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to get the file - Selective Mutism Group

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Due ProcessWhen you <strong>file</strong> for Due Process, you are requesting that formal court action be taken <strong>to</strong>hear your case. Most states will request that you attempt mediation before going <strong>to</strong> court.Mediation is non-binding <strong>to</strong> ei<strong>the</strong>r party, but is usually successful in reaching anagreement and avoiding court. The benefit of mediation is that it is not as formal andmay be quicker in <strong>get</strong>ting services for your child and you can still refuse <strong>to</strong> accept <strong>the</strong>media<strong>to</strong>rs proposal and go on <strong>to</strong> court. The negative about mediation is now you haveshown <strong>the</strong> district your cards and <strong>the</strong>y can better prepare <strong>the</strong>ir case against you.On May 21 st <strong>the</strong> Supreme Court ruled in <strong>the</strong> case of Winkelman vs. Parma City SchoolDistrict that parents may represent <strong>the</strong>ir children’s interests in special educationcases, and do not need <strong>to</strong> hire an at<strong>to</strong>rney.Complaint ProcessYou want <strong>to</strong> <strong>file</strong> for Due Process if <strong>the</strong> school district does not agree <strong>to</strong> provide yourchild FAPE in <strong>the</strong> LRE through <strong>the</strong> IEP process. If <strong>the</strong> district has violated FAPE in <strong>the</strong>LRE by failing <strong>to</strong> provide your child appropriate services <strong>the</strong>n it is imperative that you<strong>file</strong> a complaint with your state’s department of education. You must <strong>file</strong> <strong>the</strong> complaint<strong>to</strong> support your child and every o<strong>the</strong>r child in <strong>the</strong> school district. You know that <strong>the</strong>district is in violation so it is your civic duty <strong>to</strong> <strong>file</strong> <strong>the</strong> complaint in support of all <strong>the</strong>children out <strong>the</strong>re who do not have parents as savvy with <strong>the</strong> Special Education Law asyou are now. The State will usually carry out an independent on site investigation andmust issue a written decision within 60 days after <strong>the</strong> complaint is <strong>file</strong>d.The IEP Team MeetingAgree in writing <strong>to</strong> <strong>the</strong> time of <strong>the</strong> meeting…make sure that enough time is allocated for<strong>the</strong> meeting…at least 90 minutes.If at <strong>the</strong> end of <strong>the</strong> meeting you are not satisfied that your issues were adequatelyaddressed, don’t rush, request that a continuation meeting be scheduled.You can call an emergency IEP meeting at any time…you don’t have <strong>to</strong> wait for <strong>the</strong> nextannual meeting.IEP Meeting PreparationNotify <strong>the</strong> case manager in writing that you will be audio taping <strong>the</strong> meeting at least 24hours in advance of <strong>the</strong> meeting.3


Ask for copies of all assessments <strong>to</strong> be received at least 5 days before <strong>the</strong> IEP date.Read through assessments and call appropriate people <strong>to</strong> ask your questions before <strong>the</strong>meeting <strong>to</strong> save time at <strong>the</strong> meeting and better prepare your goals.Prepare a written background of your child and description of <strong>Selective</strong> <strong>Mutism</strong> for <strong>the</strong>IEP team. Include <strong>the</strong> DSM-IV (Diagnostic and Statistical Manual for Mental Disorders-Fourth Edition, Section 313.23) definition if team member are skeptical about <strong>the</strong> validityof <strong>Selective</strong> <strong>Mutism</strong>. The DSM is published by <strong>the</strong> American Psychiatric Associationand is <strong>the</strong> most widely used psychiatric reference in <strong>the</strong> world.Think about what you want for your child and make notes for yourself.During <strong>the</strong> IEP MeetingRemember not <strong>to</strong> ask for what is “best” for your child, but what is “appropriate” this iswhat you are due under FAPE. Focus on your goals and avoid tangents.Request accommodations that will make your child feel more relaxed and comfortable in<strong>the</strong> school setting. Think about your child’s “scariness hierarchy” and include babysteps as goals (desensitization/fading). Focus on <strong>the</strong> things that are least scary <strong>to</strong> yourchild. For example, ask teacher <strong>to</strong> limit direct questioning that requires more than just ayes or no nod and limit direct eye contact, request that child work only in very smallgroups, be assigned a buddy <strong>to</strong> go <strong>to</strong> <strong>the</strong> restroom, choose his/her own desk, <strong>get</strong> <strong>to</strong> know<strong>the</strong> teacher before <strong>the</strong> school year starts, additional time for completing assignments ortest taking.Request school district <strong>to</strong> pay for outside services if <strong>the</strong>re are no school district personnelwith <strong>Selective</strong> <strong>Mutism</strong> expertise available <strong>to</strong> support your child. Research servicesavailable through <strong>the</strong> “<strong>Selective</strong> <strong>Mutism</strong> Anxiety Research & Treatment” (SMART)Center, and request appropriate services for your child <strong>to</strong> be paid by <strong>the</strong> school district. Ifyou are denied a request, put your dissent in writing and ask <strong>the</strong> district <strong>to</strong> respond <strong>to</strong>your request in writing denying your request (great for proving lack of FAPE at a laterdate).AccountabilityYou must be provided feedback of your child’s performance on <strong>the</strong> IEP goals at least asfrequently as <strong>the</strong> general education report card periods.If an IEP goal is not met and <strong>the</strong> date is just moved out in <strong>the</strong> future this is not FAPE.More of <strong>the</strong> same approach is not FAPE. The district must provide a different strategy.IEP goals must be SMART (Specific Measurable Action oriented Realistic and Timespecific).4


