PABI Plan - The Sarah Jane Brain Project

The Honorable Kathleen Sebelius
Secretary of Health and Human Services
Hubert Humphrey Building
200 Independence Avenue, SW, Room 120F
Washington, DC 20201
The Honorable Arne Duncan
Secretary of Education
400 Maryland Avenue, SW, Room 7W301
Washington, DC 20202-1510
The Honorable Eric Ken Shinseki
Secretary of Veterans Affairs
810 Vermont Avenue, NW, Room 1000,
Washington, DC 20420
The Honorable Robert Gates
Secretary of Defense
1000 Defense Pentagon, Room 3E880
Washington, DC 20301-1000
The Sarah Jane Brain Foundation
181 Broadway – Suite 300
New York, NY 10007
(212) 201-0599
www.TheBrainProject.org
The Honorable Shaun L.S. Donovan
Secretary of Housing and Urban Development
Robert C. Weaver Federal Building
451 Seventh Street, SW, Room 10000
Washington, DC 20410
The Honorable Raymond LaHood
Secretary of Transportation
1200 New Jersey Avenue, SE
Washington, DC 20590
The Honorable Eric Holder
Attorney General of The United States
950 Pennsylvania Avenue, NW
Washington, DC 20530
Re: Attached National Pediatric Acquired Brain Injury Plan (PABI Plan) Grant Proposal
August 18, 2009 (original)/September 16, 2009 (revised)
Dear Secretaries Duncan, Sebelius, LaHood, Donovan, Gates and Generals Shinseki and Holder;
As I stated in the first letter sent to President Barack Obama on his Inauguration Day, we are committed
to reforming the system of care for millions of our most vulnerable and innocent Americans – those
suffering from a Pediatric Acquired Brain Injury (PABI).
As you may know, PABI is the NUMBER ONE cause of death and disability for children and young
adults in the United States; yet despite that fact, very few average Americans recognize PABI as a
significant problem, which only serves to exacerbate the problem within the medical and educational
communities. To compare numbers with a commonly recognized condition (autism), the CDC currently
estimates there are over 1.4 million NEW brain injuries that occur EVERY year, but there have been only
560,000 TOTAL number of children up to age 21 who have been diagnosed as being on the autism
disorder spectrum. PABI is an under-recognized, under-funded, misunderstood national health epidemic!
PABI includes traumatic causes such as falls, motor vehicle accidents, sports concussions, blast injuries
from war, assaults/child abuse or being struck by an object as well as non-traumatic causes such as brain
tumors, strokes, meningitis, insufficient oxygen, poisoning, epilepsy and pediatric AIDS. Since the
developing brain doesn’t completely mature until about 25 years of age, more than half of the young
veterans returning from Iraq and Afghanistan with traumatic brain injuries fall into the PABI category and
will be covered by the PABI Plan. It is not only the signature wound of these conflicts but it is the single
most devastating condition facing our nation!

Since that historic day on January 20th, we have finalized the first-ever National Pediatric Acquired Brain
Injury Plan (PABI Plan) which outlines the development of a seamless, standardized, evidence-based
system of care, universally accessible for all children and young adults suffering from PABI regardless of
where they live in our nation. We began implementing the PABI Plan on June 5th (Sarah Jane’s birthday)
by announcing the largest healthcare collaboration in U.S. history dealing with pediatric brain injury - 52
Sarah Jane Brain Family State Lead Centers of Excellence were chosen (one in every state plus D.C. and
Puerto Rico) after an intensive application process. We have also been briefing every Member of
Congress and their staff about the PABI Plan, as well as every federal agency dealing with pediatric brain
injury, including a recent briefing at The White House. The list of State Lead Centers include many of
the leading medical institutions (such as Mayo Clinic, Mount Sinai, Children’s Hospital Boston/Harvard
Medical School, Kennedy Krieger/Johns Hopkins) and Research Universities (such as UCLA, U of
Virginia, U of Kansas, U of Illinois at Chicago) in the country as well as several state Brain Injury
Associations.
The next step in implementing the PABI Plan is funding this national collaboration. Upon reviewing the
American Recovery and Reinvestment Act of 2009 (ARRA) passed this year by Congress, it was pretty
clear many of the goals outlined in the ARRA would be addressed and accomplished by fully
implementing the PABI Plan. Since the PABI Plan covers the entire continuum of care for these millions
of children and young adults, there is no single federal Agency or single federal Department that has
complete jurisdiction. Therefore, we are submitting the enclosed grant proposal to all seven federal
Departments that have the greatest intersection of responsibilities: Department of Education, Department
of Health and Human Services, Department of Transportation, Department of Housing and Urban
Development, the Veterans Administration, the Department of Defense and the Department of Justice.
Since there are also no guidelines for multi-Department unsolicited grant proposals we have put together
this proposal based off of the PABI Plan and based upon the recommendations of our 52 State Lead
Centers.
The implementation of the PABI plan would accomplish the following ARRA goals:
• Creating over 6,000 jobs across every state and territory
• Converting a large group of Americans with numerous and complex medical conditions into an
electronic health record system, which will reduce medical errors, save billions in health care
costs, and allow millions of families to learn from each other’s experiences
• Provide relief and support to millions of families who are managing their child’s health and
education needs through a very byzantine system, many of these families are in low-income and
vulnerable households
• Using comparative effectiveness research, we will improve the health of these millions of
children and young adults, improve the health of communities and the performance of the health
system by conducting, supporting and synthesizing research that compares the clinical outcomes,
effectiveness and appropriateness of items, services and procedures that are used to prevent,
diagnose, and treat the leading cause of death and disability in children and young adults in the
nation – brain injuries
• Develop the largest clinical and self-reporting registry and the largest “open-source” database in
the world of medical and education records to advance the field of pediatric neurology and other
related areas
• Develop and expand prevention efforts
• Developing and implementing a nationwide, comprehensive, coordinated, multidisciplinary,
interagency system to provide early intervention services and to improve outcomes, train,
educate, and support families and professionals during this crucial time period
• Develop and implement effective adult transition programs to support individuals with significant
disabilities by maximizing their leadership empowerment, independence and productivity and to

promote the integration and full inclusion of these individuals into the mainstream of American
society
• Improve information technology systems to deliver benefits and services to our younger Veteran
population who sustained a brain injury due to a blast during war before they turned 25 years of
age (while their brain is still in the developmental stage) while at the same time create additional
support systems for the families of these young, wounded warriors
• Whether it is through prevention of abusive head trauma/child abuse or helping to identify the
young adults currently in our juvenile delinquency system with an undiagnosed and untreated
brain injury, there is considerable correlation with the Department of Justice goals
At first, the only goal of ARRA we couldn’t state we would accomplish was building more roads and
bridges. However, upon further contemplation, it became clear there are many young construction
workers in America who sustain a brain injury and they are not able to go back to work. By
implementing the PABI Plan we will be able to get many of these folks back to work! Therefore, we
propose this grant will help build roads and bridges too.
The PABI Plan will also fulfill the priorities of the comparative effectiveness research and investments as
listed below:
• Potential impact: based on prevalence of condition, burden of disease, variability in outcomes,
costs
• Potential for increased patient benefits or decreased harm
• Potential to evaluate comparative effectiveness in diverse populations and patient sub-groups and
engage communities in research
• Addresses need or gap unlikely to be addressed through other organizations
• Potential for multiplicative effect (e.g., lays foundation for future CER such as data infrastructure
and methods development and training and generating additional investment outside government)
In order to begin fully implementing the PABI Plan, the funding of the enclosed grant proposal would be
a two-year commitment of $930 million distributed directly to the 52 State Lead Centers. Since no single
Department has complete jurisdiction over the scope of this proposal, we do not expect the funds to come
from any single Department but from a consortium of these Departments plus the Federal Coordinating
Council for Comparative Effectiveness Research.
Upon reviewing the enclosed grant proposal, I am confident you will have the same level of excitement at
the unique opportunity we have today to address this current health crisis facing our nation called
Pediatric Acquired Brain Injury. We look forward to working with you and your representatives to
implement the PABI Plan and fundamentally change the lives of millions of fellow Americans.
On behalf of our National Advisory Board and the millions of PABI families across our country, we
greatly appreciate your consideration and thank you in advance for funding this critical initiative.
All the best,
Patrick B. Donohue, Esq.
Founder, The Sarah Jane Brain Foundation
Father, Sarah Jane Donohue

P.S. Every 21 seconds a child/young adult acquires a brain injury in this country. Since you began
reading this letter, over 20 children and young adults in America now have a brain injury and over 20
families are forever changed. Time is of the essence to implement the PABI Plan!

The National Pediatric Acquired Brain Injury Plan Grant Proposal
Developed by the National Advisory Board of
The Sarah Jane Brain Foundation
TABLE OF CONTENTS
Foreword by Sarah Jane Donohue…….………………………………………………. 2
Executive Summary ……………………………………………….………………… 5
Two-year Milestones………………………………………………………………….. 10
Chapter 1: Analysis of Pediatric Acquired Brain Injury Today………………………. 11
Chapter 2: The TBI Model System and the PA/TBI Model System………………….. 18
Chapter 3: Category of Care – Prevention ………………………...…………………. 21
Chapter 4: Category of Care – Acute Period of Care ……………...……...…...……… 23
Chapter 5: Category of Care – Mild TBI Identification, Assessment and Treatment….. 31
Chapter 6: Categories of Care – Reintegration/Long-Term Care……………………..… 37
Chapter 7: Categories of Care –Adult Transition……………………………………...… 50
Chapter 8: Category of Care – Rural/Tele-Health ……………………………………. 58
Chapter 9: Category of Care – The Virtual SJBF Center (registry and database) …… 68
Chapter 10: Organizational Structure……………………………………………. …… 74
Chapter 11: Financing the PABI Plan……………………………………………..…… 82
Chapter 12: Assumptions and Overall Budget……….……………………………..…… 85
Chapter 13: State Lead Center Profiles and Individual Budgets.…………………..…… 88
References ……………………………………………………………………………… 571

FOREWORD
by Sarah Jane Donohue
When I was only five days old, the baby nurse my parents hired to help them in my first two
months of life shook me so hard, she broke four ribs, both collarbones and caused a severe brain
injury. While I lay helpless for over a week, the monster told no one. I was unable to cry,
became very lethargic and was finally brought back to the hospital where I was born healthy just
two weeks earlier. The monster quickly confessed to her crime and my family was left dealing
with the fact that I would never be the same child again.
While being discharged from the hospital several weeks later, the pediatric neurologist told my
parents the injury was an eight on a scale of one to 10. When they asked, he said I would never
be a normal child and I would probably never walk or talk. The correct answer by this doctor
should have been, “I don’t know.” Fortunately for me, my Daddy doesn’t listen to bad doctors!
I was immediately enrolled in Early Intervention and began a rigorous therapy regimen that built
up to physical, occupational, vision, feeding/speech therapies and special instruction - up to three
hours of each therapy per week! When I was one year old my Daddy created a special crawler
which allowed me to move independently. Then, for Christmas that year, he built me my very
own walker and he even adapted it so I could walk on the treadmill!
My Daddy read as many books about neuroplasticity and neurology as he could handle (although
I think some of the books he just skimmed because they were very complex). The more he read,
the more he realized how little was known about the brain at all, let alone an infant’s brain. He
also realized there was no single repository of information about neurological breakthroughs or
discoveries – it is an extremely fractured field. It reminded him of the computer science industry
in the 1950s and 1960s, where brilliant people were working all over the world in the same areas,
but no one knew specifically what anyone else was doing.
He took that idea and then asked himself, “Where are all the breakthroughs occurring today?”
The answer was in Open Source Principles, which is basically the concept of shared knowledge.
Since no one was using those principles in the field of neuroscience, Daddy decided to do it
himself. He launched The Sarah Jane Brain Project in October 2007, and Phase One entailed
putting all of my medical records and videos of my therapy sessions online in an Open Source
format – the first time in medical history this had ever been done for anyone.
Phase Two of the Sarah Jane Brain Project involved recruiting other families of children like me
who have brain injuries to participate, since the more of us who gather together, the stronger we
are. During this phase, he also began to recruit the best in the field of pediatric acquired brain
injury to help him develop the first-ever National Pediatric Acquired Brain Injury Plan (PABI
Plan). Every family affected by brain injury my Daddy has ever connected with talked about
having to reinvent the wheel in learning how to perform basic care and receive basic services for
their child instead of being able to focus on the uniqueness of their child’s specific issues.
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Phase Three consisted of having the Working Group of the National Advisory Board of the
Sarah Jane Brain Foundation develop the first draft of the National PABI Plan. This document is
designed to outline a comprehensive continuum of care, from prevention of pediatric brain
injuries to acute medical care to reintegration and rehabilitation in the community and transition
into adult systems.
Phase Four involves fully funding and implementing the National PABI Plan across the country.
My Daddy promised to begin Phase Four before my fourth birthday on June 5, 2009, and he did.
As my birthday present, he announced the largest healthcare collaboration in U.S. history dealing
with pediatric brain injury: 52 State Lead Centers, one leading institution or organization from
every state plus the District of Columbia and Puerto Rico.
With today’s announcement of the largest grant proposal in U.S. history dealing with pediatric
brain injury to begin funding this historic nationwide initiative, it is very appropriate this
announcement is made on Marilyn Spivack’s birthday (my daddy gives great birthday presents).
Marilyn founded The Brain Injury Association of America more than 30 years ago after her
daughter suffered a brain injury due to a motor vehicle accident. She has been a pioneer in
advocating for awareness, prevention and treatment of children and young adults with brain
injury. My daddy believes I wouldn’t be alive today if not for Marilyn’s advocacy and tireless
efforts over many decades (now you know why I like Marilyn so much). Happy Birthday
Marilyn and thank you!
My daddy tells me the money for the initial two years of implementing the PABI Plan are going
to come from “The Stimulus Funds” which he said were appropriated to create jobs, improve the
lives of as many Americans as they can and fundamentally impact the delivery and service of
health care using new technologies. It sounds like a perfect match to me!
While I still cannot talk or walk on my own yet, my Daddy has taught me his philosophy in life,
“Things work out best for those who make the best out of the way things work out!” I cannot
begin to thank the National Advisory Board enough for being my voice and the voice of the
millions of children and young adults around the country who suffer from pediatric acquired
brain injury. Someday I will thank each and every one of you myself with my own voice! Until
then, please keep talking for me.
August 18, 2009
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The Executive Summary
As the #1 leading cause of death and disability in the United States for children, adolescents and
young adults, Pediatric Acquired/Traumatic Brain Injury (PA/TBI) is a national disaster.
Because a brain injury is typically “invisible,” it remains unrecognized or under-recognized,
thereby markedly increasing the burden of care in all aspects of society. For the purposes of this
grant proposal and overall initiative, it is recognized that Traumatic Brain Injury (TBI) is a
subset of Acquired Brain Injury (ABI). As such, to ensure that there is no gap in the discussion,
issues, and services between these areas of Pediatric Acquired Brain Injury (PABI), the terms are
being combined and will be herewith referred to as Pediatric Acquired/Traumatic Brain Injury
(PA/TBI).
Particularly because their brains are still developing, it can result in wide-spread impairments
and dysfunction not only in cognition and motor function but also in behavior and social
function. The injury can also affect the developmental trajectory which in itself can increase
dysfunction or exacerbate impairment. A developing child/young adult’s recovery, rehabilitation
and habilitation from a brain injury is a complex process influenced by premorbid child and
social environmental characteristics, acute monitoring and treatment, and the responses of
family, school, and community during this process. Since the effects of a PA/TBI are so
complex, it requires the integration of medical, educational, judicial and social service systems.
As such, this coordinated interdisciplinary response is necessary to facilitate any long-term
rehabilitation.
The Sarah Jane Brain Project (SJBP) recognizes many of the practices described in this grant
proposal are currently being implemented. It is the purpose of this document to build on the
many individualized practices that exist. However, the consistent availability, coordination and
integration of the numerous well-established interventions, programs, and supports do not exist
at the present time on a national level. The mission of the Sarah Jane Brain Project is to
develop a seamless, standardized, evidence-based system of care universally accessible for
all children/young adults and their families dealing with PA/TBI regardless of where they
live in the nation. This PA/TBI Model System of care is called the National Pediatric Acquired
Brain Injury Plan (PABI Plan). The National Advisory Board of The Sarah Jane Brain Project
developed the PABI Plan and this grant proposal is taken directly from the PABI Plan. (To read
the entire PABI Plan, please visit www.TheBrainProject.org). SJBP will facilitate this
integration along with ongoing development of effective interventions and supports, and their
validation through research guided by theory, existing data across disability populations, and
participant needs.
There are many definitions of pediatric acquired brain injury (PABI) and pediatric traumatic
brain injury (PTBI). For the purpose of this document, the term PA/TBI will be used. This
includes traumatic causes such as those sustained as a result of motor vehicle accidents, sportsrelated
injuries, blast injuries from war, assaults/child abuse, gun shot wounds and falls along
with non-traumatic causes including but not limited to anoxia, infection, brain tumor, stroke,
seizure, inflammation, toxins, meningitis, substance abuse and metabolic disorders. The focus of
the SJBP is on children, adolescents and young adults, ranging in age from birth to 25 who have
sustained a traumatic or non-traumatic acquired brain injury. Young adults are included due to
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the fact that their brains are still developing, as indicated by biological measures (brain
metabolism, myelination), neurocognitive measures (executive functions, inhibitions) and social
measures (beginnings of independence, transition to adult privileges and responsibilities).
The first step in implementing the PABI Plan to fulfill this mission was to create a national
structure providing complete national coverage and the ability to standardize the system of care
while still providing the flexibility for each state to have its own pathway to universal
accessibility. In order to ascertain and carry out this integrated seamless system of care , a
network of 52 Sarah Jane Brain Family (SJBF) State Lead Centers of Excellence (State Lead
Centers) have been created (one in every state plus the District of Columbia and Puerto Rico).
Each State Lead center will have three main responsibilities: 1) developing and implementing a
Statewide Master Plan creating a seamless, standardized, evidence-based system of care,
universally accessible for all PABI families within their state; 2) providing a specialized case
management system for these PABI families within their state; and 3) providing a Regional
leadership role around one of the seven Categories of Care within the PABI Plan.
The country was divided into seven regions of seven or eight states/territories in each region
(Northeast, Mid-Atlantic, Southeast, Mid-Central, South-Central, Rocky Mountain and Pacific
Regions). The seven Categories of Care within the PABI Plan are 1) Prevention, 2) Acute, 3)
Mild TBI, 4) Reintegration/long-term care, 5) Adult Transition, 6) Rural/Tele-medicine, 7) The
Virtual SJBF Center.
The average two-year grant for each State Lead Center is approximately $18 million, with some
State Lead Centers requiring more based upon larger populations, National responsibilities, etc…
The overall budget for the first two years of implementing the PABI Plan in all 52 states and
territories is approximately $930 million. This will create over 6,000 jobs in every state and
territory.
With advances in technology, neuroinformatics and assessment including functional brain
imaging and genomics, the establishment and funding of a SJBF Center of Excellence in every
state will dramatically improve the lives of children and young adults by increasing our
understanding of the determinants of rehabilitation from PA/TBI and to inform the development
of innovative, empirically-based interventions. Such a system will offer significant cost
efficiencies, funding efficiencies and independent revenue models.
The terms recovery, rehabilitation, and habilitation are used throughout this document and
represent overlapping processes. Definitions of these terms are needed, as well as clarification of
how they relate to intervention and key reintegration periods (transition from hospital to
rehabilitation, reintegration from hospital to home, reintegration into the school system, and
transitions into each stage of life).
Recovery is defined here as an ongoing process that begins as soon as the patient is medically
stable and continues until the patient no longer shows improvement in any impaired functions.
The process continues across acute, sub-acute, and chronic phases. In the acute phase, recovery
represents stabilization of neurologic, metabolic, and/or medical status, usually through
interventions targeted to brain and body health (i.e., stabilization of intracranial pressure,
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inflammation, etc.). The use of the term recovery in the sub-acute and chronic phases is used to
reflect continuing biological changes in brain function and plasticity. These almost certainly
interact with processes of normal brain development.
Neuroimaging research in humans suggests these recovery processes may continue for years
after injury. The end of the acute recovery process is determined when the effects of injury on
cognition, mood, and behavior can begin to be most accurately assessed. However, recovery
may not occur spontaneously and should be actively promoted through rehabilitation and
habilitation.
Rehabilitation in this document is intended to represent periods of active intervention that might
include but are not limited to: pharmacological, physical, occupational, vision, speech-language,
psychological, behavioral, and/or educational therapies. Rehabilitation should continue as long
as it results in improvements in function. When interventions no longer yield improvements in
function, the child transitions into a period of habilitation.
We must acknowledge these periods are not clearly definable stages nor do they necessarily
occur along a continuum. The entire process of recovery from injury will include multiple
periods of active rehabilitation interspersed with periods of habilitation as new concerns are
identified such as when children transition from one stage of life to another. The key is initial
identification of brain injury, control of the cascade of injury processes during the acute phase,
and active surveillance to identify any developmental stalls or new concerns.
In addition, while a TBI may be classified medically as “mild,” the term can be misleading since
there is nothing “mild” about any brain injury, thus the reason for quotation marks around the
word throughout the document.
Principles for SJBF Centers of Excellence
Once the SJBF Centers are in operation, they will be guided by four over-arching goals:
1) To prevent PA/TBI through changes in social practices and policy.
2) To facilitate the provision of care and services to maximize the child/young adult’s
recovery and development after PA/TBI and to support the family though all stages of
recovery.
3) To improve the capacity of schools and community agencies to deliver rehabilitative
and educational services and support to the child/young adult and family.
4) To use research to better understand the effects of neurological insults on the
developing brain, to research the individual, medical and social environmental
determinants of recovery and function, as well as the most effective interventions for
improving child/young adult and family outcomes.
These centers will serve not only as primary, secondary and tertiary care facilities but also as
resources for individual physicians, caregivers, families and other hospitals (see Figure 1). Data
will be incorporated into a centralized SJB Family Registry (see Chapter 9), allowing for the
efficient evaluation of best practices. Findings from research will be disseminated using
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methods developed by the SJBP to share knowledge gained with the entire brain injury
community. The specific principles underlying these goals are outlined below.
Principle 1: Prevention is the best possible treatment for any brain injury and includes
preventing the initial insult as well as preventing secondary medical, social, and
behavioral consequences, including preventing a second injury.
Principle 2: The developmental stage of the child/young adult at the time of injury and
recovery across the lifespan must always be considered, and all treatments and
interventions should be implemented by individuals with pediatric training and special
expertise in PA/TBI.
Principle 3: Providers and all professionals should adhere to the principles of family-
and person-centered care, engaging the family and child/young adult themselves in a
collaborative process for setting and achieving treatment goals.
Principle 4: Early identification of PA/TBI is critical to improving long-term outcomes.
Principle 5: Best clinical practices need to be determined based upon evidence from
research and then standardized to be effective and efficient.
Principle 6: Children’s recoveries are strongly influenced by their environmental
contexts (home, school, community). Beyond early hospitalization, interventions to
improve outcomes for children and young adults with PA/TBI must occur in the settings
in which children and young adults with PA/TBI live and function (school, home, and
community), and must involve the “everyday people” in these settings such as
parents/caregivers, teachers, and peers.
Principle 7: Interventions for children and young adults with PA/TBI must acknowledge
the overlap among different disability populations in terms of treatment needs and useful
interventions.
Principle 8: Research should use a variety of methodologies to examine hypotheses
regarding recovery and intervention (prospective, naturalistic follow-up studies,
randomized controlled trials, single subject experiments, qualitative studies, and animal
models).
Principle 9: Interventions for children with PA/TBI occur at multiple levels (e.g.,
physical, medical, psychological, family, school, community) and across a continuum of
care (e.g., acute care, rehabilitation, re-entry, and ongoing educational, social, and
vocational life). Research on the effectiveness and efficacy of intervention should link
both vertically (i.e., across levels) and horizontally (i.e., across the continuum of care),
must follow children and families long-term, recognize that needs are likely to change
over time, use functional outcome measures, and measure generalization to a variety of
functional contexts of application.
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Principle 10: Interventions for children with PA/TBI occur across a developmental
spectrum that varies according to age at injury, time since injury, and age at intervention.
The effectiveness and efficacy of any intervention may vary as a function of these
developmental parameters because of critical variations both in neural developmental and
environmental contexts.
Principle 11: Proper PA/TBI training and education for future medical and educational
professionals should be integrated into current graduate and medical school programs in
order to ensure continuity of care is taught to those just entering the medical or
educational profession.
Figure 1: The Circle of Care Model
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Two-Year Milestones
Quarter 1:
• The 7 National Lead Centers will begin staffing, training and operating their State Lead
Center and Category of Care Management responsibilities (over the course of Q1 and
Q2)
• The National Lead Center for the Virtual Center Category of Care will begin developing
the SJB Family Health, Education and Social Registry
• All 52 State Lead Centers will begin any IRB requirements
Quarter 2:
• The remaining 45 State Lead Centers will begin staffing, training and operating their
State Lead Center and Category of Care Management responsibilities (over the course of
Q2 and Q3)
• The National Lead Center for the Virtual Center Category of Care will launch the SJB
Family Health, Education and Social Registry
Quarter 3:
• The 7 National Lead Centers will begin staffing, training and operating their Level 1
Case Management Centers (over the course of Q3, Q4, Q5 and Q6)
Quarter 4:
• The remaining 45 State Lead Centers will begin staffing, training and operating their
Level 1 Case Management Centers (over the course of Q4, Q5, Q6 and Q7)
• The 7 National Lead Centers will begin staffing, training and operating their Level 2
Case Management Centers (over the course of Q4, Q5, and Q7)
Quarter 5:
• The remaining 45 State Lead Centers will begin staffing, training and operating their
Level 2 Case Management Centers (over the course of Q5, Q6, and Q7)
• The 7 National Lead Centers will begin staffing, training and operating their Level 3
Case Management Centers (over the course of Q5 and Q6)
Quarter 6:
• The remaining 45 State Lead Centers will begin staffing, training and operating their
Level 3 Case Management Centers (over the course of Q6 and Q7)
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CHAPTER 1: Analysis of Pediatric Acquired Brain Injury Care Today
Pediatric Acquired/Traumatic Brain Injury (PA/TBI) is a national disaster. Because a brain
injury is typically “invisible,” it remains unrecognized or under-recognized, thereby markedly
increasing the burden of care in all aspects of society. The effects of a PA/TBI are complex and
require the integration of medical, educational, judicial and social service systems. For the
purposes of this grant proposal and overall initiative, it is recognized that Traumatic Brain Injury
(TBI) is a subset of Acquired Brain Injury (ABI). As such, to ensure that there is no gap in the
discussion, issues, and services between these areas of Pediatric Acquired Brain Injury (PABI),
the terms are being combined and will be herewith referred to as Pediatric Acquired/Traumatic
Brain Injury (PA/TBI).
PA/TBIs are truly an epidemic. The Centers for Disease Control and Prevention (CDC) reports
that for children aged 14 and under there are 2,685 deaths, 37,000 hospitalizations, and 435,000
emergency room visits attributable to TBI annually (see Figure 2). As the incidence of PA/TBI
is at its maximum for those aged 16 to 24 years, and due to the fact that not all individuals with
TBI present to an acute care hospital, these staggering numbers can only be underestimates of the
true rates of PA/TBI.
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Figure 2: CDC figures for death and disability due to PTBI annually
Figure 3: CDC figures for TBI prevalence by age
The World Health Organization (WHO) has noted that PTBI is the NUMBER ONE cause of
morbidity and mortality for children and young adults. Children are 20 times more likely to die
from PTBI than from asthma and 38 times more likely to die than from cystic fibrosis.
Additionally, the WHO reported in 2008 that there were twice as many children who suffered a
brain injury than those who received stitches.
The financial burden of PTBI is estimated to cost well over $12 billion a year (2000 CDC data).
This figure does not include the significant financial impact of those children and young adults,
who because of their PTBI will never be able to contribute financially or otherwise to society as
adults, nor does it include lost productivity of the child/young adult’s parents and family. These
numbers also do not include those children who acquire their injuries from non-traumatic causes
such as stroke, brain tumors, infections of the brain and anoxic/hypoxic injuries.
While the economic cost of PA/TBI is clearly underestimated and growing every year, the
positive impact of enacting the National PABI Plan is clear. Since there is a huge decrease in
lifetime earnings and other outcomes such as educational achievement of children/young adults
with PA/TBI, any positive improvement in functioning and contributions to society has an
enormous compounding impact. In addition, since the SJBF Centers are focused on supporting
families as well as the child/young adults, the exponential increase in productivity of the
parents/caregivers over time as a result of that support is staggering. Since most parents become
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the primary caregivers/case coordinators for their children, this becomes another distinguishing
difference between the adult ABI and PA/TBI population.
Since these SJBF Centers will be gathering considerable quality information through a specially
designed registry, it will be possible to examine the economic benefit from a particular treatment
or care management plan, whereby changes in said earnings could be measured compared to
their counterparts that do not receive such treatment. It will be possible to combine the estimates
of the change in the cost of care based on such treatment. Some potential outcomes to consider
include the additional savings per life saved, the additional savings per life year gained, the
additional net economic savings per life year gained, the additional savings per quality adjusted
life year (QALY), the additional net economic benefit per QALY gained and the net economic
benefit of any particular intervention. These types of economic analyses are currently unrealistic
because of the dearth and quality of data.
For the families who have experienced a child/young adult with a PA/TBI, it is a terrifying and
challenging experience. Their children are often not diagnosed and many are misdiagnosed.
Access to comprehensive and integrative care is extremely rare. Most troubling, ongoing and
coordinated support for the lifetime needs of someone with a PA/TBI is virtually nonexistent.
Families have to be constantly searching and reinventing services because there is no
coordinated, seamless circle of care for those with PA/TBI or their families.
Historically, PA/TBI has been studied and addressed primarily as a medical issue. Program
development has taken place largely at the level of medical rehabilitative treatment. Most of the
research has focused on this level of treatment as well as on children’s outcome from the
perspective of their neurological impairments. However, a number of important considerations
mandate a sharpened focus on long-term issues from psycho-social, educational and
environmental perspectives, as well as increased support for ongoing rehabilitative, educational,
and support services provided by the school systems and other community providers.
The school systems are now acknowledged to be the major provider of rehabilitative as well as
educational services for children and adolescents with PA/TBI. Following a severe brain injury
at age 10, for example, a child/young adult may receive services for three months in acute and
rehabilitative medical care, followed by eight years of services in the school system, a ratio of
1:32. Investigators agree that rehabilitative needs evolve and often grow in number and intensity
over the years after PA/TBI, resulting in seriously compromised adult outcomes.
Furthermore, because school professionals have less training than medical and rehabilitation
professionals in understanding and managing PA/TBI-related issues, their need for training and
support is greater than that of medical and rehabilitation professionals. Fortunately, the few
studies that exist suggest that well-conceived interventions and supports delivered after discharge
from medical rehabilitation can be effective, significantly benefitting the child/young adult,
family members and education staff.
For all of these reasons, the SJBF Centers of Excellence will provide leadership in designing,
studying, and disseminating long-term interventions and supports for children/young adults with
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PA/TBI and their families, delivered by effectively trained and supported community
professionals.
Sarah Jane Brain Project (SJBP):
In an effort to address this major gap in care, the SJBP organized and consulted with the
Working Group of its National Advisory Board. These experts in the field of PA/TBI have over
1,000 years of collective experience and their task was to analyze the continuum of care for
PA/TBI, identify the problems along this continuum and then propose solutions. As a result of
this effort, the National PABI Plan was drafted and made public along with the first letter sent to
President Barack Obama on January 20, 2009, at 12:01 p.m. (a copy is available on the website
www.TheBrainProject.org). This grant proposal has been developed from the final version of
this comprehensive, integrative, accessible, culturally sensitive, long-term and child/family
centered circle of care for PA/TBI. These experts included families and family advocacy
organizations, physicians, allied health care professionals, educators and researchers.
Wherever possible, recommendations are based on evidence derived from "good" science.
However, there is little research being done in the broad field of PA/TBI in comparison to the
magnitude of the problem. We have identified key research questions that will be addressed
immediately to improve the management and long-term treatment of PA/TBI. There were two
key research components examined by the Working Group along the continuum: 1) translational
research – “What are the questions needed to be asked and what data needs to be gathered to
ensure the PABI Plan is tested, evidence-based, and replicable?” and 2) scientific investigative
research – “What are the questions needed to be asked and answered to advance the field of
PA/TBI?”
The long-term research agenda of the SJBF Centers will be formed by emerging clinical and
research evidence and reflect an interdisciplinary integration of research questions and
methodology. It should be noted this research agenda is by no means complete, but does
represent the areas of research that can provide the maximum help in the management of PA/TBI
as quickly as possible with future research needs to be delineated over time. Indeed, the entire
circle of care will need to be modified as more evidence of best treatments is documented.
This group of experts was divided and asked to address (1) prevention, (2) acute care needs, (3)
transition to the community and ongoing rehabilitation, (4) long-term needs, (5) research which
will span all phases and (6) child/young adults, parents/caregivers, siblings and other family
considerations at each stage. Where necessary, the severity and cause of the PA/TBI was also
addressed.
In addition, the definition of PA/TBI takes into consideration and includes the age range from
birth to age 25 years because of the recognized physiological developmental changes that the
brain is still undergoing in the third decade of life. As such, it encompasses the care of over 73.3
million children and young adults within the United States of America based on the 2000 census.
The PABI Plan has been developed into seven “Categories of Care” for treating brain injuries in
children and young adults: 1) Prevention, 2) Acute Phase, 3) Mild TBI Assessment / Treatment,
4) Reintegration / Long-term care, 5) Adult Transition Phase, 6) Rural / Telehealth and 7) The
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Virtual Center. For each Category of Care, it will be important to establish a nationwide
standard for collecting translational data, a standard set of training, education and dissemination
of information, and the ability to monitor and develop scientific investigative research.
The entire program is based on the following premise: the most important way to treat PA/TBI is
to prevent it in the first place. Prevention has been conceptualized broadly to include programs
that are available to prevent PA/TBI caused by everything from motor vehicle collisions to
programs addressing other forms of acquired brain insult such as those to encourage sound
immunization regimens and improved nutrition.
Prevention occurs at a number of different levels including primary prevention which entails
forestalling PA/TBI in the first place, secondary prevention which involves limiting the impact
of PA/TBI, and tertiary prevention, or preventing repeat brain injury. Prevention programs must
be evaluated to prove they make a difference and actually decrease the incidence of PA/TBI.
Existing programs that have been or are being shown to be effective should be expanded and
instituted nationwide, when replicable. New programs should be developed, based on evidence,
to increase the dissemination of prevention information and this information should be widely
distributed.
Education is also a key part of the circle of care. Education should address important aspects of
PA/TBI, including: definition, prevention, diagnosis and treatment, facilitation of recovery,
provision of needed assistance in schools and participation in the community. Education must
target children and young adults, parents and extended family, educators, health care providers
across the continuum, and mental health specialists to optimize appropriate identification and
treatment over time. Those providing direct services to children/young adults with PA/TBI and
their families must be well informed. Although there are many with expertise throughout the
nation, the current accessibility to these experts and their overall numbers are insufficient to
address the full scope of the problem.
Mild TBI is the largest sub-group with estimates of 1-3 million new children/young adults
annually suffering from this largely undiagnosed and untreated condition. In addition to the
problem of under-identification, few specialty outpatient clinics exist for active treatment and
management. Contributing to this problem, few trained pediatric clinical specialists are available
with a focus on “mild” TBI. Hampering service, evidence-based models of pediatric “mild” TBI
care are not articulated and therefore, clinicians do not have clear guidance regarding the
development of these clinical care systems within the continuum. With a shortage of specialized
clinics to treat “mild” TBI and the requisite professional expertise, a variety of problems are
evident. Most importantly, without a specialty system in place, the clinical problems that
children and families face post-injury are at increased risk for worse outcomes including reinjury,
prolonged recovery, and possible catastrophic outcomes.
The SJBF Centers will seek to standardize acute care for PA/TBI during field-side assessment,
Emergency Department triage and stabilization, critical and acute care management in hospital
and rehabilitation based on state-of-the-art evidence. This standardized approach must
encapsulate all areas of healthcare delivery and healthcare personnel education/training. In
addition, the Centers will emphasize the importance of timing rehabilitative interventions
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appropriately in the care of the child/young adult with a brain injury. Ongoing research is
essential and will be conducted in the best way to care for children with PA/TBI, and as new
information emerges it will be disseminated to other sites as rapidly as possible. Each Center
will have exceptionally-trained Sarah Jane Brain Family (SJBF) Specialists who will operate as
“super-caseworkers” for each family.
Rehabilitation begins during the acute recovery phase and can continue throughout the child or
young adult’s life. The SJBF Centers will seek to expand our understanding of how much, what
kind and when rehabilitation is necessary for various kinds of PA/TBI. Communication with the
family and the initiation of the transition the family will undergo is imperative. Initiating
rehabilitation programs early is paramount, but so is the recognition that the rehabilitative
process continues in the child/young adult’s community and this rehabilitation needs to be
ongoing as the child/young adult develops and grows and the brain undergoes the physiologic
preplanned growth and refinement necessary for brain maturation. Indeed, one of the reasons
why PA/TBI is so different from adult A/TBI, is the fact the brain is maturing and new skills are
emerging. Infants, children and young adults often manifest their PA/TBI when they fail to meet
expected developmental milestones at the appropriate times.
It is equally important to recognize that transitioning from the pediatric system into the adult
system of care is one of the most difficult and challenging phases. There is a need to coordinate
the transition for individuals, caregivers, educators and the community since the adult system of
care is more directed towards independent living and vocational training without the structured
support system of the ideal pediatric system. There is very little research done within the Adult
Transition Category of Care.
In order to develop a system of care that is universally accessible for all children/young adults
and their families no matter where they live in the nation, it is imperative we have an emphasis
on the families living in rural America, which encompasses over 75% of the landmass in our
country and almost 25% of our population. In order to accomplish this mission, telehealth and
telerehabilitation programs must be developed, tested and implemented throughout the country.
In order to standardize the system of care, evidence and data will be collected, analyzed and
stored through The Virtual SJBF Center. In addition to serving as a data collection pool, the
Virtual Center will be an online resource for individuals, families, professionals and the general
public for all stages of the continuum of care and an opportunity to use advancements in
healthcare I.T. to improve the system of care.
Long-term revenue models:
An additional component of the National PABI Plan is the Sarah Jane Brain Legal (SJBL)
Center. The purpose of the SJBL Center is to provide children and adolescents with the best
means of accessing the supports and services necessary for individuals with PA/TBI. The legal
center will incorporate education about and the most effective means for obtaining these services
from the medical, educational and social services communities or organizations, as well as other
legal entities, in the most efficient manner. Always taking into consideration the needs of the
child/young adult and family, the legal center will ensure a continuum of service delivery into,
through and beyond the legal age for those services. The legal center will serve as a legal hub
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for any legal issues the child/young adult and family needs and also facilitate appropriate
transition and access of services into the adult world and support continuity of those services.
The National Advisory Board has also begun looking at long-term revenue models so the system
of care is not solely reliant upon public financing. The Sarah Jane Brain Legal Center will serve
as one source of non-public funding. In addition, The Sarah Jane Brain Project will develop its
own contract research organization (CRO) focused around pediatric acquired brain injuries
which should be able to generate significant funding for the system of care over time as well and
generate additional research projects. There are numerous other revenue and fund-raising plans
which are in the process of being developed. We expect these non-public revenue to eventually
generate hundreds of millions of dollars annually and become the largest component of our
budget.
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CHAPTER 2: The TBI Model System and the PA/TBI Model System
The Current Status of The TBI Model System
The TBI Model Systems came into existence in 1984 when the National Institute of Disability
and Rehabilitation Research (NIDRR), United States Department of Education funded four
centers as five-year grants. The four centers were located at Medical College of Virginia, Mount
Sinai Medical Center, Rehabilitation Institute of Michigan and Santa Clara Valley Medical
Center. A data center at SUNY Buffalo was funded as well.
The initial funding for the centers was about $250,000 per year (direct and indirect costs). Every
five years the Model Systems are re-competed and some centers are re-funded, some centers are
de-funded and new centers are funded. Therefore, the “cadre” of TBI Model Systems has not
been stable over the 25 years of the program. The current cohort of the TBI Model Systems was
funded in October 2007, and consists of 16 centers, a data center that is located at Craig Hospital
in Denver, Colorado and a Knowledge Translation Center that is located at the University of
Washington. Current funding is about $420-450,000 per year (direct and indirect costs).
These 16 programs are located at: Baylor College of Medicine, Craig Hospital, Dallas
Rehabilitation Center, JFK-Johnson Rehabilitation Institute, Kessler Institute for Rehabilitation,
Medical College of Virginia, Mass Rehabilitation Hospital, the Mayo Clinic, Mount Sinai
Medical Center, Ohio State University, Rehabilitation Institute of Chicago, Rehabilitation
Institute of Michigan, Santa Clara Valley Medical Center, Shepherd Center, University of
Alabama, and University of Washington.
Although there is no standardization of the rehabilitation programs provided by the TBI Model
Systems, the programs are CARF and JCAHO accredited. Each program is supported for its
“local” research as well as its contribution to multi-site knowledge development projects and
clinical trials. Currently, there are more than 50 research projects ongoing within the TBI Model
Systems. Thus, the TBI Model Systems are research centers.
In addition, each center contributes between 35-40 new cases each year of individuals with
moderate-severe TBI who receive their acute care and rehabilitation within the model system.
These individuals are followed at intervals of 1, 2, 5, 10, 15 and 20 years post-injury. Currently,
there are about 8,000 individuals with TBI included in the TBI Model System database that are
being followed. Thus the TBI Model System represents the only longitudinal database on the
long-term outcome and challenges of individuals with TBI.
The TBI Model System includes only those individuals who are older than 16 years of age. The
age was originally set based on the JCAHO parameters and not based on any specific
neurological evidence. Most of the TBI research over the years has been targeted towards the
adult TBI population. It is worth noting children are not “little adults.”
Challenges for Developing a PA/TBI Model System
There are several challenges that are barriers to developing and implementing a PA/TBI Model
System. They include the following:
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1. There is little if any basic laboratory research on the acute stage of PA/TBI regarding
pharmacological or surgical treatment, nor are there any studies on interim or longterm
neurological outcomes resulting from early stage interventions.
2. The epidemiology of pediatric moderate-severe TBI is not well studied, therefore the
number and characteristics of children who would meet the inclusion criteria in a
national database (however defined) is not known.
2. The pediatric “model system” has not been defined because the pathways of care are
not well defined. In other words, what percentage of those with moderate-severe
PA/TBI receive inpatient rehabilitation as opposed to being discharged to their homes
directly from acute care? Once home they receive community-based or home-based
services. Appropriate models of care or transition remain ill-defined. Standardized
methods for identification, service delivery, and tracking children with “mild” TBI
are lacking. The nature of the problem remains ill-defined: is a model system for
those with moderate and severe injuries or for those with mild injuries as well?
3. The model of care for children and adults is very different. More specifically for
adults there are diverse programs of post-acute inpatient and outpatient services
available. There is no such care network available for children. Indeed the panoply
of outpatient programs available to adults is replaced by “educational” systems that
are not prepared to provide adequate services to children with PA/TBI. There are few
“model” programs of either outpatient or school-based programs of care that could be
used as models for system development.
4. School systems are ill-equipped to deal with children with PA/TBI and are more
comfortable classifying them with disabilities that are more consistent with ongoing
service delivery schemes.
5. There is no standardized method for identifying children with PA/TBI when they
enter school or in the years that follow. Thus, the true number with children with
PA/TBI is not known and is a deduction; therefore, the extent of the problem remains
unknown.
6. While there is some longitudinal data on “recovery” from moderate-severe PA/TBI,
follow-up periods are limited and the long-term follow-up data on those with all
ranges of PA/TBI severity remains unknown. Thus, we do not know the social
consequences of PA/TBI in terms of unemployment, substance abuse, psychiatric
disability, delinquency, violence, etc.
7. There are few Departments of Rehabilitation Medicine currently admitting a
sufficient number of children with PA/TBI so they are unable to create specialized
PA/TBI rehabilitation programs.
Solutions For Developing A PA/TBI Model System
1. Epidemiological studies need to be funded examining the epidemiology and
longitudinal course of PA/TBI. Better information is needed in terms of the number
of children with “mild,” moderate, and severe injuries who are injured each year,
what services they receive and what happens to them over time.
2. Data from epidemiological studies need to be applied to the development of an
interdisciplinary basic research program to develop early-stage interventional
treatments using PA/TBI laboratory models.
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2. States need to “buy” into identification of PA/TBI. Children must be identified when
they enter school and each subsequent year thereafter. An integrated system of
services is necessary to address the unique needs of children with PA/TBI and their
families along the full continuum from “mild” to severe injuries and disabilities.
3. Best practices need to be established for statewide programs of identification, teacher
training and classroom interventions.
4. Evidence-based practices for classroom intervention need to be established
5. Evidence-based programs of cognitive rehabilitation for children with PA/TBI need
to be developed consistent with the child’s development age.
6. Evidence practices for family-based intervention need to be established.
7. Models of care need to be developed consistent with the child’s cognitive, behavioral,
physical, sensory and emotional challenges.
8. Model programs for points 2-7 need to be identified and replicated.
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CHAPTER 3: Category of Care: Prevention
THE BEST POSSIBLE TREATMENT FOR ANY BRAIN INJURY IS PREVENTION
Current Status & Problems:
Brain injuries can be prevented and controlled. Various prevention models have been proposed,
but for the purpose of this grant proposal the classic model will be used. Primary prevention
entails preventing new injuries, secondary prevention involves reducing the severity of injuries
and tertiary prevention is decreasing the frequency and severity of disability after an injury.
(WHO)
Prevention needs to include all aspects of PA/TBI including but not limited to: prevention of
meningitis/encephalitis, near-drownings, strokes, playground safety, gun safety, trauma,
recreational safety, automobile and bicycle safety, prevention of domestic violence and child
abuse, fall prevention and sports/concussion prevention.
There are a variety of primary prevention programs currently in existence. Many have not been
evaluated as to their usefulness and often overlap in their activities. Examples of some effective
primary prevention programs for preventing injury include: Think First, SafeKids, ImPACT,
Period of PURPLE Crying, WalkSafe, etc.
Primary prevention programs should be based on the WHO Model, whereby multiple agencies
partner together to implement a five-“E” program: Education, Engineering, Enforcement,
Evaluation, and Encouragement. This 5-E model developed by WalkSafe in 2003, which has
been adopted by the National Safe Routes To School Program (SRTS) is an example of a
primary prevention program. The purpose of Safe Routes to School is to enable and encourage
more children to safely walk and bicycle to school whereby multiple agencies partnered together
to implement the 5-“E” program.
A public health perspective also allows for an integrative approach to address childhood injury.
Such an approach brings together as partners national and local agencies and organizations
involved in injury prevention. The Public Health Model paradigm includes: surveillance of a
problem (what is the problem), identifying risk factors (what are the causes), implementation of a
program (how is it done) and then development and evaluation of the interventions (what works).
There are few nationally-implemented primary prevention programs. There are even fewer
secondary and tertiary prevention programs. The need to prevent a second brain injury following
an initial insult cannot be overemphasized. There is a serious need to reduce the morbidity of
PA/TBI by preventing/limiting/minimizing subsequent developmental stall and identify and
assess chronic behavioral and psychiatric issues associated with it.
Family Perspective:
The importance of preventing a brain injury is not well-appreciated by families and their
communities until an injury actually occurs. Many simple but effective preventive measures
(helmets, seat belts, car seats) are still underutilized or improperly utilized. Particular issues
include the impact of a concussion on cognitive, psychosocial and emotional competencies; the
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implications of shaking a baby; and the impact any PA/TBI has, not only on the child/young
adult, but on the family and community long-term. Continued reflection and consideration is
needed based upon all families’ experiences for the development of the types of prevention and
communication strategies effective in preventing PA/TBI. Furthermore, there are many
successful prevention advocacy organizations needing additional funding and support to expand
upon their successes.
Solutions:
1. Application of WHO methods for primary and secondary prevention and employing
educational initiatives for injury prevention.
2. Collection of targeted injury data for identifying priority issues and high risk parameters,
using a standardized dictionary of terms for uniformity across all stakeholders in A/TBI.
3. Refinement, development and testing of evidence-based prevention programs which are
sustainable and able to be generalized for any given community.
4. Increased availability of prevention education/re-education programs with active
research.
5. Utilization of a “train the trainer” model of education and support.
Secondary/ tertiary prevention:
1. Advocacy training of families.
2. Training of medical personnel, community, school, sports/recreational agencies regarding
risks of re-injury and/or current injury exacerbation.
3. Risk reduction for homelessness, addictions, abuse and psychiatric sequelae.
4. Target education and screening within the correctional/prison system and special
programs within schools, as well as direct education of pediatric and adolescent
psychiatrists and psychologists to better identify children with a history of trauma.
Research Priorities (not in particular order):
1. Identification of risk factors for various types of injuries (e.g. MVA/falls/sports/child
abuse/military).
2. Investigation of the effective prevention strategies for each main mechanism, type and
severity of injury.
3. Improved identification of secondary injuries by means of biomarkers.
4. Establishment of effective measures for the prevention of repeated injuries.
5. Recognition of risk factors for psychiatric co-morbidities.
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CHAPTER 4: Category of Care: Acute Care (moderate to severe PA/TBI)
Current Status:
Acute care includes the management of the child/young adult from the scene of the injury
(EMS), through Trauma Resuscitation Units or Emergency Departments to an Intensive Care
Unit, through inpatient rehabilitation. In addition, for non-TBI cases it begins at the diagnosis of
the brain injury. Early recognition of neurologic deterioration for all types of PA/TBI is a
significant problem and if not recognized, the patient’s condition will likely worsen and increase
the burden of the injury. This is particularly important for the problem of inflicted TBI (abusive
head trauma). In these cases, the presenting symptoms may be non-specific and the infant may
arrive at a medical facility without a complete history of the injury. It is known that many cases
of mortality and morbidity due to inflicted TBI occur after an initial presentation where the
diagnosis of TBI was not recognized. This highlights the importance of the Golden Hour of
Trauma Care and the importance of EARLY identification and assessment which leads to the
best possible outcomes and quality of life.
Severe PA/TBI acute clinical management guidelines exist (2003, with update in progress) but
the evidence base remains sparse. There remains a lack of precision and frequent delay of
appropriate therapy for pediatric victims of traumatic brain injury. These unnecessary delays in
care represent missed therapeutic opportunity and undermine quality and extent of recovery.
There is a need for improved infant/young child injury scales.
A new approach to classification of injury based upon underlying pathophysiology and
neurobiological mechanism is needed to allow appropriate categorization and target treatment.
Age-specific pediatric physiological variables, in combination with genetic markers and
anatomical and metabolic imaging, may serve as a means to achieve this goal.
Most neurocritical monitoring is not routinely performed in pediatric ICUs, and when it is, use is
generally simply extrapolated from the adult experience rather than driven by specific pediatric
clinical evidence. It is increasingly becoming clear that many medications routinely used in
infants and young children may have strikingly different efficacy and side effects from their use
in adults. Outcomes are currently measured as survival or short term global outcomes that fail to
fully describe the level of developmental recovery across developmental domains and over time.
The definition of intermediate care varies widely across institutions, but for the purposes of this
grant proposal it is defined as when the child/young adult no longer requires monitoring in an
intensive care setting but still requires hospitalization. Children may also enter this phase of
hospital care for observation following their PA/TBI who do not need ICU-level care, but still
require acute medical management. The important decision at this level is whether the
child/young adult will require inpatient rehabilitation, or long-term care or can they be
discharged into the community and receive rehabilitation within the community. While in this
phase of hospital care it is clear that all should continue receiving early rehabilitation services
using a multi or interdisciplinary model.
This intermediate period was developed in 1992 at the University of Miami/Jackson Memorial
Medical Center as the Intermediate Head Injury Service (IHI) for adults. In 2001, a similar

service was developed for children and adolescents (Hotz & Kuluz, 2005). This program was
found to:
• decrease the child/young adult’s length of stay in the PICU, thereby decreasing costs,
• improve and centralize specialized neurological management for these children to one
unit on an acute care floor,
• begin appropriate early rehabilitation,
• begin discharge planning with case management support, and
• begin education for child and family about brain injury in the acute phase of recovery
The purpose of an IHI is to provide an acute multidisciplinary team approach for establishing a
comprehensive early medical/rehab intervention and identification system for the assessment and
treatment of children recovering from brain injury. There are very few centers that manage
children with brain injury in an intermediate care unit specializing in neurological management
and early therapy. This specialized unit may prove to be beneficial to optimize recovery and
functional outcomes.
Inpatient rehabilitation refers to inpatient services for the individual with PA/TBI provided by
collaborative treatment teams addressing the individual medical, physical, psychological and
social needs of patients. The goal is to maximize independent function and educate families
regarding home care in a fashion that facilitates ongoing clinical improvement and follow-up
after discharge.
Multiple program types of inpatient rehabilitation meeting various criteria:
1. There are currently only 7 pediatric inpatient rehabilitation programs which have CARF
(Commission on Accreditation of Rehabilitation Facilities) accreditation with
specialization in Pediatric Brain Injury. There are other programs in the country with
qualified medical, therapeutic, psychological, and family services which also provide a
high quality of care for this population.
2. There are 28 CARF accredited Pediatric Family Centered/Pediatric Specialty programs
within Children’s Hospitals as of 2008.
3. According to UDSMR (Uniform Data Systems for Medical Rehabilitation), 24 Pediatric
Inpatient Rehabilitation Programs within Children’s Hospitals use WeeFIM as a standard
outcome measure. Many facilities use other standardized outcome measures (PEDI, etc.).
4. There are few centers providing a comprehensive approach to PA/TBI treatment
throughout the continuum of care, including services in the acute, intermediate, acute
rehabilitation, and long term post-discharge stages including transitioning into adulthood.
5. There is variation regarding timing of initiation of inpatient rehabilitation and criteria to
qualify (frequently dictated by insurance coverage, local system structures).
Problems:
With poor identification and no active management, there is an increased risk of delayed
recovery, re-injury, and catastrophic outcome.
Although there have been advanced care courses developed by national organizations, and while
there are evidence-based guidelines for the acute care management of infants, children and
adolescents, the process of resuscitation and initial evaluation is still variable among centers and
24

even providers and the impact of these guidelines on care processes and outcomes is not known.
As a result, the process and effect of resuscitation remains poorly defined and unnecessarily
imprecise. This lack of precision and timely initiation of appropriate therapy causes avoidable
delays in care which results in poor outcome. Improper fluid volume or content, or inadequate
blood pressure resuscitation may add to neuronal injury and result in missed therapeutic
opportunities.
The process of acute care and resuscitation is intended to optimize recovery from injury and
minimize injury related damage. Current critical care processes are not yet sophisticated enough
to link cell signaling or organ system cross talk to specific clinical problems related to multiple
organ dysfunctions.
The main problems with advancing acute PA/TBI clinical care are:
1. There is substantial variability in injury type, severity and developmental stage not
addressed by current grading scales.
2. There is substantial variability in processes and procedures for initial assessment and
physiological stabilization of children with severe poly system trauma with and without
TBI.
3. Management of PA/TBI is extrapolated from adult A/TBI protocols, many of which are
inappropriate for children or do not consider the special developmental concerns of
children.
4. There is inadequate linkage of multimodal acute physiological variables (vitals,
intracranial pressures, EEG, neurologic exams, neuroimaging) with long-term
developmental and functional outcomes and rehabilitation interventions (developmental
assessments, neuropsychological testing, and developmental/behavioral diagnoses).
5. There is a lack of good age-specific animal models for preclinical testing of hypotheses
and interventions in the acute care/ICU setting. Secondary problems are identifying
appropriate ages between humans and different animal species, inconsistent
implementation of current pediatric A/TBI protocols, understanding age-specific
toxicities/side effects of medications and monitoring effects of environmental stimulation
during the acute phase.
6. Administration of PA/TBI care is variable across practitioners, institutions and
geographic regions making it difficult to draw meaningful conclusions from existing data.
7. Accurate and relevant premorbid and early post-morbid data are rarely available.
8. Obtaining informed consent for interventional and translational studies.
9. Non-medical factors influence the delivery of appropriate medical care.
10. Little data is available on efficacy of, and guidelines for use of, treatments such as
hypothermia, craniotomy, and others in the PA/TBI population.
Problems in inpatient rehabilitation:
1. Barriers to seamless transition from acute care to rehabilitation persist.
a. Lack of funding frequently eliminates or delays critically needed acute rehabilitation
b. Parental confusion often results in loss of eligibility for certain government sponsored
programs
2. Minimal evidence exists for the mode of delivery and types of medical rehabilitation:
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a. There is a lack of evidence for rehabilitation therapies, that is, lack of research and/or
evidence-based practice regarding admission criteria, pharmacologic management,
therapy type, timing, length or intensity of therapy.
b. There has been little progress in this area since the 1999 Agency for Health Care
Policy and Research report Rehabilitation for Traumatic Brain Injury in Children and
Youth
3. Minimal evidence exists for system issues:
a. Lack of common data collection in uniform fashion
b. Lack of awareness/education among healthcare practitioners and administrators
c. Lack of qualified personnel
d. Lack of financial support
e. Lack of minimum requirements to provide service (i.e. pediatric specialty), especially
regarding third party payers in-network providers
f. Lack of ability to extend treatment plan to local community
g. Limited ability to serve individuals who are slow to recover or who are considered to
have plateaued.
4. There exists a significant and deleterious discontinuity of care and knowledge about
PA/TBI between the inpatient hospital setting and personnel and normal everyday
community-based school, medical, and therapeutic personnel.
Solutions:
1. Develop and maintain a multicenter network of collaborating centers in order to generate
meaningful data and conclusions.
2. Identify natural age ranges and then develop a normative database of physiological
parameters for children.
3. Implement a data management system that provides long-term surveillance and includes
standardized elements that can be extrapolated to analyze effects of variability in care on
outcome.
4. Develop pathophysiology-based injury scales to properly categorize patients and direct
treatment. PA/TBI should not be viewed as a single disease entity but a constellation of
multiple distinct but overlapping diagnoses.
5. Delineate the utility and circumstances for advanced neuromonitoring in pediatric ICUs
and examine the role these tools play in hemodynamic management.
6. Standardize acute trauma/critical care based on clinical pathways, uniform clinical
reporting mechanisms and informatics designed to enhance clinical decision support.
7. Facilitate development of more sophisticated PA/TBI models, with particular focus on
proper age-range translation between animal and humans and on modeling common
secondary injuries seen in pediatrics.
8. Design translational studies to incorporate both acute physiological measurements and
long-term outcomes in the same individuals (for both animal studies and prospective
human observational studies).
9. Increase awareness and integrate knowledge about age-specific complications of drug
treatments into translational pediatric studies.
10. Monitor for effects of environmental stimulation (both intentional and incidental) during
the acute injury phase after PA/TBI.
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11. Acquire data to determine the effects of non-medical factors on delivery of appropriate
PA/TBI care such as socio-cultural, family, pre-injury factors.
12. Increased utilization of technology to facilitate monitoring, data review, team
communication and access to specialists.
13. Improve communication among ICU physicians, consulting physicians, other care
providers and family members in addition to initiating contact with a SJB Family
Specialist.
14. Develop joint education programs for health care providers to promote interdisciplinary
approaches and communication.
15. Monitor efficacy and potential side effects of therapies in children.
16. Develop strategies to study the effects of smooth transition out of the ICU and initiation
of early rehabilitative interventions for all levels of PA/TBI severity (“mild” to severe).
17. Review and augment current neuroimaging paradigms using evidence-based studies and
foster the development of new neuroimaging research related to the PA/TBI patient at all
levels of their injury from immediate/acute management to long-term care and
rehabilitation.
18. Identification of biomarkers reflecting cellular changes and deployment of an integrated
informatics system enabling the clinician to recognize them will support development of
preemptive approaches to critical care management. Moreover, these biomarkers will
enable objective assessment of therapeutic efficacy and define immediate results of
intervention.
19. Carry out controlled multivariate studies of the efficacy of specific therapeutic
interventions (medications, hypothermia surgery) on short-term and long-term outcomes
across the phases of care, rehabilitation and reintegration.
20. Standardize process of acute critical care based on clinical pathways, uniform clinical
reporting mechanisms and informatics designed to enhance clinical decision support.
Specific components of management can be reviewed at https://www.I‐trauma.com/ITwiki
21. Standardize care paradigms across units that care for children with PA/TBI (ED, OR,
ICU, etc).
22. Create value streams for best practice (quality improvement loops).
Solutions for intermediate care:
1. Using evidence-based research, standardize the definition and the process of transition
from ICU to rehabilitative care in an appropriate timeframe.
2. Improve availability through increased access to inpatient and community-based
rehabilitation that is child/young adult and family-centered and evidence-based as much
as possible.
3. Provide continuity of care in terms of providers when available (i.e., same inpatient and
outpatient providers).
4. Long term care facilities need to be aware of the need for slower paced rehabilitation
including the medical and therapeutic services.
5. Improve understanding of patterns of recovery and pathophysiology.
6. Develop treatment specific to these patients.
7. Baseline and continuous assessment to measure treatment effectiveness and monitor
recovery that is pediatric specific and that can lead to standardization of care.
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8. In addition, ongoing education and training are needed to continuously upgrade
therapeutics and skills based on new research, evidence and technology.
9. Improve communication among physicians, other care providers and family members in
addition to maintaining continuing contact with a SJB Family Specialist.
Solutions for inpatient rehabilitation:
1. Establish a Model PA/TBI Network to include inpatient rehabilitation to form a base for
patient care, research, education, and development of evidence-based practice for specific
pharmacologic agents, stem cell trials, nutrition, occupational, vision, physical, speech,
and behavioral therapies, and/or combinations thereof. Specifically, current experimental
models should be translated into clinical trials. Information regarding optimal timing,
intensity, and length of inpatient rehabilitation must be elucidated.
2. Establish a protocol for discharge including a case manager who works with the
rehabilitation team to assist patients/families in navigating networks of care, identifying
local resources, reintegrating into community/school, etc. Specifically regarding school
there should be an identified individual to facilitate re-entry.
3. Establish within each model group a process for advocating, educating, and
implementing PA/TBI recommendations for governmental agencies, third party payers,
health care systems, and communities.
Ensure practices (assessment, intervention, service delivery) are sensitive to developmental,
socio-cultural, and linguistic factors that consider the post-discharge needs and realities of the
child/young adult and family.
Research Priorities (not in particular order):
1. Timing, volume, type, and technique of fluid resuscitation of the child with polytrauma
and TBI have not been evidence-based or directly linked with long-term neurocognitive
performance.
2. Timing, type and techniques of systemic and neuromonitoring, and hemodynamic goals
has not been adequately investigated or linked to long term outcomes
3. Effect of systemic therapy on cerebral physiology and long term outcomes.
4. Timing and type of secondary insults on secondary TBI are not well defined and linked to
long term outcome.
5. The effect of delay throughout, especially when the continuum of care involves interfacility
transfer has not been accurately described nor linked to long-term outcome.
6. Identify candidate biomarkers (inflammatory, physiologic, etc) and translate these from
animal models, and validate in humans.
7. Develop and test safe and effective early-stage neuroprotective interventions that can be
tested in subsequent clinical trials specifically designed for a pediatric population.
8. Age and development related effects of various biomarker functions must be determined
and applied to critical care of infants and children.
9. Informatics systems that link laboratory data, imaging, and bedside biometric monitoring
must be evaluated and integrated with artificial intelligence systems to facilitate clinical
management, provide timely identification of organ system dysfunction, and provide
objective evidence of response to therapeutic intervention.
10. Examine barriers to adoption of interventions and implementation of evidence based
guidelines.
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11. Delineate the timeline and therapeutic window of treatment/interventions
12. Examine combination therapies/interventions to improve outcomes
13. Assess interventions including specific pharmacologic agents, stem cell trials, nutrition,
occupational, vision, physical, speech, and behavioral therapies, and/or combinations
thereof with experimental study designs.
14. Translate current experimental models into clinical trials.
15. Elucidate information regarding optimal timing, intensity, and length of inpatient
rehabilitation. This will be informed to some extent by further research into the natural
history of acquired brain injury.
16. Evaluate transition and follow-up programs that have been shown effective in adult TBI
Model Systems research programs (e.g., University of Seattle Medical Center) for utility
in the PA/TBI system.
The use of the intermediate level of care is variable with some patients going straight from
intensive care to inpatient rehabilitation (as in The Children’s Hospital, Denver model) and
others staying in the intermediate care ward for further medical stabilization before either
discharge home and community rehabilitation or into an inpatient rehabilitation program or a
long term care facility for a minimally conscious level or seemingly minimally conscious level
child/young adult. There is a lack of consensus in all areas of medical and allied health care
based literature upon the insufficient understanding and research of the various rehabilitation
models and protocols. For example, questions regarding the rehabilitation potential of coma and
the minimally conscious patient are even less well understood.
Family Perspective:
This is a critical point in time along the continuum of care when parents and family members of
children with severe injuries are traumatized themselves, and they must slowly acknowledge the
child/young adult has been seriously injured and may no longer be the same child as before.
Careful, sensitive, and comprehensive family education about the injury and its effects on the
child/young adult and the family as a whole is crucial at this stage. In addition, support for the
family is needed to deal with the impact of the injury by starting a transitional process that is
sensitive to the family’s emotional state at that time and helping them to adapt to live with the
effect(s) of the PA/TBI.
Families need to participate in the plan of care for their children/young adults both in the short
term and long term. Families require either initiation or ongoing support in the transitioning
process of having a child/young adult with PA/TBI. It is important that the family’s concerns be
heard and addressed, as their home-based actualities of having a child/young adult with PA/TBI
might not match the understanding of the medical/educational/psychological communities.
The initiation of inpatient rehabilitation services, when and where available, often offers for
families the first chance to begin to appreciate and understand the multitude of challenges related
to habilitation from brain injury. Families frequently arrive with minimal understanding of the
severity and long-term nature of the many challenges faced by survivors and families dealing
with acquired brain injuries.
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While there are often significant improvements in mobility and self-care during this time, the
cognitive, behavioral, emotional, and learning challenges often persist and worsen, and can
become lifelong struggles. Families need to receive a great deal of information and training
during this time, but they are in various stages of grieving and acceptance and so require
persistent education regarding the ongoing needs of the patient after discharge. Supportive
services for families are essential during this time for coping with the alteration in the family unit
and are critical to begin to link families to the resources available in their local community.
Additionally, during an inpatient rehabilitation admission, families are trying to balance
maintaining employment, caring for other siblings, and maintaining marriages and relationships.
Often the stressors brought on by the profound shift in family dynamic that occurs after acquired
brain injury results in divorce, depression, and substance abuse, among others, further disrupting
family units.
As well, children/young adults who have been discharged home and are later able to participate
in more aggressive rehabilitation would often benefit from an inpatient rehabilitation admission
for further treatment, but access to these services is almost always severely restricted or denied.
Currently, once a child/young adult is discharged from inpatient rehabilitation, families often
have difficulty obtaining appropriate outpatient therapy or school-based services in their local
communities due to the limited number of pediatric-trained specialists and lack of funding. The
physical needs and therapies of a child/young adult in the first six months after discharge are
often met, but the psychosocial, emotional, educational, and behavioral needs start to become
apparent at about six to nine months after the injury, at a time when parents and teachers think
the child/young adult is recovered, because s/he looks fine physically.
Thus, the immense attention to education of the family and intensity of therapy services received
by the patient immediately after the brain injury during inpatient rehabilitation is met with a
resounding lack of education and resources in the local community after discharge, resulting in
significant and ongoing frustration for patients and families, and significant worsening of the
child/young adult’s functional status.
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CHAPTER 5: “Mild” TBI Identification, Assessment and Treatment
Traumatic Brain Injury (TBI) is a significant public health concern, and “mild” TBI is the most
common presentation. This injury, however, often goes unrecognized and therefore poorly
treated. The current challenges and opportunities for improvement in the management of mild
TBI are discussed in this chapter. It furthermore should be noted that while a TBI may be
classified medically as “mild,” the term can be misleading since there is nothing mild about any
brain injury, thus the reason for quotation marks around the word throughout the grant proposal.
Definition and Epidemiology of “mild” TBI
Trauma to the head and neck is a significant cause of morbidity in the general population,
accounting for over 5.5 million emergency department (ED) visits per year in the United States.
“Mild” TBI, or concussion (terms that are used somewhat interchangeably in this chapter),
represents the predominant form of acquired brain injury (75-90%). We use the definition of
“mild” TBI from the recent Centers for Disease Control and Prevention (CDC) Physician’s mild
TBI Toolkit [10], which borrows from the Vienna and Prague meetings of the International
Concussion in Sports Group Consensus meetings. The definition is as follows: mild TBI or
concussion is defined as a “complex pathophysiologic process affecting the brain, induced by
traumatic biomechanical forces secondary to direct or indirect forces to the head. Mild TBI is
caused by a blow or jolt to the head that disrupts the function of the brain. This disturbance of
brain function is typically associated with normal structural neuroimaging findings (i.e., CT scan,
MRI). Mild TBI results in a constellation of physical, cognitive, emotional and/or sleep-related
symptoms and may or may not involve a loss of consciousness (LOC). Duration of symptoms is
highly variable and may last from several minutes to days, weeks, months, or even longer in
some cases (p.2).”
Several estimates are frequently used to define the scope of TBI (e.g., 1.4 million TBIs per year
presenting to the medical system). Recent incidence figures by Langlois et al. (2004) of the CDC
report 564,000 average annual visits to U.S. Emergency Departments for TBI in children 0-19
years of age. A 1995-1997 study of annual visits to pediatric offices for TBI reported 125,000
annual visits for children in the 0-14 age range. It is clear, though, that these figures are most
likely underestimates, as proper ascertainment of mild TBI remains difficult. The figure of
300,000 TBIs frequently quoted as being associated with sports and recreation-related activities
has been revised upward significantly in the past year to 1.6-3.8 million. While the need for more
exact epidemiological estimates of this injury is clear, mild TBI is a significant public health
problem.
Presentation of “mild” TBI to the Medical System
Patients with “mild” TBI, when identified, most often present to the ED or primary care office,
neither of which specialize in diagnosis and treatment of “mild” TBI. Of the patients with “mild”
TBI who seek immediate care in the ED, the majority are reassured and discharged to their
home. Thus, in this setting, the accurate assessment of the injury scope and severity of the injury
and consequent outpatient guidance and management are critical for ensuring safe recovery from
injury. Appropriate diagnosis, patient education and outpatient management may decrease
recovery time, reduce risk of secondary complications and improve outcomes. Historically,
however, the evaluation and management of concussion have been inconsistent, and outcomes
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are largely unknown. In particular, clinical grading systems are not validated and have not
allowed for clinicians, patients or families to recognize the spectrum of post-concussive
symptoms. Further, the ED setting is unique in its focus on immediate care needs and its
inherent limitations with continuity of care.
The unacceptable reality is that many children with suspected “mild” TBI do not present to the
Emergency Department or even a pediatrician’s office. Injuries occurring in the home, on the
sports and recreation fields, in the schools, or on the roads may escape appropriate diagnostic
attention. This situation is due, in part, to the “invisible” nature of a “mild” TBI (i.e., lack of
visible broken bone or bruise) but is also due to a lack of appropriate knowledge of the injury
and its signs and symptoms. Improving the knowledge and skill regarding “mild” TBI of “first
responders” such as emergency medical technicians, school nurses, athletic trainers, child care
workers, and parents can serve to improve early identification and subsequent diagnosis of an
injured child or adolescent.
Limitations to the accurate diagnosis, assessment and treatment of concussion, coupled with the
morbidity of repeat concussions, leave patients at increased risk for poor outcomes. Early
identification and diagnosis is the key issue to promoting recovery. The greatest challenge to the
medical practitioner is appropriate and timely recognition, assessment and diagnosis. Without
state-of-the-art knowledge and clinical tools, “mild” TBI may go undiagnosed and untreated,
leaving individuals who have sustained a “mild” TBI at an even more increased risk for
functional problems.
Unique Challenges in “mild” TBI service delivery
Unique problems exist for providing care to children with “mild” traumatic brain injury (“mild”
TBI) and their families. In addition to the problem of under-identification, few specialty
outpatient clinics exist for active treatment and management. Contributing to this problem, few
trained pediatric clinical specialists are available with a focus on “mild” TBI. Hampering
service, evidence-based models of pediatric “mild” TBI care are not articulated and therefore,
clinicians do not have clear guidance regarding the development of these clinical care systems
within the continuum. With a shortage of specialized clinics to treat “mild” TBI and the
requisite professional expertise, a variety of problems are evident. Most importantly, without a
specialty system in place, the clinical problems that children and families face post-injury are at
increased risk for worse outcomes including re-injury, prolonged recovery, and possible
catastrophic outcomes.
In developing a nationwide “mild” TBI care system to manage this prevalent problem, the
following problems exist and require active solutions:
1. Resource problem: Not enough “mild” TBI-specific clinicians do exist in this field.
This includes “primary care” specialists as well as specific referral sources
knowledgeable about “mild” TBI (headache management, sleep intervention,
mood/anxiety treatment, gradual return to sports protocol, etc.).
2. Training problem: Training programs in medicine, neuropsychology, and
rehabilitation specialties are not preparing people for the unique services required for
“mild” TBI, i.e. rapid, focused and repeated assessment, active community
consultation, and individualized interventions.
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3. Professional practice problem: Outpatient TBI clinical practices are not necessarily
organized to serve this unique population (e.g., schedule within a few days of injury,
multiple visits, and active treatment consultation with community settings). The
“mild” TBI service delivery model is different from the service model for moderate
and severe TBI.
4. Public health problem: Need for greater knowledge dissemination within the medical,
sports and school communities about the nature of the injury, its risks, and its
treatments.
5. Problem with reintegration following “mild” TBI: Hospital staff may perceive the
child/young adult as doing well, and thus not foresee a need for community
involvement/ support after discharge, especially following “mild” injuries.
6. The nature of the clinical condition of “mild” TBI is unique and can be challenging in
the following ways:
• Subtlety of sequelae and changing nature of injury and recovery
• Sequelae are largely in the domain of the clinician that understands cognitive,
behavioral/ emotional, somatic symptoms, as well as who are trained to work with
families, schools, and sports/ recreation systems.
• Sequelae are typically not of the same nature and severity as the severe TBI, with
little primary motor and language/ communication deficits.
• There is likely morbidity associated with no service, inappropriate expectations
regarding the injury and its consequences/ recovery, or over-incorporation of
other problems not associated with the “mild” TBI.
• Expectation of full recovery with proper treatment is appropriate. Most children
will recover fully within a relatively short time frame (i.e., within three months),
though some will exhibit longer-term effects. All must have the expectation of a
positive recovery and control over the recovery process.
7. The timing of service delivery must be “Early and Often”
• Benefits of early assessment & treatment
• Serial monitoring & treatment
• Immediate, focused, rapid assessment
• Serial monitoring & treatment
8. The “mild” TBI/ Concussion clinician often plays multiple roles
• Clinician: evaluation, treatment
• Consultant to organizations: programmatic, clinical
• Public health educator
9. Challenges in operating “mild” TBI /Concussion Clinic
• Fast pace of scheduling, payment arrangements
• Number of clinical personnel required to run a clinic
• Multiple clinic days per week
• Turnaround time of findings/ reports
• Multiple systems with interest in findings (e.g., medical, school, athletic, family)
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Family Perspective:
Without early identification of “mild” TBI and proper treatment, the family bears the sustained
burden from the injury, including financial, social, familial, psychological, and educational.
Severe TBI will most likely present with obvious signs and symptoms; “mild” TBI often does
not. Identification and assessment of “mild” TBI therefore requires collaboration with medical,
psychological, educational, familial and social communities. Parents/ caregivers need to alert
medical professionals when they notice unexplained changes in their child/young adult, even if
they are not aware of a possible cause. They may then still be dismissed by the health care or
educational professional as being “overprotective,” their parenting skills might be questioned or
the changes in the child/young adult might be misattributed to a psychiatric or related
misdiagnosis. When this occurs, parents/caregivers must learn to continue advocacy efforts for
their child. Parents need to understand that the psychological, emotional, behavioral and
cognitive challenges can persist long after the injury has occurred, and that there can be a period
of latency before symptoms reappear. This will be another role for the SJBF Centers to assist
parents who suspect their child suffers from “mild” TBI but cannot get an adequate diagnosis.
Furthermore, the development of clinical care systems that evaluate and treat the particular needs
of children with “mild” TBI and their families must be a focus.
Solutions
A Nationwide Master Plan for “mild” TBI care must be developed to ensure equal access and
treatment of this injury. Plans will be developed to accomplish the following:
1. Best Practice Standards: Development of a “best practices” national system of pediatric
“mild” TBI care across the continuum from time/site of injury (acute) to recovery (post-acute or
long-term). No current “standards” exist for the systematic assessment and follow-up of “mild”
TBI, resulting in substantial variability in practice. Depending on the setting, its goals and
resources as well as the tools and clinical flow pathways will differ, and so must be better
defined and standardized for efficient and effective care. The Nationwide Master Plan will help
to define standards of effective evidence-based practice. A survey of available model systems
will be conducted to develop a best practice model. The Nationwide Master Plan will further:
a. Define a plan for the development of “mild” TBI outpatient clinics.
b. Articulate appropriate linkages between the acute care Emergency Dept./ Primary Care
Physicians with the “mild” TBI outpatient clinics.
c. Develop key criteria/ indications for referral to the outpatient “mild” TBI clinic for specialty
services among medical, school, sports/recreation systems.
d. Survey the available training programs with a focus on “mild” TBI service delivery,
establishing a “mild” TBI-specific curriculum to incorporate the best practices clinical
model.
e. Identify key school personnel to oversee/ direct and assist return-to-school programming.
f. Develop a nationwide systematic plan to implement International Concussion in Sport Group
recommendations for sport-related “mild” TBI.
g. Facilitation of more effective individualized treatment, thereby improving recovery and
reducing adverse outcomes.
h. Improved communication among health care professionals, school personnel, coaches and
parents and family is crucial to improve understanding and identification of actual/potential
problems.
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2. Early Identification: Proper early assessment, diagnosis and management of “mild” TBI
provides for more appropriate guidance of recovery and reduction of morbidity (primary or
secondary). The Nationwide Master Plan will emphasize proper diagnosis at the earliest point of
identification.
3. Education & Training: “Mild” TBI is an injury to the brain that can present in variable ways,
and can manifest largely with functional impairment (somatic, cognitive, and emotional) for
varying periods of time (hours, days, weeks, months). Signs and symptoms can overlap with
other medical conditions, contributing in part to its lack of recognition, and/or full management.
Thus, early identification and diagnosis can be complex and clinicians must be prepared/ trained
for this diagnostic complexity. A survey of training programs with a focus on “mild” TBI service
delivery will be conducted to establish a “mild” TBI-specific curriculum. The Nationwide
Master Plan will develop plans to educate and train clinicians in the diagnosis and treatment of
“mild” TBI.
a. Improved training of acute medical staff for anticipating and intervening in physiological
deterioration.
b. In the setting of polytrauma, whereby there are significant orthopedic or internal organ
injuries, “mild” TBI is often overlooked. Standardized screening for “mild” TBI should
be mandatory for all ED visits by children with orthopedic trauma.
c. Clinical pathways for discharge instruction and anticipatory guidance with direct referral
to follow-up care systems for “mild” TBI must be established. As the diagnosis of “mild”
TBI may be delayed in event of polytrauma, hospital and medical personnel follow-up is
imperative.
d. Education for everyone involved in the care of a child/young adult is needed to improve
recognition and management of the immediate and long-term manifestations of “mild”
TBI. Many health and educational professionals are undereducated about the delayed
sequelae of remote “mild” TBI and their manifestations and as such under-identify these
children. Employ existing “mild” TBI toolkits such as the CDC Physician’s and Coach’s
Toolkit for “mild” TBI.
4. Equal Entry: Patients with known or suspected “mild” TBI initially present at different places
and points in time within the medical system, such as the Emergency Department, primary care
physician, the school, or the sports/recreation system. The Nationwide Master Plan will work
with the various points of entry to prepare each for proper identification/ diagnosis.
Research Priorities
Given the current state of knowledge and practice in the diagnosis and treatment of “mild” TBI,
there is a significant need for research evidence to support a national system of “mild” TBI care.
The following research priorities have been identified by the PABI Research Committee (not in
any particular order of priority):
1. Validate a better clinical system for classification of all types of TBI, based on underlying
pathophysiology, including the varying types of “mild” injuries.
2. Improve the identification and classification of “mild” TBI, including validation of existing
clinical diagnostic scales across the age range and across injury mechanisms.
3. Develop a national centralized, universal epidemiologic database of “mild” TBI.
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4. Improve the specific identification of “mild” TBI in the very young child (e.g., panel of
clinical biomarkers, utility of baseline cognitive testing/ symptom assessment, etc.)
5. Develop an effective professional training/ educational program for
identification/classification of children with “mild” TBI.
6. Investigate underlying neuropathophysiologic indicators for “mild” TBI, including definition
of genetic risk factors, use of neuroimaging, and specifying other physiologic biomarkers for
outcomes from pediatric “mild” TBI.
7. Develop age-specific neuroprotective strategies for children after “mild” TBI.
8. Develop age-appropriate experimental laboratory models relevant to children after “mild”
TBI.
9. Investigate effective referral mechanisms across the full continuum of care and services.
10. Develop effective educational program within the schools for the proper identification,
classification, and treatment of children with “mild” TBI with a focus on the management of
cognitive exertion during recovery.
11. Develop prospective longitudinal controlled psychiatric studies of children with “mild” TBI.
12. Implement data-guided psychiatric surveillance and management of children with “mild”
TBI.
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CHAPTER 6: Categories of Care: Reintegration/Long-term Care
Problems:
The availability and provision of transitional services following pediatric A/TBI varies
tremendously, depending on the nature and severity of the injury (e.g., concussion versus brain
tumor) and the resources available.
However in general, when a child/young adult is ready to be discharged from the ED or hospital
following PA/TBI, or is identified in the community as having a PA/TBI, there is no systematic
plan for connecting children and families with the necessary services within the school and
community.
Several factors likely account for the failure to link children and families to community services:
1. Hospital staff may perceive the child/young adult as doing well, and thus not foresee a
need for community involvement/support after discharge, especially following
“mild”/moderate injuries.
2. Parents may fail to recognize the possibility of life-altering challenges for their
child/young adult, or they may feel stigmatized by the label of brain injury, and as a
consequence do not want community agencies notified.
3. The standardized assessments commonly used in hospitals and rehabilitation facilities are
of questionable validity in predicting the child/young adult’s needs in returning to school
and home.
4. The schools and other community agencies themselves, when notified, may be poorly
educated regarding the effects of PA/TBI and not recognize the need to advocate for and
work with the child/young adult who has an PA/TBI, especially if the injury/insult is less
severe and resulting challenges are not obvious.
Because early predictors of long-term outcome are poorly understood and available services are
limited, children who are at risk for long-term functional deficits may fall through the cracks.
Furthermore, some difficulties such as academic, vocational or social challenges, may not
become apparent until later developing skills fail to emerge. When such developmental stall
occurs, it may not be attributed to the original insult and thus misdiagnosed.
Additionally, transitions from hospital to school, school to school, and school to community and
adult systems tend to be fragmented and uncoordinated with little communication among
families and hospital, school, and agency personnel. Thus, access to services is inconsistent
across our country and many parents try to navigate our many agency systems without guidance.
In addition, there is a paucity of research on interventions to assist with reintegration of children
and young adults with PA/TBI from hospital into home, school, and community life or from
school into adult life. Likewise, few measures that have been developed to examine outcomes of
these important transitions.
The current approach to service delivery (inadequate services and supports in school, home and
community) results in poor long-term youth outcomes that are costly to society (e.g.,
37

unemployment, public-assisted housing, and incarceration). Figures 3 & 4 depict the current and
proposed approach to intervention supports and concomitant costs of each.
Figure 3. Effects on child/youth functioning and related costs of inadequate treatment
supports.
Figure 4. Effects on child/youth functioning and related costs associated with intervention
and supports.
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Family Perspective:
Once the child/young adult returns home, families must come to terms with the changes in their
child’s functioning and, very likely, the need to provide increased levels of care due to physical
and cognitive disabilities. The stress on parents created by caring for the injured child/young
adult often leads to increased marital conflicts and high levels of psychological symptoms and
distress in family members. The picture for families usually does not improve with time;
familial distress is both progressive and enduring. Further, across society, the number of family
members available to help with caregiving has decreased, placing more demands on the primary
caregiver. As the social network of the person with PA/TBI shrinks, family members must
assume a greater support role and therefore may become somewhat socially isolated.
Educator Perspective:
Although PA/TBI is a high-incidence medical event and tens of thousands of children sustain
long-term disabilities resulting from PA/TBI every year, from the point of view of the United
States Department of Education and most State Departments of Education, PA/TBI is a lowincidence
disability. Many children with PA/TBI are not identified and served appropriately in
schools because of the perceived low incidence as well as a number of other factors (e.g. lack of
awareness of educators, poor communication about PA/TBI between medical and educational
systems, emergence of learning and behavior problems misattributed to other disabilities).
Service Provider Perspective:
Personnel from agencies that serve children and young adults with disabilities are, like educators,
unfamiliar with the needs of children and young adults with PA/TBI and their families and so are
ill-prepared to meet those needs. Although PA/TBI is considered a developmental disability
(DD) when it occurs before age 18 (in most states), providers of DD services see few clients with
PA/TBI. Families are often unaware that they are eligible for such services. Thus, service
providers experience lack of training and experience specific to PA/TBI similar to that of
educators.
Solutions:
The solution to this complex problem requires a comprehensive and coordinated system of
identification and service provision, involving child/family services, policy development and
education for hospital personnel, “standard of care” programs that explicitly link hospital experts
with community-based school and medical personnel before the child/young adult is discharged
from the hospital, capacity building for schools and other community agencies, and an
integration of research and practice. This system is reflected in the Sarah Jane Brain Foundation
Model for integration of research, services and supports for children with PA/TBI and their
families. The four components of the model, depicted in Figure 5, are outlined below.
39

REFERRAL FROM
ACUTE CARE,
REHABILITATION,
OR COMMUNITY
AGENCY
COMPONENT I.
Services for Children &
Youth
� Identification and
assessment
� Ongoing tracking
� Advocacy for services
� Case management
Figure 5. Sarah Jane Brain Foundation Model for integration of research, services and
supports for children with PA/TBI and their families
40
COMPONENT II.
Services for Families
� Training in effective care
coordination/advocacy
� Training in strategies to
promote family
adaptation and positive
child development
� Linkages to resources and
services
COMPONENT III.
Services for Educators and other Service
Providers
� Capacity building with local schools to meet
educational and transition needs of students with
ABI
� Training in effective practices for educators and
other professionals
� Dissemination of evidence‐based strategies to
educators and service providers
� Cross‐agency collaboration with agencies for
children and young adults with special needs
COMPONENT IV.
Research Goals
� To better understand causes, predictors, and outcomes of ABI
� To better understand predictors of family adaptation over the course of
recovery and its relationship to child recovery
� To translate basic and clinical knowledge into effective interventions and
supports
� To document effectiveness of and improve interventions, training, and
services
TRANSITION
TO
ADULTHOOD

Components I and II. Services for Children and Families
Identification:
The SJBF Centers will identify children/young adults with PA/TBI and maintain a national
Registry as described in Chapter 7. Identification of children with PA/TBI is critical to
understanding long-term outcomes and to effectively providing services. There are a number of
existing models that may be appropriate for the design of this database.
Assessment:
The SJBF Centers will have a critical role in assessment. The assessment serves four central
functions:
1) To identify the need for services and therapies in a variety of domains;
2) To evaluate the efficacy of treatment practices and interventions; and
3) To understand the long-term functional outcomes of PA/TBI (such as reintegration
into home, school and community life, and participation in meaningful activities,
optimum physical, cognitive, behavioral, social and family functioning) and the
medical, biological, and social-environmental factors that influence outcomes;
4) To guide schools in the implementation of effective assessment for planning
educational interventions and supports.
The SJBF Centers will facilitate appropriate assessment of children/young adults and their
families. Limited data regarding child, parent, and family functioning will be collected on all
children with PA/TBI as part of the National Registry and Database.
However, more detailed assessments will also be administered to guide the provision of clinical
care and better characterize outcomes in specific domains. Part of the mission of the SJBF
Centers will be to identify the best standardized and functional assessment processes and
procedures to assess the child/young adult, family, school and social environment (assessing
development over time) and to ensure that these assessment procedures are used appropriately.
Because child/young adult functioning following PA/TBI varies considerably based on the
context, measurement approaches will emphasize functioning in everyday contexts such as
school and community, and the child, parents, and teachers will participate in ongoing
developmentally appropriate assessment of real-world functioning. For educational purposes,
the school conducts assessment.
The SJBF Centers will collaborate with schools (through training, consultation, and
dissemination activities) to ensure schools use evidence-based assessment approaches. The
Centers will also work with teachers to facilitate effective use of diagnostic teaching and
experimental/dynamic assessment in the classroom.
TRACKING:
The SJBF Centers will track children and family from the point of entry into the continuum, and
continue to follow them over time with particular emphasis on following up at key
developmental transitions (e.g., school entry, school transitions). Given the importance of
41

understanding determinants of long-term functioning and of identifying later emerging problems,
it is essential the Centers track children over the course of development into adulthood.
Initially, children and families will be followed up with at short intervals to track acute recovery,
and then over longer time periods throughout the continuum into adulthood. The Centers will
also track the services received by the child/young adult and family over time. Data on school
systems and integrated services will be collected to address the following questions:
• Do the Centers’ interventions and training make a difference?
• Do the child/young adult get different services based on that intervention and
training?
• What services made a difference?
Provide Advocacy & Support
The Centers’ roles in the domains of advocacy and support services to individuals with PA/TBI
and their families will be a key component of the mission of the Centers. The vision is to
provide and evaluate a broad range of support and advocacy services including:
1. Advocating for services for the child/young adult and family,
2. Providing training in self-advocacy and self-determination to the children/young adults,
3. Providing training in effective care coordination and advocacy to family members or
other caregivers (e.g., family mentors),
4. Providing training in strategies to promote family adaptation and positive child
development to parents/guardians and families.
The initial approach for delivering these services will be based upon the current empirical
evidence base and best practices. However, the intent would be to conduct ongoing formative
and summative evaluations of these services as part of the Centers’ mission, including input from
consumers/constituents (parents, children, and community agencies) to further refine and inform
best practices.
Programs developed by Glang and colleagues provide an evidence-based approach for training
families in effective advocacy and communication skills for interfacing with schools.
Researchers in special education transition have identified evidence-based practices that are
effective in teaching students with disabilities the skills needed for self-determination and selfadvocacy.
Currently, however, students with PA/TBI lack access to instruction in these skills, since
students with PA/TBI are under-identified in terms of eligibility for transition services, and
educators and transition specialists are not skilled in working with these students when they are
referred. Wade and colleagues’ family problem-solving model may provide an empiricallysupported
approach for providing support and skills training to families. The SJBF Centers will
inform existing community agencies so they recognize and qualify this population for their
services. Toward this end, Glang and colleagues have developed and are currently testing a
model for increasing identification and appropriate treatment of PA/TBI in the school system.
42

When students are properly identified for special education and transition services, linkages to
community agencies will also be addressed through the students’ transition plans. Finally, the
SJBF Centers interface with the Sarah Jane Brain Legal Center to address legal issues. An
important element of the support and advocacy mission of the SJBF Centers will be to
disseminate best practices across the country and to provide technical assistance and training to
ensure that best practices can be appropriately implemented across the country. Related research
questions are outlined below.
Component III. Interface with Service Systems
The primary provider of services for children and most young adults is the educational system.
Schools and community agencies are often poorly equipped to address the needs of children with
PA/TBI. The SJBF Centers’ role is thus to support and build the capacity of this system to meet
students’ needs and to facilitate cross-agency collaboration between the educational system and
other agencies in an effort to bridge gaps and ensure that all children receive quality long-term
supports as needed. Another crucial aspect of the SJBF Centers’ mission is to increase the
dissemination of evidence-based strategies to community agencies and local schools to meet the
cognitive, physical, mental health, social/emotional, participation, educational and vocational
needs of children with PA/TBI.
Increase capacity of local schools to meet educational and transitional needs of students
with PA/TBI
The SJBF Centers’ role in improving the capacity of schools includes:
1. conducting systematic research on school- and community-based interventions for
improving student outcomes, and
2. providing training and technical assistance in evidence-based practices for educators,
including evidence derived from hypothesis-driven educational experiments with
individual students.
Dissemination of evidence-based strategies to educators, clinicians and other service
providers
The SJBF Centers will provide dissemination to local agencies and service systems, and will
interface with dissemination efforts of national and state TBI clearinghouses and lending
libraries (e.g., National Association of State Head Injury Administrators, Brain Injury
Association Resource Center; Technical Assistance Center of the TBI Project at the Health
Resources and Services Administration, US Department of Health and Human Services, U.S.
Education Department – National Center for Dissemination of Disability Research). Research in
this domain will include a range of studies focusing on child and family outcome; findings from
this research will be disseminated through the Center’s and other dissemination channels.
Cross-Agency Collaboration
The Centers work with school districts and related community agencies to develop collaborative
interactions and smooth transitions that support the family and child/young adult to create
seamless networking. The STEP Program, The Summit County Accessing Services for
Individuals (Ohio), and the TBI Collaborative Model are examples of existing programs that are
used at the initiation of SJBF Center services.
43

Research - Increase capacity of local schools to meet educational needs of students with
PA/TBI
1. Research on school-based interventions:
a. Determine the impact of the range of school-services on child/young adult outcomes
b. Evaluate the efficacy of different hospital-school transition plans
c. Conduct studies to evaluate the impact on student performance of instructional and
behavioral support strategies that have been validated with other disability groups
d. Validate which assessment tools and processes guide effective educational
programming and effective transitioning
e. Evaluate the economic impact on the reintegration of students
f. Carry out an epidemiological study of service delivery
g. Determine an effective educational program for hospitals, schools, and coaches, for
proper and immediate identification/classification of children with “mild” TBI
h. Evaluate the efficacy of interventions that involve agencies, colleges/universities,
employers and other community members in transition planning and activities to
promote success of young adults with PA/TBI in higher education, employment, and
independent living
i. Promote self-management strategies throughout childhood and adolescence in order
to reduce long-term disability risk factors
j. Investigate educational techniques and methods to promote ongoing recovery and
development
k. Evaluate how cognitive and behavior strategies work for children of different ages
l. Determine the most effective procedures for preventing secondary behavioral and
emotional problems
m. Determine the most effective procedures for treating secondary behavioral and
emotional problems
2. Training and technical assistance for educators:
a. Use technology including distance learning and web sites to improve capacity
building and training
b. Determine the costs/benefits of providing consultation and support to teachers
c. Determine relative effectiveness of consultation and ongoing support for educators
using trained peer consultants versus full-time A/TBI consultants
d. from either within or outside the school system), with attention to the impact on
students, families, and educators
e. Determine relative effectiveness of the range of training approaches (pre-service, inservice)
and training delivery mechanisms (internet-delivered, traditional classroom)
Research - Dissemination of evidence-based strategies to educators, clinicians and other
service providers
1. Evaluate the efficacy of maintenance therapy
2. Design and evaluate an IRODP (individualized recovery and ongoing development plan)
3. Determine what technology best promotes the child/young adult and family function
4. Evaluate risk factors for psychiatric co-morbidities
5. Determine the timing, intensity, venue for, and type of effective rehab interventions
44

6. Develop a strategy for chronically injured patient to re-enter therapies and/or training
protocols
7. Determine biomarkers (imaging, laboratory studies, functional assessment) of
physiological recovery/neuroplasticity at each stage of development
8. Determine the optimal times/modalities for intervention in a range of domains (social,
educational, emotional)
9. Evaluate what interventions promote social capital (work, social relationships, etc.)
10. Identify predictors of good long-term outcome after PA/TBI
11. Determine how to decrease the risk for psychiatric problems, substance abuse,
delinquency
12. Develop substance abuse programs that take into account special populations
13. Determine the best designs and delivery features of effective dissemination activities
Research - Cross-agency Collaboration
1. Determine optimal communication strategies among different agencies and care
providers
2. Determine best methods to best build community collaborations to move the child/young
adult into adult functioning
COMPONENT IV. POST-ACUTE MEDICAL CONSIDERATIONS
One example of post-acute medical considerations is the largely unknown impact a PA/TBI has
on endocrine functions. In survivors of TBI, significant transient or permanent endocrine
deficiencies may present acutely or slowly evolve over subsequent months or years. There have
been a number of publications about endocrine function after TBI in adults, leading to increasing
awareness since the year 2000 that hypothalamic pituitary dysfunction is common after TBI.
Endocrinopathy after head injury has been reported in approximately 400 cases in the literature.
In addition, case reports have documented that occasional children develop endocrine
abnormalities after head injury. Abnormalities in pituitary function after TBI (adults) occur in a
23% to 69% incidence, up to 12 months after TBI. Alterations include growth hormone
deficiency, central hypothyroidism, adrenocorticotropin deficiency, diabetes insipidus, prolactin
elevation, and hypogonadism. These deficiencies are identified acutely after injury or develop
slowly over time; they can be transient (and improve with time) or permanent. It is conceivable
that the young brain/hypothalamus of a child is either more susceptible or less sensitive to
endocrine injury than that of adults. To date, it has not been possible to identify at-risk children
prospectively so that treatment can be initiated before impairment of growth and development.
Although two prospective studies of sequellae of head injury in children were published in 2000,
neither evaluated endocrine status of the patients. Two studies have been published about the
development of endocrine abnormalities in children after head injury, and our prospective study
manuscript is in preparation. The mechanisms by which traumatic brain injury may influence
hormone function are several. The head injury may directly involve damage to pituitary stalk
anatomy affecting neurological connections that control vasopressin release from the posterior
pituitary gland, or disrupting vascular connections that convey releasing hormones from the
hypothalamus to the anterior pituitary gland.
45

Alternatively, indirect effects on hypothalamic-pituitary function may result from hypotension or
shock, CNS hemorrhage, or brain edema. Significant injury to the hypothalamic–pituitary axis
during head injury may complicate medical management in the period immediately after injury,
including cortisol deficiency and diabetes insipidus (DI). The presence of DI complicates fluid
management in a comatose patient. Thyroid axis injury may still be quite difficult to identify in
the newly injured patient because of the prolonged half–life of thyroxine (7 days). In the longer
course following head injury, issues of GH, thyroid, cortisol, and gonadotropin secretion
gradually become important.
In the months and years after head injury, some children show poor growth, explicit GH
deficiency, precocious puberty, or failure to enter or progress through puberty. Likewise, some
adults experience loss of libido or amenorrhea, overt gonadotropin deficiency. Onset of these
symptoms may be insidious and confused with the post-concussive syndrome; years may pass
before a correct diagnosis is made and treatment started. Without a high index of suspicion,
some patients may never have their endocrine deficiencies identified.
Attention to diagnosis and therapy of endocrine abnormalities early after TBI may improve
quality of life and speed of recovery from past trauma sequellae. Since hormone deficiencies
may be transient, hormone secretion should be re-evaluated at certain intervals after injury. A
consensus conference about endocrinopathies after traumatic brain injury recommended that all
patients who have experienced TBI should be screened for their endocrine function by one year
after TBI. “Recommendations: Systematic screening of pituitary function is recommended for
all patients with moderate-to-severe TBI at risk of developing pituitary deficits. Patients with
hypopituitarism benefit from appropriate hormonal replacement and prospects for rehabilitation
of patients with TBI-induced hypopituitarism may be enhanced by appropriate HRT.
Further exploration of this possibility requires:
1) Active collaboration between divisions of endocrinology and rehabilitation at the local level to
perform a screening of pituitary function in patients after TBI,
2) Creation of a consultancy service by endocrine societies for use by rehabilitation centers,
3) Development of continuing medical education (CME) programs that can be offered as
crossover training to the physicians who manage the care of patients with TBIs,
4) Targeting of patient organizations with educational information for dissemination to patients
and their families,
5) Continued efforts to more clearly define the population at greatest risk of TBI-induced
hypopituitarism and
6) Monitor results of efficacy studies as they become available to evaluate whether and how
much replacement therapy can improve the symptoms of individuals with TBI-induced
hypopituitarism”.
COMPONENT V. RESEARCH
A primary component of the SJBF Centers will be to conduct research:
1. To better understand the causes, predictors, and outcomes of PA/TBI;
2. To better understand predictors of family adaptation and the relationship between family
adaptation and child/young adult functioning over time;
46

3. To translate basic and clinical knowledge into effective interventions;
4. To document the efficacy and improve interventions, training, and service.
5. To document the relationship of interventions on patient outcomes.
Research will be used to inform all aspects of the SJBF Centers’ services for children, families,
and community agencies. Consumers (children with PA/TBI, families, educators, and service
providers) will be actively involved in guiding the research agenda and determining the research
questions.
Broad-based, interdisciplinary research agendas that cut across basic and applied domains will be
used to develop a more integrated understanding of the role of age at injury, genetic, acute
injury, intrapersonal, social environmental, and treatment characteristics in influencing both
short and long-term outcomes as well as intervention efficacy.
Innovative treatment studies, building upon existing best practices and emerging research
findings, will be implemented to inform our understanding of the optimal timing, intensity, and
modalities of treatments across the care spectrum. Research will also be used to inform best
practices for capacity building in schools and community agencies as well as approaches for
training educators in effective approaches in the classroom. Specific research questions, grouped
by domain, are listed below.
Research – Assessment
Reliable and valid assessment procedures will be critical to addressing virtually all of the
research questions of the Center. However, as outlined below, there are a number of specific
questions regarding the optimal assessment practices for specific functional domains across
development. These practices must be sensitive to developmental, socio-cultural and linguistic
factors.
1. What are effective assessment procedures and processes (standardized and functional)
validated on A/TBI populations for specific functional domains (cognitive, behavioral,
social, academic, motor, speech) and child/young adult’s participation in home, school
and community life?
2. What are effective assessment tools to measure family stress, adaptation, and coping
across systems of care and services over time?
3. What are effective assessment procedures for evaluating classroom-based instructional
and management procedures and community-based programs, particularly as these relate
to transition to adulthood, independent living, and vocational/higher education?
4. What is the optimal timing of assessments across development following ABI?
• Validation of assessment batteries to guide effective transition
Research - Tracking
As with assessment, tracking children over time and at key developmental transitions will be
essential for informing our understanding of predictors of long-term outcomes and functioning.
Tracking will also be used to examine the relationship of provision of different types of services
to short and long-term outcomes in various domains. However, it is anticipated the SJBF
Centers will also conduct research studies to investigate the effectiveness of new and promising
treatments in addition to examining current treatments via consistent follow-up and tracking.
47

Specific questions regarding tracking are outlined below as well as research questions that can be
answered through the SJBF Registry.
1. Determine the optimum follow-up time
2. Determine important components that need follow-up
3. Determine what measures (child/young adult, family, service utilization, etc.) are most
relevant
4. Evaluate the efficacy of different comprehensive transition plans
5. Evaluate the economic impact on the child/young adult’s reintegration into home, school
and community life.
6. Carry out an epidemiological study of service delivery
7. Evaluate the effectiveness of maintenance therapy
8. Design and evaluate an IRODP (individualized recovery and ongoing development plan)
9. Determine risk factors for psychiatric co-morbidities
10. Determine the timing, intensity, venue for, and type of effective rehab interventions
11. Determine the role of the family in facilitating the outcomes of rehabilitation, school, and
transition to adulthood.
12. Determine how to individualize rehabilitation treatment strategies
13. Investigate the use of combination therapies
14. Determine most effective ways of evaluating treatment outcomes
15. Develop a strategy for chronically injured patient child/young adult to re-enter therapies
and/or training protocols
16. Determine biomarkers (imaging, laboratory studies, functional assessment) of
physiological recovery/neuroplasticity at each stage of development
17. Evaluate the optimal times/modalities for intervention in a range of domains (social,
educational, emotional) and independent living and vocational training
18. Evaluate how to promote success in higher education, employment and independent
living
19. Identify predictors of good long-term outcome after PA/TBI
20. Determine how to decrease the risk for psychiatric problems, substance abuse,
delinquency
21. Determine how to develop substance abuse programs that take into account special
populations
22. Determine how one promotes self-management strategies in order to reduce long term
disability risk factors
Research - Advocacy & Support
1. Identify the optimal case management strategy (e.g., directed by parents or professionals)
2. Determine how the family dynamics affect child/young adult outcomes
3. Document how intervention and support for families affect longer term child/young adult
and family outcomes
4. Identify the best models/timing for the child/young adult’s self-determination skill
development throughout childhood and adolescence
5. Identify the best model/timing for family training and education in a variety of skills
6. Identify who best delivers case management and child/young adult self-determination
skill development training consistent with validated principles of context sensitivity
48

7. Determine how we can use technology to best promote child/young adult and family
function
Research – New Therapies
1. Characterize and validate new experimental models for different types of developmental
brain injuries
2. Develop mechanism-based age-appropriate therapies and demonstrate effectiveness in
translational models. In this setting, therapies should be thought of in a broad sense and
not be limited to simply medications or physical rehabilitation, but also nutritional,
educational, neural activation strategies, bio-behavioral, family-based and certainly,
combination therapies
3. Rapidly disseminate experimental results to practicing clinician networks and engage in
interdisciplinary design of appropriate clinical trials
4. Demonstrate efficacy of novel and innovative therapeutic interventions in real-life
situations prior to establishing guidelines/protocols. However, research does not end at
this point – ongoing investigations must be conducted to monitor implementation,
demonstrate ability to be generalized or specific indications for therapy, and follow longterm
functional outcomes.
49

CHAPTER 7: Categories of Care: Transition to Adult Life Following PA/TBI
Introduction
As adolescents transition into adult life with a brain injury sustained in childhood, they and their
families confront yet again a major set of challenges as they navigate this most significant
transition. In the best scenario, the older adolescent has had good, comprehensive medical
services that have addressed all of his or her general pediatric as well as specific neurological,
rehabilitative, psychological, and therapeutic services particular to his or her brain injury-related
needs. The best background situation would also see this young adult entering the world of work
or postsecondary education with a long history of successful special education interventions that
have been particularly tailored to his neuropsychological profile of strengths and weaknesses,
with consideration of personal interests, goals, and family values. Finally, the individual who is
optimally prepared to make this leap into adult life following pediatric brain injury will have a
reasonably well developed set of social skills, interpersonal experiences, and involvement in
recreational pursuits, camp programs, and group activities centered around areas of interest
shared with other same-age peers. In this scenario, the older adolescent’s well-prepared parents
would have been educated in the wide variety of community resources that have supported their
son’s or daughter’s development of appropriate independence, assumption of social
responsibilities, and they will be ready to continue in the process of letting go of their child from
a home-centered, family-centered social life to a more independent social center focused outside
the family home.
Even in this very best of situations, which is likely the minority of pediatric ABI situations, these
very well-prepared families and young adults face a variety of significant hurdles as they
navigate the transition into adult life following pediatric acquired brain injury with their son or
daughter.
To survey the landscape of this transition as carefully as possible, we will consider the current
status, the current problems, and the clinical and research data needs pertinent to three aspects of
the transition into adult life following pediatric acquired brain injury: 1) medical and therapy
care, including mental health, 2) the transition from school to work including the primary shift of
focus from public school to postsecondary education, vocational preparation, and work, and 3)
support of social development from social life centered on the family of origin to social life
based in relationships outside the family, friendships, and independent, community-based living.
Current status, problems faced, and needs vary dramatically depending on whether the individual
has a high need for services and specialized resources or a more circumscribed, less intensive
need for services and specialized programs, within each of these three aspects of care. Therefore,
we will further delineate “high need” and “low need” pathways. The pathways of care in
medical, school, and social transitions into adult life for children who have PA/TBI are
pictorially represented in Figure 1 below. In Figure 6 below, the top pathway in each domain, in
darker blue, describes the status for children, adolescents, and young adults who have higher
levels of need and the lighter path in pale blue underneath describes the situation for individuals
who have lesser degree of needs.
50

In addition, as we see tens of thousands of young veterans under 25 years old returning from Iraq
and Afghanistan with mild to severe brain injuries due to war conditions, the complexities of
transitioning from a military environment back into a dynamic home-life they left or a brand new
family they just recently began presents considerable and unique challenges that demands a
similar systematic approach.
Pathways of Care: Medical, School and Social Transitions to
Adult Life for Children who have PA/TBI
Medical and Therapy Services, including Mental Health
PT, OT, Speech
Psychiatric/behavioral
PT, OT, Speech
Psychiatric/behavioral
Birth-3
Birth-3
Child Find
Child Find
Special
Education
Special
Education
School – Post-Secondary Education / Work
Birth-3
Birth-3
Child Find
Child Find
Special
Education
Special
Education
Residential/day treatment for severe behavioral disorders
51
TCH
Insurance coverage of post acute medical care
ABI training / education for CMHC personnel and community
TCH
Age 14
Age 14
District Transition Services
Transition Program (18-21)
TBI / ABI Teams
District Transition
SWAP
DOE – DVR Partnership
Extreme variability in services district to district, school to school
Social: Family-based – Community-based
Section I: Current Status
BOEC
Boy / Girl Scouts
Lack of opportunities for informal social interactions
Clubs
School-based activities
Community recreation programs
Support Groups
Infant Child Adolescent Adult
FIGURE 6: Pathways of Care
PT, OT,
Access to adult
ABI Medical Care
CCBs
For fee programs
Age 21
Independent Living Centers
Job Accommodation Network
DVR
Age 21
DVR
Workforce Centers
College LD Student Center
Age 25
Social Skills Development Training
CCBs
Independent Living Centers
Day programs
CCBs
Residential Living
Pediatric to Adult Medical and Therapy Services, including Mental Health
Medical. Medical and therapy services include general medical care such as that which is
provided by a primary care provider (PCP), as well as medical specialties particular to the best

care of syndromes associated with acquired brain injury. These medical specialties include,
among others: neurology, rehabilitation medicine, urology, gastroenterology, orthopedics,
endocrinology, epileptology, radiology, and neurosurgery. Medical specialists in psychology,
psychiatry, and neuropsychology are also essential components of comprehensive medical care
for individuals during all stages of life following pediatric brain injury and become of critical
importance during this transition to adulthood when so many of the familiar social and
community supports become less available. Finally, therapy services including behavioral
health, counseling, physical therapy, occupational therapy, speech/language therapy, and
nutritional/dietician therapies are also included in this domain. For both those who have high
and lower levels of need, there currently exists at least the provision for comprehensive care
from birth through age 21 with federally-supported programs including Birth to 3, Child Find,
and Special Education. In each state, Department of Health programs for children and families
with special health care needs directs a variety of services and programs in the individual’s home
community that coordinate access to specialty medical services such as epileptology,
neurosurgery, physiatristry, and psychiatry. For families who live a significant distance from a
children’s hospital or a facility that has such specialty pediatric medical personnel, services
actually available may be quite limited and much less comprehensive than is desirable. In such
situations, children who have serious medical needs may experience exacerbations in their
symptoms or their problems before they receive expert evaluations and care at a pediatric facility
with the proper specialty medical expertise in PA/TBI.
Psychiatric/Behavioral Health Services. Across the continuum of ages from infancy through
young adulthood, individuals who have psychological or behavioral health needs related to
acquired brain injury have a very difficult time receiving appropriate services in the community
mental health center system. In the private community as well, there is a significant dearth of
licensed clinical psychologists, child and adult psychiatrists, behavioral specialists, and marriage
and family counselors who have expertise in PA/TBI and the impact of it on psychological
development and behavioral, emotional, and psychiatric syndromes. Finally, there is a
significant lack of day treatment and residential care for children who have severe behavioral
disorders after a PA/TBI. While these children may receive behavioral treatments in school,
specialized facilities for children and young adults who are unable to function in these less
restrictive environments are simply not available.
Therapy services. Through a combination of Department of Health and Special Education
programs, physical therapy, occupational therapy, speech/language therapy, adaptive and
physical education, recreation programs, and social support services are provided for students
who have an Individualized Education Program (IEP) through the semester in which they turn
21. These medical and therapeutic services available in some form to all children in each state
through a combination of Health Department, Birth to 3, Child Find, and Special Education
programs, dwindle or precipitously end at age 21 with the end of school eligibility. Thus, an
individual who may have been receiving individual, group, and consultative services throughout
every school day finds him or herself at age 21 without either personnel or financial resources to
support these treatments. In addition, even if payment for therapeutic specialties is not an issue,
it may be very difficult to find adult practitioners who have any understanding, let alone
expertise, in the long term management of contractures, support of developmental and functional
52

