi
Page 23 and 24: Social WorkSocial Work Department 9
Page 25 and 26: YOUR CHILD’S DIAGNOSIS:Your child
Page 27 and 28: Your child’s treatment plan or pr
Page 29 and 30: Sec.1:6 Your ChildUpdated July 2012
Page 31 and 32: The ward - Kookaburra WardLocation:
Page 33 and 34: WaitingSometimes there can be a wai
Page 35 and 36: At the hospitalThe following table
Page 37 and 38: ServicesOthersFamily Resource and R
Page 39 and 40: • Meals prepared at home must be
Page 41 and 42: • Encourage your child to partici
Page 43 and 44: Quick HelpIf you are concerned abou
Page 45 and 46: The wardLocation: Level 4, Main bui
Page 47 and 48: Children have a variety of treatmen
Page 49 and 50: ServicesLaundry Available in the Ro
Page 51 and 52: Being with your childParents are we
Page 53 and 54: Discharge planningPlanning for disc
Page 55: Quick HelpIf you are concerned abou
Page 59 and 60: If you and your child have not met
Page 61 and 62: At the hospitalThe following table
Page 63 and 64: ServicesOthersActivity cupboard - g
Page 65 and 66: School-age children and adolescents
Page 67 and 68: Hospital locations, VictoriaRegiona
Page 69 and 70: Over the past fifteen years, the cu
Page 71 and 72: Tests and procedures to diagnose ca
Page 73 and 74: Lumbar punctureWith some cancers, s
Page 75 and 76: Cancer treatmentsOnce it is establi
Page 77 and 78: SurgeryMany children with cancer wi
Page 79 and 80: Hints to help your child take table
Page 81 and 82: Complementary medicine and alternat
Page 83 and 84: Side effects and what to doTreatmen
Page 85 and 86: Platelet countPlatelets are needed
Page 87 and 88: A number of medicines called ‘ant
Page 89 and 90: Hints for managing weight loss:•
Page 91 and 92: Other drugs containing Aspirin or I
Page 93 and 94: What are the benefits from particip
Page 95 and 96: • What will happen if I or my chi
Page 97 and 98: What is LTF?Long term follow-up is
Page 99 and 100: Sec.3.32 CancerUpdated July 2012
Page 101 and 102: • If you live in the country your
Page 103 and 104: Chickenpox, Measles and MumpsThese
Page 105 and 106: Helping your child cope with illnes
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Helping your child cope with testsa
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• Breathing/relaxation: Telling y
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Offer a balanced dietGood nutrition
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2Updated July 2012
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• Keep raw meats away from all ot
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Oral and dental careMouth careDurin
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How schools can support young peopl
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Suggestions to maintain links inclu
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Other educational support available
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Things to remember• A consistent
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Exercise and activity during treatm
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Taking care of your relationshipsHa
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• Some siblings benefit from canc
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With your workmatesSometimes, conti
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Sec.4.34 Caring for your child and
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Other Medical StaffClinical fellows
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Mental health clinicianMental healt
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Support StaffAdministrative staffTh
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Sec.5.8 Your child's treating teamU
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Other assistanceAmbulance transport
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It is the primary source for consum
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Childhood Cancer Support GroupsList
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LARCH —Auxiliaryof the RCHLeukaem
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Sec.6.10 Support and assistanceUpda
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Make A WishMyRoomRedkiteRonaldMcDon
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3. Qualifications of editorial staf
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• Use blogging provider sites wit
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8 Frequentlyasked questionsDuring y
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What is a high-energy drink for whe
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9 GlossaryWhat does that word mean?
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DRUG LEVELS - drug levels in the bl
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OSTEOSARCOMA - a cancer of the bone
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What does that abbreviation mean?AL
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Options for providing feedbackI wan
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The Information Book Edition 3 - Paediatric Integrated Cancer Service

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