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Fall 2008<br />

<strong>Palliative</strong> <strong>Care</strong><br />

Lilian and Benjamin Hertzberg<br />

<strong>Palliative</strong> <strong>Care</strong> Institute<br />

Giving | PAGE 8 How Can We Improve <strong>Care</strong> | PAGE 1<br />

Massage Therapy | PAGE 6<br />

Brookdale Department of Geriatrics and Adult Development<br />

The <strong>Mount</strong> <strong>Sinai</strong> School of Medicine<br />

How Can We Improve <strong>Care</strong><br />

for Seriously Ill Patients?<br />

“ Teach Health Professionals the Skills They Need”<br />

“Why are we surprised that it’s so hard to get good care for seriously ill people?”<br />

asks Diane E. Meier, MD, Director of the Hertzberg <strong>Palliative</strong> <strong>Care</strong> Institute. “We shouldn’t<br />

be shocked to encounter doctors who don’t know how to manage pain, or nurses who<br />

aren’t equipped to help a patient and family through a very difficult conflict or guide them<br />

in coming to terms with some bad news. These are teachable skills, but we actually need<br />

to ensure that they are taught.” According to Dr. Meier, these skills should not lie in the<br />

exclusive domain of <strong>Palliative</strong> <strong>Care</strong> specialists.<br />

In the year 2011, the first group of millions of baby boomers will reach the age of sixty-five.<br />

During coming decades, “the overwhelming majority of persons flooding the health<br />

care system will be people with advanced chronic and serious conditions,” warns Dr. Meier.<br />

“Their primary needs, including relief of pain, stress and other symptoms of illness,<br />

will relate to palliative care. We need to re-connect the education of all health professionals<br />

to the needs of patients and families. No one should graduate from medical, nursing,<br />

or social work school without core competencies in palliative care.”<br />

Continued on page 7<br />

Printer to adjust<br />

photo –<br />

warm up fleshtones,<br />

less gray<br />

Diane E. Meier, MD<br />

Director, Hertzberg <strong>Palliative</strong> <strong>Care</strong> Institute


2<br />

Lilian and Benjamin Hertzberg<br />

<strong>Palliative</strong> <strong>Care</strong> Institute<br />

Brookdale Department of Geriatrics<br />

and Adult Development<br />

<strong>Mount</strong> <strong>Sinai</strong> School of Medicine<br />

One Gustave L. Levy Place, Box 1070, NY, NY 10029<br />

Tel. 212-241-1446<br />

www.mssm.edu/palliative<br />

Diane E. Meier, MD<br />

Director, Hertzberg <strong>Palliative</strong> <strong>Care</strong> Institute<br />

Director, Center to Advance <strong>Palliative</strong> <strong>Care</strong><br />

Catherine Gaisman Professor of Medical Ethics<br />

Professor, Departments of Geriatrics and Medicine<br />

Albert L. Siu, MD, MSPH<br />

Ellen and Howard C. Katz Chairman’s Chair<br />

Brookdale Department of Geriatrics<br />

and Adult Development<br />

<strong>Mount</strong> <strong>Sinai</strong> School of Medicine<br />

Director of the GRECC at the James J. Peters<br />

VA Medical Center<br />

R. Sean Morrison, MD<br />

Vice-Chair for Research<br />

Director, National <strong>Palliative</strong> <strong>Care</strong> Research Center<br />

Director of Research, Hertzberg <strong>Palliative</strong> <strong>Care</strong> Institute<br />

Hermann Merkin Professor of <strong>Palliative</strong> <strong>Care</strong><br />

Emily J. Chai, MD<br />

Medical Director<br />

Hertzberg <strong>Palliative</strong> <strong>Care</strong> Institute<br />

Assistant Professor, Brookdale Department<br />

of Geriatrics and Adult Development<br />

Gabrielle Goldberg, MD<br />

Education Director<br />

Hertzberg <strong>Palliative</strong> <strong>Care</strong> Institute<br />

Assistant Professor, Brookdale Department<br />

of Geriatrics and Adult Development<br />

Bette Kerr<br />

Writer and Editor<br />

Co-Editor: Susie West<br />

Photographers: Bruce Kushnick and Ana Blohm, MD<br />

Art Director: E.Fitz Art, Inc.<br />

The Hertzberg Philanthropic<br />

Leadership Council<br />

Peggy Danziger<br />

Joseph Hertzberg<br />

Walter W. Hess, Jr.<br />

Ellen Katz<br />

Ruth Madoff<br />

Diane E. Meier, MD<br />

Susan L. West<br />

Zena Wiener<br />

The Chaplaincy<br />

Another Way to Provide Comfort and Healing<br />

“In a hospital, people can easily lose their sense of identity,”<br />

observes Rabbi Edith Meyerson, Chaplain for the Hertzberg<br />

<strong>Palliative</strong> <strong>Care</strong> Institute. “Clad in hospital gowns, with only<br />