gains, development of spoken language, and social skills development in young adults 10-15
years following their acquired brain injury event.
Severe needs post PA/TBI. Individuals who have had severe TBIs need comprehensive and
expert medical care, which anticipates and treats the particular sequalae of acquired brain injury
on the body systems as the individual ages in adulthood. It is very difficult to find adult PCPs
and specialty physicians who feel willing and competent to take on the myriad of unknown and
potentially very complex outcomes of ABI on a physical system that was traumatized during a
crucial period of development. Even in environments that have rich and long standing histories
of providing medical care for both adults with acquired brain injuries and children with acquired
brain injuries, it is difficult to find physicians who are willing to accept an individual with an
acquired brain injury in childhood or adolescence to serve as a PCP for that individual as an
adult. As a result, the pediatric rehabilitation physicians and therapists continue to follow their
patients into their twenties and thirties.
School to Work
The scaffolding is in place to support the transition from school to post secondary education or
work through the IEP process, mandated district based school transition programs, and
partnerships between the Department of Education and the Division of Vocational Rehabilitation
in many states. These transition programs have been well articulated and mandated to begin no
later than age 14. They effectively bridge the entire transition into adult life through Job
Accommodation Network programs, the Division of Vocational Rehabilitation Workforce
Centers, and college Learning Disabilities Student Centers. Model programs such as the Schoolto-Work
Alliance Program seamlessly bridge the transition by beginning in middle school with
interest inventories, prevocational coursework, and life skills curriculum embedded completely
in the public school building. As the student enters high school, the balance in the program
shifts to include more outside the school placements, with part day spent in the work place and
part day in the public school classroom. Finally, after graduation from public school at age 21,
supportive programs in the Division of Vocational Rehabilitation continue to provide specialized
counseling, follow-up, coaching, and other assistance through age 25.
While the comprehensive services and seamless transition appears on paper in every district,
these programs are marked by extreme variability in the quality of services provided. One school
district’s transition program may be pertinent, comprehensive, and prepare the student well for
development of realistic goals as well as the skills needed to get and keep a job, while another
district may fail in this regard. In some states outcome evaluation of the adequacy of the
transition program is being taken very seriously and indicators of success (for example, Indicator
13 evaluating the implementation of the transition services program for all student who have
IEPs and Indicator 14 providing for follow-up of functional outcomes of the graduates of this
transition program) are being reviewed. Some of the early data on outcomes and efficacy of this
program suggest very strongly that children are not being prepared adequately in terms of
emotion regulation, executive functions, and management of frustration. They appear to be
equally successful with their non-special education peers in terms of landing a job but they have
a great difficulty keeping the jobs that they acquire. Investigation of the specific ingredients of
school transition programs that are effective, as demonstrated by high proportion of students
working five years after graduation from public school, is clearly warranted.
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Social Opportunities
The services and programs support a child’s social life and personal, social, and emotional
development are strongly linked to the aforementioned educational programs offered through
Birth to 3, Child Find, Special Education and supported school/vocational education programs.
There has been a significant emphasis within these programs on development of social skills,
psychological growth, and emotional competencies, including behavior regulation, hobby
development, and development of fitness and sports competencies. Therefore, it is not surprising
that when these school-based services end at age 21, the young adult with acquired brain injury
finds him or herself in a devastating situation with regard to social support and opportunities for
friendships and meaningful relationships outside of the home and family. For children with all
levels of disability related to their brain injuries, a variety of school-based and community-based
programs have provided excellent opportunities for social interaction and involvement in the
normal group experiences that promote social skills, friendships, and personal maturity. Private
outdoor education groups, Boy Scouts and Girl Scouts, 4-H, school-based clubs, after-school
activities, community recreation programs, community sports programs, integrated sports
leagues, and social skills groups both housed at school and in the community offer remedial,
therapeutic, and purely recreational opportunities for children with acquired brain injuries to
develop and enhance their social skills, meet and make friends, and develop hobbies and
recreational interests.
There are many parallel programs that have been developed for adults who have acquired brain
injuries, but there is often a lack of education and awareness about the existence of these
programs. This may occur because the social opportunities for children are based in the
education system, through the school and community based programs for children, whether they
have special needs or not. The programs available in the community for adults who have
sustained brain injury are largely those affiliated with a day treatment program, a residential
hospital program for adults, or a program associated with the local brain injury association,
which typically does not offer very much in the way of services for children and families.
Therefore, the individual who has had a pretty full day thanks to her Individualized Education
Program at school, providing formal, group, organized, and informal opportunities to be around
same aged peers, suddenly and very precipitously is left without anything to do and no obvious
support or in fracture for meeting same age peers, making friends, or developing those
friendships.
For individuals who have very serious and high level of needs following their pediatric acquired
brain injuries, the transition from living at home to living outside of home may be better
supported than for those who have more moderate level of needs following their brain injuries.
Individuals whose IQ is below 70 or whose functional adaptive skill level is at a similar level
(below the 2 nd percentile for their age group) may be candidates for independent living centers,
day programs, residential living programs, and programs available through the network of
community center boards. The large majority of individuals who have survived very serious
level of brain injury into their adulthood have a much more scattered skill set and typically do
not have IQs and functional adaptive levels below the 2 nd percentile. Therefore they are not
eligible for these programs and they face a significant dearth of any kind of social opportunities.
Their families typically report quite depressing and destabilizing period of time following high
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school graduation until they cobble together an individual program of advocational interests,
groups, clubs, and a routine to everyday life that is socially and personally fulfilling.
Social opportunities can be effectively developed, as there currently exists all across America a
large variety of programs that provide support for individuals who have a combination of
cognitive and physical disabilities. The individuals who run these programs need education in
the particular disability profiles associated with acquired brain injury. If ABI-appropriate
education is offered to community personnel and if case management is provided to the
individual’s family linking them up with these specialized camps, programs, and opportunities, a
good transition between pediatric social opportunities and adult social opportunities can be
constructed.
All along, for those who have had severe acquired brain injuries as well as for their more
moderate to mild brain injury peers, there is a lack of opportunity for informal social
interactions.
Section II: Current Problems
Medical
There is a serious lack of adult medical providers knowledgeable and the complex medical,
neuropsychological, and rehabilitative needs of PABI patients in order to transition that patient
for both primary care and specialty care needs. The investigation of ongoing need for specialty
medical care, for PCPs who are expert in the long term sequalae of pediatric trauma and acquired
brain injury, who are willing to serve as adult PCPs, and a system for educating adult providers
and transitioning families from the quality medical care that they enjoyed for their children into
equally qualified and available adult medical providers, are areas in which data collection is
necessary.
Further, there are no data on long term impact of severe physical trauma, particularly trauma
affecting the brain’s ability to regulate and control the arousal, inhibitory, and growth systems of
the body. It is also not known how the associated protracted course of medications taken by
young children and adolescents following severe brain injury affects the health and development
of their internal organs (kidney, liver, heart) in adulthood. PCPs who had access to a large data
base of individuals who had severe traumatic brain injury as they age over the next twenty or
thirty years of their life would be able to make more educated decisions regarding etiology,
treatment, and care of these new medical problems in their adult PA/TBI patients..
When children who have had PA/TBI leave the supportive social environment of school, they
often experience a serious psychological and emotional crisis. Prone to anxiety anyhow, these
young adults often become quite withdrawn, socially avoidant, and seriously depressed. The
lack of education regarding the implications of PA/TBI on emotional, psychological, and social
development among community based psychologists, psychiatrists, and community mental
health providers, results in treatment failure. Emotional problems thus blossom and become
more entrenched and serious psychiatric disorders may develop.
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Finally, a third area of problem affecting the medical care of individual with PABI as they
transition into adulthood is the lack of insurance coverage for long term (not acute) physical
therapy, occupational therapy, speech therapy, cognitive rehabilitation, or psychological
interventions. Not affecting the transition phase alone, but across the board for children,
adolescents, and adults, there is a serious lack of availability of residential and day treatment
programs for individuals who develop severe behavioral disorders following acquired brain
injuries.
Education
There exists extreme variability in the conduct of education transition services from district to
district within any state and across states. The type and conduct of specific education transition
services has never been clearly described and thus there is no uniformity in terms of what kind of
supports and skill development these programs address. There is no standardized set of
competencies or expectations and very few programs conduct functional program evaluation of
their education transition services. Thus there exists extreme variability in the conduct of the
education transition service program from district to district in terms of the quality of the
program, the relevance, and the success as measured by functional outcomes. There is a high
need for data to be collected on the relevant, sufficient, and necessary component of these
programs. There is a need to develop standards and competencies for training of regular and
special educators as well as the individuals who direct and teach these programs in pediatric
acquired brain injury. Access to all programs is severely restricted not only by location but also
by lack of knowledge about acquired brain injury and there is no case management at this crucial
stage of transition into adult life. Luck and happenstance are too often responsible for an
individual’s finding his way into a beneficial program. The burden of responsibility falls on the
family to investigate, develop, and train personnel to carry out the ongoing cognitive
rehabilitative needs for their young adult as well as to provide for social opportunities and
chances for ongoing emotional and psychological growth. Finally, there is a general lack of
opportunity for informal social interactions if the adult with PA/TBI is not attending school.
Section III—The PABI Plan
The SJBF Registry will provide a significant resource to help address the clinical, educational,
and data needs of the medical community. The SJBF Registry can provide an educational
resource for physicians who become the PCPs and the specialty medical providers for these
individuals as they enter adulthood. The Registry can clarify the course of PA/TBI through
development, particularly serving as a warehouse for information about the impact of the brain
injury and the lifetime course of medications started very early in development on the physical
systems over time. Finally, the Registry offers the opportunity to integrate knowledge and
practice so that a physician who is willing to learn about and serve as the PCP for adults who
have complex medical needs following PA/TBI will be able to augment her clinical experience
by accessing the SJBF Registry and the Virtual Center for the records of other young adults who
sustained similar injuries in childhood (for example, an anoxic brain injury as a 3 year old versus
serious traumatic brain injury in a skate boarding accident as a 14 year old).
The Virtual Center has the potential for bridging the knowledge gap between pediatric and adult
providers through education, making available clinical data, and – very importantly – tracking
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outcomes over time. The Virtual Center will provide an impetus for program development
within states. States that have a longer, richer tradition of providing services for children who
have acquired brain injury as they age can serve as a model for other states who have less
developed systems of care. The Virtual Center will house and catalog information for data
collection, a very important point particularly germane to pediatric acquired brain injury.
Because a brain injury experienced in childhood or adolescence affects a brain in the process of
development, a brain injury sustained by a 4 year old will have very different lifetime
implications than a brain injury sustained by a 17 year old. The capacity to aggregate cases by
etiology, mechanism of injury, severity of injury, and treatments for individuals at the same
development stage, will be crucial to advancing knowledge in pediatric acquired brain injury.
The Virtual Center will allow for the registry of effective treatments from many different
treatment centers and practitioners across the country. These can be distilled into a knowledge
base of “best practices” that can refine treatments into their most effective components, support
the need for third party payment of ongoing treatments that are effective, and inform policy.
Public-private partnerships in resource-sharing will support treatments that affect ongoing brain
recovery throughout neurodevelopment known to occur through the mid twenties.
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CHAPTER 8: Category of Care: Rural/Tele-Health
In order for the system of care to be universally accessible no matter where the PA/TBI family
lives, a strong emphasis must be made to reach the rural and frontier regions of the United States.
For the purposes of this grant proposal, the term “frontier,” like rural, suburban and urban, is
intended to categorize a portion of the population spectrum; frontier is considered the most
remote end of the spectrum. The Office for the Advancement of Telehealth defines “frontier
regions” as ZIP code areas whose calculated population centers are more than 60 minutes or 60
miles along the fastest paved road trip to a short-term non-federal general hospital of 75 beds or
more, and are not part of a large rural town with a concentration of over 20,000 population.
States vary significantly in the percentage of their population designated as frontier, from 0
percent (e.g., Delaware and Connecticut) to over 15 percent [Alaska (49%), Wyoming (39%),
Montana (38%), and North Dakota (19%)]. Unless otherwise noted, for the purposes of this
grant proposal, the word “rural” will constitute both the rural and frontier regions of the country.
According to the Bureau of the Census (2001), Rural America makes up over 75% of the
landmass of the United States and contains approximately 25% of the U.S. population (over 75
million Americans).
According to one of the leading organizations in the country dealing with rural health issues, The
National Rural Health Association, “The obstacles faced by health care providers and patients in
rural areas are vastly different than those in urban areas.” Rural Americans face a unique
combination of factors that create disparities in health care not found in urban areas. Many
factors need to be taken into consideration to ensure universal accessibility for children/young
adults and their families within Rural America, such as improving access to financing of health
and education needs and increasing the awareness of PA/TBI among health (including behavioral
health) and education professionals. Only ten percent of physicians practice in Rural America,
and rural poor are less likely to be covered by Medicaid benefits than their urban counterparts.
In addition, cultural and social differences, lack of recognition by legislators and the sheer
isolation of living in remote rural areas compound the challenges rural American PA/TBI
families face in their struggle to provide for their child/young adult suffering from PA/TBI. The
pervasive disparities related to race, ethnicity and socioeconomic status are exacerbated in
isolated rural and frontier areas of America.
Excerpts below from “Rural and Frontier Mental and Behavioral Health Care: Barriers,
Effective Policy Strategies, Best Practices” by Dr. Donald Sawyer, Dr. David Lambert and John
Gale (2006). Many of the issues raised in this paper are equally relevant for PA/TBI:
“Recent estimates indicate that 16-20 percent or at least 15 million rural residents
struggle with significant substance dependence, mental illness, and medical-psychiatric
co-morbid conditions. While recent studies indicate that the prevalence and incidence of
behavioral health problems are similar in rural and urban areas, a notable exception is the
significantly higher rate of suicide and suicide attempts in rural America. For rural
elderly residents in some regions, the rate is 3 times higher than the national average in
non-rural settings. In addition, rural residents experience many more obstacles to
obtaining behavioral health services, which results in distinct mental health disparities.
The mental health needs of rural America are immense. Although national data suggest
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that the prevalence of clinically defined behavioral health problems among the adult
population is similar in rural and urban settings, the availability of behavioral health
services is limited for people living in rural and frontier communities. The majority of
Mental Health Professional Shortage Areas (MHPSAs) are in rural counties. There are
2,157 Health Professional Shortage Areas (HPSAs) in rural and frontier areas of all states
and US territories compared to 910 in urban areas. Among 1,253 smaller rural counties
with populations of 2,500 to 20,000, nearly three-fourths of these rural counties lack a
psychiatrist, and 95 percent lack a child psychiatrist. An estimated 2/3 of U.S. patients
with clinical symptoms of mental illness receive no care. Of those who receive formal
treatment, approximately 40% receive care from a mental health specialist and 45% from
a general medical practitioner. Due to the lack of specialty behavioral heath care,
primary care caregivers provide a large proportion of behavioral health care in rural
America.
Barriers to mental and behavioral health service delivery in rural America:
The following issues were commonly identified by respondents as barriers to and
concerns regarding service delivery in rural America:
Stigma and Cultural Issues
• Social stigma of mental illness
• Lack of rural-specific technical assistance
• Mistrust of health professionals in some rural and frontier communities
• Focus on illness care rather than on adequate early intervention and prevention
• Lack of cultural competence in spite of increasing diversity
Financing and Reimbursement
• Uncertainty of public funding streams
• Lack of flexible funding streams
• Lack of funding for prescription medication
• Complicated and cumbersome funding arrangements
• Restrictive reimbursement requirements, such as the need to have licensed
professionals on staff to seek Medicaid/Medicare reimbursement, when private
insurers will pay for services provided by case managers, etc.
• Lack of funding for evidenced based practices specifically for rural areas
• Reimbursement problems with telehealth services
• Funding systems are complex and fragmented leading to increased costs for providers
• Higher cost of service delivery in rural areas due to low volume of patients
• Managed care organizations place restrictions on providers
• Lack of insurance coverage for mental and behavioral health services or higher
premiums or co-payments compared to other physical illnesses
Structural and Organizational Issues
• Insufficient communication among primary care providers and community mental
health centers
• Incompatible software or hardware and inadequate infrastructure for telehealth
connections
• Limited availability of clinicians with prescriptive authority
• Lack of specialists, especially those with child/adolescent expertise
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• Lack of public transportation
• Distances and difficulties accessing care even when transportation (private) is
available
• Lack of coordination among Federal Agencies, especially HRSA and SAMHSA
• Professional specialization interferes with adequate “life management” needs
• Lack of integration of mental health and primary care in many areas
• Lack of integration of mental health and substance abuse services
• Difficulties faced by rural providers when competing for funding, such as a lack of
organizational capacity / expertise, the use of urban criteria for contracts (i.e. levels of
required credentialed professional staff) by government agencies, etc.
• Lack of support for care givers, professionals and families (i.e. affordable housing,
comprehensive rehabilitation programs)
• Lack of peer support services and consumer led groups
• Lack of comprehensive needs assessment data specific to rural and frontier areas
• Unintended impact of Federal regulations (HIPPA)
• Unaddressed behavioral health care needs of rural women
Access and Workforce
• Lack of trained staff members/providers/clinicians
• Lack of availability of dual-diagnosis treatment
• Lack of telehealth services
• Lack of continuing educational opportunities (i.e. for RNs to become Nurse
Clinicians with a psychiatric specialty and an ability to prescribe medications)
• Significant distances to service providers
• Excessive wait times before services are available
• Lack of financial incentives for professionals to work in rural areas
• Lack of scholarships and grants for training
• Poor in-service training of, and dissemination of information to, rural practitioners
• Inadequate prescription drug benefits, especially for the self employed
The barriers to mental and behavioral health services in rural and frontier America have
changed little over the past three decades. Several studies and projects have reported that
resources have historically been concentrated in urban areas of the United States, and the
limited availability, accessibility and acceptability of rural mental and behavioral health
services have created serious consequences for individuals, families and State mental
health authorities.
Many rural communities grapple with issues of substantial ethnic and cultural diversity,
deteriorating infrastructure, pervasive poverty, limited employment opportunities, and
declining population bases. As a result, the tax bases of these communities have
continued to decline. With dwindling populations and eroding economic bases in many
rural and frontier areas, funding for public mental and behavioral health services has
suffered. These services have been and will continue to be dependent upon public
funding and support. Unfortunately, the budget crises plaguing most State Medicaid
programs limit the level of available funding for mental and behavioral health services
and will likely continue to do so for the foreseeable future.
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Model programs and effective activities for rural America:
Regardless of whether funding is sufficient or insufficient, there are rural and frontier
models that work and that deliver culturally competent and efficacious care. Although
these innovative programs exhibit a wide range of diversity in terms of where they are
located and how they are organized, most share a common theme - the need to make
better use of limited resources in rural communities. The bottom line is that there needs to
be a consistent way to fund and promote the models that have proven outcomes, can be
considered evidence-based “best practices” and can be replicated across a variety of rural
communities. Too often innovative rural and frontier model programs are lost after a
grant expires or a reimbursement stream ends.
The role telehealth should play in service delivery to rural America:
Expanded Access to Clinical Services
• Avenue for regular access to training and continuing educational services
• Psychiatric consults when psychiatrists are not readily available
• Linkage and follow-up after discharge from an inpatient setting
• Discharge planning from inpatient services to community services
• Prevention and early intervention (i.e. crisis hotlines, referral and information
clearinghouses, skills building, peer support)
• Provision of specialist support for the rural primary care providers
Enhanced Communication between Providers
• Multiple usages, such as 2-way audio-video; telephone; and IP connections
• Professional training
• Ongoing support for rural professional practice
• Provision of specialist support for the rural “generalist”
Enhanced Networking Opportunities for Consumers
• Group meetings for consumers as part of a recovery project
For some time, those in the field of mental and behavioral health have heard that
technology would revolutionize care, providing services from computerized case records
and billing systems to off-site utilization review. In hospitals, technology has been shown
to lead to statistically significant improvements in reduction of infection, accuracy of
medication administration, and reduction of medical errors; however, in rural and frontier
settings, the impact of technology is more elusive. The single area where improved
patient care could be realized is in the significant expansion and active use of telehealth.
Emerging technologies have made telehealth more affordable and usable. Telehealth can
be used for long-distance clinical treatment, consultation, patient and professional
education and administrative consultation. It is a greatly underused resource for mental
and behavioral health services in rural and frontier areas. Policies and reimbursement
methodologies would need to be adjusted to better support more comprehensive use of
this intervention.
The Role that State Offices of Rural Health (SORH) and other state and local
organizations should play in service delivery to rural America:
• Provide a quality assurance function by monitoring outcomes
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• Provide consequences for wasting of public funds on technology that does not work
and is not able to be utilized after a reasonable period of time
• Encourage open dialogue with providers and create an atmosphere of cooperation and
collegiality
• Advocate on behalf of providers
• Create state plans that reduce or eliminate duplication and waste
• Advocate for evidenced-based issues that affect service delivery
• Advocate for and recommend policies that increase access to care
• Promote inclusiveness with consumers (real and honest involvement); provide funds
for consumers to travel to meetings with funding for child care if necessary
• Promote the development of local organizations which support the mentally ill
There is hope that State Offices of Rural Health can become a driving force behind
developing networks and collaborations of relevant organizations to improve services and
increase patient access.
State Offices of Rural Health are essential partners, bridging primary care and mental
health systems together, targeting program delivery to specific data-based state and local
needs, and encouraging collaborative partnerships. They are important in identifying and
establishing linkages with undeserved populations and connecting local peer-type
programs with State and Federal systems for such undeserved groups. They can be
helpful in partnering the administration and delivery of rural services, especially in pilot
and model programs where delivery skills are high but administrative and general
management skills may be lacking. Finally, they can be an essential player in information
and model sharing at both the state and regional levels.
However, their current functioning, these office are a long way from achieving these lofty
goals. In a survey of over 200 NARMH members (practitioners, administrators,
consumers and family members), only 57 percent were personally aware that their state
had an Office of Rural Health, just 33 percent were knowledgeable about the function of
their Office of Rural Health, and only 28 percent had ever interacted with the Office.
SUMMARY
The themes of rural mental health remain constant. Mounting needs, a lack of available
professional staff, and restricted/limited resources strain existing services and limit access
to rural residents in need. Unique geographical and cultural challenges to service delivery
hamper the effectiveness of current delivery models. Urban models and assumptions
imposed by funding sources or regulators further hamper the efforts of providers to serve
rural communities. State and national policy makers continue to operate under a
consistent and pervasive misunderstanding of rural realities. As a result, they do not
adequately account for these rural realities in the development of public policy and they
perpetuate the tendency to seek a single policy solution to rural issues.
In spite of the need to innovate and reach out to rural people, most rural mental and
behavioral health programs typically look like smaller, under-resourced versions of urban
programs. Quite frequently, rural mental and behavioral health services are office-based
practices located in moderately sized towns that see people on a one-to-one basis for
outpatient sessions. Although funding streams, regulatory mechanisms, and training
programs contribute to this problem, they are not solely responsible for the existing state
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of affairs. The rural mental health community has not developed or sufficiently advocated
for innovative and replicable evidenced-based solutions tailored specifically to the needs
of rural citizens to serve as alternatives to the existing urban-based models.
Fortunately, there are effective mental and behavioral health advocates in many local,
State, and Federal agencies and organizations that understand and have embraced the
issues of rural communities. By virtue of their willingness to “go the extra mile,” these
key individuals and agencies have begun to move the field toward a better awareness of
the mental and behavioral health needs of rural Americans and the challenges of serving
them. Our challenge is to build on their efforts and maintain the momentum that they
have created. In order to do this, we must address and move beyond the problems briefly
addressed by the Surgeon General and the President’s New Freedom Commission. This
will require State and Federal policymakers, providers, consumers, and mental and
behavioral health advocates working together to forge an ongoing national rural mental
and behavioral health agenda that enables these services to operate in the health care
mainstream by:
• Incorporating policies specifically tailored to the needs of rural communities,
providers, and consumers;
• Providing the resources and tools needed to appropriately deliver services in rural
areas in a culturally sensitive and competent manner; and
• Developing evidenced-based models of care that are both replicable and transferable
across a range of rural communities.”
Rural / Telehealth and childhood injury prevention
As it relates to motor vehicle (MV) collisions, one of the leading causes of PA/TBI in
children/young adults, the strategies adopted from the Prevention Category of Care must take
into strong consideration the rural regions of the country, where over one-third of motor vehicle
collisions occur and two-thirds of the deaths attributed to these collisions occur. The people who
reside in these locations, as well as the private and commercial traffic that travels through these
regions, have the same emergency health care needs as their counterparts living in urban and
suburban areas. The day-to-day realities of EMS systems in rural and frontier environments are
vastly different when contrasted with their urban and suburban counterparts. Anywhere from 57
to 90 percent of first responders in rural areas are volunteers. MV collisions resulting in death or
serious injury are the cause of 60 percent of total rural injuries, versus only 48 percent of urban
injuries. Poorly defined geographical boundaries, low population density and call volumes,
elongated response and transport times (national average response times in rural areas was 18
minutes, which is eight minutes longer than in urban areas), the need for more well-established
communication infrastructure over remote areas, and the lack of acute or specialty care facilities
are all factors that impact operations. These facets can also widen the disparity between the
services delivered and the public’s expectations.
In addition, rural residents are nearly twice as likely to die from unintentional injuries other than
MV collisions as are their urban counterparts. Rural residents are also at a significantly higher
risk of death and brain injury by gunshot than urban residents. Additional causes of PA/TBI
such as alcohol poisoning have a higher risk factor in rural America since the rate of DUI arrests
is greater among rural youth than their urban counterparts. Forty percent (40%) of rural 12 th
graders reported using alcohol while driving compared to 25% of urban high school seniors.
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Rural / Tele-health issues during Acute Care
While 86.1% of the population lives within 60 minutes of a Level 1 or Level 2 Trauma Center,
many PA/TBI cases will not be presented in such institutions. The Acute Category of Care must
develop strategies and programs to deal with the initial assessment and treatment of PA/TBI,
including but not limited to Mild TBI since most of those cases will never be presented at a
Level 1 or Level 2 Trauma Center. The use of store-and-forward telehealth for digital images,
video, audio and clinical data can save time and money if used properly. In addition, real-time
telehealth strategies are already being used and those that have been successful should be
expanded to allow instantaneous interaction. Not only video-conferencing but advancements in
technology allow for peripheral devices to be used. These technologies also allow for primary
physicians to receive second opinions from specialists without the families needing to travel any
further than their local healthcare provider. The use of telepharmacy programs has the potential
to improve the quality of pharmaceutical care and decrease medication errors and adverse drug
events in small rural hospitals; however many states have not adopted rules and regulations to
implement some of these newer strategies. Many rural hospitals, especially Critical Access
Hospitals (CAHs), have limited hours of on-site pharmacist coverage. In addition, a significant
number of pharmacists in small rural hospitals are primarily retail pharmacists, who provide parttime
pharmacist consultant services in hospitals and nursing homes in addition to their retail
responsibilities. Telepharmacy arrangements have been proposed as a way for smaller rural
hospitals with limited pharmacist coverage to obtain additional pharmacist resources. However,
because telepharmacy is relatively new, there is little literature in peer-reviewed journals.
Limited information on telepharmacy projects is available in other formats such as articles in
newspapers and trade journals, and grant reports. Additionally, Medicaid/Medicare payments to
rural hospitals and physicians are dramatically less than those to their urban counterparts for
equivalent services. This correlates closely with the fact that more than 470 rural hospitals have
closed in the past 25 years.
Rural / Telehealth issues during Reintegration, Long-term care and Adult Transition
Many of the school and community resources in Rural America are not designed (nor do they
have the proper training) to deal with a child/young adult with PA/TBI, let alone their families.
The Reintegration and Adult Transition Categories of Care must develop and implement
strategies and programs uniquely designed to meet the challenges facing the rural families,
schools, employers and communities dealing with a child/young adult with PA/TBI. Using
telehealth strategies for non-Rural PA/TBI families may also prove beneficial for the family who
is unable to access specialty health-related services because of barriers (i.e., the suburban town
doesn’t have a specialist in a particular area, the child/young adult is too difficult to move
because of his or her fragile or serious medical condition). Telerehabilitation is currently being
utilized in neuropsychology, speech-language pathology, occupational and physical therapy, and
robot-aided rehabilitation; however, very few applications have been adopted for pediatric cases.
Because of the lack of evidence-based research, few health insurers in the U.S. today will
reimburse for telerehabilitation services.
Taking advantage of the use of the Virtual SJBF Center (see Chapter 7) by having access to
advice, services and support through the SJBF Registry along with the advanced use of an
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electronic health records portal will greatly enhance the experiences and the overall care of the
child/young adult with PA/TBI and their family.
Family Perspective
Families in Rural America dealing with a child/young adult with PA/TBI face obstacles
throughout the continuum of care generally not seen in a more urban setting. Prevention
funding, when it cycles through the system, tends to nearly always focus on families in urban
areas due to the higher population densities, almost completely leaving out those in more
sparsely populated areas. Identification of children/young adults with brain injuries is more
difficult since medical professionals in a rural setting are more generalists than specialists and as
such may not be as quick to identify a PA/TBI compared to their urban counterparts.
Furthermore, there may be little or no choice of getting a second opinion due to the lack of
medical options in rural areas.
Acute care with a moderate to severe PA/TBI poses a significant problem since hospitals in rural
areas are few and far between; even the hospitals that do exist are generally small and illequipped
for more serious cases. Even after the initial emergency response, a child or young
adult in Rural America suspected of having a severe PA/TBI would likely need to be transported
via the quickest possible ambulatory care (airlifted) to a large trauma center 60 or more miles
away. More often than not, family members are not allowed to accompany the child/young adult
during these trips, which further traumatizes the family due to the forced separation. The
already-distraught family must then drive hours to the new location, which creates an additional
stress and a hazard for them as well as others on the road.
Rehabilitative services in a rural setting can be sparse to non-existent, and the ones that do exist
are notoriously difficult to access and slow to be put in place. This is particularly devastating to
the child/young adult with a PA/TBI since brain injury by its very nature requires the quickest
and the most extensive rehabilitation of perhaps any other bodily injury. Services that are put in
place in a rural setting may be cut off too early for children/young adults with PA/TBI who
“seem” to be doing well after a period of time, due to a push from poorly funded agencies to cut
costs and save resources by expending less manpower. With a child/young adult with a PA/TBI,
cutting these services too early can result in the child getting “lost” in the system, which can lead
to him or her doing poorly years down the road and no one linking it to the earlier brain injury.
Telerehabilitation would be particularly helpful in a rural setting for families actively looking for
ways to help their child/young adult at home without having to travel long distances. It could
also serve as a supplement to in-home therapy by a trained professional.
While there is still a general lack of understanding of brain injury amongst most education
professionals regardless of where they live, this is even more exaggerated in Rural America for
many reasons – lack of funding in poor rural areas may lead to less specialized training for
teachers, rural schools are generally not be able to pay salaries competitive to those in rural areas
(thus not attracting higher-quality teachers). Some schools may not even have special education
teachers at all, let alone those trained in how to handle a child or adolescent with PA/TBI.
All family members, including siblings, generally experience more lack of understanding from
the community at large in Rural America, since people in this population group tend to be less
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educated and thus are less aware of the various manifestations of brain injury. The lack of
understanding may lead to less tolerance, inevitably making life even more difficult for those
dealing with the day-to-day effects of a child/young adult with a PA/TBI.
Finally, the lack of much-needed mental health support in a rural setting for families of
children/young adults with PA/TBI is a huge problem. Family members having trouble coping
with the grief due to having essentially “lost” their child due to a PA/TBI are in great need of
mental help, but there is a lack of mental health care in Rural America and a family member who
is the primary caregiver of a child/young adult with PA/TBI in particular may not be able to
travel long distances to get the mental help they require. This may further lead to increased rates
of depression and drug or alcohol use. Teletherepy in these cases, when there is a lack of nearby
psychiatric support, would be hugely beneficial to family members.
Additional Proposed Solutions
1. Prevention strategies and programs specifically designed when necessary for
Rural/Frontier Regions of U.S.
2. Utilize telehealth technologies in the assessment and treatment of PA/TBI during Acute,
Reintegration and Adult Transition phases of the continuum of care.
3. Transmitting medical images and data for diagnosis and/or disease management
4. Exchanging health services or education live via videoconferencing
5. Prevention of secondary and tertiary injury with promotion of good health by patient
monitoring and follow up
6. Health advice by telephone in emergent cases
7. Distance education and training for professionals, families and individuals
8. Administrative uses including meetings and presentations
9. online information and health data management
10. healthcare system integration
11. asset identification, listing and patient to asset matching and movement
12. patient movement and remote admission
13. grant programs that bring necessary equipment and training to the underserved rural and
frontier communities and cost-based rural ambulance reimbursement
The Institute of Medicine in a report, “Quality Through Collaboration: The Future of Rural
Health” examined the quality of health care in rural America and identified a five-pronged
strategy which would address the challenges faced by rural communities. These are:
1. adopt an integrated approach to addressing both personal and population health needs;
2. establish a stronger health care quality improvement support structure to assist rural
health systems and professionals;
3. enhance the human resource capacity of health care professionals in rural communities,
and the preparedness of rural residents to actively engage in improving their health and
health care;
4. assure that rural health care systems are financially stable; and
5. invest in an information and communications technology (ICT) infrastructure, which has
enormous potential to enhance health and health care over the coming decade.
Additional Research Priorities
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1. demonstrating equivalence of assessment and therapy to in-person assessment and
therapy
2. building new data collection systems to digitize information a therapist can use in
practice
3. Further research in telehaptics (the sense of touch) and virtual reality may broaden the
scope of telerehabilitation practice
4. Increase use of artificial intelligence, wireless technology, PDA and Cellular technologies
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Chapter 9: Category of Care: The Virtual SJBF Center - An Ecosystem for the PA/TBI
Community
Scientific methods and data analyses are the cornerstones of medical research and care. In the
traditional model, there is a hypothesis, a question: “If I do this, will the patient benefit?”
However, most projects are often done in isolation and typically centered on a particular
researcher’s practice. At times, researchers collaborate in hopes of increasing the number of
patients to find answers sooner.
In many ways, research reflects clinical medical practice. Although the public believes there is a
free exchange of ideas and best practice technique, typically individual practices are relatively
isolated. Treatment choices may be based on geography and what the caregiver is most familiar
with, rather than best practice standards, or outcome-based choices.
The advent of the Internet offers a new model, one allowing active patient and caregiver
collaboration. There are three initial phases to the Virtual SJBF Center:
Phase 1: The SJBF Registry
Phase 2: The Electronic Health Records Portal
Phase 3: The Open Source Initiative
The Virtual SJBF Center will also use additional technologies to advance the continuum of care
for children/young adults and their families.
The SJBF Registry
While protecting patient rights, the Virtual SJBF Center will provide an open registry for
everyone with a PA/TBI and their families. This methodology (Communities for a Cure) has
been extensively used for the last 8 years for other disease states and will now be made available
to the PA/TBI community. The SJBF Registry will apply the best informatics management
approach, used successfully with Multiple Sclerosis and Parkinson’s disease for more than a
decade at the Barrow Neurological Institute (BNI) in Phoenix. Outcomes assessment, education
and other technologies will be available through the registry.
The model has three simple steps: enrollment, engagement, and repeated communication.
1. Enrollment: Patients are enrolled in the SJBF Registry - this can occur either at the time
of the acute event or afterwards. The patient or a caregiver can enroll the patient by
providing information about the event, age of the patient, clinical evaluation at the time,
etc. In most cases, the patient’s name is recorded, but this is not necessary. A form of
communication is included (email, US mail, text messaging, phone number). In the case
of the SJBP, information will also be gathered from the family members whenever
possible.
2. Engagement: Personalized content can then be provided to the patient and their family,
helping them better understand their condition and how to get help. This differs from
typical, unfiltered Internet content. Over time, the SJBP will continue to add research
and services partners to the registry, similar to the Apple applications store for the
iPhone.
3. Communication: There will be repeated communication with the participants, a
relationship rather than a limited engagement. Participants will be sent questionnaires at
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egular intervals to find out how they are doing, and what their needs are.
Communication will be personalized to particular groups within the registry to facilitate
research efforts over time.
At all times, the registry will follow strict federal guidelines to maintain the patients’ rights to
confidentiality and engagement. The patient ultimately controls his or her own information.
As noted on the SJBP web site (http://www.TheBrainProject.org), the intent of this effort is to
foster open collaboration for better care and research.
This will be possible through SJBP’s policy of an open data and communication layer. This does
not mean all information will be “open” for anyone to see, but rather methods of data entry and
transfer will be clearly defined for all potential partners (an open data dictionary and messaging
layer). With appropriate permissions, information will be available for research and care of the
participants.
The SJBP believes practice standards should constantly evolve from best practice to outcomebased
methodologies. The SJBP will begin with the best practice belief, but after further
interventions and their outcomes can be studied, the results of these interventions need to be
measured and evaluated. Data acquired from the community will be rigorously evaluated in
near-real time to look for better methods of treatment and care.
Additionally, this open standard will facilitate an information exchange throughout the
continuum of care, independent of an individual hospital or care givers office practice.
The Electronic Health Records (EHR) Portal
The second phase of the Virtual SJBF Center will be the establishment of a portal for families,
physicians and other professionals to upload health records into an interoperable database to
optimize the acquisition, storage, retrieval of this information in real time. This will be a
different method than most are considering with the conversation of health records into
electronic format. The most common model is through a top-down, bureaucratic-driven
conversion, while the Virtual SJBF Center’s system will be a bottom-up, consumer-driven
conversion method with eventually hundreds of thousands of caregivers driving their children’s
health records into the database. History has shown that consumer-driven models are much more
effective as change agents and are quicker at conversions than top-down models. Establishing a
collaborative environment to foster communication between physicians, caregivers, patients and
informatics specialists will create success at implementation.
The Veteran’s Health Information Systems and Technology Architecture (VistA) is a great
example of an enterprise-wide information system providing continual health benefits to over 4
million veterans annually. This system is one of the most widely used EHRs in the world and it
supports both ambulatory and inpatient care including a web-based user interface for clinicians.
This interface is known as a Computerized Patient Record System (CPRS) which allows health
care providers to review and update a patient’s EHR and to place orders and instruct the patient’s
care. Additional initiatives are currently underway allowing veterans to access and create a copy
of their EHR to port those records to institutions outside the VA health system or make their own
Personal Health Record (PHR).
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"To improve the quality of our health care while lowering its cost, we will make the
immediate investments necessary to ensure that, within five years, all of America's medical
records are computerized," President Barack Obama said in a speech on January 8, 2009, at
George Mason University in Fairfax, Va. "This will cut waste, eliminate red tape and reduce
the need to repeat expensive medical tests."
"But it just won't save billions of dollars and thousands of jobs; it will save lives by
reducing the deadly but preventable medical errors that pervade our health-care system,"
he said.
The Open Source Initiative
The Open Source Initiative began with the launch of the Sarah Jane Brain Project in October
2007, when for the first time in medical history all the medical records of an individual were
posted online using open source principals. Sarah Jane Donohue was this first case. The Open
Source Initiative will allow caregivers to opt their children into a first-ever open source database
of neuroinformatics.
The goal of the Open Source Initiative will be to move the field of pediatric neurology 50 years
forward in the next five years by sparking 10,000 PhDs around the world. Whenever someone is
going into the field of medicine, education, public health, they will look around at old, stale data
for their graduate work but then come across this rich database consisting of hundreds of
thousands of medical records in an open source format and decide to choose the field of pediatric
neurology.
The Virtual SJBF Center will not only be used for electronic processes and communication of
electronic medical records, but will also increase other health care informatics such as
telemedicine, consumer health informatics, health knowledge management for professionals,
mHealth and the development of additional Healthcare Information Systems. The development
of a PA/TBI-specific Chronic Disease Management System (CDMS) will allow health care
providers to electronically capture and track specific processes and outcome indicators related to
the child/young adult’s care. This PA/TBI CDMS will be capable of providing reminders,
generating patient-specific reports, create motivation for self-management as well as track
performances and measure effectiveness of treatments.
The SJBP recognizes that many factors outside of the medical record are important to the wellbeing
of the patient. Social issues, financial issues, educational barriers and access to resources
are but a few of the factors that will be incorporated into the information pool. Patients care less
about healthcare records, and more about well-being. The SJBP will provide the PA/TBI
community an ecosystem encompassing all factors important to their well-being.
The Virtual SJBF Center will have customized entry points for patients, their families, clinicians
and researchers. All of these users can enter specifically relevant data. For example, a patient
or guardian may enter information about the patient’s daily routine and self-reported symptoms.
A healthcare provider may enter data about clinical interventions and results. A researcher may
aggregate and analyze the data for new information, or may identify a novel approach to care for
further research. If they desire, any or all of these groups may participate in conversations
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amongst themselves or one another fostering support, new personal knowledge and new clinical
knowledge.
Figure 6: The integration of the data across providers, patients and locations provides a
new and unique resource for addressing PA/TBI.
SJBP Technology Solutions:
Registry Technology for Research Communities
To advance research, creation of a research-specific data registry portal can be accelerated.
Using the registry platform, a typical IRB can be published for data acquisition in 8-10 weeks
with real time reporting of data elements. For example, Communities for a Cure currently is
focused on Multiple Sclerosis (MS) and Parkinson's disease. These communities have more than
50,000 participants enrolled nationwide. With their portals, an advocacy group (currently
MAPRC and NARCOMS) communicate with and collects data from their participants. This
information can be used to identify subjects for study. A researcher can identify specific groups
for study (for example, women of a certain age with a two-year history of MS using fewer than
two medications). These participants can be invited to participate in a trial and contact the
researcher directly. The community can also be contacted with a question; a recent question
asking about smoking and MS received 2,000 responses within 24 hours. These registries are
self-reported by patients, who are invested in finding a cure for their own disease. Registries
have been extensively validated over the last decade.
Registry Technology Supporting Research Databases
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Registry technology has been used at BNI for generation of research data bases. Dr. Spetzler, the
director of the Barrow Neurological Institute, is using a solution for the BRAT database, a large
trial evaluating different treatment options for cerebral aneurysms. Web-hosted registries enable
multi-institutional trials. These solutions have also been extend to Cleveland Clinic (Wingspan
Trial), Hopkins, and GWU.
Automated Outcomes Measures
Particularly for PA/TBI, automated outcomes measures of the child and adolescent's functioning
would likely be of value. There are a variety of types of outcome measures to be advanced and
leveraged for PA/TBI.
Computerized testing technologies, such as ANAM4 (Automated Neuropsychological
Assessment Metrics) and ImPACT (Immediate Postconcussion Assessment and Cognitive
Testing) are examples of possible neuropsychological outcome measures. They can be used as
baseline and post-injury measures for neurocognitive changes that result from neurological
injury. In addition, web-based applications of measures that assess behavioral, social-emotional,
attentional, post-injury symptoms, executive control functions, and quality of life outcomes can
be employed to highlight treatment progress in real-time.
Registries and Repositories for Real-Time Data Analysis
Real-time data analysis will be facilitated through the SJBF Registry and repository technology.
For example, at the BNI, Dr. Spetzler receives updates of his trials (crossovers, complications,
etc.) weekly as an email update with graphical representations of current data. Stryker funded
creation of a registry/repository at BNI for low back pain, providing a common platform for back
pain specialists. This platform allows patients to register and complete a history form online.
The clinical encounter is completed. The patient then receives automated pain scales to evaluate
outcomes (P4P data). The BNI’s Dr. Nicholas Theodore plans to extend this platform to other
providers in his referral network, effectively allowing data exchange across practices. The
referral network may elect integration these data elements into their own EMR via HL7
integration, or alternatively, print the data and add to their chart. In either case, this allows for a
disease or health specific record to be generated across providers. Further, these data elements
could easily be added to or incorporated for study.
Technology Supporting Education and Documentation
Technology can deliver education and documentation, including that related to trauma from child
abuse (NAT) and similar injuries from motor vehicle accidents, falls and sports injuries. The
SJBF Registry will enable practitioners to register cases online (with or without identifiers). The
web portal guides the caregiver through a suggested workup (did you consider ordering this or
that, incorporating related educational pieces, etc.). Online educational methodologies (e.g.
Qube.com) can be tied to real-time reporting for surveillance and follow up. The practitioner can
be sent a message reporting outcomes measures and enabling analysis of what measures assisted
in the evaluation. A patient-centered ecosystem incorporating all aspects of the care cycle can be
used for long-term study, from initial event detection to first hospitalization and on through
clinical follow up and home care.
Summary
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Many technologies should be applied to PA/TBI. Fundamental to all of them is data
interoperability. The platform will enable data exchange between these future additional
solutions. Key features to success are:
1. Real-time reporting
2. Messaging, allowing the community to be tied together in a relationship
3. Web hosting
4. Personalized content delivery
To dramatically change PA/TBI for patients, providers and researchers, the full power of
technology must be leveraged. Data management, communications, outcomes measures and
education are among the technologies enabled by the SJBP. Millions of children will benefit
from this process, and hundreds of thousands of care providers will be empowered as well.
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CHAPTER 10: Organizational Structure
National Structure to implement the National PABI Plan
The mission of the PABI Plan is to develop a “seamless, standardized, evidence-based system of
care universally accessible for all children/young adults and their families regardless of where
they live in the nation.” The first step in developing a PA/TBI Model System to fulfill this
mission is to create a national structure which provides complete national coverage with the
ability to standardize the system of care while still providing the flexibility for each state to have
its own pathway to universal accessibility. This network of 52 institutions will serve as State
Lead Centers of Excellence, one for each state plus the District of Columbia and Puerto Rico. In
order to achieve the goals as outlined in the PABI Plan, each State Lead Center has collaboration
experience, case management experience and a strong understanding of the existing structures
within their state.
SJBF organized a seven-person Center Selection and Support Committee (CSS), made up of
leading experts in the field of pediatric brain injury, one Member from each region, to develop
the application process and review and approve the applicants to become a State Lead Center.
SJBF will maintain this CSS Committee as oversight of the overall grant and this committee will
be responsible for creating quarterly reports to our federal partners as well as to Congress and the
public.
Each State Lead Center has certain essential, desirable and optional capabilities with the main
responsibility to develop and implement a Statewide Master Plan to accomplish the goals and
premises as outlined in the PABI Plan for their entire state. They will work through and within
the existing structures within their state, while helping to build the capacity of these structures to
provide complete coverage to these children/young adults and their families. We will not
duplicate current services and create further fragmentation within each state.
Part of each State Lead Center’s Master Plan for their state will be providing a specialized case
management system for the children/young adults and their families. Once a PA/TBI is
diagnosed in their state, the State Lead Center will “attach” themselves to the families and never
let go unless they move to another state, and then the State Lead Centers in both the original state
and the destination state will collaborate to ensure a seamless transition for that family from one
location to the next. These SJBF Specialists will be highly trained case managers who
understand the needs of PA/TBI families and have a great understanding of the services offered
in their state.
There will be different Levels of designation for institutions and organizations throughout each
state based upon their capabilities and experience. For example, each State Lead Center will also
need to serve as a Level 1 SJBF Center with a dozen SJB Family specialists, a Field Specialist
for educational training capabilities and a Center Manager with administrative support for a
specific geographic/demographic range. A Level 2 SJBF Center will have fewer capabilities (six
SJB Family Specialists, a Field Specialist and no administrative support) and a Level 3 SJBF
Center will have even fewer capabilities (three SJB Family Specialists only). As an example,
Texas’ Master Plan has five Level 1 SJB Family Centers (Austin, Dallas, Houston, El Paso and
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San Antonio) an additional eight Level 2 SJB Family Centers in smaller communities and four
Level 3 SJB Family Centers in rural parts of their state, whereas Kansas has only two Level 1
SJB Family Centers (Kansas City and Wichita), four Level 2 SJB Family Centers operating in
smaller communities throughout their state and no Level 3 SJB Family Centers.
In order to encourage increased regional collaboration, the country was divided into seven
Regions with seven or eight states/territories for each Region.
Northeast Region: Connecticut, Maine, Massachusetts, New Hampshire, New York, Rhode
Island, Vermont
Mid-Atlantic Region: Delaware, District of Columbia, Maryland, New Jersey, Pennsylvania,
Virginia, West Virginia
Southeast Region: Alabama, Florida, Georgia, Mississippi, North Carolina, Puerto Rico, South
Carolina, Tennessee
Mid-Central Region: Illinois, Indiana, Iowa, Kentucky, Michigan, Minnesota, Ohio, Wisconsin
South-Central Region: Arkansas, Kansas, Louisiana, Missouri, New Mexico, Oklahoma, Texas
Rocky Mountain Region: Colorado, Idaho, Montana, Nebraska, North Dakota, South Dakota,
Utah, Wyoming
Pacific Region: Alaska, Arizona, California, Hawaii, Nevada, Oregon, Washington
In addition, within each Region, one of the State Lead Centers will have a leadership role in one
of the seven Categories of Care with the purpose of establishing a standard collection of
translational data, a standard set of training, education and dissemination of information and the
ability to monitor and develop scientific investigative research within each Category of Care.
There will also be one State Lead Center within each Region which will serve as the National
Lead Center for each Category of Care (see detailed breakdown below). The National Lead
Centers will also serve as the coordinating Regional Lead organization within their respective
regions.
The seven Categories of Care and their respective State Lead Centers are:
1) Prevention (of all types of PA/TBI)
Northeast Region: Massachusetts – National Lead Center
Mid-Atlantic Region: Delaware
Southeast Region: Georgia
Mid-Central Region: Wisconsin
South-Central Region: Arkansas
Rocky Mountain Region: Wyoming
Pacific Region: Alaska
2) Acute Phase (time of accident/diagnosis through completion of formal inpatient rehab care)
Northeast Region: New Hampshire
Mid-Atlantic Region: Pennsylvania
Southeast Region: Florida – National Lead Center
Mid-Central Region: Indiana
South-Central Region: New Mexico
Rocky Mountain Region: Utah
Pacific Region: California
3) Reintegration / Long-term care (post-discharge, home, community and school-based care)
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Northeast Region: New York
Mid-Atlantic Region: Maryland
Southeast Region: North Carolina
Mid-Central Region: Ohio
South-Central Region: Kansas
Rocky Mountain Region: Nebraska
Pacific Region: Oregon – National Lead Center
4) Adult Transition (post-discharge, 16-25 years of age transitioning into adult system of care)
Northeast Region: Connecticut
Mid-Atlantic Region: New Jersey
Southeast Region: Alabama
Mid-Central Region: Iowa
South-Central Region: Oklahoma
Rocky Mountain Region: Colorado – National Lead Center
Rocky Mountain Region: North Dakota
Pacific Region: Nevada
5) Mild TBI Assessment / Treatment
Northeast Region: Vermont
Mid-Atlantic Region: District of Columbia – National Lead Center
Southeast Region: Tennessee
Mid-Central Region: Minnesota
South-Central Region: Missouri
Rocky Mountain Region: South Dakota
Pacific Region: Hawaii
6) Rural / Telehealth (technology, distance healthcare and delivery of services)
Northeast Region: Maine
Mid-Atlantic Region: West Virginia
Southeast Region: Mississippi
Mid-Central Region: Illinois – National Lead Center
Mid-Central Region: Kentucky
South-Central Region: Louisiana
Rocky Mountain Region: Montana
Pacific Region: Washington
7) The Virtual SJBF Center (family registry, electronic medical records and healthcare IT)
Northeast Region: Rhode Island
Mid-Atlantic Region: Virginia
Southeast Region: South Carolina
Southeast Region: Puerto Rico
Mid-Central Region: Michigan
South-Central Region: Texas – National Lead Center
Rocky Mountain Region: Idaho
Pacific Region: Arizona
The State Lead Center Organization Chart
Each State Lead Center will have a standard staffing organization beginning with the Program
Director who will oversee the operation of the State Lead Center and ensure the mission of the
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PABI Plan is being fulfilled by providing support and advice to the State Director who will be
responsible for the day-to-day management of the State Lead Center. The staffing organization
is broken up into the three main responsibilities for each center: developing a Statewide Master
Plan and Statewide Coordination, the Category of Care Responsibility and Case Management
Responsibility.
STAFFING FOR STATEWIDE COORDINATION
Each State Lead Center will be developing and implementing a Statewide Master Plan to create a
seamless, standardized, evidenced-based system of care universally accessible for all
children/young adults and their families regardless of where they live in their state.
Program Director: primary role in overseeing the operation of the State Lead Center and
ensuring the mission of the PABI Plan is being fulfilled by providing support and advice to the
State Director; will be responsible for reporting to CSS Committee of SJBP about activities and
accomplishments of the State Lead Center
Program Director Assistant: full-time administrative support for the Program Director
State Director: responsible for day-to-day management, operations and performance of the State
Lead Center reporting to the Program Director including
Associate State Director: assist State Director in maintaining budget, creating and editing
reports to Program Director and CSS Committee on State Director’s behalf.
State Epidemiologist: primary task will be to integrate the acquisition and analysis of critical
observational data elements relevant for pediatric acquired brain injury characterization and
outcome determination across entire continuum of care as determined by each Category of Care
Epidemiologists; these types of data will potentially include physiological variables, laboratory
studies, genetic profiles, neuroimaging, patient symptom lists, neuropsychological test results,
global outcome measures and patient/caregiver questionnaires and be centered on accurate and
detailed description of the injury and functional recovery, rather than on any predetermined
hypothesis; these data will require new methods of selection, acquisition, validation and analysis
and will benefit from large numbers of participants throughout the national network;
State Epidemiologist Assistant: graduate student studying epidemiology or similar field to
assist the State Epidemiologist
State Scientific Investigation Research Coordinator: primary responsibility will be to
facilitate interaction and exchange of clinical, translational (bench-to-bedside) and basic science
research ideas and protocols between centers and disciplines across entire continuum of care.
Research areas would include but not be limited to emergency and critical care, clinical
neuroscience, translational, basic neurobiology, biomechanics, neuroengineering and
nanotechnology, epidemiology and biobehavioral.
State Scientific Investigation Research Assistant: graduate student studying scientific
investigation methods to assist the State Scientific Investigation Research Coordinator
State Education/Training Coordinator (plus materials): primary responsibility will be to
oversee programs designed to improve educational services and training to improve the capacity
of community agencies to provide services and support to children/young adults and their
families including working with all of their state’s Field Specialists; they will have an additional
budget based upon the population of their state to implement these services and programs
State General Counsel: definition of general counsel; HIPAA and state and federal regulations
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State IT Manager: primary responsibility will be to manage the technology, communications
and other IT systems for the State Lead Center and entire statewide operations
State Family Support Coordinator: responsible educating and training SJB Family Specialists
around the needs of PABI families, parents, caregivers, siblings and other family members and
involving these family members in the Sarah Jane Brain Project
State Prevention/Awareness Coordinator: primary responsibility to support State
Epidemiologist in collecting translational data for Prevention, support State Education/training
Coordinator around prevention efforts, and support State Scientific Investigation Research
Coordinator to monitor and develop research around Prevention; this person will also work with
existing organizations to raise awareness of prevention efforts statewide
State Acute Care Coordinator: primary responsibility to support State Epidemiologist in
collecting translational data for the Acute phase of care, support State Education/training
Coordinator around the Acute phase, and support State Scientific Investigation Research
Coordinator to monitor and develop research around the Acute phase
State Reintegration Coordinator: primary responsibility to support State Epidemiologist in
collecting translational data for the Reintegration phase of care, support State Education/training
Coordinator around the Reintegration phase, and support State Scientific Investigation Research
Coordinator to monitor and develop research around the Reintegration phase
State Adult Transition Coordinator: primary responsibility to support State Epidemiologist in
collecting translational data for the Adult Transition phase of care, support State
Education/training Coordinator around the Adult Transition, and support State Scientific
Investigation Research Coordinator to monitor and develop research around the Adult Transition
State Mild TBI Coordinator: primary responsibility to support State Epidemiologist in
collecting translational data for the Mild TBI Category of Care, support State Education/training
Coordinator around Mild TBI, and support State Scientific Investigation Research Coordinator to
monitor and develop research around Mild TBI
State Mental Health Coordinator: primarily responsible for educating and training SJB Family
Specialists around mental health services and systems of support for entire PABI family as well
as being a direct resource for staff and PABI families surrounding mental health services for
their state
State Assistive/Emerging Technology Coordinator: primarily responsible for educating and
training SJB Family Specialists around assistive and emerging technologies for acquisition and
proper functional usage of these tools as well as being a direct resource for staff and PABI
families surrounding any assistive and emerging technologies
State Correctional System Coordinator: primarily responsible for outreach to young adults in
the juvenile delinquency system for screening for potential PABI as well as working with law
enforcement on prevention and awareness issues around PABI
State MISC Coordinator: each state has a staff person that is unique to their particular state
(i.e., Texas needs a bi-lingual coordinator for their growing Hispanic population while Montana
needs a Native American coordinator for their large population on reservations)
State Veterans Coordinator: with more than half of our veterans returning from Iraq and
Afghanistan with traumatic brain injury under 25 years of age, the primary responsibility will be
outreach to these young veterans and their families ensuring they are receiving the care and
support they need and deserve.
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State Data Manager: primary responsibility will be to assist the State Lead Center employees
with integration of data with The Virtual SJBF Center as well as overall help desk for general
computer problems.
State Public Policy Manager: primary responsibility will be to monitor all local and state rules,
regulations, laws and judicial decisions affecting PABI families, including but not limited to
Medicaid, school IEP procedures and health insurance regulations.
State Community Relations Manager: primary responsibility will be to connect the mission of
SJBP to the communities-at-large by making presentations, ?????
State Administrative Support: general office clerical and administrative support services.
Charity care: each State Lead Center will be able to provide certain services to populations who
have very limited resources or access to these services; decisions about the type of service will
be made by each State Lead Center based on the needs of their state.
Human Resources Support: each State Lead Center will be screening and hiring applicants as
well as processing their benefits; we allocated $1,000 per employee which each State Lead
Center determining the best method for implementing (i.e., some State Lead Centers will handle
this within their primary institutions while some will hire HR personnel).
Training Support: we allocated $250 per employee for orientation and training for new
employees.
Other costs associated with each State Lead Center included in the itemized budget are:
State Lead Center Office Space Cost; State Lead Center Transportation/Travel; State Lead
Center Office Equipment/Communications; State Lead Center Supplies; Annual and Regional
Conferences
State Brain Injury Association Pediatric Programs: each State Lead Center is allocated an
amount to be directed to their respective state Brain Injury Association to develop programs for
the pediatric brain injury community (for those states where a Brain Injury Association does not
exist, the funds will be used to establish one with an emphasis on the pediatric brain injury
community)
STAFFING FOR REGIONAL/NATIONAL CATEGORY OF CARE RESPONSIBILITY
Each State Lead Center will be responsible for continuity and standardization of translational
data collection, dissemination of education/training and monitoring basic science research for
ONE Category of Care for their region (one State Lead Center will also serve as the National
Lead Center for each specific Category of Care)
National Category Director: this person will be responsible for leading the collaboration with
all their respective Category of Care State Lead Centers to make final decisions about the
translational data collected, the standardization of education and training surrounding the
Category of Care and monitoring, encouraging and creating scientific investigative research for
their Category of Care; (this position will only be in the seven National Lead Centers)
National Category Epidemiologist: this person will be responsible for leading the collaboration
with all their respective Category of Care State Lead Centers to implement the collection of
79

translational data for their Category of Care; (this position will only be in the seven National
Lead Centers)
National Category Education/Training Coordinator: this person will be responsible for
leading the collaboration with all their respective Category of Care State Lead Centers to
standardize the education and training surrounding the Category of Care; (this position will only
be in the seven National Lead Centers)
National Category Scientific Investigation Research: this person will be responsible for
leading the collaboration with all their respective Category of Care State Lead Centers to
monitor, encourage and create scientific investigative research for their Category of Care; (this
position will only be in the seven National Lead Centers)
National Category Additional Staffing positions: some Categories of Care will need additional
specific leadership positions that are unique to their Category; (these positions will only be in the
seven National Lead Centers)
Prevention Category: National Intentional Head Injury Prevention Coordinator,
National Unintentional Head Injury Prevention Coordinator, and National non-Traumatic
Acquired Brain Injury Prevention Coordinator
Acute Category: National Acute Category Assistant Director
Reintegration Category: National Assistive/Emerging Technology Director
Adult Transition Category: National Veteran Coordinator
Virtual SJBF Center: National Database Manager; National Content Manager; National
Help Desk Support Manager; National Business Development Manager; National HIPAA
Compliance Officer
National Additional Technology: some Categories of Care will need additional technology,
hardware, software or capital spending unique to their Category
Mild TBI Category: development of Mild TBI assessment tools and technology
Rural/Tele-medicine: strategic telemedicine and telecommunication technologies to
certain states
Virtual SJBF Center: Development of SJBF Registry and Personal Health/Education
Records Portal and Open Source Initiative
Regional Category Director: this person will be responsible for leading and managing the
collaboration for their entire region for their respective Category of Care State Lead Centers and
assist in making final decisions about the translational data collected, the standardization of
education and training surrounding the Category of Care and monitoring, encouraging and
creating scientific investigative research for their Category of Care
Regional Category Epidemiologist: this person will be responsible for leading and managing
the collection of translational data for their entire region for their respective Category of Care
Regional Category Education/Training Coordinator: this person will be responsible for
leading and managing the standardization of education and training for their entire region for
their respective Category of Care
Regional Category Scientific Investigation Research: this person will be responsible for
leading the collaboration with all their respective Category of Care State Lead Centers to
monitor, encourage and create scientific investigative research for their Category of Care; this
person will be responsible for leading and managing the efforts to monitor, encourage and create
scientific investigative research for their entire region for their respective Category of Care
80

Regional Category Additional Staffing positions: some Categories of Care will need
additional specific leadership positions that are unique to their Category
Reintegration Category: Regional Assistive/Emerging Technology Coordinator
Adult Transition Category: Regional Veteran Coordinator
Virtual SJBF Center: Regional Business Development Managers
Regional Additional Technology: some Categories of Care will need additional technology,
hardware, software or capital spending unique to their Category
Mild TBI Category: School and ED-based Mild TBI assessment tools (approximately
150 per region)
Rural/Tele-medicine: Develop high-level communications platform for region
Regional Category Administrative Support: general clerical and administrative support for the
Category of Care staff
Other costs associated with each Category of Care included in the itemized budget are:
Regional Category Office Space Cost; Regional Category Transportation/Travel; Regional
Category Office Equipment/Communications; Regional Category Supplies
STAFFING FOR CASE MANAGEMENT RESPONSIBILITY
Each State Lead Center will also serve as a SJB Family Level 1 Center for case management. To
serve as a Level 1 Center each institution must be able to manage a specialized case management
system for the children/young adults and their families (this would be the staffing for all Level 1
Centers within each state to cover a certain geographic region/demographic population). A
Level 1 Center will have a Center Manager, a Field Specialist, a dozen SJB Family Specialists,
administrative support and office space. A Level 2 Center will have a Field Specialist, six SJB
Family Specialists without any administrative support or office space. A Level 3 Center will
only have three SJB Family Specialists. Both Level 2 and Level 3 Centers will be managed by
the Center Manager within their region.
Center Manager – responsible for specific geographic coverage area by managing the Field
Specialists and all SJB Family Specialists within coverage area
Field Specialist – responsible for education and training within coverage area and assisting the
SJB Family Specialists with students and families when the student reaches age 16 and continues
until age 25 for transition-related issues
Sarah Jane Brain Family Specialists – responsible for serving as highly-trained case managers
for the child/young adult and their families as soon as a PA/TBI is diagnosed and working to
make sure they receive the services
Additional itemized budget items for the Case Management Responsibility include
Transportation/Travel; Office Equipment/Communications; Supplies
A profile for each State Lead Center is attached which provides contact and biographical
information for each Program Director, an overview of the funds that State Lead Center will be
receiving as well as an itemized breakdown of the costs associated with each position and line
item described above.
81

CHAPTER 11: Financing the PABI Plan
BUDGETS AND FINANCING
There is no single Federal Department or Agency within a Department solely responsible for the
system of care for the millions of children and young adults suffering with a brain injury.
Therefore, this is a multi-Department unsolicited grant proposal to the following Departments
which have partial jurisdiction and responsibility (with some considerable overlap):
Department of Education
Department of Health and Human Services
Department of Veterans Affairs
Department of Transportation
Department of Justice
Department of Housing and Urban Development
This grant proposal is requesting the funds be allocated by each Department according to the
American Recovery and Reinvestment Act (ARRA) based upon an internal analysis by each
Department corresponding to their respective jurisdiction within implementing the PABI Plan.
This grant proposal accomplishes many of the goals set by ARRA:
1) Creating over 6,000 jobs in across every state and territory
2) Converting a large group of Americans with numerous and complex medical
conditions into an electronic health record system, which will reduce medical
errors, save billions in health care costs, and allow millions of families to learn
from each other’s experiences
3) Provide relief and support to millions of families who are managing their child’s
health and education needs through a very byzantine system, many of these
families are in low-income and vulnerable households
4) Using comparative effectiveness research, we will improve the health of these
millions of children and young adults, improve the health of communities and the
performance of the health system by conducting, supporting and synthesizing
research that compares the clinical outcomes, effectiveness and appropriateness of
items, services and procedures that are used to prevent, diagnose and treat the #1
leading cause of death and disability for children and young adults in the nation –
brain injuries
5) Develop the largest clinical and self-reporting registry and the largest “open
source” database in the world of medical and education records to advance the
field of pediatric neurology and other related areas
6) Develop and expand prevention efforts
7) Developing and implementing a nationwide, comprehensive, coordinated
multidisciplinary, interagency system to provide early intervention services and to
improve outcomes, train, educate and support families and professionals during
this crucial time period
8) Develop and implement effective adult transition programs to support individuals
with significant disabilities by maximizing their leadership, empowerment,

9) Improve information technology systems to deliver benefits and services to our
younger Veteran population who sustained a brain injury due to blast during war
before they turned 25 years of age (while their brain was still in its developmental
stage) while at the same time create additional support systems for the families of
these young wounded warriors
10) Whether it is through prevention of abusive head trauma/child abuse or helping to
identify the young adults currently in our juvenile delinquency system with an
undiagnosed and untreated brain injury, there is considerable correlation with the
Department of Justice goals
The prioritization of the comparative effectiveness research and investments were outlined as:
1) Potential impact: based on prevalence of condition, burden of disease, variability
in outcomes, costs potential for increased patient benefits or decreased harm
2) Potential to evaluate comparative effectiveness in diverse populations and patient
sub-groups and engage communities in research
3) Addresses need or gap unlikely to be addressed through other organizations
4) Potential for multiplicative effect (e.g., lays foundation for future CER such as
data infrastructure and methods development and training and generating
additional investment outside government)
Without question, this grant proposal addresses each of these priorities and it would be extremely
difficult for someone to make the case that there is a better proposal to address each of these
priorities.
As outlined above, the seven National Lead Centers will begin hiring and training their State
Lead Center Management and Category of Care personnel during the first quarter of this project
(allowing up to six months to complete this task). The remaining 45 State Lead Centers will
begin hiring and training their State Lead Center Management and Category of Care personnel
during the second quarter of this project (also allowing up to six months to complete this task).
The National Lead Centers will begin hiring and training their Level 1 Center personnel by the
third quarter (or sooner if the first task is accomplished early) and will have twelve months to
have their Level 1 Centers fully operational. The remaining 45 State Lead Centers will begin
hiring and training their Level 1 personnel by the fourth quarter (or sooner if the first task is
accomplished early). The National Lead Centers will begin hiring and training their Level 2
Center personnel by the fourth quarter with nine months allocated to accomplish this task and
will begin hiring and training their Level 3 Center personnel by the fifth quarter with six months
allocated to accomplish this task (or sooner if they are ahead of schedule). The remaining 45
State Lead Centers will be expected to begin their Level 2 and Level 3 hiring and training no
later than the fifth and sixth quarter respectively. This staggered roll-out will allow for the seven
National Lead Centers to work out any problems ahead of time and share their experiences with
the remaining 45 State Lead Centers.
The entire grant proposal is approximately $930 million (a detailed spreadsheet with a
breakdown of each State Lead Center and its itemized staffing and other costs is attached). The
average amount directed to each State Lead Center for this two-year project is $18 million and
the variations are based upon population, cost of living and Category of Care responsibilities
(National Lead Centers have additional staffing and direct responsibility for some of the specific
83

projects, a smaller state will have fewer SJB Family Specialists and another state may have a
higher than average cost of living or fringe rate).
The funds will be distributed to each State Lead Center directly. Each organization serving as a
State Lead Center has agreed to keep all indirect costs as a percentage of the overall budget to a
maximum allowable percentage of 20%. There will be a 2% administrative fee to the Sarah Jane
Brain Foundation for management of the entire national system. The Sarah Jane Brain
Foundation will be responsible for the coordination and implementation of the grant and will
provide quarterly reports on the activities and accomplishments for all 52 State Lead Centers.
84

CHAPTER 12: Summary of PABI Grant Proposal along with Assumptions for Budget
Here is a summary of the PABI Grant proposal budget along with the baseline annual salaries for each
position and the formulas for other line items.
In addition, attached is a breakdown by state of the variable assumptions:
• % of average salary vs. U.S. average
• the number of Level 1,2 and 3 Centers per state
• % fringe rate for benefits per state
Number of Level 1 Centers nationwide: 130
Number of Level 2 Centers nationwide: 176
Number of Level 3 Centers nationwide: 155
Total number of jobs PABI Grant directly creates in United States: 6,150
Budget Overview for PABI Grant
State Lead Center Management Sub-total: $ 324,126,920
Category of Care Management Sub-total: $ 150,445,553
Case Management Sub-total: $ 285,992,508
State Lead Center Sub-total: $ 762,228,981
Indirect Cost to Institution (20%): $ 152,445,796
Administrative Cost to SJBF (2%): $ 15,244,580
TOTAL AMOUNT OF PABI GRANT PROPOSAL: $ 929,919,357
85

Summary of PABI Grant Proposal continued
Title/Description Base Annual Amount for PABI Grant
STATE LEAD CENTER MANAGEMENT
Program Director: varies
Program Director Assistant: $ 45,000
State Director: $ 150,000
Associate State Director: $ 65,000
State Epidemiologist: $ 100,000
State Epidemiologist Assistant: $ 45,000
State Scientific Investigation Research Coordinator: $ 85,000
State Scientific Investigation Research Assistant: $ 45,000
State Education/Training Coordinator (plus materials): $ 85,000+$80,000
State General Counsel: $ 120,000
State IT Manager: $ 95,000
State Family Support Coordinator: $ 75,000
State Prevention/Awareness Coordinator: $ 75,000
State Acute Care Coordinator: $ 75,000
State Reintegration Coordinator: $ 75,000
State Adult Transition Coordinator: $ 75,000
State Mild TBI Coordinator: $ 75,000
State Mental Health Coordinator: $ 65,000
State Assistive/Emerging Technology Coordinator: $ 65,000
State Correctional System Coordinator: $ 65,000
State MISC Coordinator: $ 65,000
State Veterans Coordinator: $ 65,000
State Data Manager: $ 65,000
State Public Policy Manager: $ 75,000
State Community Relations Manager: $ 65,000
State Administrative Support: $ 45,000 per employee
Charity care: $ 200,000
Human Resources Support: $1,000 per employee
Training Support: $ 250 per employee
State Lead Center Office Space Cost: $ 31 sq/ft
State Lead Center Transportation/Travel: $ 200 per round trip visit
State Lead Center Office Equipment/Communications: center + employee calculation
State Lead Center Supplies: $ 2,000 per employee
Annual and Regional Conferences: $ 16,000
State Brain Injury Association Pediatric Programs: $ 100,000
86

Summary of Grant Proposal continued
Title/Description Base Annual Amount for PABI Grant
CATEGORY OF CARE RESPONSIBILITY: Acute Phase
National Category Director: $ 180,000
National Category Epidemiologist: $ 150,000
National Category Education/Training Coordinator: $ 120,000
National Category Scientific Investigation Research: $ 120,000
Regional Category Director: $ 150,000
Regional Category Epidemiologist: $ 120,000
Regional Category Education/Training Coordinator: $ 100,000
Regional Category Scientific Investigation Research: $ 100,000
Regional Category Administrative Support: $ 45,000 per employee
Regional Category Office Space Cost: $ 31 sq/ft
Regional Category Transportation/Travel: $ 750 per round trip visit
Regional Category Office Equipment/Communications: office + employee calculation
Regional Category Supplies: $ 2,000 per employee
CASE MANAGEMENT RESPONSIBILITY
Level 1 Center Manager(s): $ 100,000
Center Field Specialist(s): $ 80,000
Center SJB Family Specialist(s): $ 65,000
Center Administrative Support: $ 45,000
Level 1 Office Space Cost: $ 31 sq/ft
Level 1 Transportation/Travel: $ 200 per roundtrip visit
Level 1 Office Equipment/Communications: center and employee variables
Level 1 Supplies: $ 2,000 per employee
87

Sarah Jane Brain Family State Lead Center of Excellence
For the state of
Alabama
The University of Alabama at Birmingham / The Children's Hospital of Alabama
www.uab.edu
REGION: Southeast CATEGORY OF CARE: Adult Transition
Program Director: Richard Drew Davis, MD Position Title: Assistant Professor
Department: Department of Pediatrics Major Subdivision: Division of Pediatric
Rehabilitation Medicine
Address: 1600 7th Avenue South, ACC 406, Birmingham, AL 35233
Phone: 205‐939‐9790
Email: ddavis@peds.uab.edu
Level 1 Center(s): Birmingham
Level 2 Center(s): Huntsville, Mobile
Level 3 Center(s): Montgomery, Dothan
Number of jobs PABI Grant creates in Alabama: 84
Budget Overview for State Lead Center
State Lead Center Management Sub‐total: $ 5,580,228
Category of Care Management Sub‐total: $ 1,642,744
Case Management Sub‐total: $ 2,098,851
State Lead Center Sub‐total: $ 9,353,824
Indirect Cost to Institution (20%): $ 1,870,765
Administrative Cost to SJBF (2%): $ 187,076
SUB‐TOTAL AMOUNT OF GRANT PROPOSAL: $ 11,411,665

The University of Alabama at Birmingham / The Children's Hospital of Alabama Profile continued
Title/Description Sub‐total Amount for Grant
STATE LEAD CENTER MANAGEMENT
Program Director: $ 229,250
Program Director Assistant: $ 87,446
State Director: $ 291,486
Associate State Director: $ 126,310
State Epidemiologist: $ 194,324
State Epidemiologist Assistant: $ 87,446
State Scientific Investigation Research Coordinator: $ 165,175
State Scientific Investigation Research Assistant: $ 165,175
State Education/Training Coordinator (plus materials): $ 275,361
State General Counsel: $ 233,188
State IT Manager: $ 184,608
State Family Support Coordinator: $ 145,743
State Prevention/Awareness Coordinator: $ 145,743
State Acute Care Coordinator: $ 145,743
State Reintegration Coordinator: $ 145,743
State Adult Transition Coordinator: $ 145,743
State Mild TBI Coordinator: $ 145,743
State Mental Health Coordinator: $ 126,310
State Assistive/Emerging Technology Coordinator: $ 126,310
State Correctional System Coordinator: $ 126,310
State MISC Coordinator: $ 126,310
State Veterans Coordinator: $ 126,310
State Data Manager: $ 126,310
State Public Policy Manager: $ 145,743
State Community Relations Manager: $ 126,310
State Administrative Support: $ 524,674
Charity care: $ 296,677
Human Resources Support: $ 84,000
Training Support: $ 21,000
State Lead Center Office Space Cost: $ 285,107
State Lead Center Transportation/Travel: $ 96,123
State Lead Center Office Equipment/Communications: $ 197,500
State Lead Center Supplies: $ 91,970
Annual and Regional Conferences: $ 32,000
State Brain Injury Association Pediatric Programs: $ 84,765
STATE LEAD CENTER MANAGEMENT SUB‐TOTAL: $ 5,580,228

The University of Alabama at Birmingham / The Children's Hospital of Alabama Profile continued
Title/Description Sub‐total Amount for Grant
CATEGORY OF CARE RESPONSIBILITY: Adult Transition
Regional Category Director: $ 291,486
Regional Category Epidemiologist: $ 233,188
Regional Category Education/Training Coordinator: $ 194,324
Regional Category Scientific Investigation Research: $ 194,324
Regional Additional (Regional Veteran Coordinator): $ 194,324
Regional Category Administrative Support: $ 349,783
Regional Category Office Space Cost: $ 82,773
Regional Category Transportation/Travel: $ 157,500
Regional Category Office Equipment/Communications: $ 27,900
Regional Category Supplies: $ 26,701
CATEGORY OF CARE SUB‐TOTAL: $ 1,642,744

The University of Alabama at Birmingham / The Children's Hospital of Alabama Profile continued
Title/Description Sub‐total Amount for Grant
CASE MANAGEMENT RESPONSIBILITY
Level 1 Center Manager(s): $ 138,803
Level 1 Center Field Specialist(s): $ 111,042
Level 1 Center SJB Family Specialist(s): $ 757,863
Level 1 Center Administrative Support: $ 124,922
Level 1 Office Space Cost: $ 44,502
Level 1 Transportation/Travel: $ 27,214
Level 1 Office Equipment/Communications: $ 33,800
Level 1 Supplies: $ 50,859
Level 2 Center Field Specialist(s): $ 133,251
Level 2 Center SJB Family Specialist(s): $ 433,064
Level 2 Transportation/Travel: $ 15,566
Level 2 Office Equipment/Communications: $ 26,600
Level 2 Supplies: $ 17,801
Level 3 Center SJB Family Specialist(s): $ 162,399
Level 3 Transportation/Travel: $ 4,680
Level 3 Office Equipment/Communications: $ 11,400
Level 3 Supplies: $ 5,086
CASE MANAGEMENT SUB‐TOTAL: $ 2,098,851
STATE LEAD CENTER SUB‐TOTAL: $ 9,353,824
INDIRECT COST TO INSTITUTION: $ 1,870,765
ADMINISTRATIVE FEE TO SJBF: $ 187,076
STATE LEAD CENTER SUB‐TOTAL: $ 11,411,665
TOTAL JOBS CREATED IN Alabama: 84

h Principal Investigator/Program Director (Last, first, middle):
NAME
Richard Drew Davis, MD
BIOGRAPHICAL SKETCH
Provide the following information for the key personnel in the order listed for Form Page 2.
Follow this format for each person. DO NOT EXCEED FOUR PAGES.
POSITION TITLE
Assistant Professor
EDUCATION/TRAINING (Begin with baccalaureate or other initial professional education, such as nursing, and include postdoctoral training.)
INSTITUTION AND LOCATION
DEGREE
(if applicable)
YEAR(s) FIELD OF STUDY
Auburn University, Auburn, Alabama BS 1992 – 1995 Zoology
University of Alabama School of Medicine,
Birmingham, Alabama
MD 1996 – 2000 Medicine
A. Positions and Honors.
2000 – 2001 Family Practice Internship, University of Alabama, College of Community Health
Sciences, Tuscaloosa, Alabama
2001 – 2004 Physical Medicine and Rehabilitation Resident, University of Alabama at Birmingham,
Birmingham, Alabama
2003 – 2004 Chief Resident, Department of Physical Medicine and Rehabilitation, University of
Alabama at Birmingham, Birmingham, Alabama
2004 – 2005 Pediatric Rehabilitation Medicine Fellow, University of Alabama at Birmingham,
Birmingham, Alabama
2005-present Assistant Professor, University of Alabama at Birmingham, Birmingham, Alabama
2005-present Active Staff, Children’s Hospital of Alabama, Birmingham, Alabama
2005-present Attending Physician, Pediatric Rehabilitation Medicine Inpatient and Consult Service,
Children’s Hospital, Birmingham, Alabama
2005-present Attending Physician, Pediatric Rehabilitation Medicine Clinic, Children’s Hospital,
Birmingham, Alabama
2005-present Attending Physician, Pediatric Multidisciplinary Muscular Dystrophy Association
Clinic, Children’s Hospital, Birmingham, Alabama
2005-present Attending Physician, Pediatric Multidisciplinary Spina Bifida Clinic, Children’s
Hospital, Birmingham, Alabama
2005-present Medical Director, Children’s Health Systems Early Intervention Services
2007-present Director of Rehabilitation Medicine, Children’s Hospital, Birmingham, Alabama
B. Selected peer-reviewed publications (in chronological order).
Tubbs RS, Law C, Davis D, Shoja M, Acakpo-Satchivi L, Wellons JC, Blount JP, Oakes J. Scheduled oral
analgesics and the need for opiates in children following partial dorsal rhizotomy. J Neurosurg, 2007 Jun;106(6
Suppl):439-40.
Books and Book Chapters
Law C, Davis RD. Rehabilitation Concepts in Myelomeningocele and Other Spinal Dysraphisms,
Physical Medicine & Rehabilitation, Third Edition, W.B. Saunders Company. 2007
C. Research Support. List selected ongoing or completed (during the last three years) research projects
(federal and non-federal support). Begin with the projects that are most relevant to the research proposed in
this application. Briefly indicate the overall goals of the projects and responsibilities of principal investigator
identified above.
PHS 398/2590 (Rev. 05/01) Page _______ Biographical Sketch Format Page
Number pages consecutively at the bottom throughout the application. Do not use suffixes such as 3a, 3b.

h Principal Investigator/Program Director (Last, first, middle):
Current Research Support
Kaul Pediatric Research Institute
Remodeling the Damaged Immature Brain by Pediatric CI Therapy
The purpose of this trial is to determine what changes may be occurring in the grey and white matter of the
brain of children who have undergone constraint-induced movement therapy.
Role: Principal Investigator
ACQUIREc Therapy Gift Account
A Multi-Site Trial for ACQUIREc Therapy
The purpose of this trial is to establish a multi-site collaboration that can build and demonstrate capacity to
conduct a rigorous program of research related to ACQUIREc therapy and other aspects of pediatric
constraint-induced movement therapy.
Role: Co-Investigator and Medical Supervisor
Boyd Foundation
Team ACES (Advocacy, Creative Coping, Education, and Support) intervention for school-aged children newly
diagnosed with leukemia
The purpose of this project is to use exercise to increase healthy behaviors in pediatric leukemia patients.
Role: Co-Investigator
Alabama Council for Developmental Disabilities
Using the iPhone Software Development Kit (SDK) to create universally designed programs to enhance
communication, mobility, and environmental control for individuals with disabilities
The purpose of this project is to gather consumer input and develop a proof-of-concept prototypes using the
iPhone SDK to address communication, mobility, and environmental control for individuals with disabilities.
Role: Collaborator
PHS 398/2590 (Rev. 05/01) Page _______ Biographical Sketch Format Page
Number pages consecutively at the bottom throughout the application. Do not use suffixes such as 3a, 3b.

Sarah Jane Brain Family State Lead Center of Excellence
For the state of
Alaska
The Children's Hospital at Providence
www.providence.org
REGION: Pacific CATEGORY OF CARE: Prevention
Program Director: Christie Artuso, Ed.D, RN, CCRN, PCCN,CNRN Position Title: Director
Department: Department of Neuroscience Services
Address: 3200 Providence Drive, Anchorage, AK 99508
Phone: 907‐212‐3138
Email: christie.artuso@providence.org
Program Director: Cindy Alkire, RNC, BSN, MHA Position Title: Assistant Chief Nurse Executive
Address: 3200 Providence Drive, Anchorage, AK 99508
Phone: 907‐212‐2889
Email: cindy.alkire@providence.org
Level 1 Center(s): Anchorage (Children's Hospital at Providence)
Level 2 Center(s): Fairbanks, Juneau, Anchorage (Alaska Native Medical Center)
Level 3 Center(s): Rural mobile centers
Number of jobs PABI Grant creates in Alaska: 91
Budget Overview for State Lead Center
State Lead Center Management Sub‐total: $ 6,472,268
Category of Care Management Sub‐total: $ 1,878,420
Case Management Sub‐total: $ 2,945,883
State Lead Center Sub‐total: $ 11,328,572
Indirect Cost to Institution (20%): $ 2,265,714
Administrative Cost to SJBF (2%): $ 226,571
SUB‐TOTAL AMOUNT OF GRANT PROPOSAL: $ 13,820,857

The Children's Hospital at Providence Profile continued
Title/Description Sub‐total Amount for Grant
STATE LEAD CENTER MANAGEMENT
Program Director: $ 83,300
Program Director Assistant: $ 108,178
State Director: $ 360,593
Associate State Director: $ 156,257
State Epidemiologist: $ 240,395
State Epidemiologist Assistant: $ 108,178
State Scientific Investigation Research Coordinator: $ 204,336
State Scientific Investigation Research Assistant: $ 204,336
State Education/Training Coordinator (plus materials): $ 220,557
State General Counsel: $ 288,474
State IT Manager: $ 228,376
State Family Support Coordinator: $ 180,296
State Prevention/Awareness Coordinator: $ 180,296
State Acute Care Coordinator: $ 180,296
State Reintegration Coordinator: $ 180,296
State Adult Transition Coordinator: $ 180,296
State Mild TBI Coordinator: $ 180,296
State Mental Health Coordinator: $ 156,257
State Assistive/Emerging Technology Coordinator: $ 156,257
State Correctional System Coordinator: $ 156,257
State MISC Coordinator: $ 156,257
State Veterans Coordinator: $ 156,257
State Data Manager: $ 156,257
State Public Policy Manager: $ 180,296
State Community Relations Manager: $ 156,257
State Administrative Support: $ 649,067
Charity care: $ 353,522
Human Resources Support: $ 91,000
Training Support: $ 22,750
State Lead Center Office Space Cost: $ 339,735
State Lead Center Transportation/Travel: $ 113,400
State Lead Center Office Equipment/Communications: $ 197,500
State Lead Center Supplies: $ 109,592
Annual and Regional Conferences: $ 32,000
State Brain Injury Association Pediatric Programs: $ 101,006
STATE LEAD CENTER MANAGEMENT SUB‐TOTAL: $ 6,472,268

The Children's Hospital at Providence Profile continued
Title/Description Sub‐total Amount for Grant
CATEGORY OF CARE RESPONSIBILITY: Prevention
Regional Category Director: $ 360,593
Regional Category Epidemiologist: $ 288,474
Regional Category Education/Training Coordinator: $ 240,395
Regional Category Scientific Investigation Research: $ 240,395
Regional Category Administrative Support: $ 432,712
Regional Category Office Space Cost: $ 98,633
Regional Category Transportation/Travel: $ 157,500
Regional Category Office Equipment/Communications: $ 27,900
Regional Category Supplies: $ 31,817
CATEGORY OF CARE SUB‐TOTAL: $ 1,878,420

The Children's Hospital at Providence Profile continued
Title/Description Sub‐total Amount for Grant
CASE MANAGEMENT RESPONSIBILITY
Level 1 Center Manager(s): $ 171,711
Level 1 Center Field Specialist(s): $ 137,369
Level 1 Center SJB Family Specialist(s): $ 937,542
Level 1 Center Administrative Support: $ 154,540
Level 1 Office Space Cost: $ 53,028
Level 1 Transportation/Travel: $ 27,900
Level 1 Office Equipment/Communications: $ 33,800
Level 1 Supplies: $ 60,604
Level 2 Center Field Specialist(s): $ 247,264
Level 2 Center SJB Family Specialist(s): $ 803,607
Level 2 Transportation/Travel: $ 23,760
Level 2 Office Equipment/Communications: $ 39,900
Level 2 Supplies: $ 31,817
Level 3 Center SJB Family Specialist(s): $ 200,902
Level 3 Transportation/Travel: $ 4,680
Level 3 Office Equipment/Communications: $ 11,400
Level 3 Supplies: $ 6,060
CASE MANAGEMENT SUB‐TOTAL: $ 2,945,883
STATE LEAD CENTER SUB‐TOTAL: $ 11,328,572
INDIRECT COST TO INSTITUTION: $ 2,265,714
ADMINISTRATIVE FEE TO SJBF: $ 226,571
STATE LEAD CENTER SUB‐TOTAL: $ 13,820,857
TOTAL JOBS CREATED IN Alaska: 91

Sarah Jane Brain Family State Lead Center of Excellence
For the state of
Arizona
Barrow Neurological Institute / St. Joseph Hospital and Medical Center
www.thebarrow.org
REGION: Pacific CATEGORY OF CARE: Virtual SJB Center
Program Director: Javier Cardenas, MD Position Title: Child Neurologist
Department: Department of Child Neurology
Address: 500 W. Thomas Road, Suite 400, Phoenix, AZ 85013
Phone: 602‐406‐3800
Email: javier.cardenas@chw.edu
Level 1 Center(s): Phoenix (Barrow Neurological Institute)
Level 2 Center(s): Phoenix (Phoenix Children's Hospital), Mesa (Banner Children's Hospital)
Level 3 Center(s): Glendale (Banner Thunderbird Hospital), Gilbert (Mercy Gilbert Hospital)
Number of jobs PABI Grant creates in Arizona: 84
Budget Overview for State Lead Center
State Lead Center Management Sub‐total: $ 5,893,971
Category of Care Management Sub‐total: $ 1,766,991
Case Management Sub‐total: $ 2,266,949
State Lead Center Sub‐total: $ 9,959,912
Indirect Cost to Institution (20%): $ 1,991,982
Administrative Cost to SJBF (2%): $ 199,198
SUB‐TOTAL AMOUNT OF GRANT PROPOSAL: $ 12,151,092

Barrow Neurological Institute / St. Joseph Hospital and Medical Center Profile continued
Title/Description Sub‐total Amount for Grant
STATE LEAD CENTER MANAGEMENT
Program Director: $ 79,650
Program Director Assistant: $ 94,808
State Director: $ 316,025
Associate State Director: $ 136,944
State Epidemiologist: $ 210,684
State Epidemiologist Assistant: $ 94,808
State Scientific Investigation Research Coordinator: $ 179,081
State Scientific Investigation Research Assistant: $ 179,081
State Education/Training Coordinator (plus materials): $ 332,715
State General Counsel: $ 252,820
State IT Manager: $ 200,149
State Family Support Coordinator: $ 158,013
State Prevention/Awareness Coordinator: $ 158,013
State Acute Care Coordinator: $ 158,013
State Reintegration Coordinator: $ 158,013
State Adult Transition Coordinator: $ 158,013
State Mild TBI Coordinator: $ 158,013
State Mental Health Coordinator: $ 136,944
State Assistive/Emerging Technology Coordinator: $ 136,944
State Correctional System Coordinator: $ 136,944
State MISC Coordinator: $ 136,944
State Veterans Coordinator: $ 136,944
State Data Manager: $ 136,944
State Public Policy Manager: $ 158,013
State Community Relations Manager: $ 136,944
State Administrative Support: $ 568,846
Charity care: $ 324,029
Human Resources Support: $ 84,000
Training Support: $ 21,000
State Lead Center Office Space Cost: $ 311,392
State Lead Center Transportation/Travel: $ 104,985
State Lead Center Office Equipment/Communications: $ 197,500
State Lead Center Supplies: $ 100,449
Annual and Regional Conferences: $ 32,000
State Brain Injury Association Pediatric Programs: $ 92,580
STATE LEAD CENTER MANAGEMENT SUB‐TOTAL: $ 5,893,971

Barrow Neurological Institute / St. Joseph Hospital and Medical Center Profile continued
Title/Description Sub‐total Amount for Grant
CATEGORY OF CARE RESPONSIBILITY: Virtual SJB Center
Regional Category Director: $ 316,025
Regional Category Epidemiologist: $ 252,820
Regional Category Education/Training Coordinator: $ 210,684
Regional Category Scientific Investigation Research: $ 210,684
Additional (Regional Business Development Manager): $ 210,684
Regional Category Administrative Support: $ 379,231
Regional Category Office Space Cost: $ 90,404
Regional Category Transportation/Travel: $ 157,500
Regional Category Office Equipment/Communications: $ 27,900
Regional Category Supplies: $ 29,163
CATEGORY OF CARE SUB‐TOTAL: $ 1,766,991

Barrow Neurological Institute / St. Joseph Hospital and Medical Center Profile continued
Title/Description Sub‐total Amount for Grant
CASE MANAGEMENT RESPONSIBILITY
Level 1 Center Manager(s): $ 150,488
Level 1 Center Field Specialist(s): $ 120,391
Level 1 Center SJB Family Specialist(s): $ 821,666
Level 1 Center Administrative Support: $ 135,439
Level 1 Office Space Cost: $ 48,604
Level 1 Transportation/Travel: $ 27,566
Level 1 Office Equipment/Communications: $ 33,800
Level 1 Supplies: $ 55,548
Level 2 Center Field Specialist(s): $ 144,469
Level 2 Center SJB Family Specialist(s): $ 469,523
Level 2 Transportation/Travel: $ 15,706
Level 2 Office Equipment/Communications: $ 26,600
Level 2 Supplies: $ 19,442
Level 3 Center SJB Family Specialist(s): $ 176,071
Level 3 Transportation/Travel: $ 4,680
Level 3 Office Equipment/Communications: $ 11,400
Level 3 Supplies: $ 5,555
CASE MANAGEMENT SUB‐TOTAL: $ 2,266,949
STATE LEAD CENTER SUB‐TOTAL: $ 9,959,912
INDIRECT COST TO INSTITUTION: $ 1,991,982
ADMINISTRATIVE FEE TO SJBF: $ 199,198
STATE LEAD CENTER SUB‐TOTAL: $ 12,151,092
TOTAL JOBS CREATED IN Arizona: 84

Employment
Education
Postgraduate Training
Honors & Awards
Javier Cárdenas, MD
Child Neurologist
500 W. Thomas Rd. suite 400
Phoenix, Arizona 85013
(602) 406-3800
Javier.cardenas@chw.edu
Child Neurologist, Barrow Neurological Institute, St.
Joseph’s Hospital and Medical Center, Phoenix, AZ
2009-present
Special Education Teacher, Science and English for students
with learning disabilities, Tolleson Union High School,
Tolleson, AZ 1999-2000.
M.D., University of Arizona College of Medicine, 2000-2004
Tucson, Arizona
B.A., Arizona State University, 1996-1999
Tempe, Arizona
Special Education, Magna Cum Laude
University of Arizona, 1994-1996
Tucson, Arizona
Pediatric Neurology Resident, Barrow Neurological
Institute, St. Joseph’s Hospital and Medical Center,
Phoenix, AZ 2006 – 2009
Pediatric Resident, Children’s Health Center, St. Joseph’s
Hospital and Medical Center, Phoenix, AZ 2004-2006
Housestaff Servant Leadership Award, St. Joseph’s Hospital
and Medical Center, 2009
The Arizona Neurological Society Award for outstanding
poster presentation, 2007
The M. Caroline Duncan Award, The Southern Pediatric
Neurology Society 32 nd annual meeting, 2007
The Walt Vikram Troester Memorial Scholarship, for
exemplary compassion in the care of neonates, St.
Joseph’s Hospital and Medical Center, 2006
Outstanding Resident Teacher of the Year, The
Children’s Health Center, St. Joseph’s Hospital and
Medical Center, 2006
Pediatric Intern of the Year, The Children’s Health
Center, St. Joseph’s Hospital and Medical Center,
2005

Research Experience
Publications
Presentations
Exemplary Student Researcher, The Translational
Genomics Research Institute, 2003
Magna Cum Laude, Arizona State University, 1999
College of Education Dean’s List, Arizona State
University 1996-1999
City of Tempe Kid Zone: Kid Zone Site of the Month
October, 1998
College of Liberal Arts and Sciences Dean’s List,
University of Arizona 1994-1996
TGen, The Translational Genomics Research Institute.
Research intern, August 2003, January-March 2004.
Assisted in locating a previously unmapped fatal genetic
disease found in Amish infants. Contributed to the
discovery of dominant and recessive gene alleles in ALS.
Pursued the genetic origins of Autism under the
guidance of Dietrich Stephan, Ph.D., Director,
Neurogenomics program
Arizona State University, Department of Biology.
Research assistant, summer 1999. Investigated behavioral
and physiologic characteristics of Africanized honey bees
under the guidance of Jennifer Fewell, Ph.D., associate
professor of Biology, and John Harrison, Ph.D., professor
of Biology
Cardenas JF, Rho JM, Ng YT. “Reversible Lamotrigine-
induced Neurobehavioral Disturbances in Children with
Epilepsy.” J Child Neurol 2009.
Cardenas JF, Bodensteiner J. “Osmotic demyelination
syndrome as a consequence of treating hyperammonemia
in a patient with ornithine transcarbomylase deficiency.”
J Child Neurol 2009 Feb 18 epub ahead of print.
Chapman K, Cardenas JF. “Hemimegalencephaly in a
patient with a neurocutaneous syndrome.” Semin Pediatr
Neurol. 2008 Dec;15(4):190-3.
Puffenberger, et al. “A high-density SNP genome scan
identifies TSPYL loss-of function as causative of Swarey
syndrome.” Proceedings of the National Academy of
Sciences. June 2004.
“Hypothermia for the Treatment of Traumatic Brain
Injury.” Pediatric Neuroscience Grand Rounds. St.
Joseph's Hospital and Medical Center. Phoenix, AZ.
February, 2009.
“Second Impact Syndrome: Fact or Fiction?” Pediatric

Certifications
Neuroscience Grand Rounds. St.Joseph's Hospital
and Medical Center. Phoenix, AZ. December 2008.
“Strategies for the Prevention of Traumatic Brain Injury.”
The 13 th Annual Barrow Pediatric Neuroscience
Symposium. Barrow Neurological Institute. Phoenix,
AZ. November 2008.
"Traumatic Brain Injury in Children." Pediatrics Grand
Rounds. St. Joseph's Hospital and Medical Center.
Phoenix, AZ. March 2008.
"Toxic Leukoencephalopathy After Heroin Inhalation
(Chasing the Dragon)." Southern Pediatric Society
Annual Meeting. New Orleans, LA. March 2008.
“Lamotrigine-induced Severe Hyperactivity and
Behavioral Exacerbation.” March 2007. Southern
Pediatric Neurology Society Annual Meeting. New
Orleans, LA
“Embryology of the Central Nervous System.” May
2007. General Pediatrics Noon Conference. Saint
Joseph’s Hospital and Medical Center. Phoenix, AZ
“Evaluation of Developmental Delay.” December 2007
General Pediatrics Noon Conference. Saint Joseph’s
Hospital and Medical Center. Phoenix, AZ
Case Presentation:“Mitochondrial Encephalomyopathy,
Lactic Acidosis with Stroke-Like Episodes (MELAS).”
February 2007. Barrow Neurological Institute. Saint
Joseph’s Hospital and Medical Center. Phoenix, AZ
Case Presentation: “Wernicke Encephalopathy.” May
2007 Barrow Neurological Institute. Saint Joseph’s
Hospital and Medical Center. Phoenix, AZ
Poster Presentation: ”Toxic Leukoencephalopathy After
Heroin Inhalation: Pathognomonic Images From Five
Cases of Chasing the Dragon.” Nov 2008. Child
Neurology Society Meeting. Santa Clara, CA
Poster Presentation: “Sydenham’s Chorea as a
Presentation of Moya Moya Disease.” July 2008.
Arizona Neurological Society Summer Meeting.
Sedona, AZ
Poster Presentation: “Chasing the Dragon Will Get You
Burned: Three Cases of Toxic Leukoencephalopathy
after Heroin Inhalation.” July 2007. Arizona
Neurological Society Summer Meeting. Sedona, AZ
Poster Presentation: “Reversible Lamotrigine-induced
Neurobehavioral Activation in Epileptic Children.”
October 2007. Child Neurology Society Annual
Meeting. Quebec City, Quebec. Canada.

Licensure
Professional
Organizations
Languages
Advocacy
Appointments
Volunteer Activities
Pediatric Advanced Life Support 2004, 2007
Special Education: Grades K-12, Learning Disabilities,
Mental Retardation, issued August 1999, expired July
2004.
Arizona Medical Board 2007-present
USMLE Step III, April 2006; pass
USMLE Step II, July 2003: pass
USMLE Step I, June 2002: pass
American Academy of Neurology
Child Neurology Society
Arizona Neurological Society
Spanish- proficient written and spoken
Palatucci Advocacy Leadership Forum. American Academy
of Neurology. 2008, 2009 (advisor)
Arizona State Governor’s Advisory Council on Spinal and
Head Injuries 2008-present
Chicanos por la Causa (CPLC) Board of Directors, 2009
Arizona School for the Arts (ASA) Board of Directors, 2009
Muscular Dystrophy Association
Camp Medical Staff, June 2008, 2009
Special Olympics of Arizona
Physical Examiner to underprivileged athletes,
September, 2003, 2004, 2005, 2006, 2007, 2008
Head Coach (basketball, bowling, track and field),
Tolleson Union High School, Tolleson, AZ 1999-
2000
Assistant Coach (basketball, bowling, track and field),
Chandler High School, Chandler, AZ 1994-1999
Best Buddies, mentor to a child with developmental
disabilities, Tucson, AZ 1994-1995
Peer facilitator, assisted in the education of a disabled peer,
Chandler High School, Chandler, AZ 1993-1994

Sarah Jane Brain Family State Lead Center of Excellence
For the state of
Arkansas
UAMS/Arkansas Children's Hospital Research Institute (ACHRI)
achri.archildrens.org
REGION: Southcentral CATEGORY OF CARE: Prevention
Program Director: Mary Aitken, MD Position Title: Professor of Pediatrics
Department: Department of Pediatrics
Address: 13 Children's Way, Little Rock, AR 72202
Phone: 501‐686‐7000
Email: Aitkenmarye@uams.edu
Level 1 Center(s): Little Rock, Fayetteville
Level 2 Center(s): Jonesboro, El Dorado
Level 3 Center(s): Ft. Smith, Mountain Home, Texarkana, Helena
Number of jobs PABI Grant creates in Arkansas: 104
Budget Overview for State Lead Center
State Lead Center Management Sub‐total: $ 4,856,960
Category of Care Management Sub‐total: $ 1,369,806
Case Management Sub‐total: $ 3,040,546
State Lead Center Sub‐total: $ 9,299,312
Indirect Cost to Institution (20%): $ 1,859,862
Administrative Cost to SJBF (2%): $ 185,986
SUB‐TOTAL AMOUNT OF GRANT PROPOSAL: $ 11,345,161

UAMS/Arkansas Children's Hospital Research Institute (ACHRI) Profile continued
Title/Description Sub‐total Amount for Grant
STATE LEAD CENTER MANAGEMENT
Program Director: $ 177,188
Program Director Assistant: $ 75,170
State Director: $ 250,565
Associate State Director: $ 108,578
State Epidemiologist: $ 167,044
State Epidemiologist Assistant: $ 75,170
State Scientific Investigation Research Coordinator: $ 141,987
State Scientific Investigation Research Assistant: $ 141,987
State Education/Training Coordinator (plus materials): $ 209,475
State General Counsel: $ 200,452
State IT Manager: $ 158,691
State Family Support Coordinator: $ 125,283
State Prevention/Awareness Coordinator: $ 125,283
State Acute Care Coordinator: $ 125,283
State Reintegration Coordinator: $ 125,283
State Adult Transition Coordinator: $ 125,283
State Mild TBI Coordinator: $ 125,283
State Mental Health Coordinator: $ 108,578
State Assistive/Emerging Technology Coordinator: $ 108,578
State Correctional System Coordinator: $ 108,578
State MISC Coordinator: $ 108,578
State Veterans Coordinator: $ 108,578
State Data Manager: $ 108,578
State Public Policy Manager: $ 125,283
State Community Relations Manager: $ 108,578
State Administrative Support: $ 451,017
Charity care: $ 267,270
Human Resources Support: $ 104,000
Training Support: $ 26,000
State Lead Center Office Space Cost: $ 256,846
State Lead Center Transportation/Travel: $ 86,595
State Lead Center Office Equipment/Communications: $ 197,500
State Lead Center Supplies: $ 82,854
Annual and Regional Conferences: $ 32,000
State Brain Injury Association Pediatric Programs: $ 76,363
STATE LEAD CENTER MANAGEMENT SUB‐TOTAL: $ 4,856,960

UAMS/Arkansas Children's Hospital Research Institute (ACHRI) Profile continued
Title/Description Sub‐total Amount for Grant
CATEGORY OF CARE RESPONSIBILITY: Prevention
Regional Category Director: $ 250,565
Regional Category Epidemiologist: $ 200,452
Regional Category Education/Training Coordinator: $ 167,044
Regional Category Scientific Investigation Research: $ 167,044
Regional Category Administrative Support: $ 300,678
Regional Category Office Space Cost: $ 74,568
Regional Category Transportation/Travel: $ 157,500
Regional Category Office Equipment/Communications: $ 27,900
Regional Category Supplies: $ 24,054
CATEGORY OF CARE SUB‐TOTAL: $ 1,369,806

UAMS/Arkansas Children's Hospital Research Institute (ACHRI) Profile continued
Title/Description Sub‐total Amount for Grant
CASE MANAGEMENT RESPONSIBILITY
Level 1 Center Manager(s): $ 238,634
Level 1 Center Field Specialist(s): $ 190,907
Level 1 Center SJB Family Specialist(s): $ 1,302,939
Level 1 Center Administrative Support: $ 214,770
Level 1 Office Space Cost: $ 40,090
Level 1 Transportation/Travel: $ 53,673
Level 1 Office Equipment/Communications: $ 61,600
Level 1 Supplies: $ 72,545
Level 2 Center Field Specialist(s): $ 114,544
Level 2 Center SJB Family Specialist(s): $ 372,268
Level 2 Transportation/Travel: $ 15,415
Level 2 Office Equipment/Communications: $ 26,600
Level 2 Supplies: $ 16,036
Level 3 Center SJB Family Specialist(s): $ 279,201
Level 3 Transportation/Travel: $ 9,360
Level 3 Office Equipment/Communications: $ 22,800
Level 3 Supplies: $ 9,164
CASE MANAGEMENT SUB‐TOTAL: $ 3,040,546
STATE LEAD CENTER SUB‐TOTAL: $ 9,299,312
INDIRECT COST TO INSTITUTION: $ 1,859,862
ADMINISTRATIVE FEE TO SJBF: $ 185,986
STATE LEAD CENTER SUB‐TOTAL: $ 11,345,161
TOTAL JOBS CREATED IN Arkansas: 104

Program Director/Principal Investigator (Last, First, Middle):.
BIOGRAPHICAL SKETCH
Provide the following information for the key personnel and other significant contributors in the order listed on Form Page 2.
Follow this format for each person. DO NOT EXCEED FOUR PAGES.
NAME
Aitken, Mary Elizabeth
eRA COMMONS USER NAME (credential, e.g., agency login)
meaitken
POSITION TITLE
Professor of Pediatrics
EDUCATION/TRAINING (Begin with baccalaureate or other initial professional education, such as nursing, and include postdoctoral training.)
INSTITUTION AND LOCATION
DEGREE
(if applicable)
YEAR(s) FIELD OF STUDY
University of North Carolina, Chapel Hill, NC
University of North Carolina School of Medicine,
BA 1983 Economics/Chemistry
Chapel Hill, NC
MD
1988 Medicine
University of Washington, Seattle, Washington
A. Positions and Honors
Positions and Employment
MPH 1996 Epidemiology
1983-1984 Economist I, Research Triangle Institute, Research Triangle Park, NC
1988-1991 Pediatric Internship and Residency, Johns Hopkins Hospital, Baltimore, MD
1991-1992 Medical Officer, Pediatric Emergency Services, Auckland Children’s Hospital, Auckland, NZ
1992-1993 Pediatrician, Kron Medical, Research Triangle Park, NC
1992-1994 Pediatric Staff and Research Team, King Edward VII Memorial Hospital, Hamilton, Bermuda
1992-1993 Visiting Research Fellow, University of Wales College of Medicine, Cardiff, Wales, UK
1992-1994 Senior Fellow and Acting Instructor, General Pediatrics, University of Washington, Department
of Pediatrics, Seattle, WA
1996-2002 Assistant Professor of Pediatrics, University of Arkansas for Medical Sciences, Little Rock, AR
1997-2007 Co-Director, Center for Health Promotion, Department of Pediatrics, University of Arkansas for
Medical Sciences, Little Rock, AR
2002-2008 Adjunct Associate Professor, Department of Maternal Child Health, College of Public Health,
UAMS, Little Rock, AR
2002-2008 Associate Professor of Pediatrics, University of Arkansas for Medical Sciences, Little Rock, AR
2005-present Director, Trauma Research, Arkansas Children’s Hospital
2006-present Section Chief, Center for Applied Research and Evaluation. Department of Pediatrics,
University of Arkansas for Medical Sciences, Little Rock, AR
2008-present Professor of Pediatrics, University of Arkansas for Medical Sciences, Little Rock, AR
2008-present Medical Director, Arkansas Children’s Hospital Injury Prevention Center
Other Experience and Professional Memberships
1992 Diplomate, American Board of Pediatrics
1993 Fellow, American Academy of Pediatrics
1994 Ambulatory Pediatrics Association
1994 American Public Health Association
1995 International Society for Child and Adolescent Injury Prevention
Honors
1982 Phi Beta Kappa
1986 Warwick Fellowship
1987 Merit Scholarship, University of North Carolina School of Medicine
1998 Robert Wood Johnson Foundation, Generalist Physician Faculty Scholars Program Awardee
2000 Sidney and Elizabeth Licht Award for Excellence in Scientific Writing
2002 Society for Pediatric Research
2005 Executive Committee, American Academy of Pediatrics Section on Injury & Poisoning Prevention
2006 Joan M. Cranmer Award for Mentorship, University of Arkansas for Medical Sciences
PHS 398/2590 (Rev. 11/07) Page Biographical Sketch Format Page

Program Director/Principal Investigator (Last, First, Middle):.
B. Selected peer-reviewed publications (in chronological order)
1. Rivara FP, Aitken ME. Prevention of injuries to children and adolescents. Advances in Pediatrics.
1998; 45:37-72.
2. Aitken ME, Rivara FP, Jaffe KM, DiScala C. Functional outcome following pediatric multiple trauma.
Arch Phys Med Rehabil. 1999;80:889-895.
3. Aitken ME, Rowlands LA, Wheeler G. Advocating for children’s health at the state level: lessons
learned. Arch Pediatr Adolesc Med. 2001;155:877-880.
4. Aitken ME, Tilford JM, Barrett KW, Parker JG, Simpson PM, Landgraf J, Robbins JM. Health status of
children after admission for injury. Pediatrics. 2002;110:337-342.
5. Aitken ME, Barrett KW, Mele NC. Recovery of injured children: parent perspectives on family needs.
Arch Phys Med Rehabil. 2004;85:567-73.
6. Harvey P, Aitken ME, Ryan GW, Demeter LA, Givens G, Sundararaman R, Goulette S. Strategies to
increase smoke alarm use in high-risk households. J Comm Health. 2004;29(5):375-385.
7. Aitken ME, Korehbandi P, Parnell D, Parker JG, Stefans V, Tompkins E, Schulz EG. Development
and early experience with a comprehensive family support program for pediatric trauma and
rehabilitation patients. Arch Phys Med Rehabil. 2005;86:175-179.
8. Aitken ME, Graham CJ, Mullins SH, Killingsworth JB, Parnell DN, Dick RM. All-terrain vehicle injury in
children: strategies for prevention. Inj Prev. 2004;10:303-307.
9. Killingsworth JB, Tilford JM, Parker J, Graham CJ, Dick RM, Aitken ME. National hospitalization
impact of pediatric all-terrain vehicle injury. Pediatrics. 2005 Mar;115(3):e316-21.
10. Tilford JM, Aitken ME, Anand KWS, Parker J, Jo C-H, Killingsworth JB, et al. Hospitalizations for
critically ill children with traumatic brain injury: A longitudinal analysis. Crit Care Med. 2005;33:2074-81.
11. McCarthy ML, MacKenzie EJ, Durbin DR, Aitken ME, Jaffe KM, Paidas CN, Slomine BS, Dorsch AM,
Berk RA, Christensen JS, Ding R. CHAT Study Group. The pediatric quality of life inventory: an
evaluation of its reliability and validity for children with traumatic brain injury. Arch Phys Med Rehabil.
2005;86(10):1901-9.
12. Graham J, Liggin R, Shirm S, Aitken ME, Dick R. Mass casualty events at schools: a national
preparedness survey. Pediatrics. 2006;117:e8-e15.
13. Lopez AM, Tilford JM, Anand KS, Green JW, Aitken ME, Fiser DH. Variation in pediatric intensive care
therapies by race, gender, and insurance status. Pediatr Crit Care Med. 7(1):2-6, January 2006.
14. McCarthy ML, Durbin D, Houseknecht E, Aitken ME, Klotz P, Knight V,Korehbandi P, Mackenzie E,
Paidas C, Slomine B, Ziegfeld S. Health-related quality of life outcomes during the first year post
traumatic brain Injury. Arch Pediatr Adolesc Med. 2006;160(3):252-260.
15. Slomine BS, McCarthy M, Ding R, MacKenzie EJ, Jaffe KM, Aitken ME, Durbin DR, Christensen JR,
Dorsch AM, Padidas, CN. Healthcare utilization and needs after pediatric traumatic brain injury.
Pediatrics. 2006;117(4):663-74. Epub 2006 Mar 13.
16. Ward-Begnoche WL, Aitken ME, Liggin R, Mullins SH, Kassam-Adams N. Winston FK. Emergency
department-based screening for post traumatic stress in pediatric traumatic patients. Inj Prev.
2006;12(5):323-326.
17. Tilford JM, Aitken ME, Goodman AC, Fiser DH, Killingsworth JB, Green JW, Adelson PD. Child
health-related quality of life following neurocritical care for traumatic brain injury: an analysis of
preference-weighted outcomes. Neurocrit Care. 2007;7(1): 64-75.
18. Aitken ME, Mullins SH, Lancaster VE, Miller BK. “Cubs Click It for Safety”: A school-based
intervention for Tween passenger safety. J Trauma. 2007 Sept;63(3 Suppl):S39-43.
19. Tilford JM, Aitken ME, Goodman AC, Adelson PD. Measuring the cost-effectiveness of technologic
change in the treatment of pediatric traumatic brain injury. J Trauma. 2007 Dec;63(6 Suppl):S113-20;
discussion S121.
20. Bowman SM, Aitken ME, Helmkamp JC, Maham SA, Graham J. Impact of helmets on injuries to riders
of all-terrain vehicles. Inj Prev. 2009;15(1):3-7.
21. Bowman SM, Bird TM, Aitken ME, Tilford JM. Trends in hospitalizations associated with pediatric
traumatic brain injuries. Pediatrics. 2008;122(5):988-93.
22. Aitken ME, McCarthy ML, Slomine BS, Ding R, , Durbin DR, Jaffe KM, Paidas C, Dorsch A,
Christensen J, MacKenzie EJ. Family burden after traumatic brain injury in children. Pediatrics.
2009;123(1):199-206.
PHS 398/2590 (Rev. 11/07) Page Continuation Format Page

C. Research Support
Ongoing Research Support
Program Director/Principal Investigator (Last, First, Middle):.
1R49CE000975 (Aitken PI) 02/19/07-02/18/10
Centers for Disease Control and Prevention
Strike Out Child Passenger Injury
Tailored intervention to increase booster seat use in rural communities
No number (Aitken PI) 07/01/07-06/30/10
Arkansas Children’s Hospital
Arkansas Injury Prevention Center
Injury prevention education and outreach in Arkansas
1H34MC08514 (Aitken PI) 09/01/07-08/31/10
Health Resources and Services Administration, Emergency Medical Services for Children
Targeted ATV Safety Educational Strategies for Rural Children
Development of materials and dissemination in rural communities
No Number (Aitken PI) 01/31/09-01/30/10
Dean’s/CUMG Research Development Fund.
Building Consensus for Safer Teen Driving
To establish a teen driving safety program and a clinic-based educational intervention
Arkansas Department of Transportation. (Aitken PI, Shaw Co-I) 12/01/07-03/01/10
Mapping the way to success: Arkansas’s Safe Routes to School: Walking and wheeling toolkit & online
resource guide.
Evaluate implementation of an active commuting program in Arkansas
#: 1 UL1RR029884 (Lowery PI) 07/01/09-03/31/14
Arkansas Center for Clinical and Translational Research
Establish an integrative Center for Clinical and Translational Research that transforms the pace, effectiveness,
and quality of translational research at UAMS, resulting in better health for all Arkansans.
Completed Research Support
No Number (Aitken PI) 7/02/99-6/30/03
Robert Wood Johnson Foundation
Outcomes of Pediatric Trauma
Explore measurement and clinical issues related to general health status in the general pediatric trauma
population and to develop predictive models for adverse injury outcomes.
SG-03282001C (Aitken PI) 1/01/02-6/30/03
Dean’s CUMG Research Fund/University of Arkansas for Medical Sciences
Assessing Health-Related Quality of Life in Injury Patients Using the PedsQL Scale
Evaluate the reliability and validity of using the PedsQL and the BRIEF for measuring the health and well-being
of children who sustain a TBI.
DC R49/CCR319701-01 (McCarthy) 9/30/01 - 09/29/04
Measuring Children’s Health Following Traumatic Injury
Validation of surveillance instrument measuring morbidity following traumatic brain injury in children.
Children’s Health After Trauma (CHAT)
Role: Consultant
PHS 398/2590 (Rev. 11/07) Page Continuation Format Page

Program Director/Principal Investigator (Last, First, Middle):.
MCH 1 H34 MC 00100-01 (Aitken PI) 3/01/01-2/28/05
MCHB-HRSA-DHHS
Coordinating Discharge Care for Injured and Special Needs Children
Implement clinical and social interventions in high-risk populations after injury (rehabilitation, TBI) and assess
these interventions for dissemination.
MC00105 (Tilford) 3/01/01-2/28/05
MCHB-HRSA-DHHS
Economic Evaluation of Intensive Care Services for Pediatric Traumatic Brain Injury Patients
Examine trends in traumatic injury treatment and outcome over time, as well as costs and benefits of intensive
care services to TBI patients.
Role: Co-I
MCH-15 (Dick) 10/97-2/06
DHHS/EMS
Emergency Medical Services for Children Partnership
Statewide planning grant to assess emergency services for children.
Role: Co-I
NIH-NCRR #RR020146 (Garcia-Rill) 12/05-7/06
Center for Biomedical Research Excellence (COBRE) Center for Translational Neuroscience.
National Institutes of Health, National Center for Research Resources.
Pilot grant: Arousal and Attention in Pediatric Traumatic Brain Injury
Role: Co-I
No Number (Graham) 10/01/04-6/30/07
CUMG
All-terrain vehicle safety community campaign pilot and evaluation
Assess the effectiveness of an educational safety campaign in a rural community.
Role: Co-I
1002788R (Aitken PI) 05/01/06-09/29/07
West Virginia University Injury Prevention Research Center
Measurement of Rural ATV Safety Behaviors
Piloting observational surveys of ATV rider safety behaviors in rural communties.
047012 (Aitken PI) 11/01/03-12/31/07
Robert Wood Johnson Foundation via sub contract with Columbia University
Injury Free Coalition for Kids
Community-hospital research partnership to develop targeted injury prevention strategies and disseminate
these through a network of 40 children’s hospitals.
No number (Aitken PI) 08/01/07-09/30/08
Allstate Foundation via sub contract with Columbia University
Building Consensus for Safer Teen Driving
Pilot family-based GDL intervention
MCH-15 (Thompson) 10/06-02/09
DHHS/EMS
Emergency Medical Services for Children Partnership
Statewide planning grant to assess emergency services for children
Role: Co-I
PHS 398/2590 (Rev. 11/07) Page Continuation Format Page

Sarah Jane Brain Family State Lead Center of Excellence
For the state of
California
Mattel Children's Hospital UCLA
www.mattel.medsch.ucla.edu
REGION: Pacific CATEGORY OF CARE: Acute Phase
Program Director: Christopher Giza, MD Position Title: Associate Professor In‐Residence
Department: Neurosurgery and Pediatric Neurology
Address: 757 Westwood Plaza, Los Angeles, CA 90095
Phone: 310‐825‐3550
Email: cgiza@mednet.ucla.edu
Level 1 Center(s): Los Angeles/Hollywood/San Fernando Valley, Los Angeles/Downtown/South L.A.,
Oakland/East Bay, Palo Alto/San Jose, Sacramento/Davis, San Bernardino/Inland Empire, San Diego, San
Francisco
Level 2 Center(s): Bakersfield, Fresno, Irvine/Orange County, La Jolla, Modesto, Redding, San Jose, Santa
Barbara, Santa Rosa, Torrance
Level 3 Center(s): Bishop, Chico, Escondido, Eureka/North Coast, Lancaster/Palmdale, Long Beach
(Miller Children's), Palm Springs, Pomona (Casa Colina), Roseville (Sutter Roseville Medical Center),
Salinas/Monterey, San Luis Obispo, Santa Clarita (Herny Mayo), Visalia or Me
Number of jobs PABI Grant creates in California: 274
Budget Overview for State Lead Center
State Lead Center Management Sub‐total: $ 8,325,706
Category of Care Management Sub‐total: $ 2,099,413
Case Management Sub‐total: $ 19,587,592
State Lead Center Sub‐total: $ 30,044,711
Indirect Cost to Institution (20%): $ 6,008,942
Administrative Cost to SJBF (2%): $ 600,894
SUB‐TOTAL AMOUNT OF GRANT PROPOSAL: $ 36,654,548

Mattel Children's Hospital UCLA Profile continued
Title/Description Sub‐total Amount for Grant
STATE LEAD CENTER MANAGEMENT
Program Director: $ 90,563
Program Director Assistant: $ 122,435
State Director: $ 408,118
Associate State Director: $ 176,851
State Epidemiologist: $ 272,078
State Epidemiologist Assistant: $ 122,435
State Scientific Investigation Research Coordinator: $ 231,267
State Scientific Investigation Research Assistant: $ 231,267
State Education/Training Coordinator (plus materials): $ 1,100,022
State General Counsel: $ 326,494
State IT Manager: $ 258,474
State Family Support Coordinator: $ 204,059
State Prevention/Awareness Coordinator: $ 204,059
State Acute Care Coordinator: $ 204,059
State Reintegration Coordinator: $ 204,059
State Adult Transition Coordinator: $ 204,059
State Mild TBI Coordinator: $ 204,059
State Mental Health Coordinator: $ 176,851
State Assistive/Emerging Technology Coordinator: $ 176,851
State Correctional System Coordinator: $ 176,851
State MISC Coordinator: $ 176,851
State Veterans Coordinator: $ 176,851
State Data Manager: $ 176,851
State Public Policy Manager: $ 204,059
State Community Relations Manager: $ 176,851
State Administrative Support: $ 734,612
Charity care: $ 394,316
Human Resources Support: $ 274,000
Training Support: $ 68,500
State Lead Center Office Space Cost: $ 378,938
State Lead Center Transportation/Travel: $ 113,400
State Lead Center Office Equipment/Communications: $ 197,500
State Lead Center Supplies: $ 122,238
Annual and Regional Conferences: $ 32,000
State Brain Injury Association Pediatric Programs: $ 112,662
STATE LEAD CENTER MANAGEMENT SUB‐TOTAL: $ 8,325,706

Mattel Children's Hospital UCLA Profile continued
Title/Description Sub‐total Amount for Grant
CATEGORY OF CARE RESPONSIBILITY: Acute Phase
Regional Category Director: $ 408,118
Regional Category Epidemiologist: $ 326,494
Regional Category Education/Training Coordinator: $ 272,078
Regional Category Scientific Investigation Research: $ 272,078
Regional Category Administrative Support: $ 489,741
Regional Category Office Space Cost: $ 110,014
Regional Category Transportation/Travel: $ 157,500
Regional Category Office Equipment/Communications: $ 27,900
Regional Category Supplies: $ 35,488
CATEGORY OF CARE SUB‐TOTAL: $ 2,099,413

Mattel Children's Hospital UCLA Profile continued
Title/Description Sub‐total Amount for Grant
CASE MANAGEMENT RESPONSIBILITY
Level 1 Center Manager(s): $ 1,554,733
Level 1 Center Field Specialist(s): $ 1,243,787
Level 1 Center SJB Family Specialist(s): $ 8,488,845
Level 1 Center Administrative Support: $ 1,399,260
Level 1 Office Space Cost: $ 59,147
Level 1 Transportation/Travel: $ 223,200
Level 1 Office Equipment/Communications: $ 228,400
Level 1 Supplies: $ 343,619
Level 2 Center Field Specialist(s): $ 932,840
Level 2 Center SJB Family Specialist(s): $ 3,031,730
Level 2 Transportation/Travel: $ 79,200
Level 2 Office Equipment/Communications: $ 133,000
Level 2 Supplies: $ 118,295
Level 3 Center SJB Family Specialist(s): $ 1,591,658
Level 3 Transportation/Travel: $ 32,760
Level 3 Office Equipment/Communications: $ 79,800
Level 3 Supplies: $ 47,318
CASE MANAGEMENT SUB‐TOTAL: $ 19,587,592
STATE LEAD CENTER SUB‐TOTAL: $ 30,044,711
INDIRECT COST TO INSTITUTION: $ 6,008,942
ADMINISTRATIVE FEE TO SJBF: $ 600,894
STATE LEAD CENTER SUB‐TOTAL: $ 36,654,548
TOTAL JOBS CREATED IN California: 274

BIOGRAPHICAL SKETCH
Provide the following information for the key personnel and other significant contributors in the order listed on Form Page 2.
Follow this format for each person. DO NOT EXCEED FOUR PAGES.
NAME
Christopher Conrad Giza, M.D.
eRA COMMONS USER NAME (credential, e.g., agency login)
GIZAC2
POSITION TITLE
Associate Professor In-Residence
EDUCATION/TRAINING (Begin with baccalaureate or other initial professional education, such as nursing, and include postdoctoral training.)
INSTITUTION AND LOCATION
DEGREE
(if applicable)
YEAR(s) FIELD OF STUDY
Dartmouth College, Hanover, NH A.B. 1982-86 Biochemistry
W Virginia Univ. School of Medicine, Morgantown M.D. 1986-90 Medicine
Hosp. of the Univ. of Pennsylvania, Philadelphia Internship 1990-91 Internal Medicine
University of California, Los Angeles Residency 1991-94 Neurology
University of California, Los Angeles Fellowship 1994-96 Pediatric Neurology
Please refer to the application instructions in order to complete sections A, B, and C of the Biographical
Sketch.
A. PROFESSIONAL POSITIONS
1996-1997 Search and Rescue Team Member, Yosemite National Park, CA
1996-1998 Private Practice Physician, locum tenens. Neurological Associates of the Valley Medical Group,
West Hills, CA and Long Beach Memorial Medical Center, Long Beach, CA
1998-2000 Postgraduate Researcher, Division of Neurosurgery, Department of Surgery, UCLA School of
Medicine and Medical Center, Los Angeles, CA
2000-2001 Assistant Researcher, Division of Neurosurgery, Department of Surgery, UCLA School of
Medicine and Medical Center, Los Angeles, CA
2001-2007 Assistant Professor In-Residence, Divisions of Neurosurgery and Pediatric Neurology, David
Geffen School of Medicine and Mattel Children’s Hospital at UCLA, Los Angeles, CA
2002- Member, UCLA Brain Research Institute, Los Angeles, CA
2005-2007 Assistant Professor, Interdepartmental Program in Neuroscience, UCLA School of Medicine,
Los Angeles, CA
2007- Associate Professor In-Residence, Divisions of Neurosurgery and Pediatric Neurology,
Interdepartmental Programs in Neuroscience and Biomedical Engineering, David Geffen
School of Medicine at UCLA, Los Angeles, CA
HONORS AND AWARDS
1982 National Merit Scholar
1985-1986 Rufus Choate Scholar (top 5% in class)
1986 Sigma Xi Scientific Research Society Grant-in-Aid of Research
1987 Alpha Omega Alpha Medical Student Research Grant
1988- Alpha Omega Alpha Medical Honor Society
1989-1990 American Bureau for Medical Advancement in China/ Warner-Lambert Fellowship
1989-1990 Vice-President, Medical School senior class
1989-1990 Herschel C. Price Educational Foundation Grant
1996 Mead Johnson Award for Teaching Excellence in Pediatrics
1998-1999 Lind Lawrence Foundation Postdoctoral Fellow
1998 International Society for Cerebral Blood Flow and Metabolism, Junior Delegate Bursary Award
2001, 2002 University of California Neurotrauma Travel Fellowship
2001-2002 J. Athletic Training Clint Thompson Award 1 st runner-up for Outstanding Non-Research
Manuscript, “The Neurometabolic Cascade of Concussion”.
2002-2003 American Alpine Club Research Grant Award
2002 Nominated to Speakers Bureau of National Athletic Trainers Association
2002-2003 UCLA Brain Injury Research Center Young Investigator Award

2005 UCLA Council on Research Conference Travel Grant for invited lectures at the 14 th Annual
Conference of the Neurotrauma Society of India.
2005 P.S. Ramani Oration Recipient at the 14 th Annual Conference for the Neurotrauma Society of
India.
2007 Visiting Professor, Pepperdine University, Malibu, CA, June 19 th
2007-2009 Shields Fellow, Child Neurology Society; supported by Winokur Family Foundation.
2009 Paul R. Dyken Scholarship Lecturer at the 34 th Annual Meeting of the Southern Pediatric
Neurology Society
CERTIFICATIONS
Diplomate, American Board of Psychiatry and Neurology, certified in Child Neurology, 1998-2008.
Maintenance of certification passed, 2009-2019.
B. PEER-REVIEWED MANUSCRIPTS
1. Liu X, Giza CC, Triezenburg SJ, and Vrana KE. High efficiency transient expression of eukaryotic genes:
novel use of an HSV-1 immediately early promoter (ICP4). Biotech. 1990; 9(2): 168-173.
2. Giza CC and Sankar RS. Pathogenesis of the developmental epilepsies. Current Opin. in Ped. 1998;
10(6): 567-574.
3. Giza CC, Kuratani JD, Cokely H, and Sankar RS. Periventricular nodular heterotopia and childhood
absence epilepsy: a case report. Ped Neurol. 1999; 20(4):315-8.
4. Mathern, GW; Giza, CC; Yudovin, S; Vinters, HV; Peacock, WJ; Shewmon, DA; Shields, WD.
Postoperative seizure control and antiepileptic drug use in pediatric epilepsy surgery patients: the UCLA
experience, 1986-1997. Epilepsia 1999; 40(12):1740-9.
5. Fineman I, Giza CC, Nahed B, Lee SM and Hovda DA. Inhibition of neocortical plasticity during
development by moderate concussive brain injury. J. Neurotrauma 2000; 17(9): 739-49.
6. Rabizadeh S, Ye X, Wang JJL, Sperandio S, Wang, JJL, Ellerby HM, Ellerby LM, Giza CC, Andrusiak RL,
Frankowski H, Yaron Y, Moayeri NN, Rovelli G, Evans CJ, Butcher LL, Nolan GP, Assa-Munt N, and
Bredesen DE. Neurotrophin dependence domain: A domain required for the mediation of apoptosis by the
p75 neurotrophin receptor. J. Molec. Neurosci. 2000; 15: 215-229.
7. Giza CC and Hovda DA. The Neurometabolic Cascade of Concussion. J. Athletic Training 2001;
36(3):228-235.
8. Giza CC, Prins ML, Hovda DA, Herschman HR and Feldman JD. Genes preferentially induced by
depolarization after concussive brain injury: Effects of age and injury severity. J Neurotrauma 2002
Apr;19(4):387-402.
9. Ip EY, Giza CC, Griesbach G and Hovda DA. Effects of enriched environment and fluid percussion injury
on dendritic arborization within the cerebral cortex of the developing rat. J. Neurotrauma 2002
May;19(5):573-85.
10. Zanier ER, Lee SM, Vespa P, Giza CC and Hovda DA. Increased hippocampal CA3 vulnerability to low
level glutamate analogue following lateral fluid percussion injury. J. Neurotrauma 2003 May; 20(5):409-
420.
11. Gordon BM and Giza CC. Tick paralysis presenting in an urban setting. Ped Neurol 2004 Feb; 30(2):
122-4.
12. Bhidayasiri R and Giza CC. Images in Pediatric Neurosurgery - Subdural hematoma and retinal
hemorrhages in an infant: accidental or non-accidental injury? Ped Neurosurg 2004; 40(3):147-18.
13. Giza CC. Sports Concussion. Brain Injury Professional 2004; 1(1): 22-25.
14. Osteen CL, Giza CC and Hovda DA. Injury-induced alterations in NMDA receptor subunit composition
contribute to prolonged 45 calcium accumulation following lateral fluid percussion. Neuroscience 2004
128(2):305-322.
15. Giza CC, Griesbach GS and Hovda DA. Experience-Dependent Behavioral Plasticity is Disturbed
Following Traumatic Injury to the Immature Brain. Behavioral Brain Res, 2005; 157(1):11-22.
16. Gurkoff GG, Giza CC and Hovda DA. Lateral fluid percussion injury in the developing rat causes an
acute, mild behavioral dysfunction in the absence of significant cell death. Brain Res, 2006 Mar 10;
1077(1):24-36.
PHS 398/2590 (Rev. 11/07) Page Continuation Format Page

17. Madikians A and Giza CC. A Clinician’s Guide to the Pathophysiology of Traumatic Brain Injury. Indian J
Neurotrauma, June 2006; 3(1):9-17.
18. Giza CC. Better Never Than Late: Lasting Effects of Pediatric Traumatic Brain Injury. Indian J
Neurotrauma, June 2006; 3(1):19-26.
19. Giza CC, Santa Maria NS, and Hovda DA. N-methyl-D-aspartate receptor subunit changes following
traumatic injury to the developing brain. J. Neurotrauma, Jun, 2006; 23(6):950-61.
20. Prins ML and Giza CC. Induction of monocarboxylate transporter-2 expression and ketone transport
following traumatic brain injury in juvenile and adult rats. Dev Neurosci, 2006; 28(4-5):447-56.
21. Giza CC and Prins ML. Is being plastic fantastic? Mechanisms of impaired plasticity following
developmental traumatic brain injury. Dev Neurosci, 2006; 28(4-5):364-79.
22. Giza CC, Mink RB and Madikians A. Pediatric traumatic brain injury (TBI): Not Just Little Adults. Curr
Op Critical Care, 2007; 13(2):143-152.
23. Giza CC, Kolb B, Harris NG, Asarnow RF, Prins ML. Hitting a moving target: Basic mechanisms of
recovery after acquired developmental brain injury. Devel Neurorehab, TPDR 408928, in press, 2009.
24. Reger ML, Hovda DA and Giza CC. Ontogeny of working memory as measured by the novel object
recognition task. Devel Psychobiol, DEV-09-033R1, in press, 7/27/09.
25. Gurkoff GG, Giza CC, Shin D, Auvin S, Sankar R and Hovda DA. Traumatic Brain Injury Produces a
State of Protection from Acute Effects of Secondary Seizures. Neuroscience, NSC-09-382R1, in press,
8/4/09.
26. Babikian T, Marion SD, Copeland S, Alger JR, O’Neill J, Cazalis F, Mink R, Giza CC, Vu JA, Hilleary SM,
Kernan CL, Newman N, Asarnow RF. Metabolic levels in corpus callosum and their structural and
behavioral correlates following moderate to severe pediatric TBI. J. Neurotrauma, ID number: NEU-
2009-1058, submitted, 7/2/2009.
27. Giza CC and DiFiori J. Pathophysiology of Sports Concussion. Sport Health, submitted, 7/8/2009.
28. Madikians A and Giza CC. Management of Pediatric Traumatic Brain Injury. Curr Treat Options in
Neurol, submitted, 7/24/2009.
BOOKS/BOOK CHAPTERS
1. Giza CC and Hovda DA. Ionic and Metabolic Consequences of Concussion. In Neurologic Athletic
Head and Spine Injuries. RC Cantu, ed. Philadelphia, PA. W. B. Saunders Company, 2000.
2. Giza CC and Hovda DA. Pathophysiology of Concussion. In Sports Neuropsychology. Michael Collins,
ed. Lisse, Netherlands. Swets and Zeitlinger. 2004.
3. Bhidayashiri R, Waters M and Giza CC. Neurological Differential Diagnosis: A Prioritized Approach.
Malden, Massachusetts. Blackwell Publishing, 2005.
4. Giza CC. Traumatic Brain Injury in Children. In Pediatric Neurology: Principles and Practice. 4 th
edition. Swaiman K, Ashwal S, Ferriero D, eds. Elsevier, 2006.
5. Arndt D and Giza CC. Post-Traumatic Seizures and Epilepsy. In Pediatric Epilepsy Case Studies:
From Infancy and Childhood Through Adolescence. Chapman K, Roberts C, Rho J, eds. Elsevier,
2008.
6. Giza CC. Traumatic Brain Injury. In International Neurology: A Clinical Approach. Lisak RP, Truong
DD, Carroll W, Bhidayasiri R, eds. Blackwell Publishing. In press, 2009.
7. Prins ML, Giza CC, Hovda DA. Neurobiology of Traumatic Brain Injury Sustained During Development.
In Pediatric Traumatic Brain Injury. Anderson V and Yeates K, eds. In press, 2009.
8. Giza CC. Post-traumatic epileptogenesis: Good and Bad Plasticity. In Mechanisms of Epilepsy. Rho
J, Sankar R, Stafstrom C, eds., Submitted, 2009.
C. RESEARCH PROJECTS ONGOING OR COMPLETED DURING THE LAST THREE YEARS
ONGOING
“Restoration of plasticity following pediatric traumatic brain injury”
K02 (NS057420-1) CC Giza (PI)
NINDS/NIH Division of Stroke and Trauma
Role: PI
9 calendar months
PHS 398/2590 (Rev. 11/07) Page Continuation Format Page

9/1/2007-8/30/2012
“Traumatic Brain Injury Induced Cerebral Metabolic Depression and Recovery”
P01 (NS058489-01A2) DA Hovda (Program Director).
NINDS/NIH Division of Stroke and Trauma
Project 2: “Age-dependent use of alternative cerebral substrates during TBI-induced glucose metabolic
depression.” ML Prins (PI)
Role: Investigator
0.3 calendar months
Award letter received 2/09.
“Loss of developmental plasticity after head injury”
R01 (NS27544-07A1) DA Hovda (PI)
NINDS/NIH Division of Stroke and Trauma
Role: Co-Investigator
0.3 calendar months
4/1/06-3/31/10
COMPLETED
“NMDA receptor dysfunction after traumatic brain injury”
K08 (NS02197-01A1) CC Giza (PI). Mentor: DA Hovda
NINDS/NIH Division of Stroke and Trauma
Role: PI/Mentee
10/1/02-8/30/07
“Metabolism of alternative fuels following developmental traumatic brain injury”
R01 (NS052406) Mayumi L. Prins (PI).
NINDS/NIH Division of Stroke and Trauma
Role: Co-Investigator
0.3 calendar months
6/1/2005-5/31/2009
PHS 398/2590 (Rev. 11/07) Page Continuation Format Page

Sarah Jane Brain Family State Lead Center of Excellence
For the state of
Colorado
The Children's Hospital
www.thechildrenshospital.org
REGION: Rocky Mountain CATEGORY OF CARE: Adult Transition
(National Lead)
Program Director: Jeanne Dise‐Lewis, Ph.D. Position Title: Director of Psychology
Programs in Rehabilitation Medicine
Department: Department of Rehabilitation Medicine
Address: 13123 East 16th Avenue, Box 285, Aurora, CO 80045
Phone: 720‐777‐6642
Email: dise‐lewis.jeanne@tchden.org
Level 1 Center(s): Aurora (Children's Hospital), Denver
Level 2 Center(s): Colorado Springs, Pueblo, Greeley
Level 3 Center(s): Lakewood, Boulder, Grand Junction
Number of jobs PABI Grant creates in Colorado: 113
Budget Overview for State Lead Center
State Lead Center Management Sub‐total: $ 7,280,203
Category of Care Management Sub‐total: $ 3,829,174
Case Management Sub‐total: $ 5,908,323
State Lead Center Sub‐total: $ 17,049,701
Indirect Cost to Institution (20%): $ 3,409,940
Administrative Cost to SJBF (2%): $ 340,994
SUB‐TOTAL AMOUNT OF GRANT PROPOSAL: $ 20,800,635

The Children's Hospital Profile continued
Title/Description Sub‐total Amount for Grant
STATE LEAD CENTER MANAGEMENT
Program Director: $ 0
Program Director Assistant: $ 120,949
State Director: $ 403,165
Associate State Director: $ 174,705
State Epidemiologist: $ 268,777
State Epidemiologist Assistant: $ 120,949
State Scientific Investigation Research Coordinator: $ 228,460
State Scientific Investigation Research Assistant: $ 228,460
State Education/Training Coordinator (plus materials): $ 361,884
State General Counsel: $ 322,532
State IT Manager: $ 255,338
State Family Support Coordinator: $ 201,582
State Prevention/Awareness Coordinator: $ 201,582
State Acute Care Coordinator: $ 201,582
State Reintegration Coordinator: $ 201,582
State Adult Transition Coordinator: $ 201,582
State Mild TBI Coordinator: $ 201,582
State Mental Health Coordinator: $ 174,705
State Assistive/Emerging Technology Coordinator: $ 174,705
State Correctional System Coordinator: $ 174,705
State MISC Coordinator: $ 174,705
State Veterans Coordinator: $ 174,705
State Data Manager: $ 174,705
State Public Policy Manager: $ 201,582
State Community Relations Manager: $ 174,705
State Administrative Support: $ 725,697
Charity care: $ 413,502
Human Resources Support: $ 113,000
Training Support: $ 28,250
State Lead Center Office Space Cost: $ 397,376
State Lead Center Transportation/Travel: $ 129,600
State Lead Center Office Equipment/Communications: $ 197,500
State Lead Center Supplies: $ 128,186
Annual and Regional Conferences: $ 32,000
State Brain Injury Association Pediatric Programs: $ 103,376
STATE LEAD CENTER MANAGEMENT SUB‐TOTAL: $ 7,280,203

The Children's Hospital Profile continued
Title/Description Sub‐total Amount for Grant
CATEGORY OF CARE RESPONSIBILITY: Adult Transition (National Lead)
National Category Director: $ 468,000
National Category Epidemiologist: $ 390,000
National Category Education/Training Coordinator: $ 312,000
National Category Scientific Investigation Research: $ 312,000
National Veteran Coordinator: $ 312,000
Regional Category Director: $ 403,165
Regional Category Epidemiologist: $ 322,532
Regional Category Education/Training Coordinator: $ 268,777
Regional Category Scientific Investigation Research: $ 268,777
Regional Additional (Regional Veteran Coordinator): $ 268,777
Regional Additional Tech
Regional Category Administrative Support: $ 483,798
Regional Category Office Space Cost: $ 179,460
Regional Category Transportation/Travel: $ 180,000
Regional Category Office Equipment/Communications: $ 43,400
Regional Category Supplies: $ 57,890
CATEGORY OF CARE SUB‐TOTAL: $ 3,829,174

The Children's Hospital Profile continued
Title/Description Sub‐total Amount for Grant
CASE MANAGEMENT RESPONSIBILITY
Level 1 Center Manager(s): $ 403,165
Level 1 Center Field Specialist(s): $ 322,532
Level 1 Center SJB Family Specialist(s): $ 2,358,514
Level 1 Center Administrative Support: $ 362,848
Level 1 Office Space Cost: $ 65,127
Level 1 Transportation/Travel: $ 66,960
Level 1 Office Equipment/Communications: $ 61,600
Level 1 Supplies: $ 117,848
Level 2 Center Field Specialist(s): $ 322,532
Level 2 Center SJB Family Specialist(s): $ 1,179,257
Level 2 Transportation/Travel: $ 31,680
Level 2 Office Equipment/Communications: $ 39,900
Level 2 Supplies: $ 43,418
Level 3 Center SJB Family Specialist(s): $ 491,357
Level 3 Transportation/Travel: $ 10,530
Level 3 Office Equipment/Communications: $ 17,100
Level 3 Supplies: $ 13,956
CASE MANAGEMENT SUB‐TOTAL: $ 5,908,323
STATE LEAD CENTER SUB‐TOTAL: $ 17,049,701
INDIRECT COST TO INSTITUTION: $ 3,409,940
ADMINISTRATIVE FEE TO SJBF: $ 340,994
STATE LEAD CENTER SUB‐TOTAL: $ 20,800,635
TOTAL JOBS CREATED IN Colorado: 113

CURRICULUM VITAE
JEANNE E. DISE, Ph.D.
PERSONAL DATA:
CURRENT POSITION: Associate Professor
Departments of Physical Medicine and Rehabilitation and Psychiatry
University of Colorado Health Sciences Center
Denver, Colorado
Director of Psychology Programs in Rehabilitation Medicine
The Children’s Hospital
Denver, Colorado
BUSINESS ADDRESS: The Children’s Hospital
Department of Rehabilitation Medicine
13123 East 16 th Avenue, Box 285
Aurora, CO 80045
Phone: 720-777-6642
FAX: 720-777-7297
E mail: dise-lewis.jeanne@tchden.org
HOME ADDRESS: 6800 East 10th Avenue
Denver, CO 80220
EDUCATION:
UNDERGRADUATE: Saint Joseph's University
Philadelphia, Pennsylvania
B.S., Magna Cum Laude, 1975
Psychology
GRADUATE: University of Pennsylvania
Philadelphia, Pennsylvania
M.S., Human Learning and Development, 1977
University of Denver
Denver, Colorado
M.A., Child Clinical Psychology, 1979
University of Colorado Health Sciences Center
Denver, Colorado
Internship, Pediatric Psychology, 1982
University of Denver
Denver, Colorado
Ph.D., Child Clinical Psychology, 1984
ACADEMIC APPOINTMENTS:
Associate Professor
Departments of Rehabilitation Medicine and Psychiatry
University of Colorado Health Sciences Center
Denver, Colorado 1/2001 - present
Visiting Associate Professor
Departments of Rehabilitation Medicine and Psychiatry
University of Colorado Health Sciences Center
Denver, Colorado 1/2000 – 1/2001

Curriculum Vitae
Jeanne E. Dise
Page 2
Clinical Assistant Professor
Departments of Rehabilitation Medicine and Psychiatry
University of Colorado Health Sciences Center
Denver, Colorado 7/1997 – 12/1999
Assistant Professor
Departments of Rehabilitation Medicine and Psychiatry
University of Colorado Health Sciences Center
Denver, Colorado 7/1987 – 7/1997
Instructor
Departments of Rehabilitation Medicine and Psychiatry
University of Colorado Health Sciences Center
Denver, Colorado 1985 - 1987
Instructor
Brown University School of Medicine
Providence, Rhode Island 1982 - 1983
HOSPITAL AND
OTHER
PROFESSIONAL Director of Psychology Programs in Rehabilitation Medicine
POSITIONS: The Children’s Hospital
University of Colorado Health Sciences Center
Denver, Colorado 1/2000 - present
Director, Multidisciplinary Outpatient Rehabilitation Evaluation Clinic
The Children’s Hospital
Denver, Colorado 1990 - 2000
Chief Clinical Psychologist
Department of Rehabilitation Medicine
University of Colorado Health Sciences Center
Denver, Colorado 1985 - 1990
Chief of Clinical Services
The Wallace Village for Children
Broomfield, Colorado 1984 - 1985
Clinical Supervisor
The Wallace Village for Children
Broomfield, Colorado 1983 – 1984
Psychological Associate
Emma Pendleton Bradley Hospital
East Providence, Rhode Island 1982 - 1983

Curriculum Vitae
Jeanne E. Dise
Page 3
HONORS AND
AWARDS:
Federal TBI Program’s Most Popular State Agency Grant Product Award: “ABI in Children
and Adolescents. HRSA: April 2008
Appointed Board Member, The Colorado Traumatic Brain Injury Trust Fund
Board 2002-2009
Chair, The Colorado Traumatic Brain Injury Advisory Board, 2002-2005
Member, The Colorado Traumatic Brain Injury Advisory Board, 2000-2006
The Children’s Choice Award for Outstanding Teamwork, 1998
Phi Delta Kappa Honor Society, 1977
Graduated Magna Cum Laude, 1975
Dean’s List 1971-1975
Alpha Sigma Nu Honor Society, 1974
Psi Chi Honor Society, 1974
National Merit Scholarship, 1971
National Honor Society, 1968-1971
INVITED COMMITTEES
AND SERVICE
RESPONSIBILITIES:
National: Co-Author, Position Paper on Children and Youth with Traumatic Brain Injuries
TBI Technical Assistance Center at NASHIA
2007-8
Invited Participant: Seventh Annual Galveston Brain Injury Conference (Moody
Invitational)
Galveston, TX April 25-28, 2007
Invited Participant: Evaluation of the HRSA Traumatic Brain Injury Program, Spring 2006
Invited Participant: Sixth Annual Galveston Brain Injury Conference (Moody Invitational)
Galveston, TX May 4-6, 2006
Invited Participant: Children and Youth Work Group
TBI Technical Assistance Center at NASHIA
Denver, CO July 5 and 6, 2005
Invited Participant: National Center for Injury Control and Prevention Focus Group
Atlanta, GA November 3, 2004
Invited Participant: Health Resources and Services Administration’s (HRSA) Maternal
and Child Health Bureau / Brain Injury Association of America Taskforce on Children
and Adolescents with TBI
Member: Health Resources and Services Administration’s (HRSA) Maternal and Child
Health Bureau / Brain Injury Association of America Special Workgroup on Children
and Adolescents with TBI
Invited Participant: Symposium on TBI in Children and Youth: II
Brain Injury Association
Washington, DC December 2000

Curriculum Vitae
Jeanne E. Dise
Page 4
Invited Participant: Surveillance of Children and Youth with Traumatic Brain Injury
Centers for Disease Control and Prevention
Atlanta, Georgia October 26-27 2000
Invited Participant: Health Resources and Services Administration’s (HRSA) Maternal
and Child Health Bureau / Brain Injury Association of America Taskforce on Children
and Adolescents with TBI
Member: Health Resources and Services Administration’s (HRSA) Maternal and Child
Health Bureau / Brain Injury Association of America Special Workgroup on Children
and Adolescents with TBI
Invited Participant: Traumatic Brain Injury in Children and Youth: Visioning Process to
Prepare for the Future
Brain Injury Association; Washington, DC November 1999
Group Leader: Western Region Faculty Institute for Training
University of Colorado Health Sciences Center
Denver, CO June 7-8, 1996
State: Board Member: The Colorado Traumatic Brain Injury Trust Fund 2002-2009.
Chair, The Colorado Traumatic Brain Injury Advisory Board, 2002-2005.
Member, The Colorado Traumatic Brain Injury Advisory Board, 2000-present
Program Committee, Second Collaborative Conference on TBI, Denver, CO, 9/2005.
Program Committee, First Collaborative Conference on TBI, Denver, CO, 9/20-21/2003.
BIAC website Development Committee, CO TBI Implementation Grant, 2004.
Chair, The Colorado Traumatic Brain Injury Advisory Board, 2002-2004
Member, Colorado Advisory Board for Brain Injury: Child and Adolescent Needs and
Resources Committee, 1999-present.
Steering Committee, Statewide Resources for Child and Adolescent Brain Injury (Colorado
TBI Network Teams), 2000-present.
Community: Secretary, International Baccalaureate Program Parent Committee, George Washington
High School, Denver Public Schools, Denver CO, 9/2002-9/2007
Member, Cory Elementary School Collaborative Decision Making Board:
2000-02.
Member, Board of Directors, Montview Community Preschool and Kindergarten, Denver,
CO: 1990, 1991, 1994, 1995, 1996.
Chair, Arts Committee, Montclair School, 1995-1996.
Hospital Based:
The Children's Hospital Leadership Team 2006-present
The Children's Hospital Staff Transition Team 2005-present
Electronic Medical Records Team Leader 2004-present
The Children’s Hospital Department of Physical Medicine and Rehabilitation Inpatient
Program Continuing Education Committee 2001-present
Rehabilitation Managers 1990-present
Rehabilitation Outcomes Data Committee 1992-96
Family-Centered Care Committee 1993-95
The Children’s Hospital Psychiatry and Behavioral Sciences Department
Psychology Internship Training Committee 1990-present

Curriculum Vitae
Jeanne E. Dise
Page 5
Cleo Wallace Residential Center
Executive Committee 1983-85
Quality Assurance Committee 1983-85
Clinical Milieu Committee 1983-85
Hospital Initiative: JCAHO Policies
and Procedures Committee
1983-85
BOARD
CERTIFICATION
AND LICENSURE: Licensed to practice psychology, 1986-present: Colorado Board of Psychologist Examiners.
Diplomate in Pediatric Rehabilitation, 1990: American Board of Psychological Specialties.
REVIEW WORK: Grant Reviewer, US Department of Education, NIDRR
June 2007
Grant Reviewer, US Department of Education, OSEP
August 2004
April 2003
August 2003
TEACHING:
CONFERENCES: Director, Traumatic Brain Injury Network Teams (TNT) Second Annual Regional
Televideo Conference
Denver, CO, April 25, 2008
Director, Traumatic Brain Injury Network Teams (TNT) First Annual Regional Televideo
Conference
Denver, CO, February 9, 2007
INVITED LECTURES AND PAPER PRESENTATIONS:
Invited Addresses:
National
“The 2 nd Federal Interagency Conference on TBI: Integrating Models of Research and
Service Delivery”
Bethesda, MD: March 9-11, 2006
“Fostering Medical/Educational Collaboration for Students who have Special Healthcare
Needs”
Children’s Hospital of Philadelphia Medical Education Program: May 13, 2005
“TBI: Its Rippling Impact on Child and Adolescent Development”
The 35 th Annual Arizona Association of School Psychologists Conference
Tucson, AZ October 2003
Regional
“Acquired Brain Injury in Childhood and Adolescence: Developmental Considerations
regarding the impact on Executive Functions”
7 th Annual Research Symposium: Living with TBI: from Injury to Inspiration
Colorado State University, Fort Collins, CO, May 2008
“Executive Functions: Dilemmas and Accommodations for Youth with TBI”
The Hidden Trauma Conference

Curriculum Vitae
Jeanne E. Dise
Page 6
Englewood, CO, October 2007
“Executive Functions: A Developmental Understanding”
Full day workshop: Colorado Association of Speech/Hearing and Audiology
Denver, CO; October, 2007
“BrainSTARS: Addressing Behavioral Competency and Mental Health in Young Children
after Acquired Brain Injury”
Project Bloom and the Colorado Association for Infant Mental Health Symposium; Denver,
CO
February 8-9, 2007
“Learning& Education Strategies: What Parents can do to Optimize your Child’s Potential”
Spina Bifida Association of Colorado Educational Seminar; Denver, CO
January 30, 2007
“Executive Functions: A Developmental Understanding”
Keynote address: Colorado Speech/Hearing Association’s 21 st Annual Symposium; Denver,
CO
January 26-27, 2007
“Traumatic Brain Injury: BrainSTARS Consultation Program”
Nursing Grand Rounds: The Children's Hospital Webcast
January 24, 2007
“TBI During Development: Double Jeopardy!”
The Hidden Trauma: THE NEXT STEP Conference
Inverness Center, Engelwood, CO
September 17, 2005
“A Guide to Executive Function Interventions for Children who have TBI”
The Hidden Trauma: THE NEXT STEP Conference
Inverness Center, Engelwood, CO September 17, 2005
“The Rippling Effects of Traumatic Brain Injury on Development in Childhood and
Adolescence”
CO Department of Human Services, Division of Child Welfare
Littleton, CO June 22. 2005
“A Developmental Perspective on Acquired Brain Injury”
CO Department of Human Services / Mental Health TBI Pilot Project
Aurora, CO May 6, 2005
“Traumatic Brain Injury in Children and Adolescents: Using the BrainSTARS Manual to
Address Needs”
Colorado Child and Adolescent Mental Health Conference
Colorado Springs, CO April 12, 2005
“Behavior and Learning Challenges faced by Children who have ABI”
The Children's Hospital Neurosurgery, Neurology, Neurotrauma/Rehabilitation Nurses
Annual Conference
Denver, CO November 1, 2005

Curriculum Vitae
Jeanne E. Dise
Page 7
“Understanding and Reducing the Rippling Impact of TBI in Childhood and Adolescence”
Mental Health and TBI: Life-Long Issues and Community Service Needs
Vail, CO September 29, 2004
“BrainSTARS Training: Traumatic Brain Injury in Children”
HCP Annual All-Staff Training Day
Denver, CO May 6, 2004
“A Developmental Perspective on Acquired Brain Injury”
The Hidden Trauma: Tools for Success/ A Collaborative Conference on Pediatric TBI
Denver, CO September, 2003
“Pediatric Acquired Brain Injury: Implications for Childcare Providers” Colorado
Department of Human Services 2001 Child Care Conference,
Denver, CO September, 2001
Local “Pediatric Acquired Brain Injury: Findings from a Three-year Longitudinal Study”
The Children's Hospital 24 th Annual Community and School Health Pediatric Conference
Denver, CO June 12-13, 2008
“Brain Injury: A Topic of Public Concern for the Latino Community”
1150 AM KNRB Radio show
January 25, 2008, 12:00-3:30pm
“Pediatric ABI: Sequelae and Interventions”
JFK Partners Key Concepts Course; Denver, CO
February 5, 2007
“Understanding Mental Health Implications of TBI in Children and Adolescents”
TBI/MHC Pilot Program, CO Department of Mental Health
Aurora CO May 6, 2005
“The BrainSTARS Model: Working with Students who have Acquired Brain Injuries”
Academy School District 20 Annual Learning Services Staff Development
April 15, 2005
“The BrainSTARS Manual: A Resource for Educators and Mental Health Professionals
working with Students who have ABI”
Academy School District 20 Annual Learning Services Staff Development
April 15, 2005
“The BrainSTARS Model: Working with Students who have Acquired Brain Injuries”
Adams 12 School District Personnel Inservice Training
October 30, 2004
“The BrainSTARS Model: Working with Students who have Acquired Brain Injuries”
Douglas County Schools Personnel Inservice Training
November 17, 2004
BrainSTARS Regional Training Events in Brain Injury: in Collaboration with Colorado’s HRSA TBI Grant or TBI
Trust Fund:
Educators, HCP Personnel and Family members, Aurora Public Schools
Aurora, CO May 1, 2007

Curriculum Vitae
Jeanne E. Dise
Page 8
Educators, HCP Personnel and Family members Denver Public Schools,
Denver, CO April 16, 2007
Denver Public Schools TBI Team Training in BrainSTARS Consultation Model
Denver, CO March 1, 2007
Educators, HCP Personnel, Family members and BOCES Personnel,
Durango, CO November 2, 2006
Educators, HCP Personnel, Family members and BOCES Personnel,
Columbus, NE September 15, 2006
Educators, HCP Personnel, and BOCES Personnel,
Greeley, CO January 30, 2006
Educators, HCP Personnel, and BOCES Personnel,
Grand Junction CO November 14, 2005
Educators, HCP Personnel, and BOCES Personnel,
Holdrege, NE June 28, 2005
Educators, Family members, HCP Personnel, and BOCES Personnel,
Cortez, CO April 26, 2005
Educators, Family members, HCP Personnel, and BOCES Personnel,
Greeley, CO May, 2004
Educators, Familiy members, and BOCES Personnel
LaJunta, CO November 12, 2003
Educators, Familiy members and BOCES Personnel, Greeley, CO
October 30, 2003
Colorado Division of Youth Corrections Annual Conference and Staff Training, Glenwood
Springs, CO January 7, 2003
Family members, Educators and BOCES Personnel, Fletcher Miller School, Jefferson
County, CO
December 6, 2002
Family members, Educators and BOCES Personnel, Colorado Springs, CO
November 19-21, 2002
Family members, Educators and BOCES Personnel, Durango CO
October 18, 2002
Lectures and Presentations: “Adults with Nonverbal Learning Disorder: Developing friendships and romantic
relationships”
35 th National Spina Bifida Association Conference
Tucson, AZ; June 22-25 2008
“BrainSTARS: A Theory-driven, Team Intervention program for Students who have
Traumatic Brain Injury”
New Frontiers in Pediatric TBI Conference
San Diego, CA; November 2007

Curriculum Vitae
Jeanne E. Dise
Page 9
Concussion in High School Athletes: Data and Implications from 3 Years of Computerized
Neuropsychological Testing”
New Frontiers in Pediatric TBI Conference
San Diego, CA; November 2007
“BrainSTARS: A Theory-driven, Team Intervention program for Students who have
Traumatic Brain Injury”
5 th Annual Conference of the American Academy of Clinical Neuropsychology Denver,
CO; June 2007
Concussion in High School Athletes: Data and Implications from 3 Years of Computerized
Neuropsychological Testing”
5 th Annual Conference of the American Academy of Clinical Neuropsychology Denver,
CO; June 2007
“BrainSTARS: A Resource Manual for Parents and Educators of Children who have TBI”
23 rd Annual Pacific Rim Conference on Disabilities; Honolulu HI
March 12-14, 2007
“Concussion in High School Athletes”
23 rd Annual Pacific Rim Conference on Disabilities; Honolulu HI
March 12-14, 2007
“TBI During Development: Double Jeopardy!”
2006 Annual Conference of Brain Injury Association of Colorado
Vail, CO; September 2006
“Concussion in High School Athletes and Beyond”
2006 Annual Conference of Brain Injury Association of Colorado
Vail, CO; September 2006
“How to Build and Use a TBI Team around your Student: the BrainSTARS Model”
2006 Annual Conference of Brain Injury Association of Colorado
Vail, CO; September 2006
“Pediatric TBI: Treatment of Neurobehavioral Consequences”
2004 Annual Conference of Brain Injury Association of Colorado
Vail, CO; September 2005
“An Investigation of Mental Processing Speed in Children after TBI”
2004 Annual Conference of Brain Injury Association of Colorado
Vail, CO September 2004
“Managing Behavior using an Antecedents-Based Approach”
2004 Annual Conference of Brain Injury Association of Colorado
Vail, CO; September 2004
“Making Classroom Decisions for Students with TBI: An Interactive Session”
Council on Exceptional Children 2004 Expo and Convention
New Orleans, LA; April 2004

Curriculum Vitae
Jeanne E. Dise
Page 10
“Traumatic Brain Injury in Children and Adolescents: Using the BrainSTARS Manual to
Address Needs”
Courage to Risk Conference
Colorado Springs, CO; February 2004
“TBI Board and Trust Fund: Children and Adolescents”
Colorado HCP Network Conference
Denver, CO; January 2004
“Understanding the Cognitive and Educational Test Profiles of Students with ABI”
The Hidden Trauma: Tools for Success/ A Collaborative Conference on Pediatric TBI
Denver, CO September, 2003
“The Learning Challenges of Children and Adolescents with TBI”
Brain Injury Association of Colorado Annual Conference
Vail, CO October, 2003
Acquired Brain Injury in Students: What All School Psychologists Should Know”
Colorado Society of School Psychologists Annual Convention
Beaver Creek, CO; November 2002
“Using the BrainSTARS Manual to Understand and Accommodate Deficiencies Related to
ABI in Students”
Colorado Society of School Psychologists Annual Convention
Beaver Creek, CO November 2002
“Lessons Learned from School Consultation for Students with ABI”
Colorado Society of School Psychologists Annual Convention
Beaver Creek, CO November 2002
“The BrainSTARS Project: Where We’ve Been and Future Directions”
Rehabilitation Science and Engineering Consortium Meeting
Denver, CO November, 2002
“BrainSTARS: A Model Demonstration Project for Students with ABI”
Second Annual Coleman Institute on Cognitive Disabilities
Boulder, CO October, 2002
“Pediatric Acquired Brain Injury: Implications for Child Protection Teams”
Colorado Child Welfare Annual Conference
Vail, CO October, 2002
“Supports and Resources for Children and Families with TBI in Colorado”
Brain Injury Association of Colorado Annual Conference
Vail, CO October, 2002
“School Consultations for Students with Acquired Brain Injury”
OSEP Leadership and Research Project Directors Conference
Washington, D.C. July, 2002
“Lessons Learned from School Consultations for Students with Acquired Brain Injury”
Brain Injury Association of America Annual Conference
Minneapolis, MN July, 2002

Curriculum Vitae
Jeanne E. Dise
Page 11
“Traumatic Brain Injury in Children: What School Personnel Need to Know”
18 th Annual Community and School Health Pediatric Conference
The Children’s Hospital
Denver, CO June 13-14, 2002
“Acquired Brain Injury in Children and Adolescents: Recognizing and Responding to
Psychological Features”
Mental Health Centers of Boulder Valley, Inc.
Boulder, CO, May 2, 2002
“Acquired Brain Injury in Children and Adolescents: Background and Developmental
Issues”
Mental Health Centers of Boulder Valley, Inc.
April 25, 2002
“Traumatic Brain Injury in School-age Children and Adolescents”
Partnering for Health: Colorado Statewide School Health Conference
Colorado Association of School Nurses Annual Conference
Winter Park CO April 25-27, 2002
“Acquired Brain Injury in Children and Adolescents: Using the BrainSTARS Model to
Intervene”
Pacific Rim Conference on Disability Studies
Honolulu, HI March 25, 2002
“BrainStars: Brain Injury – Strategies for Teams and Re-education for Students”
Pacific Rim Conference on Disability Studies
Honolulu, HI March 25, 2002
“School Challenges for Students with Brain Injury”
Pacific Rim Conference on Disability Studies
Honolulu, HI March 25, 2002
“BrainSTARS: Partners in Prevention”
Fifth Annual Administration for Children and Families, West-Central Tribal Child
Care/Tribal Roundtable Conference: Strengthening Families through Quality Service
Denver, CO March 19-21, 2002
“Pediatric Acquired Brain Injury: Using the BrainStars Manual to Understand and Respond
to Problems”
Brain Injury Association of Colorado
Denver, Colorado October, 2001
“The Rippling Effects of Pediatric Brain Injury”
Inservice presentation to Victims Assistance and EMT Teams
Colorado State Patrol
Golden, CO September, 2001
“Lessons Learned from School Consultation for Children and Youth with ABI”
Brain Injury Association Annual Conference
Atlanta, GA July, 2001

Curriculum Vitae
Jeanne E. Dise
Page 12
“Acquired Brain Injury: A rippling event in children’s lives”
Executive Committee of State of Colorado: Directors of Programs Serving Children and
Youth
Denver, CO February 23, 2001
“The Effects of Reduced Mental Processing Speed on Academic Performance”
Courage to Risk: Thirteenth Collaborative Conference for Special Education
Colorado Springs, CO February 2001
“Acquired Brain Injury: The Rippling Effects in Children’s Lives”
Brain Injury Association of Colorado Annual Conference
Vail, CO October 2000
“Brain Injury: Strategies for Teachers and Re-education for Students”
Courage to Risk: Twelfth Collaborative Conference for Special Education
Colorado Springs, CO February 2000
“BrainStars: A Child’s Path to Recovery from Brain Injury”
Brain Injury Association of Colorado Annual Conference
Vail, CO October 1999
“BrainStars: Answering your Questions about Pediatric Brain Injury”
Brain Injury Association of Colorado Annual Conference
Vail, CO October 1999
“Child Developmental Considerations in Reactions to Burn Injury”
The Childrens’ Hospital Burn Team
Denver, CO Spring 1999
“Deficits in conceptual reasoning abilities in adolescents with Spina Bifida: Implications
and Interventions
International Symposium on Spina Bifida
Verona, Italy May, 1999
“Pediatric Rehabilitation: Psychosocial Issues”
Residents in Developmental Medicine and Pediatrics
University of Colorado Health Sciences Center
Denver, CO Spring 1999
“Questions and Answers about Pediatric TBI”
Brain Injury Association of Colorado Annual Conference
Vail, CO October, 1998
“Daily Challenges Following Pediatric Traumatic Brain Injury”
Brain Injury Association of Colorado Annual Conference
Vail, CO October, 1998
“Adaptations for Learning Enhancement: Learning and Education Strategies” Colorado
Spina Bifida Association
Denver, CO October, 1998
“Traumatic Brain Injury: Cognitive, Learning, and Psychosocial Aspects”
14th Annual Community and School Health Conference

Curriculum Vitae
Jeanne E. Dise
Page 13
The Children's Hospital; Denver, CO June, 1998
“The Effects of Pediatric Traumatic Brain Injury on Mental Processing Speed” 22nd Annual
Williamsburg Conference: Cognitive, Neuromedical and Behavioral Aspects of Brain
Injury
Williamsburg, VA, June, 1998
“Pediatric Traumatic Brain Injury and the Relationships Among Thinking- Behavior-
Emotional Systems”
22nd Annual Williamsburg Conference: Cognitive, Neuromedical and Behavioral Aspects
of Brain Injury
Williamsburg, VA June, 1998
“Impact of Reduced Mental Processing Speed on Educational Performance” Brain Injury
Association of Colorado Annual Conference
Vail, CO 1997
“School-Based Accommodations for Pediatric Traumatic Brain Injury”
Brain Injury Association of Colorado Annual Conference
Vail, CO 1997
“Multidisciplinary Assessment of Pediatric Traumatic Brain Injury”
Brain Injury Association of Colorado Annual Conference
Vail, CO 1997
“The Recovery of Mental Processing Speed Following Pediatric Traumatic Brain Injury”
Brain Injury Association of Colorado Annual Conference
Vail, CO 1997
“An Examination of the Deficits in Conceptual Reasoning Abilities Associated With Spina
Bifida”
Association of Academic Physiatrists Annual Meeting
Colorado Springs, CO March, 1997
“Troubleshooting Cognitive Processing in the DD Client”
Colorado Association of Nurses for the Developmentally Disabled
Annual Conference
Spring 1997
“Understanding and Accommodating the Learning Styles of Non-traditional Students”
Pikes Peak Special Education Advisory Council
Monument, CO January, 1997
“A Team-based Approach to Assessment and Consultation following Traumatic Brain
Injury”
10th Annual Cognitive Rehabilitation Conference
Washington, D.C. September, 1996
“The Recovery of Mental Processing Speed Following Traumatic Brain Injury” 10th
Annual Cognitive Rehabilitation Conference
Washington, D.C. September, 1996

Curriculum Vitae
Jeanne E. Dise
Page 14
LECTURE SERIES AND WORKSHOPS
“Neurodevelopmental Assessment”
The Children’s Hospital Residents in Pediatrics and Rehabilitation
Denver, CO July 1996
“Treating Adolescents in Rehabilitation Therapies”
Department of Rehabilitation Medicine
University of Colorado Health Sciences Center
Denver, CO June 1996
“Stress and Coping in the Workplace”
Working Women Count!
U.S. Department of Labor Women’s Bureau Conference
Denver, CO 1996
“A Holistic Approach to Understanding Spina Bifida”
Eleventh Annual Pacific Rim Conference
Honolulu, HA January, 1995
“Neuropsychological and Psychosocial Concomitants of Spina Bifida”
Colorado Association of School Nurses
March, 1994
“Stressful Life Events and Coping in Children”
Denver Psychobiological Research Group
Denver, CO Spring 1994
“Neuropsychological and Educational Outcomes Following Traumatic Brain Injury”
First Annual TBI Consortium
Denver, CO 1992
“Psychosocial Adaptation to Limb Loss”
University of Colorado Health Sciences Center
Denver, CO January 22-23, 1988
“Children's Coping with Stress: Effects on Depression and Psychosomatic Symptoms”
Annual Convention of the American Psychological Association
Anaheim, CA 1983
“Psychological Stress, Social Support Systems, and Pregnancy Complications in
Adolescents”
Annual Convention of the American Psychological Association
Montreal, Canada 1980
“Acquired Brain Injury in Children and Adolescents Part II: Cognitive and
Psychoemotional Assessment and Interventions”
Boulder Valley Mental Health Systems
Boulder, CO May 2, 2002 (2 C.E.U.s)

Curriculum Vitae
Jeanne E. Dise
Page 15
“Acquired Brain Injury in Children and Adolescents Part I: Background and
Developmental Interactions”
Boulder Valley Mental Health Systems
Boulder, CO April 26, 2002 (2 C.E.U.s)
“BrainStars: Partners in Prevention”
West-Central Hub Tribal Child Care Meeting
U.S. Department of Health and Human Services Administration
Denver, CO March 19-21, 2002
“Acquired Brain Injury in Children and Adolescents: What Every School Psychologist
Needs to Know”
Denver Public Schools
Denver, CO January 11, 2002 (3 C.E.U.s)
“Acquired Brain Injury: Implications for School Personnel”
Denver Public Schools
Denver, CO September, 2001 (3 C.E.U.s)
“Acquired Brain Injury in Children and Youth” Two 3-hour inservice presentations to
Denver Child Find Teams.
Denver, CO August, 2001 (6 C.E.U.s)
“BrainStars: An Inservice Training for Teachers”
Denver Public Schools
Denver, CO May 2001 (3 C.E.U.s)
“Understanding and Responding to Common Classroom Problems of Students with
Acquired Brain Injury”
Denver Public Schools
Denver, CO March 2001 (3 C.E.U.s)
“BrainStars: An Inservice Training for Teachers”
Cherry Creek School District
Englewood, CO February 2001 (4 C.E.U.s)
“Acquired Brain Injury in Children”
The Children’s Hospital of Philadelphia Inservice Training
Philadelphia, PA November, 2000
“Understanding and Responding to Common Classroom Problems of Students with
Acquired Brain Injury”
Boulder Valley Public Schools
Boulder, CO April 28, 2000 (2 C.E.U.s)
“BRAINSTARS: An Inservice Training for Teachers”
Boulder Valley Public Schools
Boulder, CO January 24, 2000 (4 C.E.U.s)
“BRAINSTARS: A Community Forum on Brain Injury in Children”
Boulder, CO January 24, 2000

Curriculum Vitae
Jeanne E. Dise
Page 16
“Pediatric Acquired Brain Injury”
Developmental Evaluation Clinics
Health Care Program for Children with Special Needs
Colorado Department of Public Health and Environment
Family and Community Health Services
Denver, CO January 14, 2000 (4 C.E.U.s)
“Pediatric Psychology”
Eight-part lecture series for clinical psychology interns and post-doctoral fellows
The Children’s Hospital
Denver, CO 1990-present
“BRAINSTARS: Brain Injury: Strategies for Teachers and Re-education for Students”
Two day workshop for educators, parents and school personnel
Manhattan, KS October, 1998 (6 C.E.U.s)
“Pediatric Acquired Brain Injury: A Community Forum”
Manhattan, KS October, 1998
“Psychological, Social, and Cognitive Considerations for the Pediatric Rehabilitation
Physician”
Four-part lecture series for physiatry residents
The Children’s Hospital and University of Colorado Health Sciences Center Denver, CO
1990-1997
“Traumatic Brain Injuries: Moving Forward”
Workshop for teenagers and parents to retrain cognitive skills following traumatic brain
injury
Denver, CO Spring-Summer-Fall, 1997
“Pediatric Traumatic Brain Injury: Comprehensive Assessment, Curricular Adaptations and
Remediation”
Two day workshop
Manhattan School District October, 1997 (6 C.E.U.s)
“Pediatric Acquired Brain Injury: A Community Forum”
Manhattan, Kansas October, 1997
“Recognizing Stress and Facilitating Coping in Children”
A series of training workshops, radio broadcasts, and group sessions presented at public
schools, residential treatment centers, and hospital units
Colorado
1982 - 1987
“Cognitive, Developmental, and Social-Emotional Considerations in Spina Bifida”
University of Colorado Health Sciences Center School of Nursing
Denver, CO 2 lectures: June 1995
“Developmental Considerations in Pediatric Traumatic Brain Injury”
University of Colorado Health Sciences Center School of Nursing
Denver, CO 2 lectures: June 1995

Curriculum Vitae
Jeanne E. Dise
Page 17
GRANTS:
“Psychological and Emotional Development: Implications for Health Providers”
Six part lecture series
University of Colorado Health Sciences Center, Physical Therapy School
Denver, CO 1985-1989
Principle Investigator Lewis, H.C. and Dise-Lewis, J.E. Preparing School Psychologists to Serve Students who
have Traumatic Brain Injury. U.S. Department of Education, Office of Special Education
and Rehabilitation Services, Office of Special Education Programs; # H325K080310;
7/30/08-7/30/12. Budget: $800,000.
Site Coordinator Glang, A and Todis, B. “Systematic Hospital-to-School Transition for Students with
Traumatic Brain Injury,” NIDRR Multicenter Grant. 5/2007-5/2012.
Principle Investigator Dise-Lewis, J.E. A Longitudinal Investigation of Outcomes Associated with Pediatric
Traumatic Brain Injury. Centers for Disease Control and Prevention # 1 R49 CE000394-01;
9/30/04-9/30/07. Budget: $900,000.
Principle Investigator Dise, J.E. Pediatric Traumatic Brain Injury Bridge Grant. The Children’s Hospital Research
Institute, Denver CO. 10/1/03-7/30/04. Budget: $35,000.
Principle Investigator Dise, J.E. BRAINSTARS: Brain Injury - Strategies for Teams and
Re-Education for Students. U.S. Department of Education, Office of Special
Education and Rehabilitation Services, 6/1999 - 6/2003. Budget: $600,000
PUBLICATIONS
Journal Articles
Peer Reviewed:
Brenner LA, Dise-Lewis JE, Bartles SK, O’Brien SE, Godleski M, Selinger M (2007).
The long-term impact and rehabilitation of pediatric brain injury: A 50 year follow-up
case study. Journal of Head Trauma Rehabilitation, 22(1), 43-51.
Glang A, Dise-Lewis JE, Tyler J. (2006). Identification and appropriate service delivery
for children who have TBI in schools. Journal of Head Trauma Rehabilitation- Abstracts,
23:26, 411-412.
Dise, J.E. (2001). A developmental perspective on psychological principles of burn care.
Journal of Burn Care and Rehabilitation, 22(3), 255-260.
Calvery, M.L. and Dise, J.E. (2000). Cognitive problems associated with spina bifida.
Child’s Nervous System.
Dise, J.E. and Lohr, M.E. (1998). Examination of deficits in conceptual reasoning abilities
associated with spina bifida. American Journal of Physical Medicine & Rehabilitation, 8,
247-251.
Dise-Lewis, J.E. (1988). The Life Events and Coping Inventory: An assessment of life
stress in children. Journal of Psychosomatic Medicine, 50, 484-499.

