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Specialist Spinal Vocational Rehabilitation<br />

Mel <strong>Kelly</strong><br />

Kaleidoscope<br />

Research undertaken in 2014


Acknowledgements<br />

This research was made possible thanks to the Winston Churchill Memorial Trust, for granting<br />

me a Fellowship to travel to the U.S, UK and Switzerland. I am also grateful to the New Zealand<br />

Spinal Trust for their kind support. I would like to thank the hospitals and spinal associations that<br />

hosted me and whom provided insight and expertise that greatly assisted my research.<br />

I thank a number of valued colleagues for assistance and suggestions that greatly improved the<br />

manuscript, also Tracey Croot who reminded me to think about what I wanted to achieve and not<br />

limiting my vision, by considering the resourcing challenges.<br />

To the patients I have supported, celebrating your successes no matter how small, brings me such<br />

joy; by no means is this ‘just a job’ to me. There are many of your stories to tell; be it work<br />

related or not and you have allowed me into your lives. I thank you for being vulnerable,<br />

courageous and trusting in the ability to be knocked down but get back up again. You inspire me.<br />

Last, and certainly not least, to my beautiful family-thank you.<br />

<strong>WCMT</strong> Research Fellowship 1


Contents<br />

Executive summary Page 3<br />

Introduction – Kaleidoscope ‘Partnering people into Work Programme’ Page 5<br />

Research Fellowship Objectives Page 7<br />

SECTION 1 - History and Observations of the visited locations<br />

Rusk - New York, USA Page 9<br />

Burke - New York, USA Page 14<br />

Paraplegic Centre, Notwill, Switzerland Page 17<br />

Stoke Manderville, United Kingdom Page 21<br />

Spinal Injuries Association, United Kingdom Page 23<br />

SECTION 2 - Key areas to address<br />

A strategic collaborative approach is needed Page 25<br />

Community integration Page 27<br />

SECTION 3 - Resulting Action<br />

Great Expectations Project – Employers Page 29<br />

Ability Awareness Learning Experience Page 31<br />

Patient Workshops – Outreach and extension of service Page 32<br />

Conclusion Page 33<br />

References Page 35<br />

Appendices<br />

Appendix One: Model Explanation of ‘The Kaleidoscope Way’<br />

Appendix Two: Return to work in the context of Kaleidoscope<br />

Appendix Three: Te Whare Tapa Whā Māori Model of Health, NZ<br />

Appendix Four: Winston Churchill Memorial Trust Fellowship schedule, May 2014<br />

Appendix Five: Example schedule, Swiss Paraplegic Centre, Notwill<br />

Appendix Six: Pictorial Fellowship highlights<br />

<strong>WCMT</strong> Research Fellowship 2


Executive Summary<br />

For the 770 persons with a spinal cord injury (SCI) that Kaleidoscope has supported since 2003,<br />

it is often impossible to imagine life without work, life without meaning, and life without<br />

purpose. For many, work is the fabric of their daily lives – how they communicate with each<br />

other, social network, be a role model to their children, support themselves and their family as<br />

well as contributing to the global economy. Following SCI the top four questions a person asks<br />

are:<br />

1. Will I Survive?<br />

2. Will I walk again?<br />

3. Can I still have sex?<br />

4. Will I work again?<br />

With vocational rehabilitation being delivered in the acute phase following serious SCI, work is<br />

being addressed much sooner as part of rehabilitation. For many, just knowing someone is there<br />

to support the area of work, liaise with an employer, or to address a fear is often enough;<br />

involving the family is also vital.<br />

The opportunity provided to me by the Winston Churchill Memorial Trust (<strong>WCMT</strong>) allowed me<br />

to visit four internationally respected spinal hospitals. An insight into how vocational<br />

rehabilitation was delivered in other hospital environments and the community integration<br />

practices, would allow further development of Kaleidoscope.<br />

As a result of my learnings I have proposed three initiatives addressing each area; as well as<br />

making recommendations. The three initiatives are as follows:<br />

1. Expanding the Kaleidoscope service by piloting a group work readiness series - By<br />

hearing how other people tackle problems and make positive changes, it is my hope that<br />

patients will discover a whole range of strategies for facing their own concerns. The aim<br />

is to educate and build confidence, recognise shared experiences and develop a new set of<br />

skills and resources for community patients and where appropriate inpatients.<br />

2. The ‘Great Expectations’ Project is redeveloping our employer education and aims to<br />

transform attitudes – working to support employers when they question what is possible,<br />

accessibility is embraced and they employ a person with a SCI. Complimentary to this is<br />

formulation of a Business Advisory Committee<br />

<strong>WCMT</strong> Research Fellowship 3


3. Ability Awareness Learning Experience - Exploring the role of people with disabilities in<br />

the community enables pupils or employees to have an appreciation of SCI, but also<br />

awareness of what people ‘can do’ and how they do it<br />

Preparing, resourcing and delivering a number of initiatives is a good start. But my primary<br />

recommendation, ahead of community engagement, is collaboration. With the release of the<br />

Spinal Cord Impairment Action Plan (SCIAP, 2014), this is a call to action! So Kaleidoscope<br />

will work towards improving vocational support for the SCI community in the future by:<br />

1. Better educating healthcare professionals from non-specialist settings as well as local<br />

vocational provider knowledge of SCI. Kaleidoscope has the skills and resources in place to<br />

deliver this nationally and a collaborative model of engagement could be investigated and put in<br />

place.<br />

2. Master classes for employers - education and a lived client experience (invited consumer)<br />

3. Promoting and growing a societal expectation that a person will work following a SCI.<br />

4. Collaboration of inpatient – outpatient vocational providers during the discharge planning<br />

phase to enhance the patient journey and continuity.<br />

5. Research in the acute vocational rehabilitation setting. A quantitative evaluation of data<br />

collection and emerging themes would be valuable.<br />

6. Supporting clinical colleagues in the implementation of the SCIAP, a collective multidisciplinary<br />

approach<br />

7. Working with both ACC and the MOH where we can contribute to their education and<br />

vision, as well as add value through planning and preparation support<br />

My primary learning was that the vocational programmes visited were better resourced, mainly<br />

due to funding. The teams were greater in size and in dedicated singular roles. In saying this,<br />

excellent results are being achieved for spinal patients following vocational rehabilitation in NZ<br />

and in many cases Kaleidoscope is leading the way.<br />

<strong>WCMT</strong> Research Fellowship 4


Introduction – Kaleidoscope ‘Partnering people into Work Programme’<br />

According to a Disability Survey conducted in 2013 by Statistics NZ, 24 percent of the New<br />

Zealand population is identified as disabled, a total of 1.1 million people. The increase from the<br />

2001 rate (20 percent) is partly explained by an ageing population.<br />

At inauguration of Kaleidoscope, for the population who had a serious SCI, as a result of an<br />

accident and who were entitled to ACC Earnings Related Compensation (ACC ERC), the<br />

proportion of people confirmed in full or part-time work was 12%, implying an unemployment<br />

rate of a staggering 88%.<br />

During the course of the report I will refer to SCI, which covers serious spinal cord injury or<br />

illness (with a neurological diagnosis). Further to this the use of the word patient pertains to<br />

those persons engaged in vocational rehabilitation be it in the acute, rehabilitation or community<br />

setting.<br />

Kaleidoscope was formed in response to a clear need, and driven by a man Professor Alan<br />

Clarke. He first formed the New Zealand Spinal Trust (NZST) in 1994 to address the unmet<br />

needs of rehabilitation, information, research, advocacy and support for people with spinal cord<br />

injuries throughout New Zealand. The NZST is firmly focused on supporting independent living<br />

and improving the quality of rehabilitation through initiatives, projects and programmes that<br />

directly benefit people with a SCI. Professor Clarke said the language of good recovery is<br />

positive and personal, not cautious, p.c. or impersonal and institutional. He named this new<br />

approach the ‘New Rehabilitation’ which encourages each person to steer a new course for<br />

themselves, in the sure knowledge that fulfillment and happiness is achievable. If you think this<br />

sounds soft and fuzzy you are right. Serious recovery is very personal and involves hope, trust<br />

and happiness.<br />

Kaleidoscope is an early intervention vocational rehabilitation programme set up in 2003,<br />

dedicated to getting people who have a SCI into meaningful and sustainable employment. We<br />

have paved the way forward in developing a model of practice (Appendix 1.) which provides<br />

explanation of how we engage patients and gives context to what we do (Appendix 2.).<br />

Kaleidoscope is a programme of the NZST based at both the Burwood and Auckland Spinal<br />

Rehabilitation Units and also delivering services at Middlemore Hospital. The service delivered<br />

<strong>WCMT</strong> Research Fellowship 5


is specialist spinal vocational rehabilitation, both to acute patients and community patients.<br />

