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Michael Fuchs National ethics councils - Deutscher Ethikrat

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<strong>Michael</strong> <strong>Fuchs</strong> <strong>National</strong> <strong>ethics</strong> <strong>councils</strong>. Their backgrounds, functions and modes of operation compared<br />

Nuffield Council on Bio<strong>ethics</strong><br />

The Nuffield Council on Bio<strong>ethics</strong> was established by the Nuffield Foundation in 1991.<br />

It is independent and is funded jointly by the Nuffield Foundation, the Wellcome<br />

Trust and the Medical Research Council. Its mission is to select important issues in<br />

the field of bio<strong>ethics</strong> and to set up working parties to consider them. The working<br />

parties draw up lengthy reports and issue brief recommendations. So far they have<br />

produced reports on genetic screening, the use of human tissues, xenotransplantation,<br />

mental disorders and genetics, genetically modified crops, medical research in developing<br />

countries, the <strong>ethics</strong> of patenting DNA, and genetics and human behaviour. In<br />

addition, discussion papers are sometimes compiled. The discussion paper Stem Cell<br />

Therapy: Ethical Issues of 6 April 2000 substantially anticipated current British legislation<br />

on therapeutic cloning and its regulation.<br />

The Council does not claim to be representative. It has only 14 members, chosen<br />

for their outstanding knowledge and experience. Its reports are particularly valued by<br />

international expert groups. Invitations to apply for membership are issued at intervals<br />

when a vacancy arises. They are directed in particular to medical practitioners,<br />

natural scientists, teachers, legal experts, persons with media and health management<br />

experience, and individuals with philosophical and ethical backgrounds. The<br />

Nuffield Council has often sent delegates to the Global Summit of Bio<strong>ethics</strong> Advisory<br />

Bodies, and has sometimes supplied members of its planning bureau.<br />

Websites<br />

HFEA: http://www.hfea.gov.uk<br />

HGC: http://www.hgc.gov.uk<br />

Nuffield Council: http://www.nuffieldbio<strong>ethics</strong>.org<br />

Bibliography<br />

Gelder, M. G. (1990). A <strong>National</strong> Committee for the Ethics of Research. Journal of Medical Ethics 16/3: 146 – 147.<br />

McCall Smith, A. (2001). Fragenbeantwortung. In: Enquete-Kommission “Recht und Ethik der modernen<br />

Medizin” (14. <strong>Deutscher</strong> Bundestag). Stellungnahmen von Vertreterinnen und Vertretern europäischer<br />

Ethikkommissionen zur Öffentlichen Anhörung “Europäischer Diskurs zu ethischen Fragen der modernen<br />

Medizin” vom 19. November 2001. Available online at:<br />

http://www.bundestag.de/parlament/kommissionen/archiv/medi/medi_di_stell/McCall_dt.pdf<br />

Nuffield Council (1992). Annual Report 1991/92. London.<br />

Nuffield Council (1992). Press Release: Working Party on Genetic Screening. London.<br />

Nuffield Council (1995). Human Tissue: Ethical and Legal Issues. London.<br />

Nuffield Council (1996). Animal-to-Human Transplants: The Ethics of Xenotransplantation. London.<br />

Nuffield Council (1999). Genetically Modified Crops: The Ethical and Social Issues. London.<br />

Nuffield Council (2000). Nuffield Council on Bio<strong>ethics</strong> 1992 – 99. London.<br />

32<br />

Nuffield Council (2000). Stem Cell Therapy: The Ethical Issues; a Discussion Paper. London.<br />

Nuffield Council (2002). The Ethics of Research Related to Health Care in Developing Countries.<br />

Available online at: http://www.nuffieldbio<strong>ethics</strong>.org/fileLibrary/pdf/errhdc_fullreport001.pdf<br />

Shapiro, D. (1995). Nuffield Council on Bio<strong>ethics</strong>. Politics and Life Sciences 14/2: 263 – 266.<br />

Turner-Warwick, M. (1994). Ways and Means of Ethics Committees: Counselling Authorities, Health System.<br />

In: Council of Europe (ed.). Standing Conference of European Ethics Committees. Proceedings, Stockholm<br />

8 – 9 April 1994: 35 – 37.<br />

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