Curriculum Vitae
Jeanne E. Dise
Page 18
Non-Peer Dise-Lewis, J.E. (2002) Mild traumatic brain injury in children and
Reviewed: adolescents. The Children’s Hospital PM&R Update, 5-2.
Dise-Lewis, J.E. (2000). Acquired brain injury in children. School Health
Reporter, 1-4.
Dise-Lewis, J.E. (1999). Pediatric acquired brain injury. The Children’s Hospital PM&R
Update 2(3), 1-4.
Dise-Lewis, J.E. ( 1995). Spina bifida: Cognitive disabilities and academic
remediations. In Information and Strategies for a Better Understanding of Students with
Spina Bifida. Colorado Spina Bifida Association, Denver, CO.
Books: Dise, J.E., Calvery, M.E., and Lewis, H.C. (2001). BrainSTARS Manual. Wake Forest, NC:
Lash and Associates Publishing/Training.
Dise, J.E. and Dettmer, J. (2000). Traumatic Brain Injury: A Manual for Educators.
Denver, CO: Colorado Department of Education.
DVD: Dise-Lewis, J.E. (2007) Acquired brain injury in children and adolescents: Weaving a
safety net through education and training. Colorado Department of Health, Healthcare
Programs for Children with Special Needs, training DVD.
Text Chapters: Dise-Lewis, J.E. (1994). Approaches to facilitate social/emotional growth in medically
fragile infants and toddlers. In Lewis, H.C. Medically fragile infants and toddlers: An
interdisciplinary training curriculum. Denver, Colorado: J.F.K. Center for Developmental
Disabilities, University of Colorado Press.
Dise-Lewis, J.E. (1988). Psychosocial adaptation to limb loss. In R. Meier, and Atkins,
D., (Eds). Comprehensive management of the upper limb amputee. New York: Springer
Verlag.
PROFESSIONAL AFFILIATIONS:
Member, American Board of Medical Psychotherapists
Member, American College of Forensic Examiners
Member, American Congress of Rehabilitation Medicine
Member, American Psychological Association (APA)
Member, Brain Injury Association of Colorado
Member, Colorado Psychological Association
Member, Division of Clinical Neuropsychology, APA
Member, Division of Rehabilitation Psychology, APA
Member, National Register of Health Service Providers in Psychology
CONTINUING EDUCATION:
Courses Attended:
2008
October Healing Touch for Self-Care. Denver CO 8 hours

Curriculum Vitae
Jeanne E. Dise
Page 19
2005
September The Hidden Trauma: A Collaborative Conference on Traumatic Brain Injury Denver CO 12 hours
2003
September The Hidden Trauma: A Collaborative Conference on Traumatic Brain Injury Denver CO 12 hours
April Council on Exceptional Children Annual Conference, Seattle, WA
12 hours
2001
November Achieving New Heights with Denver, CO 12 hours
Assistive Technology
July TBI Educators Conference Atlanta, Georgia 6 hours
2000
April Annual Conference on Denver, CO 16 hours
Language and Learning
July TBI Educators Conference Chicago, IL 6 hours
1999
June 23 rd Annual Williamsburg Conf. Richmond, VA 22.5 hours
Cognitive, Neuromedical &
Behavioral Aspects of Brain
Injury
January JFK Partners 30 th Anniversary Denver, CO 4 hours
Conference of the UAP
Univ. of Colorado Health
Sciences Center
1998
June 22nd Annual Williamsburg Conf. Richmond, VA 22.5 hours
Cognitive, Neuromedical &
Behavioral Aspects of Brain Injury
1997
June 21st Annual Williamsburg Conf. Richmond, VA 22.5 hours
Cognitive, Neuromedical &
Behavioral Aspects of Brain
Injury
1996
June 20th Annual Williamsburg Conf. Richmond, VA 22.5 hours
Cognitive, Neuromedical &
Behavioral Aspects of Brain Injury
1995
June 19th Annual Williamsburg Conf. Richmond, VA 22.5 hours
Cognitive, Neuromedical &
Behavioral Aspects of Brain
Injury
Courage to Risk: Seventh Colorado Springs, CO 12 hours
Collaborative Conference for Special Education

Curriculum Vitae
Jeanne E. Dise
Page 20
1994
Traumatic Brain Injury Philadelphia, PA 18 hours
Children’s Hospital of
Philadelphia
Univ. of Pennsylvania
School of Medicine
Philadelphia, Pennsylvania
Programming for Children Cape May, NJ 6 hours
with Disabilities Within
Natural Environments and
Inclusive Settings
Rutgers University
Temple University School of Medicine
Philadelphia, Pennsylvania
1993
April University of California-San Diego San Diego, CA 14.5 hours
School of Medicine Cat. 1 CE
West Coast Neuropsychology
Conference
Neuropsychology With Children
April Ralph Reitan, Ph.D. Scottsdale, AZ 24 hours
Workshop in Clinical Neuropsychology
Ralph Reitan, Ph.D. Scottsdale, AZ 24 hours
Advanced Workshop in Child
Neuropsychology
REFERENCES: Jeffrey I. Dolgan, Ph.D.
Chief of Psychology
The Children’s Hospital
13123 East 16 th Avenue, B130
Aurora, CO 80045
720-777-6093
720-777-7311 FAX
Richard Finkel, M.D.
Children’s Hospital of Philadelphia
Division of Neurology
6 Wood Building
34 th & Civic Center Blvd.
Philadelphia, PA 19104
215-590-2763
Arthur C. Jones, Ph.D.
University of Denver
Department of Psychology
Denver, CO 80210
303-871-3306 303-871-4747 FAX

Curriculum Vitae
Jeanne E. Dise
Page 21
Dennis J. Matthews, M.D.
Director, Department of Physical
Medicine and Rehabilitation
The Children’s Hospital and
University of Colorado Health
Sciences Center
13123 East 16 th Avenue, B285
Aurora, CO 80045
720-777-3907
720-777-7297 FAX
Charles S. Reichardt, Ph.D.
University of Denver
Department of Psychology
Denver, CO 80210
303-871-3783
303-871-4747 FAX
Cordelia Robinson, Ph.D
Director, JFK Partners
University of Colorado Health
Sciences Center
13121 E. 17th Ave C234
PO Box 6511
Aurora, CO 80045
303-724-7680
303-724-7664 FAX
Sally J. Rogers, Ph.D.
Professor of Psychiatry
M.I.N.D. Institute
University of California – Davis
Medical Center
4860 Y Street, Suite 3020
Sacramento, CA 95817
916-734-7809
916-734-7185 FAX
Stephen Shirk, Ph.D.
University of Denver
Department of Psychology
Denver, CO 80210
303-871-3306
303-871-4747 FAX
Janet Stewart, M.D.
Rehabilitation Department
The Childrens Hospital
13123 East 16 th Avenue, Box 285
Aurora, CO 80045
720-777-6633
720-777-7297 FAX

Sarah Jane Brain Family State Lead Center of Excellence
For the state of
Connecticut
Yale‐New Haven Children's Hospital
www.ynhh.org
REGION: Northeast CATEGORY OF CARE: Adult Transition
Program Director: Linda Degutis, DrPH, MSN Position Title: Director
Department: Yale Center for Public Health Preparedness Major Subdivision: Department of
Emergency Medicine
Address: 464 Congress Avenue, Suite 260, New Haven, CT 06519
Phone: 203‐785‐4363
Email: linda.degutis@yale.edu
Level 1 Center(s): Harford, New Haven
Level 2 Center(s): Norwich, Bridgeport, Danbury, New Britian
Level 3 Center(s): 0
Number of jobs PABI Grant creates in Connecticut: 99
Budget Overview for State Lead Center
State Lead Center Management Sub‐total: $ 7,873,538
Category of Care Management Sub‐total: $ 2,383,691
Case Management Sub‐total: $ 5,109,893
State Lead Center Sub‐total: $ 15,399,122
Indirect Cost to Institution (20%): $ 3,079,824
Administrative Cost to SJBF (2%): $ 307,982
SUB‐TOTAL AMOUNT OF GRANT PROPOSAL: $ 18,786,929

Yale‐New Haven Children's Hospital Profile continued
Title/Description Sub‐total Amount for Grant
STATE LEAD CENTER MANAGEMENT
Program Director: $ 69,038
Program Director Assistant: $ 131,972
State Director: $ 439,907
Associate State Director: $ 190,626
State Epidemiologist: $ 293,271
State Epidemiologist Assistant: $ 131,972
State Scientific Investigation Research Coordinator: $ 249,280
State Scientific Investigation Research Assistant: $ 249,280
State Education/Training Coordinator (plus materials): $ 332,034
State General Counsel: $ 351,925
State IT Manager: $ 278,607
State Family Support Coordinator: $ 219,953
State Prevention/Awareness Coordinator: $ 219,953
State Acute Care Coordinator: $ 219,953
State Reintegration Coordinator: $ 219,953
State Adult Transition Coordinator: $ 219,953
State Mild TBI Coordinator: $ 219,953
State Mental Health Coordinator: $ 190,626
State Assistive/Emerging Technology Coordinator: $ 190,626
State Correctional System Coordinator: $ 190,626
State MISC Coordinator: $ 190,626
State Veterans Coordinator: $ 190,626
State Data Manager: $ 190,626
State Public Policy Manager: $ 219,953
State Community Relations Manager: $ 190,626
State Administrative Support: $ 791,832
Charity care: $ 446,040
Human Resources Support: $ 99,000
Training Support: $ 24,750
State Lead Center Office Space Cost: $ 428,644
State Lead Center Transportation/Travel: $ 113,400
State Lead Center Office Equipment/Communications: $ 197,500
State Lead Center Supplies: $ 138,272
Annual and Regional Conferences: $ 32,000
State Brain Injury Association Pediatric Programs: $ 127,440
STATE LEAD CENTER MANAGEMENT SUB‐TOTAL: $ 7,873,538

Yale‐New Haven Children's Hospital Profile continued
Title/Description Sub‐total Amount for Grant
CATEGORY OF CARE RESPONSIBILITY: Adult Transition
Regional Category Director: $ 439,907
Regional Category Epidemiologist: $ 351,925
Regional Category Education/Training Coordinator: $ 293,271
Regional Category Scientific Investigation Research: $ 293,271
Regional Additional (Regional Veteran Coordinator): $ 293,271
Regional Category Administrative Support: $ 527,888
Regional Category Office Space Cost: $ 124,445
Regional Category Transportation/Travel: $ 157,500
Regional Category Office Equipment/Communications: $ 27,900
Regional Category Supplies: $ 40,144
CATEGORY OF CARE SUB‐TOTAL: $ 2,383,691

Yale‐New Haven Children's Hospital Profile continued
Title/Description Sub‐total Amount for Grant
CASE MANAGEMENT RESPONSIBILITY
Level 1 Center Manager(s): $ 418,959
Level 1 Center Field Specialist(s): $ 335,167
Level 1 Center SJB Family Specialist(s): $ 2,287,514
Level 1 Center Administrative Support: $ 377,063
Level 1 Office Space Cost: $ 66,906
Level 1 Transportation/Travel: $ 55,800
Level 1 Office Equipment/Communications: $ 61,600
Level 1 Supplies: $ 121,068
Level 2 Center Field Specialist(s): $ 301,650
Level 2 Center SJB Family Specialist(s): $ 980,363
Level 2 Transportation/Travel: $ 23,760
Level 2 Office Equipment/Communications: $ 39,900
Level 2 Supplies: $ 40,144
CASE MANAGEMENT SUB‐TOTAL: $ 5,109,893
STATE LEAD CENTER SUB‐TOTAL: $ 15,399,122
INDIRECT COST TO INSTITUTION: $ 3,079,824
ADMINISTRATIVE FEE TO SJBF: $ 307,982
STATE LEAD CENTER SUB‐TOTAL: $ 18,786,929
TOTAL JOBS CREATED IN Connecticut: 99

Principal Investigator/Program Director (Last, First, Middle):
BIOGRAPHICAL SKETCH
Provide the following information for the key personnel and other significant contributors in the order listed
on Form Page 2.
Follow this format for each person. DO NOT EXCEED FOUR PAGES.
NAME
Degutis, Linda C.
POSITION TITLE
eRA COMMONS USER NAME
ldegutis
Associate Professor
EDUCATION/TRAINING (Begin with baccalaureate or other initial professional education, such as
DEGREE
INSTITUTION AND LOCATION
(if
applicable)
YEAR(s) FIELD OF STUDY
DePaul University, Chicago, Illinois BS 1975 Major in Nursing
DePaul University, Chicago, Illinois 1976-78 Basic Science
Yale University Graduate School of Nursing,
New Haven, Connecticut
MSN 1982 Cardiovascular CNS
Yale University School of Medicine, New Haven,
CT
A. POSITIONS AND HONORS
DrPH 1994
Chronic Disease
Epidemiology
1975-1976 Staff Nurse/Charge Nurse, Rush-Presbyterian St. Luke’s Medical Center, Chicago, IL
1978 Staff Nurse, Emergency Department, Norwalk Hospital, Norwalk, CT
1978-1982 Staff Nurse/Charge Nurse, Yale-New Haven Hospital, New Haven, CT
1982-1990 Trauma Program Coordinator, Yale School of Medicine, New Haven, CT
1982-1994 Clinical Instructor, Yale University Graduate School of Nursing, New Haven, CT
1984-1995 Lecturer, Dept of Surgery, Yale School of Medicine, New Haven, CT
1986-1987 Research Assistant, National Acute Spinal Cord Injury Study, II, Section of Neurosurgery,
Yale School of Medicine, New Haven, CT
1990-1991 Trauma Program Director, Dept of Surgery, Yale School of Medicine, New Haven, CT
1991-1992 Trauma Coordinator, Dept of Surgery, Bridgeport Hospital, Bridgeport, CT
1992-1995 Trauma Program Coordinator, Dept of Surgery, Yale School of Medicine, New Haven, CT
1993-1996 Subinvestigator\Research Associate, National Acute Spinal Cord Injury Study III, Section of
Neurosurgery, Yale School of Medicine, New Haven, CT
1994-2001 Assistant Clinical Professor, Yale University Graduate School of Nursing, New Haven, CT
1994-1998 Co-Director, New Haven Regional Injury Prevention Program, Dept of Surgery, Section of
Emergency Medicine, Yale School of Medicine
1995-2001 Assistant Professor, Section of Emergency Medicine, Dept of Surgery, Yale School of
Medicine
9/96-10/97 Health Policy Fellow Office of Senator Paul Wellstone, Washington, DC, Robert Wood
Johnson Health Policy Fellowship Program and Institute of Medicine
1997- 2004 Associate Research Director, Section of Emergency Medicine, Dept of Surgery, Yale School
of Medicine
1998-2002 Director, New Haven Regional Injury Prevention Program, New Haven, CT
1991-2001 Assistant Professor, Dept of Epidemiology and Public Health, Yale School of Medicine
1999 - Co-Director, Project ASSERT: A Program to Provide Health Assessment and Substance
Abuse Screening in the Emergency Department, Yale New Haven Hospital, New Haven, CT
1999-2002 Director, New Haven Community Epidemiology Work Group, New Haven Fighting Back
Project, New Haven, CT
1999-2001 Member, Technical Advisory Group for the redesign of DAWN (Drug Abuse Warning Network)
SAMHSA
2000-2003 Mentor, Project MAINSTREAM, HRSA/AMERSA/SAMHSA-CSAT Faculty Development
Program in Substance Abuse Education
2001 - Affiliate Faculty, Robert Wood Johnson Clinical Scholars Program, Yale School of Medicine
PHS 398/2590 (Rev. 09/04, Reissued 4/2006) Page 1 Biographical Sketch Format Page

2001 - Associate Professor, Sect of Emergency Med, Dept of Surgery; Environmental Health
Division, School of Public Health, Yale University, New Haven, CT
2001 - Associate Clinical Professor, Yale School of Nursing, New Haven, CT
2001 - Member, Trauma Information and Exchange Program Advisory Board, Johns Hopkins School of
Public Health, Baltimore, MD
2002 - 2004 Member, Technical Advisory Group, new DAWN implementation, SAMHSA
2004 - Research Director, Section of Emergency Medicine, Yale School of Med, New Haven, CT
2005 - Director and Co-PI, Yale Center for Public Health Preparedness, Yale School of Public Health
2007 Distinguished Career Award, Injury Control and Emergency Health Services Section,
American Public Health Association
2007 – 2008 President, American Public Health Association
2008 - Fellow (Hon), Royal Society for Public Health
2008 – 2009 Immediate Past President, American Pubic Health Association
2008 - Member, Advisory Board, Robert Wood Johnson Health Policy Fellowship Program, Institute of
Medicine
2008 - Member, Executive Board, Advocates for Highway and Auto Safety
B. SELECTED PEER-REVIEWED PUBLICATIONS (IN CHRONOLOGICAL ORDER)
1. Baker CC, Degutis LC, DeSantis JG, Baue AE. The impact of a trauma service on trauma care in a
university hospital. Am J Surg, 149 (4):453-8, 1985.
2. Baker CC, Degutis LC. Predicting outcome in the multiple trauma patient. Infect in Surg, 5 (4):243-5,
1986.
3. Gertler J, Degutis LC, Garvey R, Clay R, Baker CC. Pitfalls in the diagnosis and management of blunt
splenic trauma. Conn Med, 50 (10):645-7, 1987.
4. Degutis LC, Baker CC. Trauma in the elderly - a statewide perspective. Conn Med, 50(3):161-164, 1987.
5. Ross P, Degutis LC, Baker CC. Cardiac contusion: The effect on operative management of the trauma
patient. Arch Surg, 124:506-7, 1989.
6. Longo WE, Baker CC, McMillen MA, Modlin IM, Degutis LC, Zucker KA. Non-operative management of
blunt splenic trauma in adults: criteria for success. Ann Surg, 2 10 (5) 626-9, 1989
7. Higgins RS, Sanchez JA, Degutis LC, Dewar MC, Franco KL, Kopf GS, Elefteriades JA, Hammond GL,
Baldwin JC. Mechanical circulatory support decreases neurologic complications in the treatment of
traumatic injuries of the thoracic aorta. Arch Surg, 127 (5): 516-9, 1992.
8. Burns GA, Cohn SM, Frumento RJ, Degutis LC, Hammers L. Prospective ultrasound evaluation of venous
thrombosis in high-risk trauma patients. J Trauma, 1993 Sept; 35(3):405-408.
9. Gabram SGA, Libby MCN, Jacobs LM, Atweh N, Degutis LC, Reich JJ, Ryan N, Thomas RG, Zelman J.
Peer review of on-scene air medical triage in Connecticut. Conn Med, 58(1):3-12 1994
10. Cohn SM, Pollak JS, McCarthy S, Degutis LC. Detection of aortic tear in the acute trauma patient using
MRI. MRI, 12(6):963-967, 1994.
11. Bretsky PM, Blanc DC, Phelps S, Ransom JA, Degutis LC, Groce NE. Epidemiology of firearm mortality
and injury estimates: State of CT, 1988-1993. Ann Emerg Med, 28(2):176-182, 1996.
12. Moscovitz H, Degutis L, Bruno GR, Schriver J. Emergency department patients with assault injuries:
previous injury and assault convictions. Ann Emerg Med, 29(6):770-775, 1997.
13. Taylor CR, Degutis L, Burns G, Cohn S, Rosenfield AT. CT in abdominal trauma: Impact on clinical
management. J Trauma, 44(5):893-901, 1998.
14. Degutis LC. Screening for alcohol problems in emergency department patients with minor injury: results
and recommendations for practice and policy. Cont Drug Problems, 25:463-475, 1998.
15. Groce NE, Degutis LC. Rehabilitation needs as a result of firearm-related injury: a four year retrospective
study from an inner-city hospital in the US. Int J Rehab Res, 22, 1-3, 1999.
16. Merrell GA, Driscoll JC, Degutis LC, Renshaw TS. Prevention of childhood pedestrian trauma: A study of
interventions over six years. J Bone Joint Surg AM. 9(6):627-638, 2002.
17. D’Onofrio G, Degutis LC. Preventive care in the emergency department: screening and brief intervention
for alcohol problems in the emergency department: a systematic review. Acad Emerg Med 2002;9:627-38.
18. D’Onofrio G, Nadel ES, Degutis LC, et al. Improving emergency medicine residents' approach to patients
with alcohol problems: a controlled educational trial. Ann Emerg Med 2002;40:50-62.
PHS 398/2590 (Rev. 09/04, Reissued 4/2006) Page 2 Continuation Format Page

19. McCausland JB. Linden JA. Degutis LC. Ramanujam P. Sullivan LM. D'onofrio G. Nonoccupational
postexposure HIV prevention: emergency physicians' current practices, attitudes, and beliefs. Ann Emerg
Med. 2003; 42(5):651-6.
20. Kane BG, Degutis LC, Sayward HK, D’Onofrio G. Compliance with Centers for Disease Control
Recommendations for the Diagnosis and Treatment of Sexually Transmitted Diseases. Acad Emerg Med.
2004, 11(4):371-377.
21. Degutis LC, Rabinovici R, Sabbaj A, Mascia R, D’Onofrio G. The saliva strip test is an accurate method to
determine blood alcohol concentration in trauma patients. Acad Emerg Med. 2004, 11(8)885-887
22. Levine E, Degutis L, Pruzinsky T, Shin J, Persing JA. Quality of life and facial trauma psychological and
body image effects. Annals of Plastic Surgery. 2005, 24(5)502-510.
23. D’Onofrio G, Pantalon MV, Degutis L, Fiellin D, O’Connor P. Development and implementation of an
emergency practitioner-performed brief intervention for hazardous and harmful drinkers in the emergency
department. Acad Emerg Med. 2005, 12(3):249-56
24. D’Onofrio G, Degutis, LC. Screening and brief intervention in the Emergency Department. Alcohol
Research and Health. 2005, 28(2)63-72.
25. Safdar B. Degutis LC. Landry K. Vedere SR. Moscovitz HC. D'Onofrio G. Intravenous morphine plus
ketorolac is superior to either drug alone for treatment of acute renal colic. Ann Emerg Med. 2006,
48(2):173-81, 181.e1.
26. Degutis LC. “Substance Use Disorders and Mental Health Problems in the Emergency Department”
Solicited background paper for the Institute of Medicine Report on The Future of Emergency Care, 2006.
27. D’Onofrio G, McCausland JB, Tarabar A, Degutis LC. Illy: Clinical and Public Health Implications of a
Street Drug. Substance Abuse, Journal of AMERSA, 2006, 27(4) 45-51.
28. Lerner, E. B., O’Connor, R. E., Schwartz, R., Brinsfield, K., Ashkenazi, I., Degutis, L. C., Dionne, J.P.,
Hines, S., Hunter, S., O’Reilly, G., and Sattin, R. W. “Blast-Related Injuries from Terrorism: An International
Perspective.” Prehospital Emergency Care, 2007, 11(2): 137-53.
29. Durante, A. J., Melchreit, R., Sullivan, K., Degutis, L. “Partnering for Success: Recruitment, Training, and
Deployment of Public Health Exercise Evaluators.” Public Health Reports, 2007, 122(6).
30. Degutis LC and the Collaborative for ED Screening and Brief Intervention. An evidence based alcohol
screening, brief intervention and referral to treatment (SBIRT) curriculum for emergency department (ED)
providers improves skills and utilization. Subst Abuse 2007;28(4):79-92.
31. Larkin GL, Hamann CJ, Monico EP, Degutis L, Schuur J, Kantor W, Graffeo CS. Knowledge translation at
the macro level: legal and ethical considerations. Acad Emerg Med 2007;14(11):1042-6.
32. Yende S, D’Angelo G, Kellum JA, Weissfeld L, Fine J, Welch RD, Kong L, Carter M, Angus DC,
“Inflammatory Markers at Hospital Discharge Predict Subsequent Mortality after Pneumonia and Sepsis.”
AM J Respir Crit Care Med, 2008 177:1242-1247. Degutis LC (list of GenIMS investigators:
www.ccm.upmc.edu/genims_investigators).
33. Monico E, Larkin GL, Degutis LC, “Informed Consent for Research: Current Practices in Academic
Emergency Medicine”. Acad Emerg Med 2008; 15:573-576; doi: 10.1111/j.1553-2712.2008.00098.x.
34. Greve MW, Young DJ, Goss AL, Degutis LC, “Mild to Moderate Skiing and Snowboarding Head Injuries in
two Areas of the United States”. Wilderness and Environmental Medicine 2009; In Press
35. Durante A, Melchreit R, Sullivan K, Degutis LC, “Connecticut Competency-Based Point of Dispensing
Worker Training Needs Assessment”. Disaster Med and Pub Health Preparedness; 2009; In Press
C. RESEARCH SUPPORT
Ongoing Research Support
Gail D’Onofrio (PI) 9/30/08 – 9/29/13
Substance Abuse and Mental Health Services Administration (SAMHSA)
The SBIRT Training in Yale Residency Programs: Implementation and Dissemination to Implement and
Disseminate SBIRT Curriculum for Alcohol/Drugs into Targeted Yale Residencies and Beyond
Role: Co-investigator
Brian Leaderer (PI) 9/1/05 – 8/31/09
Centers for Disease Control and Prevention
Yale Center for Public Health Preparedness
PHS 398/2590 (Rev. 09/04, Reissued 4/2006) Page 3 Continuation Format Page

Major goal: to provide education in disaster preparedness for the public health workforce
Role: Director, Co-PI
Gail D’Onofrio (PI) 3/10/05 – 2/28/10
National Institute of Alcoholism and Alcohol Abuse (NIAAA)
Enhancing Emergency Physician-Performed Alcohol Interventions in the ED
Major goal: To test the effectiveness of screening and brief intervention enhanced by a booster session for
emergency department patients with alcohol problems
Role: Co-Investigator
Completed Research Support
Brian Leaderer (PI) 9/1/05 – 8/31/06
Association of Schools of Public Health
Yale Center for Public Health Preparedness
Major goal: to provide education in disaster preparedness for the public health workforce
Role: Director, and Co-PI
Linda Degutis (PI) 10/25/04 – 3/30/07
Alcohol Screening and Brief Intervention (ASBI)
National Highway Traffic Safety Administration
Major goal: to explore methods of implementing ASBI in emergency departments and trauma centers in
NHTSA regions I & II
Role: PI
Gail D’Onofrio (PI) 10/1/04 – 9/30/07
Connecticut Screening and Brief Intervention Initiative
Department of Mental Health and Addiction Services (SAMHSA)
Major goal: To implement and evaluate programs for screening, brief intervention and referral to treatment for
patients with alcohol and other drug problems in the primary care and emergency department settings.
Role: Co-Investigator
Linda Degutis (PI) 7/2002–9/2004
U.S. Department of Education (subcontract from Governor’s Prevention Partnership)
Campus Community Partnerships to Decrease Campus Alcohol Problems
The major goal is to examine the impact of 3 different campus-based strategies in decreasing alcohol problems
on 4 college campuses in Connecticut.
Role: Evaluator
James O’Hara (PI) 9/1/02-8/31/03
Robert Wood Johnson Foundation and Pew Foundation, (Subcontract from Georgetown University)
Center on Alcohol Marketing and Youth (CAMY)
The major goal was to examine media placement of alcohol advertising in youth-oriented markets.
Role: Yale PI
Gail D’Onofrio (PI) 9/13/01–7/31/05
National Institutes of Health (NIAAA)
Emergency Physician Brief Intervention for Alcohol
The major goal is to evaluate the effectiveness of a brief intervention conducted in an emergency room setting
with harmful/hazardous drinkers.
Role: Co-Investigator
Linda Degutis (PI) 3/1/01-5/1/01
Westat Corporation
Drug Abuse Warning Network Field Study
PHS 398/2590 (Rev. 09/04, Reissued 4/2006) Page 4 Continuation Format Page

Major goal: to compare several processes of identification of drug-related ED visits.
Role: Principal Investigator
Linda Degutis (PI) 1/1/01-6/30/04
Robert Wood Johnson Foundation, Substance Abuse Policy Research Program
A Comparative Analysis of the Passage and Failure of Passage of DWI Legislation and Regulation in the US
and Canada
Major goal: to explore reasons for passage of DWI-related policies in the US and Canada
Role: PI
Linda Degutis (PI) 10/1/99–7/30/03
Robert Wood Johnson Foundation, Substance Abuse Policy Research Program
Mandatory Substance Abuse Screening in Injured Patients: Implications for Policy Development and
Implementation
Major goal: to evaluate the impact of implementation of a Connecticut state law that requires screening for
alcohol and other drug problems in injured patients.
Role: Principal Investigator
PHS 398/2590 (Rev. 09/04, Reissued 4/2006) Page 5 Continuation Format Page

Sarah Jane Brain Family State Lead Center of Excellence
For the state of
Delaware
Nemours / Alfred I. duPont Hospital for Children
www.nemours.org
REGION: Mid‐Atlantic CATEGORY OF CARE: Prevention
Program Director: Michael Alexander, MD Position Title: Professor
Department: Pediatrics and Rehabilitation Medicine
Address: 1600 Rockland Road, Wilmington, DE 19803
Phone: (302) 651‐5601
Email: malex@NEMOURS.ORG
Level 1 Center(s): Wilmington (AI du Pont Hospital for Children), Newark (Christiana Medical Center),
Milford (Kent Sussex Hospital)
Level 2 Center(s): New Castle County Schools, Kent County Schools, Sussex County Schools
Level 3 Center(s): 0
Number of jobs PABI Grant creates in Delaware: 113
Budget Overview for State Lead Center
State Lead Center Management Sub‐total: $ 6,709,699
Category of Care Management Sub‐total: $ 1,921,009
Case Management Sub‐total: $ 5,835,200
State Lead Center Sub‐total: $ 14,497,908
Indirect Cost to Institution (20%): $ 2,899,582
Administrative Cost to SJBF (2%): $ 289,958
SUB‐TOTAL AMOUNT OF GRANT PROPOSAL: $ 17,687,448

Nemours / Alfred I. duPont Hospital for Children Profile continued
Title/Description Sub‐total Amount for Grant
STATE LEAD CENTER MANAGEMENT
Program Director: $ 118,869
Program Director Assistant: $ 110,506
State Director: $ 368,354
Associate State Director: $ 159,620
State Epidemiologist: $ 245,569
State Epidemiologist Assistant: $ 110,506
State Scientific Investigation Research Coordinator: $ 208,734
State Scientific Investigation Research Assistant: $ 208,734
State Education/Training Coordinator (plus materials): $ 229,370
State General Counsel: $ 294,683
State IT Manager: $ 233,291
State Family Support Coordinator: $ 184,177
State Prevention/Awareness Coordinator: $ 184,177
State Acute Care Coordinator: $ 184,177
State Reintegration Coordinator: $ 184,177
State Adult Transition Coordinator: $ 184,177
State Mild TBI Coordinator: $ 184,177
State Mental Health Coordinator: $ 159,620
State Assistive/Emerging Technology Coordinator: $ 159,620
State Correctional System Coordinator: $ 159,620
State MISC Coordinator: $ 159,620
State Veterans Coordinator: $ 159,620
State Data Manager: $ 159,620
State Public Policy Manager: $ 184,177
State Community Relations Manager: $ 159,620
State Administrative Support: $ 663,037
Charity care: $ 377,799
Human Resources Support: $ 113,000
Training Support: $ 28,250
State Lead Center Office Space Cost: $ 363,065
State Lead Center Transportation/Travel: $ 113,400
State Lead Center Office Equipment/Communications: $ 197,500
State Lead Center Supplies: $ 117,118
Annual and Regional Conferences: $ 32,000
State Brain Injury Association Pediatric Programs: $ 107,943
STATE LEAD CENTER MANAGEMENT SUB‐TOTAL: $ 6,709,699

Nemours / Alfred I. duPont Hospital for Children Profile continued
Title/Description Sub‐total Amount for Grant
CATEGORY OF CARE RESPONSIBILITY: Prevention
Regional Category Director: $ 368,354
Regional Category Epidemiologist: $ 294,683
Regional Category Education/Training Coordinator: $ 245,569
Regional Category Scientific Investigation Research: $ 245,569
Regional Category Administrative Support: $ 442,025
Regional Category Office Space Cost: $ 105,406
Regional Category Transportation/Travel: $ 157,500
Regional Category Office Equipment/Communications: $ 27,900
Regional Category Supplies: $ 34,002
CATEGORY OF CARE SUB‐TOTAL: $ 1,921,009

Nemours / Alfred I. duPont Hospital for Children Profile continued
Title/Description Sub‐total Amount for Grant
CASE MANAGEMENT RESPONSIBILITY
Level 1 Center Manager(s): $ 526,220
Level 1 Center Field Specialist(s): $ 420,976
Level 1 Center SJB Family Specialist(s): $ 2,873,161
Level 1 Center Administrative Support: $ 473,598
Level 1 Office Space Cost: $ 56,670
Level 1 Transportation/Travel: $ 83,700
Level 1 Office Equipment/Communications: $ 89,400
Level 1 Supplies: $ 140,325
Level 2 Center Field Specialist(s): $ 252,586
Level 2 Center SJB Family Specialist(s): $ 820,903
Level 2 Transportation/Travel: $ 23,760
Level 2 Office Equipment/Communications: $ 39,900
Level 2 Supplies: $ 34,002
CASE MANAGEMENT SUB‐TOTAL: $ 5,835,200
STATE LEAD CENTER SUB‐TOTAL: $ 14,497,908
INDIRECT COST TO INSTITUTION: $ 2,899,582
ADMINISTRATIVE FEE TO SJBF: $ 289,958
STATE LEAD CENTER SUB‐TOTAL: $ 17,687,448
TOTAL JOBS CREATED IN Delaware: 113

First Name: Michael MI: A Last Name: Alexander
Present Position: Chief of Rehabilitation Alfred I du Pont Hospital for Children
Wilmington, Delaware and Chief of Division of Pediatric Rehabilitation for Departments of
Pediatrics and Physical Medicine and Rehabilitation at Thomas Jefferson University
School Name: George Mason University
University of Virginia
Primary Degree
Awarded: BA
Specialty
Physical Medicine and
Rehabilitation
Year
Completed: 1969
Secondary Degree
Awarded: MD
Year
Completed: 1972
Certification and Re-Certification Information Current Licensure Data
Subspecialty in Pediatric
Rehabilitation Medicine
Original
Certification
Year
1977
2003
Pediatrics 1977
Most Recent
Certification Year State
Not time limited
Expires 2013
Not time limited
Date of
Expiration
Pa Dec 2010
De Dec 2009
Academic Appointments - List the past ten years, beginning with your current position.
Start End
Date1989 DatePresent
Description of Position(s) Clinical Professor of Pediatrics and Physical
Medicine and Rehabilitation till 2007 at which time became Professor
without prefix
Concise Summary of Role/Responsibilities in Program: Chief of Division of Pediatric
Rehabilitation evaluate residents and monitor faculty which consists on another 2 double boarded
and subspecialty boarded doctors. We teach straight PMR residents as well as PedPMR residents
and we now have a one year fellowship in Pediatric Rehabilitation Medicine.
Current Professional Activities / Committees (Limit of 10):
1. Board Trustee DIMER
2. Past President Medical Society of Delaware
3. Co editor on 4 th edition of Pediatric Rehabilitation Medicine
Selected Bibliography - Most representative Peer Reviewed Publications / Journal Articles from the
last 5 years (Limit of 10):
Rahman, T., Ramanathan, R., Stroud, S., Sample, W., Seliktar, R., Harwin, W., Alexander, M.,
Scavina, M: Towards the control of a powered orthosis for people with muscular dystrophy. Proc
Instn Mech Engrs. Volume 215, Part H. Pages 267-274. 2001
Rahman, T., Sample, W,. Jaykumar, S., King, M., Wee, J., Seliktar, R., Alexander, M., Scavina,

M., Clark, A., Passive exoskeletons for assisting limb movement. Journal of Rehabilitation
Research and Development Volume 43 No. 5, 583-590, 2006
Rahman, T., Sample, W., Seliktar, R., Scavina, M.T, Clark, A. L., Moran, K., and Alexander, M.
A. Design and Testing of a Functional Arm Orthosis in Patients with Neuromuscular Diseases.
IEEE Transactions on Neural Stystems and Rehabilitation Engineering Vol. 15, No 2 pages 244-251
June 2007
Selected Review Articles, Chapters and/or Textbooks (Limit of 5):
Keenan, C., Alexander, M.A., Sung, In-Young, Miller, F., Dabney, K.: Intrathecal Baclofen for the
Treatment of Spasticity in Children. Physical Medicine and Rehabilitation: State of the Art
Reviews. Hanley & Belfus, 2000.
Rahman, R., Alexander, M.A.: Robots and Other Technologies in Pediatric Rehabilitation.
Physical Medicine and Rehabilitation: State of the Art Reviews. Hanley & Belfus, 2000.
Molnar, G.E., Alexander, M.A.: Pediatric Rehabilitation, 3 rd Edition. Hanley & Belfus.
Philadelphia, PA. 1999.
Alexander, M.A., Molnar, G.E.: Physical Medicine and Rehabilitation: State of the Art Reviews,
Vol. 14. No. 2. Hanley & Belfus, Philadelphia, PA. 2000
Miller, F., Dabney, K., Alexander, M., Associate Editors. Cerebral Palsy, Springer, New York,
2005.
Participation in Local, Regional and National Activities / Presentations / Abstracts / Grants (Limit
of 5):
Talk entitled “The Perils of Adolescent Drivers”, St. Marks High School parents group,
Wilmington, DE, January 13, 2005.
Talk entitled “Technology for Disabled Children”, The First State First Lego League Competition,
University of Delaware, Newark, DE, January 22, 2005.
Talk entitled “Spasticity”, presented to staff at Easter Seals Society, Montgomery County, PA, April
4, 2006.
Talk entitled “Technology – From Language Boards to Robots”, Pediatric Residents Education
Lecture, duPont Hospital for Children, Wilmington, DE, April 5, 2006.
Talk entitled “Rehabilitation of SCI in Children” Seventeenth Annual Trauma Conference,
Penlinsula Regional Medical Center, Ocean City, Maryland September 21, 2007

Sarah Jane Brain Family State Lead Center of Excellence
For the state of
District of Columbia
Children's National Medical Center
www.childrensnational.org
REGION: Mid‐Atlantic CATEGORY OF CARE: Mild TBI (National Lead)
Program Director: Gerard Gioia, Ph.D. Position Title: Director, Pediatric
Neuropsychology Program
Department: Division of Pediatric Neuropsychology
Address: 15245 Shady Grove Road, Suite 350, Rockville, MD 20850
Phone: 301‐765‐5430
Email: ggioia@cnmc.org
Level 1 Center(s): Children's National Medical Center
Level 2 Center(s): National Rehabilitation Hospital, Georgetown University Hospital
Level 3 Center(s): 2 @ Department of Health/ CNMC Community Health Center, 2 @ DC Public School
Number of jobs PABI Grant creates in District of Columbia: 94
Budget Overview for State Lead Center
State Lead Center Management Sub‐total: $ 11,277,659
Category of Care Management Sub‐total: $ 10,019,183
Case Management Sub‐total: $ 5,983,567
State Lead Center Sub‐total: $ 27,312,409
Indirect Cost to Institution (20%): $ 5,462,482
Administrative Cost to SJBF (2%): $ 546,248
SUB‐TOTAL AMOUNT OF GRANT PROPOSAL: $ 33,321,139

Children's National Medical Center Profile continued
Title/Description Sub‐total Amount for Grant
STATE LEAD CENTER MANAGEMENT
Program Director: $ 0
Program Director Assistant: $ 198,487
State Director: $ 661,622
Associate State Director: $ 286,703
State Epidemiologist: $ 441,081
State Epidemiologist Assistant: $ 198,487
State Scientific Investigation Research Coordinator: $ 374,919
State Scientific Investigation Research Assistant: $ 374,919
State Education/Training Coordinator (plus materials): $ 390,906
State General Counsel: $ 529,298
State IT Manager: $ 419,027
State Family Support Coordinator: $ 330,811
State Prevention/Awareness Coordinator: $ 330,811
State Acute Care Coordinator: $ 330,811
State Reintegration Coordinator: $ 330,811
State Adult Transition Coordinator: $ 330,811
State Mild TBI Coordinator: $ 330,811
State Mental Health Coordinator: $ 286,703
State Assistive/Emerging Technology Coordinator: $ 286,703
State Correctional System Coordinator: $ 286,703
State MISC Coordinator: $ 286,703
State Veterans Coordinator: $ 286,703
State Data Manager: $ 286,703
State Public Policy Manager: $ 330,811
State Community Relations Manager: $ 286,703
State Administrative Support: $ 1,190,920
Charity care: $ 630,116
Human Resources Support: $ 94,000
Training Support: $ 23,500
State Lead Center Office Space Cost: $ 605,542
State Lead Center Transportation/Travel: $ 129,600
State Lead Center Office Equipment/Communications: $ 197,500
State Lead Center Supplies: $ 195,336
Annual and Regional Conferences: $ 32,000
State Brain Injury Association Pediatric Programs: $ 157,529
STATE LEAD CENTER MANAGEMENT SUB‐TOTAL: $ 11,277,659

Children's National Medical Center Profile continued
Title/Description Sub‐total Amount for Grant
CATEGORY OF CARE RESPONSIBILITY: Mild TBI (National Lead)
National Category Director: $ 504,000
National Category Epidemiologist: $ 420,000
National Category Education/Training Coordinator: $ 336,000
National Category Scientific Investigation Research: $ 336,000
National Tech (Development of Mild TBI asses tools): $ 4,700,000
Regional Category Director: $ 661,622
Regional Category Epidemiologist: $ 529,298
Regional Category Education/Training Coordinator: $ 441,081
Regional Category Scientific Investigation Research: $ 441,081
Regional Category Administrative Support: $ 793,947
Regional Category Office Space Cost: $ 253,937
Regional Category Transportation/Travel: $ 180,000
Regional Category Office Equipment/Communications: $ 40,300
Regional Category Supplies: $ 81,915
CATEGORY OF CARE SUB‐TOTAL: $ 10,019,183

Children's National Medical Center Profile continued
Title/Description Sub‐total Amount for Grant
CASE MANAGEMENT RESPONSIBILITY
Level 1 Center Manager(s): $ 330,811
Level 1 Center Field Specialist(s): $ 264,649
Level 1 Center SJB Family Specialist(s): $ 1,935,245
Level 1 Center Administrative Support: $ 297,730
Level 1 Office Space Cost: $ 99,243
Level 1 Transportation/Travel: $ 33,480
Level 1 Office Equipment/Communications: $ 33,800
Level 1 Supplies: $ 113,421
Level 2 Center Field Specialist(s): $ 352,865
Level 2 Center SJB Family Specialist(s): $ 1,290,163
Level 2 Transportation/Travel: $ 21,120
Level 2 Office Equipment/Communications: $ 26,600
Level 2 Supplies: $ 44,108
Level 3 Center SJB Family Specialist(s): $ 1,075,136
Level 3 Transportation/Travel: $ 14,040
Level 3 Office Equipment/Communications: $ 22,800
Level 3 Supplies: $ 28,355
CASE MANAGEMENT SUB‐TOTAL: $ 5,983,567
STATE LEAD CENTER SUB‐TOTAL: $ 27,312,409
INDIRECT COST TO INSTITUTION: $ 5,462,482
ADMINISTRATIVE FEE TO SJBF: $ 546,248
STATE LEAD CENTER SUB‐TOTAL: $ 33,321,139
TOTAL JOBS CREATED IN District of Columbia: 94

Program Director/Principal Investigator (Last, First, Middle):
BIOGRAPHICAL SKETCH
Provide the following information for the key personnel and other significant contributors in the order listed on Form Page 2.
Follow this format for each person. DO NOT EXCEED FOUR PAGES.
Gerard A. Gioia, Ph.D. Chief, Division of Pediatric Neuropsychology
Director, Safe Concussion Outcome, Recovery & Education
eRA COMMONS USER NAME (credential, e.g., agency login)
GeGioia
(SCORE) Program
Director, GCRC Neurobehavioral and Psychosocial Eval. Core
Laboratory, IDDRC Neurobehavioral Eval. Core Lab
Associate Professor, Depts of Pediatrics and Psychiatry,
George Washington University School of Medicine
EDUCATION/TRAINING (Begin with baccalaureate or other initial professional education, such as nursing, and include postdoctoral training.)
INSTITUTION AND LOCATION
DEGREE
(if applicable)
YEAR(s) FIELD OF STUDY
Franklin & Marshall College B.A. 1978 Psychology
University of North Carolina – Chapel Hill
Ph.D. 1984
Children’s Hospital – Boston/ Harvard Medical School Postdoctoral
Fellowship
School Psychology
1987 Pediatric Neuropsychology
A. Positions and Honors. List in chronological order previous positions, concluding with your present position. List any
honors. Including present membership on any Federal Government public advisory committee.
PREVIOUS EMPLOYMENT:
1984-1986 School Psychologist, Howard County Public Schools, Ellicott City, Maryland
1987-1989 Staff Neuropsychologist, Neuropsychology Program, The Children’s Hospital, Boston, MA
1989-2002 Director, Division of Pediatric Psychology/ Neuropsychology, Mt. Washington Pediatric Hospital, Baltimore, Maryland
OTHER APPOINTMENTS:
2001- Member, Special Education subcommittee, State of Maryland Advisory Council on Attention Deficit Hyperactivity Disorder.
1997- Member, Professional Advisory Board, Epilepsy Association of Chesapeake Region
1996-2000 Member, Board of Directors, Coalition to End Childhood Lead Poisoning.
1995-1999 Member, Advisory Board of the Graduate Education Program, Division of Adolescent Medicine, University of Maryland
School of Medicine.
JOURNAL/GRANT REVIEW:
1996- Ad hoc reviewer, Journal of Pediatric Psychology
1997-1999 Reviewer, NIMH Small Business Innovation Research Grant Program
2000- Ad hoc reviewer, Journal of the International Neuropsychological Society
2001- Ad hoc reviewer, Child Neuropsychology
2001- Reviewer, NICHD Special Grants Program
2006- Consulting Editor, Assessment
B. Selected peer-reviewed publications (in chronological order).
Cohen JS, Gioia G, Atabaki S, Teach SJ. (2009) Sports-related concussions in pediatrics. Current Opinions in Pediatrics. 21(3):288-
93.
Gioia, GA, Schneider, JC, Vaughan, CG, & Isquith, PK (2009) Which symptom assessments and approaches are uniquely appropriate
for paediatric concussion? British Journal of Sports Medicine. 43(Suppl I):i13–i22.
Gioia, GA, Collins, MW & Isquith, PK (2008) Improving identification and diagnosis of mild TBI with evidence: Psychometric
support for the Acute Concussion Evaluation (ACE). Journal of Head Trauma Rehabilitation. 23, 230–42.
Gioia, GA (2008) Ten steps and commitments for an effective youth sports concussion program. Brain Injury Professional. 4(4), 14-
15.
Krull, KR, Gioia, GA, Ness, KK, Ellenberg, L et al. (2008) Reliability and validity of the Childhood Cancer Survivor Study
Neurocognitive Questionnaire. Cancer, 113, 2188-2197.
Reddy, CC, Collins, MW, & Gioia, GA (2008) Adolescent sports concussion. Physical Medicine and Rehabilitation Clinics of North
America. 19, 247-269.
Gioia, G.A. Isquith. PK & Kenealy, L (2008) Assessment of behavioral aspects of executive function. In Anderson, V., Jacobs, R., &
Anderson P. (Eds.), Executive functions and the frontal lobes: A life span approach. Sussex, England: Psychology Press.
PHS 398/2590 (Rev. 11/07) Page 1 Biographical Sketch Format Page

Program Director/Principal Investigator (Last, First, Middle):
Gaillard WD, Berl MM, Moore EN, Ritzl EK, Rosenberger LR, Weinstein SL, Conry JA, Pearl PL, Ritter FF, Sato S, Vezina LG,
Vaidya CJ, Wiggs E, Fratalli C, Risse G, Ratner NB, Gioia G, Theodore WH (2007). Atypical language in lesional and
nonlesional complex partial epilepsy. Neurology. 69(18):1761-71.
Acosta MT, Gioia GA, Silva AJ. (2006) Neurofibromatosis type 1: new insights into neurocognitive issues. Current Neurology &
Neuroscience Reports. 6(2):136-43.
Isquith, P.K., Crawford, J.S., Espy, K.A., & Gioia, G.A. (2005) Assessment of executive function in preschool-aged children. Mental
Retardation and Developmental Disabilities Research Reviews. 11, 209-215.
Roth, R.M., Isquith, P.K., & Gioia, G.A. (2005) Assessment and Intervention for Executive Dysfunction. In G.P. Koocher, J.C.
Norcross, & S.S. Hill (Eds.) Psychologists’ Desk Reference. 2 nd Edition. (pp. 38-40) New York: Oxford University Press.
Roth, R.M. Isquith, P.K., & Gioia, G.A. (2005) Behavior Rating Inventory of Executive Function – Adult Version. Odessa, Fla.:
Psychological Assessment Resources, Inc.
Isquith, P.K., Gioia, G.A. & Espy, K.A. (2004) Executive function in preschool children: Examination through everyday behavior.
Developmental Neuropsychology, 26, 403-422.
Gioia, G.A. & Isquith, P.K. (2004) Ecological assessment of executive function in traumatic brain injury. Developmental
Neuropsychology, 25, 135-158.
Guy, S.C., Isquith, P.K. & Gioia, G.A. (2004). Behavior Rating Inventory of Executive Function – Self Report Version. Odessa, Fla.:
Psychological Assessment Resources, Inc.
Gioia, G.A., Espy, K.A., & Isquith, P.K. (2003). Behavior Rating Inventory of Executive Function – Preschool Version. Odessa, Fla.:
Psychological Assessment Resources, Inc.
Gioia, G.A., Isquith, P.K., Kenworthy, L., & Barton, R.M. (2002) Profiles of everyday executive function in acquired and
developmental disorders. Child Neuropsychology, 8, 121-137.
Gioia, G.A., Isquith, P.K., Retzlaff, P.D., & Espy, K.A. (2002) Confirmatory factor analysis of the Behavior Rating Inventory of
Executive Function (BRIEF) in a clinical sample. Child Neuropsychology, 8, 249-257.
Gioia, G.A. & Isquith, P.K. (2002) New perspectives on educating children with ADHD: Contributions of the executive functions
Journal of Health Care Law & Policy 5, 124-163.
Gioia, G.A., Isquith, P.K., Guy, S.C. and Kenworthy, L. (2002). Behavior Rating Inventory of Executive Function – Software
Portfolio. Odessa, Fla.: Psychological Assessment Resources, Inc.
Gioia, G.A. & Isquith, P.K. (2001) Executive function and ADHD: Exploration through children’s everyday behaviors. Clinical
Neuropsychological Assessment, 2, 61-84.
Gioia, G.A., Isquith, P.K. and Guy, S.C. (2001) Assessment of Executive Functions in Children with Neurologic Impairment. (pp.
317-356). In R.J. Simeonsson and S. Rosenthal (Eds.) Psychological and Developmental Assessment. New York: Guilford
Press.
Gioia, G.A., Isquith, P.K., Retzlaff, P.D. & Pratt, B.M. (2001) Modeling executive functions with everyday behaviors: A unitary or
fractionated system? Brain and Cognition, 47, 203-207.
Gioia, G.A., Isquith, P.K., Guy, S.C. and Kenworthy, L. (2000). Behavior Rating Inventory of Executive Function. Odessa, Fla.:
Psychological Assessment Resources, Inc.
Baron, I.S. and Gioia, G.A. (1998) Neuropsychology of Infants and Young Children. In G. Goldstein, P. Nussbaum and S. Beers
(Eds.) Neuropsychology. (Human Brain Function: Assessment and Rehabilitation) New York: Plenum Press.
Gioia, G.A. (1998) Re-examining the factor structure of the Wide Range Assessment of Memory and Learning: Implications for
clinical interpretation. Assessment, 5, 127-140.
Ylvisaker, M. and Gioia, G.A. (1998) Cognitive Assessment. In M. Ylvisaker (Ed.) Traumatic Brain Injury Rehabilitation: Children
and Adolescents (2nd Edition) Boston: Butterworth-Heinemann.
Aylward, G., Gioia, G.A., Verlhust, S.J. and Bell, S. (1995) Factor structure of the Wide Range Assessment of Memory and Learning
in a clinical population. Journal of Psychoeducational Assessment, 13, 132-142.
Gioia, G.A. (1993) Development and mental retardation. In R. Smith (Ed.) Children with mental retardation: A Parent's Guide.
Rockville, Md.: Woodbine House.
Waber, D.P., Gioia, G., Paccia, J., Sherman, B., Dinklage, D., Sollee, N., and Sallan, S. (1990) Sex differences in cognitive
processing in children treated with CNS prophylaxis for acute lymphoblastic leukemia. Journal of Pediatric Psychology, 15,
105-122.
C. Research Support. List selected ongoing or completed (during the last three years) research projects (federal and
non-federal support); begin with the projects that are most relevant to the research proposed in this application.
Briefly indicate the overall goals of the projects and responsibilities of principal investigator identified above.
Title: Feasibility of Acute Concussion Management in the Emergency Department
Source: CDC 1U49CE001385-01
Status: Active
Role: Principal Investigator
% Effort: 5.5%
Start Date: 09/01/2008
PHS 398/2590 (Rev. 11/07) Page 2 Continuation Format Page

Program Director/Principal Investigator (Last, First, Middle):
End Date: 07/31/2010
Project Goals: The goal of this research is to demonstrate the capacity to improve management of mTBI presenting to the Emergency
Department by the systematic application of the Acute Concussion Evaluation (ACE) and the ACE Care Plan. We will conduct a pilot
implementation study that will provide important evidence for improving identification, diagnosis and management of mTBI in the
ED setting. Specific Aim 1. Evaluate the feasibility of the ACE and ACE Care Plan for standardized implementation in the ED
setting. Specific Aim 2. Determine if the ACE-ED and ACE-ED Care Plan can be implemented by the ED staff and disseminated to
the Primary Care Providers (PCP). Specific Aim 3. Determine if routine use of the ACE-ED and ACE-ED Care Plan will improve
patient/family follow-up behavior and patient recovery.
Title: Outcome Measurement of mTBI in Children and Adolescents (7528)
Source: CDC CCU323352-03
Status: Completed
Role: Principal Investigator
% Effort: 35
Start Date: 09/30/2003
End Date: 12/31/2008
Project Goals: The major goal of this study is to develop and validate a test battery for children, 5-18 years, that is easily administered
by technical personnel, portable, and repeatable while sensitive in detecting and monitoring neurocognitive and behavioral outcomes
of mTBI. The test will be developed and normed on over 1,000 children across the 5-18 year age range, examining performance in
boys and girls and at-risk children with learning and attentional problems. 160 children and adolescents (80 boys, 80 girls) who have
sustained mTBI will be recruited from the CNMC Emergency Dept. and the UPMC/ CNMC Sports Concussion programs and
followed serially during the first two weeks post-injury and up to one year to detect deficits and monitor recovery outcome in
cognitive performance and real-world home and school functioning.
Title: Neurobehavioral and Psychosocial Evaluation Core (General Clinical Research Center) (Mark Batshaw, M.D.,
Principal Investigator) (0198)
Source: NIH 5 P30 HD40677-08 (Gallo, PI)
Status: Active
Role: Director, Core Laboratory
% Effort: 10
Start Date: 07/01/02
End Date: 11/30/2009
Project Goals: 1) provide access to an extensive battery of neuropsychological testing services; 2) develop and administer
neurobehavioral tasks for relevant protocols; 3) provide consultation to GCRC investigators on the proper design and use of
neurobehavioral and neuropsychological measures in research studies; and 4) train investigators and their staff in the use of these
measures.
Title: Neurobehavioral Evaluation Core (Intellectual and Developmental Disabilities Research Center) (V. Gallo, PhD,
Principal Investigator) (0198)
Source: NIH
Status: Active
Role: Director, Core Laboratory
% Effort: 5
Start Date: 07/01/2006
End Date: 06/30/2011
Project Goals: 1) provide access to an extensive battery of neuropsychological testing services; 2) develop and administer
neurobehavioral tasks for neuroimaging protocols, including fMRI projects through the Neuroimaging Core; 3) provide consultation to
IDDRC investigators on the proper design and use of neurobehavioral and neuropsychological measures in research studies; and 4)
train investigators and their staff in the use of these measures.
Title: Neurofibromatosis Consortium (R. Packer, M.D., Principal Investigator)
Source: DoD
Status: Active
Role: Chair, Neurocognitive Committee
% Effort: 10
St. Date 07/01/2006
End Date 12/31/2011
Project Goals: Provide leadership and guidance to the Neurocognitive committee in developing research protocols that investigate the
neuropsychological outcomes in NF clinical trials.
PHS 398/2590 (Rev. 11/07) Page 3 Continuation Format Page

Program Director/Principal Investigator (Last, First, Middle):
Title: Development and Clinical Validation of a Children’s Version of the Automated Neuropsychological Assessment
Metrics (ANAM)
Source: National Rehabilitation Hospital (Department of Defense) Seed Grant
Status: Completed
Role: Co-PI
% Effort: 4.5%
Start Date: 07/01/05
End Date: 06/30/06
Project Goals: Develop and adapted pilot version of the ANAM neuropsychological test battery for use with children age 10-12 years
of age. Collect preliminary normative data, and validate with patients sustaining mTBI.
Title: Plasticity of Language in Epilepsy (W. Gaillard, M.D., Principal Investigator)
Source: NIH, NINDS
Status: Completed
Role: Co-Investigator
% Effort: 3
St. Date 09/01/2002
End Date 08/30/2007
PHS 398/2590 (Rev. 11/07) Page 4 Continuation Format Page

Sarah Jane Brain Family State Lead Center of Excellence
For the state of
Florida
University of Miami Miller School of Medicine
www.med.miami.edu
REGION: Southeast CATEGORY OF CARE: Acute Phase (National Lead)
Program Director: Gillian Hotz, Ph.D. Position Title: Associate Research Professor
Department: Department of Neurological Surgery Major Subdivision: Division of Trauma &
Surgical Critical Care
Address: LPLC‐1095 NW 14th Terrace #1‐40, Miami, FL 33136
Phone: 305‐243‐4004
Email: ghotz@med.miami.edu
Program Director: John W. Kuluz, MD Position Title: Pediatric Intensivist
Address: 13085 Coronado Lane, North Miami, FL 33181
Phone: 305‐895‐0530
Email: jkuluz@bellsouth.net
Level 1 Center(s): Miami X 2 (UM School of Medicine/Jackson Memorial Medical Center, Miami
Children's Hospital), Orlando (Orlando Regional Medical Center), Jacksonville (UF/Shands Jacksonville
Medical Center), Tampa (Tampa General Hospital), Ft. Lauderdale (Broward General)
Level 2 Center(s): Pensacola (Baptist Hospital), Daytona Beach (Halifax Medical Center), Melbourne
(Holmes Regional Medical Center), Lakeland (Lakeland Regional Medical Center), St. Petersburg (All
Childrens Hospital), Ft. Myers (Lee Memorial Hospital), Delray Beach (Delray)
Level 3 Center(s): Pensacola (Sacred Heart Hospital), Pensacola (West Florida Regional Medical Center),
St. Petersburg (Bayfront Medical Center), Ft. Lauderdale (North Broward Medical Center), Jacksonville
(Brookes Rehab Center), Hallendale (Joe DiMaggio Rehad Center)
Number of jobs PABI Grant creates in Florida: 248
Budget Overview for State Lead Center
State Lead Center Management Sub‐total: $ 7,102,885
Category of Care Management Sub‐total: $ 3,526,894
Case Management Sub‐total: $ 18,755,430
State Lead Center Sub‐total: $ 29,417,209
Indirect Cost to Institution (20%): $ 5,883,442
Administrative Cost to SJBF (2%): $ 588,344
SUB‐TOTAL AMOUNT OF GRANT PROPOSAL: $ 35,888,995

University of Miami Miller School of Medicine Profile continued
Title/Description Sub‐total Amount for Grant
STATE LEAD CENTER MANAGEMENT
Program Director: $ 172,900
Program Director Assistant: $ 105,576
State Director: $ 351,920
Associate State Director: $ 152,499
State Epidemiologist: $ 234,613
State Epidemiologist Assistant: $ 105,576
State Scientific Investigation Research Coordinator: $ 199,421
State Scientific Investigation Research Assistant: $ 199,421
State Education/Training Coordinator (plus materials): $ 694,502
State General Counsel: $ 281,536
State IT Manager: $ 222,882
State Family Support Coordinator: $ 175,960
State Prevention/Awareness Coordinator: $ 175,960
State Acute Care Coordinator: $ 175,960
State Reintegration Coordinator: $ 175,960
State Adult Transition Coordinator: $ 175,960
State Mild TBI Coordinator: $ 175,960
State Mental Health Coordinator: $ 152,499
State Assistive/Emerging Technology Coordinator: $ 152,499
State Correctional System Coordinator: $ 152,499
State MISC Coordinator: $ 152,499
State Veterans Coordinator: $ 152,499
State Data Manager: $ 152,499
State Public Policy Manager: $ 175,960
State Community Relations Manager: $ 152,499
State Administrative Support: $ 633,455
Charity care: $ 352,802
Human Resources Support: $ 248,000
Training Support: $ 62,000
State Lead Center Office Space Cost: $ 339,042
State Lead Center Transportation/Travel: $ 114,308
State Lead Center Office Equipment/Communications: $ 197,500
State Lead Center Supplies: $ 109,369
Annual and Regional Conferences: $ 32,000
State Brain Injury Association Pediatric Programs: $ 88,200
STATE LEAD CENTER MANAGEMENT SUB‐TOTAL: $ 7,102,885

University of Miami Miller School of Medicine Profile continued
Title/Description Sub‐total Amount for Grant
CATEGORY OF CARE RESPONSIBILITY: Acute Phase (National Lead)
National Category Director: $ 532,000
National Category Epidemiologist: $ 399,000
National Category Education/Training Coordinator: $ 319,200
National Category Scientific Investigation Research: $ 319,200
National Additional (National Acute Category Asst Dir): $ 53,200
Regional Category Director: $ 351,920
Regional Category Epidemiologist: $ 281,536
Regional Category Education/Training Coordinator: $ 234,613
Regional Category Scientific Investigation Research: $ 234,613
Regional Category Administrative Support: $ 422,304
Regional Category Office Space Cost: $ 153,116
Regional Category Transportation/Travel: $ 180,000
Regional Category Office Equipment/Communications: $ 43,400
Regional Category Supplies: $ 49,392
CATEGORY OF CARE SUB‐TOTAL: $ 3,526,894

University of Miami Miller School of Medicine Profile continued
Title/Description Sub‐total Amount for Grant
CASE MANAGEMENT RESPONSIBILITY
Level 1 Center Manager(s): $ 1,583,638
Level 1 Center Field Specialist(s): $ 1,266,911
Level 1 Center SJB Family Specialist(s): $ 9,264,285
Level 1 Center Administrative Support: $ 1,425,275
Level 1 Office Space Cost: $ 55,566
Level 1 Transportation/Travel: $ 295,585
Level 1 Office Equipment/Communications: $ 256,200
Level 1 Supplies: $ 359,858
Level 2 Center Field Specialist(s): $ 656,917
Level 2 Center SJB Family Specialist(s): $ 2,401,852
Level 2 Transportation/Travel: $ 72,929
Level 2 Office Equipment/Communications: $ 93,100
Level 2 Supplies: $ 86,436
Level 3 Center SJB Family Specialist(s): $ 857,804
Level 3 Transportation/Travel: $ 21,060
Level 3 Office Equipment/Communications: $ 34,200
Level 3 Supplies: $ 23,814
CASE MANAGEMENT SUB‐TOTAL: $ 18755430
STATE LEAD CENTER SUB‐TOTAL: $ 29,417,209
INDIRECT COST TO INSTITUTION: $ 5,883,442
ADMINISTRATIVE FEE TO SJBF: $ 588,344
STATE LEAD CENTER SUB‐TOTAL: $ 35,888,995
TOTAL JOBS CREATED IN Florida: 248

FF Principal Investigator/Program Director (Last, first, middle): Hotz, Gillian PhD
BIOGRAPHICAL SKETCH
Provide the following information for the key personnel in the order listed on Form Page 2.
Photocopy this page or follow this format for each person.
NAME POSITION TITLE
Gillian A. Hotz, PhD Associate Research Professor
EDUCATION/TRAINING (Begin with baccalaureate or other initial professional education, such as nursing, and include postdoctoral training).
INSTITUTION AND LOCATION DEGREE
(if applicable)
University of Toronto/York University, Toronto, Canada
Boston University, Boston, MA
Boston University School of Medicine, Boston, MA
BSc.
MSc.
Ph.D.
YEAR(s) FIELD OF STUDY
PHS 398 (Rev. 5/95) (Form Page 6) Page FF
Number pages consecutively at the bottom throughout the application. Do not use suffixes such as 3a, 3b.
1983
1985
1992
Psychology
Speech Pathology
Behavioral Neuroscience
RESEARCH AND PROFESSIONAL EXPERIENCE: Concluding with present position, list, in chronological order, previous employment, experience,
and honors. Include present membership on any Federal Government public advisory committee. List, in chronological order, the titles, all authors, and
complete references to all publications during the past three years and to representative earlier publications pertinent to this application. If the list of
publications in the last three years exceeds two pages, select the most pertinent publications. DO NOT EXCEED TWO PAGES.
A. PROFESSIONAL EXPERIENCE:
7/2009 to date Associate Research Professor, Co-Director Pediatric Brain & SCI Program, Director Neurotrauma Outcome
Research Department of Neurological Surgery and The Miami Project to Cure Paralysis
2005 to 6/2009 Associate Research Professor, Division of Trauma, Department of Surgery
2003 to 6/2009 Co-Director Pediatric Brain & SCI Program, Divisions of Trauma and Surgical Critical Care, Dept. Surgery
2003 to 6/2009 Director Neurotrauma Outcome Research, Divisions of Trauma & Surgical Critical Care, Dept. of Surgery,
2002 to date Director WalkSafe Program
2002 to date Director of Snoezelen Program, UM/JMMC
2001 to 2006 Assistant Director Pediatric Rehabilitation Unit, Department of Neurosurgical Surgery, University of Miami
2001 to 2006 Assistant Professor, Division of Neurotrauma, Department of Neurological Surgery, University of Miami
1998 to date Director Concussion Program
1997 to 2001 Assistant Director, Division of Neurorehabilitation, Department of Neurology, University of Miami
1994 to 2001 Assistant Professor, Division of Neurorehabilitation, Department of Neurology, University of Miami
1993 to date Program/ Research Coordinator, Division of Neurorehabilitation, Department of Neurology, University of Miami
1992 to 1993 Post-doc Fellow, Division of Neuropsychology, Department of Neurology, University of Miami
1986 to 1989 Speech Pathologist /Clinical Researcher, St. Michael's Hospital, Toronto, Ontario, Canada
PH.D. THESIS:
Perseveration in Closed Head Injury. Advisor: Nancy Helm-Estabrooks, Boston University School of Medicine, 1992.
AREAS OF CONCENTRATION:
Traumatic Brain Injury, Neurorehabilitation, Outcomes, Concussion, Snoezelen/MSE, Injury Prevention, Pediatrics
MEMBERSHIPS:
Sarah Jane Brain Project: National Advisory Group
ImPACT Concussion Management Provider
American Association of Multisensory Environments
Florida Injury Prevention Advisory Committee
Florida Brain and Spinal Cord Injury Program: Research/Outcomes and School Re-entry Committees
Florida Committee on Trauma
American Society of Neurorehabilitation
International Neurotrauma Society
The American Psychological Association
The American Speech Language Hearing Association
The Florida Brain Injury Association
Aspen Neurobehavioral Group: Pediatric TBI Group

FF Principal Investigator/Program Director (Last, first, middle): Hotz, Gillian PhD
B. SELECTED PUBLICATIONS AND PAPERS:
Hotz, G., Helm-Estabrooks N., Wolf Nelson N., Plante E. The Pediatric Test of Brain Injury: Qualitative Interpretation of a
New Test of Neurocognitive-Linguistic Abilities. Topics in Language Disorders.2009. 29, 3, 207-223.
Hotz, G., Kennedy A., Lutfi K, Cohn S. Preventing Pediatric Pedestrian Injuries. Journal of Trauma. 2009;66:1492-1499.
Hotz, G., Garces de Marcilla, A., Lutfi, K., Castellon, P., Duncan, R. The Walk Safe Program: Developing and Evaluating
the Educational Component. Journal of Trauma. 2009;66:17-22.
Laatsch, L., Harrington D., Hotz, G., Marcantuono., J., Mozzoni, MP., Walsh, V., Hersey, KP., An Evidence Based Review
of Cognitive and Behavioral Rehabilitation Treatment Studies in Children with Acquired Brain Injury. Journal Head Trauma
Rehabilitation. 2007; 22(4):248-256.
Hotz, G.A., Castelblanco A., Duncan, R., Lara, I., Weiss A., Kuluz, J. Snoezelen: a controlled multi-sensory stimulation
therapy for children with severe brain injury. Brain Injury. July 2006; 20(8):879-888.
Hotz, G.A., Cohn, S., Castelblanco, A., Colston, S., et al. WalkSafe: A school based pedestrian safety intervention
program, Traffic Injury Prevention. 5:1-8, 2004.
Hotz, G.A., Cohn, S., Castelblanco, A., Colston, S. et al. WalkSafe: A school based pedestrian safety intervention program.
Accepted for pub. Traffic Injury and Prevention 5:1-8,2004.
Hotz, G.A., Cohn, S., Nelson, J., Mishkin, D., Li, P., Duncan, R. Pediatric pedestrian trauma study: a pilot project, Traffic
Injury and Prevention. 5:132-136, 2004.
Hotz, G.A., Cohn, S., Mishkin, D., Duncan, R. Li, P. Motorcycle riders at one year post-injury and repeal of the helmet law. ,
Traffic Injury Prevention. 5:87-89, 2004
Mellman,T, Hotz, G. Psychological and Behavioral Complications of Trauma. (submitted for pub.2/05) In Cohn, S.(ed):
Complications in Surgery and Trauma. Marcel Dekker Inc. 2003.
Hotz, G.A., Cohn, S., Popkin, C., Ekeh, P., Duncan, R. The impact of a no helmet law on motorcycle related accidents in
Florida. Journal of Trauma. 2002: 52: 3, 469-474.
Hotz, G.A, Helm-Estabrooks, N., Wolf Nelson, N. Development of the Pediatric Test of Brain Injury. Journal of Head Trauma
Rehabilitation. 2001:16:5.
Hotz, G.A., Helm-Estabrooks, N., Wolf Neson, N. The Pediatric Test of Brain Injury (PTBI) (Research Version). Applied
Symbolix. 2000.
Hotz, G.A., Stewart, K., Petrin, D., Villanueva, P et al. Neurobehavioral outcomes of penetrating and tangential gunshot
wounds to the head. Brain Injury 2000:14(7)649-657.
Hotz, G.A., Wiseberg, J.A., Petrin, D., Murtha, M et al. Difficulties in the implementation of a trauma outcome program in an
urban trauma center. submitted for review 1/10/01 to Archives of Physical Medicine and Rehabilitation.
Hotz, G.A, & Helm-Estabrooks, N: A case of post-traumatic stuttering. Seminars in Speech and Language.1998: 19(1):23-30.
Hotz, G.A., Rosenberg, J., Kelly, J., Potts, A, Brooks, J.:Concussion in Sports, Head Up Program: 1997, Brain Injury
Association. Washington DC.
Augenstein, J.A., Hotz, G.A., Nedd, K.J., Digges, K.H. et al. Assessment of Mild Traumatic Brain Injury: A Systematic
Trauma Center Approach. In Bandak FA, Eppinger RH, Ommaya, Ak eds. Traumatic brain injury, bioscience and mechanics.
New York: Mary Ann Liebert, Inc. 1996: 125-137.
Hotz, G.A. & Helm-Estabrooks, N. Perseveration: A Review. Brain Injury. 1995: 9(2):151-159.
Hotz, G.A. & Helm-estabrooks, N. Perseveration in Closed Head Injury. Brain Injury. 1995: 9(2):161-172.
Frost, R.D., Gillenson, M.L., Hotz, G., Nedd, K.J., & Parris, R.K. An expert database technique applied to an aphasia
classification system. Aphasiology. 1994; 8(1): 55-63.
Moulton, R., Tucker, W., Sullivan, I., Gutman, M., Hotz, G. Development of an audit tool for preventable death from head
injury. Annals of the Royal College of Phsicians and Surgeons. 1992:25(4):188-193.
Shedden, P.M., Moulton, R., Sullivan, I., Hotz, G., Tucker, W., & Muller, P.Effect of population characeristics on Head Injury
mortality. Journal of Pediatric Neuroscience. 1990-91; 16:203-207.
Moulton, R., Hotz, G., and Tucker, W. The impact of delayed transfer on mortality in head injury. Annals of the Royal College
of Physicians and Surgeons. 1991: 24: 4: 197-200.
Gutman, M.B., Moulton, R., Sullivan, I., Hotz, G., Tucker, W., Muller, P.Risk factors predicting operable intracranial
hematomas in head injury. Journal of Neurosurgery. 1992:77(1):9-14.
C. CONFERENCE PRESENTATIONS:
Hotz, G. Concussion in High School Football Review for Coaches and Trainers. Miami-Dade County Athletics
Department. August 12, 2009, Miami, FL.
Hotz, G. Overview of a Successful Pedestrian Safety Oriented Public/Health Transporation
Collaboration.Pedestrian Injury Prevention State Workshop. NHTSA. June 2&3, Washington, DC. 2009.
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FF Principal Investigator/Program Director (Last, first, middle): Hotz, Gillian PhD
Hotz, G. A Novel Treatment Program During Early Stages of Recovery From TBI. Pediatric TBI Issues in
Management, Rehabilitation and Research. Tampa General Hospital, April 25. Tampa, FL. 2009.
Hotz, G. The Effects of Multisensory Environments in Children Recovering from Severe Brain Injury. 6 th Annual Pediatric Brain
& SCI Conference, Nov 10&11, Miami, FL, 2008.
Hotz, G. Importance and efficacy of evidence based practice for Multisensory Environments. International Snoezelen
Association Conference. October 2-5, 2008, Neuveld Germany.
Hotz, G. WalkSafe Statewide Program. Florida Committee On Trauma Meeting. July 9 th , Orlando, FL. 2008.
Hotz, G. Randomized Controlled Trials in Rehabilitation. UC Neurotrauma Meeting, June 23-25 th , Carmel, CA.
2008
Hotz, G. WalkSafe Update. Florida Safekids Annual Meeting. May 21 st , Tampa, FL. 2008
Hotz, G. WalkSafe: A Pediatric Pedestrian Injury Prevention Program. 2007 Forging New Frontiers: Sustaining
Innovations for Healthy Communities. Injury Free Coalition for Kids. Nov. 30 th -Dec. 2 nd , Ft. Lauderdale, FL, 2007
Hotz, G. Pediatric TBI:Early Intervention and Continuum of Care. AANS/CNS Pediatric Neurological Surgery
Annual Meeting, Nov. 26-Dec.1, Miami, FL, 2007
Hotz, G., Helm-Estabrooks, N., Nelson, N., Plante, E. Pediatric Traumatic Brain Injury: Neurocognitive and
Language Assessment. American Speech Language and Hearing Association. Nov. 15-18, Boston, MA, 2007
Hotz, G. WalkSafe: Statewide Implementation of a pediatric pedestrian injury prevention program. 1st National
Safe Routes to School Conference. Nov.5-7, Dearborn, Michigan, 2007
Hotz, G. Importance of Early Neurocognitive Assessment. Pediatric Brain & SCI Conference, Nov. 2-4, Coconut
Grove, FL, 2007
Hotz, G.. Efficacy of MSE with a Snozelen Approach. 5 th International Snoezelen Association Conference . Sept.
20-21 st , Montreal, Canada, 2007
Hotz, G. WalkSafe: Countywide Program. Pro Bike Pro Walk Florida, August 27-31 st , Orlando, FL, 2007
Hotz, G. Early Neurocognitive Assessment and Outcome. Pediatric Brain & SCI Conference. Nov.2-4, Miami, FL.,
2006
Hotz, G. WalkSafe: A county-wide pedestrian injury prevention program. FDOT, St. Augustine, FL, April , 2006.
Hotz, G. Assessment & Treatment of Low Level Patients. Patricia Neal Rehab Center.
Knoxville, TN, March, 2006,
Hotz, G. A Novel treament for low level patients. Pediatric Brain Injury Conference. Miami, FL, November, 2005
Hotz, G. Neuroplasticity in children recovering from severe brain injury. Come to Your Senses Conference.
Toronto, Canada, October, 2005.
Hotz, G. A room for brain injury.WorldWideSnoezelen Conference.Holland,October, 2005.
Hotz, G. Snoezelen: A novel treatment for children with severe brain injury. Childrens Specialized Hospital. New
Jersey, December, 2004.
Hotz, G. Measuring Outcomes in Children with Traumatic Brain Injury. Pan American Trauma Society, XVII
Congress. November, 2004, Miami, FL.
Hotz, G. The Effect of Snoezelen Therapy in children with severe TBI. Pediatric Traumatic and Acquired Brain
Injury: The Continuum of Care. Miami, FL. October, 2004.
Hotz, G. WalkSafe: Findings of a 3 year study. SafeKids State Meeting. Tampa, FL, August, 2004.
Hotz, G. Snoezelen: A controlled multisensory stimulation therapy for children with traumatic brain injuries. The
First International Conference in Israel on Snoezelen, Herzeliya, Israel, May 2004.
Hotz, G.A. Neurorehabilitation: The Program, Team and Outcomes. Pediatric Neurotrauma: The Aftermath of the Injury.
October , 2003, Miami, FL.
Hotz, G.A. Assessing the Neurocognitive Effects of TBI in Children. Brain Injury Association of Florida, The Journey
Continues, The Future of TBI in a Changing World. April, 2002, Palm Beach, FL.
Hotz, G.A. Development of the Pediatric Test of Brain Injury. Brain Injury Association. 20 th Annual Symposium. July, 2001,
Atlanta, GA.
Hotz, G.A., Calvin, R. A Traumatic Brain Injury and SCI Point-of-Care, Team Based Information System. Brain Injury
Association, 19 th Annual Symposium. July, 2000.
Kelly, J., Rosenberg, J., Hotz, G: A Dissemination Program for Concussion in Sports. Annual Academy of Neurology
Meeting. April, 1999.
Hotz, G., Rosenberg, J., Kelly, J., Potts, A., Brooks, J: A Dissemination Strategy for Sports related concussions in High School
Athletes: A pilot curriculum. 1998. Sports: related concussion and nervous system injuries. Orlando Regional Healthcare
System. Orlando, Florida, March, 1998.
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FF Principal Investigator/Program Director (Last, first, middle): Hotz, Gillian PhD
Hotz, G. Functional outcomes after traumatic brain injury. Florida State Association of Rehabilitation Nurses. Haines City ,
Florida, May, 1997.
Hotz, G. Concussion in Sports: Post-concussive symptoms. University of Miami/ HealthSouth Doctors Hospital. Miami,
Florida, March, 1997.
D. RESEARCH SUPPORT
The Children’s Trust 8/1/09-7/31/10 10% funding
Title: WalkSafe Prevention Grant
Florida Department of Transportation
Title: Safe Routes to School 7/1/09-6/30/10 15% funding
Title: Pedestrian Social Marketing Campaign 9/1/09-12/31/09 5% funding
Dept. of Health: Emergency Medical Service 7/1/09-6/30/10 15% funding
Title: WalkSafe Statewide
Metropolitan Planning Organization 8/1/09-7/31/10 5% funding
Title: BikeSafe
The Children’s Trust
Title: WalkSafe Prevention Grant 8/1/08-7/31/09 10% funding
Dept. of Health: Emergency Medical Services
Title: WalkSafe Statewide
7/1/08-6/30/09 15% funding
The Children’s Trust 10/1/07-9/30/09 5% funding
Title: Buckle UP for Life
The Mayors Car Seat Initiative for M-D County $450,000
Department of Education 10/1/07-9/30/10 25% funding
National Institute Disability Rehabilitation Research $600,000
Investigating the Effects of Snoezelen in Children Recovering from Severe TBI
Dept of Health: Emergency Medical Services 7/1/07-6/30/08 15% funding
Title: WalkSafe Statewide $240,000
Florida Department of Transportation
Title: Safe Routes to School 7/1/07-6/30/08 30% funding
WalkSafe: Non-Infrastructure $160,000
Florida Dept. of Transportation 7/1/07- 6/30/10
Title: Transportation Enhancement
WalkSafe: County-wide $350,000 20% funding
The Children’s Trust 9/1/05-8/30/06
$91,269
Title: WalkSafe: An Elementary School Pedestrian Injury Prevention Program
25% funding
The purpose of this study is to provide an elementary school based pedestrian injury prevention program to a high risk district
in Miami-Dade county in order to decrease the number of children that get hit by cars.
National Institute of Health: NINDS 3/1/05-4/30/09
$206,000
Title: Neurobehavioral Outcome of Head Injury in Children (Hotz, G: Miami Site) 15% funding
The purpose of this multi-center study is to study the neurobehavioral sequelae of children
recovering from severe brain injury with including MRI findings at specific time intervals
post injury.
Florida Brain and Spinal Cord Injury Program (Hotz, G) 7/1/04-6/30/05 15% funding
PHS 398 (Rev. 5/95) (Form Page 6) Page FF
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FF Principal Investigator/Program Director (Last, first, middle): Hotz, Gillian PhD
$35,000
Title: Snoezelen Therapy in Children with Severe TBI. The purpose is to evaluate specific pieces of equipment and
assessment tools to measure physiological and behavioral changes.
Florida Brain and Spinal Cord Injury Program (Hotz, G) 7/1/03-6/30/04 10% funding
$30,000
Title: Evaluating behavioral changes in children following TBI using Snoezelen, a multisensory stimulation room.
The primary purpose of this study is to measure any changes in behavior in children with severe brain injury.
Florida Department of Transportation (Hotz G, Cohn S) 10/01/03-9/30/04 50% funding
Title: WalkSafe Program $136,183
The primary objective of this study is to implement an educational intervention pedestrian safety program in all elementary
schools in Miami-Dade County.
Florida Department of Transportation (Hotz G, Cohn S) 10/01/02-9/30/03 50% funding
Title: Pediatric Pedestrian Trauma Study $187,081
The primary objective of this study is to evaluate the effectiveness of implementing an educational intervention (WalkSafe
program) in 16 elementary schools in a high risk district in Miami-Dade.
Florida Department of Transportation (Cohn S, Hotz G) 10/01/01-9/30/02 50% funding
Title: Pediatric Pedestrian Trauma Study $44,300
The primary objective of this study is to pilot an educational based pedestrian safety program for elementary school children.
PHS 398 (Rev. 5/95) (Form Page 6) Page FF
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Principal Investigator/Program Director (Last, First, Middle): Kuluz, John W.
BIOGRAPHICAL SKETCH
Provide the following information for the key personnel and other significant contributors in the order listed on Form Page 2.
Follow this format for each person. DO NOT EXCEED FOUR PAGES.
NAME
KULUZ, John W.
eRA COMMONS USER NAME
jkuluz
POSITION TITLE
Associate Professor of Pediatrics
EDUCATION/TRAINING (Begin with baccalaureate or other initial professional education, such as nursing, and include postdoctoral training.)
INSTITUTION AND LOCATION
DEGREE
(if applicable)
YEAR(s) FIELD OF STUDY
University of Notre Dame; South Bend, Indiana B.S. May, 1980 Pre-professional Sciences
University of Mississippi School of Medicine; Jackson, M.D. May, 1984 Medicine
A. Positions and Honors
Position Institution Supervisor Date
Pediatric Residency University of Florida, School of Medicine Robert Parkhurst, M.D. 1984-1987
Pediatric Critical Care University of California, San Francisco Scott J. Soifer, M.D. 1987-1990
Research Fellow Cardiovascular Research Institute George A. Gregory, M.D. 1987-1990
University of California, San Francisco
Assistant Professor University of Miami School of Medicine R. Rodney Howell, M.D. 1990-1999
Associate Professor University of Miami School of Medicine R. Rodney Howell, M.D. 1999-2009
B. PUBLICATIONS
BOOK CHAPTERS
Kuluz J, Kim H, Dixon D, Samdani A, Gonzalez-Brito M, Mulcahey M: Special considerations for the child with SCI.
In: Spinal Cord Injury Rehabilitation. Edited by Edelle Field-Fote. FA Davis. Philadelphia. In Press
Schleien CL, Kuluz JW: The role of leukocytes in global and focal brain ischemia. In: Update in Intensive Care and
Emergency Medicine: Intensive Care in Childhood. Edited by Tibboel D and van der Voort, Springer-Verlag, The
Netherlands, 1996.
Schleien CL, Kuluz JW: Physiological Foundations of Cardiopulmonary Resuscitation. In: Pediatric Critical Care. Edited
by Fuhrman B. Mosby, New York, 1995.
Schleien CL, Gelman B, Kuluz JW: Pediatric Cardiopulmonary Resuscitation. In: Anesthesiology Clinics of North
America. Edited by Rothenberg DM. W.B. Saunders Company, Philadelphia, pp.943-979, 1995.
Schleien CL, Kuluz JW: Cardiopulmonary Resuscitation. In: The Science and Practice of Pediatric Cardiology. 2nd
Edition. Edited by Garson A Jr, Bricker JT, Fisher DJ, Neish SR. Williams and Wilkins, Houston, 1995.
Schleien CL, Kuluz JW, Shaffner DH: Cardiology Resuscitation. In: Textbook of Pediatrics Intensive Care. 3 rd Edition.
Edited by Rogers MC. Williams and Wilkins, Baltimore, pp. 3-49, 1995.
Schleien CL, Kuluz JW, Shaffner DH, Rogers MC: Cardiopulmonary Resuscitation. In: Handbook of Pediatric Intensive
Care. 2nd Edition. Edited by Rogers MC, Helfaer MA. Williams and Wilkins, Baltimore pp. 1-37, 1994.
JOURNAL ARTICLES
Sandberg DI, Crandall KM, Koru-Sengul T, Padgett KR, Landrum J, Babino D, Petito CK, Solano J, Gonzalez-Brito M,
Kuluz JW: Pharmacokinetic analysis of etoposide distribution after administration directly into the fourth ventricle in a
piglet model. J Neurooncol. 2009 Aug 18.
Huang T, Solano J, He D, Loutfi M, Dietrich WD, Kuluz J: Traumatic Injury Activates MAP Kinases in Astrocytes:
Mechanisms of Hypothermia and Hyperthermia.J Neurotrauma. 2009 Jan 22.
Huang TT, Du M, Kuluz J, Li Y, Ma H. Post-receptor Crosstalk on PI3K/Akt between GH and Insulin in Noncatch-Up
Growth Rats Born Small for Gestational Age. Horm Res. 2008 May 20;70(1):29-35
Sandberg DI, Crandall KM, Petito CK, Padgett KR, Landrum J, Babino D, He D, Solano J,Gonzalez-Brito M, Kuluz
JW. Chemotherapy Administration Directly into the Fourth Ventricle in a New Piglet Model. J Neurosurg Pediatrics. 2008
May;1(5):373-380.
Sandberg DI, Crandall K, Petito CK, Padgett K, Landrum J, Babino D, He D, Benglis DM, Ramirez MA, Kuluz JW.
Distribution of Etoposide in cerebrospinal fluid after infusions into the fourth ventricle in piglets. J Neurosurg Pediatrics.
2008 Apr;1(4):A354
McGoron AJ, Capille M, Georgiou MF, Sanchez P, Solano J, Gonzalez-Brito M, Kuluz JW. Post traumatic brain
perfusion SPECT analysis using reconstructed ROI maps of radioactive microsphere derived cerebral blood flow and
statistical parametric mapping. BMC Med Imaging 2008 Feb 29;8:4
Kuluz J, Huang T, Watson B, Vannucci S. Stroke in the Immature Brain: Review of Pathophysiology and Animal Models
of Pediatric Stroke. Future Neurology, 2008:3(2):199-216
Kuluz J, Prado R, He D, Zhao W, Dietrich WD, Watson, B. New pediatric model of ischemic stroke induced by
photothrombosis in infant piglets: acute changes in cerebral blood flow, microvasculature and early histopathology.
Stroke. 2007 Jun;38(6):1932-7

Huang TT, He D, Kleiner G, Kuluz J. Neuron-like differentiation of adipose-derived stem cells from infant piglets in vitro.
J Spinal Cord Med 2007 30:S35-S40
Hotz GA, Castelblanco A, Lara IM, Weiss AD, Duncan R, Kuluz JW. Snoezelen: a controlled multi-sensory stimulation
therapy for children recovering from severe brain injury. Brain Injury 2006 Jul;20(8):879-88
Youngblut JM, Brooten D, Kuluz JW: Parents' reactions at 24-48 hrs after a preschool child's head injury.
Pediatr Crit Care Med. 2005 Sep;6(5):550-6.
McGoron AJ, Xuming M, Georgiou MF, Kuluz JW: Computer phantom study of brain PET glucose metabolism imaging
using a rotating SPECT/PET camera. Comput Biol Med. 2005 Jul;35(6):511-31
Tang K, Liu, Kuluz JW, Hu B: Alterations of CaMKII after hypoxia-ischemia during brain development. J Neurochemi
2004;1471-4159.
Dietrich WD and Kuluz JW: Emerging therapies: new research in the field of stroke: therapeutic hypothermia after
cardiac arrest. Stroke 2003;34:1051-3.
McLaughlin GE, Kashimawo LA, Steele BW, Kuluz JW: Reversal of acute tacrolimus-induced renal vasoconstriction by
theophylline in rats. Pediatr Crit Care Med 2003;4:358-62.
McLaughin GE, Kulatunga S, Kuluz JW, Gelman B, Schleien CL: Cerebral blood flow during partial liquid ventilation in
surfactant-deficient lungs under varying ventilation strategies. Ped Crit Care Med 2000;2:88-92.
Matsushita Y, Bramlett HM, Kuluz JW, Alonso 0, Dietrich WD: Delayed hemorrhagic hypotension exacerbates the
hemodynamic and histopathological consequences of traumatic brain injury in rats. J Cereb Blood Flow Metab
2001;21(7):847-856.
Monroy M, Kuluz JW, He D, Dietrich WD, Schleien CL: The role of nitric oxide in the cerebrovascular and
thermoregulatory response to interleukin-1β. Am J Physiol Heart Circ Physiol 2001;280:H1448-H1453.
Kuluz JW, McLaughlin GE, Gelman B, Cantwell GP, Thomas J, Mahon T, Schleien CL: The FiO2 in infants receiving
oxygen via nasal cannula can exceed safe levels. Respir Care 2001;46:897-901.
The TG, McLaughlin GE, Kuluz JW, Schachner L, Schleien CL: Ten days of orotracheal intubation with successful
extubation in an infant with junctional epidermolysis bullosa. Pediatr Crit Care Med 2000;1:88-90.
Schleien CL, Kuluz JW, Gelman B, Dietrich WD: Hemodynamic effects of nitric oxide synthase inhibition before and
after cardiac arrest in infant piglets. Am J Physiol 1998;274:H1378-H1385.
Wang N, Kuluz J, Barron M, Perryman R: Cardiopulmonary bypass in a patient with moyamoya disease. Anesth Analg
1997;(5):1160-3.
Gelman B, Schleien CL, Lohe AS, Kuluz JW: Selective brain cooling in infant piglets after cardiac arrest and
resuscitation. Crit Care Med 1996;24:2009-20 17.
Caceres MJ, Schleien CL, Kuluz JW, Gelman B, Dietrich WD: Early endothelial damage and leukocyte accumulation in
piglet brains following cardiac arrest. Acta Neuropathol 1995;90:582-591.
Dallessio JJ, Markley MA, Lohe A, Kuluz JW, Oiticica C, McLaughlin GE: Management of a traumatic pulmonary
pseudocyst using high-frequency oscillatory ventillation. J Trauma 1995;39(6):1188-1190.
Kuluz JW, Prado R, Chang J, Ginsberg MD, Schleien CL, Busto R: Selective brain cooling increases cortical cerebral
blood flow in rats. Am J Physiology 1993;265:H824-827.
Kuluz JW, Prado RJ, Dietrich WD, Schleien CL, Watson BD: The effect of nitric oxide synthase inhibition on infarct
volume after reversible focal cerebral ischemia in conscious rats. Stroke I 993;24(12):2023-2029.
Kuluz JW, Gregory GA, Han Y, Dietrich D, Schleien CL: Fructose-I ,6-bisphosphate reduces infarct volume after
reversible middle cerebral artery occlusion in rats. Stroke 1993;24(lO):1576-1583.
Prado R, Watson BD, Kuluz JW, Dietrich WD: Endothelium-derived nitric oxide synthase inhibition: Effects on cerebral
blood flow, pial arterial diameter and vascular morphology in the rat. Stroke 1992;23:l 118-1124.
Kuluz JW, Gregory GA, Yu ACH, Chang Y: Selective brain cooling during and after prolonged global ischemia reduces
cortical damage in rats. Stroke 1992;23(12):1792-1797.

Sarah Jane Brain Family State Lead Center of Excellence
For the state of
Georgia
Children's Healthcare of Atlanta
www.choa.org
REGION: Southeast CATEGORY OF CARE: Prevention
Program Director: Julie Krupa, Ph.D. Position Title: Research Project Coordinator
Department: Department of Gastroenterology Major Subdivision: Rehabilitation Services
Address: 1001 Johnson Ferry Road NE, Atlanta, GA 30342
Phone: 404‐785‐3284
Email: Julie.Krupa@choa.org
Level 1 Center(s): Atlanta
Level 2 Center(s): Augusta, Columbus, Savannah
Level 3 Center(s): Rome, Valdosta, Brunswick, Athens, Macon
Number of jobs PABI Grant creates in Georgia: 100
Budget Overview for State Lead Center
State Lead Center Management Sub‐total: $ 6,018,288
Category of Care Management Sub‐total: $ 1,659,803
Case Management Sub‐total: $ 2,870,157
State Lead Center Sub‐total: $ 10,580,248
Indirect Cost to Institution (20%): $ 2,116,050
Administrative Cost to SJBF (2%): $ 211,605
SUB‐TOTAL AMOUNT OF GRANT PROPOSAL: $ 12,907,903

Children's Healthcare of Atlanta Profile continued
Title/Description Sub‐total Amount for Grant
STATE LEAD CENTER MANAGEMENT
Program Director: $ 128,100
Program Director Assistant: $ 93,383
State Director: $ 311,278
Associate State Director: $ 134,887
State Epidemiologist: $ 207,518
State Epidemiologist Assistant: $ 93,383
State Scientific Investigation Research Coordinator: $ 176,391
State Scientific Investigation Research Assistant: $ 176,391
State Education/Training Coordinator (plus materials): $ 405,316
State General Counsel: $ 249,022
State IT Manager: $ 197,143
State Family Support Coordinator: $ 155,639
State Prevention/Awareness Coordinator: $ 155,639
State Acute Care Coordinator: $ 155,639
State Reintegration Coordinator: $ 155,639
State Adult Transition Coordinator: $ 155,639
State Mild TBI Coordinator: $ 155,639
State Mental Health Coordinator: $ 134,887
State Assistive/Emerging Technology Coordinator: $ 134,887
State Correctional System Coordinator: $ 134,887
State MISC Coordinator: $ 134,887
State Veterans Coordinator: $ 134,887
State Data Manager: $ 134,887
State Public Policy Manager: $ 155,639
State Community Relations Manager: $ 134,887
State Administrative Support: $ 560,300
Charity care: $ 340,194
Human Resources Support: $ 100,000
Training Support: $ 25,000
State Lead Center Office Space Cost: $ 326,927
State Lead Center Transportation/Travel: $ 110,223
State Lead Center Office Equipment/Communications: $ 197,500
State Lead Center Supplies: $ 105,460
Annual and Regional Conferences: $ 32000
State Brain Injury Association Pediatric Programs: $ 97,198
STATE LEAD CENTER MANAGEMENT SUB‐TOTAL: $ 6,018,288

Children's Healthcare of Atlanta Profile continued
Title/Description Sub‐total Amount for Grant
CATEGORY OF CARE RESPONSIBILITY: Prevention
Regional Category Director: $ 311,278
Regional Category Epidemiologist: $ 249,022
Regional Category Education/Training Coordinator: $ 207,518
Regional Category Scientific Investigation Research: $ 207,518
Regional Category Administrative Support: $ 373,533
Regional Category Office Space Cost: $ 94,914
Regional Category Transportation/Travel: $ 157,500
Regional Category Office Equipment/Communications: $ 27,900
Regional Category Supplies: $ 30,617
CATEGORY OF CARE SUB‐TOTAL: $ 1,659,803

Children's Healthcare of Atlanta Profile continued
Title/Description Sub‐total Amount for Grant
CASE MANAGEMENT RESPONSIBILITY
Level 1 Center Manager(s): $ 148,227
Level 1 Center Field Specialist(s): $ 118,582
Level 1 Center SJB Family Specialist(s): $ 809,322
Level 1 Center Administrative Support: $ 133,405
Level 1 Office Space Cost: $ 51,029
Level 1 Transportation/Travel: $ 27,774
Level 1 Office Equipment/Communications: $ 33,800
Level 1 Supplies: $ 58,319
Level 2 Center Field Specialist(s): $ 213,448
Level 2 Center SJB Family Specialist(s): $ 693,705
Level 2 Transportation/Travel: $ 23,684
Level 2 Office Equipment/Communications: $ 39,900
Level 2 Supplies: $ 30,617
Level 3 Center SJB Family Specialist(s): $ 433,565
Level 3 Transportation/Travel: $ 11,700
Level 3 Office Equipment/Communications: $ 28,500
Level 3 Supplies: $ 14,580
CASE MANAGEMENT SUB‐TOTAL: $ 2,870,157
STATE LEAD CENTER SUB‐TOTAL: $ 10,580,248
INDIRECT COST TO INSTITUTION: $ 2,116,050
ADMINISTRATIVE FEE TO SJBF: $ 211,605
STATE LEAD CENTER SUB‐TOTAL: $ 12,907,903
TOTAL JOBS CREATED IN Georgia: 100

Principal Investigator: Haarbauer-Krupa, Juliet K.
BIOGRAPHICAL SKETCH
Provide the following information for the key personnel and other significant contributors in the order listed on Form Page 2.
Follow this format for each person. DO NOT EXCEED FOUR PAGES.
NAME
Haarbauer-Krupa, Juliet K.
POSITION TITLE
Research Project Coordinator
EDUCATION/TRAINING (Begin with baccalaureate or other initial professional education, such as nursing, and include postdoctoral training.)
INSTITUTION AND LOCATION
DEGREE
(if applicable)
YEAR(s) FIELD OF STUDY
Pennsylvania State University, State College,PA BS 1977 Speech Pathology
University of Pittsburgh, Pittsburgh, PA MA 1980 Speech Pathology
Georgia State University, Atlanta, GA PHD 2008 Educational Psychology
A. Positions and Honors
1980-1985 Speech Pathologist, Rehabilitation Institute of Pittsburgh, Pittsburgh, PA. Responsible for
Developing clinical programs for pediatrics in the area of acquired brain injury and Assistive
Technology.
1985-1987 Speech Pathologist, National Rehabilitation Hospital Washington, D.C. Duties included the
development of an acquired brain injury unit for adults and therapeutic feeding team.
1988-1990 Pediatric Program Coordinator, Atlanta Rehabilitation Institute. Developed a pediatric day
treatment model for acquired brain injury.
1990-1990 Speech, Pathologist, Children’s Healthcare of Atlanta. Duties include evaluation and
treatment of children.
1991-2005 Private Practice in Speech Pathology, Atlanta, GA. Specialized practice for children with
neurologic difficulties in the areas of language, communication and feeding.
2002-2005 Augmented Language Intervention for Toddlers Project: Duties included the development of
projects, proposals for conference presentations, manuscript preparation and transcription. Mary
Ann Romski, Ph.D., Principle Investigator, Melissa Cheslock, M.A., Lab Coordinator.
2006-2008 Research Scientist, Children’s Healthcare of Atlanta, Rehabilitation Services and
Division of Gastroenterology
Responsible for developing and implementing a research agenda for feeding and swallowing
and rehabilitation projects.
2009-present Research Project Coordinator, Children’s Healthcare of Atlanta, Rehabilitation Services.
Responsible for developing a research program and implementing a research agenda.
Other experience and professional memberships
American Speech-Language Hearing Association
Special Interest Divisions (ASHA): Dysphagia; Neurogenics; Child Language; Augmentative
Communication.
Dysphagia Research Society
Georgia Speech-Language and Hearing Association
International Neuropsychological Society
PHS 398/2590 (Rev. 09/04, Reissued 4/2006) Biographical Sketch Format Page

Principal Investigator: Haarbauer-Krupa, Juliet K.
Society for Research in Child Development
North American Brain Injury Association
Member, Children and Youth Advisory Committee for the Georgia Brain and Spinal Cord Injury Trust Fund
B. Publications
Peer Reviewed Journal Articles
Haarbauer-Krupa, J. (2009). Cognitive Rehabilitation for children and youth: Moving toward collaborative
partnerships, Brain Injury Professional, in press.
Romski, M., Haarbauer-Krupa, J. Cheslock, M., Sevcik, R. & Adamson, L. (2008) Language and
communication changes in a child with holoprosecephaly: A case report. Journal of Medical Speech Pathology,
March.
Haarbauer-Krupa, J., Wilhoit, A., Clabby, M., & Robinson, B, (2008). (Abstract) Dysphagia in children with
congenital heart disease, Dysphagia, March.
Brown-Lewis, R, and Haarbauer-Krupa, J. (2006). Do trauma services enhance functional and length of stay
outcomes for pediatric patients with an acquired brain injury? Journal of Head Trauma Rehabilitation,
November 2006.
Peer Reviewed Conference Papers/Reports:
Fitting Technology for Children with Acquired Brain Injuries, oral presentation with Michelle Spady to
Georgia Speech and Hearing Annual Convention, Atlanta, GA, March 2009.
Traumatic Brain Injuries in Preschool Children: High Risk for Consequences and Disparities in
Identification, poster presented at the International Neuropsychological Society, Atlanta GA , February, 2009.
Acquired Brain Injuries in Preschool children: Identification and follow-up issues, oral presentation and
the North American Brain Injury Society Conference, New Orleans, LA., October 2008.
Dysphagia in children with congenital heart disease, oral presentation presented with Anna Wilhoit, Martha,
Clabby, and Byron Robinson at the Dysphagia Research Society Conference, March 2008.
Educational and social participation outcomes in children with traumatic brain injuries who are
graduates of a day rehabilitation program, poster presented with Mimi Gold, North American Brain Injury
Society Conference, San Antonio Texas, September 2007.
Dysphagia in children with congenital heart disease, poster presented with Elizabeth Harding and Anna
Wilhoit at the American Speech-Language and Hearing Association , Miami, Florida, November 2006.
The relationship between speech, language and reading in young children, poster presented at the
American Speech-Language and Hearing Association , Miami, Florida, November 2006.
Language Disorders: How lesion studies inform about profiles, paper presented at the American Speech-
Language and Hearing Association, Miami, Florida, November 2006.
Do trauma services enhance functional and length of stay outcomes for pediatric patients with an
acquired brain injury? Presentation with Rosemary Brown-Lewis at the 2 nd Annual Interagency Trauma
Conference, March 9-11, Bethesda, Maryland
Developmental Patterns of word retrieval errors in children and their mother’s response, poster presented
with Amy Lederberg and Mary Ann Romski at the American Speech-Language-Hearing Annual conference,
Nov 2003 Chicago, Il.
Phonemic Errors in the conversations of young children, poster presented with Kim Anders at American
Speech, Language and Hearing Association Conference, Nov 2003 Chicago, Il.
A neurobiologic model of hunger and satiation relative to oral development, paper presented at the
American Speech Language and Hearing Association conference, Nov 2003, Chicago.
Developmental Patterns of word retrieval errors in children, poster presented with Amy Lederberg and
Mary Ann Romski at the annual meeting of the Society for Research in Child Development, Tampa FL
The Developing Brain: Pediatric Neuroanatomy Update and Review, ASHA , 2000.
Cognitive Rehabilitation with Adolescents, Invited presentation, Vanderbilt University, November 2000.
PHS 398/2590 (Rev. 09/04, Reissued 4/2006) 2
Continuation Format Page

Principal Investigator: Haarbauer-Krupa, Juliet K.
Medical Aspects of Speech and Language Disorders, Co-presenter with John Riski, Ph.D. at GSHA
Conference, March 1997.
Fitting Technology for Patients with Memory and Organization Problems, Paper presented at GSHA
Conference, March 1997.
Development of Oral-Motor Skills, Implications for Feeding and Speaking, Invited lecture for Purdue
University Videoconference Series, October 1996.
Acquired Brain Injury in Children, Invited lecturer for audio teleconference, Purdue University, June-July
1996.
Acquired Brain Injury in Children, Invited lecturer for 4-day teacher training course for Metro Atlanta
Educators, June 1996.
Other
Ylvisaker, M, Szekeres, S. & Haarbauer-Krupa, J. (1998). Memory, Organization and Language, M.
Ylvisaker (ed) Head Injury Rehabilitation: Children and Adolescents, Butterworth-Heinemann,
Ylvisaker, M., Szekeres, S. Haarbauer-Krupa, J., Urbanczyk, B. & Feeney, T. (1994). Speech and Language
Intervention in Educational Dimensions of Acquired Brain Injury, Savage and Wolcott (eds.), , Pro-Ed,
Haarbauer-Krupa, J. Moser, L., Smith, G. Sullivan, D. & Szekeres, S. (1985). Cognitive Rehabilitation
Therapy: Middle Stages of Recovery, in Head Injury Rehabilitation: Children and Adolescents,
Ylvisaker (ed.) College-Hill Press.
Haarbauer-Krupa, J., Henry, K. Szekeres, S. and Ylvisaker, M., (1985). Cognitive Rehabilitation Therapy: Late
Stages of Recovery, in Head Injury Rehabilitation: Children and Adolescents, Ylvisaker (Ed), College-
Hill Press.
B. Research Support
Dudley Moore Grant: Dysphagia in Children with Congenital Heart Disease, July 2006 to present
Children’s Healthcare of Atlanta.
Role: Principle Investigator
PHS 398/2590 (Rev. 09/04, Reissued 4/2006) 3
Continuation Format Page

Sarah Jane Brain Family State Lead Center of Excellence
For the state of
Hawaii
Center on Disability Studies at The University of Hawaii
www.cds.hawaii.edu
REGION: Pacific CATEGORY OF CARE: Mild TBI
Program Director: Jean Johnson, Ph.D. Position Title: Associate Director/Associate
Professor
Department: Center on Disabilities Studies
Address: 1776 University Avenue, Honolulu, HI 96822
Phone: 808‐956‐2653
Email: jeanj@hawaii.edu
Program Director: Jeffrey Okamoto, MD Position Title: Associate Director, Hawaii MCH
LEND program
Address: 1319 Punahou Street, #739a, Honolulu, HI 96826
Phone: 808‐956‐3142
Level 1 Center(s): Oahu, Maui, Kauai, Hilo (Big Island)
Level 2 Center(s): Guam, Saipan (CNMI), Palau, FSM (Pohnpei), Marshalls (Marjuro), American Samoa,
Hana, Molokai, Kona (Big Island)
Level 3 Center(s): FSM (Yap), FSM (Chuuk), FSM (Kosrae), Marshalls (Ebeye) and Lanai
Number of jobs PABI Grant creates in Hawaii: 184
Budget Overview for State Lead Center
State Lead Center Management Sub‐total: $ 6,187,416
Category of Care Management Sub‐total: $ 1,998,192
Case Management Sub‐total: $ 9,032,087
State Lead Center Sub‐total: $ 17,249,695
Indirect Cost to Institution (20%): $ 3,449,939
Administrative Cost to SJBF (2%): $ 344,994
SUB‐TOTAL AMOUNT OF GRANT PROPOSAL: $ 21,044,628

Center on Disability Studies at The University of Hawaii Profile continued
Title/Description Sub‐total Amount for Grant
STATE LEAD CENTER MANAGEMENT
Program Director: $ 317,053
Program Director Assistant: $ 96,786
State Director: $ 322,620
Associate State Director: $ 139,802
State Epidemiologist: $ 215,080
State Epidemiologist Assistant: $ 96,786
State Scientific Investigation Research Coordinator: $ 182,818
State Scientific Investigation Research Assistant: $ 182,818
State Education/Training Coordinator (plus materials): $ 213,265
State General Counsel: $ 258,096
State IT Manager: $ 204,326
State Family Support Coordinator: $ 161,310
State Prevention/Awareness Coordinator: $ 161,310
State Acute Care Coordinator: $ 161,310
State Reintegration Coordinator: $ 161,310
State Adult Transition Coordinator: $ 161,310
State Mild TBI Coordinator: $ 161,310
State Mental Health Coordinator: $ 139,802
State Assistive/Emerging Technology Coordinator: $ 139,802
State Correctional System Coordinator: $ 139,802
State MISC Coordinator: $ 139,802
State Veterans Coordinator: $ 139,802
State Data Manager: $ 139,802
State Public Policy Manager: $ 161,310
State Community Relations Manager: $ 139,802
State Administrative Support: $ 580,716
Charity care: $ 311,034
Human Resources Support: $ 184,000
Training Support: $ 46,000
State Lead Center Office Space Cost: $ 298,904
State Lead Center Transportation/Travel: $ 100,775
State Lead Center Office Equipment/Communications: $ 197,500
State Lead Center Supplies: $ 96,421
Annual and Regional Conferences: $ 32,000
State Brain Injury Association Pediatric Programs: $ 88,867
STATE LEAD CENTER MANAGEMENT SUB‐TOTAL: $ 6,187,416

Center on Disability Studies at The University of Hawaii Profile continued
Title/Description Sub‐total Amount for Grant
CATEGORY OF CARE RESPONSIBILITY: Mild TBI
Regional Category Director: $ 322,620
Regional Category Epidemiologist: $ 258,096
Regional Category Education/Training Coordinator: $ 215,080
Regional Category Scientific Investigation Research: $ 215,080
Regional Category Administrative Support: $ 387,144
Regional Category Office Space Cost: $ 86,778
Regional Category Transportation/Travel: $ 157,500
Regional Category Office Equipment/Communications: $ 27,900
Regional Category Supplies: $ 27,993
CATEGORY OF CARE SUB‐TOTAL: $ 1,998,192

Center on Disability Studies at The University of Hawaii Profile continued
Title/Description Sub‐total Amount for Grant
CASE MANAGEMENT RESPONSIBILITY
Level 1 Center Manager(s): $ 614,514
Level 1 Center Field Specialist(s): $ 491,611
Level 1 Center SJB Family Specialist(s): $ 3,355,247
Level 1 Center Administrative Support: $ 553,063
Level 1 Office Space Cost: $ 46,655
Level 1 Transportation/Travel: $ 109,596
Level 1 Office Equipment/Communications: $ 117,200
Level 1 Supplies: $ 146,630
Level 2 Center Field Specialist(s): $ 663,675
Level 2 Center SJB Family Specialist(s): $ 2,156,945
Level 2 Transportation/Travel: $ 70,378
Level 2 Office Equipment/Communications: $ 119,700
Level 2 Supplies: $ 83,979
Level 3 Center SJB Family Specialist(s): $ 449,363
Level 3 Transportation/Travel: $ 11,700
Level 3 Office Equipment/Communications: $ 28,500
Level 3 Supplies: $ 13,330
CASE MANAGEMENT SUB‐TOTAL: $ 9,032,087
STATE LEAD CENTER SUB‐TOTAL: $ 17,249,695
INDIRECT COST TO INSTITUTION: $ 3,449,939
ADMINISTRATIVE FEE TO SJBF: $ 344,994
STATE LEAD CENTER SUB‐TOTAL: $ 21,044,628
TOTAL JOBS CREATED IN Hawaii: 184

Jean L. Johnson, DrPH April 19, 2009
NAME
Jean L. Johnson
BIOGRAPHICAL SKETCH
Provide the following information for the key personnel in the order listed on Form Page 2.
Follow this format for each person. DO NOT EXCEED FOUR PAGES.
POSITION TITLE
Associate Director, Center on Disability Studies
College of Education, University of Hawai`i
EDUCATION/TRAINING (Begin with baccalaureate or other initial professional education, such as nursing, and include postdoctoral training.)
INSTITUTION AND LOCATION
DEGREE
(if applicable)
YEAR(s) FIELD OF STUDY
University of Tennessee BS 1963 Special Education
Northwestern University MA 1964 Audiology
University of Hawai`i MPH 1977 Maternal-Child Health
University of Hawai`i DrPH 1992 Community Health
A. Positions and Honors: Positions and Employment
1982-1987 Administrator, Bureau of Family Health Services, Department of Public Health and Social
Services, Government of Guam
1983-1990 Partner, Audiological Associates, Guam
1985-1990 Audiological Consultant for the Micronesian Otitis Media Training Project administered
through the University of Hawai`i School of Medicine
1987-1999 Director, Zero-to-Three Hawai`i Project, Department of Health, Part C of IDEA Program for
the State of Hawai`i
1995-present Associate Clinical Instructor, University of Hawai`i School of Medicine
1999-present Assistant Professor, Director of Community Training and Outreach
Center on Disability Studies, University of Hawai`i
2001-present Faculty, Maternal and Child Health Leadership in Neurological and Other Related Disorders.
2001-present Associate Graduate Faculty, University of Hawai`i at Manoa
2004-present Director (Interim), Center on Disability Studies, University of Hawai`i
2005-Present Associate Director, Center on Disability Studies, University of Hawai`i
Other Experience and Professional Memberships
1999-present Hawai`i Early Intervention Coordinating Council. Appointed by Governor.
1996-2000 Federal Interagency Coordinating Council. Appointed by the U.S. Secretary of Education to
represent Part H Programs on the Federal Interagency Coordinating Council (under IDEA).
Chair of the Finance Committee; Chair of the Department of Defense Task Force; Member of
the Executive Committee.
1999-present Board of Directors, Easter Seals of Hawai`i. Member of the Program Committee and
Strategic Planning Committee; Vice-Chair, 2003-2004; Chair, 2004-2005.
2000-present Maternal Child Health Review Panel. Chaired federal review panel to review newborn
hearing screening grant applications, 2001-2005.
2001-present Special Education Advisory Council. Appointed by the Hawai`i Superintendent of Education.
2001-2003 Chair, Faculty Senate for Center on Disability Studies.
2002-2006 State Council on Developmental Disabilities. Appointed by the Governor. Chair the Health
and Early Education Committee. Member of the Executive Committee.
2003-2004 Faculty Senate, College of Education, Diversity and Governance Committees
2004-2005 Vice-Chair, Faculty Senate, College of Education;
2005-2007 Chair, Faculty Senate, College of Education
B. Selected peer-reviewed publications (in chronological order).
1) Pryor, Micki; Pryor, Jan; Manning, Jean; Manning, Scot; Rudoy, Raul; Stewart, Jean;
Dever, Gregory J.; and Stool, Sylvan (1985). Vitamin A Deficiency/Otitis Media in
Micronesia: A Clinical Report. Pacific Health Dialogue.
PHS 398/2590 (Rev. 05/01) Page Biographical Sketch Format Page

Principal Investigator/Program Director (Last, First, Middle):
2) Dever, Gregory J.; Stewart, Jean L.; and David, Amanis (1985). Prevalence of Otitis
Media in Selected Populations on Pohnpei: A Preliminary Study. International Journal
of Pediatric Otorhinolaryngology, 10, 143-152.
3) Stewart, Jean L.; Anae, Annabel P.; and Gipe, Patricia N. (1989). Pacific Islander Children: Prevalence of
Hearing Loss and Middle Ear Disease. Topics in Language Disorders, 9(3), 76-83.
4) Sia, Calvin C.J. and Stewart, Jean L. (1989). The Medical Home and PL 99-457 in Hawai`i. Hawai`i Medical
Journal, 48 (12), 529-535.
5) Garrett, J.A.; and Stewart, J.L. (1989). Hearing Loss and Otitis Media on Guam: Impact of Professional
Services. Asia-Pacific Journal of Public Health, 3 (3), 213-218.
6) Chezik, Kathryn H.; Pratt, Judith E.; Stewart, Jean L.; and Deal, Vicki R. (1989). Addressing Service Delivery in
Remote/Rural Areas. ASHA, 31 (1), 213-218.
7) Dever, G.J.; Stool, S.; and Stewart, J.L. (1990). Otitis Oceania: Middle Ear Disease in the Pacific Basin. Annals
of Otology, Rhinology & Laryngology, 99, (7), Supplement 149, 25-27.
8) Stewart, Jean L. and Triolo, Dennis J. (1990). Development of Speech-Language-Hearing Services in Guam and
Micronesia. ASHA, 32, 37-40.
9) Pratt, Judith E.; Chezik, Kathryn H.; Hilyer-Wright, Nereida; Patterson, Mary A.; Stewart, Jean L.; Wilson, W.
Freda; and Deal, Vicki R. (1991). REACH: A Model for Service Delivery and Professional Development Within
Remote/Rural Regions of the United States and U.S. Territories. ASHA, Supplement No. 6, 33 (9), 5-14.
10) Johnson, Jean L.; Mauk, Gary W.; Takekawa, Kristine M.; Simon, Peter; Sia, Calvin C.J.; and
Blackwell, Peter M. (1993). Implementing a Statewide System of Services for Infants and Toddlers
with Hearing Disabilities. Seminars in Hearing, 17 (1), 105-119.
11) Hosford-Dunn, Holly; Baxter, Jane H.; Cherow, Evelyn; Desmond, Alan L.; Jacobson, Gary; Johnson,
Jean L.; and Martin, Patty F. (1994). Planning and Initiating an Autonomous Audiology Practice.
Washington, D.C.: American Speech-Language-Hearing Association.
12) Johnson, Jean L.; Yuen, JoAnn; Nishimoto, Patricia I.; Johnson, Robert C.; and Johnson, Roma (1994).
Family Centered Care: Thriving in Hawai`i Under Part H. Clinics in Commun. Disorders, 4:4, 254-265.
13) Johnson, Jean L.; Kuntz, Nancy L.; Sia, Calvin C.J.; White, Karl R.; and Johnson, Roma L. (1997).
Newborn Hearing Screening in Hawai`i. Hawai`i Medical Journal. Honolulu, HI: 56:12, 352-355.
14) Johnson, Jean; Weirather, Yusnita; Sia, Calvin C.J; Okamoto, Jeff, and Shapiro, Beppie (2002).
Universal Newborn Hearing Screening: A Goal Being Achieved in Hawai`i. Hawai`i Medical Journal,
61:2, 26-29.
15) Johnson, Jean and Woll, Josie (2003). Health Disparities: The Gap the MUST Be Closed. Disability Studies
Quarterly, Spring 2003 (no pages, on-line journal).
16) Johnson J; White K; Widen J; Vohr B; Gravel J; Weirather Y; Maxon A; Spivak L; James M; Sullivan-Mahoney
M; Kennalley T; Holstrum J. (2005). A Multi-Center Evaluation of How Many Infants with Permanent Hearing
Loss Pass a Two-Stage OAE/A-ABR Newborn Hearing Screening Protocol. Pediatrics, 116:3, 663-672.
17) Johnson JL, White KR, Widen JE, Gravel JS, Vohr BR, James M, Kennalley T, Maxon AB, Spivak L, Sullivan-
Mahoney M, Weirather Y, Meyer S (2005). A Multi-Site Study to Examine the Efficacy of the OAE/A-ABR
Newborn Hearing Sreening Protocol: Introduction & Overview of the Study. American Academy of Audiology,
14, 178-185.
C. Most Recent Research Activities: Principal Investigator/Project Director
1993-1999 Project BEGIN. Nine year controlled trial research study to determine effectiveness of early
intervention services. Funded by Centers for Disease Control.
1995-1999 Supportive Parenting Project. Five-year model demonstration project to develop a statewide
model of services for parents with cognitive disabilities who are parenting an infant or toddler.
Funded by the U.S. Department of Education.
1999-2001 Positive Behavioral Supports. Project to enhance positive behavioral supports for persons with
developmental disabilities. Funded by the Administration on Developmental Disabilities.
2000-2004 Efficacy of OAE/ABR Protocol in Identifying Hearing Loss in Infants. Prospective
study involving twelve birthing facilities across the nation. Funded by CDC.
2005-2011 Project Ho`omohala. Prospective six year study of transition outcomes in youth with serious
emotional and behavioral challenges. Funded by SAMSHA.
2008-2011 First Step to Success. Prospective three year study to a behavioral intervention with preschool
children at risk for behavioral problems. Funded by U.S. DOE, Native Hawaiian Program.
PHS 398/2590 (Rev. 05/01) Page Continuation Format Page

Jeffrey K. Okamoto M.D.
Curriculum Vitae
Present Position: Associate Director, Hawaii MCH LEND program
Medical Director, State of Hawaii Department of Health Developmental Disabilities Division
Medical School Information
John A. Burns School of Medicine, University of Hawaii at Manoa
Degree Awarded: MD Year Completed: 1988
Certification and Re-Certification* Current Licensure:
Specialty/ Certification
Re-
Certification
Date of
Subspecialty Name Year
Year
State Expiration
Pediatrics 1991-1998 2006-2012 Hawaii 2008
Developmental-
Behavioral Pediatrics
2002-2012 California 2008
Academic Appointments (Begin with Current Position and list past ten years)
Years Position(s) Description
Current Assistant Professor of Pediatrics, Department of Pediatrics, John A. Burns School
of Medicine, University of Hawaii at Manoa
1993-1995 Assistant Professor of Pediatrics, Department of Pediatrics, University of Southern
California
Current Professional Activities/Committees)
Co-Director, Pono Interdisciplinary Clinic in Disabilities, and Associate Director, Maternal and Child
Health Leadership Education in Neurodevelopmental and Related Disabilities (MCH LEND); Center on
Disability Studies/University Center for Excellence (CDS/UCE) in Research, Education, & Service,
University of Hawaii at Manoa
Director of the Developmental-Behavioral Pediatrics Training Program, John A. Burns School of
Medicine (Medical student, resident, subspecialty resident teaching)
Medical Director, State of Hawaii Department of Health Developmental Disabilities Division
Medical Director, Department of Rehabilitation Services, Kapiolani Medical Center for Women and
Children
National Executive Committee Member, Council on School Health, American Academy of Pediatrics
Board member, Healthy Mothers, Healthy Babies of Hawaii
Chairperson, Center on Disability Studies Council
Committee member, University Coordinating Council for the Center on Disability Studies, University
of Hawaii at Manoa
Selected Bibliography
Johnson J, Weirather Y, Sia C, Okamoto J, and B. Shapiro. Universal Newborn Hearing
Screening: A Goal Being Achieved in Hawaii. Hawaii Medical Journal. 2002; 61:26-30.
Okamoto J., Ratliffe K.T., Ah Sam A. Childhood disabilities in medical education at the John A.
Burns School of Medicine (JABSOM). Hawaii Medical Journal. 2001; 60:5.
Okamoto J.K., Ratliffe K.T., Ah Sam A. Training in disabilities for medical students and paediatric
residents in educational settings. Journal of Intellectual Disability Research. 2000; 44:416. (Abstract).
A1

Selected Review Articles/Chapters/Textbooks
Okamoto J. Chapter 2 Health Services, and Chapter 4 Populations with Unique Needs. In: School
Health: Policy and Practice. 6 th edition. American Academy of Pediatrics, Elk Grove Village, IL 2004.
Okamoto J. Developmental Screening of Infants, Toddlers and Preschoolers. In: Yamamoto L, Patrinos
ME, Okamoto J, Michels M, and Inaba A (eds). Case Based Pediatrics for Medical Students and
Residents. AuthorHouse 2004.
Okamoto J. Disabilities and Physician Interactions in Schools. In: Yamamoto L, Patrinos ME,
Okamoto J, Michels M, and Inaba A (eds). Case Based Pediatrics for Medical Students and Residents.
AuthorHouse 2004.
Okamoto J. Attention Deficit Hyperactivity Disorder. In: Yamamoto L, Patrinos ME, Okamoto J,
Michels M, and Inaba A (eds). Case Based Pediatrics for Medical Students and Residents.
AuthorHouse 2004.
Okamoto J. Book review – Japanese Frames of Mind: Cultural Perspectives on Human Development.
J Dev Behav Pediatr. 2002. 23 (5): 388.
Participation in Local, Regional, and National Activities/Presentations - Selected
Invited Presenter – Scenarios and Discussion on Mental Retardation, Autism, and ADHD;
Developmental Screening and Behavioral Rating Scales Workshops. Northern Marianas College,
Community Development Institute – University Centers for Excellence in Developmental Disabilities
(UCEDD Program) – Saipan - 5/29/09 to 6/1/09
Supporting Individuals with Co-Occurring Mental Illness and Developmental Disability: A System-
Wide Collaboration – with Dr. Christine Walton and Eva Kishimoto - – International Conference on
Diverse Abilities and Innovative Supports 2008 – 8/13/08
Presentation for the National Maternal and Child Health Developmental-Behavioral Pediatrics (DBP)
Programs – The Hawaii DBP Program and the Military Medical System – Omni Parker House, Boston
– 3/24/07
Pediatrics Grand Rounds – An Update on the Evaluation and Management of Mental Retardation – with
Dr. Laurie Seaver (from Genetics) – KMCWC Auditorium 12/21/06
Cerebral Palsy. Presentation to case managers of the Developmental Disabilities Division through the
VCC teleconferencing on Honolulu, Kapolei, and the Big Island 5/1/06.
Invited Presenter at the Hawaii Chapter of the National Association of Pediatric Nurse Associates and
Practitioners – Interdisciplinary Approach to Children with Feeding Problems – with Melinda Kohr
Ph.D., Anne Tsukahara-Ho OTP, Amy Pendleton M.S., CCC-SLP, and Sayuri Asano MPH, PD, CSP.
Hale Koa Hotel, Waikiki 4/19/06
Visiting Professor to University of Virginia Kluge Rehabilitation Center:
Conferences: “Strategies for Behavioral Problems in Toddlers/Young Children”; “Communication with
Children and Families”; “Giving Difficult News to Families” March 2006
A2

Sarah Jane Brain Family State Lead Center of Excellence
For the state of
Idaho
Idaho State University / Institute of Rural Health
www.isu.edu
REGION: Rocky Mountain CATEGORY OF CARE: Virtual SJB Center
Program Director: Russell Spearman, M.Ed. Position Title: Senior Research
Associate
Department: Traumatic Brain Injury Program
Address: 12301 West Explorer Drive, suite 103, Boise, ID 83713
Phone: 208‐373‐1773
Email: spearuss@isu.edu
Level 1 Center(s): Pocayello (Idaho State University), Boise
Level 2 Center(s): Couer d'Alene
Level 3 Center(s): Nampa, Lewiston
Number of jobs PABI Grant creates in Idaho: 91
Budget Overview for State Lead Center
State Lead Center Management Sub‐total: $ 5,368,511
Category of Care Management Sub‐total: $ 1,659,297
Case Management Sub‐total: $ 3,064,488
State Lead Center Sub‐total: $ 10,124,296
Indirect Cost to Institution (20%): $ 2,024,859
Administrative Cost to SJBF (2%): $ 202,486
SUB‐TOTAL AMOUNT OF GRANT PROPOSAL: $ 12,351,641

Idaho State University / Institute of Rural Health Profile continued
Title/Description Sub‐total Amount for Grant
STATE LEAD CENTER MANAGEMENT
Program Director: $ 52,150
Program Director Assistant: $ 89,886
State Director: $ 299,621
Associate State Director: $ 129,836
State Epidemiologist: $ 199,747
State Epidemiologist Assistant: $ 89,886
State Scientific Investigation Research Coordinator: $ 169,785
State Scientific Investigation Research Assistant: $ 169,785
State Education/Training Coordinator (plus materials): $ 205,801
State General Counsel: $ 239,697
State IT Manager: $ 189,760
State Family Support Coordinator: $ 149,810
State Prevention/Awareness Coordinator: $ 149,810
State Acute Care Coordinator: $ 149,810
State Reintegration Coordinator: $ 149,810
State Adult Transition Coordinator: $ 149,810
State Mild TBI Coordinator: $ 149,810
State Mental Health Coordinator: $ 129,836
State Assistive/Emerging Technology Coordinator: $ 129,836
State Correctional System Coordinator: $ 129,836
State MISC Coordinator: $ 129,836
State Veterans Coordinator: $ 129,836
State Data Manager: $ 129,836
State Public Policy Manager: $ 149,810
State Community Relations Manager: $ 129,836
State Administrative Support: $ 539,317
Charity care: $ 268,117
Human Resources Support: $ 91,000
Training Support: $ 22,750
State Lead Center Office Space Cost: $ 257,660
State Lead Center Transportation/Travel: $ 86,870
State Lead Center Office Equipment/Communications: $ 197,500
State Lead Center Supplies: $ 83,116
Annual and Regional Conferences: $ 32,000
State Brain Injury Association Pediatric Programs: $ 76,605
STATE LEAD CENTER MANAGEMENT SUB‐TOTAL: $ 5,368,511

Idaho State University / Institute of Rural Health Profile continued
Title/Description Sub‐total Amount for Grant
CATEGORY OF CARE RESPONSIBILITY: Virtual SJB Center
Regional Category Director: $ 299,621
Regional Category Epidemiologist: $ 239,697
Regional Category Education/Training Coordinator: $ 199,747
Regional Category Scientific Investigation Research: $ 199,747
Regional Additional (Regional Bus. Dvlpt Man.): $ 199,747
Regional Category Administrative Support: $ 359,545
Regional Category Office Space Cost: $ 74,805
Regional Category Transportation/Travel: $ 157,500
Regional Category Office Equipment/Communications: $ 27,900
Regional Category Supplies: $ 24,131
CATEGORY OF CARE SUB‐TOTAL: $ 1,659,297

Idaho State University / Institute of Rural Health Profile continued
Title/Description Sub‐total Amount for Grant
CASE MANAGEMENT RESPONSIBILITY
Level 1 Center Manager(s): $ 285,353
Level 1 Center Field Specialist(s): $ 228,282
Level 1 Center SJB Family Specialist(s): $ 1,558,027
Level 1 Center Administrative Support: $ 256,818
Level 1 Office Space Cost: $ 40,218
Level 1 Transportation/Travel: $ 53,694
Level 1 Office Equipment/Communications: $ 61,600
Level 1 Supplies: $ 72,775
Level 2 Center Field Specialist(s): $ 68,485
Level 2 Center SJB Family Specialist(s): $ 222,575
Level 2 Transportation/Travel: $ 7,709
Level 2 Office Equipment/Communications: $ 13,300
Level 2 Supplies: $ 8,044
Level 3 Center SJB Family Specialist(s): $ 166,932
Level 3 Transportation/Travel: $ 4,680
Level 3 Office Equipment/Communications: $ 11,400
Level 3 Supplies: $ 4,596
CASE MANAGEMENT SUB‐TOTAL: $ 3,064,488
STATE LEAD CENTER SUB‐TOTAL: $ 10,124,296
INDIRECT COST TO INSTITUTION: $ 2,024,859
ADMINISTRATIVE FEE TO SJBF: $ 202,486
STATE LEAD CENTER SUB‐TOTAL: $ 12,351,641
TOTAL JOBS CREATED IN Idaho: 91

NAME
RUSSELL C. SPEARMAN
BIOGRAPHICAL SKETCH
POSITION TITLE
Senior Research Associate
EDUCATION/TRAINING (Begin with baccalaureate or other initial professional education, such as nursing, and include postdoctoral training)
INSTITUTION AND LOCATION
Manhattan College, Bronx, New York
College of Idaho, Caldwell, Idaho
Boise University, Boise, Idaho
DEGREE
(If applicable)
B.S.
M.Ed.
YEAR(s)
Spearman, Russell, C
FIELD OF STUDY
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1980
1988
1992
Physical Education
Masters in Education- School Admin.
Completed 21 graduate level credit hrs.
Above Master’s Program.
PROFESSIONAL EXPERIENCE
2009-2013 Principal Investigator, Traumatic Brain Injury Implementation Partnership Grant, Idaho State University, Boise, Idaho
2008-2011 Co-Principal Investigator, Person-Centered Hospital Discharge Model Grant, Idaho State University, Boise, Idaho
2006-2009 Project Director, Idaho Traumatic Brain Injury Partnership Grant, Idaho State University, Boise Center, Idaho
2003-2006 Project Director, Idaho Traumatic Brain Injury Implementation Grant, Idaho State University, Boise Center, Idaho
2000-2003 Project Director, Idaho Traumatic Brain Injury Planning Grant, Idaho State University, Boise Center, Idaho
1998-2000 Medical Program Specialist, Medicaid Policy and Operations, Dept. of Health and Welfare, Boise, Idaho
1996-1998 Executive Director, Governor’s Council on Developmental Disabilities, Boise, Idaho
1989-1996 Developmental Services Program Specialist, Boise, Idaho
1989-1989 Developmental Services Consultant, Idaho Center on Disabilities, University of Idaho, Moscow, Idaho
1984-1989 Developmental Specialist, Developmental Disabilities Center, Dept. of Health and Welfare, Caldwell, Idaho
1981-1984 Developmental Specialist, Idaho State School and Hospital, Dept. of Health and Welfare, Nampa, Idaho
SELECTED AWARDS AND HONORS
2006 Federal TBI Program’s Most Valuable TBISERV Contributor
2002 National Association of Social Workers, Idaho Chapter, “Public Citizen of the Year”
1997 Idaho’s Home of Your Own Initiative, “A single family secondary mortgage program for Idahoans with Disabilities”
MEMBERSHIPS
Idaho Rural Health Association
National Association of State Head Injury Administrators
Consortium of Idahoans with Disabilities
Idaho Statewide Seatbelt Coalition
RESEARCH INTERESTS
Telehealth/Technology
Disability
Rural/Frontier Health
Health Professions Training
Health Information
Trauma/Injury Prevention
Rural geriatric issues, aging in place, demographics
Public Behavorial Health
Primary Long Term Support – Unserved/Underserved/Minorities
Cultural Competence
SELECTED BIBLIOGRAPHY
Spearman, R.C. Stamm. B.H. Tivis, L (2007, August) Traumatic Brain Injury State Planning Grant: Preparing for Change in a Rural
State. Journal of Head Trauma and Rehabilitation.
Spearman, R.C., Stamm, B.H., Rosen, B., Kayala, D., Zillinger, M., Breeze, P. & Wargo, L.M. (200, Feb). The Rapid Growth in the
Use of Medicaid Waivers and Its Impact on Services. Journal of Head Trauma and Rehabilitation. Available online at the National
Association of State Head Injury Administrators (www.nashia.org) at http://www.nashia.org/art/Spearman.pdf.
Spearman, R.C. Berrey, Debbie, (1998, January) Home Sweet Home. A Resource Guide About the Idaho Home of Your Own Initiative, Idaho State Council
on Developmental Disabilities.