Federal Disability Codes (Eligibility Criteria)Just as you fought for an IEP for your child, insist on <strong>the</strong> appropriate federal disabilitycode. Your child will receive greater services and attention under “O<strong>the</strong>r HealthImpaired” (OHI) than under <strong>the</strong> “Speech” code. Some children with <strong>Selective</strong><strong>Mutism</strong> are using <strong>the</strong> “Seriously (severely) Emotionally Disturbed” (SED) code, but Idon’t see any advantage <strong>to</strong> this code over <strong>the</strong> OHI code and <strong>the</strong>re is increased stigma <strong>to</strong><strong>the</strong> SED code.IEP Team CompositionThe IEP team must be composed of at least <strong>the</strong> parent, general education teacher,special education teacher (if appropriate), representative of <strong>the</strong> Local EducationAgency (administrative representative) who is qualified <strong>to</strong> provide, or supervise <strong>the</strong>provision of, specially designed instruction <strong>to</strong> meet <strong>the</strong> unique needs of children withdisabilities, is knowledgeable about <strong>the</strong> general education curriculum; and isknowledgeable about <strong>the</strong> availability of resources of <strong>the</strong> Local Education Agency, anindividual who can interpret <strong>the</strong> evaluation results. Bring your own advocate <strong>to</strong> <strong>the</strong>IEP meeting…anyone you want who can support your goals…you may be quiteemotional and it would be nice <strong>to</strong> take some of <strong>the</strong> pressure off of you and <strong>to</strong> keep youfocused.Parent must agree in writing if a team member is <strong>to</strong> be excused. If a team member leavesan IEP meeting in progress, document on <strong>the</strong> signature page <strong>the</strong> time that <strong>the</strong> teammember left <strong>the</strong> meeting.Write in your notes who is attended <strong>the</strong> meeting. Make sure that when you receive <strong>the</strong>final signed IEP that <strong>the</strong>re are no signatures of people who were never in attendance.Student RecordsThe Procedural Safeguards state that <strong>the</strong> parents of a child with a disability must beafforded, in accordance with <strong>the</strong> procedures of sections 300.6113 through 301.621, anopportunity <strong>to</strong> inspect and review all educational records with respect <strong>to</strong> <strong>the</strong>identification, evaluation, and educational placement of <strong>the</strong> child; and <strong>the</strong> provision ofFAPE <strong>to</strong> <strong>the</strong> child. At least annually, review all educational records for your child. Not5


just <strong>the</strong> CUM <strong>file</strong> located in <strong>the</strong> school office, but all records. In my school district it iscalled <strong>the</strong> “container”…it is just a bunch of folders, <strong>the</strong>re is no “container” as such, butthis is what it is called. When I went <strong>to</strong> <strong>the</strong> school office, I was given <strong>the</strong> office CUM<strong>file</strong> only; <strong>the</strong> office staff was unaware of any additional records. There was not a copy ofmy child’s current IEP in <strong>the</strong> CUM <strong>file</strong>. When I made a written request <strong>to</strong> <strong>the</strong> CaseManager, I received stacks of <strong>file</strong>s that I could just barely carry…some of <strong>the</strong> informationwas very interesting. There were notes and copies of assessments that I had not seenbefore. I just made a copy of anything that I didn’t have <strong>to</strong> add <strong>to</strong> my personal <strong>file</strong>. Byreviewing your child’s <strong>file</strong>(s), you are able <strong>to</strong> make sure that <strong>the</strong> most recent (and correct)copy of <strong>the</strong> IEP is available for school personnel <strong>to</strong> access and that you have knowledgeof all information that is retained pertaining <strong>to</strong> your child.Compiled by Stephanie Fimbres…a parent of a child with <strong>Selective</strong> <strong>Mutism</strong> who hasfound it invaluable <strong>to</strong> research our special education rights <strong>to</strong> advocate for our silentchildren<strong>Selective</strong> <strong>Mutism</strong> <strong>Group</strong>-Childhood Anxiety Network, California Coordina<strong>to</strong>rChair of <strong>the</strong> Community Advisory Committee for Special Education, San Diego UnifiedSchool Districtsfimbres@prusd.com6

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