wrist name bands to identify them, patients can feel like<br />

prisoners in their beds. I’m here to remind them of who they are,<br />

to invite them to share their stories, their thinking, their lives.”<br />

Religion can play a major part in the healing process. “In pastoral<br />

care it’s important to meet people wherever they are,” explains<br />

Rabbi Meyerson. “Rather than asking someone to come into my<br />

boat, I board patients’ boats. They hold the oars and take me where<br />

Rabbi Edith Meyerson<br />

they want to go. My role as chaplain is to row with them as they<br />

share experiences of life, illness, faith, God, relationship – whatever they have on their<br />

minds and in their hearts. The simple yet deeply profound goal is to let them share<br />

their stories and feel heard.”<br />

When people are strongly connected to their faith, Rabbi Meyerson asks if they would<br />

like to talk with her about their beliefs. If they are affiliated with a particular house of<br />

worship, she offers to contact their clergy person. When there is a specific religious need<br />

that she can not fulfill, Rabbi Meyerson finds someone who can meet that need.<br />

A generous gift from<br />

Idee Schoenheimer and her<br />

husband Pierre, together<br />

“The simple yet deeply profound<br />

with a contribution from the<br />

Hebrew Union College, funded<br />

goal is to let patients share their<br />

the chaplaincy internship that<br />

stories and feel heard.”<br />

first brought Rabbi Meyerson<br />

to <strong>Palliative</strong> <strong>Care</strong>. “Healing<br />

– RABBI EDITH MEYERSON<br />

takes many forms,” reflects<br />

Mrs. Schoenheimer, adding,<br />

“There is a spiritual aspect<br />

to it. It doesn’t necessarily have<br />

to be God. During the crisis of serious illness we are vulnerable, we need someone to<br />

offer some grounding. The <strong>Palliative</strong> <strong>Care</strong> physicians do this so well. Why not offer<br />

them the assistance of a chaplain to augment their services?”<br />

Comfortable in a hospital setting, Rabbi Meyerson has found her niche in her new<br />

position. She reveals, “I was exposed early to the beautiful way my Dad, a cardiologist,<br />

practiced medicine, the way he related to his patients. I saw evidence of the spiritual<br />

gifts his patients gave to him, too.” In the <strong>Sinai</strong> <strong>Palliative</strong> <strong>Care</strong> team, Rabbi Meyerson<br />

sees a similar respect for patients’ humanity. In addition to patients and families,<br />

she provides support to clinicians and staff, allowing them to talk about personal issues<br />

and feelings that may emerge while they care for seriously ill people.<br />

To spend time with a family during a patient’s final hours is “a very holy experience,”<br />

says Rabbi Meyerson. “The family welcomes me on to sacred ground.” Officiating<br />

at a recent <strong>Palliative</strong> <strong>Care</strong> Memorial Service, she helped provide “an opportunity to<br />

think about ways to honor our loved ones, to remember the lives that touched us<br />

and to reflect on our own lives.”<br />

“Every day has been well spent if I know I’ve touched someone, if I’ve provided some<br />

sort of comfort or healing,” concludes Rabbi Meyerson.


A Growing Demand for <strong>Palliative</strong> <strong>Care</strong><br />

“Our Program began as a small consultative service,” says Dr. Emily<br />

Chai, Medical Director of Clinical Services in <strong>Palliative</strong> <strong>Care</strong>.<br />

“In 1998 we had one attending physician and one nurse. <strong>Hospital</strong><br />

physicians called on us mainly when their patients were near<br />

the end of life. We helped them alleviate symptoms and make<br />

patients comfortable. Today we are consulting and caring for<br />

seriously ill patients throughout the hospital, regardless of whether<br />

they will live for a week or for years. We help many people lead<br />

long, high-quality lives. Our staff has grown exponentially.”<br />

Now in its tenth anniversary year, the Hertzberg <strong>Palliative</strong> <strong>Care</strong><br />

