Official Journal Of The Trinidad & Tobago Medical - the Trinidad and ...
Official Journal Of The Trinidad & Tobago Medical - the Trinidad and ...
Official Journal Of The Trinidad & Tobago Medical - the Trinidad and ...
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Caribbean <strong>Medical</strong> <strong>Journal</strong><br />
Development of a Nationwide T&T Diabetes Outreach Program<br />
Part 2: Specific Programs<br />
inform public health decisions related to diabetes care, including<br />
what initiatives to fund <strong>and</strong> where to put resources, based on<br />
solid evidence developed in T&T. Second, conducting research<br />
in T&T will bring advances in diabetes care more quickly to<br />
<strong>the</strong> bedside <strong>and</strong> to <strong>the</strong> clinics in T&T <strong>and</strong> will keep health care<br />
professionals aware of <strong>the</strong> latest in diabetes research by actually<br />
participating in it. Third, it will provide an opportunity for<br />
young health care professionals interested in careers in diabetes<br />
research to be exposed <strong>and</strong> mentored by established investigators<br />
in T&T <strong>and</strong> at Johns Hopkins. A vigorous research program<br />
can increase options for new doctors interested in diabetes <strong>and</strong><br />
help to keep <strong>the</strong>m in T&T. Finally, a thriving research program<br />
would help establish T&T as a regional <strong>and</strong> international leader<br />
in diabetes among middle-income countries, which are often<br />
neglected by international organizations.<br />
Needs Assessment <strong>and</strong> Priority Setting<br />
Using methods of community-based participatory research<br />
applied to developing countries 19 , a series of individual <strong>and</strong><br />
group meetings were held with members of <strong>the</strong> T&T health<br />
sciences community for <strong>the</strong> purposes of fact-finding, needs<br />
assessment, <strong>and</strong> priority setting. Participants included key<br />
government stakeholders, academic institution leaders, research<br />
organizations, diabetes organizations, researchers <strong>and</strong> clinicians<br />
interested in diabetes. On <strong>the</strong> advice of senior investigators<br />
from <strong>the</strong> University of <strong>the</strong> West Indies (UWI), we sought to<br />
match areas of research that have a priority in T&T, have<br />
interested T&T professionals, <strong>and</strong> fit special expertise available<br />
at Johns Hopkins.<br />
<strong>The</strong>se meetings identified a consistent set of priority research<br />
areas in T&T: (a) diabetes prevention, especially among children;<br />
(b) patient behavioral <strong>and</strong> educational interventions to improve<br />
self-care behaviors <strong>and</strong> adoption of lifestyle modification; <strong>and</strong><br />
(c) epidemiological research to capture national diabetes-related<br />
prevalence, incidence, trends <strong>and</strong> costs, beyond convenience<br />
samples, to set priorities for public health initiatives <strong>and</strong> policy.<br />
<strong>The</strong> St. James study, which collected baseline data from 1977-<br />
1981, is one model of a successful diabetes <strong>and</strong> cardiovascular<br />
disease surveillance study of this nature in <strong>Trinidad</strong> 20, 21 . Active<br />
diabetes research is in progress currently in T&T, but <strong>the</strong>re is<br />
clearly room for, <strong>and</strong> a need for, fur<strong>the</strong>r initiatives to build <strong>the</strong><br />
next generation of established investigators, mentors,<br />
collaborators, <strong>and</strong> trainees.<br />
<strong>The</strong> assessment meetings also identified potential <strong>Trinidad</strong>based<br />
research entities with whom to partner for sustainability<br />
of initiatives. <strong>The</strong>se include several faculty members at UWI<br />
who are actively engaged in research; <strong>the</strong> CHRC, which has<br />
served as a major provider of training in research skills,<br />
monitoring <strong>and</strong> evaluation, grant writing, <strong>and</strong> research ethics 22 ;<br />
<strong>and</strong> <strong>the</strong> Caribbean Epidemiology Center (CAREC), which is<br />