Kaleidoscope’s guiding principles are:<br />

• Everyone can have a great job<br />

• It’s healthy to be working<br />

• The sooner the better<br />

• There are thousands of work opportunities<br />

• Personal networks are the key<br />

• The process for getting a job is the same as before<br />

• You can do it yourself – whatever it takes!<br />

• Your life experiences give you unique qualifications<br />

The Kaleidoscope programme undertakes vocational<br />

rehabilitation work with people much earlier in their<br />

rehabilitation, i.e. 80% of patients are engaged within three<br />

weeks post SCI. This, combined with the holistic approach of<br />

the multi-disciplinary team engagement, sets these people up to<br />

powerfully re-enter the job market. Specialist Vocational<br />

Consultants provide on-going individual career coaching with a<br />

strong emphasis on the patient doing as much of the work as<br />

possible. Dependency can be a learned behaviour and we<br />

recognise this and want our patients to own their vocational<br />

rehabilitation, receive education and feel empowered.<br />

The other key aspect of the Kaleidoscope programme and<br />

crucial to its success is engaging employers early. Further to<br />

this, the close involvement of the local business community,<br />

tertiary training institutes and the persons family. This approach<br />

builds the patient’s confidence, self-awareness and improves<br />

their chances of getting jobs. The maintenance of hope and building resilience is recognised and<br />

carefully considered by the Kaleidoscope programme.<br />

“I haven’t fallen through the cracks<br />

because Kaleidoscope didn’t allow<br />

them to appear, and by being at work<br />

even just for lunch to start with, filled<br />

a social void and a purpose for the<br />

effort of just getting there. Work is<br />

more than just a job and money and<br />

now I see what Kaleidoscope has<br />

always seen.<br />

As a child a favourite toy of mine was<br />

a kaleidoscope, and now to me, a SCI<br />

at first is like a kaleidoscope of dark<br />

and broken pieces that won’t stop<br />

spinning to allow you to make sense of<br />

what has happened. BSU has put the<br />

colour back in my ‘kaleidoscope of<br />

life’ and now it even stops so I can<br />

enjoy the new and wonderful things I<br />

see and do.”<br />

Kaleidoscope patient – 2011<br />

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Now, in 2015, the SCI Return to Work rate for patients that had received Kaleidoscope services,<br />

either as an inpatient or as a community patient is, 60% in paid employment. This is<br />

represented by 348 people.<br />

Our aim is to ensure New Zealanders with a SCI are valued, productive and participating<br />

citizens. Kaleidoscope will enrich not only the persons’ life, but the NZ community; through<br />

inclusion and understanding.<br />

Research Fellowship Objectives<br />

The primary focus of my fellowship was to examine the vocational hospital services available at<br />

international renowned SCI centres and look at initiatives for community inclusion. Further to<br />

this, I aimed to access any educational SCI resources provided to patients; with the intention of<br />

enhancing overall wellness through work. This is in line with Te Whare Tapa Whā; the Māori<br />

health model supporting physical, mental, spiritual and family wellness (see Appendix 3.).<br />

I’d been questioning how to provide better support and education to New Zealand employers<br />

about hiring people with SCI. How could we better promote and encourage society as a whole<br />

that people with disabilities can participate in work and the value of it to everyone?<br />

The invaluable knowledge gained from the ability to learn from other countries delivering<br />

services, was to support the development and delivery of the Kaleidoscope (Partnering People<br />

into Work) Programme nationwide. Kaleidoscope is the only acute vocational rehabilitation<br />

programme in New Zealand dedicated to getting people who have a SCI back into full or part<br />

time employment – one step towards a fully independent, productive and confident life. To date<br />

we have had institutes worldwide visiting and learning from our programme, as well as<br />

providing training internationally; the acute aspect is the most unique element. The primary<br />

objectives I worked on are:<br />

<br />

<br />

<br />

To meet with other organisations that provided vocational rehabilitation services.<br />

To discover and learn about other initiatives in the vocational rehabilitation field.<br />

To build networks with other agencies doing similar work.<br />

To improve the Kaleidoscope programme and serve as a rehabilitation model/specialist<br />

programme for a nationwide audience of community development practitioners.<br />

<strong>WCMT</strong> Research Fellowship 7


Four specialist centres were selected because of their approach to rehabilitation, international<br />

respect and that vocational support was being delivered in a hospital environment; a timetable of<br />

my travels can be found in (Appendix 4).<br />

With rates of 130 - 180 New Zealanders a year acquiring a SCI through accident or illness,<br />

demand continues to grow. The injured person might be a young person yet to leave home, a<br />

parent with a family growing up, the main breadwinner or business-owner or an older person<br />

who had spent years planning out their retirement. Kaleidoscope’s support may last months or in<br />

some minuet cases years, depending on the individuals’ ability to adapt, up skill or change<br />

direction. My goal and that of the NZST is to ensure that this effective and valuable service is<br />

available to everyone nationwide whenever they need it. Securing employment or re-launching a<br />

business, the benefits are obvious in terms of independence and financial security; also though,<br />

valuable skills and abilities return to the local economy and community.<br />

<strong>WCMT</strong> Research Fellowship 8


SECTION 1 - History and Observations of the visited locations<br />

Rusk - New York, USA<br />

History<br />

Dr. Howard A. Rusk, widely considered “the father of rehabilitation medicine”, founded the<br />

Institute for Rehabilitation Medicine in 1948 (In 1984, the institute was renamed in his honour.)<br />

Drawing on his experience treating wounded soldiers during World War II, Dr. Rusk developed<br />

the Rusk Institute around the philosophy that rehabilitation medicine provides care for the entire<br />

person-not only their illness or disability, but also their emotional, psychological and social<br />

needs.<br />

I selected this institute due to the extensive vocational department, but also because the<br />

philosophy aligned with that of Kaleidoscope and the Māori Model of Health - Te Whare Tapa<br />

Whā (see Appendix 3). With its strong foundations and four equal sides, the symbol of the<br />

wharenui (house) illustrates the four dimensions of Māori well-being. Should one of the four<br />

dimensions be missing or in some way damaged, a person, or a collective may become<br />

‘unbalanced’ and subsequently unwell. In the NZ healthcare system, we focus and treat the<br />

physical presentation and the Māori health model otherwise known as the four cornerstones, also<br />

recognises the spiritual wellness, family inclusion (wairua) and the balance of the mind.<br />

Among its many innovations, the Rusk Institute pioneered vocational training for people with a<br />

range of disabilities. This is accessible for multiple disabilities; those with a SCI are part of this<br />

integral service.<br />

Rusk’s approach to Rehabilitation<br />

Rusk was also the first rehabilitation hospital to adopt a formalised multidisciplinary team<br />

approach to rehabilitation. In this approach, the attending rehabilitation physician evaluates the<br />

patient, and then develops an individualised treatment plan that may involve sessions with many<br />

different specialists - including physical, occupational, speech and vocational therapists,<br />

swallowing specialists, cognitive, music and recreational therapists, psychologists, nutritionists<br />

and social workers.<br />

In addition to caring for the patient’s physical condition, the rehabilitation team addresses the<br />

challenges of developing new strategies for daily living; the psychological adjustment of coping<br />

<strong>WCMT</strong> Research Fellowship 9


with change and uncertainty; the need for new forms of support for patients and their loved ones;<br />

and techniques for managing pain in order to improve comfort and aid healing. Patients and their<br />

families are important members of the care team as well. Through this team approach which is<br />

shared internationally, including NZ, patients receive coordinated care that includes a broad<br />

array of resources and therapies, carefully designed to help with each stage of recovery.<br />

Rusk consists of the following sites; I visited sites 2 and 3.<br />

1. Rusk at the NYU Langone Main Campus (530 First Avenue - 9th Floor) - inpatient adult<br />

rehabilitation<br />

2. Rusk at 17th Street (301 East 17th Street, in the Hospital for Joint Diseases) – inpatient<br />

adult rehabilitation and inpatient and outpatient paediatric rehabilitation<br />

3. The Ambulatory Care Centre (240 East 38th Street) – outpatient adult rehabilitation<br />

4. The Centre for Musculoskeletal Care (333 East 38th Street) – outpatient adult<br />

orthopaedic/musculoskeletal rehabilitation<br />

Vocational Services at NYU Langone’s Rusk Rehabilitation<br />

The vocational programme has been an integral part of NYU Langone’s Rusk Rehabilitation<br />

since its inception. The components offered are:<br />

Vocational counselling services<br />

Diagnostic Vocational evaluation<br />

Work Readiness and Job Skills Training Programme<br />

Computer Skills Training<br />

Job Placement Services<br />

Vocational Rehabilitation for Limb Loss<br />

o Commencing during the pre-prosthetic Programme<br />

Business Advisory Committee<br />

Vocational Evaluation Service<br />

Vocational Evaluation Services is an in-house programme which is offered to outpatients and the<br />

manner, in which this service is setup, allows the consultants to ‘learn from the patients’. The<br />

primary goals are self-awareness, career exploration and empowering the person; respecting their<br />

<strong>WCMT</strong> Research Fellowship 10


different disabilities and skills.<br />

The environment is a small<br />

classroom setting, factoring in<br />

multiple assessment stations<br />

such as desks, workshop tasks<br />

and a computer laboratory area<br />

(shown to the right). Patients<br />

are given tasks/assessments and<br />

consultants work with the<br />

person, as well as observing<br />

behaviour; indicating preferred<br />

learning styles, vocational<br />

strengths and any other<br />

highlighted considerations. The<br />

sessions that I observed<br />

included the following tasks:<br />

A high school level mathematics practice test<br />

An aptitude exercise, whilst being timed<br />

Building a model from a manual<br />

Writing a CV on the computer<br />

Solving a puzzle<br />

Feedback is provided throughout the evaluation period and consideration is given to each<br />

individual. Each person has a journal to record daily about vocational activities, support and<br />

captures their thoughts.<br />

Initial evaluation is for a period of 10 – 15 days, followed by a case conference which is patient<br />

led. Following the vocational assessments the skills, interests, academic history, work tolerance<br />

and aptitude formulate a vocational objective and tailored rehabilitation plan. The plan is likely<br />

to include further training, work readiness support or referral to job placement services.<br />