Spearman, Russell, C
Witmer, Dorothy, Spearman, Russ, (1993, November) Technical Committee Report and Curriculum Guide for Supported Employment Personnel, State
Division of Vocational Education
de Loyola, Shawn, Sword, Marilyn, and Spearman, Russ, (1990, January) 1990 Report on Developmental Disabilities in Idaho, a State of the State Analysis
de Loyola, Shawn, Sword, Marilyn, and Spearman, Russ, (1991, October) Idaho Transition Report: Executive Summary, Idaho State Council on
Developmental Disabilities
de Loyola, Shawn, Sword, Marilyn, and Spearman, Russ, (1991, October) Idaho Transition Report: A Comprehensive Analysis and Survey of Idaho's
Current System of Transition Services for Students in Special Education, Idaho State Council on Developmental Disabilities
Spearman, Russ, editor. (1990, October) Journey to Success: Discovering Vocational Opportunities for Idahoans with Developmental Disabilities, Idaho State
Council on Developmental Disabilities
Spearman, R.C. (1989, July) Results of Statewide Public Forums and Focus Group Meetings, Idaho State Council on Developmental Disabilities
SELECTED PEER - REVIEWED AND INVITED PRESENTATIONS
Spearman, R.C. (2009, June) Improving Systems of Care: Long Term Care Symposium: “Where We Are And Where We Are Going” &
“Bridging the Challenges And Expanding The Opportunities”, Boise, ID
Spearman, R.C. Kelly, M.E, (2009, March) “The Idaho Veteran’s Model”: 7 th Annual Pacific Northwest Brain Injury Conference- Living
with Brain Injury-Identifying the Problems, Finding Solutions, Portland, Oregon
Spearman, R.C., Tivis, L.J, Tivis R, Stamm, BH. (2008, April) “Traumatic Brain Injury Grant Program: Preparing for Change in a Rural
State” poster session presented at the Kasiska College of Health Professions Research Day, Idaho State University, Pocatello, ID
Spearman, R.C. (2008, April) Assisting Veterans with TBI: Idaho Collaborative Approach, 11th Annual Federal Traumatic Brain Injury
Leadership Meeting, Service Members with TBI Summit, Doubletree Hotel and Executive Meeting Center, Bethesda, MD
Spearman, R.C. (2008, Nov) “Idaho’s Person Centered Hospital Discharge Model Grant”, Idaho Commission on Aging, Boise, ID.
Spearman, R.C. (2008, Feb.) Assisting Veterans with Traumatic Brain Injury - Idaho's Collaborative Approach “ 6 th Annual Pacific
Northwest Brain Injury Conference –Living with Brain Injury –Emerging Partnerships, Portland, Oregon.
Spearman, R.C. Tivis, L.T. (2007, Dec.) “Idaho’s Traumatic Brain Injury Virtual Program Center” - Telehealth Idaho Veterans with
Traumatic Brain Injury 7 th Virtual Grand Round Series. Boise, ID
Spearman, R.C. (2007, Oct) “Idaho’s Traumatic Brain Injury Virtual Program Center”, 5 th Annual Pacific Northwest Brain Injury
Conference, Portland, Oregon.
Spearman, R.C. Tivis, L.J., Stamm, B.H. (2007, Oct.) Idaho TBI Program: Evaluations, Outcomes, and Improvements. Poster presented at
the 4 th Annual Pacific Northwest Brain Injury Conference.
Spearman, R.C. (2007, August) “Overview of Idaho’s Traumatic Brain Injury Partnership Grant – Implications For Returning Service
Personnel”, Annual Service Officer Training-Doubletree, Riverside Hotel, Boise, ID
Spearman, R.C. (2007, July) “Employment and Traumatic Brain Injury”. Idaho National Rehabilitation Association Summer Conference,
Shiloh Inn Suites, Twin Falls, ID
Spearman, R.C. Stamm, B.H. Tivis, L.J. (2007, April ) “Idaho TBI Program Evaluation, Outcome & Improvements” poster session
presented at the Kasiska College of Health Professions Research Day, Idaho State University, Pocatello, ID
Spearman, R.C. Stamm, B.H, Larson, D (2007, January) “Traumatic Brain Injury: Causes, Impacts and Implications for the Criminal Justice
System”, 2007 Drug Court and Mental Health Court Institute, Doubletree Riverside Hotel, Boise, ID.
Spearman, R.C. (2006, Oct.) “Idaho Traumatic Brain Injury Virtual Program Center” 19 th Annual Conference on Health Care – Tele
Health Idaho Partners 5 th Annual Meeting, Pocatello, ID.
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Spearman, Russell, C
Spearman, R.C.—(2005, Oct.) “TBI Education for Rural Health Professionals “ Telehealth Idaho Virtual Grand Rounds”, 3 rd Annual
Pacific Northwest Brain Injury Conference, Portland, Oregon
Spearman, R.C. Stamm, B.H. Tivis, L.J, Larson, D., Nandikolla V.K. (2005, Oct.) “Understanding the Societal Costs of Traumatic Brain
Injuries Poster session presented at 17 th Annual Kasiska College of Health Professions Research Day, Pocatello, ID
Spearman, R.C. (2005, August) “Home Sweet Home” – Single Family Home Ownership For People with Disabilities: Western Interstate
Commission For Higher Education (WICHE) Rural Mental Health Grand Rounds Webcast
Spearman, R.C. Stamm, B.H. Tivis, L.J. (2005, May) “Idaho TBI Program Evaluation, Outcome & Improvements” poster session
presented at the 5 th biennial Idaho Rural Health Association Meeting, Sun Valley, ID.
Spearman, R.C., (2005, May) Medicaid Brain Injury Waivers: A National Perspective. Poster and breakout session presented at the 21 st
National Home and Community Based Services Waiver Conference, Orlando, Fl.
Stamm, B.H., Spearman, R.C., (2005, May) Home Sweet Home: Single Family Home Ownership for Persons with Disabilities. Poster
session presented at the 28 th Annual National Rural Health Association Conference, New Orleans, LA.
Spearman, R.C., Tivis, L.J., Stamm, B.H., Cunningham, B.J., Vialpando, J.R., (2005, April) Telehealth Idaho: Traumatic Brain Injury Virtual
Grand Rounds Series Ranks High. Poster session presented at the 16 th Annual Kasiska College of Health Professions Research Day,
Pocatello, ID
Stamm B.H, Spearman, R.C. (2005, March) “Idaho Traumatic Brain Injury Program: Evaluation, Outcomes & Improvements Poster
Presentation presented at 9 th Annual Federal Traumatic Brain Injury Program State Grantee Meeting, Bethesda, MD.
Spearman, R.C., Gafford, S., Offutt, S., (2005, March) We Know You’re Out There: How Do We Find You? Breakout session presented at
the 8 th Annual Federal Traumatic Brain Injury Program Grantee Meeting, Washington. D.C.
Spearman, R.C. Ditto, B, Rosen, B. Fillbrandt, J, Wargo L. (2005, January) Medicaid Brain Injury Waivers: A National Perspective.Building a
System of Community-Based Long Term Supports. Hilton of Santa Fe.
Stamm, B.H., Kirkwood, A.D., Cellucci, L, Piland, N.F, Spearman, R.C. Conley, H.K, Story, C, Parker, D. (2004, March) “Understanding and
Creating a Hospital Climate for Community Integration Idaho Real Choices Systems Change Grant”. Building Systems So That Money Follows The
Person”, Baltimore, Maryland.
Spearman, R.C. Goodall P. Spivack, M. (2002, June) “ A Place to Call Your Own: Housing Options and Supports for Persons with a TBI: 6 th Annual
Traumatic Brain Injury State Grant Program Grantee Meeting, Washington, D.C.
Spearman, R.C. Stamm B,H. (2002, June) Idaho TBI State Grant Program Poster Presentation, 6 th Annual Traumatic Brain Injury State Grant
Program Grantee Meeting, Washington, D.C.
Stamm, B.H. Cunningham, B..J. Khabir, S., Elkington, A., Halawa, A., Hobbs, J., Piland, N.F. Conley, H., Kirkwood, A.D., Davis, K.,
Spearman, R.C., Laxminarayan, S., Bishop, A., Kreilach, S., Dahlquist, D., Weeg, S., Giller, E. (2002, June). Capital Hill Telehealth and E-
Health Demonstration. Steering Committee on Telehealth And Healthcare Informatics. Dirksen Senate Office Building.
Spearman, R.C. Stamm, B.H. Conley, H.K Winters, (2002, April) Report from the Traumatic Brain Injury State Planning Grant for the State of Idaho.
Poster presented at the Idaho Rural Health Association Symposium. Sun Valley, ID
Spearman, R.C. Wrigley, S. (2002, March) “The Use of Community Supports”, Hawaii’s Conference on Self-Determination, Honolulu, Hawaii.
Spearman, R.C. Stamm, B. H. (2002, March) “Fulfilling the Promise of Community Living, Centers for Medicare and Medicaid Services”, 2 nd Annual
Systems Change Conference, Washington, D.C.
Spearman, R.C. Stamm, B.H. & Winters, S. (2001, Dec.) “A Public Health Approach To State Planning For Traumatic Brain
Injury”. 17 th Annual Meeting of the International Society for Traumatic Stress Studies. New Orleans, LA.
Spearman, R.C. (2001, July) “”The Use of Medicaid Waivers and Their Impact on Services” Building Blocks of Change, National Brain Injury
Association 20 th Annual Symposium
Spearman, R.C. (2001, March) “The Use of Medicaid Waivers and Their Impact on Services”. 2 nd Annual Can Do Conference on Self-
Determination Honolulu, Hawaii.
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Spearman, Russell, C
Spearman, R.C. “Trends in Medicaid Waivers” (2001, August) Health Resources and Services Administration’s (HRSA) Maternal and Child Health
Bureau (MCHB), Traumatic Brain Injury (TBI) State Grant Program, 5 th annual grantee meeting, Washington D.C
Spearman, R.C. “The Use of Medicaid Waivers and Their Impact on Services” (2001, July) National Brain Injury Association 20 th Annual Symposium,
Atlanta Georgia
Spearman, R.C, Stamm, B.H, Winters. (2001, May)“New Directions, Idaho’s Traumatic Brain Injury Planning Grant”, Idaho Rural Health Association,
Sun Valley, Idaho,
Spearman, R.C “Oh Give Me A Home: Opening Doors to Home Ownership For Individuals with Developmental Disabilities”, (1997, Dec.) The Association
For Persons with Severe Disabilities (TASH), Boston, Massachusetts.
Spearman, R.C."Using Your Funds Strategically To Change the World", (1995, June) National Association of Developmental Disabilities Councils
(NADDC) Public Policy - Technical Assistance Institute, Washington, DC
Spearman, R.C: "Idaho's Home of Your Own Initiative" (1995, June) Community Supports Partnership Meeting, Boise, ID
Spearman, R.C, "State Housing and Homelessness Policy," (1995, April) Fifth Annual Housing Summit, "Building Partnerships for Affordable
Housing", Boise, ID
Spearman, R.C, Free, F, "Community Advocacy for Fair Housing," (1995, April) Fifth Annual Housing Summit, "Building Partnerships for Affordable
Housing", Boise, ID
Spearman, R.C. "Using Natural Supports in the Workplace:" (1994, July) Eighth Annual Idaho Parents Conference for Families with Children with
Disabilities, Boise, ID
Spearman, R.C. "Achieving Housing Diversity in Idaho's Communities", (1994, April) Fourth Annual Housing Summit, "Special Needs Populations",
Boise, ID
Spearman R.C. "Fair Housing Act Amendments to Idaho's Human Rights Act", (1993, Oct.) Idaho Governor’s Council on Developmental Disabilities,
Boise, ID
Spearman R.C. "Transitions & Interagency Resources and Responsibilities:" (1993, Oct.) Annual CEC Conference, Sun Valley, ID
Spearman, R.C. "A Review of Case Management in Idaho" (1993, April) Idaho Council on Developmental Disabilities, Boise, ID
Spearman, R.C. "Programs to Achieve Self-Support (PASS)," (1993, April) University of Idaho Special Education and Counseling Department,
Moscow, ID
Spearman, R.C, "From School to Work and Adult Services," (1993, April) Idaho Parents Unlimited Regional Consultant Training
LEGISLATIVE ACHIEVEMENTS
Spearman, R.C. Seiler, R, Darrington, D. Assistive Technology Warranty Act, (1997) Designed to protect people with disabilities from the
consequences of the sales of defective equipment and devices which they need to carry out basic daily activities in FY 1997.
Spearman, R.C. Shuler, M.S .Fair Housing Amendments to Idaho's Human Rights Act (1994) Conducted all research, prepared and disseminated all
written materials to respective state affairs committee members, worked with key legislators, and provided testimony.
Davidson, A. Murdock, T, Spearman, R.C. Concurrent Resolution- task force to review long term care and assisted living in Idaho (1994)
Watts, J.C. Spearman, R.C., Sword, M.S. Amended Idaho Code to allow a Tax Credit (1994) of $100.00 for a person filing there own taxes or a
$1,000 deduction or $100.00 credit for families of individuals with developmental disabilities
Simpson, M, Reynolds, D, Spearman, R.C. Specialized Dogs in Public Settings (1993).
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RESEARCH FUNDING
Current Support:
Idaho Traumatic Brain Injury Implementation Partnership Grant No. H21MC07735 (Principal Investigator). The
Specific goals are to: establish a trust fund; solidify the statewide TBI advisory council ; provide a support system to
families of returning soldiers, and monitor the aged/disabled waiver and trauma registry. Funding is through HHS-
Health Resource and Services Administration, Maternal and Child Health Bureau. 4/2/09-3/31/2013
Idaho Real Choices Person-Centered Hospital Discharge Planning Grant No. 1L0CMS030308/01. (Co-Principal
Investigator w/Debra Larsen Ph.D). The goals of this project include developing a sustainable person-centered
Hospital discharge model for rural and underserved areas and enhancing systems of information exchange statewide.
Funding is through the Centers for Medicaid and Medicaid Services 9/30/08 -9/30/2011
Previous Support:
Idaho Traumatic Brain Injury Implementation Partnership Grant No. 1-H21-08-050 (Project Director, Beth Stamm Ph.D. - PI)
The purpose of this project is to move forward Idaho’s community-based system of sustainable, comprehensive,
coordinated support for individuals with a Traumatic Brain Injury (TBI) and their families through an annual
needs/resource assessment, enhancing Idaho’s TBI virtual program center, moving the advisory council forward,
advancing virtual grand rounds, and by monitoring implementation of the State’s Trauma registry and use of it’s
Medicaid waiver.
Idaho Traumatic Brain Injury Implementation Grant No. 1-H21-MC00068-01 (Project Director, Beth Stamm Ph.D- PI.)
Develop a sustainable, comprehensive community-based system of support through a distributed, state-wide expert
decision support Virtual Program Center. Funded by DHHS/HRSA Maternal and Child Health through the Idaho
Department of Health and Welfare 4/1/03 – 3/31/06.
Idaho Traumatic Brain Injury Planning Grant, (Project Director, Beth H. Stamm Ph.D-PI ) .Statewide needs assessment and
implementation plan development for people with TBI’s and their family members. Funded by DHHS/HRSA Maternal
and Child Health through Idaho Department of Health and Welfare 3/2000-3/2003.
Systems Change Real Choices (Co-Project Manager). Combined anti-stigma, economic analysis, and effectiveness study to
examine support community integration for people with disabilities (developmental, physical, mental, and age-related) in
accord with the Olmstead decision. 12/2001-12/2003.
Infrastructure Grant (Stamm B.H. Hern. M.H. Spearman, R.C) Brain Injury Association of Idaho, through Idaho Governors
Council on Developmental Disabilities, 10/2000
Robert Wood Johnson Foundation, University of New Hampshire, Self-Determination planning grant for persons with
developmental disabilities in Idaho. 1998 fiscal year.
U.S. Department of Education, State Systems for Transition Services for Youth with Disabilities Program; Idaho Transition
Partnership Project, Five Year Systems Change Grant. 1989-1994
U.S. Department of Education, State Systems for Transition Services for youth with Disabilities Program; Idaho
Comprehensive School and Community Transition Services, Five Year Systems Change Grant. FY 94.
U.S. Department of Health and Human Services, Administration on Developmental Disabilities, National Home of Your
Own Alliance; Idaho's Home of Your Own Initiative, One Year Technical Assistance Grant. FY 95.
Federal Home Loan Bank of Seattle, Affordable Housing Program, Down Payment Assistance For Persons with Developmental
Disabilities FY 95-96. Technical editor in FY 98-99.
State of Idaho HOME Program, Idaho Housing Agency; Down Payment/Closing Cost Assistance For Persons with Developmental
Disabilities FY95-96. Technical editor in HOME in FY 98.
Special Projects and Demonstrations for Providing Supported Employment Services, Five Year Statewide Systems Change Grant
Applications to States; Division of Vocational Rehabilitation.
Spearman, Russell, C
Approximate
Award
$1,500,000
$800,000
$600,000
$215,000
$1,102,148
$10,000
$15,000
$495,000
$495,831
$50,000
$117,000
$140, 400
$520,000
$453,300
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Sarah Jane Brain Family State Lead Center of Excellence
For the state of
Illinois
University of Illinois Chicago
www.uic.edu
REGION: Midcentral CATEGORY OF CARE: Rural/Tele‐health
(National Lead)
Program Director: Deborah Little, Ph.D. Position Title: Assistant Professor of Neurology
and Rehabilitation
Department: Center for Stroke Research
Address: 1645 W. Jackson, suite 400, Chicago, IL 60612
Phone: 312‐355‐5405
Email: little@uic.edu
Level 1 Center(s): Chicago (UIC and Comer Children's Hospital), Rockford (Rockford Memorial),
Springfield (St. John's Hospital), Urbana (Carle Foundation Hospital), Oak Lawn (Advocate Christ
Hospital), Maywood (Loyola University Medical Center)
Level 2 Center(s): Chicago Public School District, Elgin School District, Rockford School District, Indian
Prarie School District
Level 3 Center(s): Chicago (La Rabita Childrens Hospital), Peoria (OSFT St. Francis), Park Ridge (Advocate
Lutheran General Hospital), Evanston (Evanston Hospital), Chicago (Stroger Hospital of Cook County),
Chicago (Sinai Hospital)
Number of jobs PABI Grant creates in Illinois: 184
Budget Overview for State Lead Center
State Lead Center Management Sub‐total: $ 8,417,025
Category of Care Management Sub‐total: $ 14,091,916
Case Management Sub‐total: $ 15,789,201
State Lead Center Sub‐total: $ 38,330,142
Indirect Cost to Institution (20%): $ 7,666,028
Administrative Cost to SJBF (2%): $ 766,603
SUB‐TOTAL AMOUNT OF GRANT PROPOSAL: $ 46,762,774

University of Illinois Chicago Profile continued
Title/Description Sub‐total Amount for Grant
STATE LEAD CENTER MANAGEMENT
Program Director: $ 165,936
Program Director Assistant: $ 134,350
State Director: $ 447,834
Associate State Director: $ 194,061
State Epidemiologist: $ 298,556
State Epidemiologist Assistant: $ 134,350
State Scientific Investigation Research Coordinator: $ 253,773
State Scientific Investigation Research Assistant: $ 253,773
State Education/Training Coordinator (plus materials): $ 602,267
State General Counsel: $ 358,267
State IT Manager: $ 283,628
State Family Support Coordinator: $ 223,917
State Prevention/Awareness Coordinator: $ 223,917
State Acute Care Coordinator: $ 223,917
State Reintegration Coordinator: $ 223,917
State Adult Transition Coordinator: $ 223,917
State Mild TBI Coordinator: $ 223,917
State Mental Health Coordinator: $ 194,061
State Assistive/Emerging Technology Coordinator: $ 194,061
State Correctional System Coordinator: $ 194,061
State MISC Coordinator: $ 194,061
State Veterans Coordinator: $ 194,061
State Data Manager: $ 194,061
State Public Policy Manager: $ 223,917
State Community Relations Manager: $ 194,061
State Administrative Support: $ 806,101
Charity care: $ 431,814
Human Resources Support: $ 184,000
Training Support: $ 46,000
State Lead Center Office Space Cost: $ 414,973
State Lead Center Transportation/Travel: $ 129,600
State Lead Center Office Equipment/Communications: $ 197,500
State Lead Center Supplies: $ 133,862
Annual and Regional Conferences: $ 32,000
State Brain Injury Association Pediatric Programs: $ 107,953
STATE LEAD CENTER MANAGEMENT SUB‐TOTAL: $ 8,417,025

University of Illinois Chicago Profile continued
Title/Description Sub‐total Amount for Grant
CATEGORY OF CARE RESPONSIBILITY: Rural/Tele‐health (National Lead)
National Category Director: $ 622,260
National Category Epidemiologist: $ 414,840
National Category Education/Training Coordinator: $ 331,872
National Category Scientific Investigation Research: $ 331,872
National Additional Tech: $10,000,000
(strategic telemedicine and telecommunication technology to certain states)
Regional Category Director: $ 447,834
Regional Category Epidemiologist: $ 358,267
Regional Category Education/Training Coordinator: $ 298,556
Regional Category Scientific Investigation Research: $ 298,556
Regional Category Administrative Support: $ 537,401
Regional Category Office Space Cost: $ 174,021
Regional Category Transportation/Travel: $ 180,000
Regional Category Office Equipment/Communications: $ 40,300
Regional Category Supplies: $ 56,136
CATEGORY OF CARE SUB‐TOTAL: $ 14,091,916

University of Illinois Chicago Profile continued
Title/Description Sub‐total Amount for Grant
CASE MANAGEMENT RESPONSIBILITY
Level 1 Center Manager(s): $ 1,343,502
Level 1 Center Field Specialist(s): $ 1,074,802
Level 1 Center SJB Family Specialist(s): $ 7,859,487
Level 1 Center Administrative Support: $ 1,209,152
Level 1 Office Space Cost: $ 68,011
Level 1 Transportation/Travel: $ 200,880
Level 1 Office Equipment/Communications: $ 172,800
Level 1 Supplies: $ 304,429
Level 2 Center Field Specialist(s): $ 477,690
Level 2 Center SJB Family Specialist(s): $ 1,746,553
Level 2 Transportation/Travel: $ 42,240
Level 2 Office Equipment/Communications: $ 53,200
Level 2 Supplies: $ 60,454
Level 3 Center SJB Family Specialist(s): $ 1,091,595
Level 3 Transportation/Travel: $ 21,060
Level 3 Office Equipment/Communications: $ 34,200
Level 3 Supplies: $ 29,147
CASE MANAGEMENT SUB‐TOTAL: $ 15,789,201
STATE LEAD CENTER SUB‐TOTAL: $ 38,330,142
INDIRECT COST TO INSTITUTION: $ 7,666,028
ADMINISTRATIVE FEE TO SJBF: $ 766,603
STATE LEAD CENTER SUB‐TOTAL: $ 46,762,774
TOTAL JOBS CREATED IN Illinois: 184

BIOGRAPHICAL SKETCH
Provide the following information for the key personnel and other significant contributors in the order listed on Form Page 2.
Follow this format for each person. DO NOT EXCEED FOUR PAGES.
NAME
Deborah M. Little
eRA COMMONS USER NAME
LITTLEDEB
POSITION TITLE
Associate Professor of Neurology, Anatomy,
Ophthalmology and Psychology
EDUCATION/TRAINING (Begin with baccalaureate or other initial professional education, such as nursing, and include postdoctoral training.)
INSTITUTION AND LOCATION
DEGREE
(if applicable)
YEAR(s) FIELD OF STUDY
Scripps College, Claremont, CA B.A. 1997 Psychology
Brandeis University, Waltham, MA M.A. 1999 Psychology
Brandeis University, Waltham, MA Ph.D. 2001 Psychology/Cognitive
Neuroscience
University of Illinois at Chicago, Chicago, IL Post-Doc
2001-
2004
Magnetic Resonance
Imaging
A. Positions and Honors.
Professional Positions:
1993-1994 Research Assistant, Scripps College, Claremont, CA
1994-1997 Laboratory Manager, Scripps College, Claremont, CA
1997-2001 NIA Predoctoral Fellow, Brandeis University, Waltham, MA
2001-2002 Post-doctoral Research Associate, Department of Ophthalmology,
Univ. of Illinois, Chicago, IL
2002-2004 Post-doctoral Research Associate, Center for MR Research, Univ. of Illinois at Chicago
2004-2009 Assistant Professor, Dept of Neurology & Rehabilitation, Univ. of Illinois at Chicago
2004-2009 Assistant Professor, Dept of Anatomy & Cell Biology, Univ. of Illinois at Chicago
2006-2009 Assistant Professor, Honors College, Univ. of Illinois at Chicago
2006-2009 Assistant Professor, Dept of Ophthalmology & Visual Sciences, Univ. of Illinois at Chicago
2006-2009 Assistant Professor, Dept of Psychology, Univ. of Illinois at Chicago
2009- Associate Professor, Dept of Neurology & Rehabilitation, Anatomy & Cellular Biology,
Ophthalmology & Visual Sciences, and Psychology, Univ. of Illinois at Chicago
Other Experience and Professional Memberships
1996- Sigma Xi (Fellow, 2007-)
2001- American Psychological Association, Gerontological Society of America
2002- Society for Neuroscience
2003- Organization for Human Brain Mapping, Society for Magnetic Resonance in Medicine
2006- Ad Hoc Reviewer, The Netherlands Research Council
2008 Ad Hoc Reviewer, NIH Center for Scientific Review, Neurological, Aging, and Musculoskeletal
Epidemiology (NAME) Study Section
2008 Ad Hoc Reviewer, Department of Defense Traumatic Brain Injury Research Program, New
Investigator & Investigator Initiated Awards Project
2008 Ad Hoc Reviewer, Department of Defense Traumatic Brain Injury Research Program
2008 Ad Hoc Reviewer, Department of Defense Post Traumatic Stress Disorder Research Program
2009- Ad Hoc Reviewer, Ontario Neurotrauma Foundation
Honors and Awards:
1995 Esterly Award for Summer Research, Scripps College
1996 Langland Psychology Award, Scripps College

1997 Margaret Faust Thesis Award, Scripps College
2000 Dissertation Research Award, American Psychological Association
2000 Graduate Research Award, APA, Retirement Research Foundation
2000 Sigma Xi, Grants in Aid of Research, National
B. Selected peer-reviewed publications (in chronological order).
Hartley AA, Little DM. (1999) Age-related differences and similarities in dual-task interference. J Exp Psychol
Gen;128(4):416-49.
Little DM, Hartley AA. (2000) Further evidence that negative priming in the Stroop color-word task is
equivalent in older and younger adults. Psychol Aging; 15:9-17.
Wingfield A, Prentice K, Koh CK, Little DM. (2000) Neural change, cognitive reserve and behavioral
compensation in rapid encoding and memory for spoken language in adult aging. In L. T. Connor & L. K.
Obler (Eds.) Neurobehavior of Language and Cognition: Studies of Normal Aging and Brain Damage.
Little DM, Prentice KJ, Wingfield A. (2004) Adult age differences in judgments of semantic fit. Appl
Psycholinguistics; 25: 135-143.
Little DM, Klein R, Shobat DM, McClure E, Thulborn KR. (2004) Changing patterns of processing during
category learning observed by functional MRI. Cognitive Brain Research; 22: 84-93.
Laatsch L, Little DM, Thulborn KR. (2004) Changes in fMRI following cognitive rehabilitation therapy in
severe traumatic brain injury: A case study. Rehabilitation Psychology; 49: 262-267.
Little DM, Prentice KJ, Darrow AW, Wingfield A. (2005) Listening to spoken text: adult age differences as
revealed by self-paced listening. Exp Aging Res; 31:313-30.
Little DM, Thulborn KR. (2005) Correlations of cortical activation and behavior during the application of
newly learned categories. Cognitive Brain Research 25: 33-47.
Little DM, McGrath LM, Prentice KJ, Wingfield A. (2006) Semantic encoding of spoken sentences: Adult aging
and the preservation of conceptual short term memory. Appl Psych; 27: 487-511.
Gussin HA, Tomlinson ID, Little DM, Warnement MR, Qian H, Rosenthal SJ, Pepperberg DR. (2006) Binding
of muscimol-conjugated quantum dots to GABAC receptors. Am Chem Soc; 128:15701-13.
Kuhlman A, Little D, Sekuler R. (2006) An interactive test of serial behavior: age and practice alter executive
function. J Clin Exp Neuropsychol; 28:126-44.
Little DM, Shin SS, Sisco SM, Thulborn KR. (2006) Event-related fMRI of category learning: Differences in
classification and feedback networks. Brain and Cognition 60: 244-252.
Little DM, Thulborn KR. (2006) Prototype-distortion Category Learning: A Two-phase Learning Process
across a Distributed Network. Brain and Cognition 2006; 60: 233-243.
Tomlinson ID, Gussin HA, Little DM, Warnement MR, Qian H, Pepperberg DR, Rosenthal SJ. (2007) Imaging
GABA(c) Receptors with Ligand-Conjugated Quantum Dots. J Biomed Biotechnol; 2007:76514.
Kraus MF, Susmaras T, Caughlin BP, Walker CJ, Sweeney JA, Little DM. (2007) White matter integrity and
cognition in chronic traumatic brain injury: a diffusion tensor imaging study. Brain; 130(Pt 10):2508-19.
Kraus MF, Little DM, Donnell AS, Reilly J, Sisco S, Simonian N, Kay M, Khine T, Sweeney J. (2007)
Oculomotor function in chronic traumatic brain injury. Cognitive and Behavioral Neurology; 20: 170-179.
Kang Derwent JJ, Saszik SM, Maeda H, Little DM, Pardue MT, Frishman LJ,Pepperberg DR. (2007) Test of
the paired-flash electroretinographic method in mice lacking b-waves. Vis Neurosci; 24:141-9.
Little DM, Holloway R. (2007) Diffusion Tensor Imaging: Scientific advance, clinical tool, or just a pretty
picture. Neurology 2007; 68: 9-10.
Little DM, Thulborn KR, Szlyk JP. (2008) An fMRI study of saccadic and smooth pursuit eye movement
control in Age-Related Macular Degeneration. Investigative Ophthalmology and Visual Sciences 49: 1728-
1735.
Pawar AS, Qtaishat NM, Little DM, Pepperberg DR. (2008) Recovery of rod photoresponses in ABCR-deficient
mice. Invest Ophthalmol Vis Sci; 49:2743-55.
Prodoehl J, Yu H, Little DM, Abraham I, Vaillancourt DE. (2008) Region of interest template for the human
basal ganglia: Comparing EPI and Talairach approaches. NeuroImage 39(3): 956-965.

Maki PM, Cohen M, Weber K, Little DM, Fornelli D, Perschler P, Gould F, Martin E. (2009) Deficits in verbal
memory and hippocampal function in HIV-positive women. Neurology; 72:1661-8.
Vaillancourt DE, Spraker MB, Prodoehl J, Abraham I, Corcos DM, Zhou XJ, Comella CL, Little DM. (2009)
High resolution diffusion tensor imaging in the substantia nigra of de novo Parkinson’s disease.
Neurology, Jan 7 [Epub ahead of print]
Szlyk JP, Little DM. (2009) An fMRI Study of Word-Level Recognition and Processing in Patients with Age-
Related Macular Degeneration. Invest Ophthalmol Vis Sci; Apr 22 [Epub ahead of print].
C. Research Support
Ongoing Research Support:
R21 AG028662 Little (PI). Anatomical correlates of executive function decline in normal aging, NIH/NIA,
2007-2009.
The goal of the project is to determine the relative roles of axonal versus neuronal loss in normal aging as they
relate to behavioral declines in so-called executive functions. To do this we plan to use standard structural
MRI, fMRI, and high-resolution DTI in super-healthy younger adults, middle-aged adults, and older adults.
There is no overlap with the current proposal. There is no overlap with the proposed research.
Role: Principle Investigator, 32% Effort
High Resolution Diffusion Tensor Imaging of White Matter Integrity in Mild TBI, CINN Foundation, 2007-
2009.
The goal of the project is to examine the contributions of axonal injury and myelin damage to sustained
cognitive deficits in patients who have sustained a single, closed-head, mild traumatic brain injury. To do this,
we plan to use detailed neuropsychological testing, a neurobehavioral interview, as well as high resolution
diffusion tensor imaging in groups of healthy controls and in patients with brain injuries. This grant provided
pilot data for the current proposal. There is no overlap with the proposed investigation.
Role: Principle Investigator, No Salary Support
High Resolution Diffusion Tensor Imaging of Cortical-Subcortical White Matter Tracts in TBI, Department of
Defense 2008-2011
The goal of the project is to examine the effects of TBI on white matter tracts which connect cortical to
subcortical structures. To do this, we plan to use high resolution diffusion tensor imaging in groups of healthy
controls and in patients with brain injuries.
This grant has a focus on basic methodological development which supports the current investigation.
Role: Principle Investigator, 25% Effort
Scaling and sequencing motor output in humans: an fMRI and DTI study. Pending. 2009-2013
National Institute of Neurological Disorders and Stroke
This grant sets out to characterize structural integrity of the basal ganglia in patients with parkinson’s disease
and relate changes in structural integrity to functional alteration in function. There is no overlap with the
proposed research.
Role: Co-Investigator, 5% Salary

Sarah Jane Brain Family State Lead Center of Excellence
For the state of
Indiana
James Whitcomb Riley Hospital for Children / Indiana University
rileychildrenshospital.com
REGION: Midcentral CATEGORY OF CARE: Acute Phase
Program Director: Jodi Smith, MD Position Title: Director
Department: Pediatric Neurosurgery
Address: 702 Barnhill Drive, Indianapolis, IN 46202
Phone: (317) 274‐8852
Email: jodlsmit@iupui.edu
Level 1 Center(s): Indianapolis, Fort Wayne
Level 2 Center(s): Gary, Evansville
Level 3 Center(s): South Bend, Terre Haute
Number of jobs PABI Grant creates in Indiana: 98
Budget Overview for State Lead Center
State Lead Center Management Sub‐total: $ 5,705,741
Category of Care Management Sub‐total: $ 1,611,317
Case Management Sub‐total: $ 3,437,858
State Lead Center Sub‐total: $ 10,786,915
Indirect Cost to Institution (20%): $ 2,157,383
Administrative Cost to SJBF (2%): $ 215,738
SUB‐TOTAL AMOUNT OF GRANT PROPOSAL: $ 13,160,036

James Whitcomb Riley Hospital for Children / Indiana University Profile continued
Title/Description Sub‐total Amount for Grant
STATE LEAD CENTER MANAGEMENT
Program Director: $ 102,375
Program Director Assistant: $ 90,788
State Director: $ 302,627
Associate State Director: $ 131,138
State Epidemiologist: $ 201,751
State Epidemiologist Assistant: $ 90,788
State Scientific Investigation Research Coordinator: $ 171,489
State Scientific Investigation Research Assistant: $ 171,489
State Education/Training Coordinator (plus materials): $ 322,206
State General Counsel: $ 242,101
State IT Manager: $ 191,664
State Family Support Coordinator: $ 151,313
State Prevention/Awareness Coordinator: $ 151,313
State Acute Care Coordinator: $ 151,313
State Reintegration Coordinator: $ 151,313
State Adult Transition Coordinator: $ 151,313
State Mild TBI Coordinator: $ 151,313
State Mental Health Coordinator: $ 131,138
State Assistive/Emerging Technology Coordinator: $ 131,138
State Correctional System Coordinator: $ 131,138
State MISC Coordinator: $ 131,138
State Veterans Coordinator: $ 131,138
State Data Manager: $ 131,138
State Public Policy Manager: $ 151,313
State Community Relations Manager: $ 131,138
State Administrative Support: $ 544,728
Charity care: $ 310,387
Human Resources Support: $ 98,000
Training Support: $ 24,500
State Lead Center Office Space Cost: $ 298,281
State Lead Center Transportation/Travel: $ 100,565
State Lead Center Office Equipment/Communications: $ 197,500
State Lead Center Supplies: $ 96,220
Annual and Regional Conferences: $ 32,000
State Brain Injury Association Pediatric Programs: $ 88,682
STATE LEAD CENTER MANAGEMENT SUB‐TOTAL: $ 5,705,741

James Whitcomb Riley Hospital for Children / Indiana University Profile continued
Title/Description Sub‐total Amount for Grant
CATEGORY OF CARE RESPONSIBILITY: Acute Phase
Regional Category Director: $ 302,627
Regional Category Epidemiologist: $ 242,101
Regional Category Education/Training Coordinator: $ 201,751
Regional Category Scientific Investigation Research: $ 201,751
Regional Category Administrative Support: $ 363,152
Regional Category Office Space Cost: $ 86,598
Regional Category Transportation/Travel: $ 157,500
Regional Category Office Equipment/Communications: $ 27,900
Regional Category Supplies: $ 27,935
CATEGORY OF CARE SUB‐TOTAL: $ 1,611,317

James Whitcomb Riley Hospital for Children / Indiana University Profile continued
Title/Description Sub‐total Amount for Grant
CASE MANAGEMENT RESPONSIBILITY
Level 1 Center Manager(s): $ 288,216
Level 1 Center Field Specialist(s): $ 230,573
Level 1 Center SJB Family Specialist(s): $ 1,573,660
Level 1 Center Administrative Support: $ 259,394
Level 1 Office Space Cost: $ 46,558
Level 1 Transportation/Travel: $ 54,781
Level 1 Office Equipment/Communications: $ 61,600
Level 1 Supplies: $ 84,248
Level 2 Center Field Specialist(s): $ 138,344
Level 2 Center SJB Family Specialist(s): $ 449,617
Level 2 Transportation/Travel: $ 15,636
Level 2 Office Equipment/Communications: $ 26,600
Level 2 Supplies: $ 18,623
Level 3 Center SJB Family Specialist(s): $ 168,606
Level 3 Transportation/Travel: $ 4,680
Level 3 Office Equipment/Communications: $ 11,400
Level 3 Supplies: $ 5,321
CASE MANAGEMENT SUB‐TOTAL: $ 3,437,858
STATE LEAD CENTER SUB‐TOTAL: $ 10,786,915
INDIRECT COST TO INSTITUTION: $ 2,157,383
ADMINISTRATIVE FEE TO SJBF: $ 215,738
STATE LEAD CENTER SUB‐TOTAL: $ 13,160,036
TOTAL JOBS CREATED IN Indiana: 98

PROGRAM DIRECTOR: Jodi L. Smith, Ph.D., M.D.
Neurological Surgery
RI 1134
O: 274‐8852 FAX: 274‐8895
Assistant: Velda Green
jodlsmit@iupui.edu
vcgreen@iupui.edu
Dr. Smith is the Director of Pediatric Neurosurgery at James Whitcomb Riley Hospital for
Children and Associate Professor of Neurological Surgery in the Department of Neurosurgery at
Indiana University School of Medicine in Indianapolis, Indiana. She received her Ph.D. in
Anatomy at the University of Utah School of Medicine for her dissertation studies on
“Neurulation.” She subsequently completed medical school and residency training in
Neurological Surgery at the University of Utah, as well. Following residency, she completed the
Shillito Fellowship in Pediatric Neurosurgery at Children’s Hospital, Harvard Medical School in
Boston, Massachusetts. Clinical interests include pediatric epilepsy surgery, brain and spinal
cord tumors, brain and spinal cord congenital malformations, traumatic brain and spinal cord
injury, hydrocephalus, myelodsyplasia, craniofacial disorders, and Moyamoya syndrome. She is
currently engaged in research studies on the Electrophysiological Analysis of Epileptogenic
Tissue.
NAME: Smith, Jodi L.
EDUCATION:
CURRICULUM VITAE ‐ Abbreviated
UNDERGRADUATE: Weber State College – Ogden, UT
B.S. (Summa cum Laude) – Zoology/Chemistry
1979‐1983
GRADUATE: University of Utah School of Medicine – Salt Lake City, UT
Ph.D. – Department of Anatomy
1983‐1988
DOCTORAL DISSERTATION: “Role of Neuroepithelial Cell
Wedging in Bending of the Chick Neural Plate”
University of Utah School of Medicine – Salt Lake City, UT
M.D. (A.O.A., 1992)
1989‐1993 (graduated #1 in class of 108 students)
POSTDOCTORAL: University of Utah School of Medicine ‐ Salt Lake City, UT
Postdoctoral Fellowship – Department of Anatomy
1988‐1989
University of Utah School of Medicine ‐ Salt Lake City, UT
Internship ‐ Department of Surgery
1

ACADEMIC APPOINTMENTS:
HOSPITAL APPOINTMENTS:
1993‐1994
University of Utah School of Medicine ‐ Salt Lake City, UT
Residency ‐ Department of Neurosurgery
1994‐1999
Children’s Hospital/Harvard Medical School – Boston, MA
Shillito Fellow ‐ Pediatric Neurosurgery
1999‐2000
Visiting Professor
Department of Surgery – Division of Neurological Surgery
Indiana University School of Medicine – Indianapolis, IN
7/1/2000 to 11/15/2001
Assistant Professor
Department of Neurological Surgery
Indiana University School of Medicine – Indianapolis, IN
11/16/2001 to 6/30/2007
Tenured Associate Professor
Department of Neurological Surgery
Indiana University School of Medicine – Indianapolis, IN
7/1/2007 to present
James Whitcomb Riley Hospital for Children – Indianapolis, IN
7/1/2000 – present
Indiana University Hospital – Indianapolis, IN
7/1/2000 – present
Wishard Memorial Hospital – Indianapolis, IN
7/1/2000 – present
SPECIALTY BOARD STATUS:
Board Certified – American Board of Neurological Surgery: 5/20/2004 to 12/31/2014
Board Certified – American Board of Pediatric Neurological Surgery: 4/21/2006 to
12/31/2016
PROFESSIONAL ORGANIZATIONS:
2

American Association of Anatomists 1984‐present
Society for Neuroscience 1984‐present
British Brain Research Association 1984‐present
International Brain Research Organization 1984‐present
World Federation of Neuroscientists 1984‐present
Alpha Omega Alpha Honor Medical Society 1992‐present
American Medical Association 1993‐present
Indianapolis Neurosurgical Society 2000‐present
American Association of Neurological Surgeons (AANS) 2001‐present
Congress of Neurological Surgeons (CNS) 2001‐present
Indiana State Medical Association 2002‐present
Indianapolis Medical Society 2002‐present
Women in Neurosurgery 2002‐present
AANS Pediatric Section 2003‐present
Indiana State Neurosurgical Society 2005‐present
American Society of Pediatric Neurological Surgery (ASPN) 2008‐present
Collegium Aesculapium 2008‐present
Spina Bifida Association of Central Indiana (SBACI) 2007‐present
SERVICE TO THE HOSPITAL/COMMUNITY:
Brain Death Guidelines Committee – 2009 to present
Spina Bifida Association of Central Indiana (SBACI) – Question and Answer Session
with moms of spina bifida children – Indianapolis, IN ‐ 5/2/09
Young Women’s Advisor and Church Girl’s Camp Director, Indianapolis 2 nd Ward,
Indianapolis North Stake, Church of Jesus Christ of Latter‐Day Saints – Indianapolis,
IN ‐ 2005 to present
IMRIS MRI Safety Team – 2/16/2009 to present
Riley Medical Activation Team – 2008 to present
Riley Surgical Executive Council ‐ 7/1/2006 to present
Riley Medical Care Committee ‐ 7/1/2006 to present
Riley OR Capital Subteam – 7/1/2006 to present
Give depositions and testify as expert witness for patients who have sustained head
injuries as a result of non‐accidental trauma (i.e., child abuse)
State of Indiana Medical Review Panel Participant
3

UNIVERSITY ADMINISTRATIVE SERVICE:
Director, Pediatric Neurosurgery Section, Department of Neurological Surgery,
Indiana University School of Medicine – 7/1/2006 ‐ present
UNIVERSITY COMMITTEE SERVICE:
Member, University Faculty Council ‐ 7/1/2009 to 6/30/2011
Member, Faculty Development Coordinating Committee – 7/1/2009 to 6/30/2011
Member, Faculty Learning Community (FLC) on the Scholarship of Teaching in the
Health Professions ‐ One of the components of the IUSM Academy of Medical
Education Scholars sponsored by the OFAPD – 3/1/2009 to present
Member, Faculty Grievance Committee – 1/1/2009 to 3/12/2009
Member, Family Medical Leave Policy for Academic Appointees ‐ Ad Hoc Committee
– 9/21/08 to 3/11/2009
Member, Pediatrics Chair Search Committee – 6/17/08 to 7/28/2009
Organizer, 2008 IUSM Biannual Dean’s Grand Rounds and Scientific Poster Session
IUSM Executive Committee – 6/2/2008 to 5/31/2009
Vice‐Chair, 2008 LCME site visit self‐study team, section on Faculty – 9/1/2007 to
11/20/08 (mock site visit – 9/08; official site visit – 11/16/08‐11/20/08)
Chair, Faculty Steering Committee, Indiana University School of Medicine – 5/13/08
to 5/30/09
President of the Faculty of the Indiana University School of Medicine – 5/13/08 to
5/30/09
President‐Elect of the Faculty of the Indiana University School of Medicine –7/1/07
to 6/30/08
Secretary of the Faculty of the Indiana University School of Medicine – 7/1/06 to
6/30/07
Secretary‐Elect of the Faculty of the Indiana University School of Medicine –7/1/05
to 6/30/06
IU Faculty Steering Committee ‐ 7/1/08 to 6/30/09 (President), 7/1/07 to 6/30/08
(President‐Elect)
4

IU Faculty Steering Committee ‐ 7/1/06 to 6/30/07 (Secretary), 7/1/05 to 6/30/06
(Secretary‐Elect)
IUPUI Faculty Council, School of Medicine Unit Representative – 2004‐05, 2005‐06,
2006‐07, 2007‐08, 2008‐09
OTHER PROFESSIONAL ACTIVITIES:
REVIEWER ‐ Journal of Pediatric Surgery
Pediatrics
Annals of Surgery
Neurosurgical Focus
Journal of Pediatric Neurology
Neurosurgery
PUBLICATIONS ‐ sample during past 3 years
1. Smith JL. Understanding and treating moyamoya disease in children.
Neurosurg Focus 2009; 26(4):E4.
2. Smith JL, Ackerman LA. Management of cervical spine injuries in young
children: Lessons learned. Neurosurg Pediatrics. J Neurosurg Pediatrics
2009; 4:64‐73.
3. Fulkerson DH, Luerssen TG, Hattab EM, Kim DL, Smith JL. Long‐ term
follow‐up of solitary intracerebral juvenile xanthogranuloma: Case
report and review of the literature. Pediatric Neurosurgery 2008;
44:480‐485.
4. Tang A, Jackson D, Hobbs J, Chen W, Smith JL, Patel H, Prieto A,
Petrusca D, Grivich MI, Sher A, Hottowy P, Dabrowski W, Litke AM,
Beggs JM. A maximum entropy model applied to spatial and temporal
correlations from cortical networks in vitro. J. Neurosci 2008;
28(2):505‐518.
5. Smucker PS, Smith JL. Multifocal Desmoplastic Medulloblastoma in an
African‐American Child with Nevoid Basal Cell Carcinoma (Gorlin)
Syndrome. Case Report. J Neurosurg (4 Suppl Pediatrics) 2006; 105:315‐
320.
6. Patel H, Smith JL, Garg BP. Focal cerebral pathology presenting as tonic
seizures. J Child Neurol 2006; 21:813‐816.
5

7. Smith JL. Treatment of Severe Pediatric Head Injury: Evidence‐Based
Practice. In: Wesson DE, editor. Pediatric Trauma: Pathophysiology,
Diagnosis, and Treatment, 2006. Taylor & Francis Group, NY; pp. 211‐
229.
DATE: 8/17/2009 Signature: Jodi L. Smith, PhD, MD
6

Sarah Jane Brain Family State Lead Center of Excellence
For the state of
Iowa
University of Iowa Children's Hospital / Center for Disabilities and Development
www.medicine.uiowa.edu
REGION: Midcentral CATEGORY OF CARE: Adult Transition
Program Director: Scott Lindgren, Ph.D. Position Title: Professor of Pediatrics
Department: Department of Pediatrics
Address: 200 Hawkins Drive, Iowa City, IA 52242
Phone: 319‐353‐6142
Email: scott‐lindgren@uiowa.edu
Level 1 Center(s): Iowa City
Level 2 Center(s): Des Moines, Davenport
Level 3 Center(s): Waterloo, Sioux City, Ottumwa, Dubuque
Number of jobs PABI Grant creates in Iowa: 90
Budget Overview for State Lead Center
State Lead Center Management Sub‐total: $ 5,375,086
Category of Care Management Sub‐total: $ 1,641,676
Case Management Sub‐total: $ 2,290,678
State Lead Center Sub‐total: $ 9,339,440
Indirect Cost to Institution (20%): $ 1,867,888
Administrative Cost to SJBF (2%): $ 186,789
SUB‐TOTAL AMOUNT OF GRANT PROPOSAL: $ 11,394,117

University of Iowa Children's Hospital / Center for Disabilities and Development Profile continued
Title/Description Sub‐total Amount for Grant
STATE LEAD CENTER MANAGEMENT
Program Director: $ 48,475
Program Director Assistant: $ 88,017
State Director: $ 293,390
Associate State Director: $ 127,135
State Epidemiologist: $ 195,593
State Epidemiologist Assistant: $ 88,017
State Scientific Investigation Research Coordinator: $ 166,254
State Scientific Investigation Research Assistant: $ 166,254
State Education/Training Coordinator (plus materials): $ 237,220
State General Counsel: $ 234,712
State IT Manager: $ 185,813
State Family Support Coordinator: $ 146,695
State Prevention/Awareness Coordinator: $ 146,695
State Acute Care Coordinator: $ 146,695
State Reintegration Coordinator: $ 146,695
State Adult Transition Coordinator: $ 146,695
State Mild TBI Coordinator: $ 146,695
State Mental Health Coordinator: $ 127,135
State Assistive/Emerging Technology Coordinator: $ 127,135
State Correctional System Coordinator: $ 127,135
State MISC Coordinator: $ 127,135
State Veterans Coordinator: $ 127,135
State Data Manager: $ 127,135
State Public Policy Manager: $ 146,695
State Community Relations Manager: $ 127,135
State Administrative Support: $ 528,101
Charity care: $ 282,445
Human Resources Support: $ 90,000
Training Support: $ 22,500
State Lead Center Office Space Cost: $ 271,429
State Lead Center Transportation/Travel: $ 113,400
State Lead Center Office Equipment/Communications: $ 197,500
State Lead Center Supplies: $ 87,558
Annual and Regional Conferences: $ 32,000
State Brain Injury Association Pediatric Programs: $ 80,699
STATE LEAD CENTER MANAGEMENT SUB‐TOTAL: $ 5,375,086

University of Iowa Children's Hospital / Center for Disabilities and Development Profile continued
Title/Description Sub‐total Amount for Grant
CATEGORY OF CARE RESPONSIBILITY: Adult Transition
Regional Category Director: $ 293,390
Regional Category Epidemiologist: $ 234,712
Regional Category Education/Training Coordinator: $ 195,593
Regional Category Scientific Investigation Research: $ 195,593
Regional Additional (Regional Veteran Coordinator): $ 195,593
Regional Additional Tech
Regional Category Administrative Support: $ 352,067
Regional Category Office Space Cost: $ 78,802
Regional Category Transportation/Travel: $ 157,500
Regional Category Office Equipment/Communications: $ 27,900
Regional Category Supplies: $ 25,420
CATEGORY OF CARE SUB‐TOTAL: $ 1,641,676

University of Iowa Children's Hospital / Center for Disabilities and Development Profile continued
Title/Description Sub‐total Amount for Grant
CASE MANAGEMENT RESPONSIBILITY
Level 1 Center Manager(s): $ 139,709
Level 1 Center Field Specialist(s): $ 111,767
Level 1 Center SJB Family Specialist(s): $ 762,813
Level 1 Center Administrative Support: $ 125,738
Level 1 Office Space Cost: $ 42,367
Level 1 Transportation/Travel: $ 27,900
Level 1 Office Equipment/Communications: $ 33,800
Level 1 Supplies: $ 48,419
Level 2 Center Field Specialist(s): $ 134,121
Level 2 Center SJB Family Specialist(s): $ 435,893
Level 2 Transportation/Travel: $ 15,840
Level 2 Office Equipment/Communications: $ 26,600
Level 2 Supplies: $ 16,947
Level 3 Center SJB Family Specialist(s): $ 326,920
Level 3 Transportation/Travel: $ 9,360
Level 3 Office Equipment/Communications: $ 22,800
Level 3 Supplies: $ 9,684
CASE MANAGEMENT SUB‐TOTAL: $ 2,290,678
STATE LEAD CENTER SUB‐TOTAL: $ 9,339,440
INDIRECT COST TO INSTITUTION: $ 1,867,888
ADMINISTRATIVE FEE TO SJBF: $ 186,789
STATE LEAD CENTER SUB‐TOTAL: $ 11,394,117
TOTAL JOBS CREATED IN Iowa: 90

NAME
Lindgren, Scott D.
eRA COMMONS USER NAME
lindgrens
BIOGRAPHICAL SKETCH
Provide the following information for the key personnel and other significant contributors.
Follow this format for each person. DO NOT EXCEED FOUR PAGES.
POSITION TITLE
Professor of Pediatrics
EDUCATION/TRAINING (Begin with baccalaureate or other initial professional education, such as nursing, and include postdoctoral training.)
INSTITUTION AND LOCATION
DEGREE
(if applicable)
YEAR(s) FIELD OF STUDY
Yale University, New Haven, CT B.A. 1972 Psychology
University of Iowa, Iowa City, IA M.A. 1975 Clinical Psychology
University of Iowa, Iowa City, IA Ph.D. 1977 Clinical Psychology
A. Positions and Honors
Positions and Employment:
1976-78 Psychology Intern, Pediatric Psychology and Developmental Disabilities, Department of
Pediatrics, University of Iowa.
1978-79 Associate, Department of Neurology, University of Iowa College of Medicine. (Engaged
in cross-national research at the Department of Neurology, University of Modena,
Modena, Italy.)
1979-80 Postdoctoral Fellow in Psychology, Harvard Medical School, Department of Psychiatry,
Children's Hospital Medical Center and Judge Baker Children's Center, Boston, MA.
1980-86 Assistant Professor, Department of Pediatrics, University of Iowa Carver College of
Medicine, University of Iowa Children’s Hospital.
1986-97 Associate Professor, Department of Pediatrics, University of Iowa Carver College of
Medicine, University of Iowa Children’s Hospital.
1997-present Professor, Department of Pediatrics, University of Iowa Carver College of Medicine,
University of Iowa Children’s Hospital.
Other Experience and Professional Memberships:
1991-2003 Psychology Supervisor, Center for Disabilities and Development, University of Iowa
Children’s Hospital
1992-1993 Member, Behavioral and Neuroscience Special Emphasis Panel, NICHD
1994-1996 Reviewer, Behavioral Science Track Award, NIMH
2003-present Associate Director, Iowa’s University Center for Excellence on Disabilities, Center for
Disabilities and Development, University of Iowa Children’s Hospital
2003-present Director, Iowa Consultation Service for Students with Brain Injury
2004-2007 Member, Assuring Better Child Health and Development Board (ABCD-II), State of Iowa
2004-present Director, Pediatric Neuropsychology Clinic, Center for Disabilities and Development,
University of Iowa Children’s Hospital
2004-present Member, Iowa Governor’s Prevention of Disabilities Policy Council
2006-present Director, Iowa Health and Disability Resource Center, University of Iowa
2008 Leader, Iowa Act Early Autism Team, CDC/AUCD Regional Autism Summit, Kansas
City, MO.
Honors/Awards:
1979 – 1980 National Institute of Mental Health Postdoctoral Fellow, Department of Psychiatry,
Harvard Medical School
1981 Elected to Sigma Xi, the Scientific Research Society
1999 – 2004 Consultant on Disability Policy, Social Security Administration and the Association of
University Centers for Excellence on Disabilities
2008 – present Elected Chair, Iowa Governor’s Prevention of Disabilities Policy Council

B. Selected Peer-Reviewed Publications (in chronological order):
Lindgren, S.D. (1978). Finger localization and the prediction of reading disability. Cortex, 14, 87-101.
Lindgren, S.D., & Benton, A.L. (1980). Developmental patterns of visuospatial judgment. Journal of Pediatric
Psychology, 5, 217-225.
Richman, L.C., & Lindgren, S.D. (1980). Patterns of intellectual ability in children with verbal deficits. Journal
of Abnormal Child Psychology, 8, 65-81.
Richman, L.C., & Lindgren, S.D. (1981). Verbal mediation deficits: Relation to behavior and achievement in
children. Journal of Abnormal Psychology, 90, 99-104.
Lindgren, S.D., & Richman, L.C. (1984). Immediate memory functions of verbally deficient reading disabled
children. Journal of Learning Disabilities, 17, 222-225.
Lindgren, S.D., De Renzi, E., & Richman, L.C. (1985). Cross-national comparisons of developmental dyslexia
in Italy and the United States. Child Development, 56, 1404-1417.
Lindgren, S.D., Richman, L.C., & Eliason, M.J. (1986). Memory processes in reading disability subtypes.
Developmental Neuropsychology, 2, 173-181.
Lindgren, S.D., Harper, D.C., & Blackman, J.A. (1986). Environmental influences and perinatal risk factors in
high risk children. Journal of Pediatric Psychology, 11, 531-547.
Lindgren, S.D., & Koeppl, G.G. (1987). Assessing child behavior problems in a medical setting: Development
of the Pediatric Behavior Scale. In R.J. Prinz (Ed.), Advances in Behavioral Assessment of Children and
Families (Vol. 3), pp. 57-90. Greenwich, CT: JAI Press.
Blackman, J., Lindgren, S., Hein, H., & Harper, D. (1987). Long-term surveillance of high risk children.
American Journal of Diseases of Children, 141, 1293-1299.
Wolraich, M.L., Lindgren, S.D., Stromquist, A., Milich, R., Davis, C., & Watson, D. (1990). Stimulant
medication use by primary care physicians in the treatment of attention deficit hyperactivity disorder.
Pediatrics, 86, 95-101.
Blackman, J.A., Lindgren, S.D., & Bretthauer, J. (1992). The validity of continuing developmental follow-up of
high risk infants to age five. American Journal of Diseases of Children, 146, 70-75.
Lindgren, S.D., Lokshin, B., Stromquist, A., Weinberger, M., Nassif, E., McCubbin, M., & Frasher, R. (1992).
Does asthma or treatment with theophylline limit children's academic performance? New England
Journal of Medicine, 327(13), 926-30.
Selzer, S.C., Lindgren, S.D., & Blackman, J.A. (1992). Long-term neuropsychological outcome of high risk
infants with intracranial hemorrhage. Journal of Pediatric Psychology, 17, 407-22.
Wolraich, M., Lindgren, S., Stumbo, P., Stegink, L., Appelbaum, M., & Kiritsy, M. (1994). The effects of diets
high in sucrose or aspartame on the behavior and cognitive performance of children. New England
Journal of Medicine, 330(5), 301-7.
Johnson, B., Kuperman, S., Arndt, S., Lindgren, S., & Wolraich, M. (1996). Quantitative EEG differences in a
non-clinical sample of children with ADHD and Undifferentiated ADD. Journal of the American Academy
of Child and Adolescent Psychiatry, 35, 1009-1017.
Max, J.E., Robin, D.A., Lindgren, S.D., Smith, W.L., Sato, Y., Mattheis, P.J., Stierwalt, J.A.G., Castillo, C.S.
(1997). Traumatic brain injury in children and adolescents: Psychiatric disorders at two years. Journal of
the American Academy of Child and Adolescent Psychiatry, 36 (9), 1278-1285.
Max, J.E., Lindgren, S.D., Knutson, C., Pearson, S., Ihrig, D., Welborn, A. (1997). Child and adolescent
traumatic brain injury: Psychiatric findings from a pediatric outpatient specialty clinic. Brain Injury,
11(10), 699-771.
Max, J.E., Castillo, C.S., Robin, D.A., Lindgren, S.D., Smith, W.L., Sato, Y., Mattheis, P.J., Stierwalt, J.A.G.
(1998). Predictors of family functioning following traumatic brain injury in children and adolescents.
Journal of the American Academy of Child and Adolescent Psychiatry, 37(1), 83-90.
Max, J.E., Koele, S.L., Lindgren, S.D., Robin, D.A., Smith, W.L., Sato, Y., Arndt, S.V. (1998) Adaptive
functioning following traumatic brain injury and orthopedic injury: A controlled study. Archives of Physical
Medicine and Rehabilitation, 79(8): 893-899.
Max, J.E., Roberts, M.A., Koele, S.L., Lindgren, S.D., Robin, D.A., Arndt, S., Smith, W.L., Sato, Y. (1999)
Cognitive outcome in children and adolescents following severe traumatic brain injury. Journal of the
International Neuropsychological Society, 5: 58-68.
Robin, D.A., Max, J.E., Stierwalt, J.A.G., Guenzer, L.C., Lindgren, S.D. (1999) Sustained attention in children
and adolescents with traumatic brain injury. Aphasiology, 13: 701-708.

Arroyos-Jurado, E., Paulsen, J.S., Merrell, K.W., Lindgren, S.D., Max, J.E. (2000) Traumatic brain injury in
school-age children: Academic and social outcome. Journal of School Psychology, 38: 571-587.
McCarthy, A.M., Lindgren, S., Mengeling, M., Tsalikian, E., and Engvall, J. (2002) Effects of diabetes on
learning in children. Pediatrics, 109(1): 135. URL: http://www.pediatrics.org/cgi/content/full/109/1/e9.
McCarthy, A.M., Lindgren, S., Mengeling, M.A., Tsalikian, E., and Engvall, J. (2003) Factors associated with
academic achievement in children with type 1 diabetes. Diabetes Care, 26: 112-117.
Wassenberg, R., Max, J.E., Lindgren, S.D., Schatz, A. (2004). Sustained attention in children and
adolescents after traumatic brain injury: Relation to severity of injury, adaptive functioning, ADHD and
social background. Brain Injury, 18(8): 751-764.
Ravesloot, C.H., Seekins, T., Cahill, A., Lindgren, S., Nary, D.E., & White, G. (2006) Health promotion for
people with disabilities: Development and evaluation of the Living Well with a Disability program. Health
Education Research, doi:10.1093/her/cyl114.
Conrad, A.L., Richman, L., Lindgren, S., & Nopoulos, P. (In Press) Biological and environmental predictors of
behavioral sequelae in children born prematurely, Pediatrics.
C. Research Support
Ongoing Support:
2 P01 HL046925-11 Widness (PI) 7/1/06 – 6/30/2011
National Institute of Heart, Lung, & Blood
PPG Neonatal Anemia: Pathophysiology and Treatment:
Project 2 – Preterm Transfusions: Brain Function/Structure Outcomes
The goals of this subproject within the larger program project grant are to evaluate the long-term
neurodevelopmental effects of liberal versus conservative blood transfusion practices in infants with
anemia.
Role: Co-Investigator
1 R01 DD000107-01 Chrischilles & Lindgren (Co-PI) 9/30/06 – 9/29/2009
Centers for Disease Control and Prevention
Pharmaceutical Case Management and Living Well with a Disability
The goals of this project are to evaluate improvements in health and reduction in secondary health
conditions by combining a health promotion program with collaborative medication management for
people with disabilities.
Role: Co-PI
Completed Support:
5887DP06 Lindgren & Degarmo (Co-PI) 4/1/2002 – 6/30/2007
Centers for Disease Control/Iowa Dept. of Public Health, Disability & Health Program
Preventing Secondary Conditions in Persons with Disabilities
The major goals of this project were to investigate methods for promoting health and preventing the
development of secondary conditions in persons with disabilities.
Role: Co-PI
Prime CFDA No: 93.994 Lindgren (PI) 10/1/2005 – 9/30/2006
Iowa Department of Human Services , with additional support from The Commonwealth Fund
Early Periodic Screening, Diagnosis, & Treatment (EPSDT) Care for Kids
The major goals of this project were to implement and evaluate strategies to improve the screening and
treatment of developmental and behavioral problems in primary care settings.
Role: PI

Sarah Jane Brain Family State Lead Center of Excellence
For the state of
Kansas
Center for Child Health and Development / University of Kansas Medical Center
www.kumc.edu/cchd/
REGION: Southcentral CATEGORY OF CARE: Reintegration
Program Director: Janet Tyler, Ph.D. Position Title: Director
Department: Neurological Disabilities Support Project
Address: 3901 Rainbow Blvd., Kansas City, KS 66160
Phone: 913‐588‐5947
Email: jtyler@kumc.edu
Level 1 Center(s): Kansas City, Wichita
Level 2 Center(s): Topeka, Emporia, Manhattan, Garden City
Level 3 Center(s): 0
Number of jobs PABI Grant creates in Kansas: 106
Budget Overview for State Lead Center
State Lead Center Management Sub‐total: $ 5,627,689
Category of Care Management Sub‐total: $ 1,697,192
Case Management Sub‐total: $ 3,645,232
State Lead Center Sub‐total: $ 11,002,114
Indirect Cost to Institution (20%): $ 2,200,423
Administrative Cost to SJBF (2%): $ 220,042
SUB‐TOTAL AMOUNT OF GRANT PROPOSAL: $ 13,422,579

Center for Child Health and Development / University of Kansas Medical Center Profile continued
Title/Description Sub‐total Amount for Grant
STATE LEAD CENTER MANAGEMENT
Program Director: $ 100,800
Program Director Assistant: $ 90,803
State Director: $ 302,678
Associate State Director: $ 131,160
State Epidemiologist: $ 201,785
State Epidemiologist Assistant: $ 90,803
State Scientific Investigation Research Coordinator: $ 171,517
State Scientific Investigation Research Assistant: $ 171,517
State Education/Training Coordinator (plus materials): $ 237,747
State General Counsel: $ 242,142
State IT Manager: $ 191,696
State Family Support Coordinator: $ 151,339
State Prevention/Awareness Coordinator: $ 151,339
State Acute Care Coordinator: $ 151,339
State Reintegration Coordinator: $ 151,339
State Adult Transition Coordinator: $ 151,339
State Mild TBI Coordinator: $ 151,339
State Mental Health Coordinator: $ 131,160
State Assistive/Emerging Technology Coordinator: $ 131,160
State Correctional System Coordinator: $ 131,160
State MISC Coordinator: $ 131,160
State Veterans Coordinator: $ 131,160
State Data Manager: $ 131,160
State Public Policy Manager: $ 151,339
State Community Relations Manager: $ 131,160
State Administrative Support: $ 544,820
Charity care: $ 293,460
Human Resources Support: $ 106,000
Training Support: $ 26,500
State Lead Center Office Space Cost: $ 302,993
State Lead Center Transportation/Travel: $ 113,400
State Lead Center Office Equipment/Communications: $ 197,500
State Lead Center Supplies: $ 97,740
Annual and Regional Conferences: $ 32,000
State Brain Injury Association Pediatric Programs: $ 83,846
STATE LEAD CENTER MANAGEMENT SUB‐TOTAL: $ 5,627,689

Center for Child Health and Development / University of Kansas Medical Center Profile continued
Title/Description Sub‐total Amount for Grant
CATEGORY OF CARE RESPONSIBILITY: Reintegration
Regional Category Director: $ 302,678
Regional Category Epidemiologist: $ 242,142
Regional Category Education/Training Coordinator: $ 201,785
Regional Category Scientific Investigation Research: $ 201,785
Regional Assistive/Emerging Technology Coordinator: $ 187,814
Regional Category Administrative Support: $ 363,213
Regional Category Office Space Cost: $ 87,966
Regional Category Transportation/Travel: $ 157,500
Regional Category Office Equipment/Communications: $ 27,900
Regional Category Supplies: $ 28,376
CATEGORY OF CARE SUB‐TOTAL: $ 1,697,192

Center for Child Health and Development / University of Kansas Medical Center Profile continued
Title/Description Sub‐total Amount for Grant
CASE MANAGEMENT RESPONSIBILITY
Level 1 Center Manager(s): $ 268,306
Level 1 Center Field Specialist(s): $ 214,645
Level 1 Center SJB Family Specialist(s): $ 1,464,950
Level 1 Center Administrative Support: $ 241,475
Level 1 Office Space Cost: $ 44,019
Level 1 Transportation/Travel: $ 55,800
Level 1 Office Equipment/Communications: $ 61,600
Level 1 Supplies: $ 79,653
Level 2 Center Field Specialist(s): $ 257,574
Level 2 Center SJB Family Specialist(s): $ 837,115
Level 2 Transportation/Travel: $ 31,680
Level 2 Office Equipment/Communications: $ 53,200
Level 2 Supplies: $ 35,215
CASE MANAGEMENT SUB‐TOTAL: $ 3,645,232
STATE LEAD CENTER SUB‐TOTAL: $ 11,002,114
INDIRECT COST TO INSTITUTION: $ 2,200,423
ADMINISTRATIVE FEE TO SJBF: $ 220,042
STATE LEAD CENTER SUB‐TOTAL: $ 13,422,579
TOTAL JOBS CREATED IN Kansas: 106

BIOGRAPHICAL SKETCH
Name Position Title
Janet Siantz Tyler Project Director
Education/Training
Institution and Location Degree Year Field of Study
University of Michigan, Ann Arbor, MI B.A. 1979 Education
University of Kansas, Lawrence, KS M.S.Ed. 1980 Special Education
University of Kansas, Lawrence, KS Ph.D. 1987 Special
Education/Business
Positions and Employment
2005-present Co-Director, Kansas State Department of Education’s Kansas Instructional
Support Network, University of Kansas Medical Center, Developmental
Disabilities Center, Kansas City, Kansas
1997-present Director, Kansas State Department of Education’s Neurologic Disabilities Support
Project, University of Kansas Medical Center, Developmental Disabilities Center,
Kansas City, Kansas
1988-2005 Adjunct member of the Graduate Faculty, University of Kansas, Department of
Special Education
1991-1997 Director, Kansas State Board of Education’s Traumatic Brain Injury Project,
University of Kansas Medical Center, Department of Special Education, Kansas
City, Kansas
1987-1991 Training Coordinator, Kansas State Board of Education’s Traumatic Brain Injury
Project, University of Kansas Medical Center, Kansas City, Kansas
1985-1987 Assistant Director, Clinical Classroom for Learning Problems, University of
Kansas Medical Center, Kansas City, Kansas
1982-1984 Learning Disabilities Resource Teacher, North Kansas City School District;
Kansas City, Missouri
1980-1982 Diagnostic Learning Specialist, North Kansas City School District; Kansas City,
Missouri
Peer-Reviewed Publications (in Chronological Order).
Mira, M.P., Meck, N.E., & Tyler, J.S. (1988). School psychologist’s knowledge of traumatic head
injury: Implications for training. Diagnostique, 13(2-4), 174-180.
Tyler, J.S., Mira, M. P., & Hollowell, J.G. (1989). Head injury training for pediatric residents.
American Journal of Diseases of Children, 143(8), 930-932.
Tyler, J.S. (1990). Serving students with traumatic brain injuries in the learning disabilities
classroom. LD Forum, 15(4), 28-29.
Mira, M.P., & Tyler, J.S. (1991). Students with traumatic brain injury: Making the transition from
hospital to school. Focus on Exceptional Children, 23(5), 1-12.
Tyler, J.S., & Mira, M.P. (1993). Educational modifications for students with head injuries.
Teaching Exceptional Children, 25(3), 24-27.
Tyler, J.S., & Colson, S. (1994). Common pediatric disabilities: Medical aspects and educational
implications. Focus on Exceptional Children, 27(4).
Ylvisaker, M., Todis, B., Glang, A., Urbanczyk, B., Franklin, C., DePomei, R., Feeney, T.,
Maxwell, N. M., Pearson, S., & Tyler, J. (2001). Educating students with TBI: Themes and
recommendations. Journal of Head Trauma Rehabilitation, 16(1), 76-93.
Glang, A., Tyler, J., Pearson, S., Todis, B., & Morvant, M. (2004). Improving educational services
for students with TBI through statewide resource teams. NeuroRehabilitation, 19(3), 219-231.
Savage, R., DePompei, R, Tyler, J., & Lash, M. (2005). Pediatric traumatic brain injury: A review
of pertinent issues. Pediatric Rehabilitation, 8(2), 92-103.

Tyler 2
Glang, A., Dise-Lewis, J., Tyler, J., & Denslow, P. (2006). Identification and Appropriate Service
Delivery for Children who have TBI; Abstracts from the 2 nd Federal Interagency Conference
on Traumatic Brain Injury. Journal of Head Trauma Rehabilitation, 21, 5, 408-436
Glang, A., Ylvisaker, M., Stein, M., Ehlhardt, L., Todis, B., & Tyler, J. (2008). Validated
Instructional Practices: Application to Students with TBI. Journal of Head Trauma
Rehabilitation.
Books
Mira, M.P., Tucker, B.F., & Tyler, J.S. (1992). Traumatic brain injury in children and adolescents:
A sourcebook for teachers and other school personnel (2 nd ed.). Austin, TX: PRO-ED.
Tyler, J.S., & Mira, M.P. (1999). Traumatic brain injury in children and adolescents: A
sourcebook for teachers and other school personnel (2nd ed.). Austin, TX: PRO-ED.
Antionette, T., Braunling-McMorrow, D., Lash, M., Mackay, L., Reyst, H., & Tyler, J. (Eds.) (2007).
The essential brain injury guide. McLean, VA: Brain Injury Association of America.
Book Chapters
Mira, M.P., & Tyler, J.S. (1993). Students with traumatic brain injury: Making the transition from
hospital to school. In E. Meyen, G. Vergason, & R. Whelan (Eds.), Challenges facing
special education (pp. 267-284). Denver: Love.
Tyler, J.S. (1997). Preparing educators to serve children with traumatic brain injury. In A. Glang
& G. Singer (Eds.) Children with acquired brain injury: The school’s response (pp. 323-344).
Baltimore: Paul H. Brookes.
Smith, S.M. & Tyler, J.S. (1997). Successful transition of students with traumatic brain injury. In
A. Glang & G. Singer (Eds.) Children with acquired brain injury: The school’s response (pp.
185- 200). Baltimore: Paul H. Brookes.
Tyler, J.S. & Savage, R. C. (2003). Students with traumatic brain injury. In F. E. Obiakor, C. A.
Utley, & A. F. Rotatori (Eds.), Advances in special education: Psychology of effective
education for learners with exceptionalities. (pp. 299-323). Boston: JAI Press.
Savage, R., & Tyler, J. (2004). Children and adolescents with brain injuries. In M. Lash., D. B.
McMorrow, J. Tyler, & T. Antoinette (Eds.), Training manual for certified brain injury
specialists (CBIS) (3 rd Ed) (pp. 123-141). McLean, VA: Brain Injury Association of America.
DePompei, R., & Tyler, J. (2004). Children and adolescents: Practical strategies for school
participation and transition. In M.J. Ashley (Ed.), Traumatic brain injury: Rehabilitative
Treatment and Case Management (2 nd ed.) (pp. 559-580). Boca Raton, FL: CRC Press.
Savage, R., & Tyler, J. (2007). Children and adolescents with brain injuries. In T. Antionette, D.
Braunling-McMorrow, M. Lash, L., Mackay, H., Reyst, & J. Tyler. (Eds.), The essential brain
injury guide (pp. 107-122). McLean, VA: Brain Injury Association of America.
Curriculum and Training Materials
Tyler, J.S., (1990). Traumatic brain injury technical assistance/consultation module. Kansas
City, KS: University of Kansas Medical Center, Department of Special Education.
Tyler, J.S., & Williams, J. (1993). Perspectives on traumatic brain injury. (Video). Kansas City,
KS: University of Kansas Medical Center, Department of Special Education.
Tyler, J.S., & Wilkerson, L. (1994). Never give up! (Video). Kansas City, KS: University of
Kansas Medical Center, Department of Special Education.
Tyler, J., Blosser, J., & DePompei, R. (1999). Teaching strategies for students with brain injuries.
Wake Forest, NC: Lash & Associates Publishing/Training.
Tyler, J.S. & Wilkerson, L.R. (1999). Planning school transitions for students with TBI. Brain
Injury Source, 3(3), 14-16, 54.
Tyler, J., & Wilkerson, L. (2002). Section 504 plan checklist for a student with a brain injury.
Wake Forest, NC: Lash & Associates Publishing/Training.
Tyler, J., Wilkerson, L., DePompei, R. (2002). Planning in-school transition for a student with a
brain injury. Wake Forest, NC: Lash & Associates Publishing/Training.
Tyler, J., & Grandinette, S. (2003). Effective teaching strategies. Brain Injury Source, 6(3), 38-41,
48.

Tyler 3
Lash, M., McMorrow, D.B., Tyler, J., & Antoinette, T. (Eds.) (2004). Training manual for certified
brain injury specialists (CBIS) (3 rd ed). McLean, VA: Brain Injury Association of America.
DePompei, R., & Tyler, J. (2004). Learning and cognitive communicative challenges: Developing
educational programs for students with brain injuries. Wake Forest, NC: Lash & Associates
Publishing/Training.
Tyler, J.S. (2006). Traumatic brain injury inservice training module (5 th ed.). Kansas City, KS:
University of Kansas Medical Center, Center for Child Health and Development.
Tyler, J. (2007). TBI training in Kansas. Brain Injury Professional, 4(2), 26.
Selected Presentations
Tyler, J., Pearson, S., Glang, A., & Todis, B. (1996, November). Training Educators to Serve
Students with Brain Injury: Where are we and Where are we Going? Brain Injury
Association, Dallas, TX.
Glang, A., Todis, B., & Tyler, J. (1997, November). Long Term Perspectives on Pediatric
Traumatic Brain Injury. Brain Injury Association, Philadelphia, PA.
Tyler, J. (1998, May). Education Issues: Early education & Special Education for Children,
Youth, & Adolescents with Brain Injury. Invited speaker. International Brain Injury
Association, Prague, Czech Republic.
Tyler, J. (1998, November). Teaching Strategies. Invited speaker. 17th Annual National Brain
Injury Symposium, New Orleans, LA.
Tyler, J. (1998, November). Current Perspectives on Traumatic Brain injury. Invited speaker.
20th International Conference of the Council for Learning Disabilities, Albuquerque, NM.
Tyler, J., & Pearson, S. (1999, June). Preparing Educators to Serve Students with Brain Injury.
3rd World Congress on Brain Injury, Quebec City, Quebec, Canada
Glang, A., Tyler, J., Allen, B., & Wong, C. (2000, April). What's different?: Educating students
with Traumatic Brain Injury. Council for Exceptional Children, Vancouver, British Columbia.
Tyler, J. (2000, July). Proactive Planning for Students with Traumatic Brain Injury. Invited
speaker. 18th Annual National Brain Injury Symposium, Chicago, IL.
Tyler, J., & Glang, A. (2001, April). Developing Educational Support Teams: Building Capacity
to Serve Students with Brain Injury. Council for Exceptional Children 2001 Annual
Convention, Kansas City, MO.
Tyler, J., (2001, May). Educating Students with Traumatic brain Injury: What We Know and What
We Still Need to Learn. Invited keynote speaker. Minnesota State TBI Spring Conference,
Minneapolis, MN.
Tyler, J. (2001, July). How Shall We Help? Teaching Strategies That Work. Invited speaker.
20th Annual National Brain Injury Symposium, Atlanta, GA.
Tyler, J. (2001, October). Developing Educational Programs for Students with Traumatic Brain
Injury. Invited keynote speaker. Texas Association of School Psychologists 9th Annual
Conference, Houston, TX.
Tyler, J. (2001, December). Educational Services for Students with Traumatic Brain Injury in
Kansas. Invited speaker. 12th Annual State of the States in Head Injury Conference,
Kansas City, MO.
Tyler, J. (2003, September). School Reintegration Following TBI: Challenges and Strategies.
Invited speaker. Children's Hospital Rehabilitation Conference, Children's Hospital,
Columbus, OH.
Tyler, J. (2002, July). Traumatic Brain Injury in the School-Aged Child: Instructional Strategies for
Addressing Long-Term Deficits. Brain Injury Association of America's 21st Annual
Symposium, Minneapolis, MN.
DePompei, R., & Tyler, J. (2003, April). Recognizing Interactions between Cognitive Processes
and Classroom Behaviors. Council for Exceptional Children 2003 Annual Convention and
Expo, Seattle, WA.
Tyler, J. & Wilkerson, L. (2004, April). What Paraprofessional Need to Know When Serving
Students with Traumatic Brain Injury. Council for Exceptional Children 2004 Annual
Convention and Expo, New Orleans, LA.
Tyler, J. & Glang, A. (2005, October). Identification and Appropriate Service Delivery for
Children with TBI in the Schools. Maternal and Child Health, Washington, DC.

Tyler 4
DePompei, R., Glang, A., & Tyler, J. (2005, August). Building Statewide Capacity to Serve
Students with Traumatic brain Injury. Invited speaker. Webcast, TBI Technical Assistance
Center.
Glang, A., Dise-Lewis, J., Tyler, J., & Denslow, P. (2005). Identification and Appropriate Service
Delivery for Children who have TBI. Invited speaker. Webcast, TBI Technical Assistance
Center.
Tyler, J. (2005, October) Meeting the Long Term Needs of Students with Traumatic Brain Injury.
Invited speaker. 38 th Annual Midwest School Social Work Conference, Wichita, KS.
Glang, A., Dise-Lewis, J., Tyler, J., & Denslow, P. (2006, March). Identification and Appropriate
Service Delivery for Children who have TBI. Invited speaker. 2 nd Federal Inter-agency
Conference on TBI, Bethesda, MD.
Tyler, J. (2006, September). Managing Children with Brain Injuries through the School Years.
Invited speaker. North American Brain Injury Society’s Brain Injury Conference, Miami, FL.
Tyler, J. (2006, October) Evaluating, Programming for, and Monitoring Students with Traumatic
Brain Injury. Invited keynote speaker. Kansas Association of School Psychologists’ 2006
Convention, Hutchinson, KS.
Tyler, J. (2007, June). Traumatic Brain Injury in the Classroom: What You Need to Know.
Invited speaker. National School-Based Health Care Convention, Washington, DC.
Ruoff, J., Glang, A., & Tyler, J. (2007, September). Education and Training of Professionals in
Brain Injury. North American Brain Injury Society’s Annual Conference, San Antonio, TX.
Tyler, J. (2008, June). School Issues for Children with Brain Injury. Invited speaker. Brain Injury
Association of America’s National Brain Injury Caregiver’s Conference, Dallas, TX.
Tyler, J., & Wilkerson, L. (2008, June). Planning for the Transition from School Services to
Adulthood. Invited speaker. Brain Injury Association of America’s National Brain Injury
Caregiver’s Conference, Dallas, TX.
Tyler, J. (2009, March). TBI and the Educator. Invited speaker. Brain Injury Association of
Iowa’s Best Practices in Brain Injury Service Deliver: XVII, Des Moines, IA.
Ongoing Research Support
Co-Director, Kansas Instructional Support Network. 2005-2010. Kansas State Department of
Education, Grant #26001, $724,941. Project to provide professional development, technical
assistance, and consultation to Kansas educators serving students with traumatic/acquired
brain injury, autism, and other neurologic disabilities.
Completed Research Support
Training Coordinator, Re-Entry of Traumatic Head Injured Children. 1987-1991. Kansas State
Department of Education. Grant #8805, $117,167. Development and implementation of a
model school re-entry program for students with traumatic head injuries.
Project Director, Preservice/Inservice Training Program in the Area of Traumatic Brain Injury.
1991-1995, U.S. Department of Education, Grant #H029K10061, $151,208. Development
and evaluation of model to train regional cadres of educators in traumatic brain injury to
improve service delivery to students with TBI.
Project Director, Traumatic Brain Injury Project. 1991-1997. Kansas State Department of
Education, Grant #9125, $106,730-$231,963. Provision of inservice/preservice training,
technical assistance, and consultation to educators serving students with TBI and their
families.
Project Director, Neurologic Disabilities Support Project. 1997-2005. Kansas State Department of
Education, Grant #21003, $309,798-$412,302. Provision of inservice/preservice training,
technical assistance, and consultation to educators serving students with neurologic
disabilities (e.g., acquired brain injury, TBI, autism, ADHD, etc.) and their families.

Sarah Jane Brain Family State Lead Center of Excellence
For the state of
Kentucky
University of Kentucky Hospital
ukhealthcare.uky.edu
REGION: Midcentral CATEGORY OF CARE: Rural/Tele‐health
Program Director: Joseph Iocono, MD Position Title: Associate Professor
Department: Departments of Surgery and Pediatrics Major Subdivision: Division of Pediatric Surgery
Address: 800 Rose Street, MN 102, Lexington, KY 40536
Phone: 859‐323‐5625
Email: jiocono@uky.edu
Level 1 Center(s): Louisville (Kosairs Children's Hospital), Lexington (Kentucky Children's Hospital)
Level 2 Center(s): Bowling Green, Pikeville
Level 3 Center(s): Somerset/Rockcastle, Paducah, Ashland
Number of jobs PABI Grant creates in Kentucky: 101
Budget Overview for State Lead Center
State Lead Center Management Sub‐total: $ 5,934,238
Category of Care Management Sub‐total: $ 3,709,124
Case Management Sub‐total: $ 3,776,812
State Lead Center Sub‐total: $ 13,452,174
Indirect Cost to Institution (20%): $ 2,690,435
Administrative Cost to SJBF (2%): $ 269,043
SUB‐TOTAL AMOUNT OF GRANT PROPOSAL: $ 16,411,652

University of Kentucky Hospital Profile continued
Title/Description Sub‐total Amount for Grant
STATE LEAD CENTER MANAGEMENT
Program Director: $ 90,650
Program Director Assistant: $ 97,973
State Director: $ 326,575
Associate State Director: $ 141,516
State Epidemiologist: $ 217,717
State Epidemiologist Assistant: $ 97,973
State Scientific Investigation Research Coordinator: $ 185,059
State Scientific Investigation Research Assistant: $ 185,059
State Education/Training Coordinator (plus materials): $ 285,964
State General Counsel: $ 261,260
State IT Manager: $ 206,831
State Family Support Coordinator: $ 163,288
State Prevention/Awareness Coordinator: $ 163,288
State Acute Care Coordinator: $ 163,288
State Reintegration Coordinator: $ 163,288
State Adult Transition Coordinator: $ 163,288
State Mild TBI Coordinator: $ 163,288
State Mental Health Coordinator: $ 141,516
State Assistive/Emerging Technology Coordinator: $ 141,516
State Correctional System Coordinator: $ 141,516
State MISC Coordinator: $ 141,516
State Veterans Coordinator: $ 141,516
State Data Manager: $ 141,516
State Public Policy Manager: $ 163,288
State Community Relations Manager: $ 141,516
State Administrative Support: $ 587,835
Charity care: $ 294,212
Human Resources Support: $ 101,000
Training Support: $ 25,250
State Lead Center Office Space Cost: $ 282,737
State Lead Center Transportation/Travel: $ 95,325
State Lead Center Office Equipment/Communications: $ 197,500
State Lead Center Supplies: $ 91,206
Annual and Regional Conferences: $ 32,000
State Brain Injury Association Pediatric Programs: $ 84,060
STATE LEAD CENTER MANAGEMENT SUB‐TOTAL: $ 5,934,238

University of Kentucky Hospital Profile continued
Title/Description Sub‐total Amount for Grant
CATEGORY OF CARE RESPONSIBILITY: Rural/Tele‐health
Regional Category Director: $ 326,575
Regional Category Epidemiologist: $ 261,260
Regional Category Education/Training Coordinator: $ 217,717
Regional Category Scientific Investigation Research: $ 217,717
Regional Category Administrative Support: $ 391,890
Regional Category Office Space Cost: $ 82,085
Regional Category Transportation/Travel: $ 157,500
Regional Category Office Equipment/Communications: $ 27,900
Regional Category Supplies: $ 26,479
CATEGORY OF CARE SUB‐TOTAL: $ 3,709,124

University of Kentucky Hospital Profile continued
Title/Description Sub‐total Amount for Grant
CASE MANAGEMENT RESPONSIBILITY
Level 1 Center Manager(s): $ 311,024
Level 1 Center Field Specialist(s): $ 248,819
Level 1 Center SJB Family Specialist(s): $ 1,698,190
Level 1 Center Administrative Support: $ 279,921
Level 1 Office Space Cost: $ 44,132
Level 1 Transportation/Travel: $ 54,365
Level 1 Office Equipment/Communications: $ 61,600
Level 1 Supplies: $ 79,857
Level 2 Center Field Specialist(s): $ 149,291
Level 2 Center SJB Family Specialist(s): $ 485,197
Level 2 Transportation/Travel: $ 15,553
Level 2 Office Equipment/Communications: $ 26,600
Level 2 Supplies: $ 17,653
Level 3 Center SJB Family Specialist(s): $ 272,923
Level 3 Transportation/Travel: $ 7,020
Level 3 Office Equipment/Communications: $ 17,100
Level 3 Supplies: $ 7,565
CASE MANAGEMENT SUB‐TOTAL: $ 3,776,812
STATE LEAD CENTER SUB‐TOTAL: $ 13,452,174
INDIRECT COST TO INSTITUTION: $ 2,690,435
ADMINISTRATIVE FEE TO SJBF: $ 269,043
STATE LEAD CENTER SUB‐TOTAL: $ 16,411,652
TOTAL JOBS CREATED IN Kentucky: 101

Joseph Anthony Iocono, M.D.
UNIVERSITY OF KENTUCKY COLLEGE OF MEDICINE
DEPARTMENT OF SURGERY
Curriculum Vitae
PERSONAL DATA
Office Address: Office Telephone and FAX:
University of Kentucky Phone: (859) 323-5625
Division of Pediatric Surgery FAX: (859) 323-5289
800 Rose Street, MN 102
Lexington, KY 40536-0084 Email: jiocono@uky.edu
Date of Birth: Place of Birth:
March 14, 1967 Philadelphia, PA
Marital Status: Children:
Married (Susan N. Iocono) Amanda (1995) and Lauren (1997)
UNDERGRADUATE EDUCATION:
09/1989 B.S., Boston College, Chestnut Hill, MA magna cum laude
Majors: Chemistry and Mathematics
MEDICAL EDUCATION:
06/1993 M.D., Jefferson Medical College, Philadelphia, PA
SURGICAL EDUCATION:
06/1993-06/1994 Intern , General Surgery, The Milton S. Hershey Medical Center,
Pennsylvania State University, Hershey, PA
06/1994-06/1995 Resident General Surgery, The Milton S. Hershey Medical Center,
Pennsylvania State University, Hershey, PA
06/1995-07/1998 Pediatric Surgery Research Fellow, The Milton S. Hershey Medical Center,
Pennsylvania State University, Hershey, PA (NIH-NRSA Fellow)
07/1998-06/2000 Resident General Surgery, The Milton S. Hershey Medical Center,
Pennsylvania State University, Hershey, PA
06/2000-06/2001 Chief Resident General Surgery, The Milton S. Hershey Medical Center,
Pennsylvania State University, Hershey, PA
07/2001-11/2001 Fellow, (Rotating), Pediatric Surgery, Children’s Hospital of
Philadelphia, University of Pennsylvania, Philadelphia, PA
11/2001-06/2002 Fellow, Pediatric Surgery, St. Christopher’s Hospital for Children,
Drexel University School of Medicine
06/2002-06/2003 Chief Fellow, Pediatric Surgery, St. Christopher’s Hospital for Children,
Drexel University School of Medicine

Joseph A. Iocono, M.D. Curriculum Vitae
BOARD CERTIFICATION:
National Board of Medical Examiners 1993
Advanced Trauma Life Support, Provider 1993, 1997
Advanced Trauma Life Support, Instructor 1998, 2002
Advanced Burn Life Support, Provider 1998
Advanced Burn Life Support, Instructor 1998
Pediatric Advanced Life Support, Provider 1998, 2003, 2005
Pediatric Advanced Life Support, Instructor 2006
American Board of Surgery: Certified 2004 Certificate #49234
American Board of Surgery: Certified
Special Qualification in Pediatric Surgery 2006 Certificate # 941
LICENSURE:
Pennsylvania 1995 – present
DEA 1995 – present
Kentucky 2003 – present
HOSPITAL PRIVILEGES:
University of Kentucky 07/2003—present
A.B. Chandler Medical Center
Division of Pediatric Surgery
Lexington, KY 40536-0293
09/2003-07/2011
Lexington Shriners Hospital for Children (Courtesy) 07/2003—present
1900 Richmond Road
Lexington, KY 40502
02/2008-02/2011
Central Baptist Hospital (Courtesy) 07/2003—present
Consulting Surgeon, Pediatric Surgery
1740 Nicholasville Road
Lexington, KY 40503
09/2003-07/2011
PRESENT POSITIONS:
Associate Professor 07/2009-Present
Assistant Professor 07/2003-06/2009
Special Title Series, Academic Medical Educator
University of Kentucky College of Medicine
Kentucky Children’s Hospital
Departments of Surgery and Pediatrics
Division of Pediatric Surgery
Lexington, Kentucky
Director, Surgery Pre-Doctoral Education (Third-year general surgery clerkship)
Surgical Director, Pediatric Trauma Program
Surgical Director, Pediatric ECMO Program
Associate Director, Minimally Invasive Surgery Center

Joseph A. Iocono, M.D. Curriculum Vitae
RESEARCH EXPERIENCE:
1988-1989 Research Fellow
American Chemical Society James Flack Norris
Undergraduate Research Fellow
Boston College, Chestnut Hill, MA
Supervisor: Larry W. McLaughlin, Ph.D.
Project: DNA Replication in the Presence of Apurinic Sites
1998-1992 Research/Computer Technician
Department of Dermatology
Jefferson Medical College, Thomas Jefferson University
Supervisor: Jouni Uitto, M.D., Ph.D.
Project: RNA extraction from fibrosarcoma cell lines, computer graphics
1992-1993 Senior Medical Student Surgical Research Project
Department of Surgery (Trauma Division)
Jefferson Medical College, Thomas Jefferson University
Supervisor: Reuven Rabinivici, M.D.
Project: Effect of Liposome encapsulated Hemoglobins on Sepsis Response
1995-1998 Surgical Research Fellow
NIH- National Research Service Award (NRSA)
The Pennsylvania State University
Hershey Medical Center
Supervisors: Thomas M. Krummel, M.D. and H. Paul Ehrlich, Ph.D.
Project: The Role of Hyaluronic Acid in Fetal and Adult Wound Healing
2004-2007 Ortho-Biotech Surgical Education Research Fellow
Association for Surgical Education
Supervisors: Don Risucci, Ph.D., Michael Donnelly, Ph.D.
Project: The use of Middle-Fidelity Models to teach Minimally Invasive
Surgical Techniques for Infants and Children
1989
HONORS/AWARDS:
Scholar of the College, “DNA Synthesis in the
Presence of Apurinic Sites”
Boston College, Chestnut Hill, MA
1989 Phi Beta Kappa
Boston College, Chestnut Hill, MA
1989 Francis J. Brick Award, “Character, leadership, loyalty and scholarship”
Boston College, Chestnut Hill, MA
1993 J. Woodrow Savacool Prize in Medical Ethics
Jefferson Medical College of Thomas Jefferson University
Philadelphia, Pennsylvania
2000 Resident Humanitarian Award
The Milton S Hershey Medical Center
The Pennsylvania State University College of Medicine
Hershey, Pennsylvania

Joseph A. Iocono, M.D. Curriculum Vitae
HONORS/AWARDS (CONT….)
2003 Chief of Staff Award, Outstanding Fellow
St. Christopher’s Hospital for Children
Drexel University College of Medicine
Philadelphia, Pennsylvania
2003 Employee of the Month Award (May)
St. Christopher’s Hospital for Children
Philadelphia, Pennsylvania
TEACHING AWARDS:
1995, 2000 Resident Teaching Award
The Pennsylvania State University College of Medicine
2006 Medical Student Teaching Award
Department of Surgery
University of Kentucky
2007 Clinical Clerkship Teaching Award
Excellence in Medical Student Education
College of Medicine Dean’s Office
University of Kentucky
2007 Ben Eisenman Surgery Teaching Award
Excellence in Resident Education
Department of Surgery
University of Kentucky
PROFESSIONAL MEMBERSHIPS:
American Chemical Society 1988-1993
American Medical Association 1989-1998, 2003-present
Pennsylvania Medical Society 1990-2001
American College of Surgeons, Candidate 1994-2003
Associate 2001-2005
Fellow 2005-
Association for Academic Surgery, Candidate 1994-present
American Association for the Advancement of Science 1996-2001
Children’s Oncology Group 2003-present
Wound Healing Society 1996-2000
American Society for Cell Biology 1998-2000
American Pediatric Surgical Association, Candidate 2003-present
Association for Surgical Education 2003-present
International Pediatric Endosurgical Group 2003-present
Kentucky Medical Association 2003-present
Lexington Pediatric Society 2003-present
Lexington Medical Society 2003-present
American Academy of Pediatrics (KY chapter) 2004-present

Joseph A. Iocono, M.D. Curriculum Vitae
COMMITTEES:
National Committees
2005—present Association for Surgical Education—Curriculum Committee
2007—present Association for Surgical Education—Clerkship Directors Committee
2006—present Association for Surgical Education—Power Point Teaching Modules Group
2006—present International Pediatric Endosurgical Group—Endoscopic Curriculum Committee
2008—present American Pediatric Surgery Association—Education Committee
Statewide Committees
2005—present Kentucky Pediatric Society—Outcomes and Reimbursements Committee
2006—present Kentucky State Emergency Medical Services Board
2008—present American College of Surgeons Kentucky Regional Committee on Trauma
University of Kentucky Hospital/University of Kentucky College of Medicine Committees
2008—present UK College of Medicine Curriculum Revision Committee
2007—present Surgical Education Committee, Chairman
2006—present Physician Marketing Advisory Group, UK Healthcare
2005—present KY Children’s Hospital Admissions and Advisory Committee
2004—present General Surgery Resident Council
2004—present Operating Room Committee (at large elected member)
2004—present Interventional Units and Technology Committee (formerly OR Products)
2004—present Minimally Invasive Surgery Group (Education Director)
2004—present Pediatric Trauma Committee, (Director)
2003—2007 Surgical Education Committee (member)
2003—present Interdisciplinary Trauma QA Committee
2003—present Medical Student Interview Committee
2003—present Physician Advisory Committee (Center for Advanced Surgery)
2003—2004 Director, MIS Education
2009 KY Children’s Hospital Quality and Safety Committee
St. Christopher’s Hospital
2001-2003 Graduate Fellowship Committee
2001-2003 Pharmacy and Therapeutics Committee
Hershey Medical Center
1996 Adverse Drug Reaction/Medical Error Committee Member
1995-1996 Penn State University Hospital, Resident Accreditation Self Evaluation Committee
1995-1998 Hershey Medical Center Residents’ Association Department of Surgery Representative
1996-1998 President, Hershey Medical Center Residents’ Association
1996-1998 Computer Information Services, Direct Care Services Lab Results Reporting Committee
1996-1998 Graduate Medical Education Committee, Resident Representative
1997-1998 Residency Directors Committee Resident Representative
1996-1998 Penn State College of Medicine Alumni Board Resident Representative

Joseph A. Iocono, M.D. Curriculum Vitae
OTHER SIGNIFICANT SCHOLARLY, RESEARCH, OR ADMINISTRATIVE EXPERIENCE:
Professional Development Courses and Seminars
American College of Surgeons Surgery Leadership Course Chicago, March 2005
Chosen by application to participate in 3-day seminar on improving corporate leadership skills in surgeons.
Course organized by Sanjit Sachdeva, MD. and Wiley Souba, MD.
Professional Medical Faculty Fundraising ---Advancement Resources, LLC Lexington, March 2007
One-day seminar on improving skills for medical professionals with development and fundraising.
Association for Surgery Education—Course on Statistics and Research Design Chicago, March 2008
Weekend course on Surgery Education Research project design and implementation and review of
statistical methods in education research.
Association for Surgery Education—Course fore New Clerkship Directors Toronto, May, 2008
One day course for new surgery clerkship directors on clerkship guidelines with new ACGME mandates
and designing ED-2 requirements.
Software Development
Iocono, JA and Cash BA: (1998, 1999) Hershey Medical Center Surgical Patient Care Database., Fully
customized patient care database designed in MS Access, used by all surgical services at HMC for patient
care tracking and daily billing. Features include drop-down menus for customized attending, room and
service options, list printed in “walking order” of hospital, and multiple pc access to same database via
secure department network links.
Process Improvements in Clinical Practice
Iocono, JA, Cooney, RA, and Smith, JS (1994, 1998) The Penn State Trauma History and Physical Flow
Sheet, A Medical Record form that replaced the History and Physical Form for trauma patients at Hershey
Medical Center. Layout adapted from recommended ATLS evaluation of trauma patient.
Pulito, AR, Beals, DA and Iocono, JA (2004) Pediatric Surgery Phone follow-up system. Developed and
implemented process to eliminate post-operative office visits for routine pediatric surgery operations by
replacing them with a phone follow-up and data collection system.
Philanthropic Practices for Medical Professionals Workshop
University of Kentucky, Hilary J. Boone Center February 6, 2009
COMMUNITY SERVICE ACTIVITIES:
Lexington Family Magazine
Guest Columnist on Surgical Issues in Children
“Pyloric Stenosis” – March, 2004
“Laparoscopy in Children” – June, 2004
“Seatbelt Safety” – December, 2004
“What is a Pediatric Specialist?” – January, 2005
“Helmet Safety for Children” – May, 2005
“Traveling for the Holidays, safety tips for your child” November, 2005

Joseph A. Iocono, M.D. Curriculum Vitae
COMMUNITY SERVICE ACTIVITIES (CONT…)
The Makenna Foundation
Member, Board of Directors October 2004—present
--The Makenna foundation is a local Lexington organization dedicated to fundraising projects for
the Kentucky Children’s Hospital. Group has raised money and awareness in the
Lexington community in order to support issues related to Kentucky Childrens Hospital.
Lexington Evening of Champions Derby Eve Ball
Member, Board of Directors October 2006—present
--Comprised of a group of citizens from Lexington, role of board is to organize, host and present
black tie gala in downtown Lexington that raises money for Kentucky Children’s Hospital. Selected
as a representative for both Kentucky Children’s Hospital and the Makenna Foundation Board,
duties include meeting with potential sponsors, approving budget, and working at the event.
March of Dimes, Bluegrass Division
Member, Board of Directors March, 2006—present
--Duties include attending board meetings, speaking at local events, and organizing annual
March of Dimes Walk in Lexington.
Campaign Chair, Lexington March of Dimes Walk 2007, 2008
Biomacromolecules, 2004
Contemporary Surgery, 2006
JOURNAL REVIEWER:
CONSULTANT TO INDUSTRY:
Immersion Medical, Gaithersberg, MD—Content editor for Laparoscopic training modules
Autosuture, Inc, Norwalk, CT—consultant for pediatric surgical product development
Stryker, Inc, East Lansing, MI—consultant for pediatric surgical product development

Joseph A. Iocono, M.D. Curriculum Vitae
RESEARCH SUPPORT:
ACTIVE
Autosuture Incorporated
Minimally Invasive Surgery Fellowship Grant
University of Kentucky Department of Surgery and MIS Center
$150, 000 (TC) July 2007-2009
Children’s Miracle Network
Nissen Fundoplication in Extremely Premature Neonates: A Comparative study
Kentucky Children’s Hospital
Co-Investigator (Desai, Shashidar, Iocono)
$8,500 (TC), July 2007-08
Children’s Miracle Network
Teaching Laparoscopic Pyloromyotomy using a Low Fidelity Model
Kentucky Children’s Hospital
Principal Investigator
$10,000 (TC), July 2007-08
COMPLETED
Stryker Incorporated
Development of MIS Education Curriculum
University of Kentucky MIS Center
$20,000 (TC) 2004-2006
NIH National Research Fellowship Award
at The Pennsylvania State University
“Wound Contraction-Role of Myosin Light Chains”
$ 28,600. (TC) October, 1995 – June, 1996
$ 29,900. (TC) July, 1996 – June 1997
$ 31,050. (TC) July, 1997 – June 1998
4 Diamonds Foundation
Principal Investigator
Mentored Investigator Award
“Role of Hyaluronic Acid In Wilm’s Tumor
$ 5,000. (TC) 1997-98
Genzyme, Inc.
Principal Invesitgator
Corporate Grants
“The Safe Use of Seprafilm ® in Neonatal Rats”
$ 5,250. (TC) 1997

Joseph A. Iocono, M.D. Curriculum Vitae
RESEARCH SUPPORT:
COMPLETED (CONT…)
“Efficacy of Seprafilm ® and Seprafilm ® II in Neonatal Rat Adhesion Model”
$ 7,500. (TC) 1998
“Effects of Seprafilm ® and Seprafilm ® II on Dermal Healing in Rat Model”
$ 5,000 (TC) 1998-99
Dermasciences, Inc.
Co-Invesitgator
Corporate Grant
“Effect of Zinc-based dressings on Wound Healing”
$ 56,000. (TC) 1996-97, 1997-98 (2 grants)
Childrens Miracle Network
Co-Investigator
Basic Science Research Grant
“Gap Juntional Communications in Wound Healing”
$ 10,000. (TC) 1997-98
Childrens Miracle Network
Co-Investigator
Clinical Project Grant, “Open ARMS Network”
$ 3,220. (TC) 1996-97, 1997-98
Department of Surgery
Milton S. Hershey Medical Center
Surgery Feasibility Grants
“Hyaluronic Acid and Wound Healing”
$ 28,000. (TC) 1995-98 (3 grants)
American Chemical Society- James Flack
Norris Undergraduate Research Fellowship
Boston College, 1988
$ 2,000.
GRANTS PENDING:

Joseph A. Iocono, M.D. Curriculum Vitae
BIBLIOGRAPHY
I ABSTRACTS, BOOK REVIEWS, AND PAPER DISCUSSIONS:
ABSTRACTS PRESENTED
1. Iocono, JA and McLaughlin, LW: DNA Replication in the Presence of Mutagenic Sites. The Nucleus
Vol. 4(2): 7-10 1989. Abstract presented at the 1989 American Chemical Society New England
Undergraduate Research Forum, Boston April, 1989.
2. Gibson, E., Iocono, JA, Spitzer, S., and Spitzer, AR: SIDS in Philadelphia, 1987-89; Analysis of
Risk and Plan of Action. Pediatric Pulmonology Vol. 9, No. 4: 273, 1990.
3. Iocono, JA, Ehrlich, HP, Garner, WL, Colleran, K. and Krummel, TM: Interleukin-8 Inhibits Human
Fibroblast Collagen Lattice Contraction. Abstract presented at the 1996 Society for University
Surgeons Residents’ Conference, Washington, D.C. Feb 10, 1996.
4. Iocono, JA, Ehrlich, HP, Garner, WL, Colleran, K. and Krummel, TM: Interleukin-8 Inhibits Human
Fibroblast Collagen Lattice Contraction, Abstract presented at the 2 nd Joint Meeting of The Wound
Healing Society and The European Tissue Repair Society, Boston, MA, May 15-19, 1996, Wound
Repair and Regeneration 4(1):A158.
5. Iocono, JA, Keefer, KA, Ehrlich, HP and Krummel, TM: Altering the Glycosaminoglycan Contents
of Wound Implants Modulates Granulation Tissue, Abstract presented at the 2 nd Joint Meeting of The
Wound Healing Society and The European Tissue Repair Society, Boston, MA, May 15-19, 1996.
Wound Repair and Regeneration 4(1):A158.
6. Iocono, JA, Keefer, KA, Ehrlich, HP and Krummel, TM: Repeated Additions of Hyaluronic Acid
Induces Fetal-Like Extracellular Matrix in Adult Wounds, Abstract presented at the 1996 Annual
Meeting of the Central Pennsylvania Chapter of The American College of Surgeons, Hershey, PA
April 12, 1996.
7. Cooney, R.N., Iocono, JA, Maish, G., Ehrlich, HP, Cohen, A. and Smith, JS. Tumor Necrosis Factor
Mediates Impaired Wound Healing in Chronic Abdominal Sepsis. Abstract presented at The
American Association for the Surgery of Trauma 56 th Annual Meeting, Houston, TX, September,
1996. (presented by Dr. Cooney)
8. Iocono, JA, Ehrlich, HP, Allison, GM, Keefer, KA and Krummel, TM. Hyaluronan (HA) Alters the
Appearance of CD44 Isoforms in Granulation Tissue. Implications for Scarless Repair, Abstract
presented at 1996 American College of Surgeons Annual Meeting, San Francisco, CA, October 1996.
9. Iocono, JA, Ehrlich, HP, Allison, GM, and Krummel, TM. Hyaluronic Acid Decreases Fetal
Fibroblast Expression of -Smooth Muscle Actin. Implications in Fetal Repair, Abstract presented at
1996 American Academy of Pediatrics Section on Surgery, Boston, MA, October 1996. (POSTER)
10. Iocono, JA, Ehrlich, HP, Keefer, KA, and Krummel, TM. Hyaluronic Acid and Fetal
Fibroblast/Collagen Interaction. Implications in Fetal Repair, Abstract presented at The Association
for Academic Surgery 30 th Annual Meeting, Chicago, IL November, 1996. (POSTER)
11. Ehrlich, HP, Greco, R.M., Allison, GM, Iocono, JA, Krummel, TM. Hyaluronate Increases
Proliferation and Tubulin Content in Human Fibroblasts Suspended in Collagen, Abstract presented at
the 36 th Annual Society for Cell Biology Annual Meeting. San Francisco, December, 1996.
(POSTER)
12. Shields, JH, Iocono, JA Greecher, CP, Krummel, TM, Dillon, PW, and Cilley, RE. Open ARMS; A
Multidisciplinary Approach to Treating Children with Ano-rectal Malformations. Abstract presented
at the American Pediatric Nurses’ Association Annual Meeting, April 1997 (POSTER, presented by
Ms. Shields)

Joseph A. Iocono, M.D Curriculum Vitae
ABSTRACTS PRESENTED (CONT…)
13. Iocono, JA, Ehrlich, HP, Keefer, KA, and Krummel, TM. Hyaluronan Induces Scarless Repair in
Mouse Limb Organ Culture. Abstract presented at the American Pediatric Surgical Association
Annual Meeting, Naples, FL May 1997. (POSTER)
14. Keefer, KA, Iocono, JA, Enfiejian, HL, Clark, MG, and Ehrlich, HP. Zinc-Containing Wound
Dressings Enhance Mechanical Debridement of Dermal Wounds. Abstract presented at the Wound
Healing Society 7 th Annual Meeting, Nashville, TN, June 12-14, 1997.
15. Iocono, JA, Ehrlich, HP, Allison, GM, and Krummel, TM. Hyaluronic Acid Degradation Increases
Expression of RHAMM Receptor in Fibroblasts. Implications in Repair. Abstract presented at
Association of Academic Surgery, Dallas, TX, November, 1997.
16. Iocono, JA, Krummel, TM, Bisignanni, GJ and Ehrlich, HP Inhibition of Differentiation of Fetal
Mouse Heart Cells by Hyaluronic Acid. Abstract presented at the Association of Academic Surgery
Annual Meeting, Dallas, TX, November, 1997.
17 Ghazartian, A., Iocono, JA, Garner, WL and Ehrlich HP, Memory of Past Exposure to the
Inflammatory Cytokine IL-8 Alters Fibroblast Wound Healing Function. Abstract presented at the
Annual American Burn Association Meeting, Chicago, IL, March 1998.
18. Iocono, JA, Ehrlich, HP, Allison, GM, Keefer, KA, and Krummel, TM. Gestational Effects of
Hyaluronic Acid (HA) Receptor Expression. Implications in Repair. Abstract presented at the Wound
Healing Society Annual Meeting, Salt Lake City, UT, June 1998.
19. Iocono, JA, Keefer, KA, Ehrlich, HP. A Zinc-based Dressing Enhances Grafting in Rats Compared to
Xeroform and Petrolatum Dressings Presented at the Wound Healing Society Annual Meeting, Salt
Lake City, UT, June 1998. (POSTER)
20. Iocono, JA., Cilley, RE, Mauger, DT, Krummel, TM, and Dillon, PW. Post-Natal Pulmonary
Hypertension after Congenital Diaphragmatic Hernia Repair. Predicting Risk and Outcome. Abstract
presented at the British Association of Pediatric Surgeons Meeting, Edinborough, Scotland, July 1998.
(Presented by Dr. Dillon).
21. Iocono, JA, Ehrlich, HP, Garlick, D.S., Dethlefsen, S.M., and Skrabut, EM. Safety and Efficacy of
Seprafilm ® and Seprafilm ® II Anti-adhesion barriers in Neonatal Rats. Abstract presented at the
American Academy of Pediatrics—Section on Surgery San Francisco CA, October, 1998. (POSTER)
22. Iocono, JA, Bass, TL, Cooney, RN, Cilley, RC, Mucha, P, and Smith, JS The Penn State Trauma
History and Physical Flow sheet: An Indispensable Tool in the Evaluation of the Class I Trauma
Patient. Abstract presented at the American College of Surgeons Annual Clinical Congress, Scientific
Exhibits Orlando, FL October 1998. (POSTER)
23. Iocono, JA, Bowman, NN, Ehrlich, HP, and Krummel, TM. Metastatic Wilm’s Tumor Cells Show
Increased CD44 Expression Independent of Hyaluronic Acid Concentration. Abstract presented at the
Association for Academic Surgery Annual Meting, Seattle, WA, November 1998.
24. Iocono, JA, Ehrlich, HP, Allison, GM, and Krummel, TM. Hyaluronidase Increases the Expression of
RHAMM Receptor in Granulation Tissue: Implications in Repair Abstract presented at the 49 th
Surgical Forum, American College of Surgeons Clinical Congress, Orlando, FL October 1998.
25. Iocono, JA, Cilley, RE, Mauger, DT, Krummel, TM, and Dillon, PW. Clinical Implications of
Persistent Pulmonary Hypertension in CDH Survivors. Presented at annual Extracorporeal Life
Support Organization, San Antonio, TX, September, 1998
26. Burgess, L., Iocono, JA, Garlick, DV, Finneral, A, Ehrlich, HP and Skrabut, E. An Evaluation of the
Effect on Wound Healing of a Hyaluronate/Carboxymethlcellulose Membrane. Presented at the 3 rd
International Wound Healing Congress, Bordeaux, France, August 1999. (Presented by Dr. Skrabut)

Joseph A. Iocono, M.D Curriculum Vitae
ABSTRACTS PRESENTED (CONT…)
27. Iocono, JA, Hoskins, J., and Pulito, AR. The Use of a Low Fidelity Model to teach Laparoscopic
Pyloric Stenosis. Presented at the Association for Surgical Education, New York, NY, March 2005.
28. Noe, SD, Hoskins, J and Iocono, JA Laparoscopic repair of Incarcerated Small bowel Hernia caused
by Meckel’s Diverticulum (Video Presentation). Presented at International Pediatric Endosurgical
Group National Meeting, Dallas, TX, April 2006.
29. McKenzie, S, Beals, DA, Pulito, AR and Iocono, JA, Eliminating Complications in Laparoscopic
Pyloromyotomy. Presented at International Pediatric Endosurgical Group National Meeting, Dallas,
TX, April 2006.
30. Dhillon S, Kriss VM, Iocono JA. Zebras in the neonatal abdomen: a presentation of unusual neonatal
abdominal masses. Southern Society for Pediatric Radiology. Chailkidiki, Greece. July 2006.
31. Gagliardi, RJ., Li, Ji-Hui, Iocono, JA, Hoskins, JD, and Witzke, D Real Time Use of Computerized
Volumetric Analysis System (CVAS) During a Live MIS Procedure at the University of Kentucky
Presented at The Society of American Gastrointestinal and Endoscopic Surgeons National Meeting,
Dallas, TX, April 2006. (POSTER)
32. Donnelly, MB, Witzke, D, Hoskins, JD, Iocono, JA, and Gagliardi, RJ Uncertainty In Assessing the
Competence of Residents’ Performance on Three Laparoscopic Simulations, Presented at The Society
of American Gastrointestinal and Endoscopic Surgeons National Meeting, Dallas, TX, April 2006.
(POSTER)
33. Dhillom, S, Iocono, JA and Kriss, V, Ultrasonic Imaging of Newborn Solid Tumors: Diagnosis
without CT or MRI, Radiologic and Operative Findings, Presented at the International Pediatric
Radiology Association Meeting, Greece, April 2007 (Presented by Dr Dhillom)
34. Dhillon S, Kriss VM, Iocono JA. Say no to CT in the neonatal belly: using US and MR to evaluate
unusual neonatal abdominal masses. Scientific Exhibit: Society for Pediatric Radiology, Miami
Florida, Apr 2007. (POSTER)
35. Plymale, MA, Donnelly, MB, Iocono, J, Pulito, A. Variation is Faculty Evaluations of Clerkship
Students Attributable to Surgical Service, Presented at the Annual Meeting of the Association for
Surgical Education, Toronto, Canada, April 18, 2008.
36. Pulito, A, Donnelly, MB, Plymale, MA, Iocono, J. Does a Change of Evaluation Form Alter Faculty
Evaluations of Students? Presented at the Annual Meeting of the Association for Surgical Education,
Toronto, Canada, April 18, 2008.
37. Plaxico, JS, Kriss, VM, and Iocono, JA Pediatric Diaphragmatic Abnormalities; Use of Multi-modal
Radiographic Modalities in their Work-up. Presented at the European Society of Pediatric Radiology,
Edinborough Scotland, June 2008 (presented by Dr Plaxico).
38. Kapoor, S, Shashidar, H, Iocono, JAI and Desai, NS Nissen Fundoplication: A Comparative Study in
Extremely Low Birth Weight and Term Infants. Presented at the Society for Pediatric Research,
Honolulu, HI, May 2008 (Presented by Dr Kapoor)
39. Iocono, JA Inexpensive Model to Teach and Practice Simple Knot-tying and Suturing. Presented at
the Annual Meeting of the Association for Surgical Education, Toronto, Canada, April 19, 2008.
40. Reddy A and Iocono, JA Acquired Tracheoesophageal Fistula in Infancy. Presented at The Kentucky
Anesthesia Association Meeting, June, 2008 (Presented by Dr Reddy)
41. McDonald M, Karabakhtsian, R, Iocono, JA, Ueland F. Small Cell Carcinoma of the Ovary,
Hypercalcemic Type: Is it Inheritable? Presented at The University of Kentucky Markey Cancer
Research Day, October 2008, (Presented by Dr Karabakhtsian)

II. MANUSCRIPTS:
JOURNAL PUBLICATIONS
1. Iocono, JA, Gildea, B. and McLaughlin, L.W. (1990) Mild Hydrolysis of 2-Pyrimidinone-containing
DNA Fragments Generate Apurinic/Apyrimidinic Sites. Tetrahedron Letters Vol. 31, No. 2. 175-178.
2. Iocono, JA, Ehrlich, HP, Allison, GM, Keefer, KA and Krummel, TM. (1996) Hyaluronan (HA)
Alters the Appearance of CD44 Isoforms in Granulation Tissue. Implications for Scarless Repair.
Surgical Forum, Vol. 47, pp.341-344.
3. Cooney, R.N., Iocono, JA, Maish, G., Cohen, A., Smith, J.S. and Ehrlich, HP (1997) Tumor Necrosis
Factor Mediates Impaired Wound Healing in Chronic Abdominal Sepsis J Trauma 42(3) 415-420.
4. Garner, W. L., Remick, D., Iocono, J., Ehrlich, P. (1997) TNF[alpha] Concentration in Chronic
Wounds and Its Effect on Wound Healing. J Invest Derm 108(4):638.
5. Iocono, JA, Ehrlich, HP, Keefer, KA and Krummel, T.M (1998) Hyaluronan Induces Scarless Repair
In Mouse Limb Organ Culture. J Pediatr Surg 33(4), 564-567.
6. Keefer, KA, Iocono, JA, Ehrlich, HP. (1998) Zinc-Containing Wound Dressings Encourage Autolytic
Debridement of Dermal Burns. Wounds 10(2), 54-58.
7. Iocono, JA, Bisignanni, GJ, Krummel, TM, and Ehrlich, HP (1998) Inhibition of Differentiation of
Fetal Mouse Heart Cells into Fibroblasts by Hyaluronic Acid. J Surg Res 76, 111-116..
8. Iocono, JA, Ehrlich, HP, Allison, GM, and Krummel, TM. (1998) Hyaluronidase Increases The
Expression of RHAMM Receptor in Granulation Tissue: Implications in Repair Surgical Forum, Vol
49, 655-656.
9. Iocono, JA, Keefer, KA, Allison, GM, Krummel, TM, and Ehrlich, HP. (1998) Repeated Additions of
Hyaluronan Alters the Granulation Tissue Deposition in Sponge Implants in Mice. Wound Rep Reg
6;442-448..
10. Greco, RM, Iocono, JA, Ehrlich, HP (1998) Hyaluronic Acid Stimulates Human Fibroblast
Proliferation within a Collagen Matrix. J Cell Physiol 177; 465-473.
11. Iocono, JA., Cilley, RE, Mauger, DT, Krummel, TM, and Dillon, PW. (1999) Post-Natal Pulmonary
Hypertension after Congenital Diaphragmatic Hernia Repair. Predicting Risk and Outcome. J Pediatr
Surg 34(2); 349-353
12. Iocono JA., Colleran KR, Remick DG, Gillespie BW, Ehrlich HP and Garner WL. (2000) Interleukin-
8 levels and activity in delayed-healing human thermal wounds. Wound Repair Regeneration
8(3):216-25.
13. Piatt, JH and Iocono, JA A Late Result of an Early Operation for Unilateral Coronal Synostosis
Pediatr Neurosurg 2003 Jun; 38(6): 334-7.
14. deChadarevian, J.P., Pascasio, J.M., Halligan, G.E., Katz, D.A., Iocono, JA, Kimmel, S.P. and
Katsetos, C.D. Malignant Peripheral Nerve Sheath Tumor Arising from an Adrenal Ganglioneuroma
in a 6-year-old boy. Pediatr Devel Path 2004 Dec; 7: 277-284.
15. Iocono, JA, Keefer, KA, Ehrlich, HP. A Zinc-based Dressing Enhances Grafting in Rats Compared to
Xeroform and Petrolatum Dressings J Burn Care & Rehabilitation 2005, July 14-16.
16. Li JH, Zheng CZ, Gagliardi RJ, Iocono JA, Hua JD. Review of the changes of laparoscopic surgery
education in China in the last fifteen years. Journal of Laparoscopic Surgery 2006; 11(4): 355-356.
17. Kiessling SG., Wadhwa N., Kriss VM., Iocono JA. and Desai NS An unusual case of severe therapyresistant
hypertension in a newborn. Pediatrics 2007 Jan; 119(1):e301-4.
18. Rasner, JN, Parrott, K, Tekulve, R, Leavell, JK, Iocono, J. Management of Abdominal Compartment
Syndrome in a Very Low birth Weight Neonate Using Penrose Drains and Subsequent Management
of Abdominal-Wall Defects. J Laparo & Adv Surg Tech 2008 Aug; 18(4); 657-660
19. OKeefe, S, Rasner, JN, Parrott, K and Iocono, JA Intrathoracic Accessory Liver Lobe: An Incidental
Finding in the Workup of a Child with a Respiratory Infection and Thoracoscopic Resection J Laparo
& Adv Surg Tech (Submitted)

Joseph A. Iocono, M.D. Curriculum Vitae
JOURNAL PUBLICATIONS (CONT…)
20. Flomenhoft, D, Mardini, SH, Shashidhar, H, Iocono, JA, and de Villiers, WJS: Rectal EUS is a
Useful Imaging Modality in Children Amer Journ Gastro (Under Revision)
21. Ballard, HO, Shook, LA, Iocono, JA, Turner, MD, Marino, S, and Bernard, P Novel Animal Model
for Teaching Chest Tube Placement, Critical Care Medicine. (Submitted)
22. McDonald M, Karabakhtsian, R, Iocono, JA, Ueland F. Small Cell Carcinoma of the Ovary,
Hypercalcemic Type: Is it Inheritable? J Amer Coll Surg (Submitted)
23. Reddy, A, Iocono, JA and Brown, RE Emergency Management of Acquired Tracheoesophageal
Fistula in Infancy. Anesthesia Online (Submitted)
24. Ballard, HO, Shook, LA, Iocono, JA, Turner, D, Marino, S, Bernard, PA; Novel animal model for
teaching chest tube placement. Journal of the Kentucky Medical Association Feb. 12, 2009
25.
BOOKS AND BOOK CHAPTERS:
1. Iocono, JA and Ehrlich, H.P, “The Biology of Healing” in Leaper, D.J., and Harding, K.G. eds.
Wounds: Biology and Management, Oxford University Press, 1998.
2. Iocono, JA and Krummel, TM “Surgical Infectious Disease” in Ashcraft, et al Pediatric Surgery, third
edition. W.B Saunders, 1999.
3. Iocono JA and Krummel TM, “The role of hyaluronan in fetal repair: a review”. In: Abatangelo G,
Weigel P.H., (ed) New Frontiers in Medical Sciences: Redefining Hyaluronan. Amsterdam: Elsevier
Science B.V, 2000.
4. Iocono, JA, “Umbilical Hernia” In: Greenberg et al, (Ed). Text-Atlas of Emergency Medicine
Lippincott, Williams and Wilkins 2005
5. Iocono, JA, “Pyloric Stenosis” In: Greenberg et al, (Ed). Text-Atlas of Emergency Medicine
Lippincott, Williams and Wilkins 2005
6. Iocono, JA, Pulito, AR and Cole, K “Surgical Diseases of the Newborn” In: Gommella, T et al, (Ed)
Neonatology, 6 th edition, McGraw-Hill, 2008
7. Perry, J, Hoskins, J and Iocono, JA “ Minimally Invasive Nuss Repair of Pectus Excavatum” in
Zwischenberger, J Atlas of Thoracic Procedures, 1 st edition, Elsevier, 2009

Joseph A. Iocono, M.D Curriculum Vitae
INTERNET BASED PEER REVIEWED EDUCATION MATERIALS
Association for Surgical Education Peer Reviewed PowerPoint Teaching Modules
Internet based medical student Teaching case data bank developed by the curriculum committee for
the Association for Surgical Education. Participated as both author and editor for modules.
http://www.surgicaleducation.com/mc/page.do?sitePageId=62550&orgId=ase
Modules Authored Modules Edited
Upper GI Bleeding Adrenal Mass Inguinal Hernia
Malrotation Intussusception Appendicitis
Pyloric Stenosis Pneumonthorax
University of Kentucky – General Surgery Minimally Invasive Resident Surgery Curriculum
Hoskins, J, Plymale, M and Iocono, JA
Four year curriculum, starting the first day of internship, that outlines basic and advanced skills sets and
knowledge base in minimally invasive surgery for general surgery residents. Designed to start with basic
skills, internet based didactics and testing are coupled with dry lab practice of surgical skills. Procedural
knowledge is supplemented by DVD library of edited narrated teaching cases (see below) that cover
general, pediatric, thoracic and urologic minimally invasive procedures. Curriculum website is password
protected and available to our residents. http://www.mc.uky.edu/mis/MIS_Page/MISCur2004.asp
University of Kentucky – General Surgery Clinical Clerkship in General Surgery Curriculum
Kates, M Plymale, M and Iocono, JA
Extensive re-organization and rewriting of curriculum, requirements, goals and objectives of curriculum.
LCME-ED2 requirements, evaluations from the students and faculty and changes in the timing of the
clerkship required extensive changes to be made in the clerkship in 2007 and again in 2008. Broad
changes in grading scales, on-line availability of lectures and required workshops, and test upgrades were
included. Additional meeting times with students throughout the clerkship also was added.
University of Kentucky-Minimally Invasive Surgical Center
Narrated Teaching Cases in Pediatric Surgery-Authored and Edited Cases for DVD Library
Laparoscopic Pyloromyotomy
Laparoscopic Nissen Fundoplication
Laparoscopic Ovarian cystectomy
Laparoscopic Appendectomy
Laparoscopic Ovarian Mass Removal
Laparoscopic Right Hemi-colectomy
Laparoscopic Reduction of Internal hernia and removal of Meckel’s Diverticulum
Thoracoscopic Decortication of Empyema
Thoracoscopic Lung Biopsy
Thoracoscopic Removal of Ectopic Liver Lobe
Open Posterior Sagittal Ano-Rectoplasty

Joseph A. Iocono, M.D Curriculum Vitae
PRESENTATIONS:
NATIONAL
Interleukin-8 Inhibits Human Fibroblast Collagen Lattice Contraction, 38 th Annual Society for University
Surgeons Residents Conference, Uniformed Services Univ. of the Health Sciences, Washington, D.C.,
February 10, 1996
Use of a Multidose Model of Glycosaminoglycan Administration Alters Granulation Tissue in Mice, 2 nd
International Joint Meeting of the Wound, Healing Society & the European Tissue Repair Soc., Boston,
MA, May 16, 1996
Interleukin-8 Inhibits Collagen Organization in Fibroblast-Populated Collagen Lattice Contraction, 2 nd
International Joint Meeting of the Wound, Healing Society & the European Tissue Repair Soc., Boston,
MA, May 16, 1996
Hyaluronan (HA) Alters the Appearance of CD44 Isoforms in Granulation Tissue: Implications for
Scarless Repair, 47 th Annual Wagensteen Surgical Forum, American College of Surgeons Annual
Meeting, San Francisco, CA, October 7, 1996
The Effect of Hyaluronan on Adult Murine Healing, 17 th Annual Pediatric Surgical Residents’
Conference, St Christopher’s Hospital for Children, Philadelphia, PA, October 19, 1996
Hyaluronic Acid Degradation Increases Expression of RHAMM Receptor. Implications in Repair,
Association of Academic Surgery,Dallas, TX, November 7, 1997
Inhibition of Differentiation of Fetal Mouse Heart Cells by Hyaluronic Acid, Association of Academic
Surgery, Dallas, TX, November 8, 1997
Hyaluronic Acid in Wound Healing and Cancer
Biopolymers Seminar, Genzyme Corporation, Cambridge, MA, February, 1998
The Role of Hyaluronic Acid and Wound Healing: Fact or Fiction,
5 th Reunion Speaker, 1998 Clinic Program, Jefferson Medical College, Philadelphia, PA, June, 1998
Gestational Effects of Hyaluronic Acid Receptors: Implications in Repair Wound Healing Society,
Salt Lake City, UT, June 20, 1998
The Role of Hyaluronic Acid in Fetal Wound Healing,
The Biology of Hyaluronan, Padua, Italy, July, 1998
Safety and Efficacy of Anti-adhesion Barriers Seprafilm ® and Seprafilm ® II in a Neonatal Rat Model
Invited Speaker, Biopolymers Seminar, Genzyme Corporation, Cambridge, MA, May, 1999
Hyaluronidase Increases the Expression of RHAMM Receptor in Granulation Tissue, American College
of Surgeons Surgical Forum, Orlando, FL, October, 1998
Metastatic Wilm’s Tumor Cells Show Increased CD44 Expression Independent of Hyaluronic
Acid Concentration, Association for Academic Surgery Annual Meeting, Seattle, WA, November, 1998

Joseph A. Iocono, M.D Curriculum Vitae
PRESENTATIONS:
NATIONAL (CONT…)
The Safety and Efficacy of Seprafilm in Neonatal Rat Model,
International Biopolymers Seminar, Poster Session, Manchester, Wales, October, 2000
The Use of a Low Fidelity Model to teach Laparoscopic Pyloric Stenosis Repair. Presented at the
Association for Surgical Education, New York, NY, March 2005
Trialing a Low-Fidelity Pyloric Stenosis Model. Presented at American Pediatric Surgical Association,
May, 2005, Phoenix AZ
Eliminating Complications in Laparoscopic Pyloromyotomy, Presented at International Pediatric
Endosurgical Group, Dallas TX, April 2006.
Laparoscopic Repair of Incarcerated Small Bowel Hernia caused by Meckel’s Diverticulum (Video
Presentation). Presented at International Pediatric Endosurgical Group, Dallas TX, April 2006 (presented
by Dr Steve Noe).
Phone Follow-up for Outpatient Pediatric Surgery: Design, Implementation and Critique
Presented at The American Pediatric Surgical Nurses Association Annual Meeting, Hilton Head, SC, May
2007.
Update on Minimally Invasive Surgery in Infants & Children”, Lehigh Valley Hospital Grand Rounds,
Allentown, PA, May, 2007.
Anecdotes of Surgical Problems in Neonates
March of Dimes Lexington, Annual Luncheon Guest Speaker, Lexington, KY, March 2007
Inexpensive Home Knot Tying and Suture Teaching Module: Presented at the Association for Surgical
Education, “Thinking Out of the Box” Session, Toronto, Canada, April 17, 2008.
Does a Change of Evaluation Form Alter Faculty Evaluations of Students? Presented at the Annual
Meeting of the Association for Surgical Education, Toronto, Canada, April 18, 2008.
LOCAL/REGIONAL
DNA Replication in the Presence of Apurinc Sites
Biochemistry Seminar Boston College, Department of Chemistry, April, 1989
Surgical Management of Biliary Stricture
Gastroenterology Grand Rounds, Penn State University Hershey Medical Center, November, 1994
Hyaluronic Acid and Wound Healing
Department of Surgery Research Conference, Penn State University, November, 1995
Interleukin-8, Fibroblasts and Collagen: Implications for Wound Healing,

Joseph A. Iocono, M.D Curriculum Vitae
Department of Surgery Grand Rounds, Penn State University, January, 1996
LOCAL/REGIONAL (CONT…)
Repeated Additions Hyaluronic Acid Alter Granulation Tissue in Adult Mice,
Central Pennsylvania Chapter, ACS 12 th Annual Residents’ Conference, Hershey, PA, April, 1996
Hyaluronic Acid and Wound Healing—An Update,
Department of Surgery Research Conference, Penn State University, November, 1996
Hyaluronic Acid Induces Scarless Repair In Mouse Organ Culture,
Central Pennsylvania Chapter, ACS 13 th Annual Residents’ Conference, Hershey, PA, April, 1997
Hyaluronic Acid and Wound Healing: Lessons from the Mouse,
Department of Surgery Research Conference, Penn State University, December, 1997
Pediatric Surgical Emergencies
Department of Pediatrics Noon Lecture Series, St Christopher’s Hospital for Children, August, 2002
Update on Advanced MIS Techniques in Pediatric Surgery,
Contemporary Pediatrics for the Healthcare Professional, Lexington, KY, May 2004
What’s New in Pediatric Surgery?
Central Baptist Hospital Pediatric Grand Rounds, Lexington, KY, June 2004
Surgical Treatment of GERD in Infants and Children
Central KY GI Nurses Association, Lexington Kentucky, August 2005
Caring for a child with Complicated Hirschsprung’s Disease: A true rollercoaster ride
Central Kentucky March of Dimes Annual Luncheon, Monticello, KY, October, 2005
Minimally Invasive Surgery in Infants, Large Operations with Small Incisions
GI at the Extremes of Life Symposium, Lexington, Kentucky, November 2005
Pediatric Trauma Transport
Lifenet Quarterly Education Update, Versailles, Kentucky, November, 2005
Improving outcomes in Treating Empyema with VATS and a Critical Pathway
Southern Society of Clinical Surgeons, Lexington, Kentucky, April, 2006
What’s New in Pediatric Surgery?
Corbin Pediatrics Group CME Lecture, October 2006
New Concepts in Pharmacology of Coagulants
Contemporary Pediatrics for the Healthcare Professional, Lexington, KY, April, 2007

Joseph A. Iocono, M.D Curriculum Vitae
So, You want to be a Doctor? The Game to get into Medical School and Beyond?
Transylvania University Premedical Group Lecture Series, October, 2007
LOCAL/REGIONAL (CONT…)
Pediatric Cervical Spine Injury, Injuries, Field Immobilization, Assessment and Treatment
Kentucky State Trauma Symposium, Louisville, KY, November, 2007
Pediatric Trauma Resuscitation; Airway, Breathing, CT Scan?
Scott County EMS Quarterly Education Day, Georgetown, KY, May 2008
Pediatric Trauma Resuscitation; Airway, Breathing, CT Scan?
Danville Pediatrics and Hospital Group CME Conference, November, 2008
Taking Care of Pediatric Trauma Patients: ABCs and the Golden Hour
Lake Cumberland Regional Hospital Group CME Conference, January 2009
Horses not Zebras: Common Reasons to Refer to Pediatric Surgery
University of Kentucky Family & Community Medicine Conference, January 21, 2009
Pediatric Surgical Scenarios: Horses not Zebras
Pikeville Medical Center, February 2009
Pediatric Surgical Scenarios: Horses not Zebras
ARH South Williamson, KY, February 2009
INTERNAL UNIVERSITY OF KENTUCKY
Update on Pediatric Minimally Invasive Surgery
Department of Surgery Grand Rounds, University of Kentucky, December 2003
The Surgical Care of Empyema in the Era of Advanced MIS
Department of Pediatrics Grand Rounds, University of Kentucky, May 2004
Newborn Surgical Emergencies
Neonatal/Pediatric Transport Nurses Education Conference, University of Kentucky, October, 2004
Perioperative Care of the Neonate
NICU Teaching conference, University of Kentucky, February, 2005
Biology of Wound Healing
General Surgery Resident Teaching Conference, February 2005
Pediatric Trauma, “What about the Little Ones?”
University of Kentucky Trauma Symposium, February 2005
Empyema; Optimal Care of the Pediatric Patient

Joseph A. Iocono, M.D Curriculum Vitae
Department of Surgery Grand Rounds, University of Kentucky, April, 2005
INTERNAL UNIVERSITY OF KENTUCKY (CONT…)
The use of Ultrasound in Pediatric Abdominal Trauma, what is the current evidence based medicine?
University of Kentucky Trauma Multidisciplinary Rounds April, 2005,
Review of Pediatric Surgery
General Surgery Resident Teaching Conference, June 2005
Implementing the Core Competencies into a General Surgery Curriculum:
Where are we now and where do we need to go?
Department of Surgery Grand Rounds, University of Kentucky, November, 2005
Pediatric Trauma Core Lectures, University of Kentucky Emergency Room Staff
ABC’s of Pediatric Trauma: Unique aspects of infants and children, July, August, 2006
What does it mean to be a Minimally Invasive Surgeon?
Fayette County High School pre-professional program seminar, September, 2006
Pediatric Trauma Resuscitation, Beyond ATLA and APLS
Emergency Medicine Resident Conference, January, 2007
Review of Pediatric Surgery
General Surgery Resident Teaching Conference,, February, 2007
Pediatric Trauma Core Lectures, University of Kentucky Emergency Room Staff
ABC’s of Pediatric Trauma: Unique aspects of infants and children, March, April 2007
Game plan for Matching in Surgery, Jan, March, May 2007
Talks to third and fourth year students on Matching and application strategies in surgery Minimally Invasive
Repair Techniques for Hirschsprung’s Disease
Department of Pediatrics Grand Rounds, University of Kentucky April, 2007.
Pediatric Surgery and Pediatric Anesthesia, Observations from the Blood Side of the Barrier
Department of Anesthesia Resident Conference, January, 2008
Pediatric Surgery and Emergency Room Medicine, Basics of Diagnosis
Emergency Medicine Resident Conference, April, 2008
Fluids and Electrolytes, Basics of Resuscitation
General Surgery Resident Teaching Conference, July, 2008

Joseph A. Iocono, M.D Curriculum Vitae
INTERNAL UNIVERSITY OF KENTUCKY (CONTINUED)
Department of Pediatrics Noon Conference, University of Kentucky, Pediatric Surgery Lectures
Pediatric Surgery – Horses, not Zebras May 2004
The Pediatric Acute Abdomen, July 2004.
Bilious Vomiting in the Newborn February, 2005.
Care of Neonatal Emergencies, Chest and upper GI tract August, 2005.
When to refer to the pediatric surgeon, common problems and solutions June, 2005
Congenital Diaphragmatic hernia and ECMO, its not the same September, 2005
Bilious Vomiting in the neonate November, 2005
Pediatric Trauma—Abuse: pattern recognition and work-up January, 2006
Pediatric Surgery Review for Pediatric Boards, Part I March, 2006
Pediatric Surgery Review for Pediatric Boards, Part II May, 2006
Common Referral Patterns for Pediatric Surgery inpatient consults July, 2006
Pyloric Stenosis and malrotation September, 2006
Surgical Treatment of GERD November, 2006
The balance between clinical medicine and fundraising January, 2007
Post operative care of the NICU patient March, 2007
Uncommon problems with pediatric hernias May, 2007
Gastroschisis and Omphalocele July, 2007
Ulcerative colitis and FAP: Surgical treatment August, 2007
Benign Cystic Lung masses in Newborn January, 2008
Anorectal Malformations March, 2008
Pediatric Surgery Review for Pediatric Boards, Part I May, 2008
Evaluation of Abdominal Pain in the ER, To CT or Not CT July, 2008
Fluids and Electrolytes from A Surgery Perspective September, 2008
Department of Pediatrics Morning Report – monthly starting August 2005
“Weird-omas”, a week on the Pediatric Surgery Service August, 2005
Disaster Planning, where are we in UK Pediatrics? September, 2005
Blunt Head Trauma, Interfacing ER and PICU Care October, 2005
4 Different 10 year old children with abdominal pain November, 2005
Newborn Sacrococcygeal teratoma December, 2005
Newborn with Excessive drooling (TEF) January, 2006
Complications of GERD February, 2006
Complicated pneumonia in a 4yo (empyema) March, 2006
Rectal Bleeding in 4yo male (Meckel’s) April, 2006
Presentation of common hernias in pediatric practice May, 2006
Neck mass in 6yo girl June, 2006
Primer on Referring to Pediatric Surgery July, 2006

Joseph A. Iocono, M.D Curriculum Vitae
Indications, insertion and Care of long term IV access August, 2006
Pneumatosis in a 3 week old baby in NICU October, 2006
Disaster Prep at KCH, are we ready? September, 2006
Handlebar bike injury in 9yo boy November, 2006
INTERNAL UNIVERSITY OF KENTUCKY (CONTINUED)
Department of Pediatrics Morning Report – monthly starting August 2005
Vomiting in a 3 day old, a 3 week old, a 3 month old and a 3 you December, 2006
Surgical Abdominal Pain in Children January, 2007
Chest Mass in 8yo female February, 2007
Recurrent pneumonias in a 9m old female March, 2007
Rectal Bleeding in 14yo male (Crohn’s) April, 2007
Neonatal Bowel obstruction May, 2007
9yo male hypotensive after MVC (lap belt injury) June, 2007
MRSA soft tissue infections (where are they coming from?) July, 2007
Consulting Pediatric Surgery, How and When August, 2007
GERD, when is it surgical? September, 2007
Vomiting in 3 hr old, 3 week old, a 3 month old and a 3 yo. November, 2007
Neck Masses in Infants and Children December, 2007
Lumps and Bumps in Pediatric Practice January, 2008
Gastroschisis and Omphalocele February, 2008
Central venous access, ports, broviacs, CVP monitors March, 2008
Perforated NEC in 700gm neonate, what’s this drain thing about? April, 2008
Incarcerated hernia and Testicular Torsion July, 2008
Tracheoesophageal Fistula August, 2008
Respiratory Failure in NICU, Is ECMO always the answer? September, 2008

Joseph A. Iocono, M.D Curriculum Vitae
UPDATED March 26, 2009

Sarah Jane Brain Family State Lead Center of Excellence
For the state of
Louisiana
Louisiana Health Care Quality Forum
www.lhcqf.org
REGION: Southcentral CATEGORY OF CARE: Rural/Tele‐health
Program Director: Shannon Robshaw, MSW Position Title: Executive Director
Address: 10305 Oakline Drive, Baton Rouge, LA 70809
Phone: 225‐907‐8172
Email: srobshaw@gmail.com
Level 1 Center(s): New Orleans
Level 2 Center(s): Shreveport, Lafayette, Baton Rouge
Level 3 Center(s): Alexandria, Lake Charles, Monroe
Number of jobs PABI Grant creates in Louisiana: 94
Budget Overview for State Lead Center
State Lead Center Management Sub‐total: $ 5,111,239
Category of Care Management Sub‐total: $ 3,465,231
Case Management Sub‐total: $ 2,342,265
State Lead Center Sub‐total: $ 10,950,734
Indirect Cost to Institution (20%): $ 2,190,147
Administrative Cost to SJBF (2%): $ 219,015
SUB‐TOTAL AMOUNT OF GRANT PROPOSAL: $ 13,359,896

Louisiana Health Care Quality Forum Profile continued
Title/Description Sub‐total Amount for Grant
STATE LEAD CENTER MANAGEMENT
Program Director: $ 68,135
Program Director Assistant: $ 81,280
State Director: $ 270,932
Associate State Director: $ 117,404
State Epidemiologist: $ 180,621
State Epidemiologist Assistant: $ 81,280
State Scientific Investigation Research Coordinator: $ 153,528
State Scientific Investigation Research Assistant: $ 153,528
State Education/Training Coordinator (plus materials): $ 257,779
State General Counsel: $ 216,745
State IT Manager: $ 171,590
State Family Support Coordinator: $ 135,466
State Prevention/Awareness Coordinator: $ 135,466
State Acute Care Coordinator: $ 135,466
State Reintegration Coordinator: $ 135,466
State Adult Transition Coordinator: $ 135,466
State Mild TBI Coordinator: $ 135,466
State Mental Health Coordinator: $ 117,404
State Assistive/Emerging Technology Coordinator: $ 117,404
State Correctional System Coordinator: $ 117,404
State MISC Coordinator: $ 117,404
State Veterans Coordinator: $ 117,404
State Data Manager: $ 117,404
State Public Policy Manager: $ 135,466
State Community Relations Manager: $ 117,404
State Administrative Support: $ 487,677
Charity care: $ 286,700
Human Resources Support: $ 94,000
Training Support: $ 23,500
State Lead Center Office Space Cost: $ 275,519
State Lead Center Transportation/Travel: $ 92,891
State Lead Center Office Equipment/Communications: $ 197,500
State Lead Center Supplies: $ 88,877
Annual and Regional Conferences: $ 32,000
State Brain Injury Association Pediatric Programs: $ 81,914
STATE LEAD CENTER MANAGEMENT SUB‐TOTAL: $ 5,111,239

Louisiana Health Care Quality Forum Profile continued
Title/Description Sub‐total Amount for Grant
CATEGORY OF CARE RESPONSIBILITY: Rural/Tele‐health
Regional Category Director: $ 270,932
Regional Category Epidemiologist: $ 216,745
Regional Category Education/Training Coordinator: $ 180,621
Regional Category Scientific Investigation Research: $ 180,621
Regional Category Administrative Support: $ 325,118
Regional Category Office Space Cost: $ 79,989
Regional Category Transportation/Travel: $ 157,500
Regional Category Office Equipment/Communications: $ 27,900
Regional Category Supplies: $ 25,803
CATEGORY OF CARE SUB‐TOTAL: $ 3,465,231

Louisiana Health Care Quality Forum Profile continued
Title/Description Sub‐total Amount for Grant
CASE MANAGEMENT RESPONSIBILITY
Level 1 Center Manager(s): $ 129,015
Level 1 Center Field Specialist(s): $ 103,212
Level 1 Center SJB Family Specialist(s): $ 704,423
Level 1 Center Administrative Support: $ 116,114
Level 1 Office Space Cost: $ 43,005
Level 1 Transportation/Travel: $ 27,086
Level 1 Office Equipment/Communications: $ 33,800
Level 1 Supplies: $ 49,149
Level 2 Center Field Specialist(s): $ 185,782
Level 2 Center SJB Family Specialist(s): $ 603,791
Level 2 Transportation/Travel: $ 23,272
Level 2 Office Equipment/Communications: $ 39,900
Level 2 Supplies: $ 25,803
Level 3 Center SJB Family Specialist(s): $ 226,422
Level 3 Transportation/Travel: $ 7,020
Level 3 Office Equipment/Communications: $ 17,100
Level 3 Supplies: $ 7,372
CASE MANAGEMENT SUB‐TOTAL: $ 2,342,265
STATE LEAD CENTER SUB‐TOTAL: $ 10,950,734
INDIRECT COST TO INSTITUTION: $ 2,190,147
ADMINISTRATIVE FEE TO SJBF: $ 219,015
STATE LEAD CENTER SUB‐TOTAL: $ 13,359,896
TOTAL JOBS CREATED IN Louisiana: 94

Shannon Robshaw, MSW is the Executive Director of the Louisiana Health Care Quality
Forum, a private non-profit multi-stakeholder organization whose mission is to lead evidencebased
collaborative initiatives to improve the health of the citizens of Louisiana. She is
responsible all aspects of the organization’s daily operations and works with the Board of
Directors to plan and implement the Forum’s strategic priorities. Ms. Robshaw is a member of
the national Quality Alliance Steering Committee (QASC), and serves as co-chair of the QASC
National Regional Implementation workgroup. She formerly served as an Executive
Management Officer in the Office of the Secretary of the Louisiana Department of Health and
Hospitals (DHH), where she led the work with public and private stakeholders to develop the
Louisiana Health Care Quality Forum (LHCQF). During her time at DHH, Ms. Robshaw
provided staff support to the Louisiana Health Care Redesign Collaborative, and served as lead
staff for the Living with Illness and Disability workgroup. She also led other departmental and
cross-agency transformation initiatives, such as the development of Louisiana’s Plan for Access
to Mental Health Care and the Louisiana Integrated Treatment Services infrastructure initiative.
Prior to her assignment to the Office of the Secretary, she served as the Director of Strategic
Management and Fund Development for DHH’s Office of Mental Health. Before joining DHH,
Ms Robshaw served for 10 years as the Executive Director of the Mental Health Association in
Louisiana, where she established the organization as the prominent leader for mental health
issues, building a multi-stakeholder advocacy coalition focused on legislation and policy.