Institute has two full-time clinical teams, both with physicians,<br />

nurse practitioners, and social workers. A massage therapist works<br />

with both teams. “We will soon be heading toward a third team,”<br />

adds Dr. Chai. “Meanwhile, we have to be creative to meet a<br />

steadily increasing need. We designated one team to see older<br />

adults and one for younger patients. Since we’re part of the<br />

Geriatrics Department, we can augment our coverage when<br />

Geriatrics physicians see <strong>Palliative</strong> <strong>Care</strong> patients. Most important,<br />

we can be even more patient-centered, determining which<br />

physicians are best equipped to serve patients’ specific needs.”<br />

Another move towards efficiency and better care involves<br />

the Fellows, young physicians pursuing specialized training<br />

in <strong>Palliative</strong> <strong>Care</strong>. On weekends, patients are given the Fellows’<br />

pager numbers and can obtain access to a physician around<br />

the clock. According to Dr. Chai, “This is tremendously<br />

reassuring for patients, and it’s a learning opportunity for<br />

Fellows, who can always call upon an attending physician<br />

if consultation is needed.”<br />

In only five years, the number of inpatients seen annually by<br />

the <strong>Palliative</strong> <strong>Care</strong> service has doubled from 619 in 2003 to 1138<br />

in 2007. “That’s without counting outpatients,” adds Dr. Chai.<br />

What is <strong>Palliative</strong> <strong>Care</strong> Anyway?<br />

“<strong>Palliative</strong> care (pronounced pal-lee-uh-tiv) specializes<br />

in the relief of the pain, symptoms, and stress of serious<br />

illness. <strong>Palliative</strong> care is appropriate at any point in an<br />

illness, and it can be provided at the same time as treatment<br />

that is meant to cure you.”<br />

Information on free resources for<br />

help in situations that may require<br />

palliative care can be found at:<br />

www.getpalliativecare.org<br />

Lilian and Benjamin Hertzberg <strong>Palliative</strong> <strong>Care</strong> Institute<br />

<strong>Palliative</strong> <strong>Care</strong> Clinical Team Meeting<br />

Carol Stangby, LCSW; Emily Chai, MD and Sue McHugh-Salera, NP<br />

“More and more, physicians throughout the <strong>Hospital</strong> realize<br />

they’re not equipped to treat all the symptoms of critically ill<br />

patients, and to hold the time-consuming, intense, in-depth<br />

conversations that we have with both patients and family.<br />

Education is a big part of our mission. We’re teaching both doctors<br />

and the general public to understand and value <strong>Palliative</strong> <strong>Care</strong>.”<br />

“We are consulting and caring for seriously<br />

ill patients throughout the hospital, regardless<br />

of whether they will live for a week or for years.”<br />

– EMILY CHAI, MD<br />

Under Dr. Chai’s leadership, a recent all-day retreat allowed faculty<br />

and staff to dedicate themselves to strategic planning, and, for<br />

the first time in a retreat, self-care. “We were able to focus a little<br />

more on ourselves than we do in regular clinical sessions where<br />

we talk about emotions that come up with specific patients.<br />

Increased awareness of our own feelings enables us to take better<br />

care of our patients,” reveals Dr. Chai, adding, “I so enjoy the<br />

interaction with my staff. Every single one is a highly skilled<br />

clinician and a team player. My patients – and the staff – draw me<br />

back and motivate me to do more each day.”<br />

According to Dr. Chai, the next big step forward is to create a<br />

<strong>Palliative</strong> <strong>Care</strong> Inpatient Unit. The <strong>Hospital</strong> has agreed to provide<br />

the raw space, but the Program has to raise money for everything<br />

else. “We want all nurses and floor staff to be trained in <strong>Palliative</strong><br />

<strong>Care</strong>,” says Dr. Chai. “ If we don’t have to teach them what to do,<br />

and we have a smaller patient to nursing ratio, we can spend<br />

more time taking better care of very sick patients in a state of the<br />

art facility.” Rooms will be private – with kitchenettes – and family<br />

members can stay overnight. “We envision an attractive, inviting,<br />

less institutional space. Finding funding and moving ahead with<br />

this is a huge challenge,” concludes Dr. Chai.<br />

3


4<br />

Medical Students’ Education:<br />

“ My Week in <strong>Palliative</strong> <strong>Care</strong> Reminded Me of Why I Entered Medical School.”<br />

“Only during my week on the <strong>Palliative</strong> <strong>Care</strong> service was I able to<br />

focus on patients in a way that I envisioned doing before coming<br />

to medical school,” reflects a third-year medical student.<br />

“Since 2006 we require all medical students to have a rather<br />

unique one-week rotation in <strong>Palliative</strong> <strong>Care</strong> as part of their<br />

12-week combined clerkship in Internal Medicine and Geriatrics,”<br />

explains Dr. Gabrielle Goldberg, Director of the <strong>Palliative</strong> <strong>Care</strong><br />