<strong>WCMT</strong> Research Fellowship 11


Work Readiness and Job Skills Training programme<br />

In participating with the group who consented to my presence, I was able to observe the benefits<br />

of a group job skills method of delivery, versus 1:1 consulting. The vocational consultant<br />

facilitating these sessions provided an encouraging environment where patients shared openly<br />

and really engaged in discussion. They were contributing to each other’s growth and found<br />

comfort in the similar challenges of job searching. Tools utilised, that we also use in NZ, were<br />

both behavioural and motivational interviewing, as well as reflective listening and a work<br />

readiness workbook.<br />

The seminar I took part in covered:<br />

What employers look for when hiring staff<br />

Thought for discussion: People leave managers, not jobs<br />

Disability and self-promotion<br />

Using initiative in your job search<br />

Things hiring managers wish you knew: Alison Green<br />

How to target the right jobs<br />

Your soft skills and specific job skills<br />

The ups and downs of job search - peer support amongst the group<br />

Following participation in the Rusk Rehabilitation’s Work Readiness and Job Skills Training<br />

Programme, participants are able to develop good work behaviours, and job skills in actual<br />

workplace settings. Participants are placed in offices, housekeeping areas, food service<br />

operations, information technology services, patient admitting areas, employee health services,<br />

and other worksite locations, either at NYU Langone or at external organisations. Participants<br />

receive supervised training and gain real work experience while refining their job performance<br />

and skills; in NZ we call this a work trial, which also tests a person’s capacity to work.<br />

The vocational consultant monitors the participant’s progress and provides job coaching as<br />

needed. Patients who complete the programme may either get placed in a job or be referred to an<br />

occupational skills training school or an academic programme.<br />

As a result of my learnings in this area, Kaleidoscope will be launching group patient<br />

workshops, followed by assessment, development and forward-panning from what is learnt<br />

in the initial phase.<br />

<strong>WCMT</strong> Research Fellowship 12


Vocational Consultants open session<br />

A primary objective of my journey was to understand how early in vocational rehabilitation<br />

employers are engaged, how and what supports are offered to businesses and the resourcing that<br />

accompanies it. A Business Advisory Committee (BAC) was formed by the Rusk vocational<br />

department, and to date consists of 40 employers; monthly meetings are held where typically six<br />

to seven members participate. The vocational team present patients that are job ready at the<br />

meeting (no more than three) and the employers provide industry advice regarding the three<br />

patients and may also invite any of them for an interview; recruiting on skills rather than created<br />

roles. This is a strong network and typically comes from the employers of patients that the<br />

services encounter, or in some cases specific industry networks are targeted. Also as part of the<br />

BAC, vocational consultants are able to seek work trials following completion of the<br />

occupational work skills Programme. I see merit, in developing a committee like this for<br />

Kaleidoscope to engage with, on a regular basis and with a formalised structure. Subsequently, I<br />

will make steps toward developing a BAC, that will primarily include employers in the<br />

Canterbury and Auckland regions where Kaleidoscope is based; not to say that other regional<br />

organisations will be excluded.<br />

In New York, employers are concerned that if someone with a disability is hired and it isn’t<br />

successful, then performance management can’t be put in place. This is due to the government<br />

possibly becoming involved. In place however, is a 90 day trial period similar to NZ.<br />

When asked what works about vocational services in NYC for the SCI population, the response<br />

was, it is about independence for the candidate, but where required they act as brokerage –<br />

partnership. The long-term partnerships with companies are key to their success and engaging<br />

employers around their needs, “all about connections”. When a vocational consultant says to an<br />

employer “we’re from Rusk” it discloses the patient group. The skills of the consultants<br />

delivering services are essential – vocational rehabilitation counsellors with the right education<br />

and skills for the patient group are recruited.<br />

The team respect patient privacy, have key performance indicators respecting patient needs and<br />

are productive with their time.<br />

Transport to work, has the ability to impact on return to work in New Zealand. In New York,<br />

responding to the same challenge, Access-A-Ride was formulated and provides accessibility<br />

services. Access-A-Ride is for people with a disability who are unable to use public transport<br />

<strong>WCMT</strong> Research Fellowship 13


such as buses and trains. The service is available 24 hours a day, seven days a week, including<br />

holidays, and the one-way fare for each registered passenger is the same as the full fare on a<br />

bus/subway train; personal carers travel at no cost.<br />

Primary barriers faced, are societal perceptions of SCI and that it is a competitive workforce<br />

where unemployment is low. Vocational rehabilitation is funded highly by the Government and<br />

it is further supplemented with grants. Rusk Vocational Rehabilitation Services is the largest in<br />

the tri-state area, and one of the largest in America. As with New Zealand, not many vocational<br />

services are embedded in hospitals and this is a unique and sought after skill-set.<br />

Burke - New York, USA<br />

History<br />

Burke Rehabilitation Hospital opened its doors in April of 1915, through the generosity of John<br />

Masterson Burke, a New York City philanthropist.<br />

World War II transformed the field of medical rehabilitation, as the vast number and variety of<br />

injuries suffered, led to an increased emphasis on physical and occupational therapies,<br />

improvements to prosthetic limbs and wheelchairs, and the development of community services.<br />

In 1951, with its strong focus on multi-disciplinary medical rehabilitation, the Foundation<br />

formally became The Burke Rehabilitation Hospital. Today, Burke is a not-for-profit, private<br />

rehabilitation hospital and a leader in the field of medical rehabilitation and research.<br />

Burke’s Approach to Rehabilitation<br />

There is never a ‘one size fits all’ approach at Burke; it’s one of the reasons I chose to visit their<br />

institute. Mapping the patient journey, desired goals to achieve and tailoring the pathway is best<br />

practice and promotes independence and best outcomes for the person, which is what all multidisciplinary<br />

teams work towards.<br />

Group discussions and individual counseling sessions help patients and family members adjust to<br />

circumstances resulting from physical disability, and prepare for a new way of life.<br />

Vocational Services<br />

At Burke Hospital, I observed the acute – rehabilitation setting, there was not a dedicated<br />

vocational service delivered at this centre. I took the opportunity to observe multiple settings<br />

<strong>WCMT</strong> Research Fellowship 14


catering to those with an acquired SCI. Vocational rehabilitation is available post-discharge and<br />

is offered through ACCESS Services across New York State.<br />

The Social Worker assumes a leadership role in planning and preparing for the individual’s<br />

discharge and, as with any rehabilitation facility, the planning and preparation begins when the<br />

individual is admitted to the inpatient Programme, continues during the inpatient stay and<br />

culminates when the team determines that the individual is ready to move to the next step in the<br />

rehabilitation process.<br />

The social worker is also responsible for arranging individuals tutoring for adolescents when<br />

necessary to address the patient’s educational needs. Occupational therapists help patients to<br />

become as independent as possible in their daily activities. This includes getting around in the<br />

home and community, and pursuing work-related and leisure activities.<br />

With this knowledge, I spent time with the social workers and occupational therapists to discuss<br />

patient rehabilitation, as well as vocational support.<br />

The Social workers, whom I met with, had a crucial role to play in the patient journey and<br />

demonstrated a high passion and commitment, to address any patient concerns in the area of<br />

work. They were engaging the injured person on admission and then facilitated a patient and<br />

family meeting within 10 days to provide information and reassurance. If the patient was<br />

working, then they might receive financial aid from the company and possibly a period of sick<br />

leave, however at the time of discharge a person uses personal insurance and/or workers<br />

compensation and can be assessed for eligibility for Medicaid.<br />

A daily patient education programme is run and provides unit solidarity as well as an evolving<br />

community feeling; this, coupled with disciplinary input and essential peer support, fosters a<br />

sense of hope for the future.<br />

Helen Hayes facility provides a transition programme with those patients who are discharging. It<br />

is a 10 bed unit, supporting not only SCI but also traumatic brain injury and increased<br />

independence is an expected outcome and the patient participates 100% in achieving this.<br />

Burke Gym “There are no barriers”<br />

Whilst visiting the Burke Gym, I was introduced to a young man who was excited about his<br />

future, and through his accident had found his passion. He sustained a SCI at the level of C5 as<br />

<strong>WCMT</strong> Research Fellowship 15


the result of a water incident and at the time was a University student. He had returned for three<br />

months of intensive therapy. He instantly struck me as a man with a purpose and joy for life.<br />

Following his SCI, he had returned to university and was<br />

accommodated in the dorms. I asked him if there were any<br />

‘Attitude equals altitude’<br />

barriers moving forward with his career plans, at which time he smiled and responded, “There<br />

are no barriers and you know what, in a few years I’m going to travel to NZ”. He intends to work<br />

in the area of brain injury and is studying Neurological Science.<br />

An old colleague of mine used to say, ‘Attitude equals altitude’, and this young man was a great<br />

example of it in action!<br />

Therapeutic Recreation<br />

In spending time conversing with the Therapeutic Recreational team, I was enthused by the<br />

range of therapy interventions available for patients. The patient has to be referred for the<br />

intervention (medically approved) and the therapists then works with the patient to incorporate<br />

specific interests into the therapy, to achieve optimal outcomes that transfer to real life situations.<br />