Sarah Jane Brain Family State Lead Center of Excellence
For the state of
Maine
Maine Institute of Human Genetics and Health
www.mainegenetics.org
REGION: Northeast CATEGORY OF CARE: Rural/Tele‐health
Program Director: Marie Hayes, Ph.D. Position Title: Allied Senior Research Scientist
Department: Department of Psychology
Address: 43 Whiting Hill Road, suite 150, Brewer, ME 04412
Phone: 207‐973‐4963
Email: mjhayes@emh.org
Level 1 Center(s): Bangor, Portland
Level 2 Center(s): Muchias, Lewiston, Millinnocket
Level 3 Center(s): Lubec, Pittsfield, Houlton
Number of jobs PABI Grant creates in Maine: 108
Budget Overview for State Lead Center
State Lead Center Management Sub‐total: $ 5,520,415
Category of Care Management Sub‐total: $ 3,587,132
Case Management Sub‐total: $ 3,804,174
State Lead Center Sub‐total: $ 12,943,720
Indirect Cost to Institution (20%): $ 2,588,744
Administrative Cost to SJBF (2%): $ 258,874
SUB‐TOTAL AMOUNT OF GRANT PROPOSAL: $ 15,791,339

Maine Institute of Human Genetics and Health Profile continued
Title/Description Sub‐total Amount for Grant
STATE LEAD CENTER MANAGEMENT
Program Director: $ 148,050
Program Director Assistant: $ 89,811
State Director: $ 299,370
Associate State Director: $ 129,727
State Epidemiologist: $ 199,580
State Epidemiologist Assistant: $ 89,811
State Scientific Investigation Research Coordinator: $ 169,643
State Scientific Investigation Research Assistant: $ 169,643
State Education/Training Coordinator (plus materials): $ 200,758
State General Counsel: $ 239,496
State IT Manager: $ 189,601
State Family Support Coordinator: $ 149,685
State Prevention/Awareness Coordinator: $ 149,685
State Acute Care Coordinator: $ 149,685
State Reintegration Coordinator: $ 149,685
State Adult Transition Coordinator: $ 149,685
State Mild TBI Coordinator: $ 149,685
State Mental Health Coordinator: $ 129,727
State Assistive/Emerging Technology Coordinator: $ 129,727
State Correctional System Coordinator: $ 129,727
State MISC Coordinator: $ 129,727
State Veterans Coordinator: $ 129,727
State Data Manager: $ 129,727
State Public Policy Manager: $ 149,685
State Community Relations Manager: $ 129,727
State Administrative Support: $ 538,866
Charity care: $ 283,092
Human Resources Support: $ 108,000
Training Support: $ 27,000
State Lead Center Office Space Cost: $ 272,052
State Lead Center Transportation/Travel: $ 91,722
State Lead Center Office Equipment/Communications: $ 197,500
State Lead Center Supplies: $ 87,759
Annual and Regional Conferences: $ 32,000
State Brain Injury Association Pediatric Programs: $ 80,883
STATE LEAD CENTER MANAGEMENT SUB‐TOTAL: $ 5,520,415

Maine Institute of Human Genetics and Health Profile continued
Title/Description Sub‐total Amount for Grant
CATEGORY OF CARE RESPONSIBILITY: Rural/Tele‐health
Regional Category Director: $ 299,370
Regional Category Epidemiologist: $ 239,496
Regional Category Education/Training Coordinator: $ 199,580
Regional Category Scientific Investigation Research: $ 199,580
Regional Category Administrative Support: $ 359,244
Regional Category Office Space Cost: $ 78,983
Regional Category Transportation/Travel: $ 157,500
Regional Category Office Equipment/Communications: $ 27,900
Regional Category Supplies: $ 25,478
CATEGORY OF CARE SUB‐TOTAL: $ 3,587,132

Maine Institute of Human Genetics and Health Profile continued
Title/Description Sub‐total Amount for Grant
CASE MANAGEMENT RESPONSIBILITY
Level 1 Center Manager(s): $ 285,114
Level 1 Center Field Specialist(s): $ 228,091
Level 1 Center SJB Family Specialist(s): $ 1,556,724
Level 1 Center Administrative Support: $ 256,603
Level 1 Office Space Cost: $ 42,464
Level 1 Transportation/Travel: $ 54,080
Level 1 Office Equipment/Communications: $ 61,600
Level 1 Supplies: $ 76,839
Level 2 Center Field Specialist(s): $ 205,282
Level 2 Center SJB Family Specialist(s): $ 667,167
Level 2 Transportation/Travel: $ 23,244
Level 2 Office Equipment/Communications: $ 39,900
Level 2 Supplies: $ 25,478
Level 3 Center SJB Family Specialist(s): $ 250,188
Level 3 Transportation/Travel: $ 7,020
Level 3 Office Equipment/Communications: $ 17,100
Level 3 Supplies: $ 7,280
CASE MANAGEMENT SUB‐TOTAL: $ 3,804,174
STATE LEAD CENTER SUB‐TOTAL: $ 12,943,720
INDIRECT COST TO INSTITUTION: $ 2,588,744
ADMINISTRATIVE FEE TO SJBF: $ 258,874
STATE LEAD CENTER SUB‐TOTAL: $ 15,791,339
TOTAL JOBS CREATED IN Maine: 108

Principal Investigator/Program Director (Last, First, Middle):
NAME
Hayes, Marie J.
Hayes, Marie, J
BIOGRAPHICAL SKETCH
Provide the following information for the key personnel and other significant contributors in the order listed on Form Page 2.
Follow this format for each person. DO NOT EXCEED FOUR PAGES.
eRA COMMONS USER NAME
marieh
POSITION TITLE
Professor
EDUCATION/TRAINING (Begin with baccalaureate or other initial professional education, such as nursing, and include postdoctoral training.)
INSTITUTION AND LOCATION
DEGREE
(if applicable)
YEAR(s) FIELD OF STUDY
Boston College, Chestnut Hill, MA B.A. 1973 Magna cum Laude
Northeastern University, Boston, MA M.A. 1975 Exp. Psychology
Northeastern University, Boston, MA Ph.D. 1979 Exp. Psychology
Boston University School of Medicine, MA Postdoctoral 1979-1980 Neuropharmacology
A. Positions and Honors.
University of Maine System Trustee Professorship Award, 7/1/07-7/1/08
Positions and Employment
1978-1979 Principal Psychologist, Massachusetts Department of Mental Health
1983-1985 Instructor, Psychology, Pennsylvania State University
1983-1986 Instructor, Psychology & Program in Biological Basis of Behavior, University of Pennsylvania
1986-1987 Research Scientist, Hospital of the University of Pennsylvania, Division of Neonatology
1987-1989 Instructor, Psychology, Husson College
1987-1990 Instructor, Psychology, University of Maine
1991-1997 Assistant Professor in Psychology, University of Maine
1993-present Allied Scientist, Eastern Maine Medical Center
1997-2005 Associate Professor, Psychology, University of Maine
2005-present Professor, Psychology, University of Maine
2006-present Research Scientist, Maine Institute of Human Genetics & Health
2007-present Senior Scientist, Maine Institute of Human Genetics & Health
Other Experience and Professional Memberships
Ad hoc reviewer for:
Pediatrics
Neuroscience Letters
Physiology & Behavior
Infant & Child Development
Journal of Pediatric Psychology
Sleep
Journal of Sleep Medicine
European Journal of Pediatrics
Behavioral and Brain Sciences
Behavioral and Brain Functions
Developmental Psychobiology
Developmental Psychology
International Journal of Behavioral Development
Child: Care, Health & Development
PHS 398/2590 (Rev. 09/04) Page 7 Biographical Sketch Format Page

Principal Investigator/Program Director (Last, First, Middle):
Journal of Family Psychology
Journal of Mind and Behavior
Journal of Aging Research
Memberships:
Society for Neuroscience
Research Society on Alcoholism
Sleep Research Society, Association of Professional Sleep Societies
International Society of Developmental Psychobiology
Society for Research in Child Development
International Pediatric Sleep Association
B. Selected Peer Reviewed Publications
Block, M. L., Volpe, L.C., & Hayes, M. J. (1981). Saliva as a chemical cue in the ontogeny of social behavior.
Science, 211, 1062-1064.
Miller, L. H., Kastin, A. J., Hayes, M. J., Sterste, A., Garcia, J., & Coy, D. H. (1981). Inverse relationship
between onset and duration of EEG effects of six peripherally administered peptides. Pharmacology,
Biochemistry, and Behavior, 15, 845-848.
Hayes, M. J., Plante, L., Kumar, S., & Delivoria-Papadopoulos, M. (1993). Spontaneous motility in premature
infants: Features of behavioral activity and rhythmic organization. Developmental Psychobiology. 26,
279-291.
Hayes, M. J. et al. (1994). Functional analysis of spontaneous movement in preterm infants. Developmental
Psychobiology, 27, 271-287.
Rosenwasser, A. M., & Hayes, M. J. (1994). Neonatal desipramine treatment alters free-running circadian
drinking rhythms in rats. Psychopharmacology, 115, 237-244.
Hayes, M. J., Roberts, S. M., & Stowe, R. (1996). Early childhood co-sleeping: Parent-child and parent-infant
night-time interactions. Infant Mental Health Journal, 17(4), 348-357.
Hayes, M. J., Smith, B. A., Herrick, S. E., Roberts, S. M., & Swanson, E. (1997). Motoric responses to sucrose
differ in postmature and term infants. Physiology & Behavior, 61, 101-106.
Hayes, M. J., & Mitchell, D. (1998). Spontaneous movements during sleep: Temporal organization and
changes with age. Developmental Psychobiology, 32, 13-21.
Hayes, M. J., Roberts, S., & Davare, A. A. (2000). Transactional conflict between psychobiology and culture in
the etiology of postpartum depression. Medical Hypothesis, 54, 7-17.
Hayes, M. J., Parker, K. G., Sallinen, B., & Davare, A. (2001). Bedsharing, temperament and sleep
disturbance in early childhood. Sleep, 24, 657-662
Giganti, F., Hayes, M. J., Akilesh, M. R., & Salzarulo, P. (2002). Yawning and behavioral status in preterm
infants. Developmental Psychobiology, 41, 289-296.
Hayes, M. J., Brown, E., Hofmaster, P., Davare, A., Parker, K. G., & Raczek, J. A. (2002). Prenatal alcohol
intake in a rural, Caucasian clinic. Family Medicine, 34(2), 120-125.
Symanski, M.E., Hayes, M.J., & Akilesh, M.K. (2002). Patterns of premature newborns’ sleep-wake states
before and after nursing interventions on the night shift. Journal of Obstetrics and Gynecological
Neonatal Nursing, 31, 305-313.
Fukumizu, M., Kaga, M., Kohyama, J. & Hayes, M.J. (2005). Sleep-related night-time crying (“yonaki”) in
Japan: A community study, Pediatrics. 115, 217-224
Giganti, F., Hayes, M.J., Cioni, G. & Salzarulo, P. (2007) Yawning frequency and distribution in preterm and
nearterm infants assessed through 24 hour recordings. Infant Behavior & Development, 30, 641-647.
Hayes, M.J., Fukumizu, M., Troese, M., Sallinen, B.J. & Gilles, A.A. (2007). Social experiences in infancy and
early childhood co-sleeping. Infant & Child Development, 16, 403-416.
Hayes, M. J., Akilesh, M. R., Gilles, A. A., Fukumizu, M., Sallinen, B.J., & Troese, M. (2007). Apneic preterms
and Methylxanthines: Arousal deficits, sleep fragmentation and suppressed spontaneous movement.
Journal of Perinatology, 27, 782–789.
Troese, M., Sallinen, B.J., Gilles, A.A., Troese, M., Fukumizu, M., Brown, E. & Hayes, M.J. (2008). Sleep
fragmentation and evidence for sleep debt in alcohol-exposed infants. Early Human
Development.DOI:10.1016/j.earthumdev.2008.02.001
PHS 398/2590 (Rev. 09/04) Page 8 Continuation Format Page

Principal Investigator/Program Director (Last, First, Middle):
Matano, B.A., Hayes, M.J., Brown, M., Tisher, P., Krishnan R. and Paul, J.A. (in press). Modeling early
intervention in the high risk infant in the first year. Maine Policy Review: Special Issue on Early Childcare.
Hayes, M.J., DiPietro, J.A., Atella, L., Fukumizu, M., Wellman, J.D. McCoy, S.K., & Cobo-Lewis, A.B. (under
review). Pathways to state regulation from infancy to 2 years: Temperament and sleep-wake behavior.
Sallinen, B.J., Wellman, J., Fukimizu, M., Gilles, A.A., Troese, M. & Hayes, M.J. (under review). Parent-child
dyadic interactions in clinically anxious children.during play and mild stress.
Recent Book Chapters
Hayes, M.J. (2002). Methodological issues in the study of arousal and awakening in infants. Advances in
Consciousness Research, Vol. 38. In Salzarulo, P. & Ficca, G. (Eds.), Awakening and Sleep-Wake
Cycle across Development, pp. 23-45.
Sallinen, B.J., Gilles, A.A. & Hayes, M.J. (2007). Psychobiological and cultural factors in the development of
postpartum depression. In A.Rosenfeld (Ed.), New Research in Postpartum Depression (pp. 3-17).
New York, NY: Nova Science Publishers.
Hayes, M.J., & Fukumizu, M. (2006). The human neonate. In N. J. Salkind (Ed.), Encyclopedia of Human
Development (pp. 902-903). Thousand Oaks, CA: SAGE Publications.
Recent Peer-Reviewed Symposia & Invited Talks
Hayes, M.J. (organizer and chair). (2000). Prenatal to Postnatal Continuities and Discontinuities in Motor
Behavior in the Neonate .International Society for Infant Studies, Atlanta, GA.
Hayes, M.J. (organizer and chair). (2003). New Developments in Infant Nightwaking. Association of
Professional Sleep Societies, Chicago, IL.
Hayes M.J. et al. (2004). Continuity and Discontinuity of Sleep-Wake Behavior: Neonatal Period to the
Second Year. Association for Professional Sleep Societies, Philadelphia, PA.
Hayes, M.J. Etiology of Sleep Disturbance in Infancy and Toddlerhood: Importance of Sleep Site Instability in
Infancy. (2006). Pediatric Sleep Medicine Conference, Amelia Island, FL
Hayes, M.J. Cross-Cultural Differences in Parental Responses to Sleep-Related Crying in Infancy. (2007).
Society for Research in Child Development, Boston, MA.
C. Research Support
Active Research Support
MJ Hayes (PI)
1 R21 DA024806-01, National Institutes of Health, “Sleep, Arousal, and Spontaneous Movement in Opioid
Exposed Infants” (07/01/09 – 06/01/11).
MJ Hayes (PI)
Department of Defense, “Posttraumatic Stress Disorder in Siblings of Pediatric Cancer Patients” (12/01/2007-
10/01/2010).
MJ Hayes (Co-PI)
NASA, “Improving the Signal to Noise Ratio of Event-Related EEG Signals in High Risk Newborns” (5/1/09-
9/01/09)
MJ Hayes (PI)
Maine Economic Improvement Fund, “Developmental Neuroscience Initiative at Maine Institute of Human
Genetics & Health” (12/01/06-4-01-09)
MJ Hayes (Co-PI)
Maine Academic Prominence Initiative, University of Maine
“Technological Innovation in Developmental Science” (06/01/04-present)
PHS 398/2590 (Rev. 09/04) Page 9 Continuation Format Page

Principal Investigator/Program Director (Last, First, Middle):
Pending Research Support
MJHayes (PI)
Department of Defense. Phase I, SBIR. “Device to Detect Brain Injury using Spontaneous Movements During
Sleep.” Phase 1 accepted priority topic. (10/1/09-4/01/09). Phase II in development.
Completed Research Support
MJ Hayes (PI)
Respironics Corporation, “Sudden Infant Death Syndrome Risk, Sleep Deprivation and Spontaneous
Movements During Sleep in a High Risk Newborn Infants” (09/1/07-09/01/08)
K Oller (PI)
Health Research Services Award DIA RH 00004-01-03
“Prenatal Alcohol Effects: Infant Followup Project” Children at Risk, (01/01/03-01/01/04)
Study of prenatal exposure to alcohol, risk of SIDS and arousal regulation in neonates.
MJ Hayes (PI)
Biomedical Research Grant, University of Maine
“Neurobehavioral Indices of CNS Infarct in the Premature Infant” 01/01/98-12/31/99
This grant provided an equipment upgrade for EEG, actigraphy for infant sleep studies, PI
MJ Hayes (PI)
Research Grant, Eastern Maine Medical Center
“Theophylline and Caffeine Pharmacotherapy Affects Sleep and Waking States in Premature Infants” 01/01/98-
12/31/00,
This funding supported the ways to examine the neurobehavioral effects of methylxanthine treatment on sleep
and arousal in neonates.
MJ Hayes (PI)
Faculty Research Fund Award, University of Maine
“Electrophysiological and Actigraphic Measurement of Infant Sleep” 01/01/99-12/31/00,
This funding allowed for an upgrade of laboratory equipment for sleep measurement
MJ Hayes (PI)
Faculty Research Fund Award, University of Maine
“Movement and Apnea in the Premature Infant: A SIDS model” 01/01/03-12/31/03
This funding supported the development of new ways to measure sleep and arousal in neonates
Other Ongoing or Completed Research
Brain Injury and prenatal opiate exposure, neonatal sleep, movement and arousal organization
Brain Injury and Prenatal alcohol exposure, neonatal sleep, movement and arousal organization
Brain Injury and infant neurocognition using ERP and the auditory oddball paradigm
Brain Injury and maternal health and wellbeing in rural, disadvantaged cohorts
Brain Injury in adolescents with prodromal schizophrenia assessed through sleep movements (in collaboration
with Harvard University)
Neurological dysfunction in pediatric patients and co-morbid sleep disorders
Infant irritability and poor alertness as a marker of chronic sleep deprivation and risk of SIDS
Temporal rhythms of spontaneous movements in preterm neonates
Stress, anxiety and sleep in infants and children: Relationship to sleep disorder and daytime temperament
Parent-child relationships in brain-injured children
Parenting and development of anxiety disorder in middle childhood
PHS 398/2590 (Rev. 09/04) Page 10 Continuation Format Page

Sarah Jane Brain Family State Lead Center of Excellence
For the state of
Maryland
Kennedy Krieger Institute
www.kennedykrieger.org
REGION: Mid‐Atlantic CATEGORY OF CARE: Reintegration
Program Director: James Christensen, MD Position Title: Associate Professor
Department: Physical Medicine
Address: 707 North Broadway, Baltimore, MD 21205
Phone: 443‐923‐9200
Email: christensenj@kennedykrieger.org
Program Director: Beth Slomine Position Title: Director
Department: Neuropsychological Rehabilitation Services
Address: 707 North Broadway, Baltimore, MD 21205
Phone: 443‐923‐9200
Email: Slomine@Kennedykrieger.org
Level 1 Center(s): Baltimore
Level 2 Center(s): Baltimore suburb, Washington suburb
Level 3 Center(s): rural regions
Number of jobs PABI Grant creates in Maryland: 84
Budget Overview for State Lead Center
State Lead Center Management Sub‐total: $ 6,870,923
Category of Care Management Sub‐total: $ 2,063,662
Case Management Sub‐total: $ 2,675,781
State Lead Center Sub‐total: $ 1,1642,367
Indirect Cost to Institution (20%): $ 2,328,473
Administrative Cost to SJBF (2%): $ 232,847
SUB‐TOTAL AMOUNT OF GRANT PROPOSAL: $ 14,203,688

Kennedy Krieger Institute Profile continued
Title/Description Sub‐total Amount for Grant
STATE LEAD CENTER MANAGEMENT
Program Director: $ 93,800
Program Director Assistant: $ 113,040
State Director: $ 376,798
Associate State Director: $ 163,279
State Epidemiologist: $ 251,199
State Epidemiologist Assistant: $ 113,040
State Scientific Investigation Research Coordinator: $ 213,519
State Scientific Investigation Research Assistant: $ 213,519
State Education/Training Coordinator (plus materials): $ 346,671
State General Counsel: $ 301,439
State IT Manager: $ 238,639
State Family Support Coordinator: $ 188,399
State Prevention/Awareness Coordinator: $ 188,399
State Acute Care Coordinator: $ 188,399
State Reintegration Coordinator: $ 188,399
State Adult Transition Coordinator: $ 188,399
State Mild TBI Coordinator: $ 188,399
State Mental Health Coordinator: $ 163,279
State Assistive/Emerging Technology Coordinator: $ 163,279
State Correctional System Coordinator: $ 163,279
State MISC Coordinator: $ 163,279
State Veterans Coordinator: $ 163,279
State Data Manager: $ 163,279
State Public Policy Manager: $ 188,399
State Community Relations Manager: $ 163,279
State Administrative Support: $ 678,237
Charity care: $ 374,924
Human Resources Support: $ 84,000
Training Support: $ 21,000
State Lead Center Office Space Cost: $ 360,302
State Lead Center Transportation/Travel: $ 113,400
State Lead Center Office Equipment/Communications: $ 197,500
State Lead Center Supplies: $ 116,226
Annual and Regional Conferences: $ 32,000
State Brain Injury Association Pediatric Programs: $ 107,121
STATE LEAD CENTER MANAGEMENT SUB‐TOTAL: $ 6,870,923

Kennedy Krieger Institute Profile continued
Title/Description Sub‐total Amount for Grant
CATEGORY OF CARE RESPONSIBILITY: Reintegration
Regional Category Director: $ 376,798
Regional Category Epidemiologist: $ 301,439
Regional Category Education/Training Coordinator: $ 251,199
Regional Category Scientific Investigation Research: $ 251,199
Regional Assistive/Emerging Technology Coordinator: $ 251,199
Regional Category Administrative Support: $ 452,158
Regional Category Office Space Cost: $ 104,604
Regional Category Transportation/Travel: $ 157,500
Regional Category Office Equipment/Communications: $ 27,900
Regional Category Supplies: $ 33,743
CATEGORY OF CARE SUB‐TOTAL: $ 2,063,662

Kennedy Krieger Institute Profile continued
Title/Description Sub‐total Amount for Grant
CASE MANAGEMENT RESPONSIBILITY
Level 1 Center Manager(s): $ 179,428
Level 1 Center Field Specialist(s): $ 143,542
Level 1 Center SJB Family Specialist(s): $ 979,676
Level 1 Center Administrative Support: $ 161,485
Level 1 Office Space Cost: $ 56,239
Level 1 Transportation/Travel: $ 27,900
Level 1 Office Equipment/Communications: $ 33,800
Level 1 Supplies: $ 64,273
Level 2 Center Field Specialist(s): $ 172,251
Level 2 Center SJB Family Specialist(s): $ 559,815
Level 2 Transportation/Travel: $ 15,840
Level 2 Office Equipment/Communications: $ 26,600
Level 2 Supplies: $ 22,495
Level 3 Center SJB Family Specialist(s): $ 209,931
Level 3 Transportation/Travel: $ 4,680
Level 3 Office Equipment/Communications: $ 11,400
Level 3 Supplies: $ 6,427
CASE MANAGEMENT SUB‐TOTAL: $ 2,675,781
STATE LEAD CENTER SUB‐TOTAL: $ 11,642,367
INDIRECT COST TO INSTITUTION: $ 2,328,473
ADMINISTRATIVE FEE TO SJBF: $ 232,847
STATE LEAD CENTER SUB‐TOTAL: $ 14,203,688
TOTAL JOBS CREATED IN Maryland: 84

Principal Investigator/Program Director (Last, First, Middle):
BIOGRAPHICAL SKETCH
Provide the following information for the key personnel and other significant contributors in the order listed on Form Page 2.
Follow this format for each person. DO NOT EXCEED FOUR PAGES.
NAME
James R. Christensen, M.D.
eRA COMMONS USER NAME
ChristensenJR
POSITION TITLE
Associate Professor of Physical Medicine &
Rehabilitation, and Pediatrics
EDUCATION/TRAINING (Begin with baccalaureate or other initial professional education, such as nursing, and include postdoctoral training.)
INSTITUTION AND LOCATION
DEGREE
(if applicable)
YEAR(s) FIELD OF STUDY
Nebraska Wesleyan University, Lincoln, Nebraska B.S. 1972 Science
Univ. of Nebraska Medical School, Omaha, Nebraska M.D. 1975 Medicine
Johns Hopkins Hospital, Baltimore, Maryland Residency 1975-77 Pediatrics
Kennedy Institute for Handicapped Children & Johns
Hopkins University SOM
Fellowship 1984-86 Developmental Pediatrics
Sinai-Johns Hopkins University SOM Residency 1989-92 Physical Med. & Rehab
A. POSITIONS AND HONORS
Positions and Employment
1978-1980 Staff Physician, Lafene Student Health Center, Kansas State University, Manhattan, Kansas
1982-1983 Medical Director and Staff Pediatrician, Indian Health Service Clinic, Holton, Kansas
1986-1989 Instructor, Department of Pediatrics, Johns Hopkins School of Medicine, Baltimore, Maryland
1992-2002 Assistant Professor, Departments of Physical Medicine and Rehabilitation and Pediatrics, Johns
Hopkins School of Medicine, Baltimore Maryland
1992- Vice President of Rehabilitation, Kennedy Krieger Institute, Baltimore, Maryland
2002- Associate Professor, Departments of Physical Medicine and Rehabilitation and Pediatrics,
Johns Hopkins School of Medicine, Baltimore Maryland
2005- Director of the Division of Pediatric Rehabilitation Medicine, Johns Hopkins University School of
Medicine
Other Experience and Professional Memberships
1989 Clinical and programmatic consultations for the Ministry of Health, United Arab Emirates
1987-1989 The Johns Hopkins University Injury Prevention Center Advisory Board
1994-1995 Task Force of the Maternal and Child Health Bureaus, focusing on pediatric rehabilitation and
children with special health needs
1995 Programmatic consultations and education of professionals on the Habilitation of the Child with
Cerebral Palsy for the Ministry of Health, Vietnam.
1996 National Steering Committee for the Traumatic Brain Injury State Demonstration Grant Program,
Department of Health and Human Services
1999 Programmatic consultation for the Ministry of Health of Qatar, August 1999.
2000 Pediatric Injury and Trauma Data Meeting for HRSA/Maternal and Child Health Bureau’s EMSC
Program
2002-present Professional Advisory Board, Chesapeake Applied Research Network (PECARN)
2006-present President, Medical Staff, Kennedy Krieger Institute
2007 EMSC/AHRQ NASCOT for Kids Meeting: Pediatric Trauma Care: A workshop to develop a
national study on costs and outcome from pediatric trauma. Washington DC.
Honors
1974 Alpha Omega Alpha
1988 & 1997 The “Golden Goniometer: Award, 1988 and 1997.
(Outstanding Teacher Award from the Physical Medicine and Rehabilitation Residents)
2001 “Parents’ Choice Award” for The Special-Needs Collection: Children with Traumatic Brain
Injury.
PHS 398/2590 (Rev. 09/04) Page Biographical Sketch Format Page

Principal Investigator/Program Director (Last, First, Middle):
B. SELECTED PEER-REVIEW PUBLICATIONS (in chronological order)
1. Greenspan AI, MacKenzie EJ, Christensen JR, Robel C: Use of Health and Rehabilitation Services
Following Head Injury. Maryland Medical Journal, 1989; 38(3):239-45.
2. Christensen JR: Developmental Approach to Pediatric Neurogenic Dysphagia. Dysphagia 1989;
3:131-134
3. Christensen, JR: Pediatric Traumatic Brain Injury Rehabilitation: Challenges in Care Delivery.
NeuroRehabilitation 1997; 9:105-112.
4. Cabana MD, Crawford TO, Winkelstein JA, Christensen JR, Lederman HM: Consequences of the
Delayed Diagnosis of Ataxia-Telangiectasia. Pediatrics 1998;102(1):98-100.
5. Pace GM, Schlund MW, Hazard-Haupt T, Christensen JR, Lashno M, McIver J, Peterson K, Morgan
KA: Characteristics and Outcomes of a Home and Community-Based NeuroRehabilitation
Program. Brain Injury 1999; 13(7):535-546.
6. Mostofsky SH, Green JT, Meginley M, Christensen JR, Woodruff-Pak DS: Conditioning in Identical
Twins with Ataxia-Telangiectasia. Neurocase 1999; 5:425-433.
7. White JRM, Farukhi Z, Bull C, Christensen J, Gordon T, Paidas C, Nichols D. Predictors of outcome in
severely head-injured children. Critical Care Medicine 2001; 29:534-540.
8. Pidcock FS, Wise JM, Christensen JR. Treatment of severe post-traumatic bruxism with Botulinum
Toxin-A. Journal of Oral and Maxillofacial Surgery 2002; 60:115-117.
9. Gerring JP, Slomine B, Vasa RA, Grados M, Chen A, Rising W, Christensen JR, Denckla MB, Ernst M.
Clinical predictors of posttraumatic stress disorder after closed head injury in children. Journal of
the American Academy of Child and Adolescent Psychiatry 2002;41:157-65.
10. Vasa RA, Gerring JP, Grados M, Slomine B, Christensen JR, Rising W, Denckla MB, Riddle MA.
Anxiety after severe pediatric closed head injury. Journal of the American Academy of Child and
Adolescent Psychiatry 2002;41:148-56.
11. Slomine BS, Gerring JP, Grados MA, Vasa R, Brady KD, Christensen J, Denckla MB. Performance on
measures of “executive function” following pediatric traumatic brain injury. Brain Injury
2002;16:759-72.
12. Vasa RA, Grados M, Slomine B, Herskovits EH, Thompson RE, Salorio C, Christensen J, Wursta C,
Riddle MA, Gerring JP. Neuroimaging correlates of anxiety after pediatric traumatic brain injury.
Biol Psychiatry 2004;55:208-16.
13. Slomine BS, Brintzenhofeszoc K, Salorio CF, Warren L, Wieczorek BH, Carney J, Moore DA,
Christensen JR. A method for performance evaluation using WeeFIM data collected for the Joint
Commission on Accreditation of Healthcare Organizations' ORYX initiative: The 0.5 band control
chart analysis. Arch Phys Med Rehabil 2004; 85:512-6.
14. Hattiangadi N, Pillion JP, Slomine B, Christensen JR, Trovato M, Speedie LJ, Characteristics of
Auditory Agnosia in a Child with Severe Traumatic Brain Injury: A Case Report. Brain and
Language 2005; 92:12-25.
15. Slomine, B.S., Salorio, C., Grados, M., Vasa, R., Christensen, J., & Gerring, J. Differences in attention,
executive functioning, and memory in children with and without ADHD after severe traumatic brain
injury. Journal of the International Neuropsychological Society. 2005; 11: 645-53.
16. McCarthy ML, Mackenzie EJ, Durbin DR, Aitken ME, Jaffe KM, Paidas CN, Slomine BS, Dorsch AM,
Berk RA, Christensen JR, Ding R; CHAT Study Group. The Pediatric Quality of Life Inventory: An
Evaluation of Its Reliability and Validity for Children With Traumatic Brain Injury. Arch Phys Med
Rehabil. 2005; 86(10): 1901-1909.
17. Salorio, C. F., Slomine, B.S., Grados, M.A, Vasa, R.A., Christensen, J.R., & Gerring, J.P.
Neuroanatomic correlates of CVLT-C performance following pediatric TBI. Journal of the
International Neuropsychological Society. 2005; 11(6):686-96.
18. Zabel T.A., Slomine B.S., Brady K., Christensen J. (2005) Neuropsychological profile following suicide
attempt by hanging: two adolescent case reports. Child Neuropsychology, 11, 373-88.
19. McCarthy M.L., MacKenzie EJ, Durbin DR, Aitken ME, Jaffe KM, Paidas DN, Slomine BS, Dorsch AM,
Christensen JR, Ding R. Health-Related Quality of Life During the First Year Post Traumatic Brain
Injury. Archives of Pediatrics and Adolescent Medicine. 2006;160:252-260
PHS 398/2590 (Rev. 09/04) Page Continuation Format Page

Principal Investigator/Program Director (Last, First, Middle):
20. Trovato M., Slomine B., Pidcock F., Christensen J. The efficacy of Donepezil Hydrochloride on
memory functioning in three adolescents with severe traumatic brain injury. Brain Injury
2006;20(3):339-43.
21. Slomine B.S., McCarthy, M.L. Ding R, MacKenzie EJ, Jaffe KM, Aitken ME, Durbin DR, Christensen
JR, Dorsch AM, Paidas CN, and the CHAT Study Group. Health Care Utilization and Needs
Following Pediatric Traumatic Brain Injury. Pediatrics Electronic Pages, 2006;117:c663-75.
22. Natale JE, Guerguerian AM, Joseph JG, McCarter R, Shao C, Slomine B, Christensen J, Johnston MV,
Shaffner, DH. Pilot study to determine the hemodynamic safety and feasibility of magnesium
sulfate infusion in children with severe traumatic brain injury. Pediatric Critical Care Medicine.
2007;8:1-9.
23. Grados, M.A., Vasa, R.A., Riddle, M.A., Slomine, B.S., Salorio, C., Christensen, J., & Gerring, J. New
onset obsessive-compulsive symptoms in children and adolescents with severe traumatic brain
injury. Depression and Anxiety 2007 Oct 23; [Epub ahead of print]
24. Salorio, C.F., Slomine, B.S., Guerguerian, A.M., Christensen, J.R., White, J.R.M., Natale, J.E.,
Shaffner, D., Grados, M., Vasa, R.A., & Gerring, J.P. Intensive care unit variables and outcome
after pediatric traumatic brain injury: A retrospective study of survivors. Pediatric Critical Care
Medicine. 2008, 9, 47-53.
25. Sesma, H.W., Slomine, B.S., Ding, R., McCarthy, M.L, & the CHAT Study Group (in press). Executive
Functioning in the First Year after Pediatric Traumatic Brain Injury. Pediatrics. 2008; 121:e1686-
1695.
26. Aitken ME, McCarthy ML, Slomine BS, Ding R, Durbin DR, Jaffe KM, Paidas CN, Dorsch AM,
Christensen JR, MacKenzie EJ and the CHAT study Group. Family Burden Following Traumatic
Brain Injury in Children. Pediatrics. 2009;123:199-206.
27. Slomine B, Eikenberg J, Salorio C, Suskauer S, Trovato M, Christensen J. Preliminary Evaluation of
the Cognitive and Linguistic Scale: A measure to assess recovery in inpatient rehabilitation
following pediatric brain injury. Journal of Head Trauma Rehabilitation. 2008;23:286-293.
28. Cole, W.R., Gerring, J.P., Gray, R.M., Vasa, R.A., Salorio, C.F., Grados, M., Christensen, J.R., &
Slomine, B.S. Prevalence of aggressive behaviour after severe paediatric traumatic brain injury.
Brain Injury. 2008;22(12):932-9.
29. Maynard CS, Amari A, Slifer KJ, Wieczorek B, Christensen JR. An Interdisciplinary Behavioral
Rehabilitation Approach to Treating Pediatric Pain-Associated Disability: Clinical Outcomes of an
Inpatient Treatment Protocol. Journal of Pediatric Psychology. 2009 May 22 [Epub ahead of print].
C. RESEARCH SUPPORT
Ongoing Research Support
U01HL094345 Moler (PI) 3/2009 – 8/2010
NIH/NHLBI: Therapeutic Hypothermia After Pediatric Cardiac Arrest
Goal: Randomized control trial, so see if this intervention improved neurobehavioral outcomes.
Role: Co-Investigator. (PI for Kennedy Krieger subcontract, responsible for design and collection of primary
outcome measures for multi-center trials.)
Completed Research Support
Christensen (PI) 2001–2009
NIH/NCRR: Project support through the Johns Hopkins/Kennedy Krieger Institute Neurobehavioral Research
Unit of the General Clinical Research Center
Structural, spectroscopic and functional imaging during coma recovery in children and adolescents after
traumatic or anoxic brain injury
Goal: Identify changes in brain activation and spectroscopy during coma recovery.
PHS 398/2590 (Rev. 09/04) Page Continuation Format Page

Principal Investigator/Program Director (Last, First, Middle):
Role: Principal Investigator
R34 IR34HD050531 Moler (PI) 8/1/2006 - 7/31/2008
NIH
Planning Hypothermia Trial for Pediatric Cardiac Arrest
Goal: Develop grant proposal for a randomized clinical trial.
Role: Co-Investigator
R49/CCR319701-01 McCarthy (PI) 09/30/01-09/29/04
Centers for Disease Control
Assessing Children’s Health following Traumatic Brain Injury
Goal: Evaluate the utility of outcome measures to detect impairments and needs following traumatic injuries.
Role: Co-Investigator
Slomine (PI) 04/22/02-12/31/04
NIH/NCRR: Project support through the Johns Hopkins/Kennedy Krieger Institute Neurobehavioral Research
Unit of the General Clinical Research Center
Assessing Children’s Health following Traumatic Brain Injury
Goal: Evaluate the utility of neuropsychological outcome measures to detect impairments and needs, following
traumatic injuries.
Role: Co-Investigator
PHS 398/2590 (Rev. 09/04) Page Continuation Format Page

Program Director/Principal Investigator (Last, First, Middle): Shapiro, Bruce
NAME
Beth S. Slomine
BIOGRAPHICAL SKETCH
Provide the following information for the key personnel and other significant contributors in the order listed on Form Page 2.
Follow this format for each person. DO NOT EXCEED FOUR PAGES.
eRA COMMONS USER NAME (credential, e.g., agency login)
SLOMINEBS
POSITION TITLE
Director, Neuropsychological Rehabilitation
Services
Assistant Professor of Psychiatry
EDUCATION/TRAINING (Begin with baccalaureate or other initial professional education, such as nursing, and include postdoctoral training.)
INSTITUTION AND LOCATION
DEGREE
(if applicable)
YEAR(s) FIELD OF STUDY
University of Delaware B.S. 1989 Psychology
University of Florida M.S. 1992 Clinical Psychology
Brockton/West Roxbury VAMC 1994-1995 Psychology
University of Florida Ph.D. 1995 Clinical Psychology
Philadelphia Geriatric Center 1995-1996 Clinical Geropsychology
and Neuropsychology
Please refer to the application instructions in order to complete sections A, B, and C of the Biographical
Sketch.
A. Positions and Honors. List in chronological order previous positions, concluding with your present
position. List any honors. Include present membership on any Federal Government public advisory
committee.
Positions and Employment
1994-1995 Psychology Intern, Brockton/West Roxbury VAMC/Harvard Medical School, Brockton, MA
1995-1996 Postdoctoral Fellow, Philadelphia Geriatric Center, Philadelphia, PA
1996-1997 Psychology Associate, Kennedy Krieger Institute, Baltimore, MD
1997-1999 Instructor, Psychiatry, School of Medicine, Johns Hopkins University, Baltimore, MD
1997- Clinical Neuropsychologist, Kennedy Krieger Institute, Baltimore, MD
1999- Assistant Professor, Psychiatry, Johns Hopkins University School of Medicine, Baltimore, MD
2006- Director, Neuropsychological Rehabilitation Services, Kennedy Krieger Institute, Baltimore,
MD
Other Experience and Professional Memberships
1995- American Psychological Association (1995-present)
Division 22 (Rehabilitation Psychology)
Division 40 (Clinical Neuropsychology)
1997- Licensed Psychologist, MD License # 03377
2000- Performance Evaluation/Performance Improvement Committee, Kennedy Krieger Institute
2000- International Neuropsychological Society
2002- Diplomate in Clinical Neuropsychology, American Board of Professional Psychology
2002- American Academy of Clinical Neuropsychology
Honors
1988 Phi Beta Kappa
1989 National Science Foundation Undergraduate Research Fellowship
1989 Magna Cum Laude, University of Delaware
1989 Psychology Department Faculty Award (Research promise in psychology)
1989-1990 College of Health Related Professions Dean's Scholar (Training in Research)
PHS 398/2590 (Rev. 11/07) Page Biographical Sketch Format Page

Program Director/Principal Investigator (Last, First, Middle): Shapiro, Bruce
1990-1992 National Institute for Dental Research Traineeship
1991 American Psychological Association Student Travel Award
1992 Bryan Robinson Neurological Foundation Research Fellowship
1993 American Psychological Association Dissertation Research Award
1994 Florence Shafer Memorial Award for excellence in psychotherapeutic counseling
2002 Commendation for Excellence in Internship Training
2003 Faculty Award for Excellence in Internship Training
B. Peer-reviewed publications (in chronological order). Do not include publications submitted or in
preparation.
1. Slomine, B.S. and Greene, A.F.(1993). Anger imagery and corrugator electromyography. Journal of
Psychosomatic Research, 37, 671-676
2. Slomine, B.S., Bowers, D., & Heilman, K.M. (1999). Dissociation between autonomic responding and
verbal report in right and left hemisphere brain damage during anticipatory anxiety. Neuropsychiatry,
Neuropsychology, and Behavioral Neurology, 12, 143-148.
3. Grados M.A., Slomine B.S., Gerring J.P., Vasa R., Bryan R.N., Denckla M.B. (2001). A depth of lesion
model in children and adolescents with moderate-to-severe traumatic brain injury: Use of SPGR MRI to
predict severity and outcome. Journal of Neurology, Neurosurgery and Psychiatry, 70, 350-358.
4. Gerring JP, Slomine BS, Vasa R, Grados M, Chen A, Rising W, Christensen, J, Denckla M., Ernst, M.
(2002). Clinical predictors of Posttraumatic Stress Disorder after severe closed head injury in children
and adolescents. Journal of the American Academy of Child and Adolescent Psychiatry , 41(2): 157-
165.
5. Slomine B, Gerring J, Grados M, Vasa R, Brady K, Christensen J, Denckla MB. (2002). Performance
on measures of “Executive Function” following pediatric traumatic brain injury. Brain Injury, 16(9), 759-
772.
6. Vasa R, Gerring J, Grados M, Slomine B, Christensen J.R., Rising, W., Denckla M.B., Riddle M.A.
(2002). Anxiety following severe pediatric traumatic brain injury. Journal of the American Academy of
Child and Adolescent Psychiatry, 41(2), 148-156.
7. Slomine, B., BrintzenhofeSzoc, K, Salorio, C, Warren, L, Wieczorek, B., Carney, J, Moore, D,
Christensen, J. (2004) Archives of Physical Medicine and Rehabilitation. A method for performance
evaluation using WeeFIM data collected for the Joint Commission on Accreditation of Healthcare
Organizations ORYX Initiative: The 0.5 band control chart analysis, 85(3):512-6.
8. Vasa, R.A., Grados, M., Slomine, B, Herkovitz, EH, Thompson, RE, Salorio, C, Christensen, J., Wurste,
C., Riddle, M.A., Gerring, J.P. (2004). Neuroimaging correlates of anxiety after pediatric traumatic
brain injury. Biological Psychiatry, 55, 208-216.
9. Hattiangadi N, Pillion JP, Slomine B, Christensen J, Trovato MK, Speedie LJ. (2005). Characteristics
of auditory agnosia in a child with severe traumatic brain injury: A case report. Brain and Language,
92(1), 12-25.
10. Zabel T.A., Slomine B.S., Brady K., Christensen J. (2005) Neuropsychological profile following suicide
attempt by hanging: two adolescent case reports. Child Neuropsychology, 11, 373-88.
11. Slomine B.S., Salorio C.F., Grados M.A., Vasa R.A., Christensen J.R., Gerring J.P. (2005) Differences
in attention, executive functioning, and memory in children with and without ADHD after severe
traumatic brain injury. Journal of the International Neuropsychological Society, 11, 645-653.
12. Salorio C.F., Slomine B.S., Grados M.A, Vasa R.A., Christensen J.R., & Gerring J.P. (2005).
Neuroanatomic correlates of CVLT-C performance following pediatric TBI. Journal of the International
Neuropsychological Society, 11, 686-696.
13. McCarthy M, MacKenzie E.J., Durbin D.R., Aitken M.E., Jaffe K.M., Paidas C.N., Slomine B.S., Dorsch
A.M., Berk R.A., Christensen J.R., Ding R. (2005) The Pediatric Quality of Life Inventory (PedsQL TM4.0 ):
An evaluation of its psychometric characteristics for children with traumatic brain injury. Archives of
Physical Medicine and Rehabilitation, 86, 1901-1909.
PHS 398/2590 (Rev. 11/07) Page Continuation Format Page

Program Director/Principal Investigator (Last, First, Middle): Shapiro, Bruce
14. McCarthy, M., MacKenzie, E.J., Durbin, D.R., Aitken, M.E., Jaffe K.M., Paidas, C.N., Slomine, B.S.,
Dorsch, A.M., Christensen, J., Ding, R., & Chat Study Group (2006) Health-related quality of life during
the frst year post traumatic brain injury. Archives of Pediatrics, 160, 252-260.
15. Slomine, B.S., McCarthy, M.F., Ding, R., MacKenzie, E., Jaffe, K., Durbin, D. Aitken, M.E., Dorsch,
A.M., Christensen, J., Paidas, C. & Chat Study Group (2006). Healthcare utilization and need for
services following pediatric traumatic brain Injury. Pediatrics Electronic Pages, 117, e663-74.
16. Trovato, M., Slomine, B., Pidcock, F. & Christensen, J. (2006). The efficacy of donepezil hydrochloride
on memory functioning in three adolescents with severe traumatic brain injury. Brain Injury, 20, 339-
343.
17. Natale, J.E., Guerguerian, A.M., Josephe, J.G., McCarter, R., Shao, C., Slomine, B., Christensen, J.,
Johnston, M.V., & Shaffner, D.H. (2007). Pilot study to determine the hemodynamic safety and
feasibility of magnesium sulfate infusion in children with severe traumatic brain injury. Pediatric Critical
Care Medicine, 8,1-9.
18. Grados, M.A., Vasa, R.A., Riddle, M.A., Slomine, B.S., Salorio, C., Christensen, J., & Gerring, J. (in
press). New onset obsessive-compulsive symptoms in children and adolescents with severe traumatic
brain injury. Depression and Anxiety. 2007; 25 (5): 398-407.
19. Salorio, C.F., Slomine, B.S., Guerguerian, A.M., Christensen, J.R., White, J.R.M., Natale, J.E.,
Shaffner, D., Grados, M., Vasa, R.A., & Gerring, J.P. Intensive care unit variables and outcome after
pediatric traumatic brain injury: A retrospective study of survivors. Pediatric Critical Care Medicine,
2008; 9, 47-53.
20. Sesma, H.W., Slomine, B.S., Ding, R., McCarthy, M.L, & the CHAT Study Group. Executive
functioning in the first year after pediatric traumatic brain injury. Pediatrics. 2008; 121: e1686-1695.
21. Slomine, B.S., Eikenberg, J., Salorio, C.F., Suskauer, S., Trovato, M., Christensen, J.R. Preliminary
Evaluation of the Cognitive Linguistic Scale: A Measure to Assess Recovery in Inpatient Rehabilitation
following Pediatric Brain Injury. Journal of Head Trauma Rehabilitation, 2008, 23, 286-293.
22. Conklin, H. M., Salorio, C.F., Slomine, B.S. Working memory performance following pediatric traumatic
brain injury. Brain Injury. 2008: 22, 847-857.
23. Cole, W.R., Gerring, J.P., Gray, R.M., Vasa, R.A., Grados, M., Christensen, J.R., Slomine, B.S.
Prevalence of Aggressive Behaviour after Severe Paediatric Traumatic Brain Injury. Brain Injury. 2008:
12, 932-939.
24. Aitken, M.E., McCarthy, M.L., Slomine, B.S., Ding, R., Durbin, D., Jaffe, K.M., Paidas, C.N., Dorsch,
A.M., Christensen, J.R., MacKenzie, E.J., & Chat Study Group. Family burden following traumatic brain
injury in children. Pediatrics Electronic Pages. 2009: 123, 199-206.
C. Research Support. List selected ongoing or completed (during the last three years) research projects
(federal and non-federal support). Begin with the projects that are most relevant to the research
proposed in this application. Briefly indicate the overall goals of the projects and your role (e.g. PI, Co-
Investigator, Consultant) in the research project. Do not list award amounts or percent effort in projects.
Pending Therapeutic Hypothermia After Pediatric Cardiac Arrest: A Randomized Controlled Trial
(THAPCA). National Heart, Lung, and Blood Institute. Total Proposed Directs Costs:
$12,262,963. Funding is pending for first 18 months. Funding for subsequent 3 ½ years
dependent on enrollment in first 18 months. 10-20% effort for supervising administration
and data collect at the central outcome center at KKI for the 15 participating sites. (F.
Moler, PI)
PHS 398/2590 (Rev. 11/07) Page Continuation Format Page

Sarah Jane Brain Family State Lead Center of Excellence
For the state of
Massachusetts
Children's Hospital of Boston and Harvard Medical School
www.childrenshospital.org
REGION: Northeast CATEGORY OF CARE: Prevention (National Lead)
Program Director: David Mooney, MD, MPH Position Title: Assistant Professor of Surgery
Department: Department of Pediatrics
Address: Fegan 340 300 Longwood Avenue, Boston, MA 02115
Phone: 617‐355‐0535
Email: david.mooney@childrens.harvard.edu
Program Director: Mark Proctor, MD Position Title: Director
Department: Brain Injury Program
Address: 300 Longwood Avenue, Boston, MA 02115
Phone: 617‐355‐2403
Email: mark.proctor@childrens.harvard.edu
Level 1 Center(s): Boston, Worcester, Springfield, Lowell
Level 2 Center(s): Cambridge, Lawrence, Dedham
Level 3 Center(s): Brockton, New Bedford
Number of jobs PABI Grant creates in Massachusetts: 138
Budget Overview for State Lead Center
State Lead Center Management Sub‐total: $ 8,945,262
Category of Care Management Sub‐total: $ 4,315,115
Case Management Sub‐total: $ 11,438,008
State Lead Center Sub‐total: $ 24,730,384
Indirect Cost to Institution (20%): $ 4,946,077
Administrative Cost to SJBF (2%): $ 494,608
SUB‐TOTAL AMOUNT OF GRANT PROPOSAL: $ 30,171,069

Children's Hospital of Boston and Harvard Medical School Profile continued
Title/Description Sub‐total Amount for Grant
STATE LEAD CENTER MANAGEMENT
Program Director: $ 121,500
Program Director Assistant: $ 148,567
State Director: $ 495,223
Associate State Director: $ 214,597
State Epidemiologist: $ 330,149
State Epidemiologist Assistant: $ 148,567
State Scientific Investigation Research Coordinator: $ 280,626
State Scientific Investigation Research Assistant: $ 280,626
State Education/Training Coordinator (plus materials): $ 456,148
State General Counsel: $ 396,178
State IT Manager: $ 313,641
State Family Support Coordinator: $ 247,611
State Prevention/Awareness Coordinator: $ 247,611
State Acute Care Coordinator: $ 247,611
State Reintegration Coordinator: $ 247,611
State Adult Transition Coordinator: $ 247,611
State Mild TBI Coordinator: $ 247,611
State Mental Health Coordinator: $ 214,597
State Assistive/Emerging Technology Coordinator: $ 214,597
State Correctional System Coordinator: $ 214,597
State MISC Coordinator: $ 214,597
State Veterans Coordinator: $ 214,597
State Data Manager: $ 214,597
State Public Policy Manager: $ 247,611
State Community Relations Manager: $ 214,597
State Administrative Support: $ 891,401
Charity care: $ 489,109
Human Resources Support: $ 138,000
Training Support: $ 34,500
State Lead Center Office Space Cost: $ 470,034
State Lead Center Transportation/Travel: $ 129,600
State Lead Center Office Equipment/Communications: $ 197,500
State Lead Center Supplies: $ 151,624
Annual and Regional Conferences: $ 32,000
State Brain Injury Association Pediatric Programs: $ 122,277
STATE LEAD CENTER MANAGEMENT SUB‐TOTAL: $ 8,945,262

Children's Hospital of Boston and Harvard Medical School Profile continued
Title/Description Sub‐total Amount for Grant
CATEGORY OF CARE RESPONSIBILITY: Prevention (National Lead)
National Category Director: $ 486,000
National Category Epidemiologist: $ 405,000
National Category Education/Training Coordinator: $ 324,000
National Category Scientific Investigation Research: $ 324,000
National Category Additional (National Intentional Head Injury Prevention Coordinator; National
Unintentional Head Injury Prevention Coordinator; National non‐Traumatic Acquired Brain Injury
Prevention Coordinator): $ 972,000
Regional Category Director: $ 495,223
Regional Category Epidemiologist: $ 396,178
Regional Category Education/Training Coordinator: $ 330,149
Regional Category Scientific Investigation Research: $ 330,149
Regional Category Administrative Support: $ 594,267
Regional Category Office Space Cost: $ 212,273
Regional Category Transportation/Travel: $ 180,000
Regional Category Office Equipment/Communications: $ 43,400
Regional Category Supplies: $ 68,475
CATEGORY OF CARE SUB‐TOTAL: $ 4,315,115

Children's Hospital of Boston and Harvard Medical School Profile continued
Title/Description Sub‐total Amount for Grant
CASE MANAGEMENT RESPONSIBILITY
Level 1 Center Manager(s): $ 990,446
Level 1 Center Field Specialist(s): $ 792,356
Level 1 Center SJB Family Specialist(s): $ 579,4106
Level 1 Center Administrative Support: $ 891,401
Level 1 Office Space Cost: $ 77,035
Level 1 Transportation/Travel: $ 133,920
Level 1 Office Equipment/Communications: $ 117,200
Level 1 Supplies: $ 242,109
Level 2 Center Field Specialist(s): $ 396,178
Level 2 Center SJB Family Specialist(s): $ 1,448,527
Level 2 Transportation/Travel: $ 31,680
Level 2 Office Equipment/Communications: $ 39,900
Level 2 Supplies: $ 51,356
Level 3 Center SJB Family Specialist(s): $ 402,369
Level 3 Transportation/Travel: $ 7,020
Level 3 Office Equipment/Communications: $ 11,400
Level 3 Supplies: $ 11,005
CASE MANAGEMENT SUB‐TOTAL: $ 11,438,008
STATE LEAD CENTER SUB‐TOTAL: $ 24,730,384
INDIRECT COST TO INSTITUTION: $ 4,946,077
ADMINISTRATIVE FEE TO SJBF: $ 494,608
STATE LEAD CENTER SUB‐TOTAL: $ 30,171,069
TOTAL JOBS CREATED IN Massachusetts: 138

Date Updated: November 5, 2008
CURRICULUM VITAE
Name: David Patrick Mooney, M.D., M.P.H.
Office Address: Fegan 340
300 Longwood Avenue
Boston, MA 02115
617/ 355- 0535
Home Address: 135 Glen Road
Wellesley, MA 02481
781/237-2338
Email: david.mooney@childrens.harvard.edu
Education:
2006 M.P.H. Harvard University School of Public Health
1981- 1985 M.D. St. Louis University School of Medicine
1977- 1980 A.B. St. Louis University
Postdoctoral Training:
1991- 1993 Resident Pediatric Surgery Children's Mercy Hospital
Kansas City, Missouri
1987- 1988 Fellow Surgical Immunology University of Vermont
Burlington, Vermont
1988- 1991 Resident General Surgery Medical Center Hospital of
Vermont, Burlington, Vermont
1986- 1987 Resident General Surgery Medical Center Hospital of
Vermont, Burlington, Vermont
1985- 1986 Intern General Surgery Medical Center Hospital of
Vermont, Burlington, Vermont
Licensure and Certification:
1990 Vermont Medical License
1993 New Hampshire Medical License
1995 Massachusetts Medical License
1993, 2002 American Board of Surgery, General Surgery
1996, 2003 American Board of Surgery
Special Qualifications in Pediatric Surgery
1994- Advanced Cardiac Life Support, Provider
1993- Advanced Trauma Life Support, Instructor
1996-1999 Course Director
1995-1999 Advanced Pediatric Life Support Course Director
1993- Pediatric Advanced Life Support-Instructor
1997-1999 New England Regional Faculty
1

Academic Appointment:
1999- Assistant Professor of Surgery Harvard Medical School
Administrative Responsibilities:
1995-1999 Coordinator, Surgical Grand Rounds Dartmouth Medical School
1999- Director, Trauma Program Children’s Hospital Boston
Committee Assignments at Children’s Hospital Boston:
1999- Chair Trauma Performance Improvement
1999-03 Co-Chair Code Triage Committee
2000- Member Surgical Clinical Practice Committee
2000- Member Committee on Clinical Investigation (IRB)
2002- Member Pharmacy and Therapeutics Committee
2003- Member Emergency Management Steering Committee
2004- Member Community Advisory Board
2005- Member Resuscitation Review Committee
2005- Member CHAMPS Computerized Medical Record
2006- Member Consult Policy Committee
2006- Member Informed Consent Process Review
2007- Member Residency Orientation Committee
2007- Member SBAR Committee
2008- Member PPSQ: Information Technology Committee
Strategic Mapping Committee
OR/PACU Admissions Forum
ICU Admission Forum
Regional:
1997-99 Advisory Board, New Hampshire Crash Emer. Medical Services Bureau
Outcome Data Evaluation System Grant New Hampshire State Gov.
1996-1999 New Hampshire Medical Control Board Health and Human Services
New Hampshire State Gov.
1996-1999 Chair, Committee on Trauma New Hampshire Chapter
American College of Surgeons
1998-1999 State Trauma System Site Visitor Emer. Medical Services Bureau
New Hampshire State Gov.
2000- Pediatric Resources Group Office of Emer. Med. Services
Emer. Medical Services for Children Massachusetts State Gov.
2000-4 Member Massachusetts State Trauma
Committee
2000-2006 Board of Directors Metropolitan Boston
Emerg. Medical Services, Inc.
2001- Committee on Trauma Massachusetts Chapter
American College of Surgeons
Regional Committees (continued):
2

2001- Member, Advisory Committee Harvard Injury Control Center
2006- Member Massachusetts Injury Community
Planning Group
2005-7 Member Scientific Steering Committee
Seat Belt Use Investigation
Boston University
2006- Member, Advisory Board Fire Safe Massachusetts
2007- Member New Massachusetts State
Trauma Committee
National:
1997- Pediatric Site Visitor Verification Review Committee
American College of Surgeons
1998 Grant Reviewer Maternal Child Health Bureau
Em. Med. Services for Children
2000 Pelvic Fracture Outcome Study APSA Trauma Committee
2000- Pediatric Site Reviewer PA Trauma Systems Foundation
2000 Invited Discussant National Pedi Trauma Registry
Maternal Child Health Bureau
2000- Active Member Committee on Trauma
American College of Surgeons
2001- Pediatric Subcommittee Committee on Trauma
American College of Surgeons
2001-03 Resources ad hoc Subcommittee Committee on Trauma
American College of Surgeons
2003- Pediatric Trauma Systems Consultant National Resource Center
Emer Med Services for Children
2004- Member Verification Review Committee
Committee on Trauma
American College of Surgeons
2004 American College of Surgeons’ Liaison Committee on Pedi Emerg. Med.
American Academy of Pediatrics
2004-6 Vice Chair Trauma Committee
Amer. Pediatric Surgical Assoc.
2005- Member, PFC Stakeholders Group Emergency Medical Services for
Children
2006-8 Scientific Reviewer EMSC Pediatric Sedation Panel
2006- Advisory Board Member Kiwanis Pediatric Trauma
Registry
2006-8 Chair Trauma Committee
Amer. Pediatric Surgical Assoc.
2007 Member, Pediatric Trauma Systems Emergency Medical Services for
Outcomes Study Design Panel Children
Professional Societies:
1993- American Academy of Pediatrics
3

Section on Surgery Member
1994- American College of Surgeons Fellow
1996- American Pediatric Surgical Assoc. Member
1998- Eastern Assoc. for the Surgery of Trauma Member
1999- Massachusetts Medical Society Member
1999- American College of Surgeons
Massachusetts Chapter Member
1999- Boston Surgical Society Member
2004- American Academy of Pediatrics
Section on Epidemiology Member
2005- New England Surgical Society Member
2008- American Academy of Pediatrics
Section on Injury, Violence Member
and Poison Prevention
Narrative Report:
I am a full time pediatric surgeon with a particular research and clinical interest in the field
of childhood injury. Injury remains the number one health problem facing children in our
nation, each year responsible for more deaths and disabilities than all other causes
combined. The components of my practice, which deal with pediatric injury, include
clinical care, research, teaching and injury prevention.
As the Director of the Trauma Program at Children’s Hospital Boston, I oversee the
activities of one of the nation’s busiest pediatric trauma clinical services. I am responsible
for the clinical care provided to trauma patients in every area in the institution and regularly
analyze each element of their care to disclose areas of potential improvement. Records on
nearly 1,000 injured children per year are reviewed. I provide the direct care to patients
with multiple injuries or those with injuries typically cared for by general surgeons.
I conduct a number of research projects, all directed toward finding the best ways to care for
injured children. I have developed a unique population-based childhood injury dataset, the
New England Pediatric Dataset. Analysis of this resource has disclosed variation in the
management of children with splenic injuries in northern New England, depending upon the
training of the treating physician. Further analysis of this dataset has demonstrated marked
changes in the management of injured children over the past decade, and its contents will be
used to direct future pediatric trauma system development.
I have served as the Chair of the Trauma Committee of the American Pediatric Surgical
Association for the past 2 years and have directed the metamorphosis of that group into a
multi-center study group focused on pediatric injuries and their management. In the first
study, data from 20 Children’s hospitals is being accrued and a second study is currently in
the design phase.
I participate in teaching on a daily basis. All of my patient care is done in conjunction with
pediatric surgical fellows, housestaff and medical students. This is done in the Emergency
Department, patient bedside and in the operating room. In addition, I actively participate in
educational programs for community physicians, nurses, and paramedics. I conduct a series
of multidisciplinary trauma simulation sessions to provide crisis resource management
education to our hospital’s trauma care providers.
Injury prevention efforts are done in cooperation with the Community Benefits Department
of the Children’s Hospital Boston and the development and dissemination of injury
prevention materials to the public. A study of childhood injury in the city of Boston is
4

underway to best direct prevention efforts. Also, I routinely provide public information
concerning childhood injury and its prevention to the media.
Central nervous system injury is the primary etiology of death in injured children and
current management techniques have little effect. I have spearheaded the development of a
Brain Trauma Program at Children’s Hospital Boston to optimize the management of these
children though an evidence-based plan of care, translational research into new
management strategies, education concerning their care and a directed prevention program.
In addition, participate in several local, regional and national committees related to
childhood injury. Local committees include the Board of Directors of the Boston
Metropolitan Emergency Medical Services and its Trauma Subcommittee. Regional
committees include the Massachusetts State Trauma Committee and the Committee on
Trauma of the Massachusetts chapter of the American College of Surgeons. National
committees include the Committee on Trauma of the American College of Surgeons.
Other Duties:
1987-2002 U.S. Army Medical Reserves Major (ret.)
2002- National Disaster Medical System
International Med/Surg Response Team Member
Pediatric Surgical Team-1 Member
2008 Operation Smile/Partners in Health Surgeon
Henche, Haiti
Editorial Boards:
1995 Reviewer Current Surgery
2000- Reviewer Journal of Pediatric Surgery
2000- Reviewer Annals of Emergency Medicine
2003- Reviewer Pediatric Emergency Care
2004- Reviewer Journal of Trauma
2004- Reviewer Pediatrics
2005- Reviewer Journal of the Am. Med. Assoc.
2005- Reviewer Journal of the Am. Coll. Surg.
2005- Reviewer New England Journal of Med.
2007- Section Editor Up to Date
Research Funding:
1994-1996 Maternal Child Health Bureau Co-PI Special Kids Emergency
$150,000/year for 2 years Information Project
1995-1997 Quechee Lakes Landowners Assoc. PI Effect of Ketorolac on
$1,000 Pediatric Postoperative Pain
1996-1998 Maternal Child Health Bureau Co-PI Pediatric Traumatic
$150,000/year for 2 years Brain Injury Toolkit for
Families
1996-1997 Hitchcock Foundation Co-PI An Assessment Protocol
$6,460 for Predicting Pedi PTSD
1997-1999 Maternal Child Health Bureau PI Implementation of The N.H.
5

$75,400/yr. Pediatric Trauma Plan
1997-1998 Department of Surgery PI The New England Pediatric
Dartmouth Medical School Trauma Dataset
$1,100
1998-1999 Hitchcock Foundation PI The New England Pediatric
$1,000 Trauma Dataset
1999 Harmes’ Surgical Scholar Award PI The New England Pediatric
$17,400/year for 3 years Trauma Dataset
2002-7 Robert Wood Johnson Foundation PI Injury Free Coalition Boston
$150,000/year
2002 Massachusetts Charitable Society PI Injury Free Coalition Boston
$15,000
2003 Mass. Charitable Fire Society PI Injury Free Coalition Boston
$24,500
2004 American Trauma Society PI Safer Homes Program
$10,000
2006-8 Private Fundraising PI Children’s CNS Injury Center
$125,000
2007-8 Private Fundraising PI Children’s CNS Injury Center
$62,500
2007-8 Corporate Fundraising PI Children’s Brain Injury Program
$~84,000
2008-2009 Corporate Fundraising PI Children’s Brain Injury Program
$~111,000
Book Chapters:
1. Garcia V. and Mooney DP, Thoracic Injury. In "Operative Pediatric Surgery", Azizkjan
R, Weber T and Ziegler M (eds), McGraw-Hill, New York, NY.
2. Eichelberger M and Mooney DP, Abdominal Injury. In "Operative Pediatric Surgery",
Azizkjan R, Weber T and Ziegler M (eds), McGraw-Hill, New York, NY.
3. Vitale M and Mooney DP. Long-term Outcome in Injured Children. In "Pediatric
Trauma: Pathophysiology, Diagnosis, and Treatment" Wesson D, Cooper A, Scherer T,
Tuggle D and Stylianos S, (eds), Marcel Dekker, (in press).
4. Mooney DP. Multiple Trauma-Solid Spleen and Liver Injury, In: Current Opinion in
Pediatrics. M. Ziegler (ed), 2002.
5. Waltzman ML and Mooney DP. Major Trauma. In: Emergency Medicine. Fleisher G
etal, Lippincott Williams and Williams, Philadelphia, PA, 2006.
6. Mooney DP. Approach to the Pediatric Trauma Patient, In: Pediatric Surgery. Oldham K
etal, Lippincott Williams and Williams, Philadelphia, PA, 2005.
Journal Articles:
1. Weber TR, Lewis JE, Mooney DP, Connors RH. Duodenal atresia: a comparison
of techniques of repair. J Pediatric Surgery 1986;21:1133-6.
6

2. Mooney DP, Lewis JE, Connors RH, Weber TR. Newborn duodenal atresia: an
improving outlook. American J Surgery 1987;153:347-9.
3. Mooney DP, Gamelli RL, O'Reilly M, Hebert JC. Recombinant human
granulocyte colony-stimulating factor and Pseudomonas burn wound sepsis.
Archives of Surgery 1988;123:1353-7.
4. Mooney DP, O'Reilly M, Gamelli RL. Tumor necrosis factor and wound healing.
Annals of Surgery 1990;211:124-9.
5. Mooney DP, Gamelli RL. Sepsis following thermal injury. Comprehensive
Therapy 1989;15:22-9.
6. Bailey PV, Tracy TF Jr, Connors RH, Mooney DP, Lewis JE, Weber TR.
Congenital duodenal obstruction: a 32-year review. J Pediatr Surgery 1993;28:92-95.
7. Mooney DP, Snyder CL, Holder TL. An absent left superior vena cava and
persistent right superior vena cava in an infant requiring extracorporeal membrane
oxygenation. J Pediatr Surgery 1993;28:1633-1634.
8. Dowd MD, Fitzmaurice L, Knapp JF, Mooney DP. The Interpretation of
Urogenital Findings in Children with Straddle Injuries. J Pediatr Surgery
1994;29:7-10.
9. Malcynski JT, Shorter NA, Mooney DP. The Proximal Mesenteric Flap: A method
for closing large mesenteric defects in jejunal atresia. J Pediatr Surgery
1994;29:1607-1608.
10. Shorter NA, Mooney DP. At 18 weeks gestation an otherwise normal boy was
found, through routine ultrasonography, to have an abdominal cystic mass
(letter). J Pediatr Surgery 1995;31:1632-1633.
11. Mooney DP, Sargent SK, Pluta D, Mazurek P. Spiral CT: use in the evaluation of
chest masses in the critically ill neonate. Pediatric Radiology 1996;26:15-18.
12. Mooney DP, Malcynski J, Gupta R, Shorter NA. An unusual case of penetrating
cardiac injury in a child. J Pediatric Surgery 1996;31:707-708.
13. Mooney DP, Steinthorrson G, Shorter NA. Perinatal Intussusception in
Premature Infants. J Pediatric Surgery 1996;31:695-697.
14. Curtis M, Mooney DP, Vaccaro T, Williams JC, Cendron M, Shorter NA,
Sargent SK. Prenatal Ultrasound Characterization of the Suprarenal Mass: The
Distinction between Neuroblastoma and Subdiaphragmatic Extralobar
Pulmonary Sequestration. J Ultrasound in Medicine 1997;16:75-83.
15. Shorter NA, Jensen PE, Harmon BJ, Mooney DP. Skiing Injuries in Children and
Adolescents. J Trauma 1996;40:997-1001.
16. Shorter NA, Weninghaus K, Mooney DP, Harmon BJ, Graham A. Furuncular
Ceterebrid Myiasis. J Pediatr Surgery 1997;32:1511.
17. Shorter NA, Mooney DP, Harmon BJ. Modifications of Bishop's Method for
Pediatric Gastrostomy Closure. American Surgeon 1997;63:559-560.
18. Shorter NA, Thompson MD, Mooney DP, Modlin JF. Surgical Aspects of an
Outbreak of Yersinia Enterocolitis. Pediatric Surgery International 1998;13:2-5.
19. Mooney DP, Shorter NA. Slipping Rib Syndrome in Childhood J Pediatric
Surgery 1998;32:1081-1082.
Journal Articles (continued):
20. Mooney DP, Birkmeyer NJO, Udell JV, Shorter NA. Variation in the
Management of Pediatric Splenic Injuries in New Hampshire. J Pediatric Surgery
1998;33:1076-1080.
7

21. Liu J, Shorter NA, Mooney DP. Teenage Driving Fatalities. J Pediatric Surgery
1998; 33:1088-9.
22. Shorter NA, Mooney DP, Harmon BJ. Snowboarding Injuries in Children and
Adolescents. American Journal of Emergency Medicine 1999;117:261-3.
23. Henderson EL, Mooney DP, Birkmeyer NJO, Udell JV, Shorter NA. Variation in
the Management of Pediatric Splenic Injuries in Northern New England. J
Surgical Outcomes 1999;1:41-44.
24. Shorter NA, Liu J, Mooney DP, Harmon BJ. Indomethacin-Associated Bowel
Perforations A Study of Risk Factors. J Pediatric Surgery 1999; 34:442-4.
25. Shorter NA, Mooney DP, Harmon BJ. Childhood Sledding Injuries. American
Journal of Emergency Medicine 1999; 17:32-4.
26. Deans K, Mooney DP, Meyer MM, Shorter NA. Prolonged Prenatal Exposure to
Amniotic Fluid Does Not Result in Intestinal Peel Formation in Gastroschisis. J
Pediatr Surg 1999: 34:975-6.
27. Daviss WB, Mooney DP, Racusin R, Ford J, Fleischer A, McHugo GJ.
Predicting post-traumatic stress after hospitalization for pediatric injury,
J Amer Acad Child and Adol Psychiatry 2000; 39:5, 569-75.
28. Daviss WB, Racusin R, Fleischman A, Mooney DP, Ford J, McHugo. Acute
stress disorder symptomatology during hospitalization for pediatric injury,
J Amer Acad Child and Adol Psychiatry 2000; 39:576-83.
29. Sargent SK, Foote SL, Mooney DP, Shorter NA. The Posterior Approach to
Pyloric Sonography, Pediatric Radiology 2000; 30:256-7.
30. Shorter NA, Mooney DP, Vaccaro TJ, Sargent SK. Hydrostatic Balloon Dilation of
Congenital Esophageal Stenoses Associated with Esophageal Atresia. J Pediatr Surg
2000; 12:1742-1745.
31. Puder M, Mooney DP. Hepatic Exstrophy. J Pediatric Surg 2002; 37:1203-1204.
32. Walsh BM, Mooney DP, Bailey MC. Severe Penetrating Trauma in the First Year of
Life. Pediatrics (in press).
33. McDonald J, Mooney DP. Hypokalemia in Pediatric Trauma Patients, a Benign
Laboratory Abnormality, J Trauma 54(1):197, 2003.
34. Mooney DP. Kids and Complications – What You Need to Know. PanAmerican
Journal of Trauma 2004; 11(1):17-19.
35. Mooney DP, Forbes P. Trends in Pediatric Trauma Care in New England J Trauma
2004; 57(6):1241-1245.
36. Mooney DP, Forbes P. Variation in the Management of Pediatric Splenic Injuries in
New England, J Trauma 2004; 56(2):328-333.
37. Leinwand M, Atkinson C, Mooney DP. Application of the APSA Evidence based
Guidelines for Isolated Liver or Splenic Injury: A Single Institution Experience, J Ped
Surg 2004; 39(3): 487-490.
38. Zahir US, Ward VL, Mooney DP etal. Congenital Adrenocortical Adenoma. Ped
Radiology 2004; 34(12)991-4.
Journal Articles (continued):
39. Mooney DP, Downard CD, Johnson S, Atkinson C, Forbes P, Taylor GW.
Physiologic Status following isolated Pediatric Splenic Injury Correlates with
Computerized Tomographic Injury Grading J Trauma 2005; 58(1):108-111.
8

40. Waltzman M, Baskin M, Wypij D, Mooney DP etal. Randomized Trial of the
Management of Esophageal Coins in Children. Pediatrics 2005; 116 614-619.
41. Holmes JH, Wiebe DJ, Tataria M, Mattix KD, Mooney DP etal. The Failure of
Nonoperative Management in Pediatric Solid Organ Injury: A Multi-institutional
Experience. J Trauma 2005; 59, 1309-1313.
42. Capraro AJ, Mooney DP, Waltzman ML. The Use of Routine Laboratory Studies as
Screening Tools in Pediatric Abdominal Trauma. Ped Emerg Care 2006; 22(7), 1-5.
43. Mooney DP, Rothstein DH, Forbes PW. Variation in the Management of Pediatric
Splenic Injuries in the United States. J Trauma 2006; 61(2):330-333.
44. Flood RG and Mooney DP. Rate and Prediction of Traumatic Injuries Detected by
Abdominal Computed Tomography Scan in Intubated Children. J Trauma 2006;
61(2):340-345.
45. Ban KM, Mannelli F, Messineo A, Frassineti M, Barkin R, Mooney DP, et al.
Building a trauma center and system in Tuscany, Italy. Intern Emerg Med 2006; 1(4):
302-4.
46. Mattix KD, Tataria M, Holmes J, Kristoffersen K, Brown R, Groner J, Scaife E,
Mooney D etal. Pediatric pancreatic trauma: Predictors of nonoperative management
failure and associated outcomes. J Ped Surg 2007; 42(2): 340-344.
47. Gutweiler JR and Mooney DP. Pediatric trauma care: a profitable enterprise? J Ped
Surg 2007; 42(6): 1043-5.
48. Kristoffersen KW and Mooney DP. Long-term outcome of nonoperative pediatric
splenic injury management. J Ped Surg 2007; 42(6): 1038-41.
49. Tataria M, Nance ML, Holmes JH, Miller CC, Mattix KD, Brown RL, Scherer LR,
Mooney DP etal. Pediatric blunt abdominal injury: age is irrelevant and delayed
operation is not detrimental. J Trauma 2007; 63(3): 608-614.
50. Mace SE, Brown LA, Francis L, Godwin SA, Hahn SA, Howard PK, Kennedy RM,
Mooney DP, etal. EMSC Panel on Critical Issues in the Sedation of Pediatric Patients
in the Emergency Department. J Emerg Nurs 2008; 34(3): e33-107.
51. Mace SE, Brown LA, Francis L, Godwin SA, Hahn SA, Howard PK, Kennedy RM,
Mooney DP, etal. EMSC Panel on Critical Issues in the Sedation of Pediatric Patients
in the Emergency Department. Ann Emerg Med 20008; 51(4): 378-99.
Abstracts:
1. Silver GM, O'Reilly M, Mooney DP, Gamelli RL: The beneficial effect of
Granulocyte Colony-Stimulating Factor (G-CSF) in combination with Gentamicin
upon survival following Pseudomonas burn wound infection. Society of University
Surgeons, Baltimore, MD, Feb, 1989.
2. Bailey P, Mooney DP, Lewis E, Connors R, Tracy A., Weber T: Congenital duodenal
obstruction: a 32 year review. World Pediatric Surgical Society, Toronto, Ontario,
1989.
Abstracts (continued):
3. Shorter NA, Jensen PE, Harmon BJ, Mooney DP: Pediatric Skiing Injuries. British
Association of Pediatric Surgeons, Sheffield, England, 1995.
4. Mooney DP, Shorter NA: Slipping Rib Syndrome in Childhood. American Academy
of Pediatrics Surgical Section, Boston, MA, October, 1996.
9

5. Mooney DP, Udell JV, Shorter NA: Variation in Management of Pediatric Splenic
Injuries, American Academy of Pediatrics Surgical Section, New Orleans, LA,
October, 1997.
6 Liu J, Shorter NA, Mooney DP: Fatal Adolescent Motor Vehicle Accidents in a
Rural State, American Academy of Pediatrics Surgical Section, New Orleans, LA,
October, 1997.
7. Henderson EL, Mooney DP, Birkmeyer NJO, etal: Variation in the Management of
Pediatric Splenic Injuries in Northern New England. Winner, Clinical Section,
American College of Surgeons Comm. on Trauma Region I, Resident Trauma
Research Competition, Boston, MA, Dec. 1997.
8. Henderson EL, Mooney DP, Birkmeyer NJO, etal: Variation in the Management of
Pediatric Splenic Injuries in Northern New England. National Winner, Clinical
Section, American College of Surgeons Comm. on Trauma, Resident Trauma
Research Competition, Chicago, IL, Mar. 1998.
9. Mooney DP, Daviss WB, Racusin WR, etal: The Development of a Screening Tool
for Post-Traumatic Stress Disorder among Children, American Academy of Pediatrics
Surgical Section, San Francisco, CA, October, 1998.
10. Johnson S, Mooney DP. Coagulopathy following brain injury. Presented at the
Massachusetts Chapter of the American College of Surgeons Committee on Trauma
Resident Research Competition, Boston, MA, 1999.
11. Walsh B, Mooney DP, DiScala C, Bailey MC. Significant penetrating injuries in
infants. American Academy of Pediatrics, Emergency Medicine Section, Boston, MA,
May, 2000.
12. Bailey MC, DiScala C, Mooney DP. Injuries in children under 1 year of age.
American Academy of Pediatrics, Emergency Med. Section, Boston, MA, May, 2000.
13. Walsh B, Atkinson C, Mooney DP. Utility of coagulation profiles in pediatric trauma.
American Academy of Pediatrics, Emergency Medicine Section, Boston, MA, May,
2000.
14. Johnson S, Atkinson C, Mooney DP. The value of prothrombin and activated
thromboplastin time assay in brain injured children. 5 th International Conference on
Pediatric Trauma, Vail, CO, June, 2000.
15. Johnson S, Atkinson C, Bailey MC, DiScala C, Mooney DP. Trauma in infancy. 5 th
International Conference on Pediatric Trauma, Vail, CO, June, 2000.
16. Johnson S, Atkinson C, Mooney DP. Trends in pediatric trauma care in New England.
5 th International Conference on Pediatric Trauma, Vail, CO, June, 2000.
17. Mooney DP and Johnson S. Changing inpatient pediatric trauma care in New
England. Surgical Section, American Academy of Pediatrics, Chicago, IL, October,
2000.
Abstracts (continued):
18. Johnson S, Atkinson C, Taylor GA, Mooney DP. Hemodynamic status following
isolated pediatric splenic injury correlates with computerized tomographic injury
grade. Surgical Section, American Academy of Pediatrics, Chicago, IL, October,
2000.
10

19. Downard C and Mooney DP. Pediatric surgeons provide the majority of pediatric
injury care in New England. American Pediatric Surgical Association, Naples, FL,
May, 2001.
20. Downard C and Mooney DP. Prospectively determining the impact of proposed
volume and severity criteria upon pediatric trauma centers. Residents' Trauma
Research Competition, Committee on Trauma, American College of Surgeons, MA
State Competition, November, 2001.
21. Downard C and Mooney DP. Prospectively determining the impact of proposed
volume and severity criteria upon pediatric trauma centers. Residents' Trauma
Research Competition, Committee on Trauma, American College of Surgeons, MA
Region I Competition, December, 2001.
22. Downard C and Mooney DP. Prospectively determining the impact of proposed
volume and severity criteria upon pediatric trauma centers. American Pediatric
Surgical Association, Phoenix, AZ, May 2002.
23. Leinwand MJ, Atkinson CC, and Mooney DP. Application of the APSA evidencebased
guidelines for isolated liver or spleen injuries. Residents' Trauma Research
Competition, Committee on Trauma, American College of Surgeons, MA State
Competition Clinical Science winner, November, 2002.
24. Leinwand MJ, Atkinson CC, and Mooney DP. Application of the APSA evidencebased
guidelines for isolated liver or spleen injuries. Residents' Trauma Research
Competition, Committee on Trauma, American College of Surgeons, Region I
Competition, December, 2002.
25. Fuchs, JR, Kaehler N, and Mooney DP. The Impact of Surgical Approach on
Pyloromyotomy. American Pediatric Surgical Association, Fort Lauderdale, FL, May
2003.
26. Leinwand MJ, Atkinson CC, and Mooney DP. Application of the APSA evidencebased
guidelines for isolated liver or spleen injuries. American Pediatric Surgical
Association, Fort Lauderdale, FL, May, 2003.
27. Rothstein D, Forbes P, and Mooney DP. Variation in the management of pediatric
splenic injuries in the United States. Residents' Trauma Research Competition,
Committee on Trauma, American College of Surgeons, MA State Competition
Clinical Science Winner, November, 2003.
28. Rothstein D, Forbes P, and Mooney DP. Variation in the management of pediatric
splenic injuries in the United States. Residents' Trauma Research Competition,
Committee on Trauma, American College of Surgeons, Region 1 Competition,
November, 2003.
29. Waltzman ML, Baskin M, Wypij D, Mooney DP, etal. Randomized Trial of Two
Strategies for the Management of Esophageal Coins in Children, Society for
Pediatric Research, San Francisco, CA, May, 2004.
Abstracts (continued):
30. Capraro M, Waltzman ML, Taylor GA, Mooney DP, Shannon M. Utility of routine
trauma labs in the evaluation of pediatric abdominal trauma in the age of CT, Society
for Pediatric Research, San Francisco, CA, May, 2004.
31. Mooney DP and Forbes P. The Use of Administrative Data to Determine Injury
Prevention Priorities, World Health Organization, Vienna, June, 04.
11

32. Djakovic A and Mooney DP. Five hundred consecutive solid organ injuries in
children. Residents’ Trauma Research Competition, Committee on Trauma, American
College of Surgeons, MA State Competition Clinical Science winner, Nov, 2004.
33. Djakovic A and Mooney DP. Five hundred consecutive solid organ injuries in
children. Residents’ Trauma Research Competition, Committee on Trauma, American
College of Surgeons, Region 1 Competition, November, 2004.
34. Ross J, Forbes P, Mooney DP. Establishing a new baseline: National pediatric trauma
epidemiology. American Public Health Association, Washington, D.C., December,
2004.
35. Rothstein D, Forbes P, Mooney DP. Variation in the Management of Pediatric
Splenic Injuries in the United States. American Public Health Association,
Washington, D.C., December, 2004.
36. Djakovic A and Mooney DP. Five hundred consecutive solid organ injuries in
children. 24 th International Pediatric Surgical Symposium, Obergurgl, Austria,
January, 2005.
37. Tataria M, Nance ML, Holmes JH, Miller CC, Mattix KD, Brown RL, Scherer LR,
38. Mooney DP etal. Pediatric blunt abdominal injury: age is irrelevant and delayed
operation is not detrimental. American Association for the Surgery of Trauma,
Atlanta, GA, September, 2005.
39. Gutweiler J and Mooney DP. Pediatric trauma care, a profitable enterprise?
Residents’ Trauma Research Competition, Committee on Trauma, American College
of Surgeons, MA State Competition, November, 2005.
40. Fleegler EW, Lee LK, Forbes PW, Mooney DP. Million Dollar Zip Codes: A Spatial
Analysis of Pediatric Injury Care. Pediatric Academic Society, San Francisco, CA,
May, 2006.
41. Lee LK, Forbes PW, Fleeger EW, Olson K, and Mooney DP. The New Pediatric
Pyramid of Injury. Pediatric Academic Society, San Francisco, CA, May, 2006.
42. Gutweiler JR and Mooney DP. Pediatric Trauma Care: A Profitable Enterprise?
Surgical Section of the American Academy of Pediatrics, Atlanta, GA, October, 2006.
43. Mattix KD, Tataria M, Holmes J, Kristoffersen K, Brown R, Groner J, Scaife E,
Mooney D etal. Pediatric pancreatic trauma: Predictors of nonoperative management
failure and associated outcomes. British Association of Pediatric Surgery, Stockholm,
Sweden, July, 2006.
44. Kristoffersen K and Mooney DP. Long term outcome of nonoperative management of
pediatric splenic injuries. Surgical Section of the American Academy of Pediatrics,
Atlanta, GA, October, 2006.
45. Gutweiler J and Mooney DP. Pediatric trauma care, a profitable enterprise? Mass.
Chapter American College of Surgeons. Burlington, MA, November, 2006.
Abstracts (continued):
46. Gutweiler J, Kristoffersen K and Mooney DP. Long term outcome of nonoperative
management of pediatric splenic injuries. Resident trauma research competition,
Committee on Trauma, American College of Surgeons, MA State Competition,
November, 2006.
12

47. Kangas KK, Lee LK, Forbes P, Osganian SK, and Mooney DP. A home visitor
program for improving home safety in a low-income community. Injury Free
Coalition for Kids Annual Meeting, Ft. Lauderdale, FL, December 2006.
48. Gutweiler J, Mooney DP. The impact of trauma system development of pediatric
trauma care in New England. American College of Surgeons, MA State Competition,
November, 2007.
49. Gutweiler J, Mooney DP. A single institution series of 800 children with solid organ
injuries. American College of Surgeons, MA State Competition, November, 2008.
50. Gutweiler J, Mooney DP. A single institution series of 800 children with solid organ
injuries. Accepted for podium presentation, American Pediatric Surgical Association,
Puerto Rico, May, 2009.
Invited Presentations:
National Meetings:
1. American College of Surgeons Committee on Trauma Resident’s Research
Competition, Vermont Chapter, Burlington, VT, November, 1987.
2. American College of Surgeons Committee on Trauma Resident’s Research
Competition, Vermont Chapter, Burlington, VT, November, 1988.
3. Pediatric Surgery Resident’s Conference, Boston, MA, November, 1988.American
College of Surgeons Committee on Trauma Resident’s Research
Competition, Region 1 Finals, Boston, MA, January 1988.
4. American College of Surgeons Committee on Trauma Resident’s Research
Competition, National Finals, Nashville, TN, February 1988.
5. Seminar and Round Table Discussion, Genentech Corp., San Francisco, CA,
February 1988.
6. Seminar, Ethicon Corp., Somerville, NJ, May, 1988.
7. Surgical Infection Society, San Francisco, CA, May, 1988.
8. John H. Davis Society Scientific Session, Williston, VT, June 1989.
9. Scientific Session, American College of Surgeons Clinical Congress, Chicago, IL,
October, 1988.
11. Emergency Medical Services for Children Project Meeting, Washington, D.C.,
February 1995.
12. Emergency Medical Services for Children Project Meeting, Washington, D.C.
February 1996.
13. Surgical Section, American Academy of Pediatrics, Boston, MA, October, 1996
14. Surgical Section, American Academy of Pediatrics, New Orleans, LA, October,
1997.
15. Panel Discussant, American College of Surgeons Clinical Congress, Orlando, FL,
October, 1998.
Invited Presentations:
National Meetings (continued):
16. Surgical Section, American Academy of Pediatrics, San, Francisco, CA, October
1998.
17. National Congress on Childhood Emergencies, Washington, D.C. March, 2000.
18. Emergency Care of Children, Urgent to Emergent, Cambridge, MA, April, 2000.
13

19. Falmouth Regional Trauma Conference, Falmouth, MA, March, 2000.
20. Christiana Trauma Conference, Dover, DE, May, 2000.
21. Caritas Health Emergency Care Conference, Brighton, MA, May, 2000.
22. Pediatric Critical Care Colliqium, San Diego, CA, October 5, 2002.
23. World Congress on Pediatric Critical Care, Boston, MA, April, 2003.
24. Senior Author, APSA, Fort Lauderdale, FL, May 2003
25. Senior Author, APSA, Fort Lauderdale, FL, May 2003
26. Trauma Critical Care Point Counterpoint, Atlantic City, NJ, June, 2003.
27. Injury Free Coalition for Kids, Fort Lauderdale, FL, December, 2003.
28. American Trauma Society, Roslynn, VA, May, 2004.
29. Advances in Trauma Care, Kansas City, MO, December, 2007.
30. Society of Trauma Nurses, Las Vegas, NV, March, 2007.
31. American Academy of Pediatrics, Boston, MA, October, 2008.
Regional Conferences:
1. Southern N.H. Chapter, American Assoc. of Critical Care Nurses, November 1, 1993.
2. Challenges in Critical Care, Nashua, N.H., March 2, 1994.
3. Yours, Mine and Ours Conference, Cook Center, Dartmouth College, March 10, 1994.
4. North Country Consortium, Lincoln, NH, April 21, 1994.
5. Keynote address, Vermont School Nurses' Assoc., Manchester, V.T., May 6,1994.
6. Emergency Care Conference, Cook Center, Dartmouth College, September 9, 1994.
7. North Country Consortium, Plymouth, NH, September 21, 1994.
8. Challenges in Critical Care, Nashua, NH, March 1, 1995.
9. North Country Chapter, American Association of Critical Care Nurses, April 29, 1995.
10. Surgical Grand Rounds, Lahey-Hitchcock Clinic, Burlington, MA, September 6, 1995.
11. Issues in Trauma Care, Dartmouth-Hitchcock Medical Center, October 1995.
12. Current Trends in Pediatrics Conference, Waterville Valley, N.H., February 29, 1996
13. Yours, Mine and Ours Conference, Woodstock Inn, Woodstock, VT, March 7, 1996.
14. Vermont EMS Conference, Burlington, VT, April 13, 1996.
15. Pediatrics Conference, Eastern Maine Medical Center, Bangor, ME, January 15, 1997.
16. New England Regional Trauma Conference, Burlington, MA, November 7, 1997.
17. Concord Hospital Trauma Conference, Concord, NH, November 13, 1997.
18. New England Regional Trauma Conference, Burlington, MA, December, 1998.
19. New England Regional Trauma Conference. Panel Member, Burlington, MA Dec.,
1999.
20. Falmouth Trauma Conference, Falmouth, MA, March, 2000.
21. Emergency Medical Services for Children 2000, Baltimore, M.D., March, 2000.
22. Injuries to Children: From minor to major trauma, Boston, M.A., April, 2000.
Regional Conferences (continued):
23. Trauma Symposium 2000, Newark, DE, May, 2000.
24. Point/Counterpoint, Atlantic City, N.J., May, 2000.
25. New England Regional Trauma Conference, Burlington, MA, December, 2001.
26. Rhode Island Society for Resp. Care Annual Conference, Newport, RI, April 3, 2002.
27. Falmouth Trauma Conference, Falmouth, MA, March, 2002.
28. New England Spinal Cord Conference, Boston, MA, November, 2002
14

29. Kansas Trauma Conference, Wichita, KS, June, 2003.
30. Dartmouth Trauma Conference, Lebanon, NH, October, 2003.
31. New England EMS for Children Meeting, Newport, RI, November, 2003.
32. New England Regional Trauma Conference, Burlington, MA, November, 2003
33. New England Regional Trauma Conference, Burlington, MA, November, 2004.
34. Long Island Pediatric Trauma Conference, Long Island, NY, November, 2004.
35. New Hampshire Trauma Conference, Concord, NH, April, 2005.
36. Delaware Trauma Conference, Dover, DE, May, 2005.
37. VT Emergency Nurses’ Conference, Mt. Ascutney, VT, November, 2005.
38. Massachusetts General Hospital Trauma Conference, Boston, MA November, 2006.
39. Meyer Children’s Hospital, Florence, Italy, May, 2007.
40. Frontiers in Pediatrics, Waltham, MA, March, 2008.
41. Surgical Grand Rounds, Lawrence, MA, March, 2008.
42. Berkshire Trauma Conference, Pittsfield, MA, March, 2008
43. New Hampshire Trauma Conference, Manchester, NH, October, 2008.
44. New England Regional Trauma Conference, Worcester, MA, October, 2008.
45. Denver Trauma Conference, Aurora, CO, November, 2008.
46. Boston Med Flight Prehospital Conference, Burlington, MA, November, 2008
Media Interviews:
1. WMUR Television Interview, The NH Pediatric Trauma Plan, June 1997.
2. XL92 Radio Interview, Childhood Injury, December 1997.
3. WMUR Television Interview, Pediatric Trauma in NH, September 1998.
4. WCVB Television Interview regarding Post-Traumatic Stress Disorder October 1999.
5. Boston Herald Newspaper Interview regarding Scooter Injuries, October 2000.
6. Parent Magazine regarding Sledding Injuries, December 2000.
7. Television interview regarding scooter injuries, March 2002.
8. Television interview regarding driveway injuries, May 2003.
9. Television interview regarding mini-motorcycles, July 2004.
10. Television interview regarding school bus safety, CNN, April 2005.
11. Interview with Boston Globe regarding early childhood injuries, November, 2005.
12. Interview with Parent Magazine regarding car safety, November, 2005.
13. Interview with Child Magazine regarding ski safety, July, 2006.
14. Interview with Wall Street Journal regarding experimental therapies, August, 2006.
15. Parent magazine regarding the care of minor injuries, June, 2007.
16. Live interview with NESN at Red Sox game about brain injuries, July, 2007.
17. Interview with WBZN about sledding injuries, December, 2007.
Invited Paper Discussant:
Association for Academic Surgery, Philadelphia, PA, November, 1999.
Miscellaneous Pediatric Trauma Materials:
1995 CHaD Pediatric/Neonatal Resuscitation Card
1998 New Hampshire Pediatric Trauma Plan
15

1998 New Hampshire Pediatric Prehospital Emergency Care Guidelines
Posters for the Committee on Trauma of the American College of Surgeons
1998 Recognition of Physical Child Abuse
1999 Emergency Intravenous Access in Children
2002 Pocket pediatric resuscitation card
2002 Prehospital provider pediatric reference card
2002 Directed development of Cervical Spine Clearance Algorithm
Revised 2007
2002 Directed development of ECMO for Hypothermia Algorithm
2003 Directed development of Increased ICP Management Algorithm
2004-7 Assisted with re-writing the pediatric trauma chapter of the Resources for the
Optimal Care of the Injured Patient for the American College of Surgeons
16

Date Prepared: January 5, 2009
Name: Mark R. Proctor
Harvard Medical School/Harvard School of Dental Medicine
Format for the Curriculum Vitae
Office Address: 300 Longwood Avenue
Boston, MA 02115
Home Address: 470 Commonwealth Avenue
Newton, MA 02459
Work Phone: (617) 355-2403
Work E-Mail: mark.proctor@childrens.harvard.edu
Work FAX: (617) 730-0906
Place of Birth: New York, New York
Education
Year Degree Field of Study Institution
1986 BA French Dartmouth College
1990 MD Medicine Columbia University
College of Physicians and Surgeons
Postdoctoral Training
Year(s) Title Specialty/Discipline Institution
1990-1991 Intern General Surgery Columbia Presbyterian
Medical Center
1991-1996 Resident Neurosurgery Georgetown University
Medical Center
1992-1993 Resident Pediatric Neurosurgery Children’s National
Medical Center
1993 Resident Neurotrauma Shock Trauma Hospital,
University of Maryland
1995-1996 Research Pharmacology Fellow Georgetown University
School of Medicine
1996-1997 Chief Resident Neurosurgery Georgetown University
Medical Center
1997-1998 Fellow Pediatric Neurosurgery Children's Hospital
Boston
1

Faculty Academic Appointments
Year(s) Academic Title Department Academic Institution
1995-1997 Instructor Surgery Georgetown University
Medical Center
1998-2003 Instructor Surgery Harvard Medical School
2003- Assistant Professor Surgery Harvard Medical School
Appointments at Hospitals/Affiliated Institutions
Year(s) Position Title Department Institution
1997- Staff Physician Neurosurgery Children's Hospital Boston
1997- Staff Physician Neurosurgery Brigham and Women’s Hospital
1998- Staff Physician Neurosurgery Dana Farber Cancer Institute
Major Administrative Leadership Positions
• Group positions according to the following categories: Local, Regional, National and International
Year(s) Position Title Institution (note if specific department)
Local
2000- Associate Director of Children's Hospital Boston, Neurosurgery
Neurosurgery Resident Education
2000- Associate Director of Brigham and Women’s Hospital, Neurosurgery
Neurosurgery Resident Education
2001-2004 Admissions Committee Harvard Medical School
2002 Founder and Director Boston Chapter of ThinkFirst National Injury
Prevention Program
2004-2008 Course Director Sports-related Concussion and Spine Injury
Harvard Medical School
2004- Course Director 3 rd and 4 th year HMS Neurosurgery Rotation
2006- Co-founder and Co-director Brain Injury Program, Children’s Hospital Boston
2008- Founder and Faculty Advisor Cushing Neurosurgical Society Student Interest
Group
Harvard Medical School
2

Regional
2006- Vice President of Massachusetts Massachusetts Medical Society, Waltham, MA
Neurosurgical Society
National
2004-2007 Chairman of Efficacy Committee ThinkFirst National Injury Prevention Foundation
2005 Course Director for PC-06 Role of CNS Meeting Annual Meeting
Intraoperative MR in Neurosurgery
2007- Chairman-elect ThinkFirst National Injury Prevention Foundation
2007 Membership Chair Pediatric Section of the AANS/CNS
Committee Service
• Group positions according to the following categories: Local, Regional, National and International
Year(s) of Membership Name of Committee Institution/Organization
Dates of Role #1 Title of Role #1
Local
1998- Trauma Executive Committee Children's Hospital Boston
2005 Co-founder, Brain Injury Program and Clinic
2001- Co-Founder, CUB Clinic for the Children's Hospital Boston
multidisciplinary treatment
of bowel and bladder disorders
2002- Boston Chapter ThinkFirst National Injury
Prevention Foundation
2002- Sponsoring Surgeon
2006- Laser Safety Committee Children's Hospital Boston
2006- Chairman
2006- Boston Pediatric Neurosurgery Foundation
2006- Treasurer
2007- Graduate Medical Education Children's Hospital Boston
Committee
National
2002- Board of Directors ThinkFirst National Injury
Prevention Foundation
2004 Chair of Efficacy Committee
2007 Chairman-Elect of the Board
2002- Executive Committee CNS
2004-2007 Annual Meeting Scientific CNS
Committee
3

2005- Executive Committee Pediatric Section of the
AANS/CNS
2008- Steering Committee CDC Best Practice Guidelines
for diagnosis, treatment and
Management of
Craniosynostosis
Professional Societies
Year(s) of Membership Society Name
Dates of Role #1 Title of Role #1
1986- American Medical Association (AMA)
1993- Congress of Neurological Surgeons (CNS)
2002- Member, Executive Committee
2002- Liaison, ThinkFirst National Injury Prevention Foundation
2004-2007 Member, Scientific Program Committee, Annual Meeting
1993- American Association of Neurological Surgeons (AANS)
1998-2004 Member, Young Neurosurgeons Committee
2001-2004 Member, Education and Practice Management Committee
1995-2000 American Epilepsy Society
1996-2000 Society for Neuroscience
1998- Joint Section on Pediatrics of the AANS/CNS
2004- Member, Devices and Technology Committee
2007- Chairman, Membership Committee
1998- Joint Section of Trauma of the AANS/CNS
2000- American College of Sports Medicine
2000- Fellow
2003- American Society of Pediatric Neurosurgeons
2003- American Academy of Pediatrics
2003- Fellow
Editorial Activities
• Ad hoc Reviewer
o Journal of Neurosurgery
o Neurosurgery
o Spine
o British Journal of Sports Medicine
o New England Journal of Medicine
4

Honors and Prizes
Year Name of Honor/Prize Awarding Organization Achievement for which
awarded
1981 Summer Research Training Grant National Science Foundation/
Indiana University
1982 Scientific Scholarship Bausch & Lomb
1982 Regents Scholarship New York State
1982-1986 Daniel Webster Scholar Dartmouth College
1989-1990 Research Training Grant NIH
1990 Clinical Teaching Grant Faculte� de Me�decine
1995 Finalist, Clinical Research Georgetown University
Compensation
1995-1996 Dixon Woodbury Clinical/Research Epilepsy Foundation of America
Fellow
1997-1998 Shillito Fellow in Pediatric Children's Hospital Boston
Neurosurgery
2002 Community Child Health Fund Grant Children's Hospital Boston
to Institute Boston Chapter of ThinkFirst
2008 Elected to Teaching Academy Children's Hospital Boston
2008 $5000 Award for extraordinary Children's Hospital, Boston
Contribution
Report of Funded and Unfunded Projects
Funding Information
Past
2002-2003 PI Children's Community Health Fund
Founding of Boston Chapter of ThinkFirst National Injury Prevention Program.
Startup funds to initiate a Boston Chapter of ThinkFirst National Injury Prevention Program. We go to
local area schools to teach injury prevention.
Current
2007- PI Medtronic $1000 per enrolled patient
Prospective, non-randomized pediatric clinical study using the durepair dura regeneration matrix device
for the repair of dura mater defects.
Report of Local Teaching and Training
Teaching of Students in Courses
Georgetown University
1994-1996 Neuroanatomy
2 nd year medical students Lecturer 3-hr sessions per week for 8 weeks
Lab instructor
1995-1997 Diagnosis and Management of Neurotrauma
3 rd year medical students Lecturer 1 hr biweekly throughout year
5

1995-1997 Problem Based Learning
2 nd year medical students Facilitator 3-hr sessions per week for 6 weeks
Harvard Medical School
1999- Objective Structural Clinical Examinations
4 th year medical students Examiner 20-30 hours per year
2002-2005 Neuroscience course Lecturer 2 hours per week for 2 weeks
PhD students
Formal Teaching of Residents, Clinical Fellows and Research Fellows (post-docs)
2005- Lecturer/facilitator 3 hours per week
Run a weekly neurosurgery curriculum conference for all residents in program
Clinical Supervisory and Training Responsibilities
Georgetown University
1996-1997 Chief Resident 10-hrs per week for 1 year
Harvard Medical School
1997-1998 Ambulatory Neurosurgery Clinic 3 hours per week for 1 year
1998- Resident and Medical Student 20-hrs per week (surgery) & 4-8 hrs per week
Teaching, Academic Attending (clinic)
2000- Resident Education for 5 hours per week
Neurosurgery, Associate Director
2004- Medical Student Neurosurgery 3-4 hours per week
Rotations, Director
Formally Supervised Trainees
Year(s) Name and degrees Current position
Describe the type of supervision and the specific accomplishments of your trainee that occurred as a
direct result of your supervision (maximum one sentence)
Formal Teaching of Peers (e.g., CME and other continuing education courses)
Year(s) Title(s) or topic(s) of talk(s) Number of talks in single course
Course Name Location(s) (city or country) Sponsor/Source of Compensation
2000 The Changing Management of Single Presentation
Pediatric Trauma Severe Head Injury in Children None
Course Children’s
Hospital
6

2000 Pediatric Spine Injuries Single Presentation
Pediatric Trauma None
Course Children’s
Hospital
2002 Pediatric Head Injury Single Presentation
Pediatric Trauma None
Course, Childrens
Hospital
2003 The Silent Danger in Sports Single Presentation
Sports Concussion None
Conference, Boston
2004 Craniosynostosis Single Presentation
Childrens Hospital None
Frontiers in Surgery,
Bedford
2004 Sports-related spine injuries Single Presentation
HMS Sports None
Concussion and
Spine Injury Conference,
Boston
2005 Sports-related spine injuries Single Presentation
Harvard Medical None
School Sports-related
Concussion and
Spine Injury Conference,
Foxboro
2006-2008 Sports-related spine injuries Single Presentation
Harvard Medical Boston None
School Sports-related
Conference on
Concussion and
Spine Injury
Local Invited Presentations
Year(s) Title of presentation Type of presentation
Department and Institution where presented Sponsor/Source of compensation
1998 Management of Severe Head Injury Surgical Grand Rounds
in Children
Children's Hospital None
Boston
7

1999 Pediatric Tethered Cord Syndrome Grand Rounds
South Shore Hospital None
2000 Management of Severe Head Injury Surgical Grand Rounds
in Children's
Children's Hospital None
Boston
2001 Craniofacial Abnormalities in Grand Rounds
Children
Beverly Hospital None
2001 Management of Hydrocephalus Grand Rounds
and shunts
Department of None
Emergency Medicine,
Children's Hospital Boston
2002 Intracranial Hemorrhage Grand Rounds
Department of None
Emergency Medicine,
Children's Hospital Boston
2002 Pediatric Minor Traumatic Brain Community Lecture to School Nurses
Injuries
South Shore School None
Partnership for Health
2005 Mild Traumatic Brain Injury Community Education Initiative
Childrens Hospital in Children Lecture Series
Boston, MA None
2005 Comprehensive Surgical and Non- Keynote Lecture
surgical Techniques in the Treatment
of Deformational Plagiocephaly and
Craniosyntosis
Hanger Orthotics None
Braintree, MA
2005 Diagnosis and Treatment of Infant Pediatric Grand Rounds
Skull Deformities
Children's Hospital None
Boston
8

2006 Infant Skull Deformities Pediatric Grand Rounds
Caritas St. Elizabeth’s None
Medical Center
2006 Craniosynostosis Pediatric Grand Rounds
Lowell General Hospital None
2007 Contemporary Management of Anesthesia Grand Rounds
Pediatric Skull Deformity
Children's Hospital None
Boston
2007 Head Injury in Young Athletes- Marino Sports Medicine Symposium
Return to Play Criteria
Children's Hospital None
Boston
2008 Pediatric Minor Head Injury Pediatrics Grand Rounds
Children’s Hospital None
Boston
Report of Regional, National and International Invited Teaching and
Presentations
Regional, National and International Invited Presentations and Courses
• Group presentations according to the following categories: Regional, National and International:
Year Title of presentation or name of course Type of presentation/role(s) (note if abstract)
Location Sponsor/Source of compensation
Regional
1999 Prominent Basilar Emissary Veins in Single Presentation
Syndromic Craniosyntosis
CNS, Boston None
1999 The Role of Anthropometry in the Single Presentation
Treatment of Craniosyntosis
CNS, Boston None
2000 Sports-related Head Injuries Single Presentation
American College of Sports Medicine, Providence None
2000 Sports-related Cervical Spine Injuries Single Presentation
Providence None
2001 Pathophysiology of Concussion Single Presentation
American College of Sports Medicine, Providence None
9

2002 Invited faculty for the AANS Oral Two day course
Boards Review Course
Hartford None
2005 Neurotrauma Single Presentation
American Association of Operating Room None
Nurses Advances in Clinical Practice
2005 Craniosynostosis and Plagiocephaly Single Presentation
Easter Seals Pediatric Symposium, Portland None
2008 Pediatric Neurosurgery: State of the Art Single Presentation
Company Headquarters, Integra Neuroscience Integra Neuroscience
National
1998 The Effect of Surgery for Single Presentation
Diastermatomyelia on Neurologic and
Urologic Function
Neurological Surgery of the AANS, Indiana None
2000 The Effect of New Technologies on Single Presentation
Craniofacial Anomalies
CNS, San Antonio None
2000 Return to Play Criteria after Concussion Single Presentation
CNS, San Antonio None
2000 Management of Raised Intracranial Visiting Professor
Pressure after Trauma
North Shore University Hospital, New York None
2001 Pediatric Cervical Spine Injuries Single Presentation
CNS, San Diego None
2001 Biomechanics of Child Abuse Single Presentation
CNS, San Diego None
2001 Use of Intra-operative Magnetic Single Presentation
Resonance Imaging for Pediatric Brain
Tumors
Join Section on Pediatric Neurosurgery of None
AANS/CNS New York
2002 Catastrophic Cervical Spine Injury Single Presentation
American College of Sports Medicine, New Orleans None
10

2002 Management of Sports-related Concussion Single Presentation
American College of Sports Medicine, New Orleans None
2002 Pediatric Severe Head Injuries Single Presentation
Course on Pediatric Critical Care at CNS, None
Philadelphia
2002 Management of Craniofacial Disorders Single Presentation
CNS, Philadelphia None
2002 Craniofacial Reconstruction Single Presentation
Philadelphia None
2003 Invited faculty for the AANS Oral Two day course
Boards Review Course
Cincinnati None
2004 Course Moderator for Section of Single Presentation
Pediatric Neurosurgery, CNS Meeting, None
San Francisco
2004 Chair of Craniosynostosis Seminar Single Presentation
CNS Meeting, San Francisco None
2005 Pediatric Spinal Cord Tumors Single Presentation
AANS, New Orleans None
2006 Craniosynostosis Single Presentation
CNS Annual Meeting, Chicago None
2006 Course moderator Complex Pediatric Single Presentation
Spinal
Cord Anomalies, AANS Annual Meeting None
2007 Infant Skull Deformities Single (Keynote) Presentation
Hanger Orthotic and Prosthetic Annual Meeting, Hanger Orthotics
Reno, NV
2007 Development of the Pediatric Cervical Single Presentation
Spine
CNS Annual Meeting, San Diego None
2007 Craniosynostosis Single Presentation
CNS Annual Meeting, San Diego None
11

2007 MROR: The integration of Imaging and Single Presentation
Surgery Annual Meeting of the National
Association of Children’s
Hospitals and Related Institutions, San Antonio None
2008 Role of Endoscopy in the treatment of Single Presentation
Craniosynostosis
Controversies in the treatment of Craniofacial ImproMed
disorders, Phoenix, AZ
2008 Repair of Growing Skull fractures Single Presentation
Controversies in the treatment of Craniofacial ImproMed
disorders, Phoenix, AZ
International
2006 Lecturer on Head and spine injuries: Multiple Presentations
A Course in Pediatric Emergency
Medicine
Dubai, United Arab Emirates Dubai Ministry of Health
2008 The Role of Cranial Orthoses in the Single Presentation
Treatment of Deformational Plagiocephaly
American Society of Pediatric Neurosurgery, None
Cabo, Mexico
Report of Clinical Activities and Innovations
Current Licensure and Certification
Year Type of License or Certification
1991 National Board of Medical Examiners (Diplomate)
1992 District of Columbia (Medical License)
1993 Maryland (Medical License)
1997 Massachusetts (Medical License)
2001 American Board of Neurological Surgery (Diplomate)
2002 American Board of Pediatric Neurological Surgery (Diplomate)
Practice Activities
• List all clinical activities, both those at Harvard and its affiliates and those outside Harvard, and for
each indicate:
Type of activity Setting of practice Name and location of practice
Pediatric Neurosurgeon Children’s Hospital Boston Boston, MA
12

Clinical Innovations
I have been able to take advantage of Children’s tremendous resources to develop an active and complex
pediatric neurosurgery practice, and to become a leader in multi-disciplinary, collaborative clinical fields
linking neurosurgery with subspecialities throughout the hospital. The cross-functional clinical teams I
participate on have led to many clinical innovations which are changing care locally and nationally.
For Craniofacial surgery, we have developed and described multiple novel approaches:
• We have pioneered the use of particulate skull autograph to fill in cranial defects. This has been
published both for primary and secondary skull defects.
• I am one of the leading surgeons internationally on the minimally invasive endoscopic correction
of craniosynostosis, currently with over 100 patients. Aspects of this have been published,
including the marked effect endoscopic surgery has on ocular disorders in coronal synostosis, and
the major manuscripts describing the series are in preparation.
• We have also described a novel approach to dermoid tumors at the skull base, involving removal
of the nasal bones to achieve complete resection.
In spinal surgery, the orthopedic surgeons and I have described several clinical advances.
• We have published the largest series of modern spinal instrumentation in the cervical spine in
children, opening this field up to surgeons across the country. I am senior author on this
publication.
• We have a manuscript in submission describing a posterior lateral trans-pedicular approach to
correction of congenital spinal deformity in children with hemivertebrae, simplifying the
correction from two surgeries to a single procedure. We are the countries leader in this field and
have patients and surgeons coming to us from around the country to undergo and learn the
technique.
• I am senior author on a manuscript in submission describing the use of intraoperative bone scan
for the resection of spinal osteoid osteoma. We described the technique and currently have over 20
patients in the series. This will revolutionize the surgery for this disorder.
Report of Education of Patients and Service to the Community
Activities
2002- Sponsoring Physician ThinkFirst National Injury Prevention
Foundation
Started local chapter of ThinkFirst. With a local network of nurses and educators from Children’s
Hospital, we go out to schools to teach free end efficacy proven injury prevention programs to 1-3 rd
graders.
2002- Board of Directors ThinkFirst National Injury Prevention
Foundation
I was appointed to the board of directors of ThinkFirst as a liason from the Congress of Neurological
Surgeons in 2002. I have risen from liason Board member to full board member, Chair of Efficacy,
and currently Chairman-elect of the Board of Directors. ThinkFirst is the leading national brain and
spinal cord injury prevention foundation. We serve over 275 national chapters and are represented in
over 13 other countries, impacting over a million children per year.
13

Recognition
Year Name of award/recognition Organization conferring recognition
2005- Awarded Best Doctor in Neurosurgery Best Doctors
2004- Top Physicians in Neurosurgery Guide to America’s Top Physicians
Report of Scholarship
Publications
• Peer Reviewed Publications in print or other media
Research Investigations
1. Lustgarten J, Proctor M, Haroun R, Avellino A, Pindzola A, Kliot, M. Semipermeable polymer
tubes provide microenvironment for in vivo analysis of dorsal root regeneration, Journal of
Biomechanical Engineering, 1991; 113: 184-188.
2. Fornai F, Dybdal D, Proctor M, Gale K. Focal intracerebral elevation of L-lactate is anticonvulsant.
European Journal of Pharmacology, 1994; 254.
3. Proctor M, Fornai R, Afshar KJ, Gale, K. The role of nitric oxide in the propagation of limbic
seizures. Neuroscience, 1997; 76:4:1231-1236.
4. Robson CD, Mulliken JB, Robertson RL, Proctor M, Steinberger D, Barnes PD, McFarren A,
Muller U, Zurakowski D. Prominent basal emissary foramina in syndromic craniosynostosis:
correlation with phenotypic and molecular diagnosis. AJNR, 2000: 21(9): 1707-17.
5. Soriano SG, Cowan DB, Proctor M, Scott RM. Levels of soluble adhesion molecules are elevated
in the cerebrospinal fluid of children with Moyamoya syndrome. Neurosurg, 2002 50(3): 544-549.
Other Peer-reviewed publications
1. Nikas DC, Proctor M, Scott RM. Spontaneous thrombosis of vein of galen aneurysmal
malformation. Pediatric Neurosurgery, 1999;31:33-39.
2. Proctor M, Bauer SB, Scott RM. The effect of surgery for split spinal cord malformation on
neurologic and urologic function. Pediatric Neurosurgery, 2000; 32: 13-19.
3. Proctor M, Scott RM. Long term outcome for patients with split spinal cord malformation.
Neurosurgical Focus, 2000:10(1).
4. Rogers, GF, Proctor M, Mulliken JB. Unilateral fusion of the frontosphenoidal suture: a rare cause
of synostotic frontal plagiocephaly. Plastic and Reconstructive Surgery, 2002; 110(4): 1011-21.
5. Proctor, M. Spinal Cord Injury. Critical Care Medicine, 2002, 30(11), 489-499.
6. Rahbar, R, Shah, P, Mulliken JB, Robson CD, Perz-Atayde AR, Proctor MR, Kenna MA, Scott
RM, McGill TJ, Healy GB. The presentation and management of nasal dermoid. Arch
Otolarygolog, Head Neck Surg, 2003:129:464-471.
7. Ohaegbulam CO, Woodard E, Proctor M, Occipitocondylar hyperplasia: an unusual craniocervical
junction abnormality causing myelopathy. J. Neurosurgery, 2005, 104(4): 379-381.
8. Rogers GF, Proctor MR, Greene AK, Mulliken JB. Frontonasal osteotomy to facilitate removal of
an intracranial nasal dermoid. J Craniofac Surg. 2005 Jul;16(4):731-6.
9. Zimmerman MA, Goumnerova LC, Proctor M, Scott RM, Marcus K, Pomeroy SL, Turner CD,
Chi SN, Chordas C, Kieran MW. Continuous remission of newly diagnosed and relapsed central
nervous system atypical teratoid/rhabdoid tumor. J Neurooncol. 2005 Mar;72(1):77-84.
14

10. Dunn IF, Proctor MR, Day AL. Lumbar Spine Injuries in athletes. Neurosurg Focus, 2006, 21 (4):
1-5.
11. Ullrich NJ, Robertson, R, Kinnamon DD, Scott RM, Kieran MW, Turner CD, Chi SN,
Goumnerova L, Proctor M, Tarbell NJ, Marcus KJ, Pomeroy SL. Moyamoya following cranial
irradiation for primary brain tumors in children. Neurology, 2007. 68 (12): 932-8.
12. Saad AG, Sachs J, Turner CD, Proctor M, Marcus KJ, Wang L, Lidov H, Ullrich NJ. Extracranial
metastases of glioblastoma in a child: case report and review of the literature. J Pediatr Hematol
Oncol. 2007; 29(3): 190-194.
13. Mislow JMK, Proctor MR, McNeely PD, Greene AK, Rogers GF. Calvarial defects associated
with neurofibromatosis Type I. J Neurosurg (6 Suppl Pediatrics) 2007; 106: 484-489.
14. Maher CO, Goumnerova L, Madsen JR, Proctor M, Scott RM. Outcome following multiple
repeated spinal cord untethering operations. J Neurosurg (6 Suppl Pediatrics) 2007; 106:434-438.
15. Levy RL, Rogers GF, Mulliken JB, Proctor MR, Dagi LR. Astigmatism in unilateral coronal
synostosis: Incidence and laterality. J AAPOS, 2007 Aug;11(4):367-372.
16. Greene AK, Mulliken JB, Proctor MR, Rogers GF. Primary grafting with autologous cranial
particulate bone prevents osseous defects following fronto-orbital advancement. Plast Reconstr
Surg. 2007 Nov;120(6):1603-11.
17. Hedequist D, Hresko T, Proctor M. Modern Cervical Spine Instrumentation in Children. Spine.
2008;33(4): 379-383.
18. Ohaegbulam CO, Dunn IF, D’Hemecourt P, Proctor MR Lumbar epidural hematoma associated
with spondylolyses: a report of three cases. J Neurosurg Spine, 2008; 8(2): 174-180.
19. Greene AK, Mulliken JB, Proctor MR, Rogers GF. Pediatric cranioplasty using particulate
calvarial bone graft. Plast Reconstr Surg. 2008 Aug;122(2):563-71.
20. Greene AK, Mulliken JB, Proctor MR, Meara JG, Rogers GF. Phenotypically unusual combined
craniosynostoses: presentation and management. Plast Reconstr Surg. 2008 Sep;122(3):853-62.
21. Hedequist D, Proctor M. Screw fixation to C2 in children: a case series and technical report. J
Pediatr Orthop. 2009 Jan-Feb; 29(1): 21-5
22. Robinson, S, Proctor, MR. Diagnosis and Management of Deformational Plagiocephaly: A
Review. J. Neurosurg Peds. Accepted for publication.
23. MacKinnon, S, Rogers, GF, Gregas, M, Proctor MR, Mulliken JB, Dagi LTreatment of unilateral
coronal synostosis by endoscopic strip craniectomy or fronto-orbital advancement:
Ophthalmologic findings. JAAPOS. Accepted for publication.
• Non-peer reviewed scientific or medical publications/materials in print or other media
Reviews, chapters, monographs and editorials
1. Proctor M, Martuza R. Trauma. In: Samuel, editor. Manual of Neurology, Fifth Edition, Little
Brown and Company; 1994, p. 250-276.
2. Proctor M, Gale K. Basal Ganglia and Brain Stem Anatomy and Physiology, In: Engel and Pedley,
editors. Epilepsy: A Comprehensive Textbook, New York: Lippicott-Raven; 1998. p. 353-368.
3. Proctor M, Scott RM Special Considerations for Children in Neurosurgery, In: Black and Kaye,
editors. Operative Neurosurgery, London: Harcourt Brace; 2000, p.33-44.
4. Proctor M, Cantu RC. Head and neck injuries in young athletes, Clinics in Sports Medicine, 2000;
19(4): 693-715.
5. Proctor M, Barrow M. Neurosurgical Aspects of Non-accidental Trauma in Children, In: Batjer
and Loftus, editors. Textbook of Neurological Surgery, Lippincott, Williams and Wilkins; 2003, p
1065-1072.
15

6. Proctor M, Cantu RC. Neck Injuries, In: Frontera, Micheli, Herring, Silver editors: Clinical Sports
Medicine: Medical Management and Rehabilitation., Elsevier Press, 2006, p 331-342.
7. Gale K, Proctor M, Veliskova J, Nehlig A. Basal Ganglia and Brainstem Anatomy and
Physiology, In: Engel and Pedley, editors. Epilepsy: A Comprehensive Textbook, 2 nd Edition,
Philadelphia: Wolters Kluwer/Lippincott Williams and Wilkins; 2007. p. 367-384.
8. Slotkin JR, Mislow JMK, Day AL, Proctor MR. Pediatric Disk Disease. Neurosurg Clin N Am,
2007, 18 (4), 659-667.
9. Maher, CO, Smith E, Proctor M, Scott RM: Spinal Vascular Malformations, In: Kim DH, Betz
RR, Huhn SL, Newton PO, eds., Surgery of the Pediatric Spine. Thieme, New York, in press.
10. Ghia A, Proctor MR. Infections of the Spinal Axis, In Albright L, Pollack A, Adelson D eds.
Pediatric Neurosurgery. Thieme. New York. In press.
11. Proctor MR. Intracranial subdural hematoma in children: Epidemiology, anatomy, and
pathophysiology. In: UpToDate, Basow, DS (Ed), UpToDate, Waltham, MA, 2008.
12. Proctor MR. Intracranial subdural hematoma in children: Clinical manifestations, evaluation, and
management. In: UpToDate, Basow, DS (Ed), UpToDate, Waltham, MA, 2008.
13. Ahn ES, Proctor, MR. Intracranial epidural hematoma in children: Clinical features, evaluation,
and management. In: UpToDate, Basow, DS (Ed), UpToDate, Waltham, MA, 2008.
14. Ahn ES, Proctor, MR. Intracranial epidural hematoma in children: Epidemiology, anatomy and
pathophysiology. In: UpToDate, Basow, DS (Ed), UpToDate, Waltham, MA, 2008.
Books
1. Proctor M, Black P, Editors, Minimally Invasive Neurosurgery. Humana Press, Totowa, NJ, 2005.
2. Proctor MR, Associate Editor, Yearbook of Neurology and Neurosurgery, Elsevier Mosby,
Philadelphia, PA, 2007.
3. Proctor MR, Associate Editor Yearbook of Neurology and Neurosurgery, Elsevier Mosby,
Philadelphia, PA, 2008.
Letters to the Editor
1. Proctor M, Scott RM. Letter to the Editor. Redefining the magnetic resonance imaging reference
level for the cerebellar tonsil: a study of 170 adolescents with normal versus idiopathic scoliosis.
Spine 29(1): 105. 2004.
Narrative Report
Since the completion of my training in 1998, I have worked at Harvard Medical School to enhance the
world-class pediatric neurosurgical service at Children’s Hospital by strengthening clinical and academic
collaborations. My leadership and initiative has been instrumental in forging and strengthening
relationships between Neurosurgery and multiple other departments to improve patient care and advance
the national reputation of our clinical teams. My clinical practice has focused on three areas: craniofacial
abnormalities, spinal disorders, and trauma to the pediatric brain and spine. Approximately seventy
percent of my time is clinical, twenty percent teaching and 10 percent research.
Our Craniofacial Team is a recognized leader in the treatment of craniosynostosis and attracts patients
from around the world; I have brought to this team a unique expertise in endoscopic surgery, and the care
of craniofacial patients encompasses 15-20 hours per week. The orthopedic/neurosurgical spinal team
treats children with complex disorders of the spine and is one of the leaders in the field in the use of
instrumentation for the pediatric cervical spine. I co-founded, along with Gastroenterology, Urology and
General Surgery, a clinic for the treatment of incontinence of spinal cord etiology, a unique collaborative
clinic available only at Children’s Hospital. I am part of a joint collaboration among Neurosurgery,
16

Trauma Surgery, Neurology, Neuropsychology, and Physiatry that established a unique Brain Injury
Program that offers much-needed and previously-unavailable care to pediatric brain trauma patients. This
effort has resulted in major philanthropic support, a full-time nurse practitioner, and as we are starting to
accrue large numbers of patients will lead to major research developments and firmly place Children’s
Hospital as the national leader in pediatric minor and severe head injury. I work with Sports Medicine to
maintain an active clinical practice in sports-related injuries, where we see 20-30 concussion patients each
week, and I am presenting the largest series ever of herniated lumbar disks in children at our annual
meeting in March, 2009. I co-direct the annual HMS Neurological Sports Injuries conference, which is
now considered the premier national concussion meeting, this year being endorsed by the American
Association of Neurological Surgeons. We have sold out the conference for the past three years with
almost 300 attendees including coaches, trainers and physicians and physicians from school and
professional teams.
One of the most extensive collaborative efforts I have been participated in has been the development of
the unique intra-operative MRI at Children's Hospital, establishing our department as leaders in the field
of operative MRI technology. I was involved in this project from its inception, working with many
departments including hospital administration, Anesthesia, Radiology, and Engineering, This effort has
resulted in a great clinical success, has been presented at many national meetings, and was highlighted in
a live brain surgery webcast which I moderated and which received a national “Webby” award.
Teaching of residents and students has remained of paramount importance in all of these venues. I have
been Associate Residency Program Director since 2000. In addition, I am the course director for the HMS
neurosurgery rotations, which includes approximately 10-20 students taking a fourth year elective and 20
students who do a one week elective during their third year surgery rotation. In 2008 I was the founder of
the Cushing Neurosurgical Student Interest Group at the medical school. I brought together a group of
students with expressed neurosurgical interest to form this as an official student organization, and I serve
as faculty advisior. In addition to clinical teaching I direct a 2 hour formal education conference every
week for the neurosurgery residents. I was recently selected to join the Children’s Hospital Teaching
Academy, with the focus of my project being the more formal integration of neurosurgery into medical
school training.
I have been able to take advantage of Children’s tremendous resources to develop an active and complex
pediatric neurosurgery practice, and to become a leader in multi-disciplinary, collaborative clinical fields
linking neurosurgery with subspecialities throughout the hospital. The clinical teams I participate on have
brought out my complementary strengths as a surgeon and team player, and I will continue to strive
towards clinical excellence by working with others to offer superb care and cutting-edge technology to
our patients. My clinical activities continue on the community service front where I am the founder of the
Boston chapter, and Chairman-elect of the national Board of Directors, for ThinkFirst National Injury
Prevention Program. This passion for clinical excellence and community service has culminated in my
role as educator, and I remain passionate about training our clinical and academic leaders of the future.
17

Sarah Jane Brain Family State Lead Center of Excellence
For the state of
Michigan
Michigan Public Health Institute and Brain Injury Association of Michigan
www.mphi.org
REGION: Midcentral CATEGORY OF CARE: Virtual SJB Center
Program Director: Clare Tanner Position Title: Program Director
Department: Center for Data Management and Transitional Research
Address: 2436 Woodlake Circle #380, Okemos, MI 48864
Phone: 517‐324‐8374
Email: ctanner@mphi.org
Level 1 Center(s): Detroit, Lansing, Grand Rapids, Sault Ste. Marie
Level 2 Center(s): Warren, Ann Arbor, Flint, Sterling Heights
Level 3 Center(s): Detroit, Kalamazoo, Marquette, Saginaw
Number of jobs PABI Grant creates in Michigan: 146
Budget Overview for State Lead Center
State Lead Center Management Sub‐total: $ 6,689,944
Category of Care Management Sub‐total: $ 1,956,992
Case Management Sub‐total: $ 7,899,140
State Lead Center Sub‐total: $ 16,578,076
Indirect Cost to Institution (20%): $ 3,315,615
Administrative Cost to SJBF (2%): $ 331,562
SUB‐TOTAL AMOUNT OF GRANT PROPOSAL: $ 20,225,253

Michigan Public Health Institute and Brain Injury Association of Michigan Profile continued
Title/Description Sub‐total Amount for Grant
STATE LEAD CENTER MANAGEMENT
Program Director: $ 79,625
Program Director Assistant: $ 106,193
State Director: $ 353,976
Associate State Director: $ 153,390
State Epidemiologist: $ 235,984
State Epidemiologist Assistant: $ 106,193
State Scientific Investigation Research Coordinator: $ 200,586
State Scientific Investigation Research Assistant: $ 200,586
State Education/Training Coordinator (plus materials): $ 437,020
State General Counsel: $ 283,181
State IT Manager: $ 224,185
State Family Support Coordinator: $ 176,988
State Prevention/Awareness Coordinator: $ 176,988
State Acute Care Coordinator: $ 176,988
State Reintegration Coordinator: $ 176,988
State Adult Transition Coordinator: $ 176,988
State Mild TBI Coordinator: $ 176,988
State Mental Health Coordinator: $ 153,390
State Assistive/Emerging Technology Coordinator: $ 153,390
State Correctional System Coordinator: $ 153,390
State MISC Coordinator: $ 153,390
State Veterans Coordinator: $ 153,390
State Data Manager: $ 153,390
State Public Policy Manager: $ 176,988
State Community Relations Manager: $ 153,390
State Administrative Support: $ 637,157
Charity care: $ 363,052
Human Resources Support: $ 146,000
Training Support: $ 36,500
State Lead Center Office Space Cost: $ 348,893
State Lead Center Transportation/Travel: $ 113,400
State Lead Center Office Equipment/Communications: $ 197,500
State Lead Center Supplies: $ 112,546
Annual and Regional Conferences: $ 32,000
State Brain Injury Association Pediatric Programs: $ 103,729
STATE LEAD CENTER MANAGEMENT SUB‐TOTAL: $ 6,689,944

Michigan Public Health Institute and Brain Injury Association of Michigan Profile continued
Title/Description Sub‐total Amount for Grant
CATEGORY OF CARE RESPONSIBILITY: Virtual SJB Center
Regional Category Director: $ 353,976
Regional Category Epidemiologist: $ 283,181
Regional Category Education/Training Coordinator: $ 235,984
Regional Category Scientific Investigation Research: $ 235,984
Regional Business Development Manager: $ 235,984
Regional Category Administrative Support: $ 424,771
Regional Category Office Space Cost: $ 101,292
Regional Category Transportation/Travel: $ 157,500
Regional Category Office Equipment/Communications: $ 27,900
Regional Category Supplies: $ 32,675
CATEGORY OF CARE SUB‐TOTAL: $ 1,956,992

Michigan Public Health Institute and Brain Injury Association of Michigan Profile continued
Title/Description Sub‐total Amount for Grant
CASE MANAGEMENT RESPONSIBILITY
Level 1 Center Manager(s): $ 674,240
Level 1 Center Field Specialist(s): $ 539,392
Level 1 Center SJB Family Specialist(s): $ 3,681,349
Level 1 Center Administrative Support: $ 606,816
Level 1 Office Space Cost: $ 54,458
Level 1 Transportation/Travel: $ 111,600
Level 1 Office Equipment/Communications: $ 117,200
Level 1 Supplies: $ 171,153
Level 2 Center Field Specialist(s): $ 323,635
Level 2 Center SJB Family Specialist(s): $ 1,051,814
Level 2 Transportation/Travel: $ 31,680
Level 2 Office Equipment/Communications: $ 53,200
Level 2 Supplies: $ 43,566
Level 3 Center SJB Family Specialist(s): $ 394,430
Level 3 Transportation/Travel: $ 9,360
Level 3 Office Equipment/Communications: $ 22,800
Level 3 Supplies: $ 12,448
CASE MANAGEMENT SUB‐TOTAL: $ 7,899,140
STATE LEAD CENTER SUB‐TOTAL: $ 16,578,076
INDIRECT COST TO INSTITUTION: $ 3,315,615
ADMINISTRATIVE FEE TO SJBF: $ 331,562
STATE LEAD CENTER SUB‐TOTAL: $ 20,225,253
TOTAL JOBS CREATED IN Michigan: 146

BIOGRAPHICAL SKETCH
Provide the following information for the key personnel and other significant contributors in the order listed on Form Page 2.
Follow this format for each person. DO NOT EXCEED FOUR PAGES.
NAME
Clare Leah Tanner
eRA COMMONS USER NAME (credential, e.g., agency login)
MPHI-CTANNER
POSITION TITLE
Program Director
EDUCATION/TRAINING (Begin with baccalaureate or other initial professional education, such as nursing, and include postdoctoral training.)
INSTITUTION AND LOCATION
DEGREE
(if applicable)
YEAR(s) FIELD OF STUDY
University of Wisconsin-Madison B.S. (with distinction) 1989 Anthropology
University of Wisconsin-Madison M.S. 1993 Sociology
University of Wisconsin-Madison Ph.D. 1999 Sociology
A: Positions and Honors
Positions and Employment
08/1997 – 08/1998 Research Assistant, Department of Rural Sociology, University of Wisconsin-Madison,
August 1997 - August 1998
08/1998 – 10/1998 Consultant and Qualitative Analyst for Cancer Prevention Outreach and Cancer Control
Project (Funded by the Michigan Department of Community Health)
02/1999 – 01/2001 Research Associate, Michigan Public Health Institute, Okemos, Michigan
01/2001 – 12/2007 Research Scientist and Project Coordinator, Michigan Public Health Institute, Okemos,
Michigan
01/2008 – Present Program Director, Center for Data Management and Translational Research at the
Michigan Public Health Institute, Okemos, Michigan
Honors
08/1990 – 06/1991 University of Wisconsin-Madison Graduate Fellowship
07/1991 – 06/1992 Social Science Research Council International Predissertation Fellowship, July 1991 -
June 1992
08/1992 – 07/1995 National Science Foundation Graduate Research Fellowship
08/1995 – 06/1996 Global Studies Fellowship funded by the John D. and Catherine T. MacArthur Foundation
B: Selected peer-reviewed publications (in chronological order).
Benkert, R., Barkauskas, V., Pohl, J., Corser, W., Tanner, C., Wells, M., and Nagelkirk, J. (2002), “Patient
Satisfaction Outcomes in Nurse Managed Centers,” Outcomes Management, 6,4 (Fall):174-181.
Tanner, C., Pohl, J., Ward, S., and Dontje, K. (2003), “Education of Nurse Practitioners in Academic Nurse
Managed Centers: Student Perspectives,” Journal of Professional Nursing, 19,6(November-December):354-
363.
Barkauskas, Violet, Pohl, J., Breer, M.L., Tanner, C., Benkert, R., and Vonderheid, S. (2004), “Academic
Nurse-managed Centers: Approaches to Evaluation,” Outcomes Management, 8,1(January/March): 57-66.
Benkert, R., Tanner, C., Guthrie, B., Oakley, D., and Pohl, J. (2005), “Cultural Competence in Nurse
Practitioner Students: A Consortium’s Experience”, Journal of Nursing Education, 44,5(May):1-10.
Barkauskas, V., Pohl, J., Benkert, R., Vonderheid, S., Nagelkerk, J., Schafer, P., Sebastian, J., Stanhope, M.,
Tanner, C. (2006), “Clients Served and Services Provided by Academic Nurse-Managed Center: Client
Demographics nursing and medical diagnoses, services provided,” Journal of Professional Nursing 22(6),
331-338.
Benkert, R., George, N., Tanner, C., Barkauskas, V., Pohl, J., Marszalek, A. (2007), “Satisfaction with School-
Based Teen Health Center: A Report Card on Care,” Journal of Pediatric Nursing 33(2) 103-109.
Zheng K, McGrath D, Hamilton A, Tanner C, White M, Pohl, JM. (2009) “Assessing organizational readiness
for adopting electronic health record systems: A case study in ambulatory practices”, Journal of Decision
Systems, 18(1):117--40.