Education Center. “Our intention is not to make all students<br />

<strong>Palliative</strong> <strong>Care</strong> physicians, but to educate them to be better<br />

doctors – more compassionate, more aware of the wishes of<br />

patients and families.”<br />

The palliative care requirement for medical students involves<br />

collaboration among many individuals and groups. Dr. Reena<br />

Karani of Geriatrics and Dr. Peter Gliatto of Internal Medicine<br />

co-direct the 12-week clerkship. Professional and support<br />

staff are augmented via a gift from the <strong>Mount</strong> <strong>Sinai</strong> Auxiliary<br />

Board to fund the <strong>Palliative</strong> <strong>Care</strong> Education Center. According to<br />

Dr. David Muller, Dean of Medical Education, “We are one of only<br />

a handful of schools in the country to require this type of rotation<br />

and it is in keeping with the mission and tradition of <strong>Mount</strong> <strong>Sinai</strong>.<br />

Our educational program is focused on service, altruism, and<br />

the pivotal role of the physician in society. <strong>Palliative</strong> <strong>Care</strong> is one of<br />

the best expressions of those goals in the practice of medicine.”<br />

“It’s all about putting patients and their families<br />

first, focusing on their goals of care even<br />

when they aren’t necessarily ‘medical.’”<br />

– DAVID MULLER, MD<br />

During their rotation, students participate in interactive<br />

sessions on pain management and communication skills<br />

and review their learning goals with faculty members.<br />

Making rounds with the <strong>Palliative</strong> <strong>Care</strong> teams, students observe<br />

patient care as well as meetings with families. “They may<br />

take part of the patient history, talk to patients, do examinations,<br />

or collect laboratory data from the computer,” reveals Dr. Karani.<br />

In addition, she notes that “this is the only time in their medical<br />

school training that students are exposed to one of the most<br />

highly functioning teams in medical care. Students are always<br />

seeing patients throughout the hospital, but until this week<br />

they don’t get a sense of how people from different disciplines –<br />

medicine, social work, nursing, physical therapy – can really<br />

work together with complex patients.”<br />

Gabrielle Goldberg, MD, instructing Medical Student Deena Adimoolam<br />

Comments from different sectors about the<br />

<strong>Palliative</strong> <strong>Care</strong> rotation for medical students bear<br />

strikingly similar themes:<br />

Dr. Karani:<br />

“Since we have one of the best, most renowned programs<br />

in <strong>Palliative</strong> <strong>Care</strong> with an amazing team of providers,<br />

not exposing students to this until recently seemed like<br />

a glaring absence.”<br />

Dr. Goldberg:<br />

“It’s rejuvenating for all of us to work with the medical students<br />

and see them immediately appreciate the amount of time<br />

we spend with patients and families and our intense and<br />

compassionate focus.”<br />

Dean Muller:<br />

“It’s all about putting patients and their families first, focusing<br />

on their goals of care even when they aren’t necessarily ‘medical,’<br />

and the privilege of doing things beyond the call of duty for<br />

people at their most vulnerable. These are the most important<br />

messages we can send to our students.”<br />

Medical student:<br />

“My week helped me learn that palliative care is not a service<br />

to sign out to once I have exhausted medical interventions<br />

with a patient. Rather, it is one to partner with as I care for<br />

individuals with either chronic or terminal illnesses and<br />

try to help their families too. I am grateful to the palliative<br />

care team for not only teaching me these valuable lessons<br />

but also supporting me as I struggled with the difficult issues<br />

they confront daily.”


A Family Commitment to Philanthropy<br />

and a Fellowship in <strong>Palliative</strong> <strong>Care</strong><br />

Concern for the future of health care and a strong philanthropic<br />

spirit are hardly novel in the Leader family, where feelings are<br />

translated into actions by each generation. The Sidney D. and<br />

Ruby F. Leader Fellowship in <strong>Palliative</strong> Medicine, endowed this<br />

year, “is something my parents would have wanted us to do,”<br />

says Steven D. Leader. “It’s also a natural outgrowth of where<br />

Steve and I are right now,” adds his wife Barbara. “We’re teaching<br />

and mentoring, working on the new generation in so many<br />

aspects of our lives. Enabling advanced training for young<br />

palliative care physicians is a perfect fit.”<br />

“A <strong>Mount</strong> <strong>Sinai</strong> pediatrician, my dad was always focused on<br />

the humanity of medicine,” says Steven Leader. “He felt that<br />

some of that focus was lost in later years and he wanted to bring<br />

it back. Mom was trained as a speech teacher. Like her brothers,<br />

James and Irving Felt, she was committed to volunteerism,<br />

social issues, and giving back. James Felt was President of the<br />

Nursing College at <strong>Sinai</strong>, and he assembled much of the<br />

land on which <strong>Sinai</strong> built. I followed his career path as a real<br />