Research supports the concept that people with active satisfying lifestyles will be happier and<br />

healthier, ‘Active Body, Active Mind’. The therapy interventions included (but were not limited<br />

to):<br />

1. Relaxation Therapy<br />

a. In relaxation therapy sessions, patients learn stress management techniques that<br />

help to prevent or alleviate a variety of symptoms that may occur with illness or<br />

injury.<br />

2. Group Humour Therapy (Humour is Good for Health)<br />

a. HIGH (Humour Is Good for Health) therapy uses the power of laughter, humour,<br />

and positive attitude to bring about physical and emotional benefits.<br />

3. Complementary Therapy<br />

a. Modalities offered include acupressure, biosonic repatterning, polarity,<br />

reflexology, visualization, massage therapy and body work.<br />

4. Adaptive Yoga<br />

a. Adaptive Yoga follows the same principles as traditional yoga, but also provides<br />

the participant specific instruction in the use of props and modifications for poses.<br />

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5. General Recreation<br />

a. Burke offers general recreation Programmes which may be therapeutic, such as<br />

entertainment, social Programmes, horticulture activities, music, games, crafts<br />

and a variety of other activities.<br />

Paraplegic Centre, Notwill, Switzerland<br />

History<br />

From the moment I stepped onto the train platform in Notwill, I knew there was something<br />

special about this place. Instantly, accessibility was apparent and I learned how the community is<br />

built to support those with a SCI. The Swiss Paraplegic Centre (SPC) in Notwill provides its<br />

patients with an extensive range of world-class treatments, services and medical care in a setting<br />

that supports all areas of wellness. The centre provides individually-tailored, comprehensive<br />

treatment in three phases (acute, reactivation and integration) through the use of very highly<br />

skilled staff and state-of-the-art equipment.<br />

The (SPC) was opened by Dr Guido A. Zäch in 1990; he began his journey in the 1960s and<br />

went on to establish the Swiss Paraplegic Foundation (SPF) in 1975. During my visit, I was<br />

fortunate enough to meet Dr Zäch as he was attending the Paraplegia Athletics which was held<br />

on-site. The SPC is a privately owned clinic, which is acclaimed nationwide, specialising in<br />

primary care, acute treatment, comprehensive rehabilitation and lifelong care of people with SCI<br />

and similar syndromes. The SPC has 140 beds, including an intensive care unit. The annual bed<br />

occupancy is over 99%.<br />

Interesting to note is that 1100 people are employed from 80 vocational backgrounds, speaking<br />

more than 35 different languages.<br />

The specialist clinic is part of the Swiss Paraplegic Group (SPG), which forms an integrated<br />

network for the comprehensive rehabilitation of people with SCI. The network is supported by<br />

the SPF, established in 2000 and has a strong research arm employing over 50 staff.<br />

Notwill’s Approach to Rehabilitation<br />

The aim that the comprehensive team work towards, is to re-establish a patient’s personality and<br />

lifestyle to the fullest possible extent, with a holistic approach to treatment that includes mental,<br />

<strong>WCMT</strong> Research Fellowship 17


physical and social aspects such as career, family and leisure activities; which like Burke aligns<br />

with the Māori model of Health; Te Whare Tapa Whā.<br />

As a unique centre, they offer the patients, services which are geared towards their specific<br />

needs, meeting high ethical standards, scientific and practical demands. The range of services on<br />

offer is significant and ranges from Paraplegiology specialists, vocational rehabilitation through<br />

to Equine therapy; the Centre in my view is truly holistic, resourced and inspiring.<br />

The vocational services include the Vocational Teaching Department, Vocational Workshop &<br />

Technological Learnings and a team of Vocational Consultants. My schedule at SPC, can be<br />

found in Appendix 5 and demonstrates SPC providing exposure to a range of departments; not<br />

only vocational.<br />

Vocational Teachers<br />

The Vocational Teaching department offers in-house educational support to both school and<br />

university students one to two times weekly. Only the main school subjects are taught, however<br />

it does include the range of languages spoken by teachers. The<br />

teaching is available once a patient has mobilised. Factors<br />

considered when entering patients into the vocational teaching<br />

unit are, that they are able and willing, possess capacity to learn<br />

and fatigue and tolerance are making positive progress.<br />

What I found encouraging was that whether it is a school or<br />

university student who is injured, the whole class is invited to<br />

the centre. Students try out wheelchairs, have lunch with staff<br />

and other patients and develop a sensibility around SCI.<br />

Teachers gain the material to educate the class about SCI.<br />

People that are injured whilst in the process of an apprenticeship are also included and are able to<br />

take exams as the teacher will come to the centre, or if possible transport is provided for students<br />

to have a break from the rehabilitation schedule and can attend off-site.<br />

“Whether it is a school or<br />

university student injured,<br />

the whole class is invited to<br />

the centre. Students try out<br />

wheelchairs, have lunch<br />

with staff and other<br />

patients and develop a<br />

sensibility around SCI”.<br />

For adult patients, the vocational teachers aim to get each individual to a skill level higher than<br />

they possessed on admission. For example, a receptionist gaining skills to support moving into<br />

administrative work, or in a case I observed, a lawyer learning a new language. The teachers are<br />

<strong>WCMT</strong> Research Fellowship 18


able to provide formal examinations and reported that this goes a very long way to remove the<br />

fear, if higher learning or complete retraining is required.<br />

Of absolute importance, was connecting everyone involved both in the multi-disciplinary group,<br />

inter-vocational support and external in supporting the person to either return to school, return to<br />

work or to return to an entirely new environment. Job coaching begins early, as does employer<br />

engagement. The teachers expressed the need to look at the practical versus theory post-injury,<br />

commenting that the higher level of injury tetraplegia group provided a greater challenge, as<br />

often more time was required.<br />

Vocational Consulting<br />

Patient X<br />

“In the first moment you came to my bed I could have murdered you because I was thinking<br />

about relationships, life, toilets and my injury. But when I left the hospital I understood why you<br />

came so early; it was necessary and I thank you forever. Initially I couldn’t deal with work issues<br />

if they arose, it would be too much.”<br />

The return to work rate for the Swiss population is 55-60% (in 2012 it was reported at 58%). The<br />

following statements from the vocational consultants attribute to the success of the patients<br />

outcomes and strongly echo our experience at Kaleidoscope:<br />

o We make communication with the employer very early on.<br />

o The patients are consulted about the vocational team contacting their employers.<br />

o Having a vocational consultant early and prioritised, the patients report “It is one problem<br />

less, no need to worry about work.”<br />

o An appointment is made with the employer, initially to visit the hospital and then the<br />

consultants visit the workplace and conduct a worksite assessment, if geographically<br />

possible.<br />

o An objective is to remove the fear of workplace modification costs from the employer.<br />

o A message delivered to the patients is, “we will try and find a solution together; it may be<br />

different now, but there is a future.”<br />

o We link patients with peers in the community working in the same job, if the patient<br />

wishes for this to occur.<br />

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o It is so important to reintegrate the person into their community and provide vocational<br />

services. In saying this, it is equally important is to build self-image, confidence and selfefficacy.<br />

o SCI is normalised and an example of this is school children using the SPC swimming<br />

pool, community groups visiting and tours of the institute and allowing the community to<br />

access the large cafeteria and dine with inpatients.<br />

The funding model in Switzerland is not dissimilar to New Zealand, whereby if it is an accident<br />

the person receives accident insurance, and an injury at work will entitle them to insurance of<br />

incapacitation (90% of salary). For spinal illnesses, the person will receive the pension and an<br />

invalidity benefit.<br />

There is further insurance, whereby if the person is injured by another person i.e. hit by a car or<br />

stabbed, and then they will receive 100% lifetime compensation; however this is a lengthy<br />

process, with lawyers involved, and can be very hard on the patient.<br />

The general unemployment rate in Switzerland is 3%; the government expects and also supports<br />

employers to return disabled persons to work. At the time of discharge, and when a patient is<br />

returning to work, they conduct a work-capacity assessment for a period of three months; in NZ<br />

this is referred to as a ‘work trial’ or ‘graduated return to work’. The vocational consultants<br />

conduct a three month post-discharge reassessment interview, examining how the patient has<br />

adapted to their vocational setting, life adjustment and medical wellness; this is conducted again<br />

at six months post-discharge.<br />

I was encouraged by the conversations and the time I spent with the vocational counsellors to<br />

learn that we essentially operate in parallel, despite being over the other side of the world.<br />

Also, what they value as integral in the ‘early intervention’ work with patients is identical to<br />

Kaleidoscope.<br />

Vocational Workshop and Computer laboratory<br />

I have to be honest and say that upon walking into the workshop and computing area my<br />

immediate comments were “Is that a 3D printer, hold on do you have a CAD machine?” For a<br />

vocational rehabilitation department to have these two pieces of machinery is quite astonishing.<br />

My immediate thought was how fantastic for the patients to leave their rehabilitation trained or,<br />