Vonderheid, S.C., Pohl, J. M., Tanner, C., Newland, J.A., Gans, D.N., (In press), “CPT Coding Patterns at
Nurse Managed Health Centers: Data from a National Survey,” Nursing Economics.
Pohl, J., Breer, M.L., Tanner, C., Barkauskas, V., Bleich, M., Bomar, P., Fiandt, K., Jenkins, M., Lundeen, S.,
Mackey, T., Nagelkerk, J., Werner, K. (In press), “National consensus on data elements for nurse managed
health centers,” Nursing Outlook 54(2), 81-84.
C. Research Support
Current
5R18HS017191-02 Joanne M. Pohl (PI) 9/1/2008 – 8/31/2009
AHRQ - A Partnership for Clinician EHR Use and Quality of Care - Year 2
This project is a collaborative effort that studies the effectiveness of a partnership that shares resources, and
utilizes a data-driven approach to promote full clinician use of an EHR in three nurse managed health centers
and three community health centers in order to improve the quality of care in areas of preventive care, chronic
disease management, and medication management for vulnerable populations.
Role: Research Manager
20080592 Michael Daeschline (Program Director) 10/01/2007 – 09/30/2013
Michigan Department of Community Health Traumatic Brain Injury Project
This project supports the Michigan Department of Community Health (MDCH) in their efforts to improve access
to public services to persons with a traumatic brain injury (TBI) in Michigan.
Role: Program Director
PO431N8201816 Jeanette Scroggins (Program Director) 10/01/2008 – 09/30/2009
Department of Human Services
Juvenile Justice and Delinquency Prevention Evaluation and Program Development for Grantees
This project provides support to community grantees with performance reporting and evaluation tools.
Role: Program Director
Richard Lowell Dunlap (Project Manager) 10/01/2008 – 06/30/2011
Kresge Foundation Getting the Lead Out: Keeping Kids and Communities Safe Evaluation
This project provides evaluation of lead poisoning prevention programming in the State of Michigan.
Role: Program Director
WSU07032 Stephen Cavanaugh (Program Director) 12/01/2006 – 06/30/2009
Wayne State University Nurse Education Practice & Retention
MPHI is conducting an evaluation of the Wayne State University Campus Health Center. The center, funded in
part by a HRSA grant, provides primary care to WSU students. As part of the evaluation, staff are examining
outcome variables such as client satisfaction, health care quality indicators, and the value of the center as a
clinical learning site.
Role: Program Director
Completed
P0093479 Joanne M. Pohl (PI) 09/01/2003 – 08/31/2008
W.K. Kellogg Foundation Institute for Nursing Centers
The Institute for Nursing Centers (INC) is a national organization of key stakeholders promoting direct access
to high quality, affordable and cost-effective health care services to the nation’s communities via nurse
managed health centers (NMHCs).
Role: Project Coordinator
HHSH232200534005C 09/01/2005 – 09/30/2008
BPHC / HRSA Sentinel Centers Network
The primary goal of the Sentinel Centers Network (SCN) is to measure and improve the quality of care
provided to patients of community health centers.
Role: Research Scientist

Sarah Jane Brain Family State Lead Center of Excellence
For the state of
Minnesota
Mayo Clinic
www.mayoclinic.com
REGION: Midcentral CATEGORY OF CARE: Mild TBI
Program Director: Sherilyn Driscoll, MD Position Title: Assistant Professor
Department: Physical Medicine & Rehabilitation
Address: 200 First Street SW, Rochester, MN 55905
Phone: 507‐266‐8913
Email: driscoll.sherilyn@mayo.edu
Program Director: Tanya Brown, Ph.D. Position Title: Senior Associate Consultant
Department: Department of Psychiatry & Psychology Major Subdivision: Division of Child &
Adolescent Psychiatry & Psychology
Address: 200 First Street SW, Rochester, MN 55905
Phone: 507‐266‐8913
Email: brown.tanya@mayo.edu
Level 1 Center(s): Mayo Clinic (SE), HCMC (Metro), St. Mary's Duluth (NE), St. Cloud (Central)
Level 2 Center(s): Gillette Children's Hospital (Metro), St. Joseph's Mankato (SE), Fairview/U of M
(Central)
Level 3 Center(s): Fairmont (SW), Riverview Healthcare Crookston (NW)
Number of jobs PABI Grant creates in Minnesota: 133
Budget Overview for State Lead Center
State Lead Center Management Sub‐total: $ 6,932,707
Category of Care Management Sub‐total: $ 2,239,551
Case Management Sub‐total: $ 7,688,013
State Lead Center Sub‐total: $ 16,892,271
Indirect Cost to Institution (20%): $ 3,378,454
Administrative Cost to SJBF (2%): $ 337,845
SUB‐TOTAL AMOUNT OF GRANT PROPOSAL: $ 20,608,570

Mayo Clinic Profile continued
Title/Description Sub‐total Amount for Grant
STATE LEAD CENTER MANAGEMENT
Program Director: $ 183,750
Program Director Assistant: $ 112,331
State Director: $ 374,437
Associate State Director: $ 162,256
State Epidemiologist: $ 249,625
State Epidemiologist Assistant: $ 112,331
State Scientific Investigation Research Coordinator: $ 212,181
State Scientific Investigation Research Assistant: $ 212,181
State Education/Training Coordinator (plus materials): $ 335,567
State General Counsel: $ 299,550
State IT Manager: $ 237,144
State Family Support Coordinator: $ 187,219
State Prevention/Awareness Coordinator: $ 187,219
State Acute Care Coordinator: $ 187,219
State Reintegration Coordinator: $ 187,219
State Adult Transition Coordinator: $ 187,219
State Mild TBI Coordinator: $ 187,219
State Mental Health Coordinator: $ 162,256
State Assistive/Emerging Technology Coordinator: $ 162,256
State Correctional System Coordinator: $ 162,256
State MISC Coordinator: $ 162,256
State Veterans Coordinator: $ 162,256
State Data Manager: $ 162,256
State Public Policy Manager: $ 187,219
State Community Relations Manager: $ 162,256
State Administrative Support: $ 673,987
Charity care: $ 356,607
Human Resources Support: $ 133,000
Training Support: $ 33,250
State Lead Center Office Space Cost: $ 342,699
State Lead Center Transportation/Travel: $ 113,400
State Lead Center Office Equipment/Communications: $ 197,500
State Lead Center Supplies: $ 110,548
Annual and Regional Conferences: $ 32,000
State Brain Injury Association Pediatric Programs: $ 101,888
STATE LEAD CENTER MANAGEMENT SUB‐TOTAL: $ 6,932,707

Mayo Clinic Profile continued
Title/Description Sub‐total Amount for Grant
CATEGORY OF CARE RESPONSIBILITY: Mild TBI
Regional Category Director: $ 374,437
Regional Category Epidemiologist: $ 299,550
Regional Category Education/Training Coordinator: $ 249,625
Regional Category Scientific Investigation Research: $ 249,625
Regional Category Administrative Support: $ 449,325
Regional Category Office Space Cost: $ 99,493
Regional Category Transportation/Travel: $ 157,500
Regional Category Office Equipment/Communications: $ 27,900
Regional Category Supplies: $ 32,095
CATEGORY OF CARE SUB‐TOTAL: $ 2,239,551

Mayo Clinic Profile continued
Title/Description Sub‐total Amount for Grant
CASE MANAGEMENT RESPONSIBILITY
Level 1 Center Manager(s): $ 713,214
Level 1 Center Field Specialist(s): $ 570,571
Level 1 Center SJB Family Specialist(s): $ 3,894,149
Level 1 Center Administrative Support: $ 641,893
Level 1 Office Space Cost: $ 53,491
Level 1 Transportation/Travel: $ 111,600
Level 1 Office Equipment/Communications: $ 117,200
Level 1 Supplies: $ 168,115
Level 2 Center Field Specialist(s): $ 256,757
Level 2 Center SJB Family Specialist(s): $ 834,460
Level 2 Transportation/Travel: $ 23,760
Level 2 Office Equipment/Communications: $ 39,900
Level 2 Supplies: $ 32,095
Level 3 Center SJB Family Specialist(s): $ 208,615
Level 3 Transportation/Travel: $ 4,680
Level 3 Office Equipment/Communications: $ 11,400
Level 3 Supplies: $ 6,113
CASE MANAGEMENT SUB‐TOTAL: $ 7,688,013
STATE LEAD CENTER SUB‐TOTAL: $ 16,892,271
INDIRECT COST TO INSTITUTION: $ 3,378,454
ADMINISTRATIVE FEE TO SJBF: $ 337,845
STATE LEAD CENTER SUB‐TOTAL: $ 20,608,570
TOTAL JOBS CREATED IN Minnesota: 133

PERSONAL INFORMATION
Place of Birth:
Citizenship:
Work Address:
email Address:
Curriculum Vitae and Bibliography
Sherilyn W. Driscoll, MD
Roswell, NM
United States
Mayo Clinic
200 First Street SW
Rochester, MN 55905
507-266-8913
driscoll.sherilyn@mayo.edu
PRESENT ACADEMIC RANK AND POSITION
Consultant - Department of Physical Medicine & Rehabilitation, Mayo
Clinic, Rochester, Minnesota
Director of Pediatric Rehabilitation - Department of Physical
Medicine & Rehabilitation, Mayo Clinic, Rochester, Minnesota
Program Director - Pediatric Rehabilitation Medicine Fellowship, Mayo
School of Graduate Medical Education, College of Medicine, Mayo
Clinic, Department of Education Services, Rochester, Minnesota
Assistant Professor of Physical Medicine & Rehabilitation -
College of Medicine, Mayo Clinic
EDUCATION
Pomona College
BA, Biology
University of New Mexico
MD
University of New Mexico
Internship, Internal Medicine
Mayo Medical School
Residency, Physical Medicine and Rehabilitation
BOARD CERTIFICATION(S)
American Board of Physical Medicine & Rehabilitation
Physical Medicine & Rehabilitation
Physical Medicine & Rehabilitation/Pediatric Rehabilitation Medicine
National Board of Medical Examiners
National Board of Medical Examiners
2000 - Present
2003 - Present
2007 - Present
02/01/2007 - Present
1981 - 1985
1985 - 1990
1990 - 1991
1991 - 1994
1996, recertified in 2003
2003
1991

LICENSURE
Minnesota
HONORS/AWARDS
Sherilyn W. Driscoll, MD Page 2 of 10
34785
Pomona College Scholar - Pomona College
Magna Cum Laude - Pomona College
James Oxnard Scholarship - University of New Mexico School of
Medicine
Van Atta Scholarship - University of New Mexico School of Medicine
Chief Resident - Mayo Graduate School
1982 - 1983
1985
1988 - 1989
1989 - 1990
1993 - 1994
PREVIOUS PROFESSIONAL POSITIONS AND MAJOR APPOINTMENTS
Senior Associate Consultant - Department of Physical Medicine &
Rehabilitation, Mayo Clinic, Rochester, Minnesota
Instructor of Physical Medicine & Rehabilitation - College of
Medicine, Mayo Clinic
Contract Physician - Department of Physical Medicine &
Rehabilitation, Mayo Clinic, Rochester, Minnesota
Senior Associate Consultant - Department of Physical Medicine &
Rehabilitation, Mayo Clinic, Rochester, Minnesota
Director of PM&R Residency Recruitment - Department of Physical
Medicine & Rehabilitation, Mayo Clinic, Rochester, Minnesota
1994 - 1997
10/01/1994 - 01/31/2007
1997 - 1999
1999 - 2000
2000 - 2007
PROFESSIONAL & COMMUNITY MEMBERSHIPS, SOCIETIES AND SERVICES
(*indicates office held)
Professional Memberships & Services
Minnesota Medical Association
Phi Beta Kappa Honor Society
American Academy of Physical Medicine & Rehabilitation
Resident Physician Council
Resident Review Committee
*Chair
Pediatric Special Interest Group
Minnesota Women's Medical Association
Community Memberships & Services
American Academy of Cerebral Palsy and Developmental Medicine
1994 - Present
1992 - 1993
1992 - 1993
1992 - 1993
1994 - Present
2000 - Present

Interagency Early Intervention Committee
EDUCATIONAL ACTIVITIES
Curriculum/Course Development
Pediatric Rehabilitation Medicine Fellowship Curriculum
2 year ACGME-approved fellowship established 2007
Mayo School of Graduate Medical Education
Rochester, Minnesota
Pediatric Wheelchair Seating
regional course
Mayo School of Continuing Medical Education
Rochester, Minnesota
Teaching
Sherilyn W. Driscoll, MD Page 3 of 10
Preceptor for trainees at multiple levels in the clinical setting: Mayo and
visiting medical students; PM& R residents; rotating residents/fellows
from other departments including Rheumatology, Neurology,
Pediatrics, Internal Medicine, Pain Clinic; visiting international
clinicians; physical and occupational therapists.
Mayo Clinic
Rochester, Minnesota
Advisor to one to three PM&R residents per year
Mayo School of Graduate Medical Education
Rochester, Minnesota
Practice oral examiner for PM&R residents
Mayo School of Graduate Medical Education
Rochester, Minnesota
Facilitator for formal pediatric rehabilitation instruction when on
inpatient service
Mayo School of Graduate Medical Education
Rochester, Minnesota
Organizer of bimonthly formal pediatric rehabilitation lecture series
Mayo School of Graduate Medical Education
Rochester, Minnesota
Adolescent POTS
Physical Medicine Grand Grounds
Mayo School of Continuing Medical Education
Rochester, Minnesota
Spina Bifida
Physical Medicine Grand Rounds
Mayo School of Continuing Medicine
Rochester, Minnesota
Stance Control Orthotic Knee Joint
Physical Medicine Grand Rounds
Mayo School of Continuing Medical Education
Rochester, Minnesota
2001 - 2005
2007 - Present
11/2008
06/2001
04/2002
06/2002

Spina Bifida in Adulthood
Physical Medicine Grand Rounds
Mayo School of Continuing Medical Education
Rochester, Minnesota
Spasticity Management in Children
Pediatric Resident Lecture Series
Mayo School of Graduate Medical Education
Rochester, Minnesota
Muscular Dystrophy
Physical Medicine Grand Rounds
Mayo School of Continuing Medical Education
Rochester, Minnesota
Evaluation of the Pediatric Rehab Patient
Resident Introductory Lecture Series
Mayo School of Graduate Medical Education
Rochester, Minnesota
Spina Bifida/Meningomyelocele
CART Lecture
Mayo School of Graduate Medical Education
Rochester, Minnesota
Scoliosis in Children and Adolescents
Physical Medicine Grand Rounds
Mayo School of Continuing Medical Education
Rochester, Minnesota
Neuromuscular Disorders in Children
CART Lecture
Mayo School of Graduate Medical Education
Rochester, Minnesota
Intrathecal Baclofen in Children
Physical Medicine Resident Evening Course
Mayo School of Graduate Medical Education
Rochester, Minnesota
Pediatric PM&R History Taking
Resident Introductory Lecture Series
Mayo School of Graduate Medical Education
Rochester, Minnesota
Pediatric Seating Then and Now
Career and Leadership Development Program
Rochester, Minnesota
Honors and Awards for Education
Excellence in Teaching - Mayo Medical Students
Teacher of the Year Award, Physical Medicine and Rehabilitation -
Mayo Clinic College of Medicine
Sherilyn W. Driscoll, MD Page 4 of 10
09/2003
05/2004
06/2004
07/2004
01/2007
02/2007
02/2008
07/2008
07/2008
11/2008
1999 - 2000
2007

Sherilyn W. Driscoll, MD Page 5 of 10
INSTITUTIONAL/DEPARTMENTAL ADMINISTRATIVE RESPONSIBILITIES,
COMMITTEE MEMBERSHIPS AND OTHER ACTIVITIES (* indicates office held)
Mayo Clinic
Mayo Foundation Committees
Mayo Clinic Rochester
Department of Pediatric and Adolescent Medicine
Child and Adolescent Committee
*Member
Department of Physical Medicine & Rehabilitation
3 Mary Brigh Rehabilitation Unit
Remodeling Committee
Clinical Practice Committee
Executive Committee
Pediatric Seating Task Force
*Chair
Arthritis Rehabilitation Committee
*Rheumatology Liaison
*Rheumatology Fellow Rotation Coordinator
Arthritis Rehabilitation Committee
Pediatric Rehabilitation Committee
Pediatric Rehabilitation Committee
*Director
Resident Selection Committee
*Chair
Therapy Orders Task Force
Education Committee
Resident Education Committee
E-10 Practice Committee
Mayo Clinic Rochester Committees
Interdisciplinary Pain Committee
Learning Disorder Assessment Program
Women's Advisory Council
Mayo Clinic Pediatric Council
Mayo 16 Design Committee
Mayo 16 Director Interview Committee
Rochester Career and Leadership Development Council
PRESENTATIONS
International
2007 - Present
2006 - Present
2002 - 2005
2007 - 2008
1994 - 1997
1994 - 1997
1994 - 1997
1999 - 2001
1995 - 1997
1999 - Present
2003 - Present
1999 - Present
2000 - 2007
1999 - 2001
1999 - 2003
2003 - Present
2003 - 2005
1995 - 1997
1999 - Present
1999 - 2003
2004 - 2005
2005 - 2007
2006
2007 - Present

Sherilyn W. Driscoll, MD Page 6 of 10
Outcomes of Treatment in Adolescent Autonomic Dysfunction
Lai CCH, Graner KK, Risher JL, Driscoll SW, Brands CK, Porter CJ,
Fischer PR
17th International Symposium on the Autonomic Nervous System
Puerto Rico
Normal reference ranges for orthostatic changes in heart rate and
blood pressure in adolescents
Skinner J, Driscoll S, Fischerr P, Brands C, Kuntz N, Pianosi P, Nelson
D, Porter C, Burkhardt B
18th International Symposium on the Autonomic Nerrvous System and
2nd Joint Meeting of the ERAS ans AAS
Vienna, Austria
National
Carotid-Cavernous Fistulas in the Head Injured: Two Case Reports
American Academy of Physical Medicine and Rehabilitation
Osteomalacia in High Quadriplegia: A Case Report
American Spinal Injury Association
Dizziness in a pediatric and adolescent referral population.
Marsh AM, Fischer PR, Brands CK, Billings ML, Mack KJ, Porter CJ,
Driscoll SW, Fisher JL, Grothe RM, Kuntz NL
Pediatric Academic Societies
Washington, District of Columbia
Regional
Female Urinary Incontinence
Minnesota Physiatric Society Scientific Session
Adolescent autonomic dysfunction and chronic fatigue, pain, dizziness
and nausea
Fischer PR, Brands CK, Porterr CJ, Pittock ST, Mack KJ, Kuntz NL,
Fisherr JL, Grothe RM, Driscoll SW, Lai DD, Whiteside SP, Graner KK,
Wilder RT, Harbeck-Weber CS, marsh AM, Risma JM, Antiel RM,
Nelson DE, Yim PJ
Mayo Clinic Clinical Research Appreciation Month Poster Presentation
Events and Clinical Research Conference
Rochester and Minneapolis, Minnesota
Standing Up Together for Patient Safety for Pediatric Patients in
Wheelchairs
McKeeman R, Driscoll SW, McGarry K
One Voice Leadership Forum
Rochester, Minnesota
INVITED PRESENTATIONS AND VISITING PROFESSORSHIPS
Invited Presentations
Chronic Pain Management in Adolescents
Pediatric Days
Rochester, Minnesota
Spina Bifida
Pediatric Grand Rounds
Mayo School of Graduate Medical Education
Rochester, Minnesota
11/2006
10/2007
11/1992
05/1993
05/2005
10/1992
08/2006
11/2008
09/2002
03/2004

Sherilyn W. Driscoll, MD Page 7 of 10
Pediatric Rehab-Who, What, When, Where, and Why?
Pediatric Grand Rounds
Mayo School of Graduate Medical Education
Cerebral Palsy in Adulthood: Special Children Grow Up
Mayo Clinic Alumni Meeting
Ponte Vedra, Florida
Wee FIM
Pediatric Multiple Sclerosis Meeting in Department of Pediatric
Neurology
Rochester, Minnesota
Postural Orthostatic Tachycardia in Adolescents.
American Academy of Physical Medicine and Rehabilitation Annual
Assembly
Honolulu, Hawaii
Spina Bifida/Cerebral Palsy
Pediatric Days
Washington DC
Pediatric PM&R
Rehab Unit Advisory Council
Rochester, Minnesota
CLINICAL PRACTICE, INTERESTS, AND ACCOMPLISHMENTS
Clinical practice accomplishments since 2003:
05/2005
10/2005
11/2006
11/2006
08/2007
03/2008
-Consolidation of disparate pediatric therapy practices into single unified inpatient and single unified
outpatient practices
-Development of annual pediatric rehabilitation strategic plan
-Initiation of a monthly pediatric rehabilitation "practice committee" to address the needs of our
patients and practice
-Obtained the "STARscanner" 3-D laser data acquisition system to bring our plagiocephaly
evaluations and treatment plan to state of the art level
-CARF accreditation for Pediatric Family Centered Rehabilitation Program (first ever)
-Advancement of pediatric rehabilitation research projects and including collaboration with other
pediataric departments
-Participation in the design and practice planning related to the Mayo 16 multispeciality pediatric
project
-Development of marketing strategy, particularly related to plagiocephaly evaluations and treatment
-Facilitation of patient population growth
-Development of pediatric rehabilitation website
-Development and/or review of dozens of patient education pieces relevant to pediatric PM&R
-Development and initiation of Pediatric Rehabilitation Medicine Fellowship

-Implementation of new pediatric wheelchiar seating program
-Implementation of pediatric chronic pain management program
Sherilyn W. Driscoll, MD Page 8 of 10
-Development of clinical pathways for pediatric intrathecal baclofen trials and pump implantation,
selective dorsal rhizotomy, constraint induced movement therapy and others
RESEARCH GRANTS AWARDED
Completed Grants
Mayo Clinic
OTHER
Principal
Investigator
Pediatric Orthostatic Normative Values. Funded by
Mayo Clinic.
About Spina Bifida
Patient Education Material (MC 6052)
Coma After the Heart Stops
Patient Education Material (MC 6168)
Pediatric Brain Injury (DVD)
Patient Education Material (MC 1298-03)
Hydrocephalus and Shunt Treatment
Patient Education Materials (MC5791)
Spasticity Management in Children
Patient Education Materials (MC 5676)
Beating Chronic Pain: A Guide for Teens
PAtient Education Material (MC 2923-06
Skin Care for the Child with Special Needs
Patient Education Material (MC 6090)
Special Care Nurseries: A Handbook for Parents
Patient Education Material (MC5637)
Effects of Spinal Cord Injury: A Guide for Grade-Schoolers
Patient Education Material (MC2151-47)
When Someone You Love Has a Spinal Cord Injury: A Guide for Kids
Patient Education Material (MC 2151-48
Understanding Pediatric Brain Injury-A Guide for Parents and Teachers
Patient Education Material (MC 1298-02)
Malone Antegrade Continence Enema (MACE) Procedure for Fecal
Incontinence in Children
Patient Education Material (MC5649)
09/2006 - 09/2007

Sherilyn W. Driscoll, MD Page 9 of 10
CONTRIBUTOR
item writer
American Board of Physical Medicine and Rehabilitation Recertification
Examination Question Pool
CONTRIBUTOR
item writer
American Board of Physical Medicine and Rehabilitation Pediatric
Rehabilitation Medicine Subspecialty Board test question pool
ORAL BOARD EXAMINER
American Board of Physical Medicine and Rehabilitation
SURVEYOR
national pediatric program surveyor
CARF
1996 - 2001
2000 - Present
2004 - Present
2008 - Present

BIBLIOGRAPHY
Peer-reviewed Articles
Sherilyn W. Driscoll, MD Page 10 of 10
1. Driscoll SW, Noll SF, Koch BM. Juvenile rheumatoid arthritis. Phys Med Rehabil Clin N Am 1994
Nov; 5:763-783.
2. Driscoll SW, Skinner J. Musculoskeletal complications of neuromuscular disease in children.
Phys Med Rehabil Clin N Am 2008 Feb; 19(1):163-94, viii. PMID:18194756.
DOI:10.1016/j.pmr.2007.10.003.
3. Lai CC, Fischer PR, Brands CK, Fisher JL, Porter CJ, Driscoll SW, Graner KK. Outcomes in
adolescents with postural orthostatic tachycardia syndrome treated with Midodrine and bblockers.
PACE 2009 Feb; 32:234-8.
Book Chapters
1. Driscoll SW. Burns in Children. In: M Alexander. Pediatric Rehabilitation 4 ed. in process:
Elsevier Health Sciences; 2009. (Book chapter)
Abstracts and Letters
1. Lai CCH, Graner KK, Fisher JL, Driscoll SW, Brands CK, Porter CJ, Fischer PR. Outcomes of
treatment in adolescent autonomic dysfunction. Clinical Autonomic Research 2006; 16:351.
(Abstract)
2. *Skinner J, Driscoll S, Fischer P, Brands C, Kuntz N, Pianosi P, Nelson DE, Porter C, Burkhardt
B. Normal reference ranges for orthostatic changes in heart rate and blood pressure in
adolescents. Clinical Autonomic Research 2007; 17:307-308. (Abstract)
* Indicates that the primary author was a mentee of this author.

Program Director/Principal Investigator (Last, First, Middle): Brown, Tanya M.
BIOGRAPHICAL SKETCH
Provide the following information for the key personnel and other significant contributors in the order listed on Form Page 2.
Follow this format for each person. DO NOT EXCEED FOUR PAGES.
NAME
Tanya Maines Brown, Ph.D.
eRA COMMONS USER NAME (credential, e.g., agency login)
POSITION TITLE
Senior Associate Consultant
EDUCATION/TRAINING (Begin with baccalaureate or other initial professional education, such as nursing, and include postdoctoral training.)
INSTITUTION AND LOCATION
DEGREE
(if applicable)
YEAR(s) FIELD OF STUDY
Otterbein College, Westerville, OH B.A. 1992-1996 Psychology
University of Cincinnati, Cincinnati, OH M.A. 1996-1999 Psychology
Children’s Memorial Hospital/Northwestern
University, Chicago, IL
Predoctoral
Internship
2003-2004 Pediatric Psychology
University of Cincinnati, Cincinnati, OH Ph.D. 1999-2004 Clinical Psychology
Medical College of Wisconsin, Milwaukee, WI
Postdoctoral
Fellowship
2004-2006 Pediatric
Neuropsychology
Please refer to the application instructions in order to complete sections A, B, and C of the Biographical
Sketch.
A. Positions and Honors
Positions and Employment
Senior Associate Consultant - Division of Child and Adolescent
Psychiatry and Psychology, Department of Psychiatry &
Psychology, Mayo Clinic, Rochester, Minnesota
Other Experience and Professional Memberships
Honors
Professional Memberships & Services
American Psychological Association
Division 40 - Clinical Neuropsychology
International Neuropsychological Society
Ohio Psychological Association
Journal Review & Editorial Activities
Journal of the International Neuropsychological Society
Ad Hoc Reviewer
Neuropsychology Review
Reviewer
09/04/2007 -
Present
PHS 398/2590 (Rev. 11/07) Page Biographical Sketch Format Page

Program Director/Principal Investigator (Last, First, Middle): Brown, Tanya M.
Alpha Lambda Delta - Otterbein College
Endowed Scholarship - Otterbein College
Departmental Scholarship - Otterbein College
Psi Chi - Otterbein College
Torch and Key Honor Society - Otterbein College
Steven Karsko Memorial Award of Leadership - Otterbein College
Mortar Board - Otterbein College
Summa Cum Laude - Otterbein College
PHS 398/2590 (Rev. 11/07) Page Continuation Format Page
1992
1992 - 1996
1994 - 1995
B. Selected Peer-reviewed Publications (in chronological order)
1. Beebe DW, Ris MD, Brown TM, Dietrich KN. Executive functioning and memory for the Rey-
Osterreith complex figure task among community adolescents. Appl Neuropsychol 2004; 11(2):91-8.
2. Wade SL, Wolfe C, Brown TM, Pestian JP. Putting the pieces together: Preliminary efficacy of a webbased
family intervention for children with traumatic brain injury. J Pediatr Psychol 2005; 30:437-42.
3. Wade SL, Wolfe C, Brown TM, Pestian JP. Can a web-based problem solving intervention work for
children with traumatic brain injury? Rehabil Psychol 2006; 50:337-45.
4. Wade SL, Michaud L, Brown TM. Putting the pieces together: preliminary efficacy of a family
problem-solving intervention for children with traumatic brain injury. J Head Trauma Rehabil 2006
Jan-Feb; 21(1):57-67.
5. Ris MD, Ammerman RT, Waller N, Walz N, Oppenheimer S, Brown TM, Enrile BG, Yeates KO.
Taxonicity of nonverbal learning disabilities in spina bifida. J Int Neuropsychol Soc 2007 Jan; 13(1):50-
8.
6. Brown TM, Ris MD, Beebe D, Ammerman RT, Oppenheimer SG, Yeates KO, Enrile BG. Factors of
biological risk and reserve associated with executive behaviors in children and adolescents with spina
bifida myelomeningocele. Child Neuropsychology 2008 Mar; 14(2):118-34.
1995
1995
1995
1995
1996

Program Director/Principal Investigator (Last, First, Middle): Brown, Tanya M.
C. Research Support
Ongoing Research Support
Improving Mental Health Outcomes of Child Brain
Injury
Role: Site Principal Investigator
Role:
Completed Research Support
Uninsured Evaluations - Pediatric MS Center of
Excellence Award. Funded by National Multiple
Sclerosis Society.
Role: Neuropsychologist
Role:
11/1/08 –
10/31/10
01/2006 –
02/2009
PHS 398/2590 (Rev. 11/07) Page Continuation Format Page

Sarah Jane Brain Family State Lead Center of Excellence
For the state of
Mississippi
Children's Rehabilitation Services / Blair E. Batson Hospital for Children
www.umhc.com
REGION: Southeast CATEGORY OF CARE: Rural/Tele‐health
Program Director: Shannon Smith, MD, FAAPMR Position Title: Assistant Professor
Department: Orthopedic Surgery & Rehabilitation
Address: 2500 N. State Street, Jackson, MS 39216
Phone: 601‐984‐2940
Email: sjsmith2@ped.umsmed.edu
Level 1 Center(s): Jackson
Level 2 Center(s): Meridian, Greenville
Level 3 Center(s): Gulport/Biloxi, Tupelo
Number of jobs PABI Grant creates in Mississippi: 84
Budget Overview for State Lead Center
State Lead Center Management Sub‐total: $ 4,853,936
Category of Care Management Sub‐total: $ 3,425,867
Case Management Sub‐total: $ 1,909,613
State Lead Center Sub‐total: $ 10,221,416
Indirect Cost to Institution (20%): $ 2,044,283
Administrative Cost to SJBF (2%): $ 204,428
SUB‐TOTAL AMOUNT OF GRANT PROPOSAL: $ 12,470,128

Children's Rehabilitation Services / Blair E. Batson Hospital for Children Profile continued
Title/Description Sub‐total Amount for Grant
STATE LEAD CENTER MANAGEMENT
Program Director: $ 40,136
Program Director Assistant: $ 79,393
State Director: $ 264,645
Associate State Director: $ 114,679
State Epidemiologist: $ 176,430
State Epidemiologist Assistant: $ 79,393
State Scientific Investigation Research Coordinator: $ 149,965
State Scientific Investigation Research Assistant: $ 149,965
State Education/Training Coordinator (plus materials): $ 219,420
State General Counsel: $ 211,716
State IT Manager: $ 167,608
State Family Support Coordinator: $ 132,322
State Prevention/Awareness Coordinator: $ 132,322
State Acute Care Coordinator: $ 132,322
State Reintegration Coordinator: $ 132,322
State Adult Transition Coordinator: $ 132,322
State Mild TBI Coordinator: $ 132,322
State Mental Health Coordinator: $ 114,679
State Assistive/Emerging Technology Coordinator: $ 114,679
State Correctional System Coordinator: $ 114,679
State MISC Coordinator: $ 114,679
State Veterans Coordinator: $ 114,679
State Data Manager: $ 114,679
State Public Policy Manager: $ 132,322
State Community Relations Manager: $ 114,679
State Administrative Support: $ 476,360
Charity care: $ 253,856
Human Resources Support: $ 84,000
Training Support: $ 21,000
State Lead Center Office Space Cost: $ 243,955
State Lead Center Transportation/Travel: $ 82,249
State Lead Center Office Equipment/Communications: $ 197,500
State Lead Center Supplies: $ 78,695
Annual and Regional Conferences: $ 32,000
State Brain Injury Association Pediatric Programs: $ 72,530
STATE LEAD CENTER MANAGEMENT SUB‐TOTAL: $ 4,853,936

Children's Rehabilitation Services / Blair E. Batson Hospital for Children Profile continued
Title/Description Sub‐total Amount for Grant
CATEGORY OF CARE RESPONSIBILITY: Rural/Tele‐health
Regional Category Director: $ 264,645
Regional Category Epidemiologist: $ 211,716
Regional Category Education/Training Coordinator: $ 176,430
Regional Category Scientific Investigation Research: $ 176,430
Regional Category Administrative Support: $ 317,573
Regional Category Office Space Cost: $ 70,826
Regional Category Transportation/Travel: $ 157,500
Regional Category Office Equipment/Communications: $ 27,900
Regional Category Supplies: $ 22,847
CATEGORY OF CARE SUB‐TOTAL: $ 3,425,867

Children's Rehabilitation Services / Blair E. Batson Hospital for Children Profile continued
Title/Description Sub‐total Amount for Grant
CASE MANAGEMENT RESPONSIBILITY
Level 1 Center Manager(s): $ 126,021
Level 1 Center Field Specialist(s): $ 100,817
Level 1 Center SJB Family Specialist(s): $ 688,076
Level 1 Center Administrative Support: $ 113,419
Level 1 Office Space Cost: $ 38,078
Level 1 Transportation/Travel: $ 26,664
Level 1 Office Equipment/Communications: $ 33,800
Level 1 Supplies: $ 43,518
Level 2 Center Field Specialist(s): $ 120,980
Level 2 Center SJB Family Specialist(s): $ 393,186
Level 2 Transportation/Travel: $ 15,346
Level 2 Office Equipment/Communications: $ 26,600
Level 2 Supplies: $ 15,231
Level 3 Center SJB Family Specialist(s): $ 147,445
Level 3 Transportation/Travel: $ 4,680
Level 3 Office Equipment/Communications: $ 11,400
Level 3 Supplies: $ 4,352
CASE MANAGEMENT SUB‐TOTAL: $ 1,909,613
STATE LEAD CENTER SUB‐TOTAL: $ 10,221,416
INDIRECT COST TO INSTITUTION: $ 2,044,283
ADMINISTRATIVE FEE TO SJBF: $ 204,428
STATE LEAD CENTER SUB‐TOTAL: $ 12,470,128
TOTAL JOBS CREATED IN Mississippi: 84

Curriculum Vitae
Shannon Janine Smith, MD, FAAPMR
Assistant Professor
Department of Orthopedic Surgery & Rehabilitation
Department of Pediatrics
University of Mississippi Medical Center
Jackson, Mississippi
EMAIL ADDRESS: sjsmith2@ped.umsmed.edu
PHONE# 601-984-2940

CURRICULUM VITAE
Name: Shannon Janine Smith Date of Appointment to UMC: October 2007
Title: Assistant Professor
Date and Place of Birth: May 19, 1978
Philadelphia, PA
Language Proficiency: English
Educational Background:
College: Spelman College
Atlanta, GA
BA Degree 1999- cum laude
Professional School: Temple University School of Medicine,
Philadelphia, PA
Doctorate of Medicine 2003
Postgraduate Training: Physical Medicine and Rehabilitation Residency
Emory University School of Medicine, Atlanta, GA
Department of Rehabilitation Medicine
July 2004 – September 2007
Military Service: None
Transitional Medicine Internship
University of Tennessee, Memphis TN
Methodist University Hospital
June 2003- June 2004

Shannon Janine Smith, MD
Page 2
Honors and Awards: Outstanding Community Service Award Recipient / Temple
University School of Medicine, Philadelphia, PA May 2003
Academic Scholarship Recipient / Spelman College, Atlanta, GA. August 1995
Specialty Certification: American Board of Physical Medicine and Rehabilitation -Fellow–
2008
American Board of Physical Medicine and Rehabilitation –
Diplomate - 2008
Licensure: American Board of Physical Medicine and Rehabilitation -Fellow–
July 1, 2008
American Board of Physical Medicine and Rehabilitation –
Diplomate - 2008
Mississippi State Board of Medical Licensure – September 10, 2007- present
Georgia Medical Training Permit 2004-2007
Professional Memberships: American Academy of Physical Medicine and Rehabilitation
Association of Academic Physiatrists
American Medical Association
National Medical Association
Mississippi State Medical Association
Central Medical Society
Southern Society of Physical Medicine and Rehabilitation
American Academy of Pediatrics
Academic Appointments: Assistant Professor
Department of Orthopedic Surgery & Rehabilitation
Assistant Professor
Department of Pediatrics
University of Mississippi Medical Center
Jackson, MS
October 2007 - Present
Other Activities and Appointments:
2008 Search Committee Member, for Chairman for Department of Neurology,
University of Mississippi Medical Center
2007-Present Assistant Professor
University Physician Associates, University of Mississippi Medical Center-
Consultant for University Rehabilitation Center
2007-Present Physician
Children’s Rehabilitation Services, Blair E. Batson Hospital for Children

Shannon Janine Smith, MD
Page 3
2006 Gross Anatomy Tutor; Musculoskeletal Section
Emory University School of Medicine
2005- 2007 Emory University School of Medicine
Member, Clinical Quality Committee- Designed to review patients’ records in an
inpatient rehabilitation facility
2005- Present Resident Mentor
American Academy of Physical Medicine and Rehabilitation
2004-2007 Contributing Editor
Rehab in Review
Spaulding Rehabilitation Hospital
Harvard University
2000-2002 Gross Anatomy and Histology Tutor
Temple University School of Medicine
Presentations: RESIDENCY LECTURES/EMORY UNIVERSITY:
Outcomes of Patient Transfers in an Inpatient Rehab Setting
Middle Cerebral Artery Strokes
Incidence of Vertebral Artery Rupture in Spinal Cord Injuries
Brachial Plexus and Clinical Correlations
Lumbosacral Plexopathy and Electrodiagnostics
Traumatic Brain Injury Overview
Spinal Cord Injury Overview
Prosthetics and Orthotics Overview
Neurogenic Bladder and Bowel
EMG Sources of Error
Median Neuropathy
Physical Exam of the Hand and Wrist
Physical Exam of the Hip and Lumbosacral Spine
Physical Exam of the Ankle and Foot
Physical Exam of the Cervical Spine and Shoulder
Athletic Pubalgia
Gait- Normal and Pathological
Transfemoral, Transtibial and Upper Extremity Prosthetics
Professional Presentations:
June, 2009 Spasticity Management; University of Mississippi Medical Center,
Rehabilitation Conference
March, 2009 Pediatric Traumatic Brain Injury; University of Mississippi Medical

Center, Pediatric Grand Rounds
Shannon Janine Smith, MD
Page 4
January, 2009 Update on Advances in Pediatric Rehabilitation; Lunch and Learn,
Children’s Rehabilitation Services
November, 2008 Stroke Rehabilitation; University of Mississippi Medical Center, Greater
Mississippi Chapter of the American Association of Neuroscience
Nurses
October, 2008 Pediatric Spinal Cord Injuries; University of Mississippi Medical Center,
Pediatric Grand Rounds
August 2008 Graduated Driver’s License; Mississippi House of Representatives,
Transportation Committee
May, 2008 Pediatric Rehabilitation; Spring Conference, American Academy of
Pediatrics, Mississippi Chapter
January, 2008 Introduction to Spinal Cord Injury; Quarterly Lunch and Learn,
Children’s Rehabilitation Services

Sarah Jane Brain Family State Lead Center of Excellence
For the state of
Missouri
Saint Louis Children's Hospital
www.stlouischildrens.org
REGION: Southcentral CATEGORY OF CARE: Mild TBI
Program Director: Jose Pineda, MD Position Title: Director
Department: Pediatric Neurocritical Care Program
Address: One Children's Place, suite 5S20, St. Louis, MO 63110
Phone: 314‐454‐2545
Email: Pineda_j@kids.wustl.edu
Level 1 Center(s): St. Louis (St. Louis Children's Hospital), Kansas City (Children's Mercy Hospital)
Level 2 Center(s): St. Louis (SSM Cardinal Glennon Children's Hospital), Springfield (St. John's Regional
Health Center), Columbia (University of Missouri Hospital and Clinics)
Level 3 Center(s): Cape Girardeau (St. Francis Medical Center), Rolla (Phelps County Regional Medical
Center), Washington (St. John's Mercy Hospital), Kirksville (Northeast Regional Medical Center)
Number of jobs PABI Grant creates in Missouri: 111
Budget Overview for State Lead Center
State Lead Center Management Sub‐total: $ 5,746,653
Category of Care Management Sub‐total: $ 1,913,347
Case Management Sub‐total: $ 3,955,716
State Lead Center Sub‐total: $ 11,647,716
Indirect Cost to Institution (20%): $ 2,329,543
Administrative Cost to SJBF (2%): $ 232,954
SUB‐TOTAL AMOUNT OF GRANT PROPOSAL: $ 14,210,214

Saint Louis Children's Hospital Profile continued
Title/Description Sub‐total Amount for Grant
STATE LEAD CENTER MANAGEMENT
Program Director: $ 123,200
Program Director Assistant: $ 90,803
State Director: $ 302,678
Associate State Director: $ 131,160
State Epidemiologist: $ 201,785
State Epidemiologist Assistant: $ 90,803
State Scientific Investigation Research Coordinator: $ 171,517
State Scientific Investigation Research Assistant: $ 171,517
State Education/Training Coordinator (plus materials): $ 311,240
State General Counsel: $ 242,142
State IT Manager: $ 191,696
State Family Support Coordinator: $ 151,339
State Prevention/Awareness Coordinator: $ 151,339
State Acute Care Coordinator: $ 151,339
State Reintegration Coordinator: $ 151,339
State Adult Transition Coordinator: $ 151,339
State Mild TBI Coordinator: $ 151,339
State Mental Health Coordinator: $ 131,160
State Assistive/Emerging Technology Coordinator: $ 131,160
State Correctional System Coordinator: $ 131,160
State MISC Coordinator: $ 131,160
State Veterans Coordinator: $ 131,160
State Data Manager: $ 131,160
State Public Policy Manager: $ 151,339
State Community Relations Manager: $ 131,160
State Administrative Support: $ 544,820
Charity care: $ 315,289
Human Resources Support: $ 111,000
Training Support: $ 27,750
State Lead Center Office Space Cost: $ 302,993
State Lead Center Transportation/Travel: $ 102,154
State Lead Center Office Equipment/Communications: $ 197,500
State Lead Center Supplies: $ 97,740
Annual and Regional Conferences: $ 32,000
State Brain Injury Association Pediatric Programs: $ 90,083
STATE LEAD CENTER MANAGEMENT SUB‐TOTAL: $ 5,746,653

Saint Louis Children's Hospital Profile continued
Title/Description Sub‐total Amount for Grant
CATEGORY OF CARE RESPONSIBILITY: Mild TBI
Regional Category Director: $ 302,678
Regional Category Epidemiologist: $ 242,142
Regional Category Education/Training Coordinator: $ 201,785
Regional Category Scientific Investigation Research: $ 201,785
Regional Category Administrative Support: $ 363,213
Regional Category Office Space Cost: $ 87,966
Regional Category Transportation/Travel: $ 157,500
Regional Category Office Equipment/Communications: $ 27,900
Regional Category Supplies: $ 28,376
CATEGORY OF CARE SUB‐TOTAL: $ 1,913,347

Saint Louis Children's Hospital Profile continued
Title/Description Sub‐total Amount for Grant
CASE MANAGEMENT RESPONSIBILITY
Level 1 Center Manager(s): $ 288,265
Level 1 Center Field Specialist(s): $ 230,612
Level 1 Center SJB Family Specialist(s): $ 1,573,925
Level 1 Center Administrative Support: $ 259,438
Level 1 Office Space Cost: $ 47,293
Level 1 Transportation/Travel: $ 54,907
Level 1 Office Equipment/Communications: $ 61,600
Level 1 Supplies: $ 85,579
Level 2 Center Field Specialist(s): $ 207,551
Level 2 Center SJB Family Specialist(s): $ 674,539
Level 2 Transportation/Travel: $ 23,492
Level 2 Office Equipment/Communications: $ 39,900
Level 2 Supplies: $ 28,376
Level 3 Center SJB Family Specialist(s): $ 337,270
Level 3 Transportation/Travel: $ 9,360
Level 3 Office Equipment/Communications: $ 22,800
Level 3 Supplies: $ 10,810
CASE MANAGEMENT SUB‐TOTAL: $ 3,955,716
STATE LEAD CENTER SUB‐TOTAL: $ 11,647,716
INDIRECT COST TO INSTITUTION: $ 2,329,543
ADMINISTRATIVE FEE TO SJBF: $ 232,954
STATE LEAD CENTER SUB‐TOTAL: $ 14,210,214
TOTAL JOBS CREATED IN Missouri: 111

Principal Investigator/Program Director (Last, First, Middle): Pineda, Jose A.
BIOGRAPHICAL SKETCH
Provide the following information for the key personnel and other significant contributors in the order listed on Form Page 2.
Follow this format for each person. DO NOT EXCEED FOUR PAGES.
NAME
Jose A. Pineda
eRA COMMONS USER NAME
PINEDAJ
POSITION TITLE
Assistant Professor in Pediatrics and Neurology
EDUCATION/TRAINING (Begin with baccalaureate or other initial professional education, such as nursing, and include postdoctoral training.)
INSTITUTION AND LOCATION
DEGREE
(if applicable)
YEAR(s) FIELD OF STUDY
Universidad Francisco Marroquin, Guatemala BS 1985-1988 Biology
Universidad Francisco Marroquin, Guatemala MD 1989-1993 Medicine
University of South Florida, Tampa, Florida 1994-1997 Pediatrics
Duke University, Durham, North Carolina 1997-2001 Pediatric Critical Care
A. Positions and Honors:
Positions:
1999-2001 Medical Advisory Panel, Infrared Imaging for Medicine Program,
U.S. Army CECOM Night Vision & Electronics Sensors Directorate
2001-2005 Assistant Professor, University of Florida Dept. of Pediatrics, Division of Critical Care,
Gainesville, FL
2002-2005 Associate Director, Center for Traumatic Brain Injury Studies, Evelyn F. & William L. McKnight
Brain Institute of the University of Florida, Gainesville, FL
2005-Present Assistant Professor of Pediatrics and Neurology, Division of Critical Care Medicine
Washington University School of Medicine, St. Louis, MO
2007-Present Director, Pediatric Neurocritical Care Program, St. Louis Children’s Hospital and Washington
University School of Medicine, St. Louis, MO
Other Experience and Professional Memberships
1999-2001 Medical Advisory Panel, Infrared Imaging for Medicine Program,
U.S. Army CECOM Night Vision & Electronics Sensors Directorate
2004-2005 Advisory Board, Safe Kids Coalition, Gainesville, FL
2004-2005 Scientific Advisory Board, Banyan Diagnostics
Memberships: Guatemalan Society of Bioethics
Guatemalan College of Physicians
American Academy of Pediatrics
National Neurotrauma Society
Society for Neuroscience
Neuro-Critical Care Society
Selected Honors:
1984 Honor Roll, Liceo Javier
1994 Top ten in the Class of 94, UFM School of Medicine
1999 Service Excellence Award, All Children's Hospital
1999 Outstanding Medical Student Teaching, Department of Pediatrics, University of South Florida
1999 1 st Place Physician Research Award, 17 th Annual Scientific Symposium, Society of Critical Care
Medicine, Carolina/Virginia Chapter, Williamsburg, VA
2000 Research Award -Finalist, Department of Anesthesiology Academic Evening, DUMC, Durham, NC
2000 1 st Place Physician Research Award, 18 th Annual Scientific Symposium, Society of Critical Care
Medicine, Carolina/Virginia Chapter, Williamsburg, VA
2001 Children’s Miracle Network Fall Award
PHS 398/2590 (Rev. 11/07) Page Biographical Sketch Format Page

Principal Investigator/Program Director: Pineda, Jose A.
(Last, first, middle)
2001 Howard Hughes Medical Institute Biomedical Research Support Program- New Faculty Start Up Award
2004 Clinical Science Poster Presentation Award, UF College of Medicine Research Day, April 27 2004
Mentored Awards:
2002 Top Abstract Student Poster Competition Award, Joint Symposium of The National and International
Neurotrauma Societies, Tampa, FL(Student: Erik Johnson)
2003 University Scholars Program, University of Florida College of Medicine (Student: Jada Aikman)
2004 Finalist, Best Paper Student Competition, University of Florida Scholars Program (Student: Jada
Aikman)
B. Selected peer-reviewed publications (in chronological order).
1. Nellgard B, Mackensen GB, Pineda J, Wellons JC, Pearlstein RD, Warner DS: Anesthetic Effects on
Cerebral Metabolic Rate Predict Histologic Outcome from Near-complete Forebrain Ischemia in the
Rat. Anesthesiology. 93(2):431-436, August 2000.
2. Pineda JA, Aono M, Sheng H, Lynch J, Wellons JC, Laskowitz DT, Pearlstein RD, Bowler R, Crapo J,
Warner DS: Extracellular superoxide dismutase overexpression improves behavioral outcome from
closed head injury in the mouse. J Neurotrauma. 2001 Jun;18(6):625-34.
3. Lynch JR, Pineda JA, Morgan D, Zhang L, Warner DS, Benveniste H, Laskowitz DT: Apolipoprotein E
affects the central nervous system response to injury and the development of cerebral edema.
Ann Neurol. 2002 Jan;51(1):113-7.
4. Mackensen GB, Sato Y, Nellgard B, Pineda J, Newman MF, Warner DS, Grocott HP: Cardiopulmonary
bypass induces neurologic and neurocognitive dysfunction in the rat. Anesthesiology. 2001
Dec;95(6):1485-91.
5. Modell JH, Idris AH, Pineda JA, Silverstein JH: Survival after prolonged submersion in freshwater in
Florida. Chest; 125(5): 1948-51, May 2004
6. Wainwright MS, Craft JM, Griffin WS, Marks A, Pineda J, Padgett K, Van Eldik L: Increased
Susceptibility of S100B Transgenic Mice to Perinatal Hypoxia-Ischemia. Ann Neurol. 2004 Jul;56(1):61-
7.
7. Johnson E, Pike BR, Tolentino P, Shaw G, Kampfl A, Wang KWW, Hayes RL, Pineda JA: Upregulation
of the Cell Cycle Protein, Survivin, in Astrocytes and Neurons After Experimental Traumatic
Brain Injury in Rats. J Neurotrauma. 2004 Sep; 21(9):1183-95.
8. Ringger NC, O'Steen BE, Brabham JG, Silver X, Pineda J, Wang KKW, Hayes RL, Papa L: A Novel
Marker for Traumatic Brain Injury: CSF II-Spectrin Breakdown Product Levels. J Neurotrauma. 2004
Oct; 21(10): 1443-56.
9. WE. Haskins, FH. Kobeissy, RA. Wolper, AK Ottens, JW Kitlen, MC Liu, SH McClung, AG Lundberg,
Barbara E. O'Steen, Marjorie M. Chow, JA Pineda, Nancy D. Denslow, Ronald L. Hayes, Kevin K.W.
Wang. Rapid Discovery of Putative Protein Biomarkers of Traumatic Brain Injury by SDS-PAGE-
Capillary Liquid Chromatography-Tandem Mass Spectrometry. J Neurotrauma. 2005 Jun;22(6):629-44.
10. Erik A. Johnson, Stanislav I. Svetlov, Kevin K.W. Wang, Ronald L. Hayes, JA Pineda: Cell-specific
DNA Fragmentation May Be Attenuated by a Survivin-dependent Mechanism Following Traumatic
Brain Injury in Rats. Exp Brain Res. 2005 Nov;167(1):17-26.
11. Aikman JM, Osteen BE, Silver X, Torres R, Boslaugh S, Blackband S, Padgett K, Wang KKW, Hayes
RL, Pineda J: Alpha-II-Spectrin After Controlled Cortical Impact In The Immature Rat Brain: Dev
Neurosci. 2006;28(4-5):457-65.
12. Pineda JA, Lewis SB, Valadka AB, Papa L, Hannay HJ, Heaton SC, Demery JA, Liu MC, Aikman JM,
Akle V, Brophy GM, Tepas JJ, Wang KK, Robertson CS, Hayes RL: Clinical significance of Alpha-II-
Spectrin Breakdown Products in CSF after Severe Traumatic Brain Injury. J Neurotrauma. 2007
Feb;24(2):354-66.
13. Germanò A, Caffo M, Angileri FF, Arcadi F, Newcomb-Fernandez J, Caruso G, Meli F, Pineda JA,
Lewis SB, Wang KK, Bramanti P, Costa C, Hayes RL. NMDA receptor antagonist felbamate reduces
behavioral deficits and blood-brain barrier permeability changes after experimental subarachnoid
hemorrhage in the rat. J Neurotrauma. 2007 Apr; 24(4):732-44
PHS 398/2590 (Rev. 11/07) Page ___ Other Support Format Page

Principal Investigator/Program Director: Pineda, Jose A.
(Last, first, middle)
14. Lewis SB, Velat GJ, Miralia L, Papa L, Aikman JM, Wolper RA, Firment CS, Liu MC, Pineda JA, Wang
KK, Hayes RL.Alpha-II spectrin breakdown products in aneurysmal subarachnoid hemorrhage: a novel
biomarker of proteolytic injury. J Neurosurg. 2007 Oct;107(4):792-6
15. Dean NP, Boslaugh S, Adelson PD, Pineda JA, Leonard JR. Physician agreement with evidencebased
recommendations for the treatment of severe traumatic brain injury in children. J Neurosurg.
2007 Nov;107(5):387-391
16. Leonard J, Leonard J, Ray WZ, Pineda JA. Traumatic brain injury in children. Mo Med. 2008 Sep-
Oct;105(5):404-11; quiz 411-2.
17. Brophy GM, Pineda JA, Papa L, Lewis SB, Valadka AB, Hannay HJ, Heaton SC, Demery JA, Liu MC,
Tepas JJ, Gabrielli A, Robicsek S, Wang KK, Robertson CS, Hayes RL. AlphaII-Spectrin Breakdown
Product Cerebrospinal Fluid Exposure Metrics Suggest Differences in Cellular Injury Mechanisms after
Severe Traumatic Brain Injury. J Neurotrauma. 2009 Apr;26(4):471-9.
Invited Publications:
1. Pineda, JA, Book Review: Traumatic Head Injury in Children. Archives of Pediatrics & Adolescent
Medicine. 1997; 151(12):1271
2. Pineda JA: The Future of Traumatic Brain Injury: How Will It Fit Children. Brain Injury Source. Winter
2002; 6(1): 28-30
3. Pineda JA, Zaritsky AL: The relationship of oxygen consumption to cerebral functional activity. The
Journal of Pediatrics 2004; 144(1): 29
4. Pineda JA, Wang KWW, Hayes RL: Biomarkers Of Proteolytic Damage Following Traumatic Brain
Injury. Brain Pathology 2004; 14(2): 202-9
5. Pineda JA, Tepas JJ: Caring for the child with severe traumatic brain injury: Old lessons learned and
new concepts (Editorial). Pediatr Crit Care Med. 2006 Sep;7(5):496-7.
C. Research Support
Ongoing Research Support
Harold Amos Medical Faculty Role: PI 7/1/2009- 6/30/2013
Development Program,
Robert Wood Johnson Foundation
Title: Imaging mitochondrial dysfunction in pediatric brain injury: Impact on outcomes
Project Goals: to use MRI spectroscopy techniques in children with TBI to 1) more accurately evaluate acute
and sub-acute prognosis; and 2) delineate potential therapies addressing mitochondrial dysfunction.
National Institutes of Health Role: Site PI 5/1/2008-4/30/2013
Title: Pediatric TBI Consortium: Hypothermia
Project Goals: multicenter Phase III RCT to test the hypothesis that moderate hypothermia after severe TBI in
children will improve mortality and functional outcome.
Principal Investigator: P. David Adelson, MD University of Pittsburgh
National Institutes of Health Role: Scholar 7/1/2007-7/1/2010
Title: K12 Multidisciplinary Clinical Research Career Development Program
Project Goals: to explore mechanisms of brain metabolic dysfunction and related cell death in children with
severe TBI. Coursework and mentored activities for conferral of a MsC degree in Clinical Investigation.
Principal Investigator: Victoria Fraser, M.D.
National Institutes of Health/ CDC Role: Site PI
Title: Critical Pertussis in U.S. Children: Severe Morbidity, Sequelae, and Mortality: A Prospective Cohort
Study
Project Goals: multicenter prospective cohort study is to describe the societal burden of severe pertussis in the
US pediatric population from clinical and health outcome perspectives.
PHS 398/2590 (Rev. 11/07) Page ___ Other Support Format Page

Completed Research Support
Principal Investigator/Program Director: Pineda, Jose A.
(Last, first, middle)
ANP Technologies, Inc. Role: PI 8/30/2005- 2/28/2006
Phase I STTR contract
Title: Identification of Biomarkers in Traumatic Brain Injury
Project Goals: pilot study for the development of a rapid, user friendly brain injury biomarker assay using a
rapid multiplexed lateral flow immunoassay format.
State of Florida Brain and Spinal Role: Co-Investigator 7/1/2004-7/01/2005
Cord Injury Rehabilitation Trust Fund
Title: Biomarkers of Brain Pathology in Patients with Traumatic Brain Injury (TBI)
Project Goals: To identify markers of apoptotic and necrotic cell death in patients with severe TBI.
Banyan Diagnostics Role: Co-PI 09/01/2004-08/31/2005
Title: Biomarkers of Brain Pathology in Adult Patients with Traumatic Brain Injury
Project Goals: to conduct translational research aimed at validating novel biomarkers of cell death and axonal
injury in adult patients with traumatic brain injury
National Institute of Child Health Role: Co-Investigator 7/01/2003–6/30/2005
and Human Development
Title: Outcome of therapeutic hypothermia in pediatric arrest
Project Goals: to conduct preparatory work for a multicenter clinical trial testing the use of hypothermia after
cardiac arrest in pediatric patients.
Principal Investigator: Arno Zaritsky, M.D.
National Institute of Neurological Role: Site Co-PI 9/1/2001-6/30/2005
Disorders and Stroke
Title: Mitochondria Related Events in TBI: A randomized, Placebo Controlled Study, To Evaluate the Safety,
Tolerability, and Pharmacokinetics of a Single Intravenous Infusion of Cyclosporine A in Patients with Severe
Head Injury
Project Goals: Phase I clinical trial testing the use of Cyclosporine A in adult patients diagnosed with severe
traumatic brain injury.
Principal Investigator: Ross Bullock, M.D. Ph.D. (Medical College of Virginia)
PHS 398/2590 (Rev. 11/07) Page ___ Other Support Format Page

Sarah Jane Brain Family State Lead Center of Excellence
For the state of
Montana
Montana State University Billings / Montana Center on Disabilities
www.msubillings.edu
REGION: Rocky Mountain CATEGORY OF CARE: Rural/Tele‐health
Program Director: Marsha Sampson Position Title: Interim Director
Address: 1500 University Drive, Billings, MT 59101
Phone: (406) 657‐2085
Email: msampson@msubillings.edu
Level 1 Center(s): Billings/Yellowstone/southern
Level 2 Center(s): Great Falls/Cascade/northern, Missoula/western
Level 3 Center(s): Billings (mobile), Great Falls (mobile)
Number of jobs PABI Grant creates in Montana: 84
Budget Overview for State Lead Center
State Lead Center Management Sub‐total: $ 4,859,154
Category of Care Management Sub‐total: $ 3,382,186
Case Management Sub‐total: $ 1,896,313
State Lead Center Sub‐total: $ 10,169,652
Indirect Cost to Institution (20%): $ 2,033,930
Administrative Cost to SJBF (2%): $ 203,393
SUB‐TOTAL AMOUNT OF GRANT PROPOSAL: $ 12,406,976

Montana State University Billings / Montana Center on Disabilities Profile continued
Title/Description Sub‐total Amount for Grant
STATE LEAD CENTER MANAGEMENT
Program Director: $ 96,187
Program Director Assistant: $ 76,531
State Director: $ 255,103
Associate State Director: $ 110,544
State Epidemiologist: $ 170,068
State Epidemiologist Assistant: $ 76,531
State Scientific Investigation Research Coordinator: $ 144,558
State Scientific Investigation Research Assistant: $ 144,558
State Education/Training Coordinator (plus materials): $ 167,424
State General Counsel: $ 204,082
State IT Manager: $ 161,565
State Family Support Coordinator: $ 127,551
State Prevention/Awareness Coordinator: $ 127,551
State Acute Care Coordinator: $ 127,551
State Reintegration Coordinator: $ 127,551
State Adult Transition Coordinator: $ 127,551
State Mild TBI Coordinator: $ 127,551
State Mental Health Coordinator: $ 110,544
State Assistive/Emerging Technology Coordinator: $ 110,544
State Correctional System Coordinator: $ 110,544
State MISC Coordinator: $ 110,544
State Veterans Coordinator: $ 110,544
State Data Manager: $ 110,544
State Public Policy Manager: $ 127,551
State Community Relations Manager: $ 110,544
State Administrative Support: $ 459,185
Charity care: $ 247,534
Human Resources Support: $ 84,000
Training Support: $ 21,000
State Lead Center Office Space Cost: $ 237,880
State Lead Center Transportation/Travel: $ 226,800
State Lead Center Office Equipment/Communications: $ 197,500
State Lead Center Supplies: $ 76,736
Annual and Regional Conferences: $ 32,000
State Brain Injury Association Pediatric Programs: $ 70,724
STATE LEAD CENTER MANAGEMENT SUB‐TOTAL: $ 4,859,154

Montana State University Billings / Montana Center on Disabilities Profile continued
Title/Description Sub‐total Amount for Grant
CATEGORY OF CARE RESPONSIBILITY: Rural/Tele‐health
Regional Category Director: $ 255,103
Regional Category Epidemiologist: $ 204,082
Regional Category Education/Training Coordinator: $ 170,068
Regional Category Scientific Investigation Research: $ 170,068
Regional Category Administrative Support: $ 306,123
Regional Category Office Space Cost: $ 69,062
Regional Category Transportation/Travel: $ 157,500
Regional Category Office Equipment/Communications: $ 27,900
Regional Category Supplies: $ 22,278
CATEGORY OF CARE SUB‐TOTAL: $ 3,382,186

Montana State University Billings / Montana Center on Disabilities Profile continued
Title/Description Sub‐total Amount for Grant
CASE MANAGEMENT RESPONSIBILITY
Level 1 Center Manager(s): $ 121,477
Level 1 Center Field Specialist(s): $ 97,182
Level 1 Center SJB Family Specialist(s): $ 663,267
Level 1 Center Administrative Support: $ 109,330
Level 1 Office Space Cost: $ 37,130
Level 1 Transportation/Travel: $ 55,800
Level 1 Office Equipment/Communications: $ 33,800
Level 1 Supplies: $ 42,434
Level 2 Center Field Specialist(s): $ 116,618
Level 2 Center SJB Family Specialist(s): $ 379,010
Level 2 Transportation/Travel: $ 31,680
Level 2 Office Equipment/Communications: $ 26,600
Level 2 Supplies: $ 14,852
Level 3 Center SJB Family Specialist(s): $ 142,129
Level 3 Transportation/Travel: $ 9,360
Level 3 Office Equipment/Communications: $ 11,400
Level 3 Supplies: $ 4,243
CASE MANAGEMENT SUB‐TOTAL: $ 1,896,313
STATE LEAD CENTER SUB‐TOTAL: $ 10,169,652
INDIRECT COST TO INSTITUTION: $ 2,033,930
ADMINISTRATIVE FEE TO SJBF: $ 203,393
STATE LEAD CENTER SUB‐TOTAL: $ 12,406,976
TOTAL JOBS CREATED IN Montana: 84

NAME: Marsha Sampson
TITLE: Interim Director
Montana Center on Disabilities, Montana State University-Billings
1. ACADEMIC DEGREES
DEGREE INSTITUTION AREA
BA Carroll College - Helena, MT Sociology/Social Work
Master of Education MSU-Billings – Billings, MT Multidisciplinary Studies Option
2. PROFESSIONAL EXPERIENCE
DATES ORGANIZATION POSITION
2005 to Present Montana Center on Interim Director
Disabilities (MCD)
American Indian Big Sky
Projects (AIBSP) Interim Director
2003 to 2005 Montana Center on Interim Director
Disabilities (MCD)
2001 to 2003 Montana Center on Coordinator of Service Programs
Disabilities (MCD)
2000 to 2001 Montana Center on Interim Coordinator
Disabilities (MCD) of Service Programs
1999 to 2000 Equity for Young Women Project Director
with Disabilities Project
MT Outreach for Social
Security Project, and CSPD
/MCD
1998 to 1999 Montana Systems Change Project Director
1996 to 1998 Transition Grant/MCD Training Coordinator
1995-1996 COR Enterprises Job Development/
Rural Field Coordinator
1991-1995 MSU-Billings Employment Specialist
1987-1991 Billings Public Schools Special Education Paraeducator
3. REPRESENTATIVE PRESENTATIONS
• Utilizing Paraeducators as Community Links, NISBA Conference, Grand Rapids, MI, 7/03.
• Utilizing Paraeducators as Community Links, 22 nd Annual National Conference for Paraprofessionals,
Los Angeles, CA, 5/03.
• Utilizing Paraeducators as Community Links, 2003 OSEP Joint Personnel Preparation/State
Improvement/CSPD Conference, Washington DC, 2/03.
• Paraeducators as Community Links, NISBA Conference, Phoenix, AZ, 7/00.

• Region IV Paraeducator Summer Institute, Belgrade, MT, 8/00.
• Transition, MT Association for Rehabilitation Conference, West Yellowstone, MT, 10/99.
• Transition Resources and Partnerships, MT CEC Special Education Conference, Missoula, MT, 4/98.
• Performing Functional Community-Based Vocational Assessments, MT Conference on Developmental
Disabilities, Billings, MT, 10/97.
• Methods for Coordinating Education and Employment Plans Workshop on Welfare Reform, HRDC,
Billings, MT, 6/97.
• Functional Vocational Evaluation Presentation MT Council for Exceptional Children Statewide
Conference, Billings, MT, 4/97.
• Providing Work Experiences for Students with Disabilities Workshop at Lewistown, MT, 3/97.
• Collaboration Strategies Presentation at MT Association of Rehabilitation Statewide Conference, Polson,
MT, 10/96.
4. REPRESENTATIVE CONSULTATIONS
• Crow Tribal Disabilities Services, Crow Agency, MT, 6/94-6/95.
• Training in job development and job coaching, Big Horn Industries, Hardin, MT, 6/94-6/95.
• Training in job development and job training, COR Enterprises, Billings, MT, 1/94-9/94.
• Transition from school to work, Columbus High School, Columbus, MT, 10/94.
• Transition from school to work, Sweetgrass County High School, Big Timber, MT, 9/93-1/94.
• Transition from school to work, Absarokee High School, Absarokee, MT, 5/93-7/93.
5. PROFESSIONAL ORGANIZATIONS
• American Council on Rural Special Education
• Montana Association of Rehabilitation
• Region III Comprehensive System of Personnel Development
• State Comprehensive System of Personnel Development Council
• State Traumatic Brain Injury Advisory Council
• TRIC/PLUK Advisory Board
• Yellowstone County Resource Advisory Committee
6. PUBLICATIONS
• Sampson M., Hermanson J., & Griffin, C. (2000). Connecting with the Community. In M. S.
Fishbaugh (ED.), The Collaboration Guide for Early Career Educators (pp. 79-99). Baltimore,
Maryland: Paul H. Brooks Publishing Co.

Sarah Jane Brain Family State Lead Center of Excellence
For the state of
Nebraska
Madonna Rehabilitation Hospital
www.madonna.org
REGION: Rocky Mountain CATEGORY OF CARE: Reintegration
Program Director: Holly Schifsky Position Title: Pediatric Program Manager
Department: Adolescent & Children's Rehabilitation Program
Address: 3640 San Mateo Lane, Lincoln, NE 68516
Phone: 402‐483‐9697
Email: hschifsky@madonna.org
Level 1 Center(s): Lincoln
Level 2 Center(s): Omaha, Kearney, Scottsbluff
Level 3 Center(s): North Platte, Valentine, Norfolk
Number of jobs PABI Grant creates in Nebraska: 94
Budget Overview for State Lead Center
State Lead Center Management Sub‐total: $ 5,485,691
Category of Care Management Sub‐total: $ 1,644,544
Case Management Sub‐total: $ 2,578,422
State Lead Center Sub‐total: $ 9,740,657
Indirect Cost to Institution (20%): $ 1,948,131
Administrative Cost to SJBF (2%): $ 194,813
SUB‐TOTAL AMOUNT OF GRANT PROPOSAL: $ 11,883,602

Madonna Rehabilitation Hospital Profile continued
Title/Description Sub‐total Amount for Grant
STATE LEAD CENTER MANAGEMENT
Program Director: $ 61,250
Program Director Assistant: $ 88,310
State Director: $ 294,368
Associate State Director: $ 127,559
State Epidemiologist: $ 196,245
State Epidemiologist Assistant: $ 88,310
State Scientific Investigation Research Coordinator: $ 166,808
State Scientific Investigation Research Assistant: $ 166,808
State Education/Training Coordinator (plus materials): $ 208,960
State General Counsel: $ 235,494
State IT Manager: $ 186,433
State Family Support Coordinator: $ 147,184
State Prevention/Awareness Coordinator: $ 147,184
State Acute Care Coordinator: $ 147,184
State Reintegration Coordinator: $ 147,184
State Adult Transition Coordinator: $ 147,184
State Mild TBI Coordinator: $ 147,184
State Mental Health Coordinator: $ 127,559
State Assistive/Emerging Technology Coordinator: $ 127,559
State Correctional System Coordinator: $ 127,559
State MISC Coordinator: $ 127,559
State Veterans Coordinator: $ 127,559
State Data Manager: $ 127,559
State Public Policy Manager: $ 147,184
State Community Relations Manager: $ 127,559
State Administrative Support: $ 529,862
Charity care: $ 280,350
Human Resources Support: $ 94,000
Training Support: $ 23,500
State Lead Center Office Space Cost: $ 269,417
State Lead Center Transportation/Travel: $ 226,800
State Lead Center Office Equipment/Communications: $ 197,500
State Lead Center Supplies: $ 86,909
Annual and Regional Conferences: $ 32,000
State Brain Injury Association Pediatric Programs: $ 80,100
STATE LEAD CENTER MANAGEMENT SUB‐TOTAL: $ 5,485,691

Madonna Rehabilitation Hospital Profile continued
Title/Description Sub‐total Amount for Grant
CATEGORY OF CARE RESPONSIBILITY: Reintegration
Regional Category Director: $ 294,368
Regional Category Epidemiologist: $ 235,494
Regional Category Education/Training Coordinator: $ 196,245
Regional Category Scientific Investigation Research: $ 196,245
Regional Assistive/Emerging Technology Coordinator: $ 196,245
Regional Category Administrative Support: $ 353,241
Regional Category Office Space Cost: $ 78,218
Regional Category Transportation/Travel: $ 157,500
Regional Category Office Equipment/Communications: $ 27,900
Regional Category Supplies: $ 25,232
CATEGORY OF CARE SUB‐TOTAL: $ 1,644,544

Madonna Rehabilitation Hospital Profile continued
Title/Description Sub‐total Amount for Grant
CASE MANAGEMENT RESPONSIBILITY
Level 1 Center Manager(s): $ 140,175
Level 1 Center Field Specialist(s): $ 112,140
Level 1 Center SJB Family Specialist(s): $ 765,356
Level 1 Center Administrative Support: $ 126,158
Level 1 Office Space Cost: $ 42,053
Level 1 Transportation/Travel: $ 55,800
Level 1 Office Equipment/Communications: $ 33,800
Level 1 Supplies: $ 48,060
Level 2 Center Field Specialist(s): $ 201,852
Level 2 Center SJB Family Specialist(s): $ 656,020
Level 2 Transportation/Travel: $ 47,520
Level 2 Office Equipment/Communications: $ 39,900
Level 2 Supplies: $ 25,232
Level 3 Center SJB Family Specialist(s): $ 246,007
Level 3 Transportation/Travel: $ 14,040
Level 3 Office Equipment/Communications: $ 17,100
Level 3 Supplies: $ 7,209
CASE MANAGEMENT SUB‐TOTAL: $ 2,578,422
STATE LEAD CENTER SUB‐TOTAL: $ 9,740,657
INDIRECT COST TO INSTITUTION: $ 1,948,131
ADMINISTRATIVE FEE TO SJBF: $ 194,813
STATE LEAD CENTER SUB‐TOTAL: $ 11,883,602
TOTAL JOBS CREATED IN Nebraska: 94

Holly M. Schifsky
3640 San Mateo Lane
Lincoln, NE 68516
Phone: (402) 483-9697
e-mail: hschifsky@madonna.org
An experienced occupational therapist, now specializing in pediatric rehabilitation and
program management for a large free-standing rehabilitation hospital. I have extensive
knowledge and training in pediatric recovery from brain injury, spinal cord injury, burn
injuries, major multiple trauma, orthopedics, and pulmonary insufficiency. I provide
clinical education on all areas of pediatrics and am responsible for the overall quality of
the pediatric program at my facility. In addition to staff training; I ensure program
compliance with regulatory agencies, lead quality improvement initiatives, implement
marketing plans, and complete data analysis for future growth.
Professional and Teaching Opportunities
March 2009: In-house Education “Tone Management Techniques to Maximize Upper
Extremity Function”
Feb 2009: In-house Education “Multi-Disciplinary Approach to Pediatric Pulmonary
Care”
Oct. 2008: Midwest Burn Conference presenter on “Maximizing Upper Extremity
Outcomes Post Burn Injury”
Yearly CEU presentations to case managers “Best Practices in Pediatric Rehabilitation”
Yearly Guest Lecturer at University of Nebraska Medical Center Physical Therapy
program; Topic “Vision and Vestibular Deficits” and “Behavior Management post Brain
Injury”
Yearly Guest Lecturer at College of St. Mary’s Occupational Therapy program: Topic
“Upper Extremity Tone Management”
Yearly Grand Rounds presentation at Madonna Rehabilitation Hospital: “Innovations in
Pediatric Rehabilitation”
Jan. 2008: In-house education “Burn Rehabilitation for the Adult and Pediatric Patient”
March 2008: In-house education “Rehabilitation of the Burned Hand”
Pediatric Program Manager: 2006-present: Job responsibilities include: ensuring
program compliance with regulatory agencies, leading quality improvement initiatives,
implementing marketing plans, physician meetings, and completing data analysis for
future growth

Staff Occupational Therapist: 1997-present: Provide daily treatment, evaluation, and
training to pediatric and adult patients within a large free-standing rehabilitation hospital.
Primary caseload consists of pediatric trauma survivors and young adult brain injury
survivors. Senior level staff responsible for all training on serial casting, burn
cares/rehabilitation, dynamic splinting, pediatric rehabilitation techniques, and spasticity
management training.
Fieldwork Coordinator for Occupational Therapy Department: 2000-2006. Coordinated
all student fieldwork rotations within the hospital, mentoring to students and clinical
supervisors, and primary contact for university regarding students performance.
Pediatric Program Leader: 2004-2006: Completed data analysis and quarterly report
information for program improvement. Limited amount of marketing and external
speaking opportunities.
Education
University of North Dakota, Grand Forks: Graduated 1997 with a Bachelor of Science in
Occupational Therapy
Advanced certification by the state of Nebraska in physical agent modalities: 2006
Advanced certification for Bioness H200 in 2007
Completed AACBIS training and certification in August 2009
Trained in serial casting, dynamic orthotics, wound care, vision therapy, pediatrics,
kinesiotaping, spasticity management, CPI, manual edema mobilization
Awards
2004 Recipient of the GeorgeAnn Claussen award of excellence for patient care by
Madonna Rehabilitation Hospital
2005 Nebraska Occupational Therapy Practitioner of the Year Recipient
Member of NOTA and AOTA

Sarah Jane Brain Family State Lead Center of Excellence
For the state of
Nevada
Sunrise Children's Hospital
www.sunrisehospital.com
REGION: Pacific CATEGORY OF CARE: Adult Transition
Program Director: James Swift, MD Position Title: Director
Department: Pediatric ICU
Address: 3186 S Maryland Parkway, Las Vegas, NV 89109
Phone: (702) 697‐5234
Email:
Level 1 Center(s): Las Vegas, Reno
Level 2 Center(s): Carson City, Elko
Level 3 Center(s): Henderson, Pahrump, Mesquite
Number of jobs PABI Grant creates in Nevada: 101
Budget Overview for State Lead Center
State Lead Center Management Sub‐total: $ 5,814,941
Category of Care Management Sub‐total: $ 1,764,572
Case Management Sub‐total: $ 3,676,099
State Lead Center Sub‐total: $ 11,287,612
Indirect Cost to Institution (20%): $ 2,257,522
Administrative Cost to SJBF (2%): $ 225,752
SUB‐TOTAL AMOUNT OF GRANT PROPOSAL: $ 13,770,886

Sunrise Children's Hospital Profile continued
Title/Description Sub‐total Amount for Grant
STATE LEAD CENTER MANAGEMENT
Program Director: $ 79,625
Program Director Assistant: $ 94,659
State Director: $ 315,529
Associate State Director: $ 136,729
State Epidemiologist: $ 210,353
State Epidemiologist Assistant: $ 94,659
State Scientific Investigation Research Coordinator: $ 178,800
State Scientific Investigation Research Assistant: $ 178,800
State Education/Training Coordinator (plus materials): $ 240,256
State General Counsel: $ 252,423
State IT Manager: $ 199,835
State Family Support Coordinator: $ 157,765
State Prevention/Awareness Coordinator: $ 157,765
State Acute Care Coordinator: $ 157,765
State Reintegration Coordinator: $ 157,765
State Adult Transition Coordinator: $ 157,765
State Mild TBI Coordinator: $ 157,765
State Mental Health Coordinator: $ 136,729
State Assistive/Emerging Technology Coordinator: $ 136,729
State Correctional System Coordinator: $ 136,729
State MISC Coordinator: $ 136,729
State Veterans Coordinator: $ 136,729
State Data Manager: $ 136,729
State Public Policy Manager: $ 157,765
State Community Relations Manager: $ 136,729
State Administrative Support: $ 567,952
Charity care: $ 323,620
Human Resources Support: $ 101,000
Training Support: $ 25,250
State Lead Center Office Space Cost: $ 310,998
State Lead Center Transportation/Travel: $ 104,853
State Lead Center Office Equipment/Communications: $ 197,500
State Lead Center Supplies: $ 100,322
Annual and Regional Conferences: $ 32,000
State Brain Injury Association Pediatric Programs: $ 92,463
STATE LEAD CENTER MANAGEMENT SUB‐TOTAL: $ 5,814,941

Sunrise Children's Hospital Profile continued
Title/Description Sub‐total Amount for Grant
CATEGORY OF CARE RESPONSIBILITY: Adult Transition
Regional Category Director: $ 315,529
Regional Category Epidemiologist: $ 252,423
Regional Category Education/Training Coordinator: $ 210,353
Regional Category Scientific Investigation Research: $ 210,353
Regional Veteran Coordinator: $ 210,353
Regional Additional Tech
Regional Category Administrative Support: $ 378,635
Regional Category Office Space Cost: $ 90,290
Regional Category Transportation/Travel: $ 157,500
Regional Category Office Equipment/Communications: $ 27,900
Regional Category Supplies: $ 29,126
CATEGORY OF CARE SUB‐TOTAL: $ 1,764,572

Sunrise Children's Hospital Profile continued
Title/Description Sub‐total Amount for Grant
CASE MANAGEMENT RESPONSIBILITY
Level 1 Center Manager(s): $ 300,504
Level 1 Center Field Specialist(s): $ 240,403
Level 1 Center SJB Family Specialist(s): $ 1,640,751
Level 1 Center Administrative Support: $ 270,454
Level 1 Office Space Cost: $ 48,543
Level 1 Transportation/Travel: $ 55,122
Level 1 Office Equipment/Communications: $ 61,600
Level 1 Supplies: $ 87,840
Level 2 Center Field Specialist(s): $ 144,242
Level 2 Center SJB Family Specialist(s): $ 468,786
Level 2 Transportation/Travel: $ 15,704
Level 2 Office Equipment/Communications: $ 26,600
Level 2 Supplies: $ 19,417
Level 3 Center SJB Family Specialist(s): $ 263,692
Level 3 Transportation/Travel: $ 7,020
Level 3 Office Equipment/Communications: $ 17,100
Level 3 Supplies: $ 8,322
CASE MANAGEMENT SUB‐TOTAL: $ 3,676,099
STATE LEAD CENTER SUB‐TOTAL: $ 11,287,612
INDIRECT COST TO INSTITUTION: $ 2,257,522
ADMINISTRATIVE FEE TO SJBF: $ 225,752
STATE LEAD CENTER SUB‐TOTAL: $ 13,770,886
TOTAL JOBS CREATED IN Nevada: 101

James D. Swift, MD, FAAP
Dr. Swift received his undergraduate degree in Biological Sciences from the University of La
Verne, graduating Summa Cum Laude. He attended the University of Health Science/Chicago
Medical School where he received his doctoral degree in Medicine. Dr. Swift was selected as
one of only two candidates to participate in a combined post-graduate training program in
Internal Medicine and Pediatrics at Loma Linda University Medical Center. Upon completion of
his residency training, he was selected as a fellow in Pediatric Critical Care Medicine through a
combined program at Harbor/UCLA/Children's Hospital of Orange County/Martin-Luther King
Jr. Medical Center.
In 1996, Dr. Swift founded Children's Critical Care Network. Children's Critical Care Network
of Nevada and California is a medical practice management company, which provides physician
coverage and medical expertise to tertiary pediatric facilities in the U.S. As CEO of Children's
Critical Care Network, he has developed a "hospitalist" approach to inpatient pediatric care from
General Pediatrics to ICU. Based on the strength and success of Children's Critical Care
Network, Dr. Swift founded Children's Emergency Medicine Network, which provides pediatric
emergency medicine coverage to children's hospitals.
Dr. Swift has been published in numerous textbooks and peer reviewed journals, and is an
invited speaker at many medical society meetings throughout the country. His area of research
interests include; High Frequency Ventilation, ECMO, Novel Therapies in Lung Injury, and
"Hospitalist" Care in the United States.

Sarah Jane Brain Family State Lead Center of Excellence
For the state of
New Hampshire
Dartmouth Medical School
dms.dartmouth.edu
REGION: Northeast CATEGORY OF CARE: Adult Transition
Program Director: Beth Pearson, MSW Position Title: Program Manager
Department: Hood Center for Children & Families
Address: One Medical Center Drive, HB 7465, Lebanon, NH 03756
Phone: 603‐653‐3163
Email: Elizabeth.Pearson@Dartmouth.edu
Level 1 Center(s): Hanover
Level 2 Center(s): Manchester
Level 3 Center(s): Berlin, Nashua
Number of jobs PABI Grant creates in New Hampshire: 77
Budget Overview for State Lead Center
State Lead Center Management Sub‐total: $ 6,073,359
Category of Care Management Sub‐total: $ 1,865,985
Case Management Sub‐total: $ 2,043,925
State Lead Center Sub‐total: $ 10,015,268
Indirect Cost to Institution (20%): $ 2,003,054
Administrative Cost to SJBF (2%): $ 200,305
SUB‐TOTAL AMOUNT OF GRANT PROPOSAL: $ 12,218,627

Dartmouth Medical School Profile continued
Title/Description Sub‐total Amount for Grant
STATE LEAD CENTER MANAGEMENT
Program Director: $ 56,875
Program Director Assistant: $ 100,738
State Director: $ 335,792
Associate State Director: $ 145,510
State Epidemiologist: $ 223,861
State Epidemiologist Assistant: $ 100,738
State Scientific Investigation Research Coordinator: $ 190,282
State Scientific Investigation Research Assistant: $ 190,282
State Education/Training Coordinator (plus materials): $ 221,382
State General Counsel: $ 268,634
State IT Manager: $ 212,668
State Family Support Coordinator: $ 167,896
State Prevention/Awareness Coordinator: $ 167,896
State Acute Care Coordinator: $ 167,896
State Reintegration Coordinator: $ 167,896
State Adult Transition Coordinator: $ 167,896
State Mild TBI Coordinator: $ 167,896
State Mental Health Coordinator: $ 145,510
State Assistive/Emerging Technology Coordinator: $ 145,510
State Correctional System Coordinator: $ 145,510
State MISC Coordinator: $ 145,510
State Veterans Coordinator: $ 145,510
State Data Manager: $ 145,510
State Public Policy Manager: $ 167,896
State Community Relations Manager: $ 145,510
State Administrative Support: $ 604,426
Charity care: $ 344,402
Human Resources Support: $ 77,000
Training Support: $ 19,250
State Lead Center Office Space Cost: $ 330,970
State Lead Center Transportation/Travel: $ 111,586
State Lead Center Office Equipment/Communications: $ 197,500
State Lead Center Supplies: $ 106,765
Annual and Regional Conferences: $ 32,000
State Brain Injury Association Pediatric Programs: $ 98,401
STATE LEAD CENTER MANAGEMENT SUB‐TOTAL: $ 6,073,359

Dartmouth Medical School Profile continued
Title/Description Sub‐total Amount for Grant
CATEGORY OF CARE RESPONSIBILITY: Adult Transition
Regional Category Director: $ 335,792
Regional Category Epidemiologist: $ 268,634
Regional Category Education/Training Coordinator: $ 223,861
Regional Category Scientific Investigation Research: $ 223,861
Regional Veteran Coordinator: $ 223,861
Regional Category Administrative Support: $ 402,950
Regional Category Office Space Cost: $ 96,088
Regional Category Transportation/Travel: $ 157,500
Regional Category Office Equipment/Communications: $ 27,900
Regional Category Supplies: $ 30,996
CATEGORY OF CARE SUB‐TOTAL: $ 1,865,985

Dartmouth Medical School Profile continued
Title/Description Sub‐total Amount for Grant
CASE MANAGEMENT RESPONSIBILITY
Level 1 Center Manager(s): $ 159,901
Level 1 Center Field Specialist(s): $ 127,921
Level 1 Center SJB Family Specialist(s): $ 873,059
Level 1 Center Administrative Support: $ 143,911
Level 1 Office Space Cost: $ 51,660
Level 1 Transportation/Travel: $ 27,828
Level 1 Office Equipment/Communications: $ 33,800
Level 1 Supplies: $ 59,040
Level 2 Center Field Specialist(s): $ 76,752
Level 2 Center SJB Family Specialist(s): $ 249,446
Level 2 Transportation/Travel: $ 7,906
Level 2 Office Equipment/Communications: $ 13,300
Level 2 Supplies: $ 10,332
Level 3 Center SJB Family Specialist(s): $ 187,084
Level 3 Transportation/Travel: $ 4,680
Level 3 Office Equipment/Communications: $ 11,400
Level 3 Supplies: $ 5,904
CASE MANAGEMENT SUB‐TOTAL: $ 2,043,925
STATE LEAD CENTER SUB‐TOTAL: $ 10,015,268
INDIRECT COST TO INSTITUTION: $ 2,003,054
ADMINISTRATIVE FEE TO SJBF: $ 200,305
STATE LEAD CENTER SUB‐TOTAL: $ 12,218,627
TOTAL JOBS CREATED IN New Hampshire: 77

BIOGRAPHICAL SKETCH
NAME POSITION TITLE
ELIZABETH PEARSON (PHILP) Program Manager
EDUCATION/TRAINING
INSTITUTION AND LOCATION
DEGREE
(if applicable)
YEAR(s) FIELD OF STUDY
Anderson College, Anderson, IN B.A. 1980 Psychology / Sociology
Boston College, Boston, MA M.S.W. 1993 Clinical Social Work
Columbia University, New York, NY Ph.D.
Expected Advanced Clinical Practice
candidate defense
September
2009
RESEARCH AND PROFESSIONAL EXPERIENCE:
Professional Experience
2002-current Program Manager, Hood Center for Children and Families, Dartmouth Medical School,
Lebanon, NH
2000-2002 Program Evaluator, Maine Center for Public Health, Augusta, ME
1999-2000 Assistant Professor, Western Carolina University, Cullowhee, NC
1996-1998 Director of Clinical Education, Victim Services, Inc. New York, NY
Project Director; COPS Project funded by the National Institute of Justice, survey research and
curriculum development project for the NYPD training academy
1995-1996 Managed Care Consultant; The Bronx Health Plan, Bronx, NY
Managed Care Consultant, Massachusetts General Hospital, Boston, MA
1992-1995 Clinical Social Worker, Massachusetts General Hospital, Boston, MA
1993-1995 Managed Care Coordinator, Massachusetts General Hospital, Boston, MA
1989-1992 Editor, Health and Mental Health Care Group, SOFTbase Publications, Digital Equipment Company,
Maynard, MA
1987-1988 Coordinator of State Projects, National Head Injury Foundation, Southborough, MA
1985-1987 Sexual Abuse Investigator, Texas Department of Human Services, Denton County, TX
1982- 1984 Research Assistant / Technical Writer, Genetics Screening and Counseling Center, Denton, TX
1980-1982 Sponsorship Coordinator, Cuban Refugee Relocation Program, Psychiatric Hospital, Ft. Chaffee, AR
Publications
Pearson, E. (1998) Battered christian women. In C.C. Kroeger, & J.R. Beck (Eds.), Healing the hurting: Giving
hope and help to abused women. Grand Rapids, MI: Baker Books.
Philp, E.P.; Berkman, B. (2000) Biotechnology, human health care services delivery and the complex additive of
managed care systems. In N. Veeder & W. Peebles-Wilkins (Eds.), Managed care services: Policy, programs and
research. New York: Oxford University Press.
Jackson, H.C.; Philp, E.P., Nuttall, R. (2002). Traumatic brain injury: A hidden consequence for battered women.
Professional Psychology: Research and Practice, 33 (1) 39-45.
Jackson, H.C.; Philp, E.P., Nuttall, R. (2004). Battered women and traumatic brain injury. In, Kendall-Tackett, K.
R(d). Health consequences of abuse in the family: A clinical guide for evidence-based practice. American Psychological
Association, Washington DC.

Funding Received
2007 Maine Health Access Foundation. Maine National Guard Screening for mTBI.
2007 Maine Brain Injury Association. Prevalence and Correlates of mTbi Among Battered Women in Maine
1994 Episcopal Diocese of Massachusetts Research Grant. A Study of Religious Belief Among a Select Population of
Battered Women.
Curriculum Development
Domestic Violence: Basic Issues in Intervention
Domestic Violence as Trauma
Vicarious Trauma: Helping the Helper
Counseling Skills
Suicide and Homicide Assessment and Intervention
Cultural Issues in a Clinical Relationship
Empirical Practice
Managed Care and Clinical Social Work Practice
Selected Presentations
Pearson, Elizabeth (2009, March) Domestic Violence and Brain Injury in the State of Maine. Maine Traumatic
Brain Injury Conference.
Pearson, Elizabeth, Lovell, Mark (2009, February. Concussive injuries among National Guard service members.
Using screening protocols for care planning. Maine National Guard Screening Project.
Pearson, Elizabeth (2008, November). Domestic Violence and mTBI. New England Military-Civilian
Cooperation Conference: Psychological Health and Traumatic Brain Injury
Jackson, H. C., Philp, E.P.(1998, January). Traumatic Brain Injury as a correlate of Battered Woman Syndrome.
Presented at the International Conference on Research for Social Work Practice, Miami, FL.
Jackson, H. C., Philp, E.P.(1998, November). Neurobehavioral Effects of Repetitive Battering Presented at the
annual meeting of the Association for the Advancement of Behavior Therapy, Washington, DC.
Philp, E.P. (June 1996). Vicarious Trauma: Helping the Helper. Grand Rounds presentation to the New York
University / Bellevue Hospital Departments of Social Service, New York, NY.
Philp, E.P. (January, 1996). Spirituality as a Factor in Trauma Response. Grand Rounds presentation to the New
York Hospital Department of Social Work, New York, NY.
Philp, E.P. (October, 1994). Religious Belief as a component in the psychosocial assessment of battered women.
Grand Rounds presentation to the Massachusetts General Hospital Department of Social Work, Boston, MA.
Philp, E.P. (March, 1994). Religious Belief and the Response to Battering: The experience of Sixty Battered
Christian Women. Presented at the annual convention of Christians for Biblical Equality, Chicago, IL.

Sarah Jane Brain Family State Lead Center of Excellence
For the state of
New Jersey
Brain Injury Association of New Jersey
www.bianj.org
REGION: Mid‐Atlantic CATEGORY OF CARE: Adult Transition
Program Director: Barbara Geiger‐Parker Position Title: President & CEO
Address: 825 Georges Road, 2nd Floor, North Brunswick, NJ 08902
Phone: 732‐745‐0200
Email: bgeigerparker@bianj.org
Program Director: Rene Carfi Position Title: Associate Director of Services
Address: 825 Georges Road, 2nd Floor, North Brunswick, NJ 08902
Phone: 732‐745‐0200
Email: rcarfi@bianj.org
Level 1 Center(s): Camden City, North Brunswick, Newark, Hackensack
Level 2 Center(s): Atlantic County, Paterson
Level 3 Center(s): Jersey City, Morristown, Trenton, Ocean County, Vineland, Sussex/Warren Counties
Number of jobs PABI Grant creates in New Jersey: 138
Budget Overview for State Lead Center
State Lead Center Management Sub‐total: $ 7,912,784
Category of Care Management Sub‐total: $ 2,312,325
Case Management Sub‐total: $ 8,792,580
State Lead Center Sub‐total: $ 19,049,688
Indirect Cost to Institution (20%): $ 3,809,938
Administrative Cost to SJBF (2%): $ 380,994
SUB‐TOTAL AMOUNT OF GRANT PROPOSAL: $ 23,240,620

Brain Injury Association of New Jersey Profile continued
Title/Description Sub‐total Amount for Grant
STATE LEAD CENTER MANAGEMENT
Program Director: $ 173,250
Program Director Assistant: $ 127,752
State Director: $ 425,839
Associate State Director: $ 184,530
State Epidemiologist: $ 283,893
State Epidemiologist Assistant: $ 127,752
State Scientific Investigation Research Coordinator: $ 241,309
State Scientific Investigation Research Assistant: $ 241,309
State Education/Training Coordinator (plus materials): $ 446,526
State General Counsel: $ 340,672
State IT Manager: $ 269,698
State Family Support Coordinator: $ 212,920
State Prevention/Awareness Coordinator: $ 212,920
State Acute Care Coordinator: $ 212,920
State Reintegration Coordinator: $ 212,920
State Adult Transition Coordinator: $ 212,920
State Mild TBI Coordinator: $ 212,920
State Mental Health Coordinator: $ 184,530
State Assistive/Emerging Technology Coordinator: $ 184,530
State Correctional System Coordinator: $ 184,530
State MISC Coordinator: $ 184,530
State Veterans Coordinator: $ 184,530
State Data Manager: $ 184,530
State Public Policy Manager: $ 212,920
State Community Relations Manager: $ 184,530
State Administrative Support: $ 766,511
Charity care: $ 430,141
Human Resources Support: $ 138,000
Training Support: $ 34,500
State Lead Center Office Space Cost: $ 413,365
State Lead Center Transportation/Travel: $ 113,400
State Lead Center Office Equipment/Communications: $ 197,500
State Lead Center Supplies: $ 133,344
Annual and Regional Conferences: $ 32,000
State Brain Injury Association Pediatric Programs: $ 122,897
STATE LEAD CENTER MANAGEMENT SUB‐TOTAL: $ 7,912,784

Brain Injury Association of New Jersey Profile continued
Title/Description Sub‐total Amount for Grant
CATEGORY OF CARE RESPONSIBILITY: Adult Transition
Regional Category Director: $ 425,839
Regional Category Epidemiologist: $ 340,672
Regional Category Education/Training Coordinator: $ 283,893
Regional Category Scientific Investigation Research: $ 283,893
Regional Veteran Coordinator: $ 283,893
Regional Category Administrative Support: $ 511,007
Regional Category Office Space Cost: $ 120,009
Regional Category Transportation/Travel: $ 157,500
Regional Category Office Equipment/Communications: $ 27,900
Regional Category Supplies: $ 38,713
CATEGORY OF CARE SUB‐TOTAL: $ 2,312,325

Brain Injury Association of New Jersey Profile continued
Title/Description Sub‐total Amount for Grant
CASE MANAGEMENT RESPONSIBILITY
Level 1 Center Manager(s): $ 811,123
Level 1 Center Field Specialist(s): $ 648,898
Level 1 Center SJB Family Specialist(s): $ 4,428,731
Level 1 Center Administrative Support: $ 730,011
Level 1 Office Space Cost: $ 64,521
Level 1 Transportation/Travel: $ 111,600
Level 1 Office Equipment/Communications: $ 117,200
Level 1 Supplies: $ 202,781
Level 2 Center Field Specialist(s): $ 194,669
Level 2 Center SJB Family Specialist(s): $ 632,676
Level 2 Transportation/Travel: $ 15,840
Level 2 Office Equipment/Communications: $ 26,600
Level 2 Supplies: $ 25,808
Level 3 Center SJB Family Specialist(s): $ 711,760
Level 3 Transportation/Travel: $ 14,040
Level 3 Office Equipment/Communications: $ 34,200
Level 3 Supplies: $ 22,122
CASE MANAGEMENT SUB‐TOTAL: $ 8,792,580
STATE LEAD CENTER SUB‐TOTAL: $ 19,049,688
INDIRECT COST TO INSTITUTION: $ 3,809,938
ADMINISTRATIVE FEE TO SJBF: $ 380,994
STATE LEAD CENTER SUB‐TOTAL: $ 23,240,620
TOTAL JOBS CREATED IN New Jersey: 138

Biographical Sketch
Barbara Geiger-Parker
Co-Director New Jersey
Barbara Geiger-Parker is President and CEO of the Brain Injury Association of
New Jersey. In this position for 22 years, she has had the opportunity to develop
the community-based services of the organization to better meet the needs of
individuals with brain injury, members of their families, and allied health
professionals. She has grown the organization from a staff of four to a staff of 30
and increased the budget 10 fold. Among her accomplishments is establishing,
through legislation, the TBI Fund which is a payer of last resort for rehabilitation
services needed by people with brain injury.
Ms. Geiger-Parker has previous experience managing survey research projects
at Rutgers University, Eagleton Institute of Politics. In addition, she has worked
for the Arc of New Jersey and Delaware State Government.
Ms. Geiger-Parker has a Bachelor of Arts in Political Science and a Masters
Degree in City and Regional Planning. She has been appointed and elected to
many committees, advisory councils, and boards including Founder and Chair of
the statewide Coalition to Preserve Personal Injury Protection, the New Jersey
Advisory Council on Traumatic Brain Injury and Brain Injury Association of
America Board of Directors.

Biographical Sketch
René Carfi
Co-Director New Jersey
René Carfi is Associate Director of Services for the Brain Injury Association of
New Jersey. With the Association for 11 years, she has managed various
programs including the Family Support care coordination service, the Information
and Resource Service, and Outreach Services.
Ms. Carfi has led the development and delivery of training materials aimed at
people with brain injury, family members, allied health professionals, and
educators. She has overseen an innovative partnership with Rutgers University
Department of Continuous Education to provide an on-line course about brain
injury for educators.
Ms. Carfi has a Masters Degree in Social Work.

Sarah Jane Brain Family State Lead Center of Excellence
For the state of
New Mexico
University of New Mexico School of Medicine
hsc.unm.edu/som/
REGION: Southcentral CATEGORY OF CARE: Acute Phase
Program Director: Erich Marchand, MD Position Title: Neurosurgeon
Department: Department of Neurosurgery
Address: 1 University of New Mexico, Albuquerque, NM 87131
Phone: 505 272‐6487
Email: emarchand@salud.unm.edu
Level 1 Center(s): Albuquerque
Level 2 Center(s): Roswell, Las Cruces, Farmington, Santa Fe
Level 3 Center(s): Rural sections of New Mexico
Number of jobs PABI Grant creates in New Mexico: 98
Budget Overview for State Lead Center
State Lead Center Management Sub‐total: $ 5,082,924
Category of Care Management Sub‐total: $ 1,472,587
Case Management Sub‐total: $ 2,564,761
State Lead Center Sub‐total: $ 9,152,272
Indirect Cost to Institution (20%): $ 1,830,454
Administrative Cost to SJBF (2%): $ 183,045
SUB‐TOTAL AMOUNT OF GRANT PROPOSAL: $ 11,165,772

University of New Mexico School of Medicine Profile continued
Title/Description Sub‐total Amount for Grant
STATE LEAD CENTER MANAGEMENT
Program Director: $ 79,625
Program Director Assistant: $ 81,955
State Director: $ 273,184
Associate State Director: $ 118,380
State Epidemiologist: $ 182,123
State Epidemiologist Assistant: $ 81,955
State Scientific Investigation Research Coordinator: $ 154,804
State Scientific Investigation Research Assistant: $ 154,804
State Education/Training Coordinator (plus materials): $ 201,705
State General Counsel: $ 218,547
State IT Manager: $ 173,016
State Family Support Coordinator: $ 136,592
State Prevention/Awareness Coordinator: $ 136,592
State Acute Care Coordinator: $ 136,592
State Reintegration Coordinator: $ 136,592
State Adult Transition Coordinator: $ 136,592
State Mild TBI Coordinator: $ 136,592
State Mental Health Coordinator: $ 118,380
State Assistive/Emerging Technology Coordinator: $ 118,380
State Correctional System Coordinator: $ 118,380
State MISC Coordinator: $ 118,380
State Veterans Coordinator: $ 118,380
State Data Manager: $ 118,380
State Public Policy Manager: $ 136,592
State Community Relations Manager: $ 118,380
State Administrative Support: $ 491,731
Charity care: $ 280,188
Human Resources Support: $ 98,000
Training Support: $ 24,500
State Lead Center Office Space Cost: $ 269,261
State Lead Center Transportation/Travel: $ 90,781
State Lead Center Office Equipment/Communications: $ 197,500
State Lead Center Supplies: $ 86,858
Annual and Regional Conferences: $ 32,000
State Brain Injury Association Pediatric Programs: $ 80,054
STATE LEAD CENTER MANAGEMENT SUB‐TOTAL: $ 5,082,924

University of New Mexico School of Medicine Profile continued
Title/Description Sub‐total Amount for Grant
CATEGORY OF CARE RESPONSIBILITY: Acute Phase
Regional Category Director: $ 273,184
Regional Category Epidemiologist: $ 218,547
Regional Category Education/Training Coordinator: $ 182,123
Regional Category Scientific Investigation Research: $ 182,123
Regional Category Administrative Support: $ 327,821
Regional Category Office Space Cost: $ 78,173
Regional Category Transportation/Travel: $ 15,7500
Regional Category Office Equipment/Communications: $ 27,900
Regional Category Supplies: $ 25,217
CATEGORY OF CARE SUB‐TOTAL: $ 1,472,587

University of New Mexico School of Medicine Profile continued
Title/Description Sub‐total Amount for Grant
CASE MANAGEMENT RESPONSIBILITY
Level 1 Center Manager(s): $ 130,088
Level 1 Center Field Specialist(s): $ 104,070
Level 1 Center SJB Family Specialist(s): $ 710,278
Level 1 Center Administrative Support: $ 117,079
Level 1 Office Space Cost: $ 42,028
Level 1 Transportation/Travel: $ 27,002
Level 1 Office Equipment/Communications: $ 33,800
Level 1 Supplies: $ 48,032
Level 2 Center Field Specialist(s): $ 249,768
Level 2 Center SJB Family Specialist(s): $ 811,746
Level 2 Transportation/Travel: $ 30,962
Level 2 Office Equipment/Communications: $ 53,200
Level 2 Supplies: $ 33,623
Level 3 Center SJB Family Specialist(s): $ 152,202
Level 3 Transportation/Travel: $ 4,680
Level 3 Office Equipment/Communications: $ 11,400
Level 3 Supplies: $ 4,803
CASE MANAGEMENT SUB‐TOTAL: $ 2,564,761
STATE LEAD CENTER SUB‐TOTAL: $ 9,152,272
INDIRECT COST TO INSTITUTION: $ 1,830,454
ADMINISTRATIVE FEE TO SJBF: $ 183,045
STATE LEAD CENTER SUB‐TOTAL: $ 11,165,772
TOTAL JOBS CREATED IN New Mexico: 98

Sarah Jane Brain Family State Lead Center of Excellence
For the state of
New York
Mount Sinai Medical Center
www.mountsinai.org
REGION: Northeast CATEGORY OF CARE: Reintegration
Program Director: Wayne Gordon, Ph.D. Position Title: Jack Nash Professor
Department: Department of Rehabilitation Medicine
Address: 1 Gustave L Levy Place #504, New York, NY 10029
Phone: 212‐659‐9372
Email: wayne.gordon@mssm.edu
Level 1 Center(s): New York City, Nassau, Westchester, Albany, Syracuse, Rochester, Buffalo
Level 2 Center(s): Suffolk, Queens, Brooklyn, Staten Island, Manhattan, Bronx
Level 3 Center(s): Schenectady, Utica, Binghamton, Poughkeepsie, Watertown, Lockport, Canandaigua,
Middletown, Troy, Ramapo, Saratoga, Kingston
Number of jobs PABI Grant creates in New York: 226
Budget Overview for State Lead Center
State Lead Center Management Sub‐total: $ 8,120,880
Category of Care Management Sub‐total: $ 2,287,434
Case Management Sub‐total: $ 16,370,373
State Lead Center Sub‐total: $ 26,810,687
Indirect Cost to Institution (20%): $ 5,362,137
Administrative Cost to SJBF (2%): $ 536,214
SUB‐TOTAL AMOUNT OF GRANT PROPOSAL: $ 32,709,038

Mount Sinai Medical Center Profile continued
Title/Description Sub‐total Amount for Grant
STATE LEAD CENTER MANAGEMENT
Program Director: $ 90,764
Program Director Assistant: $ 125,534
State Director: $ 418,447
Associate State Director: $ 181,327
State Epidemiologist: $ 278,965
State Epidemiologist Assistant: $ 125,534
State Scientific Investigation Research Coordinator: $ 237,120
State Scientific Investigation Research Assistant: $ 237,120
State Education/Training Coordinator (plus materials): $ 697,779
State General Counsel: $ 334,758
State IT Manager: $ 265,017
State Family Support Coordinator: $ 209,224
State Prevention/Awareness Coordinator: $ 209,224
State Acute Care Coordinator: $ 209,224
State Reintegration Coordinator: $ 209,224
State Adult Transition Coordinator: $ 209,224
State Mild TBI Coordinator: $ 209,224
State Mental Health Coordinator: $ 181,327
State Assistive/Emerging Technology Coordinator: $ 181,327
State Correctional System Coordinator: $ 181,327
State MISC Coordinator: $ 181,327
State Veterans Coordinator: $ 181,327
State Data Manager: $ 181,327
State Public Policy Manager: $ 209,224
State Community Relations Manager: $ 181,327
State Administrative Support: $ 753,205
Charity care: $ 441,051
Human Resources Support: $ 226,000
Training Support: $ 56,500
State Lead Center Office Space Cost: $ 423,850
State Lead Center Transportation/Travel: $ 113,400
State Lead Center Office Equipment/Communications: $ 197,500
State Lead Center Supplies: $ 136,726
Annual and Regional Conferences: $ 32,000
State Brain Injury Association Pediatric Programs: $ 126,015
STATE LEAD CENTER MANAGEMENT SUB‐TOTAL: $ 8,120,880

Mount Sinai Medical Center Profile continued
Title/Description Sub‐total Amount for Grant
CATEGORY OF CARE RESPONSIBILITY: Reintegration
Regional Category Director: $ 418,447
Regional Category Epidemiologist: $ 334,758
Regional Category Education/Training Coordinator: $ 278,965
Regional Category Scientific Investigation Research: $ 278,965
Regional Assistive/Emerging Technology Coordinator: $ 278,965
Regional Additional Tech
Regional Category Administrative Support: $ 502,137
Regional Category Office Space Cost: $ 123,053
Regional Category Transportation/Travel: $ 157,500
Regional Category Office Equipment/Communications: $ 27,900
Regional Category Supplies: $ 39,695
CATEGORY OF CARE SUB‐TOTAL: $ 2,287,434

Mount Sinai Medical Center Profile continued
Title/Description Sub‐total Amount for Grant
CASE MANAGEMENT RESPONSIBILITY
Level 1 Center Manager(s): $ 1,394,824
Level 1 Center Field Specialist(s): $ 1,115,859
Level 1 Center SJB Family Specialist(s): $ 7,615,738
Level 1 Center Administrative Support: $ 1,255,341
Level 1 Office Space Cost: $ 6,6158
Level 1 Transportation/Travel: $ 195,300
Level 1 Office Equipment/Communications: $ 200,600
Level 1 Supplies: $ 340,239
Level 2 Center Field Specialist(s): $ 573,870
Level 2 Center SJB Family Specialist(s): $ 1,865,079
Level 2 Transportation/Travel: $ 47,520
Level 2 Office Equipment/Communications: $ 79,800
Level 2 Supplies: $ 79,389
Level 3 Center SJB Family Specialist(s): $ 1,398,809
Level 3 Transportation/Travel: $ 28,080
Level 3 Office Equipment/Communications: $ 68,400
Level 3 Supplies: $ 45,365
CASE MANAGEMENT SUB‐TOTAL: $ 16,370,373
STATE LEAD CENTER SUB‐TOTAL: $ 26,810,687
INDIRECT COST TO INSTITUTION: $ 5,362,137
ADMINISTRATIVE FEE TO SJBF: $ 536,214
STATE LEAD CENTER SUB‐TOTAL: $ 32,709,038
TOTAL JOBS CREATED IN New York: 226

Sarah Jane Brain Family State Lead Center of Excellence
For the state of
North Carolina
The Clinical Center for the Study of Development and Learning
www.cdl.unc.edu
REGION: Southeast CATEGORY OF CARE: Reintegration
Program Director: Stephen Hooper, Ph.D. Position Title: Professor
Department: Psychiatry & Pediatrics
Address: 1450 Raleigh Road #100, Chapel Hill, NC 27517
Phone: 919‐966‐5171
Email: shooper@nc.rr.com
Level 1 Center(s): Asheville (Thoms Rehabilitation Center), Charlotte (Charlotte Institute of
Rehabilitation), Chapel Hill (UNC Center for Development and Learning), Greenville (East Carolina School
of Medicine), Fayetteville (Southeastern Rehabilitation Institute)
Level 2 Center(s): 0
Level 3 Center(s): 0
Number of jobs PABI Grant creates in North Carolina: 188
Budget Overview for State Lead Center
State Lead Center Management Sub‐total: $ 6,546,314
Category of Care Management Sub‐total: $ 1,886,049
Case Management Sub‐total: $ 10,573,825
State Lead Center Sub‐total: $ 19,038,188
Indirect Cost to Institution (20%): $ 3,807,638
Administrative Cost to SJBF (2%): $ 380,764
SUB‐TOTAL AMOUNT OF GRANT PROPOSAL: $ 23,226,589

The Clinical Center for the Study of Development and Learning Profile continued
Title/Description Sub‐total Amount for Grant
STATE LEAD CENTER MANAGEMENT
Program Director: $ 165,760
Program Director Assistant: $ 103,631
State Director: $ 345,438
Associate State Director: $ 149,690
State Epidemiologist: $ 230,292
State Epidemiologist Assistant: $ 103,631
State Scientific Investigation Research Coordinator: $ 195,748
State Scientific Investigation Research Assistant: $ 195,748
State Education/Training Coordinator (plus materials): $ 413,723
State General Counsel: $ 276,350
State IT Manager: $ 218,777
State Family Support Coordinator: $ 172,719
State Prevention/Awareness Coordinator: $ 172,719
State Acute Care Coordinator: $ 172,719
State Reintegration Coordinator: $ 172,719
State Adult Transition Coordinator: $ 172,719
State Mild TBI Coordinator: $ 172,719
State Mental Health Coordinator: $ 149,690
State Assistive/Emerging Technology Coordinator: $ 149,690
State Correctional System Coordinator: $ 149,690
State MISC Coordinator: $ 149,690
State Veterans Coordinator: $ 149,690
State Data Manager: $ 149,690
State Public Policy Manager: $ 172,719
State Community Relations Manager: $ 149,690
State Administrative Support: $ 621,788
Charity care: $ 311,205
Human Resources Support: $ 188,000
Training Support: $ 47,000
State Lead Center Office Space Cost: $ 299,068
State Lead Center Transportation/Travel: $ 100,831
State Lead Center Office Equipment/Communications: $ 197,500
State Lead Center Supplies: $ 96,474
Annual and Regional Conferences: $ 32,000
State Brain Injury Association Pediatric Programs: $ 88,916
STATE LEAD CENTER MANAGEMENT SUB‐TOTAL: $ 6,546,314

The Clinical Center for the Study of Development and Learning Profile continued
Title/Description Sub‐total Amount for Grant
CATEGORY OF CARE RESPONSIBILITY: Reintegration
Regional Category Director: $ 345,438
Regional Category Epidemiologist: $ 276,350
Regional Category Education/Training Coordinator: $ 230,292
Regional Category Scientific Investigation Research: $ 230,292
Regional Assistive/Emerging Technology Coordinator: $ 230,292
Regional Category Administrative Support: $ 414,525
Regional Category Office Space Cost: $ 86,826
Regional Category Transportation/Travel: $ 157,500
Regional Category Office Equipment/Communications: $ 27,900
Regional Category Supplies: $ 28,008
CATEGORY OF CARE SUB‐TOTAL: $ 1,886,049

The Clinical Center for the Study of Development and Learning Profile continued
Title/Description Sub‐total Amount for Grant
CASE MANAGEMENT RESPONSIBILITY
Level 1 Center Manager(s): $ 822,471
Level 1 Center Field Specialist(s): $ 657,977
Level 1 Center SJB Family Specialist(s): $ 4,490,692
Level 1 Center Administrative Support: $ 740,224
Level 1 Office Space Cost: $ 46,681
Level 1 Transportation/Travel: $ 137,006
Level 1 Office Equipment/Communications: $ 145,000
Level 1 Supplies: $ 177,832
Level 2 Center Field Specialist(s): $ 631,658
Level 2 Center SJB Family Specialist(s): $ 2,052,888
Level 2 Transportation/Travel: $ 62,562
Level 2 Office Equipment/Communications: $ 106,400
Level 2 Supplies: $ 74,689
Level 3 Center SJB Family Specialist(s): $ 384,916
Level 3 Transportation/Travel: $ 9,360
Level 3 Office Equipment/Communications: $ 22,800
Level 3 Supplies: $ 10,670
CASE MANAGEMENT SUB‐TOTAL: $ 10,573,825
STATE LEAD CENTER SUB‐TOTAL: $ 19,038,188
INDIRECT COST TO INSTITUTION: $ 3,807,638
ADMINISTRATIVE FEE TO SJBF: $ 380,764
STATE LEAD CENTER SUB‐TOTAL: $ 23,226,589
TOTAL JOBS CREATED IN North Carolina: 188

NAME
Stephen R. Hooper
eRA COMMONS USER NAME
Stephen.Hooper
BIOGRAPHICAL SKETCH
Provide the following information for the key personnel and other significant contributors.
Follow this format for each person. DO NOT EXCEED FOUR PAGES.
POSITION TITLE
Professor of Psychiatry and Pediatrics
Research Professor of Psychology
Clinical Professor of Education
EDUCATION/TRAINING (Begin with baccalaureate or other initial professional education, such as nursing, and include postdoctoral training.)
INSTITUTION AND LOCATION
DEGREE
(if applicable)
YEAR(s) FIELD OF STUDY
Juniata College B.S. 1972-76 Child Psychology
Western Kentucky University M.A. 1976-78 Clinical Psychology
University of Georgia Ph.D. 1980-84 School Psychology
Brown University Fellowship 1984-86 Child Neuropsychology
A. POSITIONS AND HONORS:
1978-1980 School Psychologist, Educational Cooperative Service Unit, Windom, Minnesota
1986-1987 Assistant Professor, Department of Psychiatry, The Pennsylvania State University College of
Medicine, Hershey, Pennsylvania
1987-1994 Assistant Professor, Department of Psychiatry, University of North Carolina of Medicine, Chapel
Hill, North Carolina
1988-1994 Clinical Assistant Professor, School of Education, University of North Carolina School of
Medicine, Chapel Hill, North Carolina
1987-2000 Psychology Section Head, The Clinical Center for the Study of Development and Learning,
University of North Carolina School of Medicine, Chapel Hill, North Carolina
1987-pres. Director, Child and Adolescent Neuropsychology Consultation Service, The Clinical Center for
the Study of Development and Learning, University of North Carolina School of Medicine,
Chapel Hill, North Carolina
1994-2002 Clinical Associate Professor, School of Education, University of North Carolina, North Carolina
1994-2002 Research Associate Professor, Department of Psychology, University of North Carolina, Chapel
Hill, North Carolina
1994-2002 Associate Professor (tenured), Department of Psychiatry, University of North Carolina School of
Medicine, Chapel Hill, North Carolina
2000-pres. Associate Director, The Clinical Center for the Study of Development and Learning, University
of North Carolina school of Medicine, Chapel Hill, North Carolina
2002-pres. Professor (tenured), Department of Psychiatry, University of North Carolina School of Medicine,
Chapel Hill, North Carolina
2002-pres. Clinical Professor, School of Education, University of North Carolina, Chapel Hill, North
Carolina
2002-pres. Research Professor, Department of Psychology, University of North Carolina, Chapel Hill, North
Carolina
2004-pres. Professor (adjunct), Department of Psychiatry and Behavioral Sciences, Duke University
Medical School, Durham, North Carolina
2007-pres. Professor (adjunct), Department of Pediatrics, University of North Carolina School of Medicine,
Chapel Hill, North Carolina
B. SELECTED PEER-REVIEWED PUBLICATIONS IN CHRONOLOGICAL ORDER (last 5 years):
Roberts, J.E., Schaaf, J.M., Skinner, M., Wheeler, A., Hooper, S.R., Hatton, D.D., & Bailey, D.B. (2005).
Academic skills of boys with Fragile X Syndrome: Profiles and predictors. American Journal of Mental
Retardation, 110, 107-120.
Skinner, M., Hooper, S.R., Hatton, D.D., Roberts, J., Mirrett, Schaaf, J., Sullivan, K., Wheeler, A., &
Bailey, D.B. (2005). Mapping nonverbal IQ in young boys with Fragile X Syndrome. American Journal of
Medical Genetics, 132A, 25-32.
Watts-English, T., Fortson, B.L., Gibler, N., Hooper, S.R., De Bellis, M.D. (2006). The psychobiology of
maltreatment in childhood. Journal of Social Issues, 62, 717-736.

Gipson, D.S., Duquette, P.J., Icard, P.F., & Hooper, S.R. (2006). The central nervous system in childhood
chronic kidney disease. Pediatric Nephrology, 22, 1703-1710.
Burchinal, M. Roberts, J.E., Zeisel, S.A., Hennon, E.A., & Hooper, S.R. (2006). Social risk and protective
child, parenting, and child care factors in early elementary school years. Parenting: Science and Practice, 6, 79-
113.
Hooper, S.R., Wakely, M.B., de Kruif, R.E.L., & Swartz, C.W. (2006). Aptitude-treatment interactions
revisited: Effect of metacognitive intervention on subtypes of written expression in elementary school students.
Developmental Neuropsychology, 29, 217-241.
Wakely, M.B., Hooper, S.R., de Kruif, R.E.L., & Swartz, C. (2006). Subtypes of written expression in
elementary school children: A linguistic-based model. Developmental Neuropsychology, 29, 125-159.
Mattison, R. E., Hooper, S. R., & Carlson, G. A. (2006). Neuropsychological characteristics of special
education students with serious emotional/behavioral disorders. Behavior Disorders, 31, 176-188.
Hooper, S.R. (2006). Common myths of traumatic brain injury: The view of school psychologists and other
special educators. Exceptionality, 14, 171-182.
Wetherington, C.E., & Hooper, S.R. (2006). Traumatic brain injury in the preschool period: Implications
for special educators. Exceptionality, 14, 155-170.
Gipson, D.S., Hooper, S.R., Duquette, P.J., Wetherington, C.E., Stellwagen, K.K., Jenkins, T.L, & Ferris,
M.E. (2006). Memory and executive functions in pediatric chronic kidney disease. Child Neuropsychology, 12,
1-15.
Hooper, S.R., Poon, K.K., Marcus, L., & Fine, C. (2006). Neuropsychological characteristics of school-age
children with high-functioning autism: Performance on the NEPSY. Child Neuropsychology, 12, 1-7.
Gerson, A.C., Butler, R., Moxy-Mims, M., Wentz, A., Shinnar, S., Lande, M., Mendley, S., Warady, B.A.,
Furth, S.L., & Hooper, S.R. (2006). Neurocognitive outcomes in children with chronic kidney disease: Current
findings and contemporary endeavors. Mental Retardation and Developmental Disabilities Research Reviews,
12, 208-215.
Sullivan, K., Hatton, D., Hammer, J., Sideris, J., Hooper, S., Ornstein, P., & Bailey, D., Jr. (2006). ADHD
symptoms in children with FXS. American Journal of Medical Genetics Part A, 140A, 2275-2288.
Amler, R.W., Barone, S., Belger, A., Berlin, C.M., Cox, C., Frank, H., Goodman, M., Harry, J., Hooper,
S.R., Ladda, R., LaKind, J.S., Lipkin, P.H., Lipsitt, L.P., Lorber, M.N., Myers, G., Mason, A.M., Needham,
L.L., Sonawane, B., Wachs, T.D., & Yager, J.W. (2006). Hershey Medical Center Technical Workshop Report:
Optimizing the design and interpretation of epidemiologic studies for assessing neurodevelopmental effects
from in utero chemical exposure. NeuroToxicology, 633, 1-14.
Sullivan, K.M., Hooper, S.R., & Hatton, D.D. (2006). Behavioral equivalents of anxiety in children with
Fragile X Syndrome: Parent and teacher report. Journal of Intellectual Disabilities Research, 51, 54-65.
Hooper, S.R., Ashley, T.A., Roberts, J.E., Zeisel, S., & Poe, M. (2006). The relationship of otitis media in
early childhood to attention during the early elementary school years. The Journal of Developmental and
Behavioral Pediatrics, 27, 281-289.
Hart, S.J., Davenport, M.L., Hooper, S.R., Piven, J., & Belger, A. (2006). Visuospatial executive function
in Turner Syndrome: Functional neuroimaging and neurocognitive findings. Brain, 129, 1125-1136.
Roberts, J., Price, J., Nelson, L., Burchinal, M., Hennon, E., Barnes, E., Moskowitz, L., Edwards, A.,
Malkin, C., Anderson, K., Misenheimer, J., & Hooper, S.R. (2007). Receptive vocabulary, expressive
vocabulary, and speech production of boys with fragile X syndrome in comparison to boys with Down
syndrome. American Journal on Mental Retardation, 112, 177-193.
Keenan, H.T., Hooper, S.R., Wetherington, C.E., Nocera, M., & Runyan, D. (2007). Neurodevelopmental
consequences of early traumatic brain injury in three year-old children. Pediatrics, 119, e616-e623.
Slickers, J.E., Duquette, P.J., Hooper, S.R., & Gipson, D.S. (2007). Predictors of neurocognitive deficits in
children with chronic kidney disease. Pediatric Nephrology, 22, 465-472.
Duquette, P.J., Hooper, S.R., Wetherington, C.E., Jenkins, T.L., & Gipson, D.S. (2007). Brief Report:
Intellectual and academic functioning in pediatric chronic kidney disease. Journal of Pediatric Psychology, 32,
1011-1017.