estate consultant.”<br />

When Ruby Felt Leader approached ninety with increasing<br />

visual limitations, she remained adamant about continuing<br />

her daily walks of a mile or two. “No taxis or buses for her,”<br />

says Steve. “But after a lifetime of independence and<br />

taking care of others, she became distressed at having to<br />

depend more on help for the tasks of daily life. Fortunately<br />

for all of us, Dr. Diane Meier was able to accept her as a<br />

geriatrics patient.”<br />

“We learned about palliative care through my mother-in-law’s<br />

relationship with Dr. Meier,” reflects Barbara Leader, a<br />

speech-language pathologist now on the faculty at New York<br />

Medical College and in private practice in Manhattan.<br />

The Leader Family:<br />

Two Generations of Philanthropy<br />

Ruby F. and Sidney D. Leader, left.<br />

Barbara and Steven Leader, right.<br />

Lilian and Benjamin Hertzberg <strong>Palliative</strong> <strong>Care</strong> Institute 5<br />

“Steve’s mother remained at home until the end of her life.<br />

She was fortunate to have a doctor who treated not only her<br />

physical symptoms but relieved some of the depression that<br />

came on with increased disability. Dr Meier talked to her,<br />

spent time with her, listened, placed value on what she said,<br />

never minimized her as an old lady talking. She cherished her<br />

and gave her the respect she was due for her 92 years.” Adds Steve,<br />

“When it became clear that Mom was near the end of her life,<br />

I was at peace with that because she was comfortable and taken<br />

care of so well. When Mom died in 2006, our family decided<br />

to make this gift in honor of both my parents.”<br />

“A <strong>Mount</strong> <strong>Sinai</strong> pediatrician, my dad was<br />

always focused on the humanity of medicine.”<br />

– STEVEN LEADER<br />

Experiencing what the palliative care approach encompasses,<br />

Barbara and Steven Leader found it “unbelievable” that<br />

“no component is overlooked. There’s even an element<br />

of spirituality.” According to Barbara, “Sure, there are<br />

practical things to provide – tests, medications, and more.<br />

But providing emotional support for the patient, while<br />

meeting the family’s needs too, distinguishes this program<br />

from other fields of medicine.”<br />

The Leaders want others to experience the type of care that<br />

Dr. Sidney Leader hoped would return to medical practice.<br />

By endowing the fellowship, “the fact that we might be able<br />

to influence the growth and expansion of palliative care<br />

is very satisfying,” states Barbara. During Ruby’s final weeks,<br />

she enjoyed sharing cross-generational perspectives with<br />

the fellows and medical students assigned to visit her at home.<br />

“What a great plan – to enable young medical students to<br />

learn from and become comfortable working with the elderly,’’<br />

adds Barbara.<br />

“We came away so impressed,” says Steve, after he, Barbara<br />

and their daughters Jaclyn and Allison recently met the<br />

current fellows. “This program is attracting young physicians<br />

of extraordinary talent.” Adds Barbara, “It makes us optimistic<br />

about the future. How far the field of medicine strayed from<br />

the days Steve’s dad made house calls and took payment in<br />

produce or chickens! Hopefully the circle is closing in the other<br />

direction. It’s a pleasure to affirm our confidence in the<br />

Hertzberg Institute’s success.”


6<br />

Massage Therapy: A Gentle Touch<br />

From left: JD Elder, LMT and Coordinator; Jean Blackman, LMT; Sandra Cherry, LMT; Molly Brooks, LMT; Fran Whelan, LMT; Sharon Houlihan,<br />

LMT; and Deborah Matza, RN and Yoga Coordinator. Volunteers not pictured: Jason Alcantara; Leela Southworth; Andrea Sandahl-Hart<br />

Brought to the Hertzberg Institute by a fortunate confluence of<br />

events, the Massage Therapy Program provides comfort and relief<br />

from stress not only to countless patients, but also to caregivers<br />

and hospital staff. “I had a long career in fitness and sports-related<br />

massage, but I always volunteered in other settings,” says JD Elder,<br />

a Licensed Massage Therapist who now heads the program.<br />

Eight years ago, officers of the Balm Foundation saw the Bill Moyers<br />

PBS television special “On Our Own Terms: A Different Kind<br />

of <strong>Care</strong>,” featuring the Hertzberg <strong>Palliative</strong> <strong>Care</strong> Institute. Aware<br />