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on their way to being trained in two highly sought after skill areas; particularly 3D printing. The<br />

computer laboratory area contains a large<br />

array of software and computer training, for<br />

example Dragon Naturally Speaking<br />

software support provided by the Assistive<br />

Technology Department. Patients can learn<br />

Computer Numerical Control training; obtain<br />

CAD software design qualifications and 3D<br />

printing skills. The vocational workshop<br />

offers the opportunity for patients to try<br />

making a vast range of things and it seemed<br />

to me that any and everything was being<br />

achieved, an example is the picture<br />

articulation on the right. The machines are not modified and test the limitations of the person;<br />

particularly hand function.<br />

Stoke Manderville, United Kingdom<br />

History<br />

The National Spinal Injuries Centre (NSIC) is the oldest, and one of the largest spinal injuries<br />

centres in the world. As with the other spinal units I visited, Stoke Mandeville was established to<br />

treat servicemen who had sustained spinal cord injuries as a result of WW2 in 1944; founded by<br />

neurologist Professor Sir Ludwig Guttmann. An ambitious fundraising campaign to create a<br />

purpose built spinal cord injuries centre was launched, following severe flood damage to NSIC<br />

in 1980. Within three years, with the generosity of the public, £10m was raised and the new<br />

facilities opened in 1983.<br />

NSIC offers diagnosis, treatment and rehabilitation for patients with acute spinal cord injuries<br />

and non-traumatic spinal cord lesions of acute onset. Patients are referred from all over the UK,<br />

and from many countries around the world. I was also fortunate to visit the paediatric spinal<br />

ward, where I observed a different setting. The unit was the first accredited paediatric unit in<br />

Europe.<br />

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Stoke Mandeville’s Approach to Rehabilitation<br />

With highly specialised and experienced staff, appropriate facilities and equipment, proven<br />

research based methods and a positive attitude, Stoke Mandeville offers a powerful community<br />

full of possibilities. Possibilities are what it is all about following SCI and what a person can do<br />

as opposed to what they cannot. The ultimate aim of Stoke Mandeville is for the patient to be<br />

safely discharged from the centre, and reintegrated back into family and community life; in a<br />

way that meets their own wishes and needs.<br />

One step closer to achieving discharge and heightened self-awareness and independence is the<br />

pre-discharge rehabilitation ward (St Joseph). Patients transition to St Joseph Ward prior to going<br />

home and have the support and security provided by experienced nursing staff. The ward is more<br />

like a unit and enables patients to be more active in their rehabilitation, as well as having time in<br />

the community. Patients had a full timetable of rehabilitation activities and were encouraged to<br />

try different things; much like the Transitional Rehabilitation Unit based at Burwood Spinal Unit<br />

in Christchurch, NZ.<br />

Vocational Services<br />

There is not a dedicated vocational rehabilitation team at Stoke Mandeville, however all<br />

therapists are encouraged to promote ‘work’ with patients; a cohesive disciplinary team message.<br />

There is a passionate and committed occupational therapist that leads vocational support external<br />

to her primary role and refers patients to an employment programme consisting of:<br />

1. Occupational Therapist<br />

2. Disability Support Services<br />

3. Peer Support Officer (Spinal injuries Association, UK)<br />

4. Vocational Consultant (Spinal injuries Association, UK)<br />

5. Job Plus Careers Advisor<br />

The employment programme runs monthly and includes both inpatients and outpatients<br />

accessing the support. The theme of the programme is ‘Not working, but working on it’. The<br />

vocational support provided at Stoke Mandeville Spinal Unit collaborates with the Spinal<br />

Injuries Association (SIA) UK. I visited the association and spoke to Jamie who at the time was<br />

their vocational outreach co-ordinator; further content is provided below.<br />

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Spinal Injuries Association UK<br />

Jamie (Vocational Outreach Coordinator) at Spinal Injuries Association (SIA) UK commented<br />

that they are about changing employers attitudes to employing people with a SCI; this fits with<br />

my community focus on social expectations that people following SCI can work. Further to this,<br />

that employers can through access to accurate information, see the value of employing someone<br />

with a disability. In the UK however, there is a growing disability confidence from the<br />

community as well as a government initiative supporting this area of work. It is called ‘Access to<br />

Work: Return to Work scheme’ and includes funded transport, a support worker (if required),<br />

assistive technology and work adaptations (which can be very costly). For every £1 spent the<br />

employer can claim back £1.60 for workplace modifications. There are also diversity targets for<br />

companies and these are monitored.<br />

A masterclass is provided to the company regarding employing a person with a disability and<br />

more specific support can be obtained on request. With government pledges available, in some<br />

cases it is still possible in the UK that if a person with a disability applies and meets the<br />

minimum criteria, then it can be a guaranteed interview for the position being recruited.<br />

Vocational Support Clinics<br />

SIA holds regular vocational clinics at a number of Spinal Cord Injuries Centres, including Stoke<br />

Mandeville; each clinic is staffed by the aforementioned team. The purpose of the clinics is to<br />

give the SCI person the best possible advice, for future opportunities for work, education or<br />

volunteering. The clinics are open to inpatients and outpatients.<br />

An interesting resource that was being used in conjunction with other tools was ‘New Leaf’,<br />

which is a job matching tool specifically for SCI. Coincidently in Switzerland, there was a PhD<br />

student developing a similar job matching tool that caught my interest. My interest stems from<br />

my experience of transactional job matching tools that career advisors use, sometimes in<br />

isolation. Without context this is just ‘a tool’ and whilst it can deliver some indicative advice,<br />

further counseling is needed particularly for the SCI group Kaleidoscope supports, as injury is<br />

not taken into consideration. The Swiss resource being developed is by far more complex, and<br />

will look at spinal injury level and neurology, as well as work and interests. This resource set to<br />

be released in approximately 2017.<br />

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Following targeted support, the attendees of the vocational clinics receive an action plan<br />

detailing the short and long term goals that have been established with the support team; patients<br />

centric. There are three, six and 12 month follow ups which generally speaking are milestones to<br />

explore achievements, health and wellness and sustainability of any work outcomes.<br />

Of interest, was discussion regarding embedding a vocational service in the medical model of a<br />

hospital setting; in the UK acute intervention is still reasonably new. Much like in New Zealand,<br />

Jamie identified a growing engagement from spinal trauma centres and the importance of<br />

everyone in the multi-disciplinary team delivering the same message. I was encouraged to hear<br />

that such an astute spinal service at Stoke Mandeville was consistently providing the ‘importance<br />

of work’ message on the wards. With the commitment from the clinical team, the drive of the<br />

occupational therapist leading it and SIA UK input, they are providing regular monthly<br />

vocational clinics.<br />

Both Jamie and I recognised that it takes time to embed a service, provide substantial evidence<br />

based practice, and build skilled vocational counselors that have acute inpatient experience; in<br />

turn developing the programme.<br />

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SECTION TWO - Key Areas to Address<br />

A strategic collaborative approach is needed<br />

In 2014, New Zealand released the ‘Spinal Cord Impairment Action Plan (SCIAP)’ which<br />

promotes “The best possible health and wellbeing outcomes for people with spinal cord<br />

impairment being achieved, which enhances their quality of life and ability to participate in<br />

society”.<br />

The Action Plan, outlines a vision, purpose, priorities and eight overarching objectives to help<br />

ensure the best possible health and wellbeing outcomes for people with spinal cord impairment<br />

(SCI), enhancing their quality of life and ability to participate in society.<br />

In March 2012, ACC and the Ministry of Health jointly led a project to review New Zealand’s<br />

SCI services and develop a national implementation plan for improving them.<br />

The action plan states the following actions to address pertaining to vocational supports:<br />

1. Develop a plan to address gaps in vocational supports using a cost-effective model.<br />

2. Spinal rehabilitation services develop a process to include vocational support in discharge<br />

planning.<br />

3. ACC and the Ministry of Social Development to work together to develop a coordinated<br />

national vocational plan that prevents duplication and addresses gaps in vocational<br />

support for people with SCI.<br />

4. Explore the ACC weekly compensation model and Ministry of Social Development<br />

benefit model to ensure the right incentives are in place, so people can try work options<br />

without fear of loss of compensation or benefit that may prevent them attempting<br />

employment options.<br />

5. Provide specific SCI training for ACC case managers and Needs Assessment Service<br />

coordinators who work with people with SCI to ensure realistic back- to-work planning.<br />

6. Specify minimum skill-set requirements of vocational support services to ensure SCI<br />

expertise.<br />

There is always room to improve, and a collaborative model of service for SCI vocational<br />

rehabilitation is the way forward. This can be facilitated through the knowledge gained during<br />

my Winston Churchill Research Fellowship. Better quality and access to information is needed<br />

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for patients, including those not receiving specialist vocational services, and the people involved<br />

in their rehabilitation. This includes local vocational services (without the serious SCI expertise),<br />

employers, family, case managers and therapists.<br />

Pathway for patients into Kaleidoscope services<br />

For those with a new SCI or illness (with a neurological diagnosis) depending on geographical<br />

location, may be admitted to one of three rehabilitation facilities:<br />

1. Burwood Spinal Unit<br />

2. Middlemore ICU/Acute<br />

3. Auckland Spinal Rehabilitation Unit<br />

Currently, 80% of those admitted are engaged in vocational rehabilitation within three weeks of<br />

admission. The remaining 20% are not engaged, most commonly due to a dual diagnosis of<br />

medium - high brain injury, medical complexities, isolation or other circumstances which require<br />

a period of time before engaging with the service.<br />

Vocational support is currently delivered in the community, complimentary to the acute services<br />

and Kaleidoscope refers to this as restorative work; one patient had been 17 years post-injury not<br />

working. There are a number of ways that people can access vocational support in the<br />

community, but primarily it is through funders ACC and Work and Income NZ (WINZ).<br />