Hooper, S.R., Hatton, D., Schaaf, J., Sullivan, K., Hammer, J., Sideris, J., Mirrett, P., & Bailey, D. (2008).
Executive functions in young males with fragile X syndrome in comparison to mental age matched controls:
Baseline findings from a longitudinal study. Neuropsychology, 22, 36-47.
Findling, R.L., Frazier, J.A., Kafantaris, V., Kowatch, R., McClellan, J., Pavuluri, M., Sikich, L., Hlastala,
S., Hooper, S.R., Demeter, C.A., Bedoya, D., Brownstein, B., & Taylor-Zapata, P. (2008). The Collaborative
Lithium Trials (CoLT): specific aims, methods, and implementation. Child and Adolescent Psychiatry and
Mental Health, 2, 1-13.
Mosconi, M., Nelson, L., & Hooper, S.R. (2008). Confirmatory factory analysis of the NEPSY for younger
and older school-age children. Psychological Reports, 102, 861-866.
De Bellis, M.D., Van Voorhees, E., Hooper, S.R., Gibler, N., Nelson, L., Hege, S.G., Payne, M.E., &
MacFall, J. (2008). Diffusion tensor measures of the corpus callosum in adolescents with adolescent onset
alcohol use disorders. Alcoholism: Clinical and Experimental Research, 32, 1-10.
Icard, P.F., Hower, S.J., Kuchenreuther, A.R., Hooper, S.R., & Gipson, D.S. (2008). The transition from
childhood to adulthood with ESRD: educational and social challenges. Clinical Nephrology, 69, 1-7.
Ornstein, P.A., Schaaf, J.M., Hooper, S.R., Hatton, D., Mirrett, P., & Bailey, D. (in press). The memory
skills of boys with Fragile X syndrome. American Journal of Mental Retardation,
Duquette, P.J., Hooper, S.R., Icard, P.F., Mamak, E.G., Wetherington, C.E., & Gipson, D.S. (in press).
Early neurodevelopment in children with chronic kidney disease. Journal of Special Education,
Hooper, S.R., Duquette, P.J., Icard, P., Wetherington, C.E., Harrell, W., & Gipson, D.S. (in press). Socialbehavioral
functioning in pediatric chronic kidney disease. Child: Care, Health & Development,
DeBellis, M.D., Hooper, S.R., Spratt, E., & Woolley, D. (in press). Neuropsychological findings in
childhood neglect and the relationships to pediatric PTSD. Journal of the International Neuropsychologial
Society,
Wetherington, C.E., Hooper, S.R., Keenan, H.T., Nocera, M., & Runyan, D. (in press). Parent ratings of
behavioral functioning after traumatic brain injury in very young children. Journal of Pediatric Psychology,
Hooper, S.R., Duquette, P., Icard, P., Wetherington, C., Harrell, W., & Gipson, D. (in press). Socialbehavioral
functioning in pediatric chronic kidney disease. Child: Care, Health and Development,
C. RESEARCH SUPPORT:
T73MC00030 (Hooper) 07/01/2006 - 06/30/2011 3.44 cal months
Maternal and Child Health Bureau $734,271
Clinical Center for the Study of Development and Learning
The major goal of this project is to provide interdisciplinary training for individuals who aspire to leadership
positions in the field of developmental disabilities. The leadership training occurs across clinical, community,
and research initiatives.
Role: Lead Principal Investigator
R305H060042 (Hooper) 07/01/2006 - 06/30/2010 2.33 cal months
U.S. Department of Education $426,097
Attention, Memory, and Executive Functions in Written Language Expression in Elementary School Children
The goal of this project is to establish a stronger scientific foundation for educational practice within the writing
domain by utilizing recent advances in cognitive science and neuroscience as they apply to the development of
writing and writing problems in elementary school children.
Role: Lead Principal Investigator
90DD0545 (Olley) 07/01/2007 - 06/30/2012 1.14 cal months
Administration on Developmental Disabilities $481,481
Center for Development & Learning: University Center for Excellence in Developmental Disabilities.
This core project provides basic support for the development and provision of interdisciplinary training,
demonstration of exemplary services, technical assistance, and dissemination of information aimed at increasing
the independence, productivity, and integration into the community of persons with developmental disabilities.
Role: Investigator
5R01 DA020989 (DeBellis) 09/25/2005 - 06/30/2010 0.93 cal months

Subcontract with Duke University $23,474
National Institutes of Health/NIDA
Frontal Function in Adolescent Cannabis Use Disorders
5 Year cross-sectional investigation with 1 year prospective follow-up to further understanding of the
neurobiological consequences of adolescent onset cannabis use disorder. We will comprehensively evaluate the
effects of marijuana on the adolescent brain and on cognitive development.
Role: Investigator
5R01 DA022308-02 (DeBellis) 06/01/08 - 04/30/2013 1.91 cal months
Subcontract with Duke University $16,714
National Institutes of Health/NIDA
Prefrontal Function in Adolescent Limited vs. Life Course Persistent SUD
Adolescents from the Smoky Mountain Study will be examined with fMRI and neurocognitive procedures to
determine cognitive and psychiatric contributors to substance use disorder.
Role: Investigator
P30 HD03110 (Piven) 08/22/08 - 06/30/13 0.30 cal months
NICHD $842,061
UNC Developmental Disabilities Research Center
The major goal of this project is to support and promote research relevant to understanding the pathogenesis and
treatment/prevention of neurodevelopmental disorders.
Role: Investigator
R01HD038819 (Roberts) 05/01/2007 - 03/31/2012 0.30 cal months
National Institutes of Health $287,891
Pragmatic Skills of Young Males and Females with Fragile X Syndrome
This study compares the developmental trajectories of pragmatic skills among girls and boys with fragile X
syndrome (FXS), Down syndrome (DS), and typical development (TD) and boys with autism spectrum disorder
only (ASD-O) to determine whether individual differences in language relate to FXS, MR, or ASD.
Role: Investigator
R01 HD044935 (Roberts) 07/07/2003 - 10/30/2009 0.30 cal months
National Institutes of Health $279,996
Speech of Young Males with Fragile X Syndrome
The specific objectives of this study are to: a) compare the development of phonological, prosodic, and
segmental factors in the speech of males with FXS, males with DS, and TD males; b) identify the phonological,
prosodic, and segmental factors affecting the speech intelligibility in conversational speech of males with FXS
and determine if similar patterns of association are observed among males with DS and TD males; and c) to
identify the motor speech/FMRP, cognitive/linguistic, and communicative contextual factors associated with
speech intelligibility in conversational speech among males with FXS.
Role: Investigator
R40 MC05488 (Roberts) 09/01/2005 - 08/31/2009 0.24 cal months
Maternal and Child Health $160,477
School Competence of African American High School Youth
This study examines how selected youth, peer, family, and school factors serve as risk and protective factors for
African American youth’s school competence during the transition to high school.
Role: Investigator
O1DK66174 (Furth and Warady) 09/30/2003 - 07/31/2013 1.11 cal months
NIH/NIDDK $35,600
Chronic Kidney Disease in Children Prospective Cohort Study
This is a multisite longitudinal study designed to assess the risk factors for progression of mild chronic kidney
disease in 540 children and to document the changes in cognition, cardiovascular, and growth over time.
Role: Investigator

Sarah Jane Brain Family State Lead Center of Excellence
For the state of
North Dakota
Still pending
REGION: Rocky Mountain CATEGORY OF CARE: Adult Transition
Program Director: Still pending Position Title:
Address:
Phone:
Email:
Level 1 Center(s): Fargo, Bismarck
Level 2 Center(s): Grand Forks, Minot
Level 3 Center(s): 0
Number of jobs PABI Grant creates in North Dakota: 92
Budget Overview for State Lead Center
State Lead Center Management Sub‐total: $ 4,570,210
Category of Care Management Sub‐total: $ 1,418,802
Case Management Sub‐total: $ 2,672,532
State Lead Center Sub‐total: $ 8,693,544
Indirect Cost to Institution (20%): $ 1,738,709
Administrative Cost to SJBF (2%): $ 173,871
SUB‐TOTAL AMOUNT OF GRANT PROPOSAL: $ 10,606,123

Still pending Profile continued
Title/Description Sub‐total Amount for Grant
STATE LEAD CENTER MANAGEMENT
Program Director: $ 56,875
Program Director Assistant: $ 73,933
State Director: $ 246,442
Associate State Director: $ 106,791
State Epidemiologist: $ 164,295
State Epidemiologist Assistant: $ 73,933
State Scientific Investigation Research Coordinator: $ 139,650
State Scientific Investigation Research Assistant: $ 139,650
State Education/Training Coordinator (plus materials): $ 154,812
State General Counsel: $ 197,153
State IT Manager: $ 156,080
State Family Support Coordinator: $ 123,221
State Prevention/Awareness Coordinator: $ 123,221
State Acute Care Coordinator: $ 123,221
State Reintegration Coordinator: $ 123,221
State Adult Transition Coordinator: $ 123,221
State Mild TBI Coordinator: $ 123,221
State Mental Health Coordinator: $ 106,791
State Assistive/Emerging Technology Coordinator: $ 106,791
State Correctional System Coordinator: $ 106,791
State MISC Coordinator: $ 106,791
State Veterans Coordinator: $ 106,791
State Data Manager: $ 106,791
State Public Policy Manager: $ 123,221
State Community Relations Manager: $ 106,791
State Administrative Support: $ 443,595
Charity care: $ 252,761
Human Resources Support: $ 92,000
Training Support: $ 23,000
State Lead Center Office Space Cost: $ 242,903
State Lead Center Transportation/Travel: $ 81,895
State Lead Center Office Equipment/Communications: $ 197,500
State Lead Center Supplies: $ 78,356
Annual and Regional Conferences: $ 32,000
State Brain Injury Association Pediatric Programs: $ 72,217
STATE LEAD CENTER MANAGEMENT SUB‐TOTAL: $ 4,570,210

Still pending Profile continued
Title/Description Sub‐total Amount for Grant
CATEGORY OF CARE RESPONSIBILITY: Adult Transition
Regional Category Director: $ 246,442
Regional Category Epidemiologist: $ 197,153
Regional Category Education/Training Coordinator: $ 164,295
Regional Category Scientific Investigation Research: $ 164,295
Regional Veteran Coordinator: $ 164,295
Regional Category Administrative Support: $ 295,730
Regional Category Office Space Cost: $ 70,520
Regional Category Transportation/Travel: $ 157,500
Regional Category Office Equipment/Communications: $ 27,900
Regional Category Supplies: $ 22,748
CATEGORY OF CARE SUB‐TOTAL: $ 1,418,802

Still pending Profile continued
Title/Description Sub‐total Amount for Grant
CASE MANAGEMENT RESPONSIBILITY
Level 1 Center Manager(s): $ 234,707
Level 1 Center Field Specialist(s): $ 187,765
Level 1 Center SJB Family Specialist(s): $ 1,281,498
Level 1 Center Administrative Support: $ 211,236
Level 1 Office Space Cost: $ 37,914
Level 1 Transportation/Travel: $ 53,300
Level 1 Office Equipment/Communications: $ 61,600
Level 1 Supplies: $ 68,607
Level 2 Center Field Specialist(s): $ 112,659
Level 2 Center SJB Family Specialist(s): $ 366,142
Level 2 Transportation/Travel: $ 15,340
Level 2 Office Equipment/Communications: $ 26,600
Level 2 Supplies: $ 15,166
CASE MANAGEMENT SUB‐TOTAL: $ 2,672,532
STATE LEAD CENTER SUB‐TOTAL: $ 8,693,544
INDIRECT COST TO INSTITUTION: $ 1,738,709
ADMINISTRATIVE FEE TO SJBF: $ 173,871
STATE LEAD CENTER SUB‐TOTAL: $ 10,606,123
TOTAL JOBS CREATED IN North Dakota: 92

Sarah Jane Brain Family State Lead Center of Excellence
For the state of
Ohio
Cincinnati Children's Hospital Medical Center
www.cincinnatichildrens.org
REGION: Midcentral CATEGORY OF CARE: Reintegration
Program Director: Shari Wade, Ph.D. Position Title: Professor
Department: Pediatrics
Address: 3333 Burnet Avenue, Cincinnati, OH 45229
Phone: 513‐636‐7480
Email: shari.wade@cchmc.org
Level 1 Center(s): Cincinatti (CCHMC), Columbus (Nationwide Children's), Cleveland (RB&C), Cleveland
(Cleveland Clinic), Akron (Akron Children's), Columbus (Dodd's Hall)
Level 2 Center(s): 0
Level 3 Center(s): 0
Number of jobs PABI Grant creates in Ohio: 160
Budget Overview for State Lead Center
State Lead Center Management Sub‐total: $ 5,993,903
Category of Care Management Sub‐total: $ 1,732,495
Case Management Sub‐total: $ 8,828,428
State Lead Center Sub‐total: $ 16,586,826
Indirect Cost to Institution (20%): $ 3,317,365
Administrative Cost to SJBF (2%): $ 331,737
SUB‐TOTAL AMOUNT OF GRANT PROPOSAL: $ 20,235,928

Cincinnati Children's Hospital Medical Center Profile continued
Title/Description Sub‐total Amount for Grant
STATE LEAD CENTER MANAGEMENT
Program Director: $ 76,073
Program Director Assistant: $ 92,343
State Director: $ 307,809
Associate State Director: $ 133,384
State Epidemiologist: $ 205,206
State Epidemiologist Assistant: $ 92,343
State Scientific Investigation Research Coordinator: $ 174,425
State Scientific Investigation Research Assistant: $ 174,425
State Education/Training Coordinator (plus materials): $ 445,898
State General Counsel: $ 246,247
State IT Manager: $ 194,946
State Family Support Coordinator: $ 153,904
State Prevention/Awareness Coordinator: $ 153,904
State Acute Care Coordinator: $ 153,904
State Reintegration Coordinator: $ 153,904
State Adult Transition Coordinator: $ 153,904
State Mild TBI Coordinator: $ 153,904
State Mental Health Coordinator: $ 133,384
State Assistive/Emerging Technology Coordinator: $ 133,384
State Correctional System Coordinator: $ 133,384
State MISC Coordinator: $ 133,384
State Veterans Coordinator: $ 133,384
State Data Manager: $ 133,384
State Public Policy Manager: $ 153,904
State Community Relations Manager: $ 133,384
State Administrative Support: $ 554,056
Charity care: $ 325,724
Human Resources Support: $ 160,000
Training Support: $ 4,0000
State Lead Center Office Space Cost: $ 313,020
State Lead Center Transportation/Travel: $ 105,534
State Lead Center Office Equipment/Communications: $ 197,500
State Lead Center Supplies: $ 100,974
Annual and Regional Conferences: $ 32,000
State Brain Injury Association Pediatric Programs: $ 93,064
STATE LEAD CENTER MANAGEMENT SUB‐TOTAL: $ 5,993,903

Cincinnati Children's Hospital Medical Center Profile continued
Title/Description Sub‐total Amount for Grant
CATEGORY OF CARE RESPONSIBILITY: Reintegration
Regional Category Director: $ 307,809
Regional Category Epidemiologist: $ 246,247
Regional Category Education/Training Coordinator: $ 205,206
Regional Category Scientific Investigation Research: $ 205,206
Regional Assistive/Emerging Technology Coordinator: $ 205,206
Regional Category Administrative Support: $ 369,370
Regional Category Office Space Cost: $ 90,877
Regional Category Transportation/Travel: $ 157,500
Regional Category Office Equipment/Communications: $ 27,900
Regional Category Supplies: $ 29,315
CATEGORY OF CARE SUB‐TOTAL: $ 1,732,495

Cincinnati Children's Hospital Medical Center Profile continued
Title/Description Sub‐total Amount for Grant
CASE MANAGEMENT RESPONSIBILITY
Level 1 Center Manager(s): $ 879,454
Level 1 Center Field Specialist(s): $ 703,563
Level 1 Center SJB Family Specialist(s): $ 4,801,816
Level 1 Center Administrative Support: $ 791,508
Level 1 Office Space Cost: $ 48,859
Level 1 Transportation/Travel: $ 165,527
Level 1 Office Equipment/Communications: $ 172,800
Level 1 Supplies: $ 218,700
Level 2 Center Field Specialist(s): $ 140,713
Level 2 Center SJB Family Specialist(s): $ 457,316
Level 2 Transportation/Travel: $ 15,715
Level 2 Office Equipment/Communications: $ 26,600
Level 2 Supplies: $ 19,543
Level 3 Center SJB Family Specialist(s): $ 342,987
Level 3 Transportation/Travel: $ 9,360
Level 3 Office Equipment/Communications: $ 22,800
Level 3 Supplies: $ 11,168
CASE MANAGEMENT SUB‐TOTAL: $ 8,828,428
STATE LEAD CENTER SUB‐TOTAL: $ 16,586,826
INDIRECT COST TO INSTITUTION: $ 3,317,365
ADMINISTRATIVE FEE TO SJBF: $ 331,737
STATE LEAD CENTER SUB‐TOTAL: $ 20,235,928
TOTAL JOBS CREATED IN Ohio: 160

Principal Investigator/Program Director (Last, First, Middle):
Wade, Shari L
BIOGRAPHICAL SKETCH
Provide the following information for the key personnel and other significant contributors in the order listed on Form Page 2.
Follow this format for each person. DO NOT EXCEED FOUR PAGES.
NAME
Shari L. Wade, Ph.D.
eRA COMMONS USER NAME
SLWade
POSITION TITLE
Professor of Pediatrics
EDUCATION/TRAINING (Begin with baccalaureate or other initial professional education, such as nursing, and include postdoctoral training.)
INSTITUTION AND LOCATION
DEGREE
(if applicable)
YEAR(s) FIELD OF STUDY
Cornell University BA 1981 Psychology
University of Pittsburgh MS 1985 Clinical Psychology
University of Pittsburgh Ph.D. 1988 Clinical Psychology
Yale University School of Medicine Fellowship 1987 Clinical Psychology
Professional Experience:
1989 – 1991 Senior Instructor of Psychology, Department of Pediatrics, Case Western
Reserve University School of Medicine, Cleveland OH.
1989 – 1992 Co-Director, Medical-Behavioral Center, Rainbow Babies & Childrens
Hospital, Cleveland OH.
1991 – 1993 Assistant Professor of Psychology, Department of Pediatrics, Case
Western Reserve University School of Medicine, Cleveland, OH.
1994 – Adjunct Assistant Professor, Department of Pediatrics, Case Western Reserve
University, Cleveland OH.
1996 – 1997 Visiting Assistant Professor, Department of Educational Psychology,
Miami University, Oxford OH.
1998 – 2000 Adjunct Assistant Professor, Department of Pediatric Rehabilitation,
Children’s Hospital Medical Center, Cincinnati, OH.
2000 - 2005 Associate Professor, Department of Pediatric Rehabilitation, Cincinnati Children’s
Hospital Medical Center
2005 - Professor, Department of Pediatric Rehabilitation, Cincinnati Children’s Hospital Medical
Center
2005- Director of Research, Division of Pediatric Rehabilitation, Cincinnati Children’s Hospital
Medical Center
Publications: (Partial Listing)
1. Wade, S., Drotar, D., Taylor, H.G., & Stancin T. (1995). Assessing the effects of traumatic brain injury
(TBI) on family functioning: Conceptual and methodological issues. Journal of Pediatric Psychology, 20,
737 – 752.
2. Wade, S.L., Taylor, H.G., Drotar, D., Stancin T. & Yeates, K. O. (1996). Childhood traumatic brain injury
(TBI): Initial impact on families. Journal of Learning Disabilities, 29, 652 – 662.
3. Yeates, K.O., Taylor, H.G., Drotar, D., Wade, S.L., Klein, S., Stancin, T., & Schatschneider, C. (1997).
Pre-injury family environment as a determinant of recovery from traumatic brain injuries in school-age
children. International Journal of Neuropsychology. 3, 617-630.
4. Wade, S.L., Taylor, H.G., Drotar, D., Stancin, T. & Yeates, K.O. (1998). Family burden and adaptation
during the initial year following traumatic brain injury (TBI) in children. Pediatrics, 102, 110 – 116.
5. Burgess, E. S., Drotar, D., Taylor, H.G., Wade, S., Stancin,T. & Yeates, K.O.(1999). The Family Burden of
Injury Interview (FBII): Reliability and validity studies. The Journal of Head Trauma Rehabilitation, 14, 394-
405.
6. Taylor, H.G., Yeates, K.O., Wade, S.L., Drotar, D., Klein, S. & Stancin, T. (1999). Influences on first-year
recovery from traumatic brain injury in children. Neuropsychology, 13, 76-89.
PHS 398/2590 (Rev. 09/04) Page 18 Biographical Sketch Format Page

Principal Investigator/Program Director (Last, First, Middle):
7. Kirkwood, M., Janusz, J., Yeates, K.O., Taylor, H.G., Wade, S.L., Stancin, T. & Drotar, D. (2000).
Prevalence and correlates of depressive symptoms following traumatic brain injuries in children. Child
Neuropsychology, 6, 195-208.
8. Taylor, H.G., Yeates, K.O., Wade, S.L., Drotar, D., Stancin, T. & Burant, C. (2001). Bidirectional childfamily
influences on outcomes of traumatic brain injury in children. Journal of the International
Neuropsychological Society, 7, 755-767.
9. Wade, S.L., Borawski, E.A., Taylor, H.G., Drotar, D., Yeates, K.O. 7 Stancin, T. (2001). The relationship of
caregiver coping to family outcomes during the initial year following pediatric traumatc injury. Journal of
Consulting and clinical Psychology, 69, 406-415.
10. Yeates, K.O., Taylor, H.G., Barry, C.T., Drotar, D., Wade, S.L., Stancin, T. (2001). Neurobehavioral
symptoms in childhood closed-head injuries: Changes in prevalence and correlates during the first year
post-injury. Journal of Pediatric Psychology, 26, 79-91.
11. Stancin, T., Drotar, D., Taylor, H.G., Yeates, K.O., Wade, S.L. & Minich, N.M. (2002). Health related
quality of life of children and adolescents following traumatic brain injury. Pediatrics, 109.
12. Taylor, H.G., Yeates, K.O., Wade, S.L., Drotar, D., Stancin, T. & Minich, N. (2002). A prospective study of
short- and long-term outcomes after traumatic brain injury in children: Behavior and achievement.
Neuropsychology, 16, 15-27.
13. Wade, S.L., Taylor, H.G., Drotar, D., Stancin, T., Yeates, K.O. & Minich, M. (2002). A prospective study of
long-term caregiver and family adaptation following brain injury in children. Journal of Head Trauma
Rehabilitation, 17, 96-111.
14. Yeates, K.O., Taylor, H.G., Woodrome, S.E., Wade, S.L., Stancin, T., Drotar, D. (2002). Race as a
moderator of parent and family outcomes following pediatric traumatic brain injury. Journal of Pediatric
Psychology, 27,393-404.
15. Yeates, K.O., Taylor, H.G., Wade, S.L., Drotar, D., Stancin, T., & Minich, N. (2002). A prospective study of
short- and long-term neuropsychological outcomes after traumatic brain injury in children.
Neuropsychology, 16, 514-523.
16. Wade, S.L., Taylor, H.G., Drotar, D., Stancin, T., Yeates, K.O., Minich, M. (2003). Parent-adolescent
interactions after traumatic brain injury: Their relationship to family adaptation and adolescent adjustment.
Journal of Head Trauma Rehabilitation, 18, 164-176.
17. Wade, S.L., Taylor, H.G., Drotar, D., Stancin, T., Yeates, K.O. & Minich, M. (2004). Interpersonal stressors
and resources as predictors of parental adaptation following pediatric traumatic injury. Journal of
Consulting and Clinical Psychology, 72, 776-784.
18. Wade, S.L., Wolfe, C.R., & Pestian, J.P. (2004). A web-based family problem-solving intervention for
families of children with traumatic brain injury. Behavioral Research Methods, Instruments, and Computing.
36, 261-269.
19. Wade, S.L., Wolfe, C.R., Brown, T.M. & Pestian, J.P. (2005). Preliminary efficacy of an online family
problem-solving intervention for pediatric brain injury. Journal of Pediatric Psychology. 437-442.
20. Yeates, K.O., Armstrong, K., Janusz, J., Taylor, H.G., Wade, S., Stancin, T. & Drotar, D. (2005). Long-term
attention problems in children with traumatic brain injury. Journal of the American Academy of Child and
Adolescent Psychiatry. 44, 574-584.
21. Wade, S.L., Michaud, L., Brown, T.M. (2006). Putting the Pieces Together: Preliminary efficacy of a family
problem-solving intervention for children with TBI. Journal of Head Trauma Rehabilitation. 21, 50-60.
22. Wade, S.L., Carey, J. & Wolfe, C.R. (2006). An online family intervention to reduce parental distress
following pediatric brain injury. Journal of Consulting and Clinical Psychology, 74, 445-454.
23. Wade, S.L., Carey, J. & Wolfe, C.R. (2006). The efficacy of an online cognitive-behavioral, family
intervention in improving child behavior and social competence following pediatric brain injury.
Rehabilitation Psychology, 51, 179-189.
24. Wade, S.L., Taylor, H.G., Yeates, K.O., Drotar, D., Stancin, T., Minich, N.M., & Schulchter, M. (2006).
Long-term family adaptation following pediatric brain injury. Journal of Pediatric Psychology, 31, 1072-
1083.
25. Karunanayaka, P., Holland, S., Yuan, W., Altaye, M., Egelhoff, J., Michaud, L., Walz, N.C., & Wade, S.L.
(2007). Abnormalities in language circuitry in children with traumatic brain injury, an fMRI study.
Neurorehabilitation and Neural Repair, 22, 355-369.
PHS 398/2590 (Rev. 09/04) Page Continuation Format Page

Principal Investigator/Program Director (Last, First, Middle):
26. Yuan, W., Holland, S., Schmithorst, V.J., Walz, N.C., Cecil, K., Jones, B., Karunanayaka, P., Michaud, L.,
& Wade, S.L. (2007). Diffusion tensor MRI reveals persistent white matter alteration after traumatic brain
injury experienced during early childhood. American Journal of Neuroradiology, 28, 1919-25.
27. Carey, J., Wade, S.L., & Wolfe, C.R. (2008). Lessons learned: The effect of prior technology use on webbased
interventions. CyberPsychology and Behavior.
28. Kramer, M.E., Chiu, C.Y.P., Walz, N.C., Holland, S.K., Yuan, W., Karunanayaka, P., & Wade, S.L. (2008).
Long-term neural processing of attention following early childhood traumatic brain injury: fMRI and
neurobehavioral outcomes. Journal of the International Neuropsychological Society. 14:424-435.
29. Stancin, T., Wade, S.L., Walz, N.C., Yeates, K.O., & Taylor, H.G. (2008). Traumatic brain injuries in early
childhood: Initial impact on the family. Journal of Developmental and Behavioral Pediatrics, 29(4):253-61.
30. Taylor, H.G., Swartwout, M.D., Yeates, K.O., Walz, N.C., Stancin, T., & Wade, S.L. (2008) Traumatic brain
injury in young children: Post-acute effects on cognitive and school readiness skills. Journal of International
Neuropsychological Society, 14:1-12.
31. Wade, S.L., Walz, N.C., Bernard, L.A., Oberjohn, K., Taylor, H.G., Stancin, T., & Yeates, K.O. (2008).
Parent-child interactions during the initial weeks following brain injury in young children. Rehabilitation
Psychology, 53(2):180-190.
32. Gfroerer, S.D., Wade, S.L., & Wu, M. (2008). Parent perceptions of school-based support services for
students with traumatic brain injury. Brain Injury, 22, 649-656.
33. Josie, K.L., Peterson, C.C., Burant, C., Drotar, D., Stancin, T., Wade, S.L., Yeates, K.O., & Taylor, H.G.
(2008). Predicting family burden following childhood traumatic brain injury: A cumulative risk approach.
Journal of Head Trauma Rehabilitation, 23, 357-368.
34. Kramer, M.E., Chiu, C.Y.P., Walz, N.C., Holland, S.K., Yuan, W., Karunanayaka, P., & Wade, S.L. (2008).
Long-term neural processing of attention following early childhood traumatic brain injury: fMRI and
neurobehavioral outcomes. Journal of the International Neuropsychological Society, 14, 424-435.
35. Stancin, T., Wade, S.L., Taylor, H.G., Yeates, K.O., & Walz, N.C. (2008). Traumatic brain injuries in young
children: Initial impact on the family. Journal of Developmental and Behavioral Pediatrics, 29, 253-261.
36. Taylor, H.G., Swartwout, M., Yeates, K.O., Walz, N.C., Stancin, T. & Wade, S.L. (2008). Traumatic brain
injury in young children: Post acute effects on cognitive and school readiness skills. Journal of the
International Neuropsychological Society, 14, 734-745.
37. Wade, S.L., Walz, N.C., Carey, J.C., & Williams, K.M. (2008). Preliminary efficacy of a web-based family
problem solving treatment program for adolescents with traumatic brain injury. Journal of Head Trauma
Rehabilitation, 23, 369-377.
38. Gilkey, S.L., Carey, J. & Wade, S.L. (2009). Families in crisis: Considerations for the use of web-based
models in family therapy. Families in Society.
39. Wade, S.L., Oberjohn, K., Burkhardt, A., & Greenberg, I. (2009). Feasibility and preliminary efficacy of a
web-based parenting skills program for young children with traumatic brain injury. Journal of Head Trauma
Rehabilitation, 24, 239-247.
Research Projects Ongoing or Completed During the Last 3 Years:
“Child and Family Sequelae of Preschool Brain Injury”
Principal Investigator: Shari L. Wade, Ph.D.
Agency: National Institute of Child Health and Human Development
September 2002 – August 2009
The objective of this project is to examine the process of family adaptation following TBI in young children and
the relationship of specific aspects of the family environment to the child’s recovery.
“A Trial of 2 Online Interventions for Pediatric Brain Injury”
Principal Investigator: Shari L. Wade, Ph.D.
Agency: CDC/HRSA
October 1, 2003 – September 30, 2006
The objectives of this project are to compare the efficacy of two online interventions, Family Problem Solving
and Case Management, to standard care in reducing burden and stress in families of children with TBI.
PHS 398/2590 (Rev. 09/04) Page Continuation Format Page

Principal Investigator/Program Director (Last, First, Middle):
“Teen Online Problem Solving (TOPS)”
Principal Investigator: Shari L. Wade, Ph.D.
Agency: Department of Education/National Institute of Disability and Rehabilitation Research
October 1, 2005 – September 30, 2008
The objectives of this project are to adapt the family problem solving intervention for adolescents with TBI and
to test its efficacy in a small randomized trial.
“Improving Mental Health Outcomes of Child Brain Injury”
Principal Investigator: Shari L. Wade, Ph.D.
Agency: National Institute of Mental Health
August 1, 2006 – May 31, 2011
The objectives of this multi-site clinical trial are to examine the efficacy of Counselor-Assisted Problem Solving
to an Internet Resource Comparison group in improving child and parent mental health following traumatic
brain injury and to examine the mediating role of parent-child communication.
“Positive Parenting Plus- A Parenting Intervention for TBI”
Principal Investigator: Shari L. Wade, Ph.D.
Agency: National Institute on Disability and Rehabilitation Research, Department of Education
December 1, 2006 – November 31, 2009
The objectives of this project are to adapt parent-child interaction therapy for delivery online to parents of
young children with TBI and to test the efficacy of the intervention program in reducing parental distress and
child behavior problems in a small, randomized clinical trial.
“Social Influences on Long-Term Recovery from Traumatic Brain Injury in Young Children”
Principal Investigator: Shari L. Wade, Ph.D.
Agency: Ohio Department of Public Safety Emergency Medical Services
July 1, 2007- June 30, 2008
The objectives of this project are to continue to follow a prospectively recruited cohort of young children with
TBI to examine the relationship between the social environment and child social and behavioral recovery 2-5
years post injury.
“Neural Substrates of Social, Language, and Executive Function Deficits in Internationally Adopted Children”
Principal Investigator: Shari L. Wade, Ph.D.
Agency: University of Cincinnati University Research Council
Dates: July 1, 2007- June 30, 2008
This project examines the neural underpinnings of observed deficits in language, executive function (EF), and
social skills among children adopted from other nations (international adoption; IA) using fMRI.
“Neural Substrates of Executive Function Skills in Adolescent Traumatic Brain Injury”
Principal Investigator: Shari L. Wade, Ph.D.
Agency: Ohio Department of Public Safety Emergency Medical Services
July 1, 200- 8June 30, 2009
The objectives of this project are to examine the neural substrates of executive function skills in adolescents
who sustained a moderate to severe TBI more than 12 months previously.
PHS 398/2590 (Rev. 09/04) Page Continuation Format Page

Sarah Jane Brain Family State Lead Center of Excellence
For the state of
Oklahoma
Oklahoma State University / Center for Health Sciences
www.healthsciences.okstate.edu
REGION: Southcentral CATEGORY OF CARE: Adult Transition
Program Director: Stanley Grogg, DO Position Title: Interim Dean/President
Department: Department of Pediatrics
Address: Houston Parke 635 West 11th Street, Tulsa, OK 74127
Phone: 918‐561‐8201
Email: stanley.grogg@okstate.edu
Program Director: Kayse Shrum, DO Position Title: Associate Professor
Department: Department of Pediatrics
Address: Houston Parke 635 West 11th Street Tulsa, OK 74127
Phone: 918‐382‐3178
Email: kayse.shrum@okstate.edu
Level 1 Center(s): Tulsa, Oklahoma City
Level 2 Center(s): Lawton, Norman
Level 3 Center(s): Woodward, Antlers
Number of jobs PABI Grant creates in Oklahoma: 98
Budget Overview for State Lead Center
State Lead Center Management Sub‐total: $ 4,989,177
Category of Care Management Sub‐total: $ 1,516,545
Case Management Sub‐total: $ 3,041,451
State Lead Center Sub‐total: $ 9,579,172
Indirect Cost to Institution (20%): $ 1,915,834
Administrative Cost to SJBF (2%): $ 191,583
SUB‐TOTAL AMOUNT OF GRANT PROPOSAL: $ 11,686,590

Oklahoma State University / Center for Health Sciences Profile continued
Title/Description Sub‐total Amount for Grant
STATE LEAD CENTER MANAGEMENT
Program Director: $ 68,250
Program Director Assistant: $ 79,791
State Director: $ 265,972
Associate State Director: $ 115,254
State Epidemiologist: $ 177,314
State Epidemiologist Assistant: $ 79,791
State Scientific Investigation Research Coordinator: $ 150,717
State Scientific Investigation Research Assistant: $ 150,717
State Education/Training Coordinator (plus materials): $ 236,806
State General Counsel: $ 212,777
State IT Manager: $ 168,449
State Family Support Coordinator: $ 132,986
State Prevention/Awareness Coordinator: $ 132,986
State Acute Care Coordinator: $ 132,986
State Reintegration Coordinator: $ 132,986
State Adult Transition Coordinator: $ 132,986
State Mild TBI Coordinator: $ 132,986
State Mental Health Coordinator: $ 115,254
State Assistive/Emerging Technology Coordinator: $ 115,254
State Correctional System Coordinator: $ 115,254
State MISC Coordinator: $ 115,254
State Veterans Coordinator: $ 115,254
State Data Manager: $ 115,254
State Public Policy Manager: $ 132,986
State Community Relations Manager: $ 115,254
State Administrative Support: $ 478,749
Charity care: $ 272,791
Human Resources Support: $ 98,000
Training Support: $ 24,500
State Lead Center Office Space Cost: $ 262,152
State Lead Center Transportation/Travel: $ 88,384
State Lead Center Office Equipment/Communications: $ 197,500
State Lead Center Supplies: $ 84,565
Annual and Regional Conferences: $ 32,000
State Brain Injury Association Pediatric Programs: $ 77,940
STATE LEAD CENTER MANAGEMENT SUB‐TOTAL: $ 4,989,177

Oklahoma State University / Center for Health Sciences Profile continued
Title/Description Sub‐total Amount for Grant
CATEGORY OF CARE RESPONSIBILITY: Adult Transition
Regional Category Director: $ 265,972
Regional Category Epidemiologist: $ 212,777
Regional Category Education/Training Coordinator: $ 177,314
Regional Category Scientific Investigation Research: $ 177,314
Regional Veteran Coordinator: $ 177,314
Regional Category Administrative Support: $ 319,166
Regional Category Office Space Cost: $ 76,109
Regional Category Transportation/Travel: $ 157,500
Regional Category Office Equipment/Communications: $ 27,900
Regional Category Supplies: $ 24,551
CATEGORY OF CARE SUB‐TOTAL: $ 1,516,545

Oklahoma State University / Center for Health Sciences Profile continued
Title/Description Sub‐total Amount for Grant
CASE MANAGEMENT RESPONSIBILITY
Level 1 Center Manager(s): $ 253,306
Level 1 Center Field Specialist(s): $ 202,645
Level 1 Center SJB Family Specialist(s): $ 1,383,052
Level 1 Center Administrative Support: $ 227,976
Level 1 Office Space Cost: $ 40,919
Level 1 Transportation/Travel: $ 53,815
Level 1 Office Equipment/Communications: $ 61,600
Level 1 Supplies: $ 74,043
Level 2 Center Field Specialist(s): $ 121,587
Level 2 Center SJB Family Specialist(s): $ 395,158
Level 2 Transportation/Travel: $ 15,443
Level 2 Office Equipment/Communications: $ 26,600
Level 2 Supplies: $ 16,367
Level 3 Center SJB Family Specialist(s): $ 148,184
Level 3 Transportation/Travel: $ 4,680
Level 3 Office Equipment/Communications: $ 11,400
Level 3 Supplies: $ 4,676
CASE MANAGEMENT SUB‐TOTAL: $ 3,041,451
STATE LEAD CENTER SUB‐TOTAL: $ 9,579,172
INDIRECT COST TO INSTITUTION: $ 1,915,834
ADMINISTRATIVE FEE TO SJBF: $ 191,583
STATE LEAD CENTER SUB‐TOTAL: $ 11,686,590
TOTAL JOBS CREATED IN Oklahoma: 98

CURRICULUM VITAE
NAME Stanley E. Grogg, D.O., FACOP, FAAP
Interim President and Dean, Oklahoma State University Center for Health Sciences
BIOGRAPHICAL Office: 1111 W. 17 th St
OSU-CHS Dean’s Office
Tulsa, OK 74127
Research Office: 635 W. 11 th St, OSU-Pediatrics
Tulsa, OK 74127
918-645-4723
Birth: February 21, 1945
Marital Status: Wife, Barbara
Children: Sons - David, Steven, Kelly
EDUCATION Galion High School
Galion, Ohio, 1963
University of Cincinnati
Cincinnati, Ohio
B.S. (Zoology), 1967
Kirksville College of Osteopathic Medicine
Kirksville, MO
D.O., 1971
Still Osteopathic Hospital
Jefferson City, MO
Rotating Internship, 1972
Tulsa Regional Medical Center (Oklahoma Osteopathic Hospital)
Tulsa, OK
Pediatric Residency, 1972-1974
AEC Programa de Imersion Total de Espanol
Turrialba, Costa Rica, 2002
Perspectives Study Program, World Christian Movement
Tulsa, OK
Certificate of Completion, 2005
PROFESSIONAL AND TEACHING EXPERIENCE
Oklahoma State University Medical Center, Tulsa, OK
(Formerly Oklahoma Osteopathic Hospital) (Formerly Tulsa Regional Medical Center)
Chief of Staff 1981-1983
Vice Chief of Staff 1979-1981
Chairman, Pediatric Department 1983-1985, 1991-1993, 2002-2003
Tulsa Regional Medical Center (TRMC) Board Member 1985-1992, 1994-1995
Post Graduate Educational Committee, 1996 – present
Chair, June 2002-2005
Executive Committee Member, 2002-2003
TRMC Physician-Hospital Organization (PHO)
Board Member 1995-1997
Contracts/Finance Committee 1995-1998
Internship Selection Committee 1985-2006
Osteopathic Founders Foundation, Tulsa, OK
Advisory Board, 1996-1998
Sponsorship Committee, 1997-1998
Life Member, 2003
American College of Osteopathic Pediatricians (ACOP)
Pediatrician of the Year, 2008
Board of Trustees, 1994-2004
Secretary/Treasurer, 1996-1997
Vice President, 1997-2000
President, 2000-2002

Immediate Past President, 2003-2004
Nominating Committee, 1995-1996; 1998-1999; Chair, 2006-present
Pediatric Department Chairs Council Ad Hoc Committee, 1998-1999
Advisor for Osteopathic Colleges Student’s Pediatric Clubs, 1999-2000
Alternate Liaison with AOA, 1998-1999
Liaison with AOA, 1999-2003
Chairman for Strategic Planning Committee 1999-2000
Representative for AOA Unity Campaign, 1999-2003
Finance Committee, 1999-2003; 2009
Graduate Medical Education Committee, 2002-present
Representative for Bureau of Osteopathic Specialty Societies, 2004-present
Government Relations, 2009
Clinical Reactor/Reviewer/Referee
Contemporary Pediatrics, 1991-2006
Journal of American Osteopathic Association, 1996-2006
Journal of Travel Medicine, 1999-present
Osteopathic Medicine and Primary Care, 2006-present
Blue Cross and Blue Shield of Oklahoma
Pharmacy and Therapeutics Committee, 1991-present
Pediatric Advisor, Quality Assurance/Quality Improvement, 1995
Ad Hoc Committees
Development of Otitis Media Guidelines, 1997
Development of Asthma Guidelines, 1997-1998
PacifiCare, Green Country, Tulsa, OK
Quality Assurance and Utilization Committee, 1992-1995
Foundation Health and Oklahoma Health Plan, Inc.
Quality Management Physician Advisory Committee, 1995
Preferred Pediatrics Home Health Care, Tulsa, OK
Advisory Board, 1992-2007
Oklahoma Health Care Authority, Oklahoma City, OK
Medical Advisory Committee, 1995-present
Oklahoma State Department of Health, Oklahoma City, OK
Oklahoma Coalition on Folic Acid, 1992-2002
International Medicine
Licensed CDC Yellow Fever Vaccine physician, 1984-present
Oklahoma Osteopathic Association (OOA)
President, 1988-1989
Board Member, 1983-1990
Peer Review Board Member, 1987
Past President Committee, 1990-present
Legislative Subcommittee on Immunizations, 1998
Legislative Committee, 2000-2002, 2005-present
Postgraduate Education Committee, 2003-2008
Oklahoma Educational Foundation for Osteopathic Medicine
Board Member 1989-1990
Hospital Staffs
Oklahoma State University Medical Center, Tulsa, OK
Active and Consulting Staff, 1974-present
Hillcrest Medical Center, Tulsa, OK
Active or Courtesy Staff, 1986-1996
Leave of Absence 1996-1999; 2004-present
Courtesy Staff, 1999-2004
Saint Francis Hospital, Tulsa, OK
Active and Consulting Staff 1987-2002; 2008-present
Courtesy Staff 2002-2008
Children’s Hospital Steering Committee 1995-1998
Pediatric Infectious Disease Sub-Committee, 1996
RespiGam Guidelines Committee, 1996
Post-Graduate Medical Education Quality Committee, 2003-2008
Saint John Medical Center, Tulsa, OK
2

Courtesy Staff, 1990-1998
Leave of Absence, 1998-present
Children’s Medical Center, Tulsa, OK
Consulting Staff, 1979-1991
Medical College Positions
Oklahoma State University Center for Health Sciences, Tulsa, OK
Adjunct Professor, 1974-1996
Clinical Associate Professor of Pediatrics, 1996-1999
Associate Professor of Pediatrics, 1999-2003
Professor of Pediatrics with Tenure, 2003-present
Medical Director, Osteopathic Medical Education of Consortium of Oklahoma
(OMECO), 2005-2008
Medical Director Clinical Research, 2008-present
Committees
Curriculum Development, 1980’s
Student Admissions, 2000-present
Promotion Evaluation, 1980’s
Student Affairs, 2000-2003
Chair, 2002
Other Ad Hoc Committees as requested
Ob-Gyn Search, 2002
OMECO GME, 2001-present
Chair, 2004-2008
Research, 2003-2005; 2008-present
Faculty Senate, 2003-2008
Secretary, 2004-2005
Executive, 2004-2008
President-elect, 2005-2006
President, 2006-2007
Past-president, 2007-2008
Promotion and Tenure, 2004-present
Advisory for Clinical Research, 2007-present
IRB Subcommittee, Chair 2007-2008
Kirksville College of Osteopathic Medicine (KCOM), Kirksville, MO
Clinical Associate Professor, 1985-present
Alumni Association, 1974-present
Oklahoma Chapter President, 1988-1989
Alumni Board, KOAA, 2000-present
President-elect, 2005-2006
President, 2006-2007
Past-President, 2007-2009
Des Moines COM, Diplomat, 2003-present
College of Osteopathic Medicine of the Pacific, Pomona, CA
Clinical Associate Professor of Pediatrics, 1985-present
Touro College of Osteopathic Medicine California, Vallejo, CA
Adjunct Professor, 2009-present
University of Oklahoma College of Nursing, Health Science Center, Oklahoma City, OK
Clinical Instructor, 1996-1999
University of Oklahoma College of Medicine, Tulsa, OK
Clinical Instructor Department of Pediatrics, 1989-1991
Clinical Assistant Professor of Pediatrics, 1991-1996
Clinical Associate Professor of Pediatrics, 1996-present
American Osteopathic Association
House of Delegates Oklahoma representative, 1987-present
Ad Hoc Committee, 2002
By-Laws Committee, 2004
Committee on Educational Affairs, 2005-2008
Testified before U.S. House Commerce subcommittee on patient access to specialty
care/appeals process of managed care, June 23, 1999
Public Affairs Committee of AOA House of Delegates, July, 1999
3

DO Capitol Hill Day, 1999-2006; 2009
Council on Federal Health Programs, September 24, 1999
Standard Setting Committee National Board of Osteopathic Medical Examiners, Inc.,
(NBOME), 1999
NBOME-PE, 2007
NBOME-COMLEX 2, 2009
Council on Federal Health Programs, April 14, 2000
AOA Ambassador Network, 1999-present
Federation of Osteopathic Specialist, member, 2001-2002
Advisory Committee of the Council of Osteopathic Specialty Societies (COSS), 2003
Bureau of Osteopathic Specialist (BOSS), formerly COSS
Member, 2004-present
Chair, 2004-2005
Bureau of Conventions, member, 2004-2008
Bureau of Education, member, 2004
Standard-Setting Consultant, NBOME, 2003; 2009
COMLEX-USA Level 2-PE, 2005, 2007
Consultant, NBOME Clinical Skills Testing
American Board of Osteopathic Examiners (AOBP), 2005-present
Pediatric Endocrine Subcommittee, 2005-2006
Liaison to CDC’s Advisory Committee on Immunization Practices (ACIP),
2006-present
ACIP Working Group Subcommittees
HPV, 2007-present
Rotavirus, 2007-2008
General Recommendations, 2007-present
Japanese Encephalitis, 2008-present
Oklahoma Foundation for Peer Review, Advisory Council, 1988-1990
Infectious Disease Society of America (IDSA) expert panel for updating the
clinical practice guideline on immunizations (Travel Medicine Section),
2007-2008
MEMBERSHIPS IN PROFESSIONAL SOCIETIES
ACTIVITIES
American Osteopathic Association
Chairman’s Club, charter member, 1999-2005
President’s Club, 2006-present
Oklahoma Osteopathic Association
President, 1988-1989
Tulsa Osteopathic Medical Society
Nominating committee, 1998-present
American Academy of Pediatrics
Section on Child Abuse and Neglect, 1997-2000
Section on International Child Health, 1999-present
Section on Osteopathic Pediatricians, 2008-present
American College of Osteopathic Pediatricians, 1974-present
American College of Osteopathic Allergy and Immunology, 1980-present
Pediatric Infectious Disease Society (PIDS), 2007-present
International
International Society of Travel Medicine (ISTM), 2000-present
Rotary International, 1983-present
Sunrise Board, 1985-1986; 1994-1996
Sunrise International Director, 2000-2001
Local representative, “Be Wise Immunize”, 2005-present
Russian Medical Exchange Committee, 2006
DOCARE, 2002-present
DOCARE Guatemalan Medical Missions, 2008
4

OSU-CHS International Medicine Club, 2006-present
Redeemer Covenant Medical Missions, Oaxaca, Mexico, 2006
In His Image International, Conference to Kabul Medical Institute – Junior and Senior
Medical Students and Family Practice Residents and consultations in pediatrics at HOPE
Hospital, Kabul, Afghanistan, 2008
National
Protective Service Task Force, HEW, Southwest Federal Regional Council, 1978-1980
Advisory Council of Resource Center on Child Abuse and Neglect, University of Texas, 1976-1980
Expert Panel Member, National Institutes of Health, Best Pharmaceuticals for Children Act (BPCA),
2004-2005
Certificate of Appreciation for service 2005 hurricane season relief efforts, American Red Cross
Infectious Disease Society of America (IDSA), Expert Panel Member for updating Clinical Practice
Guideline on Immunizations, 2007
Reviewed article for publication for Osteopathic Medicine and Primary Care (OMPC), “School
Based Health Centers: A Four Year Experience, with a Focus on Reducing Student
Exclusion Rates”, 2009
State
Oklahoma Interagency Child Abuse Prevention, 1984-1986
Coordinating Task Force for Children with Special Health Care Needs, 1988-1992
Committee of the Governor’s Council on Children, 1989
Certified Child Abuse Examiner State of Oklahoma, 1991-2000
Oklahoma Health Care Authority Medical Advisory Committee, 1997-present
Medical Review Committee, 1997-present
Oklahoma Values Coalition, 1998
Oklahoma Coalition on Folic Acid, 1999-present
Doctor of the Day, Oklahoma State Legislature, Oklahoma City, 2001; 2007
Emergency Response Database of Physicians, 2002
Oklahoma Medical Reserve Corps, 2005-present
American Lung Association of Oklahoma
Medical Consultant, 2002-present
Field Service Committee, 2004-present
Leadership Committee, 2007-present
Scientific Advisory Committee, 2008-present
Oklahoma Immunization Advisory Committee (OIAC), 2007-present
Vice-chair, 2007-present
Special Olympics Winners Circle, 2008-present
Community Activities
Rainbow House Crisis Nursery, Tulsa, OK, Director and President, 1978-1981
Cystic Fibrosis Foundation Oklahoma Chapter, Medical Advisory Board and Chairman, 1978-1979
Children’s Protective Services, Tulsa, OK
Member, 1980-1989
Chairman, 1985-1986
Redeemer Covenant Church, Tulsa, OK, 1989-present
Missions Board, 2007-present
Muscular Dystrophy Association, Tulsa, OK, 1978-1986
Community Service Council of Greater Tulsa, OK, 1981-1996
Parents Anonymous Advisory Board, Tulsa, OK 1984-1989
Court Appointed Special Advocate Board of Directors (CASA), Tulsa, OK 1986-1991
TLC, Inc., (Ronald McDonald House) Tulsa, OK, Advisory Board, 1989-present
Tulsa Zoo Friends, Tulsa, OK, 1990-2009
Tulsa Sinfonia Patron, Tulsa, OK, 1995-2007
Family and Children’s Service, Advisory Board, Tulsa, OK, 1997-2005
Tulsa Technology Center, Facilitator, Medical Office Assistant Program, Tulsa, OK 1997
Emergency Infant Services, Inc. Tulsa, OK, Board, 1999
Provider’s Alliance of Tulsa for Children’s Health (PATCH), 1999-2007
Good Samaritan Medical Missions Van, Tulsa, OK, 2000-present
United Way
“Key Club” level for OSU-CHS, 1999-present
Member Campaign Medical Clinics, 2000; Chair, 2001
5

Parent Child Center of Tulsa, OK, Board, 2001-2003
Medical Advisory Committee, 2000-2006
Clinical Advisory Committee of CARELINK, Tulsa, OK, 2003-2005
PROFESSIONAL STUDY
Citizens Police Academy, Tulsa, OK, 2002
OSU-CHS Sexual Harassment Class, 2005
PALS Instructor, 2005-present
Red Cross Disaster Course, 2005
OSU-CHS Medical Spanish Course, 2005
Educational Cruise Western Africa, 2006
Disaster BLS certificate, 2007-present
Educational visit to Egypt, Jordan, Syria, Lebanon, 2008
Proper Prescribing, C. Scott Anthony, DO, OSU-MC 2009
Biomedical Ethics Seminar: Professional Practice Guidelines; Values Determined by Politics or Science,
2009
HONORS
McCaughan Education Fund Scholarship, KCOM, 1967
Sigma Sigma Phi Honorary Fraternity, KCOM, 1996
Psi Sigma Alpha National Osteopathic Honorary Society, 1966
Mead Johnson Fellowship Grant, 1973
PacifiCare P.R.I.D.E. Program Ovation Award, 1995
Distinguished Service Award, OOA, 1998
KCOM Distinguished Patron Lifetime Giving Award, 2008
Oklahoma Osteopathic Association’s “Physician of the Year”, 2006
OSU-CHS “Big 12 Research Fellowship”, 2008
ACOP, Harold H. Finkel, DO Pediatrician of the Year Award, 2008
Honorary Chair, Beaujolais Event, American Lung Association, 2008
Oklahoma State University-CHS Regents Research Award, 2009
RESEARCH ACTIVITIES
Clinical Research
FDA approved Clinical Investigator, 1989-present
Certificate of Completion, Training in the Protection of Human Research Participants,
Oklahoma State University, 2000
Certified Basic Research, Collaborative Institutional Training Initiative (CITI), 2007
Annual OSU-CHS Research Day, 2008-present
Clinical Studies
Hoffman - La Roche NR1469B: A single-blind Randomized Comparative Study of Single Dose
(IM) Ceftriaxone and Single-Dose (IM) Benzathine Penicillin G for the Treatment of
Streptococcal Pharyngitis in Children, 1992
Academy of Osteopathy in conjunction with OSU-COM: Use of Manipulative Therapy in the
Treatment of Chronic Otitis Media in 6 Months to 3-Year-Old Children, 1997-1999
HealthCare Research Consultants: Comparative Safety and Efficacy of Cefditoren Pivoxil and
Cefturoxime Axetil in the Treatment Of Acute Bacterial Exacerbation of Chronic Bronchitis,
1998
HealthCare Research Consultants: A Multicenter, Double-Blind, Randomized, Parallel-Group
Asthma Study Comparing Montelukast with Placebo in 2 to 5 Year Old Patients. Protocol
No. 072-00 Periods I, II and III, 1998-1999
Protocol 843-043: Double blind, randomized, placebo- controlled trial of a tablet formulation of
Pleconaril in the treatment of viral respiratory infection in adults, 2000
FEN-USA-87: Principal Investigator, A study to assess the safety, dose conversion and titration
of Duragesic (fentanyl transdermal system) in pediatric subjects with chronic pain requiring
opioid therapy, 2000-2002
ViroPharma Protocol 637-302: Principal Investigator. Observational Study to Characterize
the Disease Course and Outcome of Respiratory Syncytial Virus (RSV) in Otherwise
Healthy Infants, 2000- 2002
6

ViroPharma Protocol 637-303: Principal Investigator, An Observational Study to Characterize
the Disease Course and Outcome of Respiratory Syncytial Virus (RSV) in High-Risk Infants
and Young Children, 2000-2002
ViroPharma Protocol843-059: Principal Investigator. Clinical Efficacy of Pleconaril in the
Treatment of Viral Respiratory Infections in Children 7-12 Years of Age, 2001
ViroPharma Protocol 843-061: Principal Investigator. Clinical Efficacy of Pleconaril in the
Treatment of Viral Respiratory Infections in Children 1-6 Years of Age, 2001
Ingenix/Merck Pharmaceutical Services Protocol 006: Principal Investigator. Rotavirus Safety
and Efficacy Study, 2001-2005
Acknowledged :New England Journal of Medicine, 354;January 5, 2006, 23; S.E.
Grogg, Oklahoma State University, Center for Health Sciences, OSU Physicians,
Houston Parke Clinic, Tulsa, OK
Merck Pharmaceutical MMR II Protocol 010, Principal Investigator, 2004- 2005.
AAP Safety Check, Principal Investigator, Oct. 2004-July 2005.
Sanofi-Pasteur Study GRC28. Primary Investigator. Safety and immunogenicity of Fluzone
Influenza Virus Vaccine (2005-2006 Formulation) among healthy children 6-12 weeks of
age. 2005-2007
MedImmune, Inc: Surveillance Study, RSV testing, Principal Investigator, 2006
Astellas: Protocol: FHI 03-0-161/FG-506-06-37. Principle Investigator. APPLES; A prospective
pediatric longitudinal evaluation to assess the long-term safety of Tacrolimus Ointment for
the treatment of atopic dermatitis. 2006-2016
GSK, Hib-MenCY-TT. Protocol # 103813 (Primary) 105067 (Booster). Principal Investigator. Safety
and immunogenicity study of Hib-MenCY-TT vaccine compared to licensed Hib conjugate
vaccine, each administered at 2, 4, 6, and 15 months of age. A phase III, randomized,
multinational study, double-blinded for the immunogenicity and consistency evaluation of 3-
Hib-MenCY-TT vaccine lots and single-blinded and controlled for the evaluation of safety
and immunogenicity of GSK Biological Haemophilus influenza type b and Neisseria
meningitidis serogroups C and Y-tetanus toxoid conjugate vaccine combined (Hib-MenCY
TT) compared to monovalent Hib vaccine in healthy infants at 2, 4, 6, and 12 to 15 months
of age, 2006-present
Merck 067, Vaqta. , Principal investigator. An open, randomized, multicenter study of the safety,
tolerability and immunogenicity of Vaqta given concomitantly with ProQuad and Prevnar in
healthy children 12 months of age, 2006-2008
Merck HPV (Human Papillomavirus) Study Protocol V-501 025-Phase III for Gardasil. Principal
Investigator. An open-label, randomized, Multicenter study of the safety, tolerability, and
immunogenicity of Gardasil given concomitantly with Menactra and Adacel in healthy
adolescents 11-17 years of age (Protocol No. V501-025), 2006-2007
Sanofi, Menactra MTA 44. Principal Investigator, An Immunogenicity and Safety Evaluation of
Menactra (Meningococcal Groups A, C, Y, and W-135 Polysaccharide Diphtheria Toxoid
Conjugate) given at 9 and 12 Months of Age, 2006-present
Wyeth, (Pneumococcal) 13vPCV. Principal Investigator. A phase 3, randomized, active-controlled,
double blind trial (6096A13005 and 6096A1-30011) evaluating the safety, tolerability, and
immunogenicity of 3 lots of 13-valent pneumococcal conjugate vaccine (PCV-13) in healthy
infants given with routine pediatric vaccinations in the United States and older children,
2007-present
13VPCV. Principal Investigator. For 15 mon – 18 years, as above. 2009-present
MedImmune, Inc. PIV3 (MI-CP-Study 150). Principal Investigator. An expanded phase 1/2a
randomized, double-placebo-controlled study to evaluate the safety, tolerability,
immunogenicity, and viral shedding of blind, Medi-560, a live attenuated recombinant
parainfluenza virus type 3 (PIV3) vaccine, administered intranasally to healthy infants 1 to

Inpatients at Saint Francis Children’s Hospital, Tulsa, OK from 1-04 to 9-31-07; 2008present
MedImmune, Inc. Principal Investigator. Effect of Motavizumab Prophylaxis on Reduction of the
Serious Early Childhood Wheezing in Preterm Infants (Agent MEDI-524). Study
involves preterm infants born at 32-35 weeks gestational age, 2008-on hold
Merck V503-001, Principal Investigator. HPV in adult females, 2009-present
Novartis V59P21 (MenACW135), Principal Investigator. Toddlers, 2009-present
Novartis V59P23 (MenACW135), Principal Investigator. Infants, 2009-present
GSK, HIB-097. Principal Investigator. Partially double blind study to evaluate consistency and
immunogenicity of 3 lots of GSK Biologicals HiB vaccine 208108 versus ActHIB and
Pentacel at 2, 4, 6 and 15-18 months of age in healthy infants. Pending 2009
Sarah Jane Brain Trauma Foundation. Request 3.3 million to set up Excellence Center for Acquired
Brain Disorders, approved excellence center for Oklahoma, 5/2/09
PUBLICATIONS/PRESENTATIONS
Grogg, S. E., Hypoglycemia in the Neonate, Review of the Literature and Case Report.
Journal AOA, 74:137-39; July 1975.
Grogg, S. E., Fever: A Friend Not an Enemy. Health 29:5-7; May-June, 1976.
Grogg, S. E., Child Abuse or Not? A Differential Diagnosis. Osteopathic Medicine. 2:56, 69,106, Jan. 1977.
Grogg, S. E., Congenital Non-goitrous Hypothyroidism (Cretinism): Case Report. Osteopathic Medicine.
2:83, 84, 86, Feb.1977.
Grogg, S. E. & Dunaway, D., Haemophilus Influenza Meningitis: Review and Case Report. Osteopathic
Medicine, 2:40, 41, 43, March, 1977.
Grogg, S. E., Juvenile Diabetic Mellitus. Osteopathic Medicine, 2:40, 41, 43; May, 1977.
Grogg, S. E. and Yates, H., Otitis Media in Children. Osteopathic Medicine, 2:102,103,107, Nov. 1977.
Grogg, S. E. and Liedtke, C., Hypertonic Hypernatremic Dehydration; Diagnosis and Treatment".
Osteopathic Medicine, 3:90, 92, 93, 94, June 1978.
Grogg, S. E. and Thomas, R. L., Hyperthyroidism in Children: Review and Report of Case. Osteopathic
Medicine, 3:91-95, September 1978.
Hoff, G. L., Grogg, S. E., & Maurer, R. S., Idiopathic Thrombocytopenic Purpura in Infancy: Report of
Case and Brief Review. Osteopathic Medicine, 3:42-45, November 1978.
Geyer, D.O., & Grogg, S. E., Neuroblastoma: Review and Report of Two Cases. Osteopathic
Medicine, 4:31-37, March 1979.
Trent, S.N., Grogg, S. E., & Geyer, D. E. Recklinghausen's Disease: A Review of the Literature.
Osteopathic Medicine. 4:61-64, November 1979.
Lepley, B.K., & Grogg, S. E., Congenital Cytomegalovirus Infection: Review and Report of a Case. JAOA,
83:86-88, 1984.
Say, B., Barber, N., Miller, G. C., & Grogg, S. E. Microcephaly, Short Stature, and Developmental Delay
Associated with a Chemotactic Defect and Transient Hypogammaglobulinemia in Two Brothers.
Journal of Medical Genetics, 23:355-359, 1986.
Archer, R. L., Grogg, S. E., & Sanders, S. P, Mucoepidermoid Bronchial Adenoma in a 6-year-old: A Case
Report and Review of the Literature. Journal of Thoracic and Cardiovascular Surgery, 94:452-454,
1987.
Grogg, S. E. & Troxler, M., Diagnosis and Treatment of Childhood and Adolescent Depression. JAOA, 97:
280-285, 1997.
Grogg, B. C. & Grogg, S. E., Traveling Healthy. Hawkeye Osteopathic Journal. 15:5-7, 1997
Mahmoudi, M. & Grogg, S. E., Case & Comment, Facial and Digital Clues. Patient Care, Jan. 30:125-126,
1999.
Grogg, S.E.; AOA House of Delegates Special Edition Washington Update- D.O. Testifies Before Congress
to Protect Patients' Rights, July 1999.
Grogg, S.E., Testifying on Capitol Hill for Patients' Rights, OOA Journal, August, 1999.
Grogg, S. E., International Travel With Children. Practical Considerations, ACOP Pulse, Winter, 2000.
Shrum, K, Grogg, S.E., et.al. Sinusitis in Children: The Importance of Diagnosis and Treatment.
JAOA. 101-5, S8-13, May 2001.
Grogg, S. E., Grogg, B. C., Medical Issues of International Adoption, JAOA, 107, 481-89, 2007
Grogg, S.E., Pickering, L., Infectious Disease Society of America, Guidelines for Immunizations, Travel
Medicine Immunization Section. To be published 2009.
Grogg, S. E., Davison, M, Vassar, M, in preparation: “Making a Difference,
Results of Medical Teaching in Kabul, Afghanistan, 2009.
8

Media presentations:
Medical Minute, Channel 6 with OSU-COM, Tulsa, OK, Attention Deficit Hyperactivity Disorder, July
1998
Medical Minute, Channel 6, with OSU-COM, Tulsa, OK, Allergies in Children, May 1999
Medical Minute, PBS, with OSU-COM, Tulsa, OK, Getting Children to Take Medicines, 1999
Rick Well's Show, Channel 6, Be Wise, Immunize, April 2000
KVOO Radio Station, Tulsa, OK, Treatment of VRI, August 2000
Channel 8, Tulsa, OK, Treatment of VRI, August 2000
Channel 2, Tulsa, OK, Treatment of VRI, August 2000
Channel 2, Tulsa, OK, "Common Cold Study", December 2001
Channel 2, Tulsa, OK, "Rotavirus Study, February 2002
Fox News, Tulsa, OK, "Pool Safety", June 2002
Tulsa World, Tulsa, OK, "Halloween Safety", October 2002
AOA News line, AOA Annual Meeting, Las Vegas, Nevada, October, 2002
Tulsa World, Tulsa, OK, "What's New with ADHA, December, 2002
The DO Magazine, "Childhood Obesity", January, 2003
Tulsa World, Tulsa, OK, "SIDS Update", February 2003
Tulsa World, Tulsa, OK, "Overdosing Unruly Kids", March 2003
Tulsa World, Tulsa, OK, "Circumcisions, Pros and Cons", September 2003
Media Tracks Communications, (syndicated radio), "Medical Aspects of Open versus Traditional
Adoption, Nov. 2003
Tulsa World, Tulsa, OK, "RSV Infection, Dec. 2003
The DO magazine, "International Adoption" article, Jan. 2003
ADDitude Magazine, "Weight Changes Associated with ADHD Medications, Jan. 2004
American Medical News, "Taking a Good Travel History", Feb. 2004
Tulsa World, Tulsa, OK, "Increase In Diabetes In Children", April 2004
Parenting Media, "Adoption", April 2004
American Medical News, "Importance of Travel History", May 2004
Pulse (ACOP), "The Rule of 3's: Defining Anemia", 2004
AOA Web Publication, "Back to School: Childhood Needlephobia", Aug.2004
Tulsa World, Stillwater News Press, KRMG, FOX News, and Channel 6, “Measles
vaccine trials due at OSU facility in Tulsa”, January 2005
AOA Daily Report: “Representing AOA and ACOP at the Best Pharmaceuticals for
Children Act Drug List Prioritization Meeting in Bethesda, MD 2005
Tulsa Schools Educational Channel, "Asthma in Children", December 2005
AOA’s Health for Whole Family 2006
“Sudden Infant Death Syndrome”
“Children on Medications”
“Benefits of Breast Feeding”
“Infant Safety in Cars”
Tulsa Public Schools, Recorded for TV replay: “Difference between USA and Russian
Medical Systems”, 2007
OSU-Research Vanguard Magazine, OSU Medicine’s clinical trials/ Take on Children’s Diseases
2009
ACOP’s Pulse: “Communications Messaging, “Myths, The Truth about Immunizations”, 2009
Speaker's Bureau 2008-2009
AstraZeneca
GlaxoSmithKline
Merck
Pfizer
Sanofi-Aventis
Pharmaceutical Advisory Boards
Merck HPV International Advisory Board 2007-present
Novartis Meningococcal International Advisory Board, 2008-present
Invited presentation since January 2008
“Asthma Up Date” and “Vaccine Up Date”, Kirksville College of Osteopathic Medicine, CME
“Toxic Child", Oklahoma Osteopathic Association CME
“Traveling Healthy”, Virginia College of Osteopathic Medicine
9

HOBBIES
“Immunizations for Children”, American College of Osteopathic Family Medicine
“Why DO Clinical Research”, Oklahoma State University-Medical Center
“Evaluation of Crying Child”, Oklahoma State University-CHS CME
‘Childhood Asthma”, Kirksville College of Osteopathic Medicine CME
“Acute Gastroenteritis and Pediatric Dermatology and Pediatrics Cardiac Workshop”
Kabul Institute of Medicine, Kabul, Afghanistan
“Combination Vaccines”, Ok State Health Departments, Teleconference
“Zoonosis”, Tulsa Pediatric Grand Rounds
“Pediatric Immunizations”, Cape Gerardo, MO Medical Society, CME
“Medical Mission to Afghanistan”, OSU-COM Pediatric Club
“Childhood Asthma”, Kirksville College of Osteopathic Medicine, CME
“Immunization Update”, Kirksville College of Osteopathic Medicine, CME
“Disorders NOT to Acquire While Cruising”, Kirksville College of Osteopathic Medicine CME,
San Juan, Puerto Rico
“Childhood Asthma”, Kirksville College of Osteopathic Medicine CME, Caribbean Cruise
“History of Immunizations”, NOVA Southeastern University CME, Ft. Lauderdale
“Pediatric GI disorders”, Oklahoma University PA students
“Immunization Myths”, ACOP Annual CME, Anaheim, CA
“Asthma in Childhood and Adolescence”, Kirksville College of Osteopathic Medicine CME,
Honolulu, HI
“Immunization Up-Date”, Kirksville College of Osteopathic Medicine CME, Honolulu, HI
“Practice-based research”, OSU-CHS Medicine Students, monthly
“Immunization Up-Date”, Missouri Association of Osteopathic Physicians and Surgeons (MAOPS),
Branson, Missouri
OSU-Medical Center Grand Rounds; “Autism”
Regional Osteopathic Medical Education, “Autism”, “Emerging Pediatric Infections”, Myrtle Beach
Travel - Traveler’s Century Club having visited 136 countries
Reading
Teaching
Mission/Volunteer work
Hosting international students
Updated SEG 5/30/2009
10

Sarah Jane Brain Family State Lead Center of Excellence
For the state of
Oregon
Teaching Research Institute and Western Oregon University
www.tr.wou.edu
REGION: Pacific CATEGORY OF CARE: Reintegration (National Lead)
Program Director: Ann Glang, Ph.D. Position Title: Research Professor
Department: Special Education
Address: 345 N. Monmouth Avenue, Monmouth, OR 97361
Phone: 541‐346‐0594
Email: aglang@orcasinc.com
Level 1 Center(s): Eugene (Teaching Research Institute), Portland
Level 2 Center(s): LaGrande, Bend, Medford, Albany, North Bend, Salem, Hillsboro
Level 3 Center(s): 0
Number of jobs PABI Grant creates in Oregon: 132
Budget Overview for State Lead Center
State Lead Center Management Sub‐total: $ 7,461,541
Category of Care Management Sub‐total: $ 4,204,576
Case Management Sub‐total: $ 7,891,631
State Lead Center Sub‐total: $ 19,589,748
Indirect Cost to Institution (20%): $ 3,917,950
Administrative Cost to SJBF (2%): $ 391,795
SUB‐TOTAL AMOUNT OF GRANT PROPOSAL: $ 23,899,492

Teaching Research Institute and Western Oregon University Profile continued
Title/Description Sub‐total Amount for Grant
STATE LEAD CENTER MANAGEMENT
Program Director: $ 0
Program Director Assistant: $ 127,813
State Director: $ 426,043
Associate State Director: $ 184,619
State Epidemiologist: $ 284,029
State Epidemiologist Assistant: $ 127,813
State Scientific Investigation Research Coordinator: $ 241,425
State Scientific Investigation Research Assistant: $ 241,425
State Education/Training Coordinator (plus materials): $ 343,801
State General Counsel: $ 340,835
State IT Manager: $ 269,827
State Family Support Coordinator: $ 213,022
State Prevention/Awareness Coordinator: $ 213,022
State Acute Care Coordinator: $ 213,022
State Reintegration Coordinator: $ 213,022
State Adult Transition Coordinator: $ 213,022
State Mild TBI Coordinator: $ 213,022
State Mental Health Coordinator: $ 184,619
State Assistive/Emerging Technology Coordinator: $ 184,619
State Correctional System Coordinator: $ 184,619
State MISC Coordinator: $ 184,619
State Veterans Coordinator: $ 184,619
State Data Manager: $ 184,619
State Public Policy Manager: $ 213,022
State Community Relations Manager: $ 184,619
State Administrative Support: $ 766,878
Charity care: $ 366,489
Human Resources Support: $ 132,000
Training Support: $ 33,000
State Lead Center Office Space Cost: $ 352,196
State Lead Center Transportation/Travel: $ 118,742
State Lead Center Office Equipment/Communications: $ 197,500
State Lead Center Supplies: $ 113,612
Annual and Regional Conferences: $ 32,000
State Brain Injury Association Pediatric Programs: $ 91,622
STATE LEAD CENTER MANAGEMENT SUB‐TOTAL: $ 7,461,541

Teaching Research Institute and Western Oregon University Profile continued
Title/Description Sub‐total Amount for Grant
CATEGORY OF CARE RESPONSIBILITY: Reintegration (National Lead)
National Category Director: $ 558,000
National Category Epidemiologist: $ 465,000
National Category Education/Training Coordinator: $ 372,000
National Category Scientific Investigation Research: $ 372,000
National Assistive/Emerging Technology Coordinator: $ 372,000
Regional Category Director: $ 426,043
Regional Category Epidemiologist: $ 340,835
Regional Category Education/Training Coordinator: $ 284,029
Regional Category Scientific Investigation Research: $ 284,029
Regional Assistive/Emerging Technology Coordinator: $ 284,029
Regional Category Administrative Support: $ 511,252
Regional Category Office Space Cost: $ 159,056
Regional Category Transportation/Travel: $ 180,000
Regional Category Office Equipment/Communications: $ 43,400
Regional Category Supplies: $ 51,308
CATEGORY OF CARE SUB‐TOTAL: $ 4,204,576

Teaching Research Institute and Western Oregon University Profile continued
Title/Description Sub‐total Amount for Grant
CASE MANAGEMENT RESPONSIBILITY
Level 1 Center Manager(s): $ 426,043
Level 1 Center Field Specialist(s): $ 340,835
Level 1 Center SJB Family Specialist(s): $ 2,492,354
Level 1 Center Administrative Support: $ 383,439
Level 1 Office Space Cost: $ 57,722
Level 1 Transportation/Travel: $ 66,055
Level 1 Office Equipment/Communications: $ 61,600
Level 1 Supplies: $ 104,449
Level 2 Center Field Specialist(s): $ 795,281
Level 2 Center SJB Family Specialist(s): $ 2,907,746
Level 2 Transportation/Travel: $ 73,216
Level 2 Office Equipment/Communications: $ 93,100
Level 2 Supplies: $ 89,790
CASE MANAGEMENT SUB‐TOTAL: $ 7,891,631
STATE LEAD CENTER SUB‐TOTAL: $ 19,589,748
INDIRECT COST TO INSTITUTION: $ 3,917,950
ADMINISTRATIVE FEE TO SJBF: $ 391,795
STATE LEAD CENTER SUB‐TOTAL: $ 23,899,492
TOTAL JOBS CREATED IN Oregon: 132

BIOGRAPHICAL SKETCH
NAME POSITION TITLE
Ann E. Glang Research Scientist
EDUCATION/TRAINING (Begin with baccalaureate or other initial professional education, such as nursing, and include postdoctoral training.)
INSTITUTION AND LOCATION DEGREE YEAR(S) FIELD OF STUDY
University of California, Berkeley, CA B.S. 1977 Social Welfare & French
University of Oregon, Eugene, OR M.S. 1983 Special Education
University of Oregon, Eugene, OR Ph.D. 1987 Special Education
Positions and Employment
1987-90 Research Associate, University of Oregon, Eugene, OR
1987-91 Research Associate, Oregon Research Institute, Eugene, OR
1991-93 Adjunct Research Scientist, Oregon Research Institute, Eugene, OR
1993-06 Associate Research Professor, Teaching Research, Western Oregon University, Eugene, OR
2006- Senior Fellow and Research Professor, Teaching Research Institute, Western Oregon University,
Eugene, OR
1996- Research Scientist, Oregon Center for Applied Science, Eugene, OR
Peer-Reviewed Publications (in Chronological Order).
Glang, A., Gersten, R., & Singer, G. (1990). Computer-assisted video instruction in training paraprofessionals to
teach brain-damaged clients. Journal of Special Education Technology, 10(3), 137-146.
Glang, A., Singer, G., Cooley, E., & Tish, N. (1991). Direct instruction: Applications with students with brain
injury. Association for Direct Instruction News, 11(1), 23-28.
Glang, A., Singer, G., Cooley, E., & Tish, N. (1992). Tailoring direct instruction techniques for use with
elementary students with brain injury. Journal of Head Trauma Rehabilitation, 7(4), 93-108.
Zoref, L., Glang, A., & Hall, T. (1993). Developing a volunteer reading program in your school: Strategies,
successes, and challenges. The Oregon Conference Monograph, 5, 15-21.
Glang, A., Gersten, R., & Morvant, M. (1994). Examining the consultation process: A case study. Learning
Disabilities Research & Practice, 9(4), 225-233.
Singer, G., Glang, A., Nixon, C., Cooley, E., Kerns, K., Williams, D., et al. (1994). A comparison of two
psycholsocial interventions for parents of children with acquired brain injury: an exploratory study. Journal
of Head Trauma Rehabilitation, 9(4), 38-49.
Glang, A., Todis, B., Sohlberg, M. M., & Reed, P. (1996). Helping parents negotiate the school system. In G.
H. S. Singer, A. Glang, & J. Williams (Eds.), Families and children with acquired brain injury:
Challenge and adaptation. Baltimore, MD: Paul H. Brookes.
Singer, G. H. S., Glang, A., & Williams, J. (Eds.). (1996). Families and children with acquired brain injury:
Challenge and adaptation. Baltimore, MD: Paul H. Brookes.
Sowers, J. A., Glang, A., Voss, J., & Cooley, E. A. (1996). Enhancing friendships and leisure involvement of
students with traumatic brain injuries and other disabilities. In L.E. Powers, G.H.S. Singer, & J. Sowers
(Eds.), Building self-competence among children with disabilities. Baltimore, MD: Paul H. Brookes.
Zoref, L., Glang, A., & Hall, T. (1996). Using a volunteer reading program: What constitutes success? The
Oregon Conference Monograph, 8, 67-77.
Cooley, E., Glang, A., & Voss, J. (1997). Making connections: Helping children with acquired brain injury
build friendships. In A. Glang, G. H. S. Singer, & B. Todis (Eds.), Children with acquired brain injury:
The school’s response. Baltimore, MD: Paul H. Brookes.
Todis, B., Glang, A., & Fabry, M. (1997). Family, school, child: A qualitative study of the school experiences
for students with ABI. In A. Glang, G. H. S. Singer, & B. Todis (Eds.), Children with acquired brain
injury: The school’s response. Baltimore, MD: Paul H. Brookes.
Glang, A., Singer, G. H. S., & Todis, B. (Eds.). (1997). Children with acquired brain injury: The school’s
response. Baltimore, MD: Paul H. Brookes.
Glang, A., & Todis, B. (1997). Providing ongoing support to educators through team-based consultation. In A.
Glang, G. H. S. Singer, & B. Todis (Eds.), Children with acquired brain injury: The school’s response.
Baltimore, MD: Paul H. Brookes.
Glang, A., Todis, B., Cooley, E., Wells, J., & Voss, J. (1997). Building social networks for children and
adolescents with ABI: A school-based intervention. Journal Head Trauma Rehabilitation, 12(2), 32-47.
Sohlberg, M., Glang, A., & Todis, B. (1998). Improvement during baseline: Three case studies encouraging
collaborative research when evaluating caregiver training. Brain Injury, 12(4), 333-346.
1

Sohlberg, M., Mateer, C., Penkman, L., Glang, A., & Todis B. (1998). Awareness intervention: Who needs it?
Journal of Head Trauma Rehabilitation, 13(5), 62-78.
Sohlberg, M., Todis, B., & Glang, A. (1998). SCEMA: A team-based approach to serving secondary students
with executive dysfunction following brain injury. Aphasiology, 12(12), 1047-1092.
Glang, A., Robinson, L., & Todis, B. (1999). Collaboration between parents and educators: Partners or
adversaries? Brain Injury Source, 3(3), 10-13.
Todis, B., & Glang, A. (1999). School experiences of students with acquired brain injury: What happens after
transition? American Speech-Language-Hearing Association Division 2 (Neurophysiology and
Neurogenic Speech and Language Disorders) newsletter, 9(5), 3-8.
Sohlberg, M., McLaughlin, K., Todis, B., Larsen, J., & Glang, A. (2001). What does it take to collaborate with
families affected by brain injury? A preliminary model. Journal of Head Trauma Rehabilitation, 16(5),
498-509.
Ylvisaker, M., Todis, B., Glang, A., Urbanczyk, B., Franklin, C., DePompei, R., et al. (2001). Educating
students with TBI: Themes and recommendations. Journal of Head Trauma Rehabilitation, 16(1), 76-3.
Glang, A., Tyler, J., Pearson, S., Todis, B., & Morvant, M. (2004). Improving educational services for students
with TBI through statewide resource teams. NeuroRehabilitation, 19(3), 219-231.
Ehlhardt, L., Sohlberg, M.M., Glang, A., Albin, R. (2005). TEACH-M: A pilot study evaluating an instructional
sequence for persons with impaired memory and executive functions. Brain Injury, 19(8), 569-583.
Glang, A., Noell, J., Ary, D., & Swartz, L. (2005). Using interactive multimedia to teach pedestrian safety:
An exploratory study. American Journal of Health Behavior, 29(5), 435-442.
Ylvisaker, M., Adelson, P.D., Braga, L.W., Burnett, S.M., Glang, A., et. al. (2005). Rehabilitation and Ongoing
Support After Pediatric TBI: 20 Years of Progress. Journal of Head Trauma Rehabilitation, 20(1), 95-109.
Glang, A., Dise-Lewis, J., Tyler, J., & Denslow, P. (2006). Identification and Appropriate Service Delivery for
Children who have TBI; Abstracts from the 2 nd Federal Interagency Conference on Traumatic Brain Injury.
Journal of Head Trauma Rehabilitation, 21, 5, 408-436
Todis, B., Glang A., Bullis, M., & Andrews, J. (2006). Longitudinal Investigation of the Post-School transition
Experiences of Adolescents with TBI. Abstracts from the 2 nd Federal Interagency Conference on Traumatic
Brain Injury. Journal of Head Trauma Rehabilitation, 21, 5, 408-436
Glang, A. & Lash, M. (2006). A holistic approach for improving educational outcomes of students with TBI:
Promising practices and new directions for research. Brain Injury Professional, 3(4), 16-18
Todis, B., Glang A., Bullis, M., & Andrews, J. (2006). Longitudinal investigation of the post-school transition
experiences of adolescents with TBI. Abstracts from the 2 nd Federal Interagency Conference on Traumatic
Brain Injury. Journal of Head Trauma Rehabilitation, 21(5), 421-422.
Glang, A., McLaughlin, K., & Schroeder, S. (2007). Using interactive multimedia to teach parent advocacy
skills: An exploratory study. Journal of Head Trauma Rehabilitation, 22(3), 198-205.
Todis, B., & Glang, A. (2008). Redefining success: Results of a qualitative study of post-secondary transition
outcomes for youth with traumatic brain injury. Journal of Head Trauma Rehabilitation, 23(4), 252-263.
Glang, A., Ylvisaker, M., Stein, M., Ehlhardt, L., Todis, B., & Tyler, J. (2008). Validated Instructional Practices:
Application to Students with TBI. Journal of Head Trauma Rehabilitation.
Glang, A., Todis, B., Thomas, C., Hood, D., Bedell, G., & Cockrell, J. (2008). Return to school following
childhood TBI: Who gets services? NeuroRehabilitation, 23(6), 477-486.
McLaughlin, K. & Glang, A. (in press). The effectiveness of a bicycly safety program for improving safetyrelated
knowledge and behavior in young elementary students. Journal of Pediatric Psychology.
Todis, B. Glang, A., Bullis, M., & Andrews, J. (submitted). Longitudinal Investigation of the Post-High School
Transition Experiences of Adolescents with Traumatic Brain Injury. Journal Head Trauma Rehabilitation.
Video and Curriculum Materials
Noell, J., & Glang, A. (Producers/Authors). (1987). Basic skills in teaching [videotapes]. Eugene, OR:
Association for Direct Instruction.
Glang, A., Sohlberg, M. M., & Todis, B. (1999). Compensatory systems for students with brain injuries. Wake
Forest, NC: L & A Publishing/Training.
Sohlberg, M. M., Todis, B., & Glang, A. (1999). Changes in self awareness among students with brain
injuries. Wake Forest, NC: L & A Publishing/Training.
Sohlberg, M. M., Todis, B., Glang, A., & Lash, M. (1999). Brain injury: Causes and consequences for
students. Wake Forest, NC: L & A Publishing/Training.
Todis, B., Sohlberg, M. M., & Glang, A. (1999). Making the IEP process work for students with brain injury.
Wake Forest, NC: L & A Publishing/Training.
2

Voss, J., Stevens, T., Glang, A., & Cooley, E. (1999). Building friendships: Facilitating social integration of
students with TBI. (Video/manual). Wolfboro, NH: Lash & Associates.
Glang, A., McLaughlin, K., & Swartz, L. (2006). Walk Smart: A safety program for Children Grades K-3
(CD ROM). Eugene, OR: Health Comm Interactive.
Glang, A., McLaughlin, K., & Swartz, L. (2006). Bike Smart: A safety program for Children Grades K-3 (CD
ROM). Eugene, OR: Health Comm Interactive.
Selected Presentations
Glang, A., Cooley, E., & Kurlychek, R. (1992, February). Tailoring Direct Instruction techniques for use with
students with brain injury. Presented at annual meeting of the Intl. Neuropsych. Society, San Diego, CA.
Glang, A., & Cooley, E. (1992, November). Designing effective services for students with traumatic brain
injury, their families, and professionals who serve them. The Association for Persons with Severe
Handicaps, San Francisco, CA
Zoref, L., Glang, A., & Hall, T. (1993, February). Developing a volunteer reading program in your school:
Strategies, challenges and successes. Oregon Conference, University of Oregon, Eugene, OR.
Glang, A. (1993, March). Effective instructional interventions for students with traumatic brain injury. Invited
speaker, Pediatric Brain Injury: Looking ahead to Adolescence and Beyond, Vancouver, BC.
Glang, A., & Kerns, K. (1996, April). Intervention strategies for school-age children with cognitive deficits.
Invited Speaker, Nelson Butters West Coast Neuropsychology Conference, San Diego, CA.
Todis, B., Glang, A., & Fabry, M. (1996, November). A "C" for Mike is an "A" for anyone else. The
Association for Persons with Severe Handicaps, New Orleans, LA.
Tyler, J., Pearson, S., Glang, A., & Todis, B. (1996, November). Training educators to serve students with
brain injury: Where are we and where are we going? Brain Injury Association, Dallas, TX.
Glang, A., Todis, B., & Tyler, J. (1997, November). Long term perspectives on pediatric traumatic brain injury.
Brain Injury Association, Philadelphia, PA.
Glang, A. (1999, December). Developing educational support teams: Building capacity to serve students with
TBI. TBI in the 21st century: Learning from models of research and service delivery, Bethesda, MD.
Glang, A., Tyler, J., Allen, B., & Wong, C. (2000, April). What's different?: Educating students with Traumatic
Brain Injury. Council For Exceptional Children, Vancouver, BC.
Glang, A. (2006). Hospital-School Transition and Educational Interventions. Moody Foundation, Galveston,
TX.
Glang, A., Dise-Lewis, J., Tyler, J., & Denslow, P. (2006). Identification and Appropriate Service Delivery for
Children who have TBI. 2nd Federal Inter-agency Conference on TBI, Bethesda, MD.
Glang, A. (2006) TBI and Education: Lessons learned from school-based advocacy. Federal TBI Protection &
Advocacy Grantee Conference, San Diego, CA.
Glang, A., Dise-Lewis, J., Tyler, J., & Denslow, P. (2005). Identification and Appropriate Service Delivery for
Children who have TBI. Webcast – TBI-TAC.
Tyler, J. & Glang, A. (2005). Identification and Appropriate Service Delivery for Children with TBI in the
Schools. Maternal and Child Health, Washington, DC.
Glang, A., DePompei, R., & Tyler, J. (2005). Service Delivery for Children who have TBI. Webcast, TBI
Technical Assistance Center. Invited speaker. .
Glang A., Savage, R. & Burns, P. (2006). Promoting effective communication and collaboration between families
and schools. Invited speaker. Brain Injury Association of America Caregivers’ Conference, Washington,
DC:
Glang, A. (2006). Hospital-School Transition and Educational Interventions. Invited presenter and discussion
leader, Moody Foundation-Galveston Brain Injury Conference. Galveston, TX. Galveston, TX:
Glang, A., Dise-Lewis, J., Tyler, J., & Denslow, P. (2006). Identification and Appropriate Service Delivery for
Children who have TBI. Invited speaker. 2 nd Federal Inter-agency Conference on TBI, Bethesda, MD.
Todis, B., Glang A., Bullis, M., & Andrews, J. (2006). Longitudinal Investigation of the Post-School transition
Experiences of Adolescents with TBI. 2 nd Federal Inter-agency Conference on TBI. Bethesda, MD.
Glang, A. (2006). TBI and Education: Lessons learned from school-based advocacy. Invited speaker. Federal
TBI Protection & Advocacy Grantee Conference. San Diego, CA:
Glang, A. (2007). Validated Instructional Practices: What Works for Students with TBI? Invited presenter, Moody
Foundation-Galveston Brain Injury Conference. Galveston, TX.
Ongoing Research Support
2004-10 Co-Investigator, Grant # H324C040148, Longitudinal Investigation of School Outcomes for
Children and Youth with TBI, Office of Special Education Programs. Project to study school
3

outcomes for children with traumatic brain injury.
2006-11 Project Director, Grant # H133A060075. TBI Transition System (T-BITS): Systematic Hospital-to-
School Transition for Students with Traumatic Brain Injury, National Institute on Disability and
Rehabilitation Research. Development and evaluation of an intervention to improve transition from
hospital-school, including formative evaluation, pilot test, and multi-site random control trial.
2007-10 Principal Investigator, Grant # R44 HD046257, Advocacy Skills Training for Families Impacted
by TBI, National Institute of Child Health and Human Development. Project to produce an
interactive multimedia CD-ROM for families affected by TBI, focusing on effective
communication skills used to advocate for services to address social behavior in adults with
TBI.
2006-10 Principal Investigator, Grant # R44 MH068989, Video-Based Internet Program to Prevent Youth
Depression, National Institute of Mental Health. Project will develop and evaluate an interactive
multimedia cognitive-behavioral training program for preventing clinical depression and
ameliorating depressive symptomatology in young adolescents age 11 to 14 years old who are at
high risk for depression.
2007-11 Principal Investigator, Grant # R44 MH070966, A Multimedia Program to Improve
Antidepressant Adherence and Prevent Relapse, National Institute of Mental Health. Project will
develop and evaluate an interactive multimedia cognitive-behavioral intervention aimed at
improving regimen adherence and preventing depression relapse for outpatients receiving
antidepressants.
2009-12 Principal Investigator, Grant # H133G090227, The TATE Project: Training Assistive Technology
in the Environment. National Institute on Disability and Rehabilitation Research.
2009-13 Principal Investigator, Grant # H21MC06769, Access to Services for Oregonians with TBI.
Maternal Child Health Bureau—Oregon Department of Education. Development and evaluation of
model to train regional cadres of adult service providers in traumatic brain injury to improve
service delivery.
Completed Research Support (During the Last Three Years)
2001-06 Co-Investigator, Grant # H324C010113, Identification and Provision of Services to Students
with TBI in Public Schools, US Department of Education. This project tracks educational
outcomes for students with brain injury to better understand how special education referral,
identification and placement decisions affect success in school for these students.
2005-07 Principal Investigator, Grant # R44 HD042892, Training Parents to Advocate for Students with
TBI, National Institute of Child Health and Human Development. This program will build upon
the Phase I program which developed a multimedia CD-ROM for parents of students with TBI.
It focused on effective communication skills. The Phase II research will expand the content,
adding three additional advocacy skills and five essential information modules.
2006-09 Principal Investigator, Grant # H21MC06769-01-00, Access to Services for Oregonians with TBI:
A Regional Collaborative Team Approach, Oregon Department of Education. Development and
evaluation of model to train regional cadres of adult service providers in traumatic brain injury to
improve service delivery.
2007-09 Principal Investigator, Grant # R43 HD056610, Interactive Training in Sports Concussion
Prevention and Management, National Institute of Child Health and Human Development. The
Phase I project will develop an Internet/intranet browser-based program for coaches of children
ages 10-14 involved in community sports, covering content advocated by the CDC and American
Academy of Neurology.
2008-09 Co-Investigator, Grant # HD057672, Interactive Training in Bike and Pedestrian Safety Grades 4-
6, National Institute of Child Health and Human Development. This project will develop an
interactive multimedia program to reinforce pedestrian and bicycle safety skills for children in
grades 4-6, for use in both school and home settings.
Media Awards
Axiem Awards, Canyon City, SD 2002 Silver Award. StreetSmart [CD-ROM].
Communicator Awards, Arlington, TX
2001 Crystal Award of Excellence (1st place). BikeSmart [CD-ROM].
Telly Awards, Cincinnati, OH
2001 Bronze Award. Playground Supervision [CD-ROM].
2001 Bronze Award. StreetSmart [CD-ROM].
4

Sarah Jane Brain Family State Lead Center of Excellence
For the state of
Pennsylvania
Children's Hospital of Pittsburgh of UPMC
www.chp.edu
REGION: Mid‐Atlantic CATEGORY OF CARE: Acute Phase
Program Director: Rachel Berger, MD, MPH Position Title: Pediatrician
Department: Pittsburgh Child Advocacy Center
Address: One Children’s Hospital Drive, 4401 Penn Avenue, Pittsburgh, PA 15224
Phone: 412‐692‐8664
Email: rachel.berger@chp.edu
Level 1 Center(s): 2 in Philadelphia, Pittsburgh, Harrisburg
Level 2 Center(s): Philadelphia suburb, Lehigh Valley, Pittsburgh suburb
Level 3 Center(s): rural regions in central PA
Number of jobs PABI Grant creates in Pennsylvania: 136
Budget Overview for State Lead Center
State Lead Center Management Sub‐total: $ 6,400,094
Category of Care Management Sub‐total: $ 1,762,569
Case Management Sub‐total: $ 7,029,147
State Lead Center Sub‐total: $ 15,223,810
Indirect Cost to Institution (20%): $ 3,044,762
Administrative Cost to SJBF (2%): $ 304,476
SUB‐TOTAL AMOUNT OF GRANT PROPOSAL: $ 18,573,048

Children's Hospital of Pittsburgh of UPMC Profile continued
Title/Description Sub‐total Amount for Grant
STATE LEAD CENTER MANAGEMENT
Program Director: $ 68,775
Program Director Assistant: $ 100,480
State Director: $ 334,933
Associate State Director: $ 145,138
State Epidemiologist: $ 223,289
State Epidemiologist Assistant: $ 100,480
State Scientific Investigation Research Coordinator: $ 189,795
State Scientific Investigation Research Assistant: $ 189,795
State Education/Training Coordinator (plus materials): $ 484,014
State General Counsel: $ 267,946
State IT Manager: $ 212,124
State Family Support Coordinator: $ 167,466
State Prevention/Awareness Coordinator: $ 167,466
State Acute Care Coordinator: $ 167,466
State Reintegration Coordinator: $ 167,466
State Adult Transition Coordinator: $ 167,466
State Mild TBI Coordinator: $ 167,466
State Mental Health Coordinator: $ 145,138
State Assistive/Emerging Technology Coordinator: $ 145,138
State Correctional System Coordinator: $ 145,138
State MISC Coordinator: $ 145,138
State Veterans Coordinator: $ 145,138
State Data Manager: $ 145,138
State Public Policy Manager: $ 167,466
State Community Relations Manager: $ 145,138
State Administrative Support: $ 602,879
Charity care: $ 340,899
Human Resources Support: $ 136,000
Training Support: $ 34,000
State Lead Center Office Space Cost: $ 327,604
State Lead Center Transportation/Travel: $ 110,451
State Lead Center Office Equipment/Communications: $ 197,500
State Lead Center Supplies: $ 105,679
Annual and Regional Conferences: $ 32,000
State Brain Injury Association Pediatric Programs: $ 97,400
STATE LEAD CENTER MANAGEMENT SUB‐TOTAL: $ 6,400,094

Children's Hospital of Pittsburgh of UPMC Profile continued
Title/Description Sub‐total Amount for Grant
CATEGORY OF CARE RESPONSIBILITY: Acute Phase
Regional Category Director: $ 334,933
Regional Category Epidemiologist: $ 267,946
Regional Category Education/Training Coordinator: $ 223,289
Regional Category Scientific Investigation Research: $ 223,289
Regional Category Administrative Support: $ 401,920
Regional Category Office Space Cost: $ 95,111
Regional Category Transportation/Travel: $ 157,500
Regional Category Office Equipment/Communications: $ 27,900
Regional Category Supplies: $ 30,681
CATEGORY OF CARE SUB‐TOTAL: $ 1,762,569

Children's Hospital of Pittsburgh of UPMC Profile continued
Title/Description Sub‐total Amount for Grant
CASE MANAGEMENT RESPONSIBILITY
Level 1 Center Manager(s): $ 637,968
Level 1 Center Field Specialist(s): $ 510,374
Level 1 Center SJB Family Specialist(s): $ 3,483,303
Level 1 Center Administrative Support: $ 574,171
Level 1 Office Space Cost: $ 51,135
Level 1 Transportation/Travel: $ 111,132
Level 1 Office Equipment/Communications: $ 117,200
Level 1 Supplies: $ 160,709
Level 2 Center Field Specialist(s): $ 229,668
Level 2 Center SJB Family Specialist(s): $ 746,422
Level 2 Transportation/Travel: $ 23,690
Level 2 Office Equipment/Communications: $ 39,900
Level 2 Supplies: $ 30,681
Level 3 Center SJB Family Specialist(s): $ 279,908
Level 3 Transportation/Travel: $ 7,020
Level 3 Office Equipment/Communications: $ 17,100
Level 3 Supplies: $ 8,766
CASE MANAGEMENT SUB‐TOTAL: $ 7,029,147
STATE LEAD CENTER SUB‐TOTAL: $ 15,223,810
INDIRECT COST TO INSTITUTION: $ 3,044,762
ADMINISTRATIVE FEE TO SJBF: $ 304,476
STATE LEAD CENTER SUB‐TOTAL: $ 18,573,048
TOTAL JOBS CREATED IN Pennsylvania: 136

BIOGRAPHICAL SKETCH
Provide the following information for the key personnel and other significant contributors in the order listed on Form Page 2.
Follow this format for each person. DO NOT EXCEED FOUR PAGES.
NAME
Rachel Pardes Berger
eRA COMMONS USER NAME
BERGERRP
POSITION TITLE
Assistant Professor of Pediatrics
EDUCATION/TRAINING (Begin with baccalaureate or other initial professional education, such as nursing, and include postdoctoral training.)
INSTITUTION AND LOCATION
DEGREE
(if applicable)
YEAR(s) FIELD OF STUDY
Harvard University, Cambridge, MA A.B. 1988-1992 Biochemistry
Columbia University College of Physicians and M.D. 1992-1996 Medicine
Children's Hospital of Pittsburgh (CHP), Pittsburgh, PA Intern/Resid 1996-1999 Pediatrics
Children's Hospital of Pittsburgh, Pittsburgh, PA Fellow 1999-2001 Pediatrics
University of Pittsburgh School of Public Health, M.P.H. 1999-2001 Public Health
NOTE: The Biographical Sketch may not exceed four pages. Items A and B (together) may not exceed two of
the four-page limit. Follow the formats and instructions on the attached sample.
A. Positions and Honors. List in chronological order previous positions, concluding with your present position. List
any honors. Include present membership on any Federal Government public advisory committee.
Positions and Employment
1996 - 1999 Pediatric Intern and Resident, CHP, Pittsburgh, PA
1999 - 2001 Instructor of Pediatrics/Fellow in General Academic Pediatrics, CHP, Pittsburgh, PA
1999 - 2006 Medical Staff Attending, Western Psychiatric Institute & Clinic, Pittsburgh, PA
2001 - 2003 Director, Pediatric Partners, Pittsburgh Child Advocacy Center, CHP, Pittsburgh, PA
2001 - present Assistant Professor of Pediatrics, Medical Staff Attending, Children’s Hospital of Pittsburgh, Pgh PA
2001 - present Scientist, Safar Center for Resuscitation Research, University of Pittsburgh, Pittsburgh, PA
2006- present Associate Director, Safar Center for Resuscitation Research, University of Pittsburgh, Pgh, PA
2008- present Core Faculty, Center for Injury Research and Controls (CIRCL), University of Pittsburgh, Pgh, PA
Other Experience and Professional Memberships
1996 - present Member, American Academy of Pediatrics - Sections on Child Abuse & Neglect
2001 - present Member, Children’s Hospital of Pittsburgh, Child Protection Team
2001 - 2008 Member, American Professional Society on the Abuse of Children (APSAC)
2001 - present Fellow, American Academy of Pediatrics
2002 - 2008 Member, International Society for Prevention of Child Abuse and Neglect (ISPCAN)
2004 - present Helfer Society (Honorary Society for experts and leaders in the field of child abuse and neglect)
Honors
1996 Election to ΑΩΑ (Medical Honor Society)
2001 Ambulatory Pediatric Association Fellows Award
2002, 2003, 2007, 2008 Listed in Best Doctors in America
2003 - present Member, Society for Pediatric Research (SPR)
2004 Michael E. Miller Young Investigator Award (most promising young investigator at CHP)
2006 Selected as one of Pittsburgh’s 40 Under 40 for work related to child abuse
Selected peer-reviewed publications (selected, since 2003)
1. Berger RP. Biomarkers or neuroimaging in central nervous system injury: will the real "gold standard"
please stand up? Ped Crit Care Med 2003;4(3):391-392.
2. Berger RP, Heyes M, Wisniewski S, Adelson PD, Thomas N, Kochanek P. Assessment of the macrophage
marker quinolinic acid in cerebrospinal fluid after pediatric traumatic brain injury: Insight into the timing and
severity of injury in child abuse. J Neurotrauma 2004;21(9):1123-1130.
3. Berger RP, Pierce MC, Kochanek P. Biochemical markers of brain injury: Could they be used as diagnostic
adjuncts in cases of inflicted traumatic brain injury? Child Abuse and Neglect: The International Journal
2004;28(7):739-754.

4. Berger RP, Adelson PD, Dulani T, Pierce M, Cassidy L, Kochanek PM. Serum neuron-specific enolase,
S100B and myelin basic protein concentrations after inflicted and non-inflicted traumatic brain injury in
children. J of Neurosurgery 2005;103(1):61-68.
5. Satchell M, Lai Y, Kochanek P, Wisniewski S, Fink E, Berger RP, DeKosky S, Adelson PD, Clark RSB.
Cytochrome c, a biomarker of apoptosis, is increased in cerebrospinal fluid from infants with inflicted brain
injury from child abuse. Journal of Cerebral Blood Flow & Metabolism 2005;25(7):919-927.
6. Berger RP, Adelson PD. Evaluation and management of pediatric head trauma in the emergency
department: Current concepts and state of the art research. Clinical Pediatric Emergency Medicine 2005;
6(1):8-15.
7. Berger RP. The use of serum biomarkers to predict outcome after traumatic brain injury in adults and
children. J Head Trauma Rehabilitation 2006;21(4):315-333.
8. Berger RP, Dulani T, Leventhal JM, Richichi R, Kochanek PM. Identification of inflicted traumatic brain injury
in well-appearing infants using serum and cerebrospinal markers: A possible screening tool for inflicted
traumatic brain injury. Pediatrics 2006;117:325-332.
9. Berger RP, Adelson PD, Richichi R, Kochanek P. Serum biomarkers after traumatic and hypoxemic brain
injuries: Insight into the biochemical response of the pediatric brain to inflicted brain injury. Dev Neurosci
2006;28:327-335.
10. Bechtel K, Berger RP. Inflicted traumatic brain injury: Making the diagnosis in the emergency department.
Clinical Pediatric Emergency Medicine 2006;7(3):138-142.
11. Berger RP, Hymel K, Gao W. The use of biomarkers after inflicted traumatic brain injury: Insight into etiology,
pathophysiology and biochemistry. Clinical Pediatric Emergency Medicine 2006;7(3):186-193.
12. Berger RP, Kochanek P. Urinary S100B concentrations are increased after brain injury in children: A
preliminary study. Ped Crit Care Med 2006;7:557-561.
13. Kochanek PM, Bayir H, Berger RP, Dixon CE, Jenkins L, Kline AE, Tisherman S, Wagner AK, Clark RSB.
The Safar Center for Resuscitation Research: Searching for breakthroughs in the new millennium. General
Reanimatology 2006;11(5-6):15-25.
14. Beers S, Berger RP, Adelson PD. Neurocognitive outcome and serum biomarkers in inflicted vs. non-inflicted
traumatic brain injury in young children. J Neurotrauma 2007;24(1):97-105.
15. Shore P, Berger RP, Varma S, Janesko KL, Wisniewski SR, Clark RSB, et al. Cerebrospinal fluid biomarkers
versus Glasgow Coma Scale and Glasgow Outcome Scale in pediatric traumatic brain injury: The role of
young age and inflicted injury. J Neurotrauma 2007;24(1):75-86.
16. Gao W, Mandeep CS, Berger RP, Gilbert OS, Allen DL, Pisano M, Adelson PD, Clark RSB, Jenkins L,
Kochanek P. A gel-based proteomic comparison of human cerebrospinal fluid between inflicted and noninflicted
pediatric traumatic brain injury. J Neurotrauma 2007;24(1):43-53.
17. Campbell KA, Berger RP, Ettaro L, Roberts MS. Cost-effectiveness of head computed tomography in infants
with possible inflicted traumatic brain injury. Pediatrics 2007;120:295-304.
18. Kochanek P, Berger RP, Jenkins L, Margulies S. Inflicted childhood neurotrauma: new insight into the
detection, pathobiology, prevention, and treatment of our youngest patients with traumatic brain injury. J
Neurotrauma 2007;24(1):1-4.
19. Berger RP, Beers SR, Richichi R, Wiesman D. Serum biomarker concentrations and outcome after pediatric
traumatic brain injury. J Neurotrauma. 2007;24(12):1793-1801.
20. Buttram SDW, Wisniewski SR, Jackson EK, Adelson PD, Feldman K, Bayir H, Berger RP, Clark RSB,
Kochanek PM. Multiplex assessment of cytokine and chemokine levels in cerebrospinal fluid following
severe pediatric traumatic brain injury: Effects of moderate hypothermia. J Neurotrauma. 2007;24(11): 1707-
1717.
21. Runyan DK, Berger RP, Barr RG. Defining an ideal system to establish the incidence of inflicted traumatic
brain injury: Summary of the consensus conference. Am J Preventive Medicine 2008;34(4S):S163-S168.
22. Berger RP. Diagnosing abusive head trauma: A primer for health care providers. Brain Injury Professional
2008;5(1):18-20.
23. Kochanek PM, Berger RP, Bayir H, Wagner A, Jenkins LW, Clark RSB. Biomarkers of primary and evolving
damage in traumatic and ischemic brain injury: Diagnosis, prognosis, probing mechanisms, and therapeutic
decision making. Current Opinion in Critical Care 2008;14:135-141.
24. Fink EL, Lai Y, Zhang X, Janesko-Feldman K, Adelson PD, Szabó C, Berger RP, Sarnaik AA, Kochanek PM,
Clark RSB. Quantification of poly(ADP-ribose)-modified proteins in cerebrospinal fluid from infants and
children after traumatic brain injury. Journal of Cerebral Blood Flow and Metabolism 2008;28:1523-1529.
25. Berger RP, Richichi R. Derivation and validation of an equation for adjustment of neuron-specific enolase
concentrations in hemolyzed serum. Pediatric Critical Care Medicine 2009: 10(2): 260-263.
26. Berger RP, Ta’asan S, Rand A, Lokshin A, Kochanek P. Multiplex assessment of serum biomarker
concentrations in well-appearing children with inflicted traumatic brain injury. Pediatric Research
2009;65(1):97-102.

C. Research Support. List selected ongoing or completed (during the last three years) research projects (federal
and non-federal support). Begin with the projects that are most relevant to the research proposed in this
application. Briefly indicate the overall goals of the projects and your role (e.g. PI, Co-Investigator, Consultant) in
the research project. Do not list award amounts or percent effort in projects.
1K23HD43843-0 4/1/2003- 3/31/2010, currently in a no-cost extension
NIH
Using Biochemical Markers to Detect Abusive Head Trauma
Abusive head trauma is the leading cause of head injury in infants. Proper diagnosis of abusive head trauma is difficult
because patients often present without a history of trauma, with non-specific signs and symptoms and/or with a normal
physical examination. Biochemical markers of brain injury are released from the brain after injury and diffuse into the
cerebrospinal fluid and/or serum where their concentration can be measured. The goals of this project are 1) to determine
whether measuring the concentration of several of these cerebrospinal fluid and serum markers could be used as a
screening test for abusive head trauma and 2) to measure serum biomarker concentrations after non-traumatic neurologic
insults such as meningitis and seizures.
Role: PI
R49/CCR323155-01 9/1/03-8/30/09
CDC
University of Pittsburgh
Center for Injury Research and Control (CIRCL)
Center Grant
Improving the Diagnosis and Prognosis of Inflicted Head Trauma in Infants
This is a prospective study of biochemical markers of brain injury in children at increased risk of inflicted head injury. This
study includes long-term follow up of enrolled children to improve assessment of the sensitivity and specificity of
biomarkers of brain injury.
Role: Co-Investigator
Overlap
There is some scientific overlap between the K23 and the above grant. The above grant provides additional funding for a
research nurse and laboratory technician
1U49CE001 274-01 10/1/2007-9/30/2010
CDC
Pennsylvania Abusive Head Trauma Prevention Program
The goal of this project is to assess the effectiveness of an education program in decreasing the incidence of abusive
head trauma in Pennsylvania. As part of the program, a video about abusive head trauma is shown to all mothers (and
many fathers) of infants born in any birthing hospital in Pennsylvania. The incidence of abusive head trauma is being
tracked through ChildLine, the Pennsylvania-state registry for child abuse cases.
Role: Co-investigator
UL1 RR024153 12/1/2007-12/30/2009
Pediatric Clinical and Translational Research Center
Using a Blood Test and a Clinical Decision rule to Identify Brain Injury in Infants
This grant funds the head CTs for the subjects enrolled in a study entitled ‘Novel Approaches to Screening for Inflicted
Childhood Neurotrauma.’ This study evaluates the use of serum biomarkers and a clinical decision rule to screen for
inflicted childhood neurotrauma in the emergency department. The study also uses multiplex bead technology to evaluate
and screen for additional biomarkers which may be useful as part of a biomarker screening panel.
Role: PI
W81XWH- 07-0701 1/1/08-11/30/09
Biomarkers: Evaluating and Treating Acute and Chronic Traumatic Brain Injury
U.S. Army
The purpose of this grant is to establish a military and civilian network: The Collaborative Brain Injury Biomarkers
Development Network (CBBDN), with the goal of this system being to evaluate and identify and validate sensitive and
effective biomarkers that possess a high potential for diagnosis, prognosis, and treatment monitoring in the acute and
post-acute phase after traumatic brain injury. As part of this grant we will be establishing and utilizing both clinical and
preclinical platforms for novel biomarker discovery and assessment. With this panel, we will then develop a program of
clinical biomarker validation in the acute and chronic periods of clinical TBI
R ole: Co-investigator

Sarah Jane Brain Family State Lead Center of Excellence
For the state of
Puerto Rico
Puerto Rico Medical Center / University of Puerto Rico
www.upr.edu
REGION: Southeast CATEGORY OF CARE: Virtual SJB Center
Program Director: Juan A. Vigo Prieto, MD Position Title: Neurological Surgeon
Department: Department of Pediatrics
Address: PO Box 5067, San Juan, PR 00936
Phone: 787‐765‐8296
Email: drvandj@coqui.net
Level 1 Center(s): San Juan
Level 2 Center(s): Ponce, Mayaguez
Level 3 Center(s): Carolina, Arecibo
Number of jobs PABI Grant creates in Puerto Rico: 84
Budget Overview for State Lead Center
State Lead Center Management Sub‐total: $ 3,728,717
Category of Care Management Sub‐total: $ 1,145,270
Case Management Sub‐total: $ 1,420,568
State Lead Center Sub‐total: $ 6,326,555
Indirect Cost to Institution (20%): $ 1,265,311
Administrative Cost to SJBF (2%): $ 126,531
SUB‐TOTAL AMOUNT OF GRANT PROPOSAL: $ 7,718,397

Puerto Rico Medical Center / University of Puerto Rico Profile continued
Title/Description Sub‐total Amount for Grant
STATE LEAD CENTER MANAGEMENT
Program Director: $ 68,250
Program Director Assistant: $ 57,537
State Director: $ 191,788
Associate State Director: $ 83,108
State Epidemiologist: $ 127,859
State Epidemiologist Assistant: $ 57,537
State Scientific Investigation Research Coordinator: $ 108,680
State Scientific Investigation Research Assistant: $ 108,680
State Education/Training Coordinator (plus materials): $ 202,135
State General Counsel: $ 153,431
State IT Manager: $ 121,466
State Family Support Coordinator: $ 95,894
State Prevention/Awareness Coordinator: $ 95,894
State Acute Care Coordinator: $ 95,894
State Reintegration Coordinator: $ 95,894
State Adult Transition Coordinator: $ 95,894
State Mild TBI Coordinator: $ 95,894
State Mental Health Coordinator: $ 83,108
State Assistive/Emerging Technology Coordinator: $ 83,108
State Correctional System Coordinator: $ 83,108
State MISC Coordinator: $ 83,108
State Veterans Coordinator: $ 83,108
State Data Manager: $ 83,108
State Public Policy Manager: $ 95,894
State Community Relations Manager: $ 83,108
State Administrative Support: $ 345,219
Charity care: $ 196,706
Human Resources Support: $ 84,000
Training Support: $ 21,000
State Lead Center Office Space Cost: $ 189,034
State Lead Center Transportation/Travel: $ 63,733
State Lead Center Office Equipment/Communications: $ 197,500
State Lead Center Supplies: $ 60,979
Annual and Regional Conferences: $ 32,000
State Brain Injury Association Pediatric Programs: $ 56,202
STATE LEAD CENTER MANAGEMENT SUB‐TOTAL: $ 3,728,717

Puerto Rico Medical Center / University of Puerto Rico Profile continued
Title/Description Sub‐total Amount for Grant
CATEGORY OF CARE RESPONSIBILITY: Virtual SJB Center
Regional Category Director: $ 191,788
Regional Category Epidemiologist: $ 153,431
Regional Category Education/Training Coordinator: $ 127,859
Regional Category Scientific Investigation Research: $ 127,859
Regional Business Development Manager: $ 127,859
Regional Category Administrative Support: $ 230,146
Regional Category Office Space Cost: $ 54,881
Regional Category Transportation/Travel: $ 157,500
Regional Category Office Equipment/Communications: $ 27,900
Regional Category Supplies: $ 17,704
CATEGORY OF CARE SUB‐TOTAL: $ 1,145,270

Puerto Rico Medical Center / University of Puerto Rico Profile continued
Title/Description Sub‐total Amount for Grant
CASE MANAGEMENT RESPONSIBILITY
Level 1 Center Manager(s): $ 91,328
Level 1 Center Field Specialist(s): $ 73,062
Level 1 Center SJB Family Specialist(s): $ 498,650
Level 1 Center Administrative Support: $ 82,195
Level 1 Office Space Cost: $ 29,506
Level 1 Transportation/Travel: $ 25,929
Level 1 Office Equipment/Communications: $ 33,800
Level 1 Supplies: $ 33,721
Level 2 Center Field Specialist(s): $ 87,675
Level 2 Center SJB Family Specialist(s): $ 284,943
Level 2 Transportation/Travel: $ 15,052
Level 2 Office Equipment/Communications: $ 26,600
Level 2 Supplies: $ 11,802
Level 3 Center SJB Family Specialist(s): $ 106,854
Level 3 Transportation/Travel: $ 4,680
Level 3 Office Equipment/Communications: $ 11,400
Level 3 Supplies: $ 3,372
CASE MANAGEMENT SUB‐TOTAL: $ 1,420,568
STATE LEAD CENTER SUB‐TOTAL: $ 6,326,555
INDIRECT COST TO INSTITUTION: $ 1,265,311
ADMINISTRATIVE FEE TO SJBF: $ 126,531
STATE LEAD CENTER SUB‐TOTAL: $ 7,718,397
TOTAL JOBS CREATED IN Puerto Rico: 84

CURRICULUM VITAE
NAME: JUAN ALBERTO VIGO PRIETO SEX: MALE
DATE OF BIRTH: 24 November 1958 HOME ADDRESS:
52 Kings Court, Apt. 1B
PLACE OF BIRTH: Dominican Republic Santurce, P. R. 00911
CITIZENSHIP: Spain; Permanent U.S. Resident
MARITAL STATUS: Married HOME TELEPHONE: (787) 728-8052
SPOUSE; Dr. Lori Jurgens;
Oral & Maxillofacial Surgeon
CHILDREN: Lorena Alexandra, born 3-17-93
OFFICE ADDRESS;
OFFICE ADDRESS:: - San Jorge Medical Building
UPR School of Medicine 252 San Jorge, Suite 404
RCM Neurosurgery, P. O. Box 5067 San Juan, P.R. 00912
San Juan, Puerto Rico 00936-5067 Telephone: (787) 268-1996
Telephone: (787) 765-8296
. Beeper (787) 402-2337 Unidad 230-2844
EDUCATION AND DEGREES
COLLEGE OR UNIVERSITY
Colegio de la Salle Dominican Republic 1976
MEDICAL SCHOOL
U. Catolica Madre y Maestra - MD Dominican Republic 1982
Summa Cum Laude
INTERNSHIP
Ponce District Hospital 1985 - 86
RESIDENCY, FELLOWSHIP OR OTHER POSTGRADUATE TRAINING
Neurosurgery Residency U. of P. R. School of Medicine 1986 - 1991
Pediatric Neurosurgery Texas Children’s Hospital 1991 - 1992
Fellowship Baylor University
SPECIALTY: Neurological Surgery
SUBSPECIALTY: Postdoctoral Fellowship Pediatric Neurological Surgery
Baylor School of Medicine, Houston, Texas
Texas Children’s Hospital

LICENCE TO PRACTICE MEDICINE: (place, license number and year)
Puerto Rico License # 10280 1992
Texas License #L7914 2003
CERTIFICATION BY AMERICAN BOARD OF MEDICAL SPECIALTY
American Board of Neurological Surgeons 1998
SPECIALTY COLLEGES
American College of Neurosurgeons 1992
Colegio de Medico Cirujanos de P. R. 1995
PROFESSIONAL EXPERIENCE
UPR Assistant professor, Neurosurgery Aug. 1992
UPR Chief, Pediatric Neurosurgery Section Aug. 1992
ACADEMIC APPOINTMENTS
Assistant Professor UPR, RCM Neurosurgery Section 1992
OTHER APPOINTMENTS
Chief, Pediatric Neurosurgery Section, UPR, RCM 1992
Chief, Pediatric Neurosurgery, San Jorge Children’s Hospital 1999
TEACHING EXPERIENCE
University of Puerto Rico, School of Medicine 1992
Chief Pediatric Neurosurgical Section (involved with interns,
residents, medical students, graduate students, and others)
POSTGRADUATE OR GRADUATE COURSES
Neurobiology Course Neurobiology Marine Institute 1987
Woods Hole, Ma.
Neurology Postdoctoral Course Queens Square, London 1988
Hospital for the Sick

PARTICIPATION IN INTERNATIONAL SCIENTIFIC MEETINGS
Caribbean Assoc. of N.S. Santo Domingo 2000
Congress of N.A. Boston, Ma. 1999
Congress of N.S. Seattle, Wa 1998
Congress of N.S. New Orleans, La 1997
Sociedad Ortopedia Dorado, P.R. 6/97
AA Pediatric Neurosurgery Charleston, S.C. 12/96
Congress of Neurosurgeons Montreal, Canda 9/96
AANS Orlando, Fla 4/95
AANS-Southern Society San Juan, PR 4/95
AA Pediatric Neurosurgery St. Louis, Mo. 12/94
Neuroscience Maracaibo, Venezuela 11/94
AANS Chicago, Il. 10/94
Neuro Oncology Houston, Tx. 3/94
AANS - Pediatrics San Antonio, Tx. 12/93
Caribbean Neurosurgery Cong. San Juan, PR 2001
Caribbean Assoc. N.S. Panama 2002
AANS/CNS Annual Mtg. Scotsdale, Ariz 2002
Caribbean Assoc. N.S. Santo Domingo 2003
Educational Program Ponce, P.R. 2004
Caribbean Assoc. of N.S. Costa Rica 2004
AANS/CNS Pediatric NS San Francisco, CA 2004
Penn Neurology 2004 Update San Juan, P.R. 2004
International Soc, Ped. N.S. Vancouver, B.C., Canada 2005
Endoscopic Techniques in N.S. Phoenix, Ariz 2005
XV Cong. Int. de Neurologia y
Neurocirugia Santo Domingo 2005
SPECIAL LECTURES (Guest Speaker)
“Non-traumatic craniocervical
instability in children” Caribbean Neurosurgery Society 2000
“Craniosyntosis” Caribbean Neurosurgery Society 2000
“Brain Tumors in Children Pediatric Med. Assoc. West Region 1999
“Craniosyntosis” Pediatric Med. Assoc. West Region 1999
“Craniosyntosis’ Caribbean Neurosurgery Society 1999
“Neural Tube Defects” San Jorge Hospital Faculty 1997
“Hydrocephalus” Dominican Neurosurgical Society 1996
Neural Tube Defects
“Brain Tumors in Children” Sociedad Auxilio Mutuo, Pediatrics 1995
“Brachial Plexus Injury” San Jorge Hospital Faculty 1995
“Neural Tube Defects” Ashford Community Hospital 1995
“Advances en Neurocirugia
Pediatrica Neuroendoscopia” Dominican Neurosurgical
Society 2005
LANGUAGES
Spanish
English

REFERENCES
Dr. Nathan Rifkinson, UPR RCM , Dept. of Neurosurgery, P. O. Box 5067
San Juan, P. R. 00936-5067
Dr. William Cheek, Texas Children’s Hospital, Baylor University Clinical Care Center #950
6621 Fannin, Houston, Texas
Dr. Andres Peralta, U. Catolica Madre y Maestra School of Medicine, Santiago
Dominican Republic
---------------------------------- ------------------------------------------
DATE SIGNATURE

Sarah Jane Brain Family State Lead Center of Excellence
For the state of
Rhode Island
Hasbro Children's Hospital Child Protection Program
www.lifespan.org
REGION: Northeast CATEGORY OF CARE: Virtual SJB Center
Program Director: Carole Jenny, MD Position Title: Professor
Department: Department of Pediatrics
Address: 593 Eddy Street, Providence, RI 02903
Phone: 401‐444‐3996
Email: cjenny@lifespan.org
Level 1 Center(s): Providence
Level 2 Center(s): Providence, Central Falls, Woonsocket, West Warwick, Newport
Level 3 Center(s): 0
Number of jobs PABI Grant creates in Rhode Island: 99
Budget Overview for State Lead Center
State Lead Center Management Sub‐total: $ 6,055,143
Category of Care Management Sub‐total: $ 1,803,603
Case Management Sub‐total: $ 3,150,652
State Lead Center Sub‐total: $ 11,041,399
Indirect Cost to Institution (20%): $ 2,208,280
Administrative Cost to SJBF (2%): $ 220,828
SUB‐TOTAL AMOUNT OF GRANT PROPOSAL: $ 13,470,506

Hasbro Children's Hospital Child Protection Program Profile continued
Title/Description Sub‐total Amount for Grant
STATE LEAD CENTER MANAGEMENT
Program Director: $ 227,675
Program Director Assistant: $ 97,008
State Director: $ 323,361
Associate State Director: $ 140,123
State Epidemiologist: $ 215,574
State Epidemiologist Assistant: $ 97,008
State Scientific Investigation Research Coordinator: $ 183,238
State Scientific Investigation Research Assistant: $ 183,238
State Education/Training Coordinator (plus materials): $ 208,074
State General Counsel: $ 258,689
State IT Manager: $ 204,795
State Family Support Coordinator: $ 161,681
State Prevention/Awareness Coordinator: $ 161,681
State Acute Care Coordinator: $ 161,681
State Reintegration Coordinator: $ 161,681
State Adult Transition Coordinator: $ 161,681
State Mild TBI Coordinator: $ 161,681
State Mental Health Coordinator: $ 140,123
State Assistive/Emerging Technology Coordinator: $ 140,123
State Correctional System Coordinator: $ 140,123
State MISC Coordinator: $ 140,123
State Veterans Coordinator: $ 140,123
State Data Manager: $ 140,123
State Public Policy Manager: $ 161,681
State Community Relations Manager: $ 140,123
State Administrative Support: $ 582,050
Charity care: $ 331,398
Human Resources Support: $ 99,000
Training Support: $ 24,750
State Lead Center Office Space Cost: $ 318,473
State Lead Center Transportation/Travel: $ 107,373
State Lead Center Office Equipment/Communications: $ 197,500
State Lead Center Supplies: $ 102,733
Annual and Regional Conferences: $ 32,000
State Brain Injury Association Pediatric Programs: $ 94,685
STATE LEAD CENTER MANAGEMENT SUB‐TOTAL: $ 6,055,143

Hasbro Children's Hospital Child Protection Program Profile continued
Title/Description Sub‐total Amount for Grant
CATEGORY OF CARE RESPONSIBILITY: Virtual SJB Center
Regional Category Director: $ 323,361
Regional Category Epidemiologist: $ 258,689
Regional Category Education/Training Coordinator: $ 215,574
Regional Category Scientific Investigation Research: $ 215,574
Regional Business Development Manager: $ 215,574
Regional Category Administrative Support: $ 388,033
Regional Category Office Space Cost: $ 92,460
Regional Category Transportation/Travel: $ 157,500
Regional Category Office Equipment/Communications: $ 27,900
Regional Category Supplies: $ 29,826
CATEGORY OF CARE SUB‐TOTAL: $ 1,803,603

Hasbro Children's Hospital Child Protection Program Profile continued
Title/Description Sub‐total Amount for Grant
CASE MANAGEMENT RESPONSIBILITY
Level 1 Center Manager(s): $ 153,982
Level 1 Center Field Specialist(s): $ 123,185
Level 1 Center SJB Family Specialist(s): $ 840,739
Level 1 Center Administrative Support: $ 138,583
Level 1 Office Space Cost: $ 49,710
Level 1 Transportation/Travel: $ 27,661
Level 1 Office Equipment/Communications: $ 33,800
Level 1 Supplies: $ 56,811
Level 2 Center Field Specialist(s): $ 369,556
Level 2 Center SJB Family Specialist(s): $ 1,201,056
Level 2 Transportation/Travel: $ 39,361
Level 2 Office Equipment/Communications: $ 66,500
Level 2 Supplies: $ 49,710
CASE MANAGEMENT SUB‐TOTAL: $ 3,150,652
STATE LEAD CENTER SUB‐TOTAL: $ 11,041,399
INDIRECT COST TO INSTITUTION: $ 2,208,280
ADMINISTRATIVE FEE TO SJBF: $ 220,828
STATE LEAD CENTER SUB‐TOTAL: $ 13,470,506
TOTAL JOBS CREATED IN Rhode Island: 99

BIOGRAPHICAL SKETCH
Provide the following information for the key personnel and other significant contributors.
Follow this format for each person. DO NOT EXCEED FOUR PAGES.
NAME
Jenny, Carole
POSITION TITLE
eRA COMMONS USER NAME
cjenny01
Professor of Pediatrics
EDUCATION/TRAINING (Begin with baccalaureate or other initial professional education, such as
DEGREE
INSTITUTION AND LOCATION
(if
applicable)
YEAR(s) FIELD OF STUDY
University of Missouri, Columbia, MO BA 1968 Zoology
Dartmouth Medical School, Hanover, NH BMS 1970 Medicine
University of Washington, Seattle, WA MD 1972 Medicine
RW Johnson Clinical Scholar, U. of PA,
Philadelphia
1974-76 Health Care
Wharton School, U. of PA, Philadelphia, PA MBA 1976 Health Care
A. Positions and Honors.
Positions and Employment
1972-1973 Intern in Pediatrics, University of Colorado Affiliated Hospitals, Denver Colorado
1973-1974 Resident in Pediatrics, Children's Hospital of Philadelphia, Philadelphia, Pennsylvania
1974-1975 Instructor in Pediatrics, Department of Pediatrics, University of Pennsylvania School of
Medicine, Philadelphia, Pennsylvania
1974-1976 Fellow in Ambulatory Pediatrics, Children's Hospital of Philadelphia, Philadelphia, Pennsylvania
1974-1976 Robert Wood Johnson Foundation Clinical Scholar, Department of Community Medicine,
University of Pennsylvania School of Medicine, Philadelphia, Pennsylvania
1975-1976 Associate in Pediatrics and Community Medicine, University of Pennsylvania School of
Medicine, Philadelphia, Pennsylvania
1975-1976 Associate in Pediatrics and Community Medicine, University of Pennsylvania School of
Medicine, Philadelphia, Pennsylvania
1976-1979 Assistant Professor of Health Services, University of Washington School of Public Health and
Community Medicine, Seattle, Washington
1984-1987 Clinical Assistant Professor of Pediatrics, University of Washington School of Medicine, Seattle,
Washington
1987-1990 Assistant Professor of Pediatrics, University of Washington School of Medicine, Seattle,
Washington
1990-1994 Head of the Section on Child Abuse and Neglect, Department of Pediatrics, University of
Colorado School of Medicine, Denver, Colorado
1991-1996 Associate Professor of Pediatrics, University of Colorado School of Medicine, Denver, Colorado
1996- Head of the Division of Child Maltreatment, Department of Pediatrics, Brown University School
of Medicine, Providence, Rhode Island
1996-1998 Associate Professor of Pediatrics, Brown University School of Medicine, Providence, Rhode
Island
1998- Professor of Pediatrics, Warren Alpert Medical School at Brown University, Providence, Rhode
Island
2001- Member, The Expert Faculty of the International Society for Prevention of Child Abuse and
Neglect
Other Experience and Professional Memberships
1977-1978 Director, MEDEX Northwest, University of Washington, Seattle, Washington
1984-1989 Medical Director, Harborview Sexual Assault Center, Harborview Medical Center, Seattle,
Washington

1990-1996 Director of Medical Programs, C. Henry Kempe National Center for the Prevention and
Treatment of Child Abuse and Neglect, Denver, Colorado
1990-1996 Director, The Child Advocacy and Protection Team, The Children's Hospital, Denver, Colorado
1990-1996 Director of the Fellowship Program in Child Abuse and Neglect, Department of Pediatrics,
University of Colorado School of Medicine, Denver, Colorado
1994-1996 Chair, Section on Child Abuse and Neglect, American Academy of Pediatrics
1996- Director, ChildSafe: The Child Protection Program at Hasbro Children’s Hospital, Providence,
Rhode Island
1997-2007 Director of the Fellowship Program in Forensic Pediatrics, Department of Pediatrics, Warren
Alpert Medical School at Brown University, Providence, Rhode Island
2006- Chair, Committee on Child Abuse and Neglect, American Academy of Pediatrics
Honors
1968 Phi Beta Kappa
1989 Commissioner's Award for Outstanding Achievement in the Prevention of Child Abuse,
presented by the Commissioner of the Administration for Children, Youth and Families,
Department of Health and Human Services, U.S. Government
1999 Elected to the American Pediatric Society, an honorary society for academic pediatricians
1999 Elected to the Ray E. Helfer Society, an honorary society in the field of child abuse and forensic
pediatrics
1999 American Academy of Pediatrics’ Award for Outstanding Service to Maltreated Children
2001 Ray Helfer Award for Outstanding Achievements and Dedication to the Prevention of Child
Abuse and Neglect, awarded by the National Alliance of Children's Trust and Prevention Funds
2004 The Ray E. Helfer Society Award for Distinguished Contributions in the Field of Child Abuse and
Neglect
2005 American Professional Society on the Abuse of Children Outstanding Professional Award
B. Selected peer-reviewed publications
(Publications selected from 63 peer-reviewed publications)
Chaffee RRJ, WS Platner, J Patton, C Jenny: Fatty acids of RBC ghosts, liver mitochondria, and microsomes
of cold-acclimated hamsters. Proceedings of the Society for Experimental Biology and Medicine
127:102-106, 1968.
Zacharski LR, C Jenny, R McIntyre: Intravenously given conjugated estrogens; lack of effect on capillary
stability. Journal of the American Medical Association 244:1510-1520, 1973.
Jenny C, SE Sutherland, BB Sandahl: A developmental approach to the prevention of child sexual abuse.
Pediatrics 78:1034-1038, 1986.
Jenny C, MA Kuhn, F Arakawa: The presence of hymens in newborn females. Pediatrics 80:399-400, 1987.
Jenny C: Risk factors in adolescent sexual assault. American Journal of Diseases of Children 140:770-772,
1988.
Jenny C, P Kirby, D Fuquay: Genital lichen sclerosis mistaken for child sexual abuse. Pediatrics 83:597-599,
1989.
Jenny C, TM Hooton, A Bowers, MK Copass, JN Krieger, SL Hillier, N Kiviat, L Corey, WE Stamm, KK
Holmes: Sexually transmitted diseases in rape victims. New England Journal of Medicine 322:713-
716, 1990.
Bayes JA, C Jenny: Anatomic and pathological conditions confused with child sexual abuse trauma.
American Journal of Diseases of Children 144:1334-1336, 1990.
Roesler TA, N Czech, WP Camp, C Jenny: Network therapy using videotape disclosures for adult sexual
abuse survivors. Child Abuse and Neglect: The International Journal 16:575-583, 1992.
Krieger JN, C Jenny, M Verdon, N Siegel, R Springwater, CW Critchlow, KK Holmes: Clinical manifestations
of trichomoniasis in men. Annals of Internal Medicine 118:844-849, 1993.
Jenny C, TA Roesler: Quality assurance--A response to "the backlash" against child sexual abuse diagnosis
and treatment. Journal of Child Sexual Abuse 2:89-98, 1993.
Jenny C, TA Roesler, KA Poyer: Are children at risk for sexual abuse by homosexuals? Pediatrics 94:41-44,
1994.

Starling SP, JR Holden, C Jenny: Abusive head trauma: The relationship of perpetrators to their victims.
Pediatrics 95:259-262, 1995.
Hymel KP, C Jenny: Abusive spiral fractures of the humerus: A videotaped exception. Archives of Pediatrics
and Adolescent Medicine 150:226-227, 1996.
Starling SS, C Jenny: Forensic examination of adolescent female genitalia: The Foley catheter technique.
Archives of Pediatrics and Adolescent Medicine 151:102-103, 1997.
Hymel KP, TC Apshire, DW Luckey, C Jenny: Coagulopathy in pediatric abusive head trauma. Pediatrics
99:371-375, 1997.
Clark KD, D Tepper, C Jenny: Effect of a screening profile on the diagnosis of nonaccidental burns in
children. Pediatric Emergency Medicine 13:259-261, 1997.
Hymel KP, CM Rumack, TC Hay, JD Strain, C Jenny: Comparison of intracranial computed tomographic (CT)
findings in pediatric abusive and accidental head trauma. Pediatric Radiology 27:743-747, 1997.
Bays JA, RC Alexander, RW Block, CF Johnson, S Kairys, MB Kanda, KD Wagner, LS Goldman, GA Shelley,
C Jenny, MT McHugh: Gonorrhea in prepubertal children. Pediatrics 1998; 134-135.
Arnholz D, KP Hymel, TC Hay, C Jenny: Bilateral pediatric skull fractures: Accident or abuse? Journal of
Trauma: Injury, Infection, and Critical Care 45:172-174, 1998.
Jenny C, KP Hymel, A Ritzen, SE Reinert, TC Hay: Analysis of missed cases of abusive head trauma.
Journal of the American Medical Association 281:621-626, 1999.
Starling SS, AP Sirotnak, C Jenny: Child abuse and forensic pediatric medicine fellowship curriculum
statement. Child Maltreatment 5:58-62, 2000.
Stevens-Simon C, D Nelligan, P Breese P, C Jenny, JM Douglas: The prevalence of genital human
papillomavirus infections in abused and nonabused preadolescent girls. Pediatrics 106:645-649, 2001.
Starling SP, RM Heller, C Jenny: Pelvic fractures in infants as a sign of physical abuse. Child Abuse &
Neglect 26:475-480, 2002.
Hymel KP, C Jenny, RW Block: Intracranial hemorrhage and rebleeding in suspected victims of abusive head
trauma: Addressing the forensic controversies. Child Maltreatment 7:329-348, 2002.
Webster RA, PG Schnitzer, C Jenny, BG Ewigman, AJ Alario: Child death review: The state of the nation.
American Journal of Preventive Medicine 25:58-64, 2003.
Jenny C, TA Roesler: Caring for survivors of childhood sexual abuse in medical practice. Medicine & Health
Rhode Island 86:376-378, 2003.
Magid DJ, HD Koepsell, A Ziller, MR Soules, C Jenny: The epidemiology of female rape victims who seek
immediate medical care: Temporal trends in the incidence of sexual assault and acquaintance rape.
Journal of Interpersonal Violence 19(1):3-12, 2004.
Ganesh A, C Jenny, J Geyer, M Ghouldice, AV Levin: Retinal hemorrhages in type I osteogenesis imperfecta
after minor trauma. Ophthalmology 111:1428-31, 2004.
Barron CE, C Jenny: Forensic Pediatrics. Medicine and Health Rhode Island 88(9):318-320, 2005.
Reece RM, C Jenny: Medical training in child maltreatment. American Journal of Preventive Medicine
29:266-271, 2005.
Jenny C, RW Block, RA Hibbard, ND Kellogg, BS Spivack, J Stirling, Jr: Evaluating infants and young children
with multiple fractures. Pediatrics 2006; 118:1299-1303.
Jenny C, R Isaac: The relation between child death and child maltreatment. Archives of Disease in
Childhood. 91(3):265-269, 2006.
Richards P, G Bertocci, R Bonshek, P Giangrande, R Gregson, T Jaspan, C Jenny, N Klein, W Lawler, M
Peters, LB Rorke-Adams, H Vyas, A Wade: Shaken baby syndrome. Before the Court of Appeal.
Archives of Disease in Childhood. 91(3):205-206, 2006
Tung G, M Kumar, R Richardson, C Jenny, W Brown: Comparison of accidental and nonaccidental traumatic
head injury in children on noncontrast computed tomography. Pediatrics 118(2), 626-633, 2006.
Jenny C: The intimidation of British pediatricians. Pediatrics 2007; 119:797-799.
Hibbard RA, LW Desch, C Jenny, C Christian, ND Kellogg, BS Spivack, J Stirling, Jr, DL Corwin, TP Hurley.
Maltreatment of children with disabilities. Pediatrics 2007; 119:1018-1029.
Stirling, J Jr, C Jenny, C Christian, RA Hibbard, ND Kellogg, BS Spivack, DL Corwin, TP Hurley. Beyond
Munchausen syndrome by proxy: Identification and treatment of child abuse in a medical setting.
Pediatrics 2007; 119:1026-1030.
Gilliland MGF, AV Levin, RW Enzenauer, C Smith, MA Parsons, LB Rorke-Adams, JR Lauridson, GR La
Roche, LM Christmann, M Mian, J Jentzen, K Simons, Y Morad, R Alexander, C Jenny, T
Wygananski-Jaffe,: Guidelines for postmortem protocol for ocular investigation of sudden unexplained

infant death and suspected physical abuse. American Journal of Forensic Medicine and Pathology
28(4): 323-329, 2007.
Jenny C, Christian C, Hibbard RA, Kellogg ND, Spivak BS, Stirling J, Corwin DL, Mercy J, Hurley TP.
Recognizing and responding to medical neglect. Pediatrics 2007; 120(6):1385-1389.
Patno KM, Jenny C: Who slapped that child? Child Maltreatment 2008; 13(3):298-300.
Perez-Rosello JM, SA Connolly, A Newton, M Thomason, C Jenny, N Sugar, PK Kleinman: Pubic ramus
radiolucencies in infants: The good, the bad, and the indeterminate. AJR Am J Roentgenol 2008;
190(6):1481-1489.
Jenny C: Supporting paediatricians who work in child maltreatment. Lancet 2009;373(9659):195-197.
Stirling J, L Amaya-Jackson, C Jenny, CW Christian, RA Hibbard, ND Kellogg, BS Spivack, DL Corwin, J Saul,
TP Hurley, LMH Albers, DA Hermon, PW Mason, EE Shulte, MA Szilagyi, M Crane: Understanding
the behavioral and emotional consequences of child abuse. Pediatrics 2008; 122(3):667-673.
Christian CW, Block R, Jenny C, Crawford J, Flaherty E, Hibbard RA, Kaplan R, Block R, Corwin DL, Saul J,
Hurley TP: Abusive head trauma in infants and children. Pediatrics 2009; 123(5):1409-1411.
Goldberg AP, J Tobin, J Diagneau, RT Griffith, SE Reinert, C Jenny: Bruising Frequency and Patterns in
Children with Disabilities. Pediatrics 2009; 124(2):604-609.
Rangarajan N, Kamalakkannan SB, Hasija V, Shams T, Jenny C, Serbanescu I, Ho J, Rusinek M, Levin AV.
Finite element model of ocular injury in shaken baby syndrome. J AAPOS 2009 May 5; (Epub ahead of
print).
Evangelista PT, Holmes WN, McCarten KM, Arcuri D, Barron CE, Goldberg AP, Jenny C, Tung GA: Coronal,
whole-body short tau inversion recovery MR imaging for the evaluation of nonaccidental injury in
children. Part I. Long bones. Submitted for publication.
Evangelista PT, Holmes WN, McCarten KM, Arcuri D, Barron CE, Goldberg AP, Jenny C, Tung GA: Coronal,
whole-body short tau inversion recovery MR imaging for the evaluation of nonaccidental injury in
children. Part II.. Classic metaphpyseal fractures. Submitted for publication.
Lowen DE, J Showers, M Msall, M Tremont, C Jenny: Assessment of functional independence in survivors of
abusive head trauma. Submitted for publication.
C. Research Support
1987-1989 National Institute of Justice, US Department of Justice. "Forensic Aspects of DNA Typing".
Grant # 87-IJ-CX-0400, $203,000. C. Jenny, Principal Investigator.
2000 Rhode Island Department of Children, Youth and Families: “The Parent Support Project”,
$100,000, T. Roesler and C. Jenny, Co-Directors.
2001-2004 Centers for Disease Control and Prevention: "Cooperative Agreement for Surveillance of Child
Maltreatment (Mortality). $49,469, C. Jenny and W. H. Hollinshead, Co-Principal Investigators.
2001-2004 U.S. Centers for Disease Control and Prevention: "Cooperative Agreement for Surveillance of
Child Maltreatment (Morbidity). $271,816, C. Jenny and W. Hollinshead, Co-Principal
Investigators.
2001-2002 Rhode Island DCYF: "Family Support Project", $134,477, T. A. Roesler and C. Jenny, Co-
Directors.
2001-2002 Brown University Department of Pediatrics, "Departmental Support for Fellow's Research",
$3,300.
2002 U.S. Department of Justice: "Development of Guidelines for Law Enforcement on the
Evaluation of Child Pornography, $26,127, C. Jenny, Principal Investigator.
2002 Aprica Kassai, Inc., Osaka, Japan: "Biomechanical Studies in Abusive Head Trauma", $54,913,
C. Jenny, Principal Investigator
2003 Aprica Kassai, Inc., Osaka, Japan: "Biomechanical Studies in Abusive Head Trauma",
$100,464, C. Jenny, Principal Investigator.
2005 Aprica Kassai, Inc., Osaka, Japan: "Biomechanical Studies in Abusive Head Trauma",
$102,058, C. Jenny, Principal Investigator.
2007-2008 Centers for Disease Control and Prevention, “Comprehensive Review of Nationwide Resources
and Infrastructure for Pediatricians on Child Maltreatment”, $25,000, C. Jenny, Principal
Investigator.