of massage’s power as a therapeutic intervention for seriously ill<br />

patients, Balm Foundation officers contacted Hertzberg, offering<br />

funds to establish a massage therapy component, reveals Mr. Elder.<br />

“I was asked to become its Coordinator. The Balm Foundation continues<br />

to support us, allowing us to offer our services free of charge.”<br />

“We fully subscribe to the concept of treating<br />

the whole person, not just the illness.”<br />

– JD ELDER, LMT<br />

Augmented by a cadre of seven volunteers, the program has<br />

provided more than 5,500 massages since its inception. According to<br />

Mr. Elder, “For patients, our focus is comfort. Working with people<br />

who suffer from pain, shortness of breath, depression, agitation, or<br />

loneliness, we try to reduce physical and psychological stress. A calm<br />

environment is important. We make certain that the room is quiet.<br />

If patients wish, we play soft music or televised nature scenes.”<br />

Elaborating on why massage therapy and meditation techniques<br />

mesh perfectly with palliative medicine, Mr. Elder adds, “We fully<br />

subscribe to the concept of treating the whole person, not just the<br />

illness. We’re not only treating a heart surgery patient – but a person<br />

who might have a spouse, children, grandchildren, interests.<br />

JD Elder works with our patient, Mr. André<br />

Chervin at the Martha Stewart Center For Living<br />

We have a special fund set up by a donor to purchase magazines<br />

or provide hair styling and manicures. Amenities like these can<br />

improve a patient’s sense of well-being.”<br />

Extolling his volunteers, all Licensed Massage Therapists, JD Elder<br />

describes them as “keenly intelligent and sensitive, caring, loyal,<br />

and with varying specialties.” He coordinates their schedules and<br />

supervises them. “We train them in how to use massage therapy<br />

as a palliative measure, always employing a gentle touch. At the<br />

end of a session, they need to be sure that the call button, TV remote,<br />

tray and telephone are within the patient’s reach.”<br />

Several volunteers who provide massage therapy comment on<br />

their work:<br />

“I continue to learn so much from JD and the staff, as the training is<br />

ongoing. I know I make a difference – with patients, family members,<br />

and caregivers. I always leave with a smile on my face and memories<br />

in my heart.” Sandra Cherry<br />

“People have a view of massage as vigorous, but it can be adapted to<br />

meet all needs. The impact of the tender, compassionate touch we give<br />

to patients is amazing. Touch is an important part of life, especially<br />

for people who are at a crossroads. <strong>Care</strong>givers need to be touched, too.”<br />

Sharon Houlihan<br />

“In my early training, I was wrongly taught that massage therapists<br />

could work only on healthy people. Volunteering in palliative care is<br />

the best thing I have done for my professional and personal life. I’ve<br />

learned how profound the experience of a modified massage technique<br />

can be when it is provided with care and compassion.” Molly Brooks<br />

Gratified to head a program that has now been adapted by other<br />

hospitals and by the Visiting Nurse Service, JD Elder comments<br />

on his annual interdisciplinary workshop, where attendance<br />

has grown from 25 to 45 in only three years. “Funding from the<br />

Altman Foundation enabled us to develop this seminar, which is<br />

now supported by the Balm Foundation. We train Licensed Massage<br />

Therapists from all over so that they may branch out to work in<br />

hospital settings with seriously ill patients. They leave our workshop<br />

thinking very differently about massage therapy.”


Research Holds the Power to Improve <strong>Palliative</strong> <strong>Care</strong><br />

“To improve care for people with serious illness, we must do<br />

a far better job of equipping health care professionals with the<br />

knowledge base they need,” insists R. Sean Morrison, MD, Director<br />

of the National <strong>Palliative</strong> <strong>Care</strong> Research Center (NPCRC) which<br />

is housed at <strong>Mount</strong> <strong>Sinai</strong> School of Medicine. Focusing on pain<br />

and symptom management and better communication between<br />

clinicians and patients, NPCRC fosters research into new<br />

models and better delivery of palliative care.<br />

“To treat high blood pressure, I have eighty medications. For pain,<br />

a far more prevalent problem, I have only ten, all with side effects,”<br />

says Dr. Morrison, Hermann Merkin Professor of <strong>Palliative</strong> <strong>Care</strong><br />