I will never forget the people I met and went onto support, working through Kaleidoscope in<br />

more isolated areas of NZ, especially in their comments when we first met. One patient said, as<br />

the tears flowed, “where have you been all my life? I have wanted help with work and had no<br />

idea of the support or that there are things I could do”. C5/6 Complete Tetraplegic, now a very<br />

successful businessman.<br />

Our philosophy at Kaleidoscope is a holistic approach, but also one of education. Ultimately we<br />

are engaging a person in the area of work; however it is also about educating them on the<br />

readiness and preparation for work and job searching. This, so that in the future they will be able<br />

to use their own internal resource should they wish to change jobs or if they are made redundant<br />

or seek new employment.<br />

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Through my Winston Churchill Fellowship Trust research, I’ve identified a number of areas of<br />

vocational rehabilitation services, to work towards improving. They are:<br />

1. Developing healthcare professionals from non-specialist settings (where required) as well<br />

as local vocational provider knowledge of SCI – Kaleidoscope has the skills and<br />

resources in place to deliver this nationally<br />

2. Master classes for employers – education and a lived client experience (invited<br />

consumer)<br />

3. Promoting a societal expectation that following a SCI, the person will be able to work<br />

4. Collaboration of inpatient – outpatient providers during the discharge planning phase to<br />

enhance the patient journey and provide continuity, specifically in this case vocational<br />

support.<br />

5. Carry out research in the acute vocational rehabilitation setting, a quantitative evaluation<br />

of data collection and emerging themes<br />

6. Supporting clinical colleagues in the implementation of the SCIAP<br />

7. Working with both ACC and the MOH where we can contribute to their education and<br />

vision, as well as add value through planning and preparation support<br />

8. The place of HOPE in vocational services and the maintenance of hope. When engaging<br />

in vocational support in the acute setting, this not only helps to enhance people’s<br />

recovery from illnesses, but also provides opportunities for a positive focus and enhanced<br />

quality of life.<br />

Delivering acute vocational support requires hope and, in many cases, a leap of faith by the<br />

patients. It is embracing the unknown as well as possibilities, building resilience and building a<br />

pathway forward to an altered future.<br />

Community integration<br />

Whilst vocational rehabilitation was my primary objective, it was very closely followed by an<br />

overarching objective to promote and encourage the communities in NZ to expect that people<br />

with disabilities return to/participate in work and the value of it to everyone. My observations in<br />

Notwill were how the Paraplegia Institute is infact the hub of the community. This began with<br />

<strong>WCMT</strong> Research Fellowship 27


the open cafeteria area, in which patients, family, clinicians, schools, sports groups and anyone<br />

from the surrounding community can dine and socialise.<br />

With the exception of ICU, throughout the hospital departments there are posters (in the corridor<br />

areas) with easily understood content, as well as pictorial examples of patients carrying out their<br />

rehabilitation. These serve as references, as well as the 10 stop points on a tour to newly injured<br />

people, family, employers and community groups visiting for education. This enables a<br />

normalisation of sorts in seeing people rehabilitating, and allows people visiting the hospital to<br />

gain an insight into SCI. An example of the community groups which visited the week I was onsite,<br />

were a bowling club, corporate team and a school class. They begin with an introduction to<br />

the institute, followed by the tour, some wheelchair skills and time in a chair, which is then<br />

followed with a final question and answer session. This is a great example of an opportunity to<br />

reach out to the community and give them a little bit of knowledge and raise awareness. The<br />

potential opportunities, such as industry advice and possible employment for patients, as well as<br />

the networks established as a result of this exposure, would serve a great many purposes, but the<br />

primary purpose being ‘community’.<br />

Another example of the community awareness commitment included children’s swimming<br />

lessons being held in the hydrotherapy pool, local people attending the paraplegic athletics<br />

competition and sports activities on-site utilising the extensive facilities available.<br />

As a result of these observations, and in reviewing a programme that Dr. Bernadette Cassidy<br />

developed, aimed at providing school children SCI and disability awareness, we will collaborate<br />

to develop a learning experience. The community SCI Ability Awareness Learning Experience;<br />

will target schools in Canterbury as well as including identified employers. At the time of<br />

submitting this research report the Ability Awareness Learning Experiences are due to<br />

commence in 2016.<br />

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SECTION 3 - Resulting Action<br />

Great Expectations Project – Employers<br />

The evidence is visible – work is good for health and wellbeing. Returning to work or<br />

commencing new employment should be a societal expectation post-injury.<br />

Great Expectations is a new initiative from Kaleidoscope to engage employers. The project aims<br />

to transform attitudes by working with organisations that recognise the opportunity hiring a<br />

person with a disability presents. We will work to support them, when they ask what is possible<br />

when minds are open, accessibility is embraced and they hire a person with a SCI.<br />

The Great Expectations Project encompasses the following:<br />

1. Educational seminars for employers<br />

2. Formulating a business advisory committee<br />

3. Customised organisational information on-site<br />

4. Consumer availability<br />

5. Monthly profiling of patients/quarterly newsletter<br />

One in five New Zealanders has a disability, making up 20% of our population, many of whom<br />

offer a unique set of skills and perspectives that bring value to our organisations, communities<br />

and economy; when the opportunity presents.<br />

Two things that we know for sure at Kaleidoscope are that disabled people make great<br />

employees and that an accessible workplace is safer for everyone. Of the spinal population we<br />

work with, most people require little or no extra support of investment to fulfil their role.<br />

Kaleidoscope has increased the employment rate in SCI from 12.3% of spinal cord injured<br />

patients being employed to 60%, our message to employers is ‘Why not enhance your profile,<br />

increase the statistics and be part of this!’<br />

Education and awareness will be made available to employers either within their organisation or,<br />

as part of a wider community group, in a non-judgmental environment. A benefit being that,<br />

employers will have access, to an untapped labour market which is willing, keen and able; skills<br />

utilisation. Furthermore, employers will gain confidence to employ someone with a SCI, having<br />

the opportunity to ask questions. Previous or successful past patients will be available to enable<br />

employers to hear real life stories and have a discussion following.<br />

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The topics covered will be:<br />

• Basic SCI 101<br />

• Why it is beneficial to employ people with disabilities (SCI) - an accessible workplace is<br />

safer for all staff and having disabled staff means more customers, better served<br />

• Frequently asked questions of an employer<br />

• Accessibility of a workplace<br />

• Invited consumer to share their experience and answer any questions<br />

Figure 1. Benefits to a company when employing a person with a disability<br />

As a result of learning about the BAC that Rusk Hospital developed, Kaleidoscope will also seek<br />

to formulate our own committee. We have created an Employer Network database and will seek<br />

out potential industry leaders to become members of the BAC, as well as interested patient<br />

employers, as time progresses.<br />

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‘Ability’ Awareness Learning Experience<br />

Complimentary to the Great Expectations Project, and an experience which will provide a link<br />

between schools, organisations and the SCI population, is the proposed Ability Awareness<br />

Learning Experience. Educational experiences outside the classroom can enhance, reinforce, and<br />

clarify classroom learning and be rewarding for a workplace to engage in. Exploring the role of<br />

people with disabilities in the community will enable both pupils and employees to have an<br />

appreciation of SCI. But also awareness of what people ‘can do’ and how they do it.<br />

In the current world of the internet, to demonstrate the empowering role of technology in<br />

enabling people with disabilities to lead independent lives is a tremendous opportunity.<br />

The rationale behind the proposed education programme was due to observations made during<br />

this research, conversations with Dr. Bernadette Cassidy about the educational programme she<br />

developed and a long-standing intention of mine to engage the community further. This is<br />

targeting schools and employers at a deeper level.<br />

We have an aging and ever growing diverse and dynamic society. Employers will be able to<br />

visualise how our patients can, without a great deal of difficulty, fit into their environments.<br />

Meanwhile, pupils will learn about the role of people with disabilities in society, explore the<br />

issues, make decisions, and learn how to work co-operatively with others who have an<br />

impairment/disability.<br />

The idea behind this proposal is to enable those in the community to explore changes in societal<br />

attitudes and how these changes, along with the introduction of technology, have specifically<br />

improved the lives of people with disabilities. This innovative experience will provide<br />

participants with a first-hand experience of a learning and research centre set up to help people<br />

with disabilities to live independently.<br />

The programmes activities may feature the following:<br />

• Wheelchair obstacle course<br />

• ‘Driving’ a Hand controlled vehicle – Demonstrated by a staff member<br />

• Observing a simulated car used by the Driving Assessment Team<br />

• Using Co-Writer or Dragon Naturally speaking software (talking word prediction<br />

Programme)<br />

• Using a computer with head mouse (infra-red dot)<br />

<strong>WCMT</strong> Research Fellowship 31


• Informal talks with NZST staff who have a disability<br />

• Feedback on the session, opportunity to ask questions<br />

Patient Workshops – Outreach and extension of service<br />

I have been interested in the availability of either stand-alone workshops or a vocational series of<br />

education for a group environment. At Rusk, I observed this in action and whilst 1:1 vocational<br />

rehabilitation is without question an essential part of the journey, group sessions have potential<br />

to add another dimension to the process.<br />

For our patients, joining a group of unknown people may sound intimidating at first, but the<br />

benefits can be shared experiences of navigating the job search process, a support network and a<br />

sounding board external to the vocational consultants. Diversity is another important benefit in<br />

that people have different personalities and background, and they look at situations in different<br />

ways. By hearing how other people tackle problems and make positive changes, it is<br />