administered on behalf of PAHO <strong>and</strong> provides epidemiological<br />
research services <strong>and</strong> data to PAHO member countries, largely<br />
focused, however, on communicable diseases.<br />
Implementation Plan Components<br />
Based on <strong>the</strong>se findings, <strong>the</strong> major components of TTHSI’s<br />
Diabetes Outreach Program research implementation plan are:<br />
• Establishment of a Research Advisory Committee comprised<br />
of <strong>Trinidad</strong>ian <strong>and</strong> Johns Hopkins researchers to oversee,<br />
monitor, <strong>and</strong> evaluate <strong>the</strong> Diabetes Outreach Program research<br />
initiatives.<br />
• Funding for 3 major research projects focused on <strong>the</strong> priority<br />
areas identified: prevention, behavioral intervention, <strong>and</strong><br />
epidemiology. Each research project will require a full<br />
proposal <strong>and</strong> a <strong>Trinidad</strong>ian <strong>and</strong> Johns Hopkins Co-Principal<br />
Investigator team (see below).<br />
• Compilation of a Researcher Directory, listing local<br />
researchers conducting diabetes-related studies, <strong>and</strong> a<br />
Collaborator Directory of Johns Hopkins diabetes researchers<br />
from <strong>the</strong> School of Medicine <strong>and</strong> Bloomberg School of<br />
Public Health, representing specialties including genetics,<br />
epidemiology, clinical research, <strong>and</strong> health services research.<br />
In addition, potential collaborators from <strong>the</strong> Johns<br />
Hopkins/University of Maryl<strong>and</strong> Diabetes Research <strong>and</strong><br />
Training Center <strong>and</strong> <strong>the</strong> Welch Center for Prevention,<br />
Epidemiology <strong>and</strong> Clinical Research will be included.<br />
• Organization of one or more research conferences or<br />
workshops, in collaboration with <strong>the</strong> CHRC, geared<br />
specifically toward research methods exemplified in <strong>the</strong><br />
Diabetes Outreach Program funded research projects.<br />
Specific Research Topic Areas<br />
1) Prevention: As mentioned in <strong>the</strong> accompanying Overview<br />
essay, prevention of diabetes is an enormous challenge, but<br />
one that should be engaged. <strong>The</strong>re is great interest in this<br />
at <strong>the</strong> levels of <strong>the</strong> Regional Health Authorities <strong>and</strong> <strong>the</strong><br />
Ministry of Health. Johns Hopkins investigators have<br />
experience, notably from 13 years as a clinical center for<br />
<strong>the</strong> federally funded Diabetes Prevention Program (DPP)23.<br />
A protocol will be developed collaboratively to address <strong>the</strong><br />
challenge of prevention, particularly in young people.<br />
2) Behavioral Medicine: It is frequently noted that it makes<br />
little difference what health care professionals say or do if<br />
people with diabetes do not adhere to recommendations,<br />
take medicines, <strong>and</strong> have o<strong>the</strong>r elements of good self care.<br />
Behavioral Medicine studies <strong>the</strong> influences that help or<br />
hinder people from doing what would be good for <strong>the</strong>m.<br />
Dr. Felicia Hill-Briggs from Johns Hopkins is not only a<br />
leading expert in this area of research but is directing our<br />
Diabetes Outreach Program’s research effort. She looks<br />
forward to developing one or more protocols for <strong>the</strong> study<br />
of behavioral factors influencing diabetes self-care in T&T.<br />
3) Epidemiology: <strong>The</strong> current world of epidemiologic research<br />
depends to a large degree on reliable, complete databases<br />
of health. <strong>The</strong> U.S. government’s National Health <strong>and</strong><br />
Nutrition Epidemiologic Survey (NHANES) is a prototype,<br />
<strong>and</strong> considerable expertise exists in <strong>the</strong> Johns Hopkins<br />
Bloomberg School of Public Health on epidemiologic<br />
database development. <strong>The</strong> plan is <strong>the</strong>refore to develop<br />
collaborations that can help T&T establish a database that<br />
when fully implemented, could facilitate epidemiologic<br />
research.<br />
21