and Professor of Geriatrics and Medicine. “We have a paucity<br />

of research that can guide doctors on treating shortness of breath<br />

or even fatigue, the most common and distressing symptom in<br />

people with advanced illness.”<br />

Continued funding from the Kornfeld and Olive Branch<br />

Foundations and major new investments from the Brookdale<br />

Foundation and Y.C. Ho /Helen and Michael Chiang Foundation<br />

have allowed the NPCRC to move forward in some major<br />

new initiatives including funding two additional junior faculty<br />

career development awards and a research consultancy program.<br />

Additionally, a recent multi-million dollar grant from the<br />

How Can We Improve <strong>Care</strong> for Seriously Ill Patients?<br />

Continued from page 1<br />

Dr. Diane Meier holds a family meeting with patient Mr. André Chervin<br />

and his partner Ms. Carola Vecchio<br />

Decrying medical education’s emphasis on machinery and technology,<br />

Dr. Meier is passionate about the need to focus on fundamental<br />

public health issues, preventive medicine, communication skills,<br />

and coordination of care across all settings. Medical and nursing<br />

students “need to spend less time memorizing and more time<br />

learning how to care for and communicate with patients,” she says.<br />

There is substantial progress. <strong>Palliative</strong> medicine has expanded<br />

greatly during the past 10 years, with 80% of teaching hospitals in<br />

the United States now reporting palliative care programs. Dr. Meier<br />

cautions: “That doesn’t necessarily mean that all the learners are<br />

getting exposure. It wasn’t until last year that our own <strong>Mount</strong> <strong>Sinai</strong><br />

medical students began a mandatory rotation in <strong>Palliative</strong> <strong>Care</strong>,<br />

despite our <strong>Palliative</strong> <strong>Care</strong> services having existed for 10 years.”<br />

Lilian and Benjamin Hertzberg <strong>Palliative</strong> <strong>Care</strong> Institute 7<br />

National Institute on Aging is enabling Dr.<br />

Morrison, in collaboration with Dr. Knox Todd<br />

of Beth Israel Medical Center, to seek ways to<br />

improve pain management in older adults.<br />

In April the NPCRC awarded its second series<br />

of annual grants. “We were overwhelmed and<br />

excited by the number of qualified applicants<br />

from across the country and thrilled to<br />

fund four junior and two senior investigators,”<br />

reports Dr. Morrison. Projects focus on<br />

R. Sean Morrison, MD<br />

research to improve communication about<br />

symptoms and goals of care among patients, their families, and<br />

doctors. Several center on outpatient palliative care models for<br />

people living in the community with cognitive impairment and pain.<br />

Asked about his drive to conduct and foster research and the<br />

extraordinary number of major grants he continues to receive,<br />

Dr. Morrison replies, “I want to reach the greatest number of<br />

people, to improve care at the highest level. The fact that <strong>Palliative</strong><br />

<strong>Care</strong> clinicians accomplish as much as they do is a testament to<br />

the innovative, committed people who enter this field. Think about<br />

the power they will have when we can supply the evidence base<br />

they need to treat symptoms far more effectively.”<br />

In April 2008 a New York State Council funded by the Legislature<br />

was created to advise the Health Commissioner on ways to improve<br />

training in pain management and palliative care. In a press release<br />

citing the need for the Council, on which Dr. Meier serves, Assembly<br />

Health Committee Chair Richard N. Gottfried stated that “many<br />

physicians do not have adequate or up-to-date education and<br />

training in palliative care and the diagnosis and treatment of pain.”<br />

Ten years ago the Textbook Project assembled teams of health<br />

professionals to scrutinize medical and nursing texts, exposing an<br />

appalling lack of palliative care content. Now, new editions of<br />

major texts in medicine, pediatrics, surgery, and nursing contain<br />

a significant amount of material related to palliative care.<br />

Another giant step forward took place in 2006, when palliative<br />

medicine was recognized as an official medical subspecialty –<br />

just like cardiology or pulmonary medicine. “That greatly legitimizes<br />

its role and presence in medical schools, both from the educational<br />

and research standpoint,” explains Dr. Meier.<br />

“When patients’ needs are not met,” concludes Dr. Meier, “it’s not<br />

usually because physicians or nurses are uncaring or indifferent.<br />

More often, they simply don’t know how to provide what’s needed.<br />

At <strong>Mount</strong> <strong>Sinai</strong> we are working to solve this problem by changing the<br />

way we educate our future doctors. As other institutions follow our<br />

lead and infuse palliative care content into the training of every health<br />

professional, we will see a difference in the way medicine is practiced.”


