The Information Book Edition 3 - Paediatric Integrated Cancer Service

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Coming to hospital: what to bring...Your child might need to be admitted several times to hospital for treatment.Here’s a list of things you and your child might need:For your child• Day clothes• Pyjamas• Favourite toys and security items –dummies, teddy, blanket. Pleaseselect toys carefully as space islimited• Toiletries – soap, tooth brush,toothpaste• Nappies and wipes, if needed• HeadphonesFor yourself if staying overnight• Clothes• Sleeping bag• Pillow• Towel• Toiletries• Headphones• Spare change for the telephone• Food and drink**There are facilities to store a small amountof food and drink in the parent fridge.Please ensure all personal food and drinkare clearly labelled. Please read the RCH‘Food From Home’ policy further on in thissection for more information.Your child’s hospital – RCH Sec.2.1:5Updated July 2012
At the hospitalThe following table summarises some of the services and facilities at The RoyalChildren’s Hospital.Services For the child For the parentAccommodationMealsShower andtoiletsKookaburra wardLevel 2, West building22 single and 2 shared rooms;total 26 beds8 separate rooms in BoneMarrow Transplant (BMT) UnitMenu monitors collect orderSeparate snacks menu alsoavailableBaths can happen at any timeduring the day, discuss withyour nurseRonald McDonald House28 Gatehouse StreetParkvilleContact the ward staff fordetails of cost and facilitiesTea / coffee and breakfastprovided in the Parent Lounge(no meals)Range of food outlets onGround floorVending machines onLevels 1-5Single rooms have an ensuitethat parents can useIf your child is sharing a room,please use the bathrooms inthe Parent Lounge on Level 2Parents of BMT patientscannot use the ensuite in thechild’s room, use bathrooms inParents Lounge on Level 2Sec.2.1:6 Your child’s hospital – RCHUpdated July 2012
Page 3 and 4: The Information Book has been devel
Page 5 and 6: 4Updated July 2012
Page 7 and 8: 2.2.1 Monash Children’s2.2.2 The
Page 9 and 10: 4 ContentsUpdated July 2012
Page 13 and 14: CCC fax 9345 6524RCH Consumer liais
Page 19 and 20: Ronald McDonald House - Monash Medi
Page 23 and 24: Social WorkSocial Work Department 9
Page 25 and 26: YOUR CHILD’S DIAGNOSIS:Your child
Page 27 and 28: Your child’s treatment plan or pr
Page 29 and 30: Sec.1:6 Your ChildUpdated July 2012
Page 31 and 32: The ward - Kookaburra WardLocation:
Page 33: WaitingSometimes there can be a wai
Page 37 and 38: ServicesOthersFamily Resource and R
Page 39 and 40: • Meals prepared at home must be
Page 41 and 42: • Encourage your child to partici
Page 43 and 44: Quick HelpIf you are concerned abou
Page 45 and 46: The wardLocation: Level 4, Main bui
Page 47 and 48: Children have a variety of treatmen
Page 49 and 50: ServicesLaundry Available in the Ro
Page 51 and 52: Being with your childParents are we
Page 53 and 54: Discharge planningPlanning for disc
Page 55 and 56: Quick HelpIf you are concerned abou
Page 57 and 58: The wardLocation: 9th Floor, Tower
Page 59 and 60: If you and your child have not met
Page 61 and 62: At the hospitalThe following table
Page 63 and 64: ServicesOthersActivity cupboard - g
Page 65 and 66: School-age children and adolescents
Page 67 and 68: Hospital locations, VictoriaRegiona
Page 69 and 70: Over the past fifteen years, the cu
Page 71 and 72: Tests and procedures to diagnose ca
Page 73 and 74: Lumbar punctureWith some cancers, s
Page 75 and 76: Cancer treatmentsOnce it is establi
Page 77 and 78: SurgeryMany children with cancer wi
Page 79 and 80: Hints to help your child take table
Page 81 and 82: Complementary medicine and alternat
Page 83 and 84: Side effects and what to doTreatmen
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Platelet countPlatelets are needed
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A number of medicines called ‘ant
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Hints for managing weight loss:•
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Other drugs containing Aspirin or I
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What are the benefits from particip
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• What will happen if I or my chi
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What is LTF?Long term follow-up is
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Sec.3.32 CancerUpdated July 2012
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• If you live in the country your
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Chickenpox, Measles and MumpsThese
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Helping your child cope with illnes
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Helping your child cope with testsa
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• Breathing/relaxation: Telling y
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Offer a balanced dietGood nutrition
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2Updated July 2012
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• Keep raw meats away from all ot
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Oral and dental careMouth careDurin
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How schools can support young peopl
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Suggestions to maintain links inclu
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Other educational support available
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Things to remember• A consistent
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Exercise and activity during treatm
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Taking care of your relationshipsHa
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• Some siblings benefit from canc
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With your workmatesSometimes, conti
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Sec.4.34 Caring for your child and
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Other Medical StaffClinical fellows
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Mental health clinicianMental healt
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Support StaffAdministrative staffTh
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Sec.5.8 Your child's treating teamU
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Other assistanceAmbulance transport
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It is the primary source for consum
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Childhood Cancer Support GroupsList
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LARCH —Auxiliaryof the RCHLeukaem
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Sec.6.10 Support and assistanceUpda
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Make A WishMyRoomRedkiteRonaldMcDon
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3. Qualifications of editorial staf
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• Use blogging provider sites wit
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8 Frequentlyasked questionsDuring y
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What is a high-energy drink for whe
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9 GlossaryWhat does that word mean?
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DRUG LEVELS - drug levels in the bl
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OSTEOSARCOMA - a cancer of the bone
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What does that abbreviation mean?AL
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Options for providing feedbackI wan
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The Information Book Edition 3 - Paediatric Integrated Cancer Service

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