Kaleidoscopes hope that patients will discover a whole range of strategies for facing their own<br />

concerns.<br />

In running the patient work preparation and job search workshops, an added advantage for the<br />

facilitators will be observing patients in a group setting, interacting with others and problem<br />

solving.<br />

Those in the community with a SCI are the priority, and the project aim is to educate and build<br />

confidence, inpatients will be invited during the course of their rehabilitation if appropriate. The<br />

resourcing is in progress and the seminar series will offer the following:<br />

1. Networking – Tapping into the hidden job market<br />

a. Who are your support and work networks?<br />

2. Skills Identification – Know your skills, know your value<br />

3. CV – Purpose and tips for writing your CV<br />

a. Task of starting to formulate a CV, before the following clinic<br />

4. CV Clinic – Complete a CV<br />

5. Job Search – Where do I start?<br />

6. Interviews – Prepare and get the job you want!<br />

7. Self-promotion/advocacy skills – Courageous Conversations<br />

<strong>WCMT</strong> Research Fellowship 32


Conclusion<br />

The key objective of the <strong>WCMT</strong> fellowship was to review selected international vocational<br />

departments in an embedded hospital programme and their resourcing. Furthermore community<br />

support available to patients following discharge from rehabilitation units, and ways to improve<br />

community links and education around SCI. In terms of improving employer education the key<br />

questions presented during the research were:<br />

1. What do you promote as the benefits of employing someone with a disability?<br />

2. At what stage do you engage with an existing employer?<br />

3. What are the typical questions and concerns from employers?<br />

4. Is there funding available to address equipment and accessibility needs?<br />

5. How do you approach employers?<br />

Employment rates after SCI vary widely depending on many variables, particularly however the<br />

measure of employment. By measure of employment, I mean what the analysing person defines<br />

as work, for example paid work, voluntary work, full-time work or paid work more than 5 hours<br />

per week. Statistics also, do not necessarily reflect the complexities that sit alongside the return<br />

to work process.<br />

Characteristics influencing employment after SCI include demographic variables, injury-related<br />

factors (age at injury, level of impairment, functional capacity), employment history or in many<br />

cases a limited history of work, psychosocial issues such as transport, physical health, life skills,<br />

motivational level/expectation to work and not forgetting, very importantly the support systems<br />

available.<br />

It is well reported that those individuals with SCI who are working, experience significantly<br />

better quality of life, sense of purpose and other benefits. However, the barriers to returning to<br />

meaningful work can be daunting and numerous. I have learnt that the most common issues of<br />

the countries I visited were access to transport, housing and flexibility of carers.<br />

Vocational rehabilitation programmes that address these barriers are essential. Vocational<br />

rehabilitation programmes in the acute setting, are even more beneficial to reduce the potential<br />

learned dependency of a person and to bridge the gap between employers and the individual. The<br />

area of acute vocational rehabilitation needs to be a focus of research, to understand, better<br />

communicate and improve vocational rehabilitation outcomes among this population of<br />

individuals with SCI.<br />

<strong>WCMT</strong> Research Fellowship 33


My fellowship will contribute to the patient journey and recognises a ‘whole of person’ holistic<br />

approach, is committed to improving community awareness and support for employers and<br />

ultimately influence attitudes in the area of disability. Initiatives will be actioned in these areas<br />

and an insight has been demonstrated in this document.<br />

The exposure to the vocational settings and support during my fellowship both challenged and<br />

encouraged me. I was encouraged that New Zealand and specifically Kaleidoscope, is delivering<br />

results comparitible to much bigger better resourced programmes. I was challenged to develop<br />

SCI vocational rehabilitation and progress initiatives, but with an acute awareness that<br />

resourcing is a significant problem.<br />

Vocational rehabilitation is an integral part of SCI rehabilitation. There is much that can be done<br />

moving forward; with a commitment to collaborate, improve services and continue to listen and<br />

learn.<br />

<strong>WCMT</strong> Research Fellowship 34


References<br />

ACC and the Ministry of Health. 2014. New Zealand Spinal Cord Impairment Action Plan 2014-<br />

2019. Wellington: ACC<br />

Māori health models – Te Whare Tapa Whā<br />

Retrieved from http://www.health.govt.nz/our-work/populations/Māori-health/Māori-healthmodels/Māori-health-models-te-whare-tapa-Whā<br />

DeJong, G. (1979). Independent Living: From Social Movement to Analytic Paradigm.<br />

Retrieved from https://enablemob.wustl.edu/OT572D-<br />

01/RequiredArticles/IndependentLivingFromSocialMovementtoAnalyticParadigm.pdf<br />

<strong>WCMT</strong> Research Fellowship 35


Appendix 1. Model Explanation of ‘The Kaleidoscope Way’<br />

Model Explanation of ‘The Kaleidoscope Way’ TM<br />

Creation Actions is about clients<br />

regularly taking actions that are<br />

consistent with ‘creating’ their<br />

preferred vocational future and<br />

RTW. This approach promotes<br />

ownership, independence,<br />

responsibility, action & pride in<br />

realising one’s RTW potential.<br />

This approach also has the client<br />

in communication with ‘their<br />

world’ and promote self efficacy<br />

& a diminished reliance on VR<br />

services.<br />

‘The Kaleidoscope Way’ model of<br />

vocational rehabilitation is<br />

fundamentality grounded in the<br />

‘world’ of the client, their hopes,<br />

dreams & aspirations. This<br />

clientcentric approach is supported<br />

by well developed life/career<br />

conversations, utilising the Powhiri<br />

model of engagement it is culturally<br />

sensitive, organic, and fluid (i.e. a<br />

non-linear process). It assumes and<br />

promotes the client as ‘the expert’ of<br />

their own rehabilitation & RTW.<br />

Kaleidoscope has developed<br />

S.W.I.F.T.E.R which is a specific<br />

goal setting tool for SCI clients,<br />

this denotes goals as being:<br />

Stepped, Well-informed,<br />

Idiosyncratic, Fluid, Thorough,<br />

Energising & Resourced. Goal<br />

optimisation works from a<br />

strength based approach of<br />

leveraging off abilities,<br />

opportunities and resources to<br />

overcome barriers to a RTW.<br />

Research & Preparations avails the<br />

client the opportunity to explore<br />

RTW possibilities in a nonthreatening,<br />

explorative &<br />

appreciative manner. RTW Research<br />

& Preparations can continue<br />

alongside other rehabilitation<br />

initiatives & priorities and<br />

progressively lays the foundation for<br />

a well informed, planned, and<br />

executed RTW<br />

‘The Kaleidoscope Way’ TM 2010 ©<br />

‘The Kaleidoscope Way’ TM 2010 ©<br />

<strong>WCMT</strong> Research Fellowship 36


Appendix 2. Return to work in the context of Kaleidoscope<br />

In the language of the ‘rehabilitation trade’, getting work or getting back to work is vocational<br />

rehabilitation. There are many definitions of the rehabilitation process, but for the individual<br />

recovering person it is the outcome that matters most. Success for each person means reinclusion<br />

in society’s mainstream and independence; work in the broadest sense is purposeful,<br />

constructive activity meaningful to the person. I was asked by an ICU specialist recently what I<br />

want to achieve, when meeting people in the acute setting. To this I responded, that it is different<br />

for everyone. However we have a process and number one is respecting the patient, assessing<br />

their needs and recognising where they are at.<br />

Historically, return to work has been a distant goal, was seldom addressed early in the<br />

rehabilitation process, and where information was available, outcomes were poor. At<br />

Kaleidoscope, we promote that vocational rehabilitation runs succinctly with other rehabilitation<br />

initiatives, whilst respecting that no person, injury or journey is the same. All over the world<br />

health services deliver rehabilitation within, what Gerben DeJong (1979), describes as, the<br />

Rehabilitation Paradigm. I learnt rather quickly from my two mentors, that by this he meant that<br />

the process is controlled by rehabilitation professionals. In New Zealand, Professor Alan Clarke<br />

described it as heavily medicalised.<br />

DeJong proposed a shift to what he called the Independent Living (IL) Paradigm, where the<br />

rehabilitation process is controlled by the recovering person (consumer) and based on high<br />

quality information. Recovery is then more likely to be seen for what it really is – learning to get<br />

back into the groove or ‘flow of life’.<br />

The Allan Bean Centre was established in 2001, for research and learning in rehabilitation at<br />

Burwood Hospital. It was built to serve recovering people and their families within the<br />

Independent Living Paradigm of DeJong. The approach has been described by my predecessors<br />

as The New Rehabilitation and encourages the recovering person with his/her family to take<br />

control of the pathway to recovery as soon as possible. Sadly the Allan Bean Centre was<br />

condemned due to the Canterbury Earthquakes, however the culture and purpose remains and a<br />

new space will relaunch in 2016.<br />

<strong>WCMT</strong> Research Fellowship 37


Whilst Kaleidoscope’s core role is supporting a<br />

vocational journey, we cannot expect to move forward<br />

without a foundation and an understanding of each<br />

patient. Where they have come from, what is important to<br />

them; rapport and respect are vital. A Kaleidoscope<br />

patient in 2010 provided this feedback which aligns with<br />

my statement regarding rapport and respect.<br />

“I met Mel from Kaleidoscope and her approach brought<br />

me back to the real world. She used the word work and it actually devastated me. In my mind I<br />

wished that she would go away, but in the conversation we had it wasn’t what I said; but it was<br />

certainly how I felt.<br />

As time has gone on, Mel kept coming back and quietly just worked through some of the issues.<br />