Sarah Jane Brain Family State Lead Center of Excellence
For the state of
South Carolina
Medical University of South Carolina
www.musc.edu
REGION: Southeast CATEGORY OF CARE: Virtual SJB Center
Program Director: Stephen Kinsman, MD Position Title: Associate Professor
Department: Department of Pediatrics Major Subdivision: Division of Pediatric
Neurology
Address: 6311 Garners Ferry Road, Bluff Estates, SC 29209
Phone: 443‐956‐7742
Email: kinsmans@musc.edu
Level 1 Center(s): Charleston
Level 2 Center(s): Charleston, Columbia, Greenville
Level 3 Center(s): Myrtle Beach, Blufton, Greenwood, Spartanburg
Number of jobs PABI Grant creates in South Carolina: 97
Budget Overview for State Lead Center
State Lead Center Management Sub‐total: $ 5,376,746
Category of Care Management Sub‐total: $ 1,575,500
Case Management Sub‐total: $ 2,480,800
State Lead Center Sub‐total: $ 9,465,046
Indirect Cost to Institution (20%): $ 1,893,009
Administrative Cost to SJBF (2%): $ 189,301
SUB‐TOTAL AMOUNT OF GRANT PROPOSAL: $ 11,547,356

Medical University of South Carolina Profile continued
Title/Description Sub‐total Amount for Grant
STATE LEAD CENTER MANAGEMENT
Program Director: $ 238,140
Program Director Assistant: $ 83,291
State Director: $ 277,636
Associate State Director: $ 120,309
State Epidemiologist: $ 185,091
State Epidemiologist Assistant: $ 83,291
State Scientific Investigation Research Coordinator: $ 157,327
State Scientific Investigation Research Assistant: $ 157,327
State Education/Training Coordinator (plus materials): $ 263,209
State General Counsel: $ 222,109
State IT Manager: $ 175,836
State Family Support Coordinator: $ 138,818
State Prevention/Awareness Coordinator: $ 138,818
State Acute Care Coordinator: $ 138,818
State Reintegration Coordinator: $ 138,818
State Adult Transition Coordinator: $ 138,818
State Mild TBI Coordinator: $ 138,818
State Mental Health Coordinator: $ 120,309
State Assistive/Emerging Technology Coordinator: $ 120,309
State Correctional System Coordinator: $ 120,309
State MISC Coordinator: $ 120,309
State Veterans Coordinator: $ 120,309
State Data Manager: $ 120,309
State Public Policy Manager: $ 138,818
State Community Relations Manager: $ 120,309
State Administrative Support: $ 499,745
Charity care: $ 285,634
Human Resources Support: $ 97,000
Training Support: $ 24,250
State Lead Center Office Space Cost: $ 274,494
State Lead Center Transportation/Travel: $ 92,545
State Lead Center Office Equipment/Communications: $ 197,500
State Lead Center Supplies: $ 88,547
Annual and Regional Conferences: $ 32,000
State Brain Injury Association Pediatric Programs: $ 81,610
STATE LEAD CENTER MANAGEMENT SUB‐TOTAL: $ 5,376,746

Medical University of South Carolina Profile continued
Title/Description Sub‐total Amount for Grant
CATEGORY OF CARE RESPONSIBILITY: Virtual SJB Center
Regional Category Director: $ 277,636
Regional Category Epidemiologist: $ 222,109
Regional Category Education/Training Coordinator: $ 185,091
Regional Category Scientific Investigation Research: $ 185,091
Regional Business Development Manager: $ 185,091
Regional Category Administrative Support: $ 333,164
Regional Category Office Space Cost: $ 79,692
Regional Category Transportation/Travel: $ 157,500
Regional Category Office Equipment/Communications: $ 27,900
Regional Category Supplies: $ 25,707
CATEGORY OF CARE SUB‐TOTAL: $ 1,575,500

Medical University of South Carolina Profile continued
Title/Description Sub‐total Amount for Grant
CASE MANAGEMENT RESPONSIBILITY
Level 1 Center Manager(s): $ 132,208
Level 1 Center Field Specialist(s): $ 105,766
Level 1 Center SJB Family Specialist(s): $ 721,854
Level 1 Center Administrative Support: $ 118,987
Level 1 Office Space Cost: $ 42,845
Level 1 Transportation/Travel: $ 27,072
Level 1 Office Equipment/Communications: $ 33,800
Level 1 Supplies: $ 48,966
Level 2 Center Field Specialist(s): $ 190,379
Level 2 Center SJB Family Specialist(s): $ 618,732
Level 2 Transportation/Travel: $ 23,263
Level 2 Office Equipment/Communications: $ 39,900
Level 2 Supplies: $ 25,707
Level 3 Center SJB Family Specialist(s): $ 309,366
Level 3 Transportation/Travel: $ 9,360
Level 3 Office Equipment/Communications: $ 22,800
Level 3 Supplies: $ 9,793
CASE MANAGEMENT SUB‐TOTAL: $ 2,480,800
STATE LEAD CENTER SUB‐TOTAL: $ 9,465,046
INDIRECT COST TO INSTITUTION: $ 1,893,009
ADMINISTRATIVE FEE TO SJBF: $ 189,301
STATE LEAD CENTER SUB‐TOTAL: $ 11,547,356
TOTAL JOBS CREATED IN South Carolina: 97

Principal Investigator/Program Director (Last, First, Middle):
BIOGRAPHICAL SKETCH
Provide the following information for the key personnel and other significant contributors in the order listed on Form Page 2.
Follow this format for each person. DO NOT EXCEED FOUR PAGES.
NAME
Stephen L. Kinsman, M.D.
eRA COMMONS USER NAME
POSITION TITLE
Associate Professor
EDUCATION/TRAINING (Begin with baccalaureate or other initial professional education, such as nursing, and include postdoctoral training.)
INSTITUTION AND LOCATION
DEGREE
(if applicable)
YEAR(s) FIELD OF STUDY
Columbia College B.A. 1975-1979 Mathematics
SUNY at Buffalo, Buffalo, New York M.D. 1979-1983 Medicine
Johns Hopkins Hospital - 1983-1985 Pediatrics resident
Johns Hopkins Hospital - 1985-1988 Neurology resident
Johns Hopkins University School of Medicine - 1988-1990 Neurology fellow
A. Positions and Honors
Positions and Employment
2007 - present Head, Division of Pediatric Neurology, Medical University of South Carolina
2002 - 2007 Head, Division of Pediatric Neurology, University of Maryland School of Medicine
1999 - 2002 Director, Carter Center for Brain Research in Holoprosencephaly and Related
Malformations, Kennedy Krieger Institute
1998 - 2002 Joint appointment - Department of Population and Family Health Sciences,
Johns Hopkins University School of Hygiene and Public Health
1998 - 2000 Director, Phelps Cerebral Palsy and Related Motor Disorders
Program, Kennedy Krieger
Institute
1994 - 2002 Director, Spina Bifida and Related Conditions Center, Kennedy Krieger
Institute
1991 - 1994 Medical Director, Birth Defects Clinic, Kennedy Krieger Institute
1993 - 2002 Assistant Professor - Department of Neurology, Johns Hopkins
University School of Medicine
1991 - 2002 Attending Physician, Neurology, Kennedy Krieger Institute
1990 - 2002 Joint appointment - Department of Physiology, Johns Hopkins
University School of
Medicine
1990 - 1993 Instructor - Department of Neurology, Johns Hopkins University
School of Medicine
Other Experience and Professional Memberships
1993 - 1999 Professional Advisory Council - Spina Bifida Association of America (Chair for
last two years)
1998 - present North American Corresponding Member of Executive Committee – Society for
Research into Hydrocephalus and Spina Bifida
Honors
1983 Alpha Omega Alpha
1991 Certificate of Merit for Postdoctoral Fellowship, Young Investigator's Day, Johns
Hopkins University School of Medicine
1993 Award of Appreciation, Spina Bifida Association of Maryland
PHS 398/2590 (Rev. 09/04) Page Biographical Sketch Format Page

Principal Investigator/Program Director (Last, First, Middle):
1999 Extended Service Award, Spina Bifida Association of America
B. Selected Publications
1. Herzberg G., Fivush B., Kinsman S., and Gearhart J., Urolithiasis associated with the
ketogenic diet, J Pediatrics 117: 743-745, 1990.
2. Kinsman, S., Vining, E.P.G., Quaskey S.A., Mellits E.D., and Freeman, J., Efficacy of the
ketogenic diet in intractable seizure disorders, Epilepsia 33:1132-1136, 1992.
3. Holtzman, D.M., Li, Y., Parada, L.F., Kinsman, S.L., Chen, C.K., Valetta, J.S., Zhou, J., Long,
J.B. and Mobley, W.C. P140 trk mRNA marks NGF-responsive forebrain neurons: Evidence
that trk gene expression is induced by NGF. Neuron 9: 465-478, 1992.
4. Chen, C.K.*, Kinsman, S.L.* , Holtzman, D.M., Mobley, W.C. and Johnston, M.V. A reverse
transcription - PCR study of p 75 nerve growth factor receptor gene expression in developing
rat cerebellum. International Journal of Developmental Neuroscience 12:255-262, 1994.
*Equal Contribution.
5. Kinsman, S.L. and Doehring, M.C. The Cost of Preventable Conditions in Adults with Spina
Bifida. Eur J Pediatr Surg 6 Suppl I 19-22, 1996.
6. Wilson, M.A., Kinsman, S.L., and Johnston, M.V. Expression of NMDA receptor subunit
mRNA after MK-801 treatment of neonatal rats. Developmental Brain Research 109:211-220,
1998.
7. Bradley, N.K., Liakos, A.M., McAllister II, J.P.,Magram, G., Kinsman, S.L., Bradley, M.K.
Maternal Shunt Dependency: Implications for Obstetric Care, Neurosurgical Management, and
Pregnancy Outcomes and a Review of Selected Literature. Neurosurgery. 43:448-461, 1998.
8. Kinsman, S.L., Rawlins, C., Finney, K., Ruffing, V., and Speedie L. A Conceptual Model of
Higher Cortical Function Impairments in Myelomeningocele. Eur J Pediatr Surg, 1998;8:69-70,
Suppl 1.
9. Docimo, S.G., Steiner, G., Silver, R.I., Rodriguez, R., Kinsman, S., Sidransky, D., and
Schoenberg, M. Detection of adenocarcinoma by urinary microsatellite analysis after
augmentation cystoplasty. Urology (Online), 54:561, 1999.
10. Gross, S.M., Ireys, H.T., and Kinsman, S.L. Young women with physical disablilities: risk
factors for symptoms of eating disorders. J Dev Behav Pediatr, 21:87-96, 2000.
11. Kinsman, S.L., Plawner, L.L. and Hahn, J.S. Holoprosencephaly: recent advances and new
insights. Current Opinions in Neurology, 13:127-132, 2000.
12. Jackman SV, Weingart JD, Kinsman SL, Docimo SG. Laparoscopic surgery in patients with
ventriculoperitoneal shunts: safety and monitoring. J Urol (LWW on-line), 164(4):1352-4, 2000.
13. Simon EM, Hevner R, Pinter JD, Clegg NJ, Miller VS, Kinsman SL, Hahn JS, Barkovich AJ.
Assessment of the deep nuclei in holoprosencephaly. American Journal of Neuroradiology,
21(10):1955-61, 2000.
14. Kinsman, S, Levey E, Ruffing V, Stone J, Warren L. Beyond Multidisciplinary Care: A New
Conceptual Model for Spina Bifida Services. Eur J Pediatr Surg, 10 (suppl I):35-38,
2000.Gross, SM, Caulfield LE, Kinsman SL, Ireys HT. Inadequate folic acid intakes are
prevalent among young women with neural tube defects. J Amer Diet Assoc, 101(3):342-5,
2001.
15. Simon EM, Hevner RF, Pinter J, Clegg N, Delgado M, Kinsman SL, Hahn JS, Barkovich AJ.
The dorsal cyst in Holoprosencephaly and the role of the thalamus in its formation.
Neuroradiology, 43:787-91, 2001.
16. Johanson C, Del Bigio M, Kinsman S, Miyan J, Pattisapu J, Robinson M, Jones HC. New
models for analyzing hydrocephalus and disorders of CSF volume transmission. Br J
Neurosurg, 15:281-3, 2001.
17. Simon EM, Hevner R, Pinter JD, Clegg NJ, Delgado M, Kinsman SL, Hahn JS, Barkovich AJ.
The middle interhemispheric variant of holoprosencephaly. Am J Neuroradiol, 23:151-6, 2002.
PHS 398/2590 (Rev. 09/04) Page Continuation Format Page

Principal Investigator/Program Director (Last, First, Middle):
18. Albayram S, Melhem ER, Mori S, Zinreich SJ, Barkovich AJ, Kinsman SL. Diffusion tensor MR
Imaging of white matter tracts of the brainstem in children with Holoprosencephaly: Initial
experience. Radiology, 223:645-51, 2002.
19. Barkovich AJ, Simon EM, Clegg NJ, Kinsman SL, Hahn JS. Analysis of the cerebral cortex in
holoprosencephaly with attention to the sylvian fissures. Am J Neuroradiol, 23:143-50, 2002.
20. Plawner LL, Delgado MR, Miller VS, Levey EB, Kinsman SL, Barkovich AJ, Simon EM, Clegg
NJ, Sweet VT, Stashinko EE, Hahn JS. Neuroanatomy of holoprosencephaly as predictor of
function: beyond the face predicting the brain. Neurology, 59:1058-66, 2002.
21. Barkovich AJ, Simon EM, Glenn OA, Clegg NJ, Kinsman SL, Delgado M, Hahn JS. MRI shows
abnormal white matter maturation in classical holoprosencephaly. Neurology. 2002 Dec
24;59(12):1968-71.
22. Takahashi T, Kinsman S, Makris N, Grant E, Haselgrove C. McInerney S, Kennedy DN,
Takahashi T, Fredrickson K, Mori S, Caviness VS. Semilobar Holoprosencephaly With
Midline “Seam”: A topologic and morphogenetic model based upon MRI analysis. Cerebral
Cortex December 2003; 13:1299-1312.
23. Zabel TA, Ries J, Mahone EM, Demetrides S, Levey E, Kinsman SL. The Kennedy
Independence Scales--Spina Bifida Version: a parent report rating scale of adaptive functioning
in adolescents with spina bifida. Eur J Pediatr Surg. 2003 Dec;13 Suppl 1:S37-9.
24. Takahashi TS, Kinsman S, Makris N, Grant E, Haselgrove C, McInerney S,Kennedy DN,
Takahashi TA, Fredrickson K, Mori S, Caviness VS. Holoprosencephaly--topologic variations
in a Liveborn series: a general modelbased upon MRI analysis. J Neurocytol. 2004
Jan;33(1):23-35.
25. Kinsman, SL. White matter imaging in holoprosencephaly in children. Curr Opin Neurol. 2004
Apr;17(2):115-9.
26. Steele-Perkins G|, Plachez C, Butz KG, Yang G, Bachurski CJ, Kinsman S, Litwack ED, Ric LJ
and Grohardsnostajski RM. The transcription factor Nfib is essential for both lung maturation
and brain development. Mol Cell Biol. 2005 Jan;25(2):685-98.
27. Ren T., Anderson A., Shen, W.B., Huang H., Plachez C., Kinsman S.L., Richards L.J. Imaging,
anatomical and molecular analysis of callosal formation in the developing human fetal brain. Anat Rec
A Discov Mol Cell Evol Biol. 2006 Feb;288(2):191-204.
28. Hahn J.S., Barkovich A.J., Stashinko E.E., Kinsman S.L., Delgado M.R., Clegg N.J. Factor analysis of
neuroanatomical and clinical characteristics of holoprosencephaly. Brain Dev. 2006 Aug;28(7):413-9.
C. Research support
Ongoing Research Support
Funded Support
Completed Research Support
R21 NS045841-01 Richards (PI) 03/01/03 – 02/28/06
NINDS
Development of the Human Corpus Callosum
The Goal of this project is to study the molecular and cellular mechanisms involved in forming the human
corpus callosum.
Role:Co-Investigator
Kinsman (PI) 1/01/1999 – 6/30/2002
The Don and Linda Carter Foundation - Denton, Texas
The Carter Center for Brain Research in Holoprosencephaly and Related Malformations at Kennedy Krieger
Institute
This center has built a clinical and research base for this rare birth defect that draws on a regional and national
level and studies neuroimaging/neuroanatony, genetics, and clinical aspects of the condition.
PHS 398/2590 (Rev. 09/04) Page Continuation Format Page

Role: PI
Principal Investigator/Program Director (Last, First, Middle):
5 RO1 NS28208 Johnston (PI) 1/01/1997 - 12/31/2000
NINDS
Neurotransmitter Injury Mechanisms in Developing Brain
The goal of this project is to study the molecular mechanisms by which the immature rat nervous system
responds to injuries, particularly those induced by neuroexcitatory processes.
Role:Co-Investigator
PHS 398/2590 (Rev. 09/04) Page Continuation Format Page

Sarah Jane Brain Family State Lead Center of Excellence
For the state of
South Dakota
Center for Disabilities / Sanford School of Medicine of The University of South
www.usd.edu/cd/
REGION: Rocky Mountain CATEGORY OF CARE: Mild TBI
Program Director: Shelly Grinde, MA, CCC‐SLP Position Title: Director of Services &
Supports
Department: Department of Pediatrics
Address: 1400 West 22nd Street, Sioux Falls, SD 57105
Phone: 605‐357‐1475
Email: Shelly.Grinde@usd.edu
Level 1 Center(s): Rapid City, Sioux Falls
Level 2 Center(s): Pierre
Level 3 Center(s): Aberdeen, Winner
Number of jobs PABI Grant creates in South Dakota: 91
Budget Overview for State Lead Center
State Lead Center Management Sub‐total: $ 4,762,176
Category of Care Management Sub‐total: $ 1,687,210
Case Management Sub‐total: $ 2,650,018
State Lead Center Sub‐total: $ 9,131,405
Indirect Cost to Institution (20%): $ 1,826,281
Administrative Cost to SJBF (2%): $ 182,628
SUB‐TOTAL AMOUNT OF GRANT PROPOSAL: $ 11,140,314

Center for Disabilities / Sanford School of Medicine of The University of South Profile continued
Title/Description Sub‐total Amount for Grant
STATE LEAD CENTER MANAGEMENT
Program Director: $ 119,000
Program Director Assistant: $ 76,791
State Director: $ 255,971
Associate State Director: $ 110,921
State Epidemiologist: $ 170,647
State Epidemiologist Assistant: $ 76,791
State Scientific Investigation Research Coordinator: $ 145,050
State Scientific Investigation Research Assistant: $ 145,050
State Education/Training Coordinator (plus materials): $ 164,058
State General Counsel: $ 204,777
State IT Manager: $ 162,115
State Family Support Coordinator: $ 127,986
State Prevention/Awareness Coordinator: $ 127,986
State Acute Care Coordinator: $ 127,986
State Reintegration Coordinator: $ 127,986
State Adult Transition Coordinator: $ 127,986
State Mild TBI Coordinator: $ 127,986
State Mental Health Coordinator: $ 110,921
State Assistive/Emerging Technology Coordinator: $ 110,921
State Correctional System Coordinator: $ 110,921
State MISC Coordinator: $ 110,921
State Veterans Coordinator: $ 110,921
State Data Manager: $ 110,921
State Public Policy Manager: $ 127,986
State Community Relations Manager: $ 110,921
State Administrative Support: $ 460,748
Charity care: $ 250,952
Human Resources Support: $ 91,000
Training Support: $ 22,750
State Lead Center Office Space Cost: $ 241,165
State Lead Center Transportation/Travel: $ 81,308
State Lead Center Office Equipment/Communications: $ 197,500
State Lead Center Supplies: $ 77,795
Annual and Regional Conferences: $ 32,000
State Brain Injury Association Pediatric Programs: $ 71,701
STATE LEAD CENTER MANAGEMENT SUB‐TOTAL: $ 4,762,176

Center for Disabilities / Sanford School of Medicine of The University of South Profile continued
Title/Description Sub‐total Amount for Grant
CATEGORY OF CARE RESPONSIBILITY: Mild TBI
Regional Category Director: $ 255,971
Regional Category Epidemiologist: $ 204,777
Regional Category Education/Training Coordinator: $ 170,647
Regional Category Scientific Investigation Research: $ 170,647
Regional Category Administrative Support: $ 307,165
Regional Category Office Space Cost: $ 70,016
Regional Category Transportation/Travel: $ 157,500
Regional Category Office Equipment/Communications: $ 27,900
Regional Category Supplies: $ 22,586
CATEGORY OF CARE SUB‐TOTAL: $ 1,687,210

Center for Disabilities / Sanford School of Medicine of The University of South Profile continued
Title/Description Sub‐total Amount for Grant
CASE MANAGEMENT RESPONSIBILITY
Level 1 Center Manager(s): $ 243,782
Level 1 Center Field Specialist(s): $ 195,026
Level 1 Center SJB Family Specialist(s): $ 1,331,050
Level 1 Center Administrative Support: $ 219,404
Level 1 Office Space Cost: $ 37,643
Level 1 Transportation/Travel: $ 53,253
Level 1 Office Equipment/Communications: $ 61,600
Level 1 Supplies: $ 68,116
Level 2 Center Field Specialist(s): $ 58,508
Level 2 Center SJB Family Specialist(s): $ 190,150
Level 2 Transportation/Travel: $ 7,665
Level 2 Office Equipment/Communications: $ 13,300
Level 2 Supplies: $ 7,529
Level 3 Center SJB Family Specialist(s): $ 142,612
Level 3 Transportation/Travel: $ 4,680
Level 3 Office Equipment/Communications: $ 11,400
Level 3 Supplies: $ 4,302
CASE MANAGEMENT SUB‐TOTAL: $ 2,650,018
STATE LEAD CENTER SUB‐TOTAL: $ 9,131,405
INDIRECT COST TO INSTITUTION: $ 1,826,281
ADMINISTRATIVE FEE TO SJBF: $ 182,628
STATE LEAD CENTER SUB‐TOTAL: $ 11140314
TOTAL JOBS CREATED IN South Dakota: 91

Shelly M. Grinde, MA, CCC-SLP
Director of Services & Supports
Center for Disabilities
Department of Pediatrics
Sanford School of Medicine
The University of South Dakota
1400 West 22 nd Street
Sioux Falls, SD 57105
605-357-1475
Certification
• Certificate of Clinical Competence-Speech Language Pathology (1995-present).
Education
• August, 1989-December, 1992: South Dakota State University, Bachelor of Science
in Communication Studies and Theater.
• August, 1993-December, 1994: University of South Dakota, Master of Arts in
Communication Disorders.
Employment
• June 2004 – Present: Center for Disabilities, Director of Services and Supports.
o Duties include providing direct management of service and support areas
including clinical activities (Autism, FASD, LEND Clinic, and
Developmental Clinics) and support areas (Birth to 3 and Early
Intervention). Responsible for developing Policies and Procedures related to
clinical services, monitoring and evaluating the services provided, and
supervising staff on-site and off-site. Additional responsibilities include
hiring staff, and completing performance evaluations. Complete evaluations
as a Speech Language Pathologist through the Fetal Alcohol Spectrum
Disorders clinic and the Developmental Clinics. Provision of Technical
Assistance in regards to the Center as well as Fetal Alcohol Spectrum
Disorders and other disability areas as requested. Coordinator for LEND
students during developmental clinics. Provide consultations and in-service
training in the area of Traumatic Brain Injury. Received HRSA OHRP grant
for Pine Ridge Reservation Developmental Clinic.
• June 2005 – Present: American Speech Language Hearing Association, Council on
Academic Accreditation Site Visitor
o Serve as a site visitor for the Council on Academic Accreditation through the
American Speech Language Hearing Association. Determine if university
programs meet a set of standards to be an accredited graduate program in
speech language pathology and/or audiology. Also serve as a Candidacy Site
Visitor.
• July 2005 – Present: Clinical Assistant Professor in the Department of Pediatrics at
Sanford School of Medicine of The University of South Dakota.

• February 2004 – May 2005: Independent surveyor for The Rehabilitation
Accreditation Commission (CARF).
o Completed surveys of inpatient rehabilitation unit’s throughout the nation to
determine conformance to a set of standards. During surveys,
responsibilities included interviewing staff, patients, payers, and referral
sources. Additionally, reviewing documents and observing staff interaction.
A written report was completed prior to leaving the site, and consultation to
the staff was provided as well.
• March 2003 – June 2004: Sanford Health, Speech Language Pathologist.
o Duties included providing speech and language services to a variety of
diagnoses for adolescent, adult, and geriatric populations’ primarily on the
Rehabilitation Unit. Chair of the Performance Improvement Committee,
and involved in several departmental committees. Provided Clinical
Practicum Supervision for Speech Language Pathology students.
• August 2002 – March 2003: Sanford Health, Interim Rehabilitation Supervisor
o Duties included providing supervision for the Inpatient Rehabilitation
Department, as well as conducting employee performance reviews.
Responsible for hiring new employees, assisting with Performance
Improvement projects, assisting with budgeting for the department,
implementing new strategies, and streamlining paperwork. Active in several
department committees. Marketing of the Rehabilitation Unit to physicians
and referral sources. Continued to provide speech language services to
patients on the Rehabilitation Unit.
• November 1994 – August 2002: Sanford Health, Speech Language Pathologist.
o Duties included providing speech and language evaluation and treatment of a
variety of disorders for children, adolescent, adult, and geriatric populations.
Provided Clinical Practicum Supervision for Speech Language Pathology
student and Clinical Fellow Supervision for Speech Pathologist’s in their first
year of employment. Active in departmental committees.
• December 1992 – May 1993: Brookings and Flandreau School Districts, Speech
Language Pathologist.
o Duties included providing speech and language evaluation and treatment of a
variety of disorders for children birth to three, and grade school children.
Presentations and Teaching Experiences
• November 1994 – June 2004: Numerous in-services and presentations to staff at
Sanford Health. Topics included dysphagia, aphasia, traumatic brain injury, and the
role of the speech language pathologist in the hospital setting.
• Fall 1997 and Fall 1998: Co-taught Introduction to Communication Disorders at
Augustana College.
• April 2004: Presentation at the South Dakota Speech Language Hearing Association
Annual convention on the topic of dysphagia.
• February 2005: Presentation at Augustana, Special Education class on the topic of
interdisciplinary team collaboration.
• April 2005: Facilitated round table discussion at the South Dakota Speech Language
Hearing Association on the topic of resources for individuals with disabilities.

• June 2005: Presentation at University of South Dakota, Interdisciplinary Training
class on the topic of providing culturally diverse services in South Dakota, and
administrative budgeting and decision making.
• September 2005: Presentation at University of South Dakota, Interdisciplinary
Training class on the topic of Interdisciplinary Team Collaboration, and the
Developmental Clinics.
• February 2006: Presentation at Augustana, Special Education class on the topic of
interdisciplinary team collaboration.
• June 2006: Presentation at University of South Dakota, Interdisciplinary Training
class on the topic of Interdisciplinary Team Collaboration, and the Services and
Supports area of the Center for Disabilities.
• August 2006: Presentation at University of South Dakota, Dietetic Interns on the
topic of Dysphagia, and the Services and Supports are of the Center for Disabilities.
• October 2006: Presentation at University of South Dakota, Interdisciplinary
Training class on the topic of Interdisciplinary Team Collaboration, and the Services
and Supports area of the Center for Disabilities.
• October 2006: Presentation for Health Sciences on the topic of Interdisciplinary
Training.
• October 2006: Poster presentation at the National Association for University
Centers on Disabilities titled “Direct Services with the Native American
Population: What we’ve learned, and where to go from here.”
• April 2007: Presentation at the South Dakota Speech Language Hearing Association
on the topic of Continuing Education for Speech Language Pathologists and
Audiologists.
• May 2007: Presentation to the Multicultural Center regarding Disabilities
• June 2007: Presentation at University of South Dakota, Interdisciplinary Training
class on the topic of providing culturally diverse services in South Dakota, and
administrative budgeting and decision making.
• September 2007: Presentation to Center for Disabilities staff “Working with the
Native American Population.”
• September 2007: Presentation at University of South Dakota, Interdisciplinary
Training class on the topic of Interdisciplinary Team Collaboration, and the
Developmental Clinics.
• November 2007: Poster presentation regarding “Direct Service Model with Two
Tribes in South Dakota” at the National Conference for the American Speech
Language Hearing Association.
• April 2008: Presentation at the South Dakota Speech Language Hearing Association
on the topic of Continuing Education for Speech Language Pathologists and
Audiologists.
• June 2008: : Presentation at University of South Dakota, Interdisciplinary Training
class on the topic of providing culturally diverse services in South Dakota, and
administrative budgeting and decision making.
• August 2008: Two 4-hour presentations at South Dakota Achieve on Traumatic
Brain Injury.

• September 2008: Presentation at University of South Dakota, Interdisciplinary
Training class on the topic of Interdisciplinary Team Collaboration, and the
Developmental Clinics.
• November 2008: Presentation at University of South Dakota, Dietetic Interns class
on the topic of Dysphagia.
• March 2009: Presentation at State Special Education Conference on Traumatic
Brain Injury and Classroom Implications.
• Invited presentations scheduled for September 2009 on the topic of Traumatic Brain
Injury through the South Dakota Department of Special Education.
Continuing Education: Related to current position
• September 2004: Attended Picture Exchange Communication System (PECS)
training.
• October 2004: Attended 2 full day workshops regarding Fetal Alcohol Spectrum
Disorder.
• October 2004: Attended national Deaf/Blind Project Directors meeting in
Washington DC.
• November 2004: Attended national AUCD meeting in Washington DC.
• March 2005: Attended Sarah Rosenfeld-Johnson’s Three Part Muscle Based Oral
Motor Therapy training.
• March 2005: Attended the Council for Exceptional Children workshop.
• April 2005: Attended the state South Dakota Speech Language and Hearing
Association convention.
• June 2005: Attended Council for Academic Training meeting.
• September 2005: Attended Asperger Syndrome training.
• September 2005: Attended FASD training.
• October 2005: Attended Birth to Three Training on Early Brain Development and
Emotional Learning in Young Children.
• February 2006: Attended Special Education Law in South Dakota workshop.
• March 2006: Attended Writing Behavioral Plans workshop.
• April 2006: Attended the state South Dakota Speech Language and Hearing
Association convention.
• April 2006: Attended Sanford Health/T. Denny Sanford Pediatric Symposium.
• May 2006: Attended CHARGE Grand Rounds.
• June 2006: Attended Auditory Processing Disorders course.
• October 2006: Attended Meth Course.
• October 2006: Attended national AUCD meeting in Washington DC.
• October 2006: Attended Spinal Cord Injury/Traumatic Brain Injury Educational
Symposium.
• January 2007: Attended Social Security Disability Information Seminar
• January 2007: Attended IDEA Regulations update for South Dakota
• April 2007: Attended South Dakota Speech Language Hearing Association
• August 2007: HRSA training for new grant developed in Pine Ridge

• November 2007: Attended American Speech Language Hearing Association
convention
• January 2008: Attended course on Response to Intervention
• March 2008: Attended Grand Rounds on Beta Cell Regeneration in Type 1 and 2
Diabetes
• April 2008: Attended the state South Dakota Speech Language and Hearing
Association convention.
• May 2008: Attended the Council of State Speech-Language-Hearing Association
Presidents Workshop
• June 2008: Attended the LEND sponsored workshop titled “ADHD in Children
and Adolescents” by Russel A. Barkley, Ph.D.
• October 2008: Attended GreenStar.
• November 2008: Attended the American Speech Language Hearing Association
convention.
• November 2008: Attended the Council of State Speech-Language-Hearing
Association Workshop.
• March 2009: Attended Act Early Regional Summit.
• April 2009: Attended Assessment and Treatment of Children with Autism Disorders
Workshop.
• May 2009: Attended technical assistance visit to University of New Mexico for
telepractice implementation.
Professional Memberships
• American Speech Language Hearing Association (1995-present).
• South Dakota Speech Language Hearing Association (1998-present).
• Kappa Delta Pi (An International Honor Society in Education) (1991-present).
• Member of the national Council for Interdisciplinary Service (2004-present).
• The Honor Society of Phi Kappa Phi (1992-present).
• Member of the state Newborn Hearing Screen work group (2004-2007).
• Brain Injury Alliance of South Dakota (2009-present).
Awards and Recognition
• Continuing Education Administrator for the State of South Dakota’s Speech
Language Hearing Association.
• President of the State of South Dakota Speech Language Hearing Association.
• Mentor for an undergraduate student in Speech Language Pathology.
• Strategic Planning member for the South Dakota Speech Language Hearing
Association 2003 and 2006.
• Employee of the month October 1999 and April 2003 for the Physical Medicine and
Rehabilitation Department at Sanford Health.

• Coordinator for LEND (The South Dakota Leadership Education Excellence in
Caring for Children with Neurodevelopmental and Related Disabilities) students for
the Developmental clinics.
• Member of the State Birth-3 Workgroup 2008.
• Spark Plug Nominee 2005-2006 at the Center for Disabilities.
• American Speech Language Hearing Association Award for Continuing Education
(ACE) 2006-2009, 2008-2011.

Sarah Jane Brain Family State Lead Center of Excellence
For the state of
Tennessee
University of Tennessee
www.utk.edu
REGION: Southeast CATEGORY OF CARE: Mild TBI
Program Director: Kristin Anne King, Ph.D. Position Title: Assistant Professor
Department: Department of Audiology & Speech Pathology
Address: 1620 Melrose Avenue, Knoxville, TN 37996
Phone: 865‐974‐5277
Email: kking29@utk.edu
Level 1 Center(s): Knoxville, Nashville, Memphis
Level 2 Center(s): Chattanooga, Jackson
Level 3 Center(s): 0
Number of jobs PABI Grant creates in Tennessee: 106
Budget Overview for State Lead Center
State Lead Center Management Sub‐total: $ 5,605,382
Category of Care Management Sub‐total: $ 1,888,037
Case Management Sub‐total: $ 4,437,305
State Lead Center Sub‐total: $ 11,962,724
Indirect Cost to Institution (20%): $ 2,392,545
Administrative Cost to SJBF (2%): $ 239,254
SUB‐TOTAL AMOUNT OF GRANT PROPOSAL: $ 14,594,523

University of Tennessee Profile continued
Title/Description Sub‐total Amount for Grant
STATE LEAD CENTER MANAGEMENT
Program Director: $ 71,680
Program Director Assistant: $ 89,194
State Director: $ 297,313
Associate State Director: $ 128,836
State Epidemiologist: $ 198,209
State Epidemiologist Assistant: $ 89,194
State Scientific Investigation Research Coordinator: $ 168,477
State Scientific Investigation Research Assistant: $ 168,477
State Education/Training Coordinator (plus materials): $ 315,368
State General Counsel: $ 237,850
State IT Manager: $ 188,298
State Family Support Coordinator: $ 148,657
State Prevention/Awareness Coordinator: $ 148,657
State Acute Care Coordinator: $ 148,657
State Reintegration Coordinator: $ 148,657
State Adult Transition Coordinator: $ 148,657
State Mild TBI Coordinator: $ 148,657
State Mental Health Coordinator: $ 128,836
State Assistive/Emerging Technology Coordinator: $ 128,836
State Correctional System Coordinator: $ 128,836
State MISC Coordinator: $ 128,836
State Veterans Coordinator: $ 128,836
State Data Manager: $ 128,836
State Public Policy Manager: $ 148,657
State Community Relations Manager: $ 128,836
State Administrative Support: $ 535,163
Charity care: $ 309,701
Human Resources Support: $ 106,000
Training Support: $ 26,500
State Lead Center Office Space Cost: $ 297,623
State Lead Center Transportation/Travel: $ 100,343
State Lead Center Office Equipment/Communications: $ 197,500
State Lead Center Supplies: $ 96,007
Annual and Regional Conferences: $ 32,000
State Brain Injury Association Pediatric Programs: $ 88,486
STATE LEAD CENTER MANAGEMENT SUB‐TOTAL: $ 5,605,382

University of Tennessee Profile continued
Title/Description Sub‐total Amount for Grant
CATEGORY OF CARE RESPONSIBILITY: Mild TBI
Regional Category Director: $ 297,313
Regional Category Epidemiologist: $ 237,850
Regional Category Education/Training Coordinator: $ 198,209
Regional Category Scientific Investigation Research: $ 198,209
Regional Category Administrative Support: $ 356,776
Regional Category Office Space Cost: $ 86,407
Regional Category Transportation/Travel: $ 157,500
Regional Category Office Equipment/Communications: $ 27,900
Regional Category Supplies: $ 27,873
CATEGORY OF CARE SUB‐TOTAL: $ 1,888,037

University of Tennessee Profile continued
Title/Description Sub‐total Amount for Grant
CASE MANAGEMENT RESPONSIBILITY
Level 1 Center Manager(s): $ 424,733
Level 1 Center Field Specialist(s): $ 339,786
Level 1 Center SJB Family Specialist(s): $ 2,319,042
Level 1 Center Administrative Support: $ 382,260
Level 1 Office Space Cost: $ 46,455
Level 1 Transportation/Travel: $ 82,146
Level 1 Office Equipment/Communications: $ 89,400
Level 1 Supplies: $ 115,032
Level 2 Center Field Specialist(s): $ 135,915
Level 2 Center SJB Family Specialist(s): $ 441,722
Level 2 Transportation/Travel: $ 15,633
Level 2 Office Equipment/Communications: $ 26,600
Level 2 Supplies: $ 18,582
CASE MANAGEMENT SUB‐TOTAL: $ 4,437,305
STATE LEAD CENTER SUB‐TOTAL: $ 11,962,724
INDIRECT COST TO INSTITUTION: $ 2,392,545
ADMINISTRATIVE FEE TO SJBF: $ 239,254
STATE LEAD CENTER SUB‐TOTAL: $ 14,594,523
TOTAL JOBS CREATED IN Tennessee: 106

NAME
KING, Kristin A.
eRA COMMONS USER NAME
BIOGRAPHICAL SKETCH
POSITION TITLE
Assistant Professor
EDUCATION/TRAINING (Begin with baccalaureate or other initial professional education, such as nursing, and include postdoctoral training.)
INSTITUTION AND LOCATION
DEGREE
(if applicable)
YEAR(s) FIELD OF STUDY
University of North Carolina, Chapel Hill, NC BA 1983 - 1987 Education: English
East Carolina University, Greenville, NC MS 1992 - 1995
Speech- Language
Pathology and Audiology
East Carolina University, Greenville, NC PhD 2002 - 2008 Communication
Sciences and Disorders
A). Positions and Honors
Positions and Employment:
May 1995 – Oct 1997 Clinical Fellow in Audiology and Speech Pathology; Pitt County
Memorial Hospital, Greenville, North Carolina
Oct 1997 – June 2001 Clinical Speech Pathologist; Pitt County Memorial Hospital, Greenville,
North Carolina
June 2001 – July 2002 Clinical Speech Pathologist; Duke Medical Center, Durham, North
Carolina
July 2002 – June 2004 Research Assistant; East Carolina University, Department of
Communication Sciences and Disorders, Language and Reading
Disorders Laboratory
June 2004 – July 2008 Research Assistant; East Carolina University, Department of
Communication Sciences and Disorders, Neurolinguistics Laboratory
Aug 2008 – Present Assistant Professor; University of Tennessee Health Science Center,
Department of Audiology & Speech Pathology, Knoxville, TN.
Awards/Fellowships/Traineeships:
2007 Nominated and Inducted, Sigma Xi Scientific Research Society
2004 Student Journal Reviewer Award, Clinical Aphasiology; Aphasiology
2004 NIDCD Student Fellowship for Research Award, awarded through Clinical Aphasiology
Professional Licenses and Certification:
Licensed Speech Pathologist (1995 – 2008 North Carolina, 3731; Tennessee pending)
Certificate of Clinical Competence - Speech Pathology
B1). Peer-Reviewed Publications (in chronological order)
1. King K, Wagner C, Odom C, and Moore D. (1997). Therapeutic intervention for a pediatric SCI
patient: a case study. Perspectives. 12 (3): 9 - 15.
2. King K, Hough M, Walker M, Rastatter M, and Holbert D. (2006). Mild traumatic brain injury:
effects on word retrieval in naming and discourse. Brain Injury. 20(7): 725-732.
3. King K, Hough M, Vos P, Walker M, and Givens G. (2006). Word retrieval following mild TBI:
implications for categorical deficits. Aphasiology. 20(2-4): 233-245.

4. Johnson, R. K., Hough, M. S., King, K. A., Vos, P., & Jeffs, T. (2008). Functional communication in
individuals with chronic severe aphasia using augmentative communication. Augmentative &
Alternative Communication, 24(4), 1-12.
5. King, K, Hough, M, Walker, M, Everhart, E, Rastatter, M, Holbert, D, Moore, D. (2008)
Dissertation: Picture naming and word reading: differential diagnostic tasks following Traumatic Brain
Injury in children?
6. Deal R, Hough M, King K, Walker M, Rastatter M, and Hudson S. (in press). Influence of duration
of post-traumatic amnesia on pragmatic skills in chronic traumatic brain injury. Journal of Medical
Speech Pathology.
C). Research Support
Ongoing Research Support
1. King, K 2008-2010 $ 50,000/2 yr
University of Tennessee
“Neurocognitive and Linguistics Research Laboratory.”

Sarah Jane Brain Family State Lead Center of Excellence
For the state of
Texas
Center for BrainHealth / The University of Texas at Dallas
www.brainhealth.utdallas.edu
REGION: Southcentral CATEGORY OF CARE: Virtual SJB Center (National Lead)
Program Director: Sandra Chapman, Ph.D. Position Title: Professor
Department: Department of Behavioral & Brain Sciences
Address: 2200 W. Mockingbird Lane, Dallas, TX 75235
Phone: 214‐905‐3007
Email: schapman@utdallas.edu
Level 1 Center(s): Dallas‐Fort Worth, Houston, San Antonio, Austin, El Paso
Level 2 Center(s): Waco/Killeen/Temple/Fort Hood, Corpus Christi, Tyler/Longview, Lubbock,
Midland/Odessa, Laredo, Bryan/College Station, Abilene
Level 3 Center(s): Amarillo, Galveston/Beaumont, McAllen, San Angelo
Number of jobs PABI Grant creates in Texas: 193
Budget Overview for State Lead Center
State Lead Center Management Sub‐total: $ 7,589,377
Category of Care Management Sub‐total: $ 19,532,823
Case Management Sub‐total: $ 13,435,431
State Lead Center Sub‐total: $ 40,589,631
Indirect Cost to Institution (20%): $ 8,117,926
Administrative Cost to SJBF (2%): $ 811,793
SUB‐TOTAL AMOUNT OF GRANT PROPOSAL: $ 49,519,350

Center for BrainHealth / The University of Texas at Dallas Profile continued
Title/Description Sub‐total Amount for Grant
STATE LEAD CENTER MANAGEMENT
Program Director: $ 76,800
Program Director Assistant: $ 113,583
State Director: $ 378,610
Associate State Director: $ 164,064
State Epidemiologist: $ 252,407
State Epidemiologist Assistant: $ 113,583
State Scientific Investigation Research Coordinator: $ 214,546
State Scientific Investigation Research Assistant: $ 214,546
State Education/Training Coordinator (plus materials): $ 871,661
State General Counsel: $ 302,888
State IT Manager: $ 239,787
State Family Support Coordinator: $ 189,305
State Prevention/Awareness Coordinator: $ 189,305
State Acute Care Coordinator: $ 189,305
State Reintegration Coordinator: $ 189,305
State Adult Transition Coordinator: $ 189,305
State Mild TBI Coordinator: $ 189,305
State Mental Health Coordinator: $ 164,064
State Assistive/Emerging Technology Coordinator: $ 164,064
State Correctional System Coordinator: $ 164,064
State MISC Coordinator: $ 164,064
State Veterans Coordinator: $ 164,064
State Data Manager: $ 164,064
State Public Policy Manager: $ 189,305
State Community Relations Manager: $ 164,064
State Administrative Support: $ 681,499
Charity care: $ 394,386
Human Resources Support: $ 193,000
Training Support: $ 48,250
State Lead Center Office Space Cost: $ 379,005
State Lead Center Transportation/Travel: $ 127,781
State Lead Center Office Equipment/Communications: $ 197,500
State Lead Center Supplies: $ 122,260
Annual and Regional Conferences: $ 32,000
State Brain Injury Association Pediatric Programs: $ 98,596
STATE LEAD CENTER MANAGEMENT SUB‐TOTAL: $ 7,589,377

Center for BrainHealth / The University of Texas at Dallas Profile continued
Title/Description Sub‐total Amount for Grant
CATEGORY OF CARE RESPONSIBILITY: Virtual SJB Center (National Lead)
National Category Director: $ 576,000
National Category Epidemiologist: $ 384,000
National Category Education/Training Coordinator: $ 307,200
National Category Scientific Investigation Research: $ 307,200
National Database Mgr; National Content Mgr; National Help Desk Support Mgr; National Bus.
Development Mgr; National HIPAA Compliance Officer: $ 1,536,000
Development of SJBF Registry and Personal Health/Education Records Portal and Open Source Initiative:
$ 15,000,000
Regional Category Director: $ 378,610
Regional Category Epidemiologist: $ 302,888
Regional Category Education/Training Coordinator: $ 252,407
Regional Category Scientific Investigation Research: $ 252,407
Regional Business Development Manager; Database Support Staff; Content Support Staff; Help Desk
Support Staff: $ 1,792,000
Regional Additional Tech
Regional Category Administrative Support: $ 454,332
Regional Category Office Space Cost: $ 171,163
Regional Category Transportation/Travel: $ 180,000
Regional Category Office Equipment/Communications: $ 43,400
Regional Category Supplies: $ 55,214
CATEGORY OF CARE SUB‐TOTAL: $ 19,532,823

Center for BrainHealth / The University of Texas at Dallas Profile continued
Title/Description Sub‐total Amount for Grant
CASE MANAGEMENT RESPONSIBILITY
Level 1 Center Manager(s): $ 946,526
Level 1 Center Field Specialist(s): $ 757,221
Level 1 Center SJB Family Specialist(s): $ 5,537,177
Level 1 Center Administrative Support: $ 851,873
Level 1 Office Space Cost: $ 62,116
Level 1 Transportation/Travel: $ 167,021
Level 1 Office Equipment/Communications: $ 145,000
Level 1 Supplies: $ 236,631
Level 2 Center Field Specialist(s): $ 807,702
Level 2 Center SJB Family Specialist(s): $ 2,953,161
Level 2 Transportation/Travel: $ 84,345
Level 2 Office Equipment/Communications: $ 106,400
Level 2 Supplies: $ 110,428
Level 3 Center SJB Family Specialist(s): $ 615,242
Level 3 Transportation/Travel: $ 14,040
Level 3 Office Equipment/Communications: $ 22,800
Level 3 Supplies: $ 17,747
CASE MANAGEMENT SUB‐TOTAL: $ 13,435,431
STATE LEAD CENTER SUB‐TOTAL: $ 40,589,631
INDIRECT COST TO INSTITUTION: $ 8,117,926
ADMINISTRATIVE FEE TO SJBF: $ 811,793
STATE LEAD CENTER SUB‐TOTAL: $ 49,519,350
TOTAL JOBS CREATED IN Texas: 193

NAME
Sandra B. Chapman, Ph.D.
eRA COMMONS USER NAME (credential, e.g., agency login)
SANDRACHAPMAN
BIOGRAPHICAL SKETCH
POSITION TITLE
Professor, Department of Behavioral & Brain Sciences
Dee Wyly Distinguished Chair in BrainHealth
Chief Director, Center for BrainHealth
EDUCATION/TRAINING (Begin with baccalaureate or other initial professional education, such as nursing, and include postdoctoral training.)
INSTITUTION AND LOCATION
DEGREE
(if applicable)
YEAR(s) FIELD OF STUDY
The University of North Texas, Denton, TX BA 1973 Speech Pathology
The University of North Texas, Denton, TX MA 1975 Speech Pathology
The University of Texas at Dallas, Dallas, TX PhD 1986 Cognitive Neuroscience
A. Positions and Honors
PROFESSIONAL EXPERIENCE
1986-1990 Research Scientist and Project Coordinator for NIH Grant, University of Texas at Dallas, (Brain
Mapping and cognitive Correlates in Neurogenic communications disorders)
1986-Present Adjunct Instructor in Neurology, University of Texas Southwestern Medical Center at Dallas
1987-Present Consultant and Investigator for Alzheimer ’s disease Research Center, University of Texas
Southwestern Medical Center at Dallas
1986-Present Research Scientist- Professor – UT Dallas, Behavioral and Brain Sciences
1990-Present Editorial Review – Staff : Archives of Neurology, Jr. of International Neuropsychology, Aphasiology,
American Journal of Speech Language Pathology, Brain and Language, Journal of Communication
Disorders, Advances in Speech Language Pathology, Journal of Speech, Language and Hearing Research
1997-Present Chief Director : Center for BrainHealth at the University of Texas at Dallas. The Center is dedicated
to understanding, protecting and healing the brain. Research and advanced clinical interventions
optimize functional capacity and quality of life in clients with dementia, stroke, Alzheimer’s,
Parkinson’s, depression, traumatic brain injury and complications of normal aging, across the lifespan.
2003-2007 Head of Neurological Disorders of the Aging Brain; Institute of Biomedical Sciences and Technology (UTD)
2003-Present Professor, University of Texas at Dallas, Department of Behavioral and Brain Sciences
2004-Present Dee Wyly Distinguished Chair in BrainHealth
2005-Present Steering Committee, UTD Department of Bioengineering
2006-Present Editorial Board of Experimental Biology and Medicine
2007-2009 Research Integrity Committee Appointment, UT Dallas Academic Senate Committee
2008-Present Member of The National Advisory Board of Sarah Jane Brain Foundation (pediatric TBI)
2009 NIH Reviewer for independent scientific peer review of the Brain, Biology, and Machine Initiative
Program
B. Selected Peer-Reviewed Publications
Gamino, J., Chapman, S.B., Hart, J., Cook, L. (2009) “Strategic Learning in Children with Traumatic Brain Injury; New
Evidence to Motivate Intervention.” Topics in Language Disorders; Brain Based Assessment And Treatment In
Pediatric TBI
Gamino, J., Chapman, S.B., Hart, J., Cook, L. , Vanegas, S., Tamm, L., Hughes, C., Cheng, D., Pickering, J. Emslie, G.
(2009) “Strategic Learning of Gist versus Detail information in Children with Attention Deficit/Hyperactivity.” Journal
of International Neuropsychological Society (submitted)
Ornstein, T.J., Levin, H.S., Chen, S., Hanten, G., Ewing-Cobbs, L., Dennis, M., Barnes, M., Max, J.E., Chapman, S.B.,
Logan, G., Schachar, R. (2008) “Performance monitoring in children following traumatic brain injury.” Journal of Child
Psychology and Psychiatry (in press)
Wong, S. B. C., Anand, R., Chapman, S. B., Rackley, A. M., & Zientz, J. N.. (2008) “When nouns and verbs degrade:
Facilitating communication in semantic dementia.” Aphasiology. (in press)
Hanten, G., Wilde, E., Menefee, DS, Li, X, Lane, S, Vasquez, C, Chu, Z, Ramos, MA, Yallampalli, R, Swank, P,
Chapman, SB, Gamino, J., Hunter, JV, Levin, HS (2008) “Correlates of Social Problem-Solving During the First Year
After Traumatic Brain Injury in Children.” Journal of International Neuropsychological Society Vol 22, No 3, 357-370
Gamino, J., Chapman, S.B., Hart, J., Hull, H. (2008) “Strategic Memory and Reasoning Training in Children with Attention
Deficit Hyperactivity Disorder”. Advances in ADHD
Levin, H.S., Hanten, G., Roberson, G., Li, X., Ewing-Cobbs,L., Dennis, M., Chapman, S.B., Max, J.E., Hunter, J.,
Schachar, R., Luerssen, T.G., Swank, P. (2008) “Abnormal CT after Mild Traumatic Brain Injury Predicts Cognitive
Sequelae in School Aged Children.” Journal of Neurosurgery-Pediatrics

McCauley, S.R., McDaniel, M.A., Pedroza, C., Chapman, S.B., Levin, H.S. (2008) “Incentive Effects and Event-Based
Prospective Memory Performance in Children and Adolescents with Traumatic Brain Injury.” Neuropsychology
Max, J.E., Keatley, E., Levin, H.S., Schachar, R., Saunders, A. Ewing-Cobbs, L., Chapman, S.B., Dennis, M. (2008)
“Anxiety Disorders in Children and Adolescents in the First Six Months After Traumatic Brain Injury.” Journal of the
American Academy of Child and Adolescent Psychiatry (submitted)
Hanten, G., Li, X., Chapman, S. B., Swank, P., Gamino, J., Roberson, G., & Levin, H. S. (2007). “Development of verbal
selective learning.” Developmental Neuropsychology, 32, 585-596.
Cook, L. G., Chapman, S. B., & Gamino, J. F. (2007). “Impaired discourse gist in pediatric brain injury: Missing the forest
for the trees.” In K. Cain and J. Oakhill (Eds.), Cognitive Bases of Children’s Language Comprehension Difficulties
(pp. 218-243). New York: Guilford Publications, Inc.
Chapman, S. B. (2007). “Neurocognitive stall, a paradox in long term recovery from pediatric brain injury.” Brain Injury
Professional, the official publication of the North American Brain Injury Society, 3(4),10-13.
Wong, S. B. C., Chapman, S. B.; Cook, L. G.; Anand, R.; Gamino, J. F., & Devous, M. D. (2006). “A SPECT Study of
language and brain reorganization three years after pediatric brain injury”. In A.R. Moller (Ed.), Reprogramming the
Brain: Progress in Brain Research (vol. 157, pp. 173-185). Amsterdam: Elsevier.
Chapman, S. B., Gamino, J. F., Cook, L. G., Hanten, G., Li, X., & Levin, H.S. (2006). “Impaired discourse gist and working
memory in children after brain injury.” Brain and Language, 97, 178-188.
Chapman, S. B., Anand, R., Sparks, G., & Cullum, C. M. (2006). “Gist distinctions in healthy cognitive aging versus mild
Alzheimer’s disease.” Brain Impairment, 7, 223-233.
Max, J. E., Levin, H. S., Schachar, R. J., Landis, J., Saunders, A. E., Ewing-Cobbs, L., Chapman, S. B., & Dennis, M.
(2006). “Predictors of personality change due to traumatic brain injury in children and adolescents six to twenty-four
months after injury.” Journal of Neuropsychiatry and Clinical Neuroscience, 18, 21-32.
Anand, R., Chapman, S. B., Zientz, J., & Toussaint, K. (2005). “Mild cognitive impairment: A clinical perspective.”
Perspectives on Gerontology, 10(2), 10-14.
Chapman, S. B., Bonte, F. J., Wong, S. B. C., Zientz, J. N., Hynan, L. S. , Harris, T. S., Gorman, A. R., Roney, C. A., &
Lipton, A. M. (2005). “Convergence of connected language and SPECT in variants of frontotemporal lobar
degeneration.” Alzheimer Disease and Associated Disorders, 19(4), 202-213.
Max, J. E., Levin, H. S., Landis, J., Schachar, R., Saunders, A., Ewing-Cobbs, L., Chapman, S. B., Dennis, M. (2005).
“Predictors of personality change due to traumatic brain injury in children and adolescents in the first six months after
injury.” Journal of the American Academy of Child and Adolescent Psychiatry, 44(5), 435-442.
Max, J. E., Schachar, R. J., Levin, H. S., Ewing-Cobbs, L., Chapman, S. B., Dennis, M., Saunders, A., & Landis, J. (2005).
“Predictors of secondary attention-deficit/hyperactivity disorder 6 to 24 months after pediatric traumatic brain injury.”
Journal of the American Academy of Child and Adolescent Psychiatry, 44(10), 1041-1049.
Max, J. E., Schachar, R. J., Levin, H. S., Ewing-Cobbs, L., Chapman, S. B., Dennis, M., Saunders, A., & Landis, J. (2005).
“Predictors of attention-deficit/hyperactivity disorder within six months after pediatric traumatic brain injury.” Journal of
the American Academy of Child and Adolescent Psychiatry, 44(10), 1032-1040.
Hanten, G., Chapman, S. B., Gamino, J. F., Roberson, G., Benton, S., Zang, L., & Levin, H. S. (2004). “Verbal selective
learning after traumatic brain injury in children.” Annals of Neurology, 56, 847-853.
Levin, H. S., Hanten, G., Zhang, L., Swank, P. R., Ewing-Cobbs, L., Dennis, M., Barnes, M. A., Max, J., Schachar, R.,
Chapman, S. B., & Hunter, J. V. (2004). Changes in working memory after traumatic brain injury in children.
Neuropsychology, 18(2), 240-247.
Chapman, S.B. (2004). “The Dana Guide to Brain Health: A book review.” Archives of Neurology, 61, 806-807.
Chapman, S. B., Sparks, G. Levin, H. S., Dennis, M., Roncadin, C., Zhang, L., & Song, J. (2004). “Discourse macrolevel
processing after severe pediatric traumatic brain injury.” Developmental Neuropsychology, 25(1&2), 37-60.
Chiu, S., Zientz, J. N., Chapman, S. B., Harris, T. S., Roney, C., & Bonte, F. J. (2003).”Correspondence between brain
blood flow SPECT with SPM and cognitive-linguistic testing in frontotemporal dementia variants” [abstract]. Journal of
Nuclear Medicine, 44(suppl), 225P.
Chapman, S. B., & Sparks, G. (2003). Language and discourse. In M. Aminoff & R. Daroff (Eds.), Encyclopedia of the
Neurological Sciences (pp. 753-755). San Diego, CA: Academic Press.
Chapman, S. B., Max, J. E., McGlothlin, J. H., Gamino, J. F., & Cliff, S. (2003) “Discourse plasticity in children after stroke:
Age at injury and lesion effects.” Pediatric Neurology. 29(1), 34-41.
Chapman, S. B., McKinnon, L., Levin, H. S., Song, J., & Meier, M. C. (2001). “Longitudinal outcome of verbal discourse in
children with traumatic brain injury: Three-year follow-up.” Journal of Head Trauma Rehabilitation, 16(5), 441-455.
Ulatowska, H. K., Wertz, R. T., Chapman, S. B., Hill, C. L., Thompson, J. L., Keebler, M. W., Olness, G. S., Parsons, S.
D., Miller, T., & Auther, L. L. (2001). “Interpretation of fables and proverbs by African Americans with and without
aphasia.” American Journal of Speech-Language Pathology, 10(1), 40-50.
Levin, H. S., Song, J., Ewing-Cobbs, L., Chapman, S. B., & Mendelsohn, D. (2001). “Word fluency in relation to severity of
closed head injury, associated frontal brain lesions, and age at injury in children.” Neuropsychologia, 39, 122-133.

Levin, H. S., & Chapman, S. B. (2000). “Contribution of frontal lobe lesions to cognitive deficit after closed head injury in
children.” In D. Riva & A. Benton (Eds.), Localization of Brain Lesions and Developmental Functions (pp. 97-108).
London: John Libbey & Company, Ltd.
Brookshire, B. L., Chapman, S. B., Song, J., & Levin, H. S. (2000). “Cognitive and linguistic correlates of children’s
discourse after closed head injury: A three year follow-up.” Journal of the International Neuropsychological Society, 6,
741-751.
Levin, H. S., Song, J., Chapman, S. B., & Harward, H. (2000). “Neuroplasticity following traumatic diffuse vs. focal brain
injury in children: Studies of verbal fluency.” In H. S. Levin & J. Grafman (Eds.), Cerebral Reorganization of Function
after Brain Damage (pp. 218-231). New York: Oxford University Press.
Chapman, S. B., & McKinnon, L. (2000). “Discussion of developmental plasticity: Factors affecting cognitive outcome after
pediatric traumatic brain injury.” Journal of Communication Disorders, 33, 333-344.
Levin, H. S., Song, J., Scheibel, R. S., Fletcher, J. M., Harward, H. N., & Chapman, S. B. (2000). “Dissociation of
frequency and recency processing from list recall after severe closed head trauma.” Journal of Clinical and
Experimental Psychology, 22, 1-15.
Chapman, S. B., Nasits, J., Challas, J. D., & Billinger, A. P. (1999). “Long-term recovery in pediatric head injury:
Overcoming the hurdles.” Advances in Speech-Language Pathology, 1, 19-30.
Chapman, S. B., Levin, H. S., & Lawyer, S. L. (1999). “Communication problems resulting from brain injury in children:
Special issues of assessment and management.” In S. McDonald, L. Toger, & C. Code (Eds.), Communication
Disorders Following Traumatic Brain Injury (pp. 235-270). UK: Psyschology Press Ltd.
Chapman, S. B., Levin, H. S., & Lawyer, S. L. (1999). “Communication problems resulting from brain injury in children:
Special issues of assessment and management.” In S. McDonald, L. Togher, & C. Code (Eds.), Communication
disorders following traumatic brain injury (pp. 235-270). East Sussex, UK: Psychology Press.
Chapman, S. B., Highley, A. P., & Thompson, J. L. (1998). Discourse in fluent aphasia and Alzheimer dementia: Linguistic
and pragmatic considerations.” Journal of Neurolinguistics, 11(1-2), 55-78.
Chapman, S. B. (1998). “Bridging the gap between research and education reintegration: Direct instruction on processing
connected discourse.” Aphasiology, 12, 1081-1088.
Ekwueme, B. N., Kroner, A., Chapman, S. B., Highley, A. P., & Thompson, J. L. (1998). “Discourse in fluent aphasia and
Alzheimer dementia: Linguistic and pragmatic considerations” In M. Paradis (Ed.), Pragmatics in Neurogenic
Communication Disorders (pp. 55-78). Amsterdam, The Netherlands: Elsevier.
Chapman, S. B., Levin, H. S., Wanek, A., Weyrauch, J., & Kufera, J. (1998). “Discourse after closed head injury in young
children.” Brain and Language, 61, 420-449.
Levin, H. S., & Chapman, S. B. (1998). “Aphasia after traumatic brain injury.” In M. T. Sarno (Ed.), Acquired Aphasia, 3rd
Edition (pp.481-529). New York: Academic Press.
Chapman, S. B. (1997). “Cognitive-communicative abilities in children with closed head injury.” American Journal of
Speech-Language Pathology, 6, 50-58.
Chapman, S. B., Watkins, R., Gustafson, C., Moore, S., Levin, H.S., & Kufera, J. A. (1997). “Narrative discourse in
children with closed head injury, children with language impairment, and typically developing children.” American
Journal of Speech-Language Pathology, 6, 66-75.
Chapman, S. B., Ulatowska, H. K., Franklin, L., Shobe, A., & Thompson, J. (1997). “Proverb interpretation in fluent
aphasia and Alzheimer’s disease: Implications beyond abstract thinking.” Aphasiology, 11(4), 337-350.
Chapman, S. B., Levin, H. S., & Harward, H. N. (1996). “Long-term recovery of discourse, cognitive and psychosocial
abilities in pediatric head injury: A case illustration.” In A. Balejko (Ed.), Diagnosis and Therapy in Patients with
Various Language Impairments (pp. 41-64). Sklad: Bialystok.
Levin, H. S., Fletcher, J. M., Kusnerik, L., Kufera, J. A., Lilly, M. A., Duffy, F. F., Chapman, S., Mendelsohn, D., & Bruce,
D. (1996). “Semantic memory following pediatric brain injury: Relationship to age, severity of injury, and MRI.” Cortex,
32, 461-478.
Chapman, S. (1995). Discourse as an outcome measure in pediatric head injured populations.” In S. Broman & M. E.
Michel (Eds.), Consequences of Traumatic Head Injury in Children: Variability in Short and Long Term Outcomes (pp.
95 116). UK: Oxford University Press.
Chapman, S. B., Levin, H. S., Matejka, J., Harward, H., & Kufera, J. A. (1995). “Discourse ability in children with brain
injury: Correlations with psychosocial, linguistic, and cognitive factors”. Journal of Head Trauma Rehabilitation, 10, 36-
54.
Chapman, S. B., Levin, H. S., & Culhane, K. (1995). “Language impairment in closed head injury.” In H. Kirschner (Ed.),
Handbook of neurological speech and language disorders (pp. 387-414). New York: Marcel-Dekker.
Ulatowska, H. K., Chapman, S. B., & Johnson, J. K. (1995). “Processing of proverbs in aphasics and old elderly.” Clinical
Aphasiology, 23, 179 193.
Levin, H. S., Culhane, K. A., Fletcher, J. M., Mendelsohn, D. B., Lilly, M. A., Harward, H., Chapman, S. B., Bruce, D. A.,
Bertolino Kusnerik, L., & Eisenberg, H. M. (1994). “Dissociation between delayed alternation and memory after
pediatric head injury: Relationship to MRI findings.” Journal of Child Neurology, 9, 81 89.

Levin, H. S., Mendelsohn, D. B., Lilly, M. A., Fletcher, J. M., Culhane, K. A., & Chapman, S. B., Harward, H., Kusnerik, L.,
Bruce, D., & Eisenberg, H. M. (1994). “Tower of London performance in relation to magnetic resonance imaging
following closed head injury in children.” Neuropsychology, 8(2), 171 179.
Ulatowska, H. K., & Chapman, S. B. (1994). “Discourse macrostructure in aphasia.” In R. L. Bloom, L. K., Obler, S.
DeSanti, & J. S. Ehrlich (Eds.), Discourse analysis and applications (pp.29-46). Hillsdale, NJ: Lawrence Erlbaum
Associates.
Levin, H. S., Culhane, K. A., Mendelsohn, D., Lilly, M. A., Bruce, D., Fletcher, J. M., Chapman, S. B., Harward, H., &
Eisenberg, H. M. (1993). “Cognition in relation to magnetic resonance imaging in head injured children and
adolescents.” Archives of Neurology, 50, 897 905.
Chapman, S. B., Culhane, K. A., Levin, H. S., Harward, H., Mendelsohn, D., Ewing Cobbs, L., Fletcher, J. M., & Bruce, D.
(1992). “Narrative discourse after closed head injury in children and adolescents.” Brain and Language, 43, 42 65.
C. Research Support
R01 NS21889 (Levin) 08/18/04-04/30/09
NINDS/NIH
Neurobehavioral Outcome of Head Injury in Children
Role: Site PI Competing Renewal Pending
R01HD48179 (Chapman) 07/04-07/09
NIH
Genetic Factors in Outcome from Traumatic Brain Injury
Role: PI
(none) (Chapman) 03/06-03/10
Sparrow Foundation
Center for Advanced ADHD Research, Treatment and Education (CAARTE)
(none) (Chapman) 03/06-03/11
Lattner Foundation
Lattner Health Brain Initiative in Young Adults with Social cognition Disorders
Chapman (Co-PI) 7/07-9/09
Department of Defense
Human Performance Measures in Humans
Chapman 2005-2009
Social Cognition (Wacker)
Genetics and Brain Mapping of Social Cognition in Psychiatric Disorders
Chapman 2006-2010
Brain Repair in Children
Strategic Reasoning and Memory Training in Pediatric Brain Injury
Chapman 2006-2010
Sparrow Pediatric Social Cognition Brain Hope
Virtual Training of Social Cognition in Childhood
Chapman 2005-2010
Vin & Caren Prothro Foundation
Brain Repair after Brain Injury
Completed during the last three years
AG019724 (Miller) 04/02-03/07
NIA
Genes, Emotions and Images, Frontotemporal Dementia
Role: Consultant
Chapman (PI) 10/01-09/08
Frank Garrott Research Fund
Discourse in Hereditary Dysphasic Dementia

Sarah Jane Brain Family State Lead Center of Excellence
For the state of
Utah
University of Utah
www.utah.edu
REGION: Rocky Mountain CATEGORY OF CARE: Acute Phase
Program Director: Kimberly Statler, MD, M.P.H. Position Title: Assistant Professor
Department: Department of Pediatrics
Address: 30 N. 1900 E., Salt Lake City, UT 84132
Phone: (801) 662‐2466
Email: kim.statler@hsc.utah.edu
Level 1 Center(s): Salt Lake City
Level 2 Center(s): Ogden, Provo, St. George
Level 3 Center(s): Logan, Richfield, Blanding
Number of jobs PABI Grant creates in Utah: 94
Budget Overview for State Lead Center
State Lead Center Management Sub‐total: $ 5,454,701
Category of Care Management Sub‐total: $ 1,570,374
Case Management Sub‐total: $ 2,526,674
State Lead Center Sub‐total: $ 9,583,749
Indirect Cost to Institution (20%): $ 1,916,750
Administrative Cost to SJBF (2%): $ 191,675
SUB‐TOTAL AMOUNT OF GRANT PROPOSAL: $ 11,692,174

University of Utah Profile continued
Title/Description Sub‐total Amount for Grant
STATE LEAD CENTER MANAGEMENT
Program Director: $ 106,312.50
Program Director Assistant: $ 88,444
State Director: $ 294,814
Associate State Director: $ 127,753
State Epidemiologist: $ 196,543
State Epidemiologist Assistant: $ 88,444
State Scientific Investigation Research Coordinator: $ 167,062
State Scientific Investigation Research Assistant: $ 167,062
State Education/Training Coordinator (plus materials): $ 231,738
State General Counsel: $ 235,852
State IT Manager: $ 186,716
State Family Support Coordinator: $ 147,407
State Prevention/Awareness Coordinator: $ 147,407
State Acute Care Coordinator: $ 147,407
State Reintegration Coordinator: $ 147,407
State Adult Transition Coordinator: $ 147,407
State Mild TBI Coordinator: $ 147,407
State Mental Health Coordinator: $ 127,753
State Assistive/Emerging Technology Coordinator: $ 127,753
State Correctional System Coordinator: $ 127,753
State MISC Coordinator: $ 127,753
State Veterans Coordinator: $ 127,753
State Data Manager: $ 127,753
State Public Policy Manager: $ 147,407
State Community Relations Manager: $ 127,753
State Administrative Support: $ 530,666
Charity care: $ 291,175
Human Resources Support: $ 94,000
Training Support: $ 23,500
State Lead Center Office Space Cost: $ 279,819
State Lead Center Transportation/Travel: $ 94,341
State Lead Center Office Equipment/Communications: $ 197,500
State Lead Center Supplies: $ 90,264
Annual and Regional Conferences: $ 32,000
State Brain Injury Association Pediatric Programs: $ 83,193
STATE LEAD CENTER MANAGEMENT SUB‐TOTAL: $ 5,454,701

University of Utah Profile continued
Title/Description Sub‐total Amount for Grant
CATEGORY OF CARE RESPONSIBILITY: Acute Phase
Regional Category Director: $ 294,814
Regional Category Epidemiologist: $ 235,852
Regional Category Education/Training Coordinator: $ 196,543
Regional Category Scientific Investigation Research: $ 196,543
Regional Category Administrative Support: $ 353,777
Regional Category Office Space Cost: $ 81,238
Regional Category Transportation/Travel: $ 157,500
Regional Category Office Equipment/Communications: $ 27,900
Regional Category Supplies: $ 26,206
CATEGORY OF CARE SUB‐TOTAL: $ 1,570,374

University of Utah Profile continued
Title/Description Sub‐total Amount for Grant
CASE MANAGEMENT RESPONSIBILITY
Level 1 Center Manager(s): $ 140,388
Level 1 Center Field Specialist(s): $ 112,310
Level 1 Center SJB Family Specialist(s): $ 766,518
Level 1 Center Administrative Support: $ 126,349
Level 1 Office Space Cost: $ 43,676
Level 1 Transportation/Travel: $ 27,144
Level 1 Office Equipment/Communications: $ 33,800
Level 1 Supplies: $ 49,916
Level 2 Center Field Specialist(s): $ 202,158
Level 2 Center SJB Family Specialist(s): $ 657,015
Level 2 Transportation/Travel: $ 23,306
Level 2 Office Equipment/Communications: $ 39,900
Level 2 Supplies: $ 26,206
Level 3 Center SJB Family Specialist(s): $ 246,381
Level 3 Transportation/Travel: $ 7,020
Level 3 Office Equipment/Communications: $ 17,100
Level 3 Supplies: $ 7,487
CASE MANAGEMENT SUB‐TOTAL: $ 2,526,674
STATE LEAD CENTER SUB‐TOTAL: $ 9,583,749
INDIRECT COST TO INSTITUTION: $ 1,916,750
ADMINISTRATIVE FEE TO SJBF: $ 191,675
STATE LEAD CENTER SUB‐TOTAL: $ 11,692,174
TOTAL JOBS CREATED IN Utah: 94

NAME
Kimberly D. Statler, M.D., M.P.H.
eRA COMMONS USER NAME
BIOGRAPHICAL SKETCH
POSITION TITLE
Assistant Professor, Department of Pediatrics
EDUCATION/TRAINING (Begin with baccalaureate or other initial professional education, such as nursing, and include postdoctoral training.)
INSTITUTION AND LOCATION
DEGREE
(if applicable)
YEAR(s) FIELD OF STUDY
Northwestern University, Evanston, IL B.S. 1992 Biomedical Engineering
Northwestern University Medical School, Chicago, IL M.D. 1995 Medicine
Baylor College of Medicine, Houston, TX Residency 1995-1998 Pediatrics
University of Pittsburgh School of Medicine,
Pittsburgh, PA Fellowship 1998-2001 Pediatric Critical Care
National Research Service Award Fellowship, Safar
Center for Resuscitation Research, University of
Pittsburgh School of Medicine, Pittsburgh, PA
2000-2002
Pediatric Neurointensive
Care
University of Utah, Salt Lake City, UT M.P.H. 2004 General Public Health
A. Positions and Honors.
2001-2002 Visiting Instructor, Department of Critical Care Medicine, University of Pittsburgh School of
Medicine, Pittsburgh, PA
2002-Present Assistant Professor, Department of Pediatrics, University of Utah School of Medicine, Salt
Lake City, Utah
2005-Present Adjunct Assistant Professor, Department of Pharmacology and Toxicology, University of Utah
College of Pharmacy, Salt Lake City, Utah
2006-Present Faculty, Interdepartmental Graduate Program in Neuroscience, University of Utah, Salt Lake
City, UT.
2007-Present Associate Medical Director, Pediatric Intensive Care Unit, Primary Children’s Medical Center,
Salt Lake City, UT.
2008-Present Medical Director, Respiratory Care Services, Primary Children’s Medical Center, Salt Lake
City, UT
1999 Annual Educational Scientific Award, Society of Critical Care Medicine.
2000 Women in Neurotrauma Research Award, Women in Neurotrauma Research Society.
2004-2008 Primary Children’s Medical Center Foundation Scholar, Primary Foundation.
2007-2009 Pediatric Clinical and Translational Research Scholar, University of Utah.
B. Selected peer-reviewed publications (in chronological order).
ORIGINAL PUBLICATIONS
1. Delp SL, Statler K, Carrol NC. (1995) Preserving plantar flexion strength after surgical treatment for
contracture of the triceps surae: a computer simulation study. J Orthop Res 13:96-104.
2. Vankoski S, Moore C, Statler KD, Sarwark JF, Dias L. (1997) The influence of crutches on pelvic
kinematics in children with myelomeningocele: don’t throw away the crutches. Dev Med Child Neurol
39:614-9.
3. Statler KD, Kochanek PM, Dixon CE, Alexander HL, Warner DS, Clark RSB, Wisneiwski SR, Graham SH,
Jenkins LW, Marion DW, Safar PJ. (2000) Isoflurane improves long-term neurologic outcome versus
fentanyl after traumatic brain injury in rats. J Neurotrauma 17:1179-89.
4. Hendrich KS, Kochanek PM, Melick JA, Schiding JK, Statler KD, Williams DS, Marion DW, Ho C. (2001)
Cerebral perfusion during anesthesia with fentanyl, isoflurane, or pentobarbital in normal rats studied by
arterial spin-labeled MRI. Mag Reson Med 46:202-6.

5. Statler KD, Jenkins LW, Dixon CE, Clark RS, Marion DW, Kochanek PM. (2001) The simple model versus
the super model: translating experimental traumatic brain injury research to the bedside. J Neurotrauma
18:1195-206.
6. Statler KD, Alexander H, Vagni V, Nomoto E, Tofovic SP, Dixon CE, Jenkins LW, Marion DW, Kochanek
PM. (2003) Moderate Hypothermia may be Detrimental After Traumatic Brain Injury in Fentanyl-
Anesthetized Rats. Crit Care Med 31:1134-9.
7. Statler KD, Janesco KL, Melick JA, Clark RS, Jenkins LW, Kochanek PM. (2003) Hyperglycolysis is
exacerbated after traumatic brain injury with fentanyl vs. isoflurane anesthesia in rats. Brain Res 994(1):37-
43.
8. Statler KD, Alexander H, Vagni V, Dixon CE, Clark RSB, Jenkins L, Kochanek PM (2006) Comparison of
seven anesthetic agents on outcome after experimental traumatic brain injury in adult, male rats. J
Neurotrauma, 23(1):97-108.
9. Statler KD, Alexander H, Vagni V, Holubkov R, Dixon CE, Clark RS, Jenkins L, Kochanek PM (2006)
Isoflurane exerts neuroprotective actions at or near the time or severe traumatic brain injury. Brain Res
1076(1):216-24.
10. Statler KD (2006) Pediatric post-traumatic seizures: epidemiology, putative mechanisms of
epileptogenesis, and promising investigational progress. Dev Neurosci, 28(4-5):354-63.
11. Bratton SL, Van Duker H, Statler KD, Pulsipher M, McArthur J, Keenan HT (2007) Lower Hospital Mortality
and Complications after Pediatric Hematopoetic Stem Cell Transplantation. Crit Care 2008 36(3),923-7.
12. Statler KD, Swank S, White HS (2007) Strain and age affect electroconvulsive seizure testing in rats.
Epilepsy Res 78(2-3), 232-4.
13. Statler KD, Swank S, Abildskov T, Bigler ED, White HS (2008) Traumatic Brain Injury During Development
Reduces Minimal Clonic Seizure Thresholds At Maturity. Epilepsy Res 80(2-3):163-70.
14. Bratton SL, Van Duker H, Statler KD, Pulsipher MA, McArthur J, Keenan HTLA - eng. (2008). Lower
hospital mortality and complications after pediatric hematopoietic stem cell transplantation. Crit Care
Med, 36(3), 923-7.
15. Statler KD, Swank S, Abildskov T, Bigler ED, White HSLA - engGR - K12 HD 01410-01/HD/NICHD
NIH HHS/United States. (2008). Traumatic brain injury during development reduces minimal clonic seizure
thresholds at maturity. Epilepsy Res, 80(2-3), 163-70.
16. Meert KL, Donaldson A, Nadkarni V, Tieves KS, Schleien CL, Brilli RJ, Clark RS, Shaffner DH, Levy F,
Statler K, Dalton HJ, van der Jagt EW, Hackbarth R, Pretzlaff R, Hernan L, Dean JM, Moler FW. (2009).
Multicenter cohort study of in-hospital pediatric cardiac arrest. Pediatr Crit Care Med. (Epub ahead of print).
17. Statler KD, Scheerlinck P, Pouliot W, Hamilton M, White HS, Dudek FE. (2009). A potential model of
pediatric posttraumatic epilepsy. Epilepsy Res, (Epub ahead of print).
18. Moler FW, Meert K, Donaldson AE, Nadkarni V, Brilli RJ, Dalton HJ, Clark RS, Shaffner DH, Schleien
CL, Statler K, Tieves KS, Hackbarth R, Pretzlaff R, van der Jagt EW, Levy F, Hernan L, Silverstein FS,
Dean JM. Pediatric Emergency Care Applied Research Network (2009). In-hospital versus out-of-hospital
pediatric cardiac arrest: A multicenter cohort study. Crit Care Med, 37(7), 2259-2267.
19. Meert KL, Donaldson A, Nadkarni V, Tieves KS, Schleien CL, Brilli RJ, Clark RS, Shaffner DH, Levy F,
Statler K, Dalton HJ, van der Jagt EW, Hackbarth R, Pretzlaff R, Hernan L, Dean JM, Moler FW; for the
Pediatric Emergency Care Applied Research Network (2009). Multi-center cohort of in-hospital cardiac
arrest. Pediatr Crit Care Med, (Epub ahead of print).
EDITORIALS
1. Statler KD, Lugo RA (2004) Surveying sedation and analgesia practice in the PICU: discomforting data
raise more questions. Pediatr Crit Care Med 5(6):582-3.
2. Kochanek PM, Statler KD, Clark RSB, Jenkins L (2005) Physiological assessment and control in studies
evaluating CNS injury: should size matter? Anesth Analg 102(1):72-4.
3. Statler KD, Keenan HT (2007) How many is too many: Repeat head CT after TBI. Pediatr Crit Care Med,
8:402-3.
4. Statler KD (2008) Hypothermia to treat neonatal hypoxic ischemic encephalopathy. AAP Grand Rounds,
19(1), 3-4.
BOOKS & BOOK CHAPTERS

1. Clark RSB, Statler KD, Ruppel RA, Satchell MA, Seidberg NA, Kochanek PM. (2000) Neuroprotective
strategies for the treatment of severe traumatic brain injury: past, present, and future. In: Current Concepts
in Pediatric Critical Care. Edited by Fineman G and Giroir B. Society for Critical Care Medicine, Anaheim,
CA; pp. 69-84.
2. Kochanek PM, Hendrich KS, Statler KD, Clark RSB, Jenkins LW, Williams DS, Ho C, Marion DW.
(2002) Ischemic mechanisms in traumatic brain injury. In: Update in Intensive Care and Emergency
Medicine, Cerebral Blood Flow, Mechanisms of Ischemia, Diagnosis and Therapy. Edited by Pinsky MR.
Springer-Verlag, Berlin, Heidelberg, New York; Section II, pp 60-71.
3. Bayır H, Statler KD, Satchell MA, Ruppel RA, Clark RSB, Kochanek PM. (2003) Severe traumatic brain
injury. In: Classic Papers in Critical Care. Edited by Fink M, Hayes M, Soni N. Blandon Medical Publishing,
Oxfordshire, UK.; pp. 87-118.
4. Statler KD, van Orman C. (2008) Status Epilepticus. In: Nichols D (Ed.), Rogers Textbook of Pediatric
Intensive Care, 4 th Edition (pp. 912-28). Baltimore, MD: Lippencott, Williams, and Wilkins
C. Research Support.
1. U01HL094345 PI: Moler 09/01/2009-10/31/2010
Therapeutic Hypothermia After Cardiac Arrest (THAPCA) Trials
A mulitcenter, interventional, randomized, controlled trial of hypothermia after cardiac arrest in children. My
responsibilities including executing the trial at the University of Utah site.
Role: Site Principal Investigator.
2. K12 HD 01410 - 01 A2 PI: Clark 07/01/2004-06/30/2007
NICHD Child Health Research Career Development Award
A K12 training award administrated by the University of Utah, Department of Pediatrics to support research
development in young faculty. My responsibilities include establishing a model of pediatric traumatic brain
injury and evaluating the influence of developmental age on outcome and the susceptibility to posttraumatic
seizures.
Role: Trainee.
3. Primary Children’s Medical Center Foundation. 07/01/2005–06/30/2008.
Age, Traumatic Brain Injury, and Seizure Thresholds.
This project uses a translational model of pediatric traumatic brain injury to investigate the effects of
developmental age and rat strain on the propensity for post-traumatic seizures and to correlate histological
damage with post-traumatic changes in seizure thresholds.
Role: Principal Investigator.
4. R21 HD044955-01 PI: Moler 07/01/2003-06/30/2005
NICHD Hypothermia For Pediatric Cardiac Arrest Planning Grant.
A multi-center project, based at the University of Michigan, investigating the epidemiology of cardiac arrest
in children and assessing the feasibility of an interventional trial of hypothermia for pediatric cardiac arrest.
My responsibilities include overseeing data collection at the University of Utah and submission to the
central data coordination center.
Role: Site Principal Investigator.
5. The Laerdal Foundation for Acute Medicine. 01/01/2000-12/31/2001
MRI Assessment of Cerebral Blood Flow After Traumatic Brain Injury in Rats: Isoflurane vs. Fentanyl.
This project investigated mechanisms of neuroprotection afforded by isoflurane vs fentanyl anesthesia.
Role: Principal Investigator.
6. University of Pittsburgh School of Medicine, Dept of Anesthesiology 01/01/2000-06/30/2002
Evaluating potential neuroprotective actions of isoflurane vs fentanyl after traumatic brain injury.
This project compared outcomes in a translational model of traumatic brain injury using isoflurane or
fentanyl anesthesia and investigated how these anesthetics affect secondary cerebral injury cascades.
Role: Principal Investigator.
D. Board Certifications
American Board of Pediatrics (Pediatrics), Certified, 1998
American Board of Pediatrics (Pediatrics), Re-certified 2005
American Board of Pediatrics (Sub: Critical Care Med), Certified, 2002

F. Invited Presentations
International
2002 Stabilization and Treatment of the Pediatric Patient with Shock. Second Annual Symposium on
Advances in Pediatric Care, Hospital Regional de Loreto, Iquitos, Peru
2005 Early Recognition and Treatment of Pediatric Shock, Mandalay General Hospital, Mandalay,
Myanmar
2007 Pediatric Respiratory Failure: A Practical Approach, 1 st Annual Pediatric Update Conference,
Komofo Anokye Teaching Hospital, Kumasi, Ghana
2007 Arterial Blood Gas Interpretation, Pediatric House Staff Morning Teaching Conference, Komofo
Anokye Teaching Hospital, Kumasi, Ghana
National
2001 Circulatory Compromise in Children. EMMCO West 16th Annual EMS Conference, Sharon,
Pennsylvania
2006 Does Sedation Alter Outcomes in TBI? 16 th Pediatric Critical Care Colloquium, Snowbird, Utah
Local/Regional
2001 Anesthetics in Head Injury. Pediatric Trauma Conference, Children's Hospital of Pittsburgh,
Pittsburgh, Pennsylvania
2001 Protective Effects of Anesthetics in Traumatic Brain Injury. Safar Center for Resuscitation
Research, University of Pittsburgh, Pittsburgh, Pennsylvania
2002 Sepsis and the Coagulation System. PICU Nursing Education: Advanced Metabolic Module,
Primary Children's Medical Center, Salt Lake City, Utah
2002 Hydrocortisone as a Vasopressor? PICU Nursing Education: Advanced Respiratory Module,
Primary Children's Medical Center, Salt Lake City, Utah
2003 Anesthetics and Sedative in Traumatic Brain Injury. Intermountain Injury Control Research
Center, Salt Lake City, Utah
2003 Management of Severe Pediatric Traumatic Brain Injury: Update of the Treatment Protocol for
Increased Intracranial Pressure based on the Current National Guidelines. PICU Nursing
Education: Neurotrauma Module, Primary Children's Medical Center, Salt Lake City, Utah
2004 Diffuse Axonal Injury. 2nd Annual Intermountain Trauma Network, Salt Lake City, Utah
2004 Diffuse Axonal Injury. 5th Annual Trauma Update Workshop, Primary Children's Medical Center,
Salt Lake City, Utah
2004 Glucose and Traumatic Brain Injury: What's the Connection. 5th Annual Trauma Update
Workshop, Primary Children's Medical Center, Salt Lake City, Utah
2007 Prompt Recognition and Early Goal Directed Therapy Improve Outcomes in Children with Septic
Shock (March), Primary Children’s Medical Center Grand Rounds, Salt Lake City, Utah
E. Reviewer Experience
Referee: Acta Biochimica et Biophysica Sinica
Referee: Brain
Referee: Critical Care Medicine
Referee: Developmental Neuroscience
Referee: Experimental Neurology
Referee: Gene Regulation and System Biology
Referee: Pediatric Critical Care Medicine
Referee: Pharmacology Research
Abstract Reviewer: Society of Critical Care Medicine 34th Critical Care Congress
Abstract Reviewer: Society of Critical Care Medicine 35th Critical Care Congress
Abstract Reviewer: Society of Critical Care Medicine 36th Critical Care Congress
Abstract Reviewer: Society of Critical Care Medicine 37th Critical Care Congress
Abstract Reviewer: Society of Critical Care Medicine 38th Critical Care Congress
Abstract Reviewer: 22nd International Symposium on Cerebral Blood Flow, Metabolism, and
Function (Brain ’05)
Abstract Reviewer: 23rd International Symposium on Cerebral Blood Flow, Metabolism, and
Function (Brain ’07)

Sarah Jane Brain Family State Lead Center of Excellence
For the state of
Vermont
The Vermont Center for Children, Youth and Families at the University of
www.med.uvm.edu
REGION: Northeast CATEGORY OF CARE: Mild TBI
Program Director: James Hudziak, MD Position Title: Professor
Department: Department of Pediatrics
Address: 1 S. Prospect Street, North Burlington, VT 05401
Phone: 802‐656‐1084
Email: James.Hudziak@uvm.edu
Level 1 Center(s): Burlington (Fletcher Allen Health Care)
Level 2 Center(s): Rutland (Rutland Regional Medical Center), Brattleboro (Brattleboro Memorial
Medical Center)
Level 3 Center(s): St. Johnsbury (Northeastern Vermont Regional Hospital), Berlin (Central Vermont
Medical Center)
Number of jobs PABI Grant creates in Vermont: 84
Budget Overview for State Lead Center
State Lead Center Management Sub‐total: $ 6,844,564
Category of Care Management Sub‐total: $ 2,219,336
Case Management Sub‐total: $ 2,624,574
State Lead Center Sub‐total: $ 11,720,474
Indirect Cost to Institution (20%): $ 2,344,095
Administrative Cost to SJBF (2%): $ 234,409
SUB‐TOTAL AMOUNT OF GRANT PROPOSAL: $ 14,298,978

The Vermont Center for Children, Youth and Families at the University of Profile continued
Title/Description Sub‐total Amount for Grant
STATE LEAD CENTER MANAGEMENT
Program Director: $ 339,474
Program Director Assistant: $ 111,101
State Director: $ 370,335
Associate State Director: $ 160,479
State Epidemiologist: $ 246,890
State Epidemiologist Assistant: $ 111,101
State Scientific Investigation Research Coordinator: $ 209,857
State Scientific Investigation Research Assistant: $ 209,857
State Education/Training Coordinator (plus materials): $ 224,540
State General Counsel: $ 296,268
State IT Manager: $ 234,546
State Family Support Coordinator: $ 185,168
State Prevention/Awareness Coordinator: $ 185,168
State Acute Care Coordinator: $ 185,168
State Reintegration Coordinator: $ 185,168
State Adult Transition Coordinator: $ 185,168
State Mild TBI Coordinator: $ 185,168
State Mental Health Coordinator: $ 160,479
State Assistive/Emerging Technology Coordinator: $ 160,479
State Correctional System Coordinator: $ 160,479
State MISC Coordinator: $ 160,479
State Veterans Coordinator: $ 160,479
State Data Manager: $ 160,479
State Public Policy Manager: $ 185,168
State Community Relations Manager: $ 160,479
State Administrative Support: $ 666,603
Charity care: $ 350,000
Human Resources Support: $ 84,000
Training Support: $ 21,000
State Lead Center Office Space Cost: $ 336,350
State Lead Center Transportation/Travel: $ 113,400
State Lead Center Office Equipment/Communications: $ 197,500
State Lead Center Supplies: $ 108,500
Annual and Regional Conferences: $ 32,000
State Brain Injury Association Pediatric Programs: $ 100,000
STATE LEAD CENTER MANAGEMENT SUB‐TOTAL: $ 6,844,564

The Vermont Center for Children, Youth and Families at the University of Profile continued
Title/Description Sub‐total Amount for Grant
CATEGORY OF CARE RESPONSIBILITY: Mild TBI
Regional Category Director: $ 370,335
Regional Category Epidemiologist: $ 296,268
Regional Category Education/Training Coordinator: $ 246,890
Regional Category Scientific Investigation Research: $ 246,890
Regional Category Administrative Support: $ 444,402
Regional Category Office Space Cost: $ 97,650
Regional Category Transportation/Travel: $ 157,500
Regional Category Office Equipment/Communications: $ 27,900
Regional Category Supplies: $ 31,500
CATEGORY OF CARE SUB‐TOTAL: $ 2,219,336

The Vermont Center for Children, Youth and Families at the University of Profile continued
Title/Description Sub‐total Amount for Grant
CASE MANAGEMENT RESPONSIBILITY
Level 1 Center Manager(s): $ 176,350
Level 1 Center Field Specialist(s): $ 141,080
Level 1 Center SJB Family Specialist(s): $ 962,871
Level 1 Center Administrative Support: $ 158,715
Level 1 Office Space Cost: $ 52,500
Level 1 Transportation/Travel: $ 27,900
Level 1 Office Equipment/Communications: $ 33,800
Level 1 Supplies: $ 60,000
Level 2 Center Field Specialist(s): $ 169,296
Level 2 Center SJB Family Specialist(s): $ 550,212
Level 2 Transportation/Travel: $ 15,840
Level 2 Office Equipment/Communications: $ 26,600
Level 2 Supplies: $ 21,000
Level 3 Center SJB Family Specialist(s): $ 206,330
Level 3 Transportation/Travel: $ 4,680
Level 3 Office Equipment/Communications: $ 11,400
Level 3 Supplies: $ 6,000
CASE MANAGEMENT SUB‐TOTAL: $ 2,624,574
STATE LEAD CENTER SUB‐TOTAL: $ 11,720,474
INDIRECT COST TO INSTITUTION: $ 2,344,095
ADMINISTRATIVE FEE TO SJBF: $ 234,409
STATE LEAD CENTER SUB‐TOTAL: $ 14,298,978
TOTAL JOBS CREATED IN Vermont: 84

NAME
James Hudziak, M.D.
eRA COMMONS USER NAME
jhudziak
BIOGRAPHICAL SKETCH
Provide the following information for the key personnel and other significant contributors.
Follow this format for each person. DO NOT EXCEED FOUR PAGES.
POSITION TITLE
Professor
EDUCATION/TRAINING (Begin with baccalaureate or other initial professional education, such as nursing, and include postdoctoral training.)
INSTITUTION AND LOCATION
DEGREE
(if applicable)
YEAR(s) FIELD OF STUDY
St. John’s University, Collegeville, MN B.S. 1979 Natural Science
University of Minnesota, Minneapolis, MN M.D. 1988 Medicine
Washington University, St. Louis, MO Resident 89-91 Psychiatry
Washington University, St. Louis, MO Fellow 91-93 Child Psychiatry
Positions and Employment
1993-Present Graduate Medical Faculty, University of Vermont Graduate School, Burlington, VT
1996-Present Adjunct Professor of Psychiatry, Dartmouth Medical School, Hanover, NH
1997-Present Director, Division of Behavioral Genetics, University of Vermont, Burlington, VT
2000-Present Cttee., Scientific Advisory Panel, Dept. of Health on Tobacco Related Issues, Burlington, VT.
2005-Present Director, Child Psychiatry, Department of Psychiatry, University of Vermont, College of
Medicine, Burlington, VT
2005-Present Professor; Endowed Chair on Genetics of Childhood Behaviour Problems, Biological
Psychology, Vrije Universiteit, Amsterdam, The Netherlands
2005-Present Professor of Medicine, Department of Medicine, University of Vermont, College of Medicine
(Human Medical Genetics), Burlington, VT
2005-Present Professor of Child Psychiatry, Department of Psychiatry, University of Vermont, College of
Medicine, and Fletcher Allen Health Care, Burlington, VT
2006-Present Prof. of Pediatrics, Department of Pediatrics, University of Vermont, College of Medicine,
Burlington, VT
2007-Present Thomas M. Achenbach Chair in Developmental Psychopathology
2009-2010 Lecturer, Erasmus University, Sophia Children's Hospital, Rotterdam The Netherlands.
Other Experience and Professional Experience
1990-1993 DSM-IV Tasks Force, (Appointed as APA/Burroughs-Wellcome Fellow).
1996-2003 Curriculum Task Force Committee, Dean’s Office, University of Vermont, College of Medicine
2002-2004 Institute Of Medicine Committee on Incorporating Research into Psychiatry Residency
Training, Washington DC
2004-2005 Co-Chair, Developing Collaborative Genetics Research Network, NIMH Pediatric Bipolar
Conf.
2004-2005 Vice-President Elect, Officers of The American Psychopathological Association, NYC, NY.
2005-2007 President Elect, Officers of the American Psychopathological Association, NYC, NY.
2003-2007 NIMH Child Psychopathology and Developmental Disabilities Study Section, Center for
Scientific Review, Bethesda, Maryland.
2003-Present Corresponding Committee on Research Training, American Psychiatric Association.
2004-Present Science Foundation Ireland, SFI Investigator Programme invited grant application reviewer,
International Scientific Committee, Dublin, Ireland.
2004-Present Strategic Planning Task Force, University of Vermont, College of Medicine, Burlington, VT.
2004-Present Steering Committee MD-PHD Program, University of Vermont, College of Medicine.
2004-Present Residency Review Committee for Psychiatry, at the American Psychiatric Association,
Arlington, VA.
2004-Present The Foundation Sophia Children’s Hospital Fund, Scientific Advisory Council, Rotterdam.
2005-Present Reviewer for NIDA/NIMH Clinical Trials Network Data Safety Monitoring Board.

2006-Present Chairman of the Child and Adolescent Bipolar Foundation, Wilmette, IL.
2007-Present Associate Editor, Journal of the American Academy of Child & Adolescent Psychiatry,
Washington, DC
2009-Present Vice Chair of ACGME RRC for Psychiatry and Neurology, American Psychiatric Association,
Arlington, VA.
Honors
A.PA./Burroughs-Wellcome (FALK) Fellowship, 1990-92.
The Best Doctors in America, Woodward/White, Inc. 1998 to present.
Marquis Who's Who in Medicine and Healthcare 2004-present
J. Macy Foundation, The Future of Psychiatry in Medical Education, Toronto, Canada, 2001.
Residents Teacher of the Year Award, University of Vermont, College of Medicine, Burlington, VT 2002.
Institute Of Medicine Com. on Incorporating Research into Psychiatry Residency Training, 2002-2003
Class of 2008, 2009, 2010 Foundations Awards; The Silver Stethoscope Award 2006, 2007, 2008.
Genetic and Environmental Influences on Child Psychopathology and Wellness, UCLA Greenblatt
Professorship Lecture, Los Angeles, CA, April 2007.
Translating Lessons from Genomics and Neuroscience into the Assessment and Treatment of Child
Psychopathology. Eli Robins Lecture, Washington University School of Medicine, St. Louis, MO, 2006.
Selected peer-reviewed publications (in chronological order)
Hudziak JJ, Copeland W, Stanger C, Wadsworth M: Screening for DSM-IV Externalizing Disorders with the
Child Behavior Checklist: A Receiver-Operating characteristic analysis. J Child Psychol Psychiatry & Allied
Discipline, 2004. 45(7):1299-307.
Hudziak JJ, Derks EM, Althoff RR, Copeland W, Boomsma DI: The Genetic and Environmental Contributions
to Oppositional Defiant Disorder: A Multi-Informant Twin Study. J Am Acad Child Adolesc Psych, 2005,
44(9):907-914.
Hudziak JJ, Derks EM, Althoff RR, Rettew DC, Boomsma DI: The Genetic and Environmental Contributions
to Attention Deficit Hyperactivity Disorder as Measured by the Conners’ Rating Scales-Revised. Am J
Psychiatry, 2005 162(9):1614-1620.
Althoff RR, Farone SV, Rettew DC, Morley CP, Hudziak JJ: Family, Twin, Adoption, and Molecular Genetic
Studies of Juvenile Bipolar Disorder, Bipolar Disord, 2005: 7; 598-609.
Faraone SV, Althoff RR, Biederman J, Hudziak JJ: The CBCL Predicts DSM Bipolar Disorder in Children: a
receiver operating characteristic curve analysis. Bipolar Disord, 2005: 7; 518-524.
Hudziak JJ, Althoff RR, Derks EM, Faraone SV, Boomsma DI: Prevalence and genetic architecture of Child
Behavior Checklist-juvenile bipolar disorder. Biol Psychiatry, Oct 2005, 562-568.
Hudziak JJ, Althoff RR, Stanger C, van Beisterveldt CEM, Nelson EC, Hanna GL, Boomsma DI, Todd RD:
The Obsessive Compulsive Scale of the Child Behavior Checklist Predicts Obsessive-Compulsive Disorder:
A Receiver Operating Characteristic Curve Analysis. J Child Psychol Psych 2006: 47(2): 160-166.
Derks EM, Hudziak JJ, Dolan CV, Ferdinand RF, Boomsma DI: The relations between DISC-IV DSMinterview
diagnoses of ADHD and multi-informant CBCL-AP syndrome scores, Comp Psychiatry 2006: 47:
116-122.
Rettew DC, Vink J, Willemsen G, Doyle A, Hudziak JJ, Boomsma DI: The Genetic Architecture of
Neuroticism in 3301 Dutch Adolescent Twins as a Function of Age and Sex: A study from the Dutch Twin
Register. Twin Res Hum Genet, 2006: 9(1); 24-29.
Althoff, RR, Copeland, WE, Stanger, C, Derks, EM, Todd, RD, Neuman, RJ, Van Beijsterveldt, CEM,
Boomsma, DI, Hudziak, JJ: The Latent Class Structure of ADHD is Stable Across Informants, Twin Res
Hum Genet, 2006, 9(4), 507-522.
Rettew DC, McKee L, Doyle A, Stanger C, Hudziak JJ: Interactions between child and parent temperament
and child behavior problems. Comp Psych, 2006, 47(5), 412-420.
Rettew DC, Doyle A, Kwan M, Stanger C, Hudziak JJ: Exploring the boundary between temperament and
generalized anxiety disorder: a receiver operating characteristic analysis. J Anx Dis, 2006, 20(7), 931-945.
Althoff, RR, Rettew, DC, Faraone, SV, Boomsma, DI, Hudziak, JJ: Latent Class Analysis Shows Strong
Heritability of the Child Behavior Checklist-Juvenile Bipolar Phenotype. Biol Psychiatry, 2006, 60:903-911.
Bartels, M, Hudziak, JJ. Genetically Informative Designs in the Study of Resilience in Developmental
Psychopathology, Child Adolesc Psychiatric Clin N Am, 2007, 16:323–339.

Bartels, M, Hudziak, JJ, Derks, EM, van Beijsterveldt, CEM, Stroet, TM, Polderman, TJC, and Boomsma, DI.
Young – Netherlands Twin Register (Y-NTR); A Longitudinal Multiple Informant Study of Problem Behavior
Twin Res & Hum Genet, 2007, 10(1):3-11.
Polderman TJ, Derks EM, Hudziak JJ, Verhulst FC, Posthuma D, Boomsma DI. Across the continuum of
attention skills: a twin study of the SWAN ADHD rating scale. J Child Psychol Psychiatry. 2007 48(11):1080-7.
Hudziak, JJ, Achenbach, TM, Althoff, RR, Pine, DS. A dimensional approach to developmental
psychopathology. Int. J. Methods Psychiatr. Res, 2007, 16(SI): S16-S23.
Lehn H, Derks EM, Hudziak JJ, Heutink P, van Beijsterveldt TC, Boomsma DI. Attention Problems and
Attention Deficit Hyperactivity Disorder in Discordant and Concordant MZ twins: Evidence of Environmental
Mediators. J Am Acad Child Adolesc Psychiatry, 2007, 46(1):83-91.
Derks, EM, Dolan, CV, Hudziak, JJ, Neale, MC, Boomsma, DI. Assessment and Etiology of Attention Deficit
Hyperactivity Disorder and Oppositional Defiant Disorder in Boys and Girls. Behav Genet, 2007, 37:559–
566. PMCID: PMC1914288
Derks EM, Hudziak JJ , Boomsma DI. Why More Boys Than Girls With ADHD Receive Treatment: A Study of
Dutch Twins. Twin Research and Human Genetics, 2007 10(5):765-770.
Hoekstra RA, Bartels M, Hudziak JJ, Van Beijsterveldt TC, Boomsma DI. Genetic and environmental
covariation between autistic traits and behavioral problems. Twin Res Hum Genet. 2007 Dec;10(6):853-60.
PMID: 18179398
Rettew DC, Althoff RR, Dumenci L, Ayer L, Hudziak JJ. Latent Profiles of Temperament and Their Relations
to Psychopathology and Wellness, J Am Acad Child Adolesc Psychiatry. 2008 Jan 22; [Epub ahead of print]
Rettew DC, Rebollo-Mesa I, Hudziak JJ, Willemsen G, Boomsma DI. Non-additive and Additive Genetic
Effects on Extraversion in 3314 Dutch Adolescent Twins and Their Parents. Behav Genet, 2008 Feb 1;
(Epub ahead of print)
Bartels M, Cacioppo JT, Hudziak JJ, Boomsma DI. Genetic and environmental contributions to stability in
loneliness throughout childhood. Am J Med Genet B Neuropsychiatr Genet 2008 Oct 4; 147B:385-391.
PMCID: PMC2226020
Martin A, Hudziak J, Todd R, Faraone S, Lebenluft E, Piacenti J, Walkup J. JAACAP 2007-00245: Conflict of
Interest (Editorial) AND JAACAP 2007-00027. J Am Acad Child Adolesc Psychiatry, 2008, 47(2):119-20.
Hudziak JJ, Bartels M. Genetic and Environmental Influences on Wellness, Resilience, and
Psychopathology: A Family Based Approach for Promotion, Prevention, and Intervention, American
Psychiatric Publishing Inc, Developmental Psychopathology and Wellness: Genetic and Environmental
Influences, Editor, JJ Hudizak, 2008 pages 267-286.
Boomsma DI, van Beijsterveldt CEM, Bartels M, Hudziak JJ. Genetic and Environmental Influence on
Anxious/Depression: A longitudinal study in 3 to 12 year old children, American Psychiatric Publishing Inc.,
Developmental Psychopathology and Wellness: Genetic and Environmental Influences, Editor, JJ Hudizak,
2008, pages 161-190.
Hudziak JJ, Achenbach TA, Althoff RR, Pine DS. A Dimensional Approach to Developmental
Psychopathology. American Psychiatric Association. Dimensional Approaches in Diagnostic Classification
Refining the Research Agenda for DSM-V. Edited by, JE Helzer, HC Kraemer, RF Krueger, HU Wittchen,
RJ Sirovatka, DA Regier. 2008 pages 101-114.
Hoekstra R, Bartels M, van Beijsterveldt T, Hudziak JJ, Boomsma DI. Genetic and Environmental Influences
on the Stability of Withdrawn Behavior in Children: A Longitudinal, Multi-informant Twin Study, Behavior
Genetics, 2008, 38(5):447-461.
Horner, MS, Miller S, Rettew DC, Althoff R, Ehmann M, Hudziak JJ, Martin A. Mentoring Increases
Connectedness and Knowledge: A Cross-Sectional Evaluation of Two Programs in Child and Adolescent
Psychiatry. Academic Psychiatry, 32(5):420-428.
Bartels M, Boomsma DI, Hudziak JJ, van Beijsterveldt TC, van den Oord EJ. Twins and the study of rater
(dis)agreement. Psychol Methos, 2007, Dec. 12(4):451-66.
Abdellaoui A, Bartels M, Hudziak JJ, Rizzu P, van Beijsterveldt TCEM, Boomsma DI. Genetic Influences on
Thought Problems in 7-Year-Olds: A Twin-Study of Genetic, Environmental and Rater Effects. Twin Research
and Human Genetics, 2008, 11(6): 571–578.
Ehli EA, Lengyel-Nelson T, Hudziak JJ, and Davies GE. Using a commercially available DNA extraction kit to
obtain high quality human genomic DNA suitable for PCR and genotyping from 11-year-old saliva saturated
cotton spit wads. BMC Research Notes, 1:133, 2008. PMCID: PMC2628920

Abdellaoui A, Bartels M, Hudziak JJ, Rizzu P, van Beijsterveldt TCEM, Boomsma DI. Genetic Influences on
Thought Problems in 7-Year-Olds: A Twin-Study of Genetic, Environmental and Rater Effects. Twin
Research and Human Genetics, 2008, 11(6): 571–578.
van ’t Ent D, van Beijsterveldt FCEM, Derks EM, Hudziak JJ, Veltman DJ, Todd R, Boomsma DI, de Geus
EJC, Neuroimaging of response interference in twins concordant or discordant for inattention and
hyperactivity symptoms. In press, Neuroscience.
Ayer L, Althoff R, Ivanova M, Rettew D, Waxler E, Sulman J, & Hudziak J. Child behavior checklist-juvenile
bipolar disorder (CBCL-JBD) and CBCL posttraumatic stress problems (CBCL-PTSP) scales are measures of
a single dysregulatory syndrome. In press. J Child Psychol Psychiatr.
C. Ongoing Research Support
P116Z080329-01 10/1/08-09/30/2010
U.S. Department of Education; “Initiation of a Child and Adolescent Psychiatry Fellowship Program in
Vermont”
Completed Research Support in the last 3 years
MH 01-012 Todd (PI) Role: Co-Investigator 2002-2005
NIMH Collaborative; ADHD: Genetic Epidemiology and Brain Structure.
R56MH0587996 Role: (PI) 8/1/00 – 7/31/05
NIMH Collaborative; “Renewal of Developmental Twin Study of Attention, Aggression & Affect”
2R56MH0587996 Role: (PI) 2007 – 2008
NIMH Collaborative; “Renewal of Developmental Twin Study of Attention, Aggression & Affect”
DTNH22-04-H-01425 (Role PI) 4/15/07-4/15/08
This project will build on an existing infrastructure of the VT Child Health Improvement Program through the
use of Telemedicine and online education.
03420-5145 State of Vermont (Role PI) 9/1/08 – 6/30/09
Increase the availability of child tele-psychiatry consultation services for Vermont primary care providers.
Research Grant (Role PI) 4/15/07-4/15/08
Office of Vermont Health Access - Vermont Child Initiative Program - Collaborative project between The
Office of Vermont Health Access and the Department of Developmental Disabilities and Mental Health
Services with Fletcher Allen (UVM) and the Dartmouth-Hitchcock Medical Centers.
Klingenstein Third Generation Foundation (Role PI) 7/1/07 – 6/30/09
“Donald J. Cohen Medical Student Training Program” - To create mentoring relationships between medical
students & child psychiatrists, 2) teach empirically-based & family-centered assessment, 3) encourage
students to consider careers in child & adolescent psychiatry.
Klingenstein Third Generation Foundation (Role Mentor) 7/1/07 – /30/09
“Epigenetic factors associated with Attention Deficit/Hyperactivity Disorder” - We predict that an MZ twin who
suffers from ADHD will have a different pattern of whole genome methylation than his or her co-twin who does
not have the disorder.
2R56MH058799 Role: (PI) 2008 – 2009
NIMH Collaborative; “Renewal of Developmental Twin Study of Attention, Aggression & Affect” - Using data
from multiple informants, obtained at multiple time points with multiple assessments techniques to identify
heritable phenotypes for future gene-mapping studies of ADHD and related behaviors.
K08 MH069562 Role: (Mentor) 12/1/03 – 11/30/08
NIMH Collaborative; “Temperament and Developmental Psychopathology” - This application focuses on the
incorporation of temperamental assessment and behavioral genetic approaches to provide refined
phenotypes for future research in molecular genetics and early intervention.

Sarah Jane Brain Family State Lead Center of Excellence
For the state of
Virginia
UVA Children's Hospital and Kluge's Children's Rehabilitation Center
www.virginia.edu
REGION: Mid‐Atlantic CATEGORY OF CARE: Virtual SJB Center
Program Director: Peter Patrick, Ph.D. Position Title: Associate Professor
Department: Department of Clinical Pediatrics
Address: 2270 Ivy Road, University, VA 22903
Phone: 434‐924‐5411
Email: pdp2n@virginia.edu
Level 1 Center(s): Charlottesville, Hampton Roads
Level 2 Center(s): Roanoke, Fairfax, Richmond, NE Virginia, Southcentral Virginia
Level 3 Center(s): Rural southern Virginia, Shenandoah Valley
Number of jobs PABI Grant creates in Virginia: 119
Budget Overview for State Lead Center
State Lead Center Management Sub‐total: $ 6,593,644
Category of Care Management Sub‐total: $ 1,947,400
Case Management Sub‐total: $ 5,103,701
State Lead Center Sub‐total: $ 13,676,746
Indirect Cost to Institution (20%): $ 2,735,349
Administrative Cost to SJBF (2%): $ 273,535
SUB‐TOTAL AMOUNT OF GRANT PROPOSAL: $ 16,685,630

UVA Children's Hospital and Kluge's Children's Rehabilitation Center Profile continued
Title/Description Sub‐total Amount for Grant
STATE LEAD CENTER MANAGEMENT
Program Director: $ 104,619
Program Director Assistant: $ 105,923
State Director: $ 353,076
Associate State Director: $ 152,999
State Epidemiologist: $ 235,384
State Epidemiologist Assistant: $ 105,923
State Scientific Investigation Research Coordinator: $ 200,076
State Scientific Investigation Research Assistant: $ 200,076
State Education/Training Coordinator (plus materials): $ 383,701
State General Counsel: $ 282,461
State IT Manager: $ 223,615
State Family Support Coordinator: $ 176,538
State Prevention/Awareness Coordinator: $ 176,538
State Acute Care Coordinator: $ 176,538
State Reintegration Coordinator: $ 176,538
State Adult Transition Coordinator: $ 176,538
State Mild TBI Coordinator: $ 176,538
State Mental Health Coordinator: $ 152,999
State Assistive/Emerging Technology Coordinator: $ 152,999
State Correctional System Coordinator: $ 152,999
State MISC Coordinator: $ 152,999
State Veterans Coordinator: $ 152,999
State Data Manager: $ 152,999
State Public Policy Manager: $ 176,538
State Community Relations Manager: $ 152,999
State Administrative Support: $ 635,536
Charity care: $ 354,360
Human Resources Support: $ 119,000
Training Support: $ 29,750
State Lead Center Office Space Cost: $ 340540
State Lead Center Transportation/Travel: $ 113,400
State Lead Center Office Equipment/Communications: $ 197,500
State Lead Center Supplies: $ 109,852
Annual and Regional Conferences: $ 32,000
State Brain Injury Association Pediatric Programs: $ 101,246
STATE LEAD CENTER MANAGEMENT SUB‐TOTAL: $ 6,593,644

UVA Children's Hospital and Kluge's Children's Rehabilitation Center Profile continued
Title/Description Sub‐total Amount for Grant
CATEGORY OF CARE RESPONSIBILITY: Virtual SJB Center
Regional Category Director: $ 353,076
Regional Category Epidemiologist: $ 282,461
Regional Category Education/Training Coordinator: $ 235,384
Regional Category Scientific Investigation Research: $ 235,384
Regional Business Development Manager: $ 235,384
Regional Category Administrative Support: $ 423,691
Regional Category Office Space Cost: $ 98,867
Regional Category Transportation/Travel: $ 157,500
Regional Category Office Equipment/Communications: $ 27,900
Regional Category Supplies: $ 31,892
CATEGORY OF CARE SUB‐TOTAL: $ 1,947,400

UVA Children's Hospital and Kluge's Children's Rehabilitation Center Profile continued
Title/Description Sub‐total Amount for Grant
CASE MANAGEMENT RESPONSIBILITY
Level 1 Center Manager(s): $ 336,263
Level 1 Center Field Specialist(s): $ 269,010
Level 1 Center SJB Family Specialist(s): $ 1,835,994
Level 1 Center Administrative Support: $ 302,636
Level 1 Office Space Cost: $ 53,154
Level 1 Transportation/Travel: $ 55,800
Level 1 Office Equipment/Communications: $ 61,600
Level 1 Supplies: $ 96,183
Level 2 Center Field Specialist(s): $ 403,515
Level 2 Center SJB Family Specialist(s): $ 1,311,424
Level 2 Transportation/Travel: $ 39,600
Level 2 Office Equipment/Communications: $ 66,500
Level 2 Supplies: $ 53,154
Level 3 Center SJB Family Specialist(s): $ 196,714
Level 3 Transportation/Travel: $ 4,680
Level 3 Office Equipment/Communications: $ 11,400
Level 3 Supplies: $ 6,075
CASE MANAGEMENT SUB‐TOTAL: $ 5,103,701
STATE LEAD CENTER SUB‐TOTAL: $ 13,676,746
INDIRECT COST TO INSTITUTION: $ 2,735,349
ADMINISTRATIVE FEE TO SJBF: $ 273,535
STATE LEAD CENTER SUB‐TOTAL: $ 16,685,630
TOTAL JOBS CREATED IN Virginia: 119

BIOGRAPHICAL SKETCH
Provide the following information for the key personnel and other significant contributors in the order listed on Form Page 2.
Follow this format for each person. DO NOT EXCEED FOUR PAGES.
NAME
PATRICK, Peter D.
eRA COMMONS USER NAME
POSITION TITLE
Associate Professor of Clinical Pediatrics
Director of Pediatric Psychology for Children's Med
Center, Kluge Children's Rehabilitation Center
EDUCATION/TRAINING (Begin with baccalaureate or other initial professional education, such as nursing, and include postdoctoral training.)
INSTITUTION AND LOCATION
DEGREE
(if applicable)
YEAR(s) FIELD OF STUDY
Alfred University, Alfred, NY BA 1968 Psychology
Alfred University, Alfred, NY MA 1970 School Psychology
University of Detroit, Detroit, MI PhD 1974 Clinical Psychology
Fairleigh Dickinson University
Post Doc
Masters
2004 Psychopharmacology
A. Positions and Honors.
RESEARCH AND PROFESSIONAL EXPERIENCE
1971-1972 Lafayette Clinic, Detroit, MI
1972-1973 Harbor Light Treatment Center, Detroit, MI
1972-1974 Wake Psychology Clinic, Royal Oak, MI
1973-1974 Henry Ford Hospital, Detroit, MI
1974-1977 Washington Hospital Center, Washington, DC
1977-1980 Group Practice, Glick, Kreuz and Gardner, Washington, DC
1980-1982 Group Practice, Chesapeake Health Resources, Washington, DC
1982-1987 Private Practice, Northern Virginia Neuropsychology Center
1988-1997 Program Director, Learning Services Mid-Atlantic, Manassas, VA
1997-1998 President and Psychologist, NeuroPsych. HealthCare, Inc., Fairfax, VA
Present Director of Pediatric Psychology , Associate Professor of Clinical Pediatrics, University of Virginia,
Children’s Hospital, Charlottesville, VA
PROFESSIONAL ACTIVITIES
2003-2004 Member of the Board of Governors International Brain Injury Association
2002-2003 Member CDC task force on “Surveillance, detection and diagnosis of mild traumatic brain injury in
America,” Chair: Victor Coronado, M.D. Currently completing draft report to Congress that will be
submitted Summer 2002
2000-2002 Chair, Scientific Advisory Board, National Brain Injury Research and Training Organization
2000-2001 Member, Taskforce on Mental Health, Department of Education, City of Waynesboro
1999-2001 Reviewer, Irving and Felecia Rubin Family Grant. Private grantor for research in brain injury
1999-2000 Chairman: International Task Force on Guidelines and Standards of Care for Children and
Adolescents following Acquired Brain Injury
1999 Paper Presentation 3rd World Congress on Traumatic Brain Injury, Quebec Canada June 12-17,
1999, Evaluation and Treatment of Minimally Conscious Children
1999 Member: Task Force of the Brain Injury Association to Address Issues Affecting Children and
Adolescents after Brain Injury, November 30, 1999
1999 Co-Chair of the international task force for review of Quality of Life Measures in Children With
Traumatic Brain Injury: Invited Conference: University of Colon, Colon Germany September 31-
Oct 3rd Colon Germany (Proceedings to be published in the Journal of Reconstructive
Neurosurgery, 2000)
1995-1998 Past Vice Chairman, Mid-Atlantic Brain Injury Consortium, Northern Virginia
1985-1992 Chairman of Virginia Brain Injury Council, Department of Rehabilitation
1986-1989 President of Virginia Brain Injury Association
1984-1985 Chairman, Task Force for the Study of Head Injury, Commonwealth of Virginia

B. Selected peer-reviewed publications (in chronological order).
1. Patrick P, Patrick S., Duncan E., “Neuropsychological Recovery of Children and Adolescents Following
Traumatic Brain Injury” In Brain Injury Treatment: Theories and Practice, Ed. Carrion, JL, Zitnay, G., Von
Weld, C., 2006, Pp.401-440, Taylor & Francis, 279 Madison Ave., New York
2. Patrick P, Mabry J., Buck M, Gurka M, Blackman J. "Dopamine agonist therapy in low response children
following traumatic brain injury Accepted for publication, September 2005,Child Neurology 2006
3. Oria RB., Patrick P, Zhang H, et al. APOE4 Protects the Cognitive Development in Children with Heavy
Diarrhea Burdens in Northeast Brazil. Pediatric Research 2005.
4. Patrick P, Oria RB., Madhavan V, et al. Limitations in Verbal Fluency Following Heavy Burdens of Early
Childhood Diarrhea in Brazilian Shantytown Children. Child Neuropsychology 2005;11(2).
5. Blackman, J A, Patrick, PD, Buck, ML, Rust, RS “ Paroxismal Autonomic Instability with Distonia”, Arch
Neurol. 2004, 61: 321-328
6. Patrick, P.D., Buck, M., Conaway, M., Blackman, J.: “Use of dopamine enhancing medications with
children in low response states following brain injury,” Brain Injury, 17(6):1-10, 2003
7. Ravens-Sieberer, U., Patrick, P.D., “Quality of life in children with traumatic brain injury-basic issues,
assessment and recommendations,” Restorative Neurology and Neuroscience, 20(3.4):135-150, 2002
8. Patrick, P.D., Rice, S.A., and Hostler S.L.: “DSM-IV: Diagnosis of children with traumatic brain injury,”
Neurorehabilitation, 16:1-7, 2001
9. Patrick, P. D., Conaway, M. R., Buck, M. L., Blackman, J. A., Dopamine Enhancing Drugs for Children in
Low Response States Following Brain Injury. Brain Injury; 2003, vol 17, no.6, 497-506.
10. Patrick, P.D., Patrick, S.T., Poole, J., Hostler, S., Evaluation and Treatment of the Minimally Conscious
Child: Single Subject Design. Behavioral Interventions; 15: 225-242, 2000.
11. Patrick, P.D., Mozzoni, M., Patrick, S.T., Evidenced Base Care and The Single Subject Design. The
Journal of Infants and Young Children, Vol. 13, Number 1, 60-73, June 2000.
C. Other Support
Active
U01 AI 26512 (Guerrant) 5/1/89-4/30/10 0.96 calendar mo.
NIH/NIAID $412,073
Long-Term Impact and Intervention for Diarrhea in Brazil
International Collaboration in Infectious Disease Research (ICIDR)
New and Emerging Pathogens Causing Persistent Diarrhea: Epidemiology, Pathophysiology and Novel
Approaches to Therapy
Continuing our long term studies in northeast Brazil, the major goals of this project are (1) to determine the
effects of zinc and arginine on diarrhea morbidity, nutritional status, cognitive development, and intestinal
barrier function; (2) to define plausible genetic determinants of genotype-specific major enteric protozoan and
EAEC infections, overt diarrhea, intestinal inflammation, and long term developmental sequelae.
1T15HD050255-01A1 (Blackman) 4/06 – 5/11 0.24 calendar mo.
NIH/NCMRR $698,000
NIH Grant Prep.Workshops for Rehabilitation Research
The purpose of this project is to provide training and mentoring in grant writing, clinical trial design,
biostatistics, informatics, collaboration, grantsmanship, budgeting, and career development for junior and midlevel
faculty in all medical rehabilitation disciplines.
RFP #07-302 (Patrick) 7/07 – 6/10 3.6 calendar mo.
Virginia Neurotrauma Initiative $450,000
Growth Hormone and Insulin Growth Factor 1 Deficiencies in Children/Adolescents Following Traumatic Brain
Injury: The impact on growth/development and neuropsychological recovery
The study will examine the relationships between alteration in GH and IGF-1 axis on growth and development
patterns following TBI. Additionally, the relationship between disturbances in the GH-IFG-1 axis and
neurobehavioral/neurocognitive recovery will be examined.
Pending
N/A

Sarah Jane Brain Family State Lead Center of Excellence
For the state of
Washington
University of Washington / Harborview Medical Center
www.uwmedicine.org/Facilities/Harborview
REGION: Rural/Tele‐health CATEGORY OF CARE: Pacific
Program Director: Monica Vavilala, MD Position Title: Associate Professor
Department: Department of Anesthesiology & Pediatrics
Address: 325 Ninth Avenue, Seattle, WA 98104
Phone: 206‐744‐9454
Email: vavilala@u.washington.edu
Level 1 Center(s): Seattle, Spokane
Level 2 Center(s): Tacoma, Vancouver, Bellevue
Level 3 Center(s): Everett, Bellingham, Kennewick
Number of jobs PABI Grant creates in Washington: 108
Budget Overview for State Lead Center
State Lead Center Management Sub‐total: $ 6,565,838
Category of Care Management Sub‐total: $ 1,857,942
Case Management Sub‐total: $ 4,490,489
State Lead Center Sub‐total: $ 12,946,269
Indirect Cost to Institution (20%): $ 2,589,254
Administrative Cost to SJBF (2%): $ 258,925
SUB‐TOTAL AMOUNT OF GRANT PROPOSAL: $ 15,794,448

University of Washington / Harborview Medical Center Profile continued
Title/Description Sub‐total Amount for Grant
STATE LEAD CENTER MANAGEMENT
Program Director: $ 68,250
Program Director Assistant: $ 106,491
State Director: $ 354,969
Associate State Director: $ 153,820
State Epidemiologist: $ 236,646
State Epidemiologist Assistant: $ 106,491
State Scientific Investigation Research Coordinator: $ 201,149
State Scientific Investigation Research Assistant: $ 201,149
State Education/Training Coordinator (plus materials): $ 355,942
State General Counsel: $ 283,975
State IT Manager: $ 224,814
State Family Support Coordinator: $ 177,485
State Prevention/Awareness Coordinator: $ 177,485
State Acute Care Coordinator: $ 177,485
State Reintegration Coordinator: $ 177,485
State Adult Transition Coordinator: $ 177,485
State Mild TBI Coordinator: $ 177,485
State Mental Health Coordinator: $ 153,820
State Assistive/Emerging Technology Coordinator: $ 153,820
State Correctional System Coordinator: $ 153,820
State MISC Coordinator: $ 153,820
State Veterans Coordinator: $ 153,820
State Data Manager: $ 153,820
State Public Policy Manager: $ 177,485
State Community Relations Manager: $ 153,820
State Administrative Support: $ 638,944
Charity care: $ 364,071
Human Resources Support: $ 108,000
Training Support: $ 27,000
State Lead Center Office Space Cost: $ 349,872
State Lead Center Transportation/Travel: $ 113,400
State Lead Center Office Equipment/Communications: $ 197,500
State Lead Center Supplies: $ 112,862
Annual and Regional Conferences: $ 32,000
State Brain Injury Association Pediatric Programs: $ 104,020
STATE LEAD CENTER MANAGEMENT SUB‐TOTAL: $ 6,565,838

University of Washington / Harborview Medical Center Profile continued
Title/Description Sub‐total Amount for Grant
CATEGORY OF CARE RESPONSIBILITY: Pacific
Regional Category Director: $ 354,969
Regional Category Epidemiologist: $ 283,975
Regional Category Education/Training Coordinator: $ 236,646
Regional Category Scientific Investigation Research: $ 236,646
Regional Category Administrative Support: $ 425,963
Regional Category Office Space Cost: $ 101,576
Regional Category Transportation/Travel: $ 157,500
Regional Category Office Equipment/Communications: $ 27,900
Regional Category Supplies: $ 32,766
CATEGORY OF CARE SUB‐TOTAL: $ 1,857,942

University of Washington / Harborview Medical Center Profile continued
Title/Description Sub‐total Amount for Grant
CASE MANAGEMENT RESPONSIBILITY
Level 1 Center Manager(s): $ 338,066
Level 1 Center Field Specialist(s): $ 270,453
Level 1 Center SJB Family Specialist(s): $ 184,5839
Level 1 Center Administrative Support: $ 304,259
Level 1 Office Space Cost: $ 54,611
Level 1 Transportation/Travel: $ 55,800
Level 1 Office Equipment/Communications: $ 61,600
Level 1 Supplies: $ 98,819
Level 2 Center Field Specialist(s): $ 243,407
Level 2 Center SJB Family Specialist(s): $ 791,074
Level 2 Transportation/Travel: $ 23,760
Level 2 Office Equipment/Communications: $ 39,900
Level 2 Supplies: $ 32,766
Level 3 Center SJB Family Specialist(s): $ 296,653
Level 3 Transportation/Travel: $ 7,020
Level 3 Office Equipment/Communications: $ 17,100
Level 3 Supplies: $ 9,362
CASE MANAGEMENT SUB‐TOTAL: $ 4,490,489
STATE LEAD CENTER SUB‐TOTAL: $ 12,946,269
INDIRECT COST TO INSTITUTION: $ 2,589,254
ADMINISTRATIVE FEE TO SJBF: $ 258,925
STATE LEAD CENTER SUB‐TOTAL: $ 15,794,448
TOTAL JOBS CREATED IN Washington: 108

NAME
Principal Investigator/Program Director (Last, first, middle):
BIOGRAPHICAL SKETCH
Provide the following information for the key personnel on page 1 of the Detailed Cost Estimate form for the initial budget period.
Monica S. Vavilala, MD
POSITION TITLE
Associate Professor, Anesthesiology
Pediatrics and Neurological Surgery (Adj)
EDUCATION/TRAINING (Begin with baccalaureate or other initial professional education, such as nursing, and include postdoctoral training.)
INSTITUTION AND LOCATION
DEGREE
(if applicable)
YEAR(s) FIELD OF STUDY
University of Houston, Houston, TX BS 1984-1987 Biology
University of Texas Medical School, Houston, TX MD 1987-1991 Medicine
University of Texas Medical School, Houston, TX Residency 1991-1994 Pediatrics
University of Washington, Seattle, WA Residency 1994-1997 Anesthesiology
A. Positions and Honors
Positions and Employment
1983, 1984 Dr. Michael E. De Bakey Summer Research Fellowship
1986 Southwestern Sociological Association Writing Award
1990 American Cancer Society Fellowship
1992 Outstanding Medical Student Educator
1992 Pediatrics Resident of the Year
1997-2000 Acting Assistant Professor, Departments of Anesthesiology and Pediatrics, University of
Washington School of Medicine, Seattle, WA.
2002- Affiliate Investigator, Harborview Injury Prevention and Research Center. Seattle, WA.
2000-2004 Assistant Professor, Departments of Anesthesiology and Pediatrics, University of Washington
School of Medicine, Seattle, WA.
2004- Associate Professor, Departments of Anesthesiology and Pediatrics, University of Washington
School of Medicine, Seattle, WA.
2006- Core member, Harborview Anesthesia Research Center. Seattle, WA.
2008- Associate Director, Harborview Injury Prevention and Research Center, Seattle, WA.
Honors
2005 EuroNeuro2005 Poster Presentation Prize
2005 University of Washington Department of Anesthesiology B. Raymond Fink Award for Research
2005-2006 Ad hoc Member Study Section, Pediatrics Subcommittee, NICHD, October 2005, March 2006
2006-2010 Permanent Member Study Section, Pediatrics Subcommittee, NICHD
2007 Reviewer for Medical Research Council, United Kingdom.
2009- Panel to Update National Pediatric Traumatic Brain Injury Guidelines
Other Experience and Professional Memberships
1. Society for Pediatric Research, 2. Reviewer for Critical Care Medicine, Archives of Pediatrics and
Adolescent
Medicine, Stroke, Pediatric Research, & Anesthesiology, 3. Editorial Board for Journal of Neurosurgical
Anesthesiology
Page _______ Biographical Sketch Format Page

Principal Investigator/Program Director (Last, first, middle):
B. Selected peer-reviewed publications of 72 (in chronological order).
1. Vavilala, M.S., Lee L.A., Lam, A.M.: Cerebral Autoregulation Before and After Blood Transfusion in A
Child. J Neurosurg Anesthesiol.13:231-6, 2001.
2. Vavilala, M.S., Roberts J.O., Moore A.E., Newell, D.W., Lam A.M.: The Influence of Inhaled Nitric
Oxide on Cerebral Blood Flow and Metabolism in a Child with Traumatic Brain Injury. Anesthesia &
Analgesia 93:351-3, 2001.
3. Vavilala, M.S., Junger E., Douville C.A., Rivara, F.P.: Newell D., Lam A.M.: Dynamic Cerebral
Autoregulation in Healthy Adolescents. Acta Scanda Anes 46:393-7, 2002.
4. Sharar, S.R., Carrougher, G.J., Selzer, K., O’Donnell, F., Vavilala, M.S., Lee, L.A.: A Comparison of Oral
Transmucosal Fentanyl Citrate (OFTC) and Oral Oxycodone (OC) for Pediatric Outpatient Wound Care. J
Burn Care Rehabil 23:27-31, 2002.
5. Vavilala, M.S., Nathens, A.B., Mackenzie, E., Jurkovich, G.J., Rivara, F.P.: Risk Factors for Venous
Thromboembolism in Pediatric Trauma. J Trauma 52:922-7, 2002.
6. Boddu, K., Vavilala, M.S., Stevenson, G.J., Lam, A.M.: Pediatric Thoracic Nailgun Injury: A Case Report
and Review of the Literature. Anesthesia & Analgesia 95:624-6, 2002.
7. Ransom, G., Mann, F., Vavilala, M.S., Rivara, F.P.: Cerebral Infarct in Head Injury: Relation to Child
Abuse. Child Abuse Negl 27:381-92, 2003.
8. Vavilala, M.S., Lee, M., Lee L.A., Graham A., Visco E., Lam A.M.: Cerebral Autoregulation in Children
During Sevoflurane Anesthesia. Br J Anaesth 90:636-41, 2002.
9. Vavilala, M.S., Bowen, A., Lam, A.M., Uffman, J.C., Powell, J.C., Winn, H.R., Rivara, F.P.: Blood
Pressure and Outcome Following Severe Pediatric Traumatic Brain Injury. J Trauma. 55:1039-44, 2003.
10. Vavilala, M.S., Lee, L.A., Lam, A.M.: The Lower Limit of Cerebral Autoregulation in Children during

Principal Investigator/Program Director (Last, first, middle):
22. Coates, B.M., Vavilala, M.S., Mack C., Muangman, S., Suz, P., Sharar, S.R., Bulger, E., Lam, A.M.: The
Influence of Definition and Location of Hypotension on Outcome Following Severe Pediatric Traumatic
Brain Injury. Crit Care Med. 33:2645-50, 2005.
23. Suz, P., Vavilala, M.S., Souter, M., Muangman, S., Lam, A.M.: Clinical Features of Fever Associated with
Poor Outcome in Severe Pediatric Traumatic Brain Injury. J Neurosurg Anesthesiol. 18:5-10, 2006.
24. Vavilala, M.S., Muangman, S., Tontisirin, N., Fisk, D., Roscigno, C., Mitchell, P., Kirkness, C.,
Zimmerman, J.J., Chesnut, R., Lam, A.M.: Impaired Cerebral Autoregulation and 6-month Outcome in
Children with Severe Traumatic Brain Injury: Preliminary Findings. Develop Neurosci. 28(4-5):348-53,
2006.
25. Roberts, J.S., Vavilala, M.S., Schenkman, K.A., Shaw, D., Martin, L.D., Lam, A.M.: Cerebral Hyperemia
and Impaired Cerebral Autoregulation Associated with Diabetic Ketoacidosis in Critically Ill Children. Crit
Car Med. 34(8):2217-23, 2006.
26. Miller, P., Vavilala, M.S., Lam, A.M.: The Incidence and Risk Factors for Hypotension During Emergent
Decompressive Craniotomy in Children with