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THE Challenge! Spring 2011

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<strong>THE</strong> <strong>Challenge</strong>!<br />

ADVOCACY UPDATE<br />

By Sarah D’Orsie, Director of Government Affairs, Brain Injury Association of America<br />

This spring, BIAA remains focused on health care reform, appropriations, TBI<br />

Act and more. With the appropriations climate more uncertain than ever, BIAA<br />

has tirelessly advocated for brain injury programs in Congress by meeting<br />

with both Appropriations and authorizing Committees to drive home the importance of<br />

brain injury services and rehabilitation. Fiscal Year <strong>2011</strong> appropriations had not been<br />

finalized by press time; BIAA is monitoring the negotiations closely while continuing<br />

work on Fiscal Year 2012 funding. Although government spending will likely be<br />

limited, we look forward to a successful policy year for the brain injury community.<br />

BIAA Unveils <strong>2011</strong><br />

Legislative Fact Sheets<br />

On March 16, <strong>2011</strong>, BIAA released its <strong>2011</strong> legislative fact<br />

sheets highlighting critical public policy issues for people<br />

with brain injury, including: access to care, research, TBI Act<br />

appropriations and reauthorization, military, and membership in<br />

the Congressional Brain Injury Task Force. BIAA is excited to<br />

move forward these priorities in the 112th Congress. Go here to<br />

download the fact sheets: www.biausa.org/biaa-advocacy.htm.<br />

President’s FY2012 Budget<br />

After analyzing the President’s proposed FY2012 budget in<br />

February, BIAA is pleased to report that programs authorized<br />

by the TBI Act, including the Health Resources and Services<br />

Administration (HRSA) Federal TBI Program and the Centers<br />

for Disease Control and Prevention (CDC’s) important TBI<br />

work, have both been recommended to receive at least the same<br />

funding found in FY10 final and FY11 Continuing Resolution<br />

(CR) appropriations bills, $10 million for HRSA and just under<br />

$7 million for CDC.<br />

The CDC collects data, links both military and civilian<br />

populations with TBI services, increases public awareness,<br />

and conducts public health research. The HRSA Federal TBI<br />

Program funds 18 states to improve systems coordination access<br />

to care for people with brain injury.<br />

Also, the budget aims to preserve the TBI Model Systems of<br />

Care Program, funding 16 centers, two collaborative research<br />

centers and one technical assistance center. Originally, it was<br />

thought the budget recommended to discontinue two centers,<br />

but after clarification from the National Institute of Disability<br />

and Rehabilitation Research (NIDRR), BIAA is confident that<br />

all aspects of the program will be renewed.<br />

The TBI Model Systems are a collection of research centers<br />

located across the United States that conduct disability and<br />

rehabilitation research under grants administered by the<br />

National Institute on Disability and Rehabilitation Research<br />

of the U.S. Department of Education. They are the only source<br />

of non-proprietary longitudinal data on what happens to people<br />

with brain injury. The TBI Model Systems are a key source of<br />

evidence-based medicine, and serve as a “proving ground” for<br />

future researchers.<br />

BIAA will continue to work with legislators to ensure that<br />

Congress understands the importance of these programs and<br />

how they affect the 1.7 million people across the United States<br />

with brain injury.<br />

Sports and Concussion<br />

On March 16, <strong>2011</strong>, Reps. Bill Pascrell, Jr. and Todd Russell<br />

Platts, as well as Sen. Tom Udall, introduced bipartisan legislation<br />

aimed at protecting youth athletes from the dangers of sportsrelated<br />

traumatic brain injuries.<br />

The Children’s Sports Athletic Equipment Safety Act (HR<br />

1127/S 601) would ensure that new and reconditioned football<br />

helmets for high school and younger players meet safety<br />

standards that address concussion risk and the needs of youth<br />

athletes. The bill also increases potential penalties for using<br />

false injury prevention claims to sell helmets and other sports<br />

equipment.<br />

BIAA endorsed the legislation and provided technical assistance<br />

during the writing of the bill.<br />

Other<br />

In January, President Obama signed into law the Frank Melville<br />

Supportive Housing Investment Act, amending Section 811, the<br />

Supportive Housing for Persons with Disabilities program. The<br />

law will provide a new authority to the Department of Housing<br />

and Urban Development (HUD) to allocate long term operating<br />

assistance funds to states where a strong supportive housing<br />

plan exists to link services to mainstream affordable housing for<br />

persons with disabilities.<br />

13<br />

<strong>THE</strong> <strong>Challenge</strong>! | <strong>Spring</strong> <strong>2011</strong>

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