She has given me the opportunity to work through and look at the things I might want to do in the<br />

future; these weren’t necessarily all around work. We talked a lot about my past and we both<br />

had some fun as I recalled some of the things that had happened. I’ve had lots of jobs, done a lot<br />

of things and what this support has done, using the process that Kaleidoscope has in place, has<br />

allowed me to find an area that maybe in the future I can move in to.”<br />

“It’s been hard but it has been<br />

important and as I said the process<br />

that was used and the way it was<br />

presented to me made it real easy<br />

and now I’m leaving<br />

here……..there is something for<br />

me in the future” (Kaleidoscope<br />

patient)<br />

The tools for success include hope, love of life, confidence, self-esteem, excitement of challenge,<br />

high quality information and recognition of the need for hard work and determination. Further to<br />

this is support from professionals, friends and family and guarantee of long term (strategic)<br />

quality improvement through research. For example a patient commented to me recently “I am<br />

not here for a holiday, I am here to work and I am making good progress”.<br />

Vocational Rehabilitation is a process that starts during an individual’s initial admission to<br />

hospital and continues, in many cases, following their return home. It is critical that when<br />

discharged from hospital, there is continuity in their vocational plan and that the person has<br />

access to quality information and support.<br />

“It is never too late to be what you might have been”.<br />

George Eliot<br />

<strong>WCMT</strong> Research Fellowship 38


Appendix 3.<br />

Te Whare Tapa Whā - One model for understanding Māori health and that aligns strongly with<br />

Kaleidoscopes philosophy and operational guidelines is the concept of ‘te whare tapa whā’ – the<br />

four cornerstones (or sides) of Māori health.<br />

Explanation of the model<br />

With its strong foundations and four equal sides, the<br />

symbol of the wharenui illustrates the four<br />

dimensions of Māori well-being.<br />

Should one of the four dimensions be missing or in<br />

some way damaged, a person, or a collective may<br />

become ‘unbalanced’ and subsequently unwell.<br />

For many Māori modern health services lack<br />

recognition of taha wairua (the spiritual dimension).<br />

In a traditional Māori approach, the inclusion of the<br />

wairua, the role of the whānau (family) and the<br />

balance of the hinengaro (mind) are as important as<br />

the physical manifestations of illness.<br />

Taha tinana (physical health)<br />

The capacity for physical growth and development.<br />

Good physical health is required for optimal development.<br />

Our physical ‘being’ supports our essence and shelters us from the external environment. For<br />

Māori the physical dimension is just one aspect of health and well-being and cannot be<br />

separated from the aspect of mind, spirit and family.<br />

Taha wairua (spiritual health)<br />

The capacity for faith and wider communication.<br />

Health is related to unseen and unspoken energies.<br />

The spiritual essence of a person is their life force. This determines us as individuals and as a<br />

collective, who and what we are, where we have come from and where we are going.<br />

A traditional Māori analysis of physical manifestations of illness will focus on the wairua or<br />

spirit, to determine whether damage here could be a contributing factor.<br />

Taha whānau (family health)<br />

The capacity to belong, to care and to share where individuals are part of wider social systems.<br />

Whānau provides us with the strength to be who we are. This is the link to our ancestors, our<br />

ties with the past, the present and the future.<br />

Understanding the importance of whānau and how whānau (family) can contribute to illness<br />

and assist in curing illness is fundamental to understanding Māori health issues.<br />

Taha hinengaro (mental health)<br />

The capacity to communicate, to think and to feel mind and body are inseparable.<br />

Thoughts, feelings and emotions are integral components of the body and soul.<br />

This is about how we see ourselves in this universe, our interaction with that which is uniquely<br />

Māori and the perception that others have of us.<br />

<strong>WCMT</strong> Research Fellowship 39


Appendix 4. Winston Churchill Memorial Trust Fellowship schedule, May 2014<br />

Sunday Monday Tuesday Wednesday Thursday Friday Saturday<br />

4 5 6<br />

7<br />

8<br />

9<br />

10<br />

TRAVEL<br />

CHRISTCHURCH<br />

– NEW YORK<br />

RUSK CLINICAL<br />

AND<br />

VOCATIONAL<br />

RUSK CLINICAL<br />

AND<br />

VOCATIONAL<br />

BURKE<br />

REHABILITATION<br />

HOSPITAL<br />

REST DAY<br />

11<br />

12<br />

13<br />

14<br />

15<br />

16<br />

17<br />

REST DAY<br />

TRAVEL<br />

NEW YORK<br />

- ZURICH<br />

TRAVEL<br />

SWISS<br />

PARAPLEGIC<br />

CENTRE<br />

(Schweizer<br />

Institut fur<br />

Beruffindung)<br />

SWISS<br />

PARAPLEGIC<br />

CENTRE<br />

(Schweizer<br />

Institut fur<br />

Beruffindung)<br />

SWISS<br />

PARAPLEGIC<br />

CENTRE<br />

(Schweizer<br />

Institut fur<br />

Beruffindung)<br />

SWISS<br />

PARAPLEGIC<br />

CENTRE<br />

(Schweizer<br />

Institut fur<br />

Beruffindung)<br />

SWISS SPINAL<br />

INJURIES<br />

ASSOCIATION<br />

18<br />

19<br />

20<br />

21<br />

22<br />

23<br />

24<br />

TRAVEL<br />

ZURICH -<br />

LONDON<br />

REST DAY<br />

STOKE<br />

MANDEVILLE<br />

HOSPITAL<br />

(NSIC)<br />

STOKE<br />

MANDEVILLE<br />

HOSPITAL (NSIC)<br />

SPINAL<br />

INJURIES<br />

ASSOCIATION<br />

UK<br />

Potential<br />

observations at<br />

Headley Court –<br />

Military<br />

Rehabilitation<br />

Centre<br />

Transcriptions<br />

and work<br />

25<br />

REST DAY<br />

26<br />

REST DAY<br />

27<br />

REST DAY<br />

28<br />

TRAVEL<br />

LONDON –<br />

AUCKLAND -<br />

CHRISTCHURCH<br />

29<br />

TRAVEL<br />

LONDON –<br />

AUCKLAND -<br />

CHRISTCHURCH<br />

30<br />

COMPLETE<br />

31<br />

<strong>WCMT</strong> Research Fellowship 40


Appendix 5. Example Schedule – Swiss Paraplegic Centre, Notwill<br />

Date Time Appointment Where<br />

Wednesday, May<br />

14<br />

08.30 Introduction to Swiss Paraplegic Centre Main entrance of the clinic<br />

08.30 - 09.45<br />

Nursing Management – Acute Ward with<br />

the Clinical Nurse Manager<br />

Ward D<br />

09.45 - 10.00 Coffee Break Ward D<br />

10.00 - 12.00 Occupational Therapy Office of Therapies Director<br />

12.00 - 13.00 Lunch time<br />

13.00 - 14.00<br />

Nursing Management – Activities with<br />

student nurses and rounds<br />

Ward D<br />

14.00 - 15.00 Vocational Department Introduction<br />

Institute for Vocational<br />

guidance<br />

15.00 - 16.00 Consultant Paraplegiology Office Dr<br />

Thursday, May 15<br />

09.00 Coffee with the team Restaurant<br />

09.15 - 10.00 Visit of the teaching lessons Vocational guidance<br />

10.00 - 11.00 Vocational counsellor Office 1<br />

11.00 - 12.00 Vocational counsellor Office 2<br />

12.00 - 12.30 Lunch time Restaurant<br />

12.30 – 14.00 Vocational discussion<br />

14.00 – 16.00 Vocational Teacher<br />

Institute for Vocational<br />

guidance<br />

Workshop Vocational<br />

guidance<br />

16.00 – 18.00 Occupational Therapy OT<br />

<strong>WCMT</strong> Research Fellowship 41


Friday, May 16 Time Appointment Where<br />

06.00 – 09.45 Physiotherapy PT<br />

09.45 - 10.00 Coffee Break PT<br />

10.00 – 12.00 Swiss Paraplegic Research GZI<br />

12.00 - 13.00 Lunch time<br />

13.00 – 15.00 Area Manager for Life Guidance Swiss Paraplegic Association<br />

15.00 – 16.00 Short break<br />

16.00 – 17.00 Area Manager of Culture & Leisure Swiss Paraplegic Association<br />

<strong>WCMT</strong> Research Fellowship 42


Appendix 6. Pictorial Fellowship highlights<br />

Left – Right and Top – Bottom Rusk pediatric activity space, myself and both the Director and Manager of Rusk Vocational<br />

Department, Notwill Ward D staff visual representation, Notwill art as viewed from a patient room (representation of a broken<br />

vertebrae), me at Notwill lake, Notwill assistive technology mouse example, handcycles at Burke gym, Notwill institute aerial<br />

view, Notwill patients wheelchair skills on an escalator and lastly a field in Notwill.<br />

<strong>WCMT</strong> Research Fellowship 43

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