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Color Version - Khartum Shriners
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Hospital Report . . . concluded from page 8<br />
with this disease earlier. So we can address their problems<br />
earlier, such as treating children before they have breaks in<br />
their backbones. We can also better manage the tooth problem<br />
and hopefully prevent the crumbling. Currently, many<br />
people with this disease simply have all their teeth<br />
extracted, but by doing so, the jaw bones become thinner<br />
and thinner with time. Finding a mechanism to preserve the<br />
teeth while minimizing pain would be a better alternative.”<br />
concluded Dr. Rauch.<br />
Helping Affected Children<br />
According to Dr. Moffatt, this type of research is like<br />
being a detective. “You begin to piece together the different<br />
clues. We have found the culprit, the duplication in the<br />
RUNX2 gene, but we don’t have all the details, the how and<br />
the why, we don’t have the whole story — this is only the<br />
beginning.” When asked what the next steps are, he further<br />
explained that “In order to push our research further and to<br />
fully understand the mechanisms underlying the disease,<br />
we need to identify and see more patients. In other words,<br />
with more information, we will be able to further<br />
validate our results and develop more targeted<br />
treatments.”<br />
Testing is available right now. If you are a<br />
doctor and have patients presenting with these<br />
symptoms or your child has these symptoms<br />
and would like to get tested and treated,<br />
Shriners Hospital for Children Canada asks<br />
that you refer to the hospital’s Metabolic Bone<br />
Clinic by either calling 514-282-6971 locally; the<br />
toll free number 1-800-361-7256, extension<br />
6971; or faxing the referral to 514-282-7221.<br />
outstanding medical education. The twenty-two facilities in<br />
the United States, Canada, and Mexico provide advanced<br />
care for children with orthopaedic conditions, burns, spinal<br />
cord injuries, and cleft lip and palate. Shriners Hospitals for<br />
Children is a 501(c)(3) nonprofit organization and relies on<br />
the generosity of donors. All donations are tax deductible to<br />
the fullest extent permitted by law. For more information,<br />
visit www.shrinershospitalsforchildren.org.<br />
Contact: Lem for your award needs<br />
About Shriners Hospitals<br />
for Children<br />
Shriners Hospitals for Children is changing<br />
lives every day through innovative pediatric<br />
specialty care, world-class research, and<br />
Oriental Band<br />
reetings from the nobles of the<br />
Oriental Band. We trust things<br />
Gare going well with you and<br />
your unit or club. Our new administrations<br />
are in place and we now hope we<br />
all have a good year. Here’s hoping.<br />
The Oriental Band welcomes our<br />
latest addition, Noble Howie Morrow.<br />
We hope he is going to enjoy his time<br />
with us as much as we enjoy having<br />
By Noble Bernie Gross<br />
him as one of our members. Howie is at<br />
present learning to play the musette<br />
which requires much practice to play<br />
properly so we wish him good fortune<br />
and happy times.<br />
There is not much else is going on<br />
with the Band right now, although we<br />
have been asked to play for some students<br />
at the University of Manitoba and<br />
at the Mennonite University. We still<br />
have to finalize both these events but<br />
-9-<br />
we are hoping to display our talents to<br />
these students.<br />
We also received a request from the<br />
Potentate, Illustrious Sir Andrew<br />
Skene, to put on the Tong degree at the<br />
end of the year which the Band agreed<br />
to do. Further information will be made<br />
available to all units sometime in the<br />
future.<br />
We continue to practice almost<br />
every Wednesday evening, so if you<br />
have nothing to do and would like to<br />
learn more about the Band, please join<br />
us and find out how much fun we really<br />
have when we get together.<br />
Finally, we wish good health and<br />
good fortune for all.