8<br />

Making Life Better by Giving<br />

Having experienced how much palliative care meant to her family,<br />

Zena Wiener, now an active Hertzberg Advisory Board member,<br />

approached Dr. Diane Meier and said: “I’d like to be in your<br />

army and follow you into battle.” “I saluted,” adds Mrs. Wiener,<br />

“and we started to laugh.” Thus began a collaborative relationship<br />

and a continuous outpouring of generosity. The most recent<br />

gift from the Wiener family – one million dollars over the<br />

next five years – will be used toward creating a palliative care<br />

inpatient unit in the <strong>Mount</strong> <strong>Sinai</strong> Medical Center.<br />

During both her father’s decline from Alzheimer’s disease and<br />

her sister-in-law’s serious illness, Mrs. Wiener learned that palliative<br />

medicine “is an inclusive discipline that connects family and<br />

patient. It provides incredible care and pain relief; it encompasses<br />

the needs of all members of the family.” She knows that for seriously<br />

ill hospital patients, a palliative care inpatient unit, with private<br />

rooms and an attractive physical environment, can offer optimal<br />

care and comfort.<br />

A dynamic and vibrant force, Mrs. Wiener seeks ways “to take away<br />

the strain of fundraising, to enable <strong>Palliative</strong> <strong>Care</strong> at <strong>Sinai</strong> to help as<br />

many people as possible.” Zena (“Zee”), a classically trained musician<br />

and former teacher, together with her husband Michael A.<br />

Wiener, a retired broadcasting entrepreneur and executive,<br />

have not only provided generous funding for Hertzberg year after<br />

year, but have also organized and sponsored fundraising events.<br />

Hertzberg Highlights<br />

Diane Meier, MD; Jane Brody and Susie West at<br />

the Douglas West Annual Endowed Lecture in<br />

<strong>Palliative</strong> <strong>Care</strong><br />

PHOTO CREDIT: ERIN GLEESON<br />

Kathy A. McMahon, President and CEO, HPCANYS,<br />

presents Susie West with the Ambassador of<br />

Hospice and <strong>Palliative</strong> <strong>Care</strong> Award<br />

Recognizing exceptional achievement in clinical research<br />

addressing health care problems of older adults, the<br />

American Geriatrics Association presented its Outstanding<br />

Scientific Achievement for Clinical Investigation Award to<br />

R. Sean Morrison, MD. This Award to an investigator involved<br />

in direct patient care was made May 2, 2008, at the Association’s<br />

Annual Meeting in Washington, D.C. Dr. Morrison addressed the<br />

group on the intersection of palliative care and geriatric medicine.<br />

These include a dinner to acquaint others<br />

with the efficacy of palliative care and its<br />

need for support.<br />

The Wieners rank among the strongest<br />

advocates for <strong>Mount</strong> <strong>Sinai</strong>, where Michael<br />

Wiener serves as a Trustee. Among their<br />

major gifts are an endowed chair in cancer,<br />

and funding to establish the Zena and<br />

Michael Wiener Cardiovascular Institute,<br />

Zena Wiener<br />

headed by Dr. Valentin Fuster. “We had the<br />

most devastating experience in 1996, suddenly and tragically losing<br />

our son Gabe,” reveals Mrs. Wiener. “I realized how random life can<br />

be. Living well while I’m here means doing what I can for others.”<br />

The Wieners and their daughter are committed to supporting many<br />

areas, with medicine and education as priorities. In honor of their<br />

son, a classical music producer, they endowed a music library at<br />

Columbia University and provided an organ to Central Synagogue.<br />

“If you can change only one thing, or one person, that person is a<br />

domino and changes another,’’ according to Mrs. Wiener, who<br />

has surely created a large corps of change agents. “If you have any<br />

money to give, give it well – to a place where it will do some good.”<br />

In “helping Dr. Meier and her palliative care program develop<br />

an army of recruits and enhanced facilities,” Zee Wiener knows<br />

she has found the right place.<br />

Speaking at <strong>Mount</strong> <strong>Sinai</strong> on May 6, 2008,<br />

New York Times personal health columnist<br />

Jane Brody delivered the Hertzberg Institute’s<br />

12th Annual Douglas West Lecture in<br />

Geriatrics and <strong>Palliative</strong> <strong>Care</strong>. Ms. Brody<br />

asked medical professionals to speak frankly<br />

with seriously ill patients and their families<br />

about quality of life and palliative and<br />

advance care planning. The lecture series was<br />

endowed by Susie West in memory of her husband<br />

Douglas.<br />

At its Annual Award Luncheon May 16, 2008,<br />

in Saratoga Springs, the Hospice and <strong>Palliative</strong><br />

<strong>Care</strong> Association of New York State honored<br />

Susie West with its Ambassador of Hospice and <strong>Palliative</strong> <strong>Care</strong><br />

Award. A letter informing Mrs. West of the Award stated: “The<br />

breadth and longevity of your experience as a volunteer is exceptional<br />

and your commitment to supporting the advancement of<br />

palliative care is truly admirable and deeply appreciated.” Mrs. West<br />

has been a full-time volunteer and generous supporter of the<br />

Hertzberg Institute for over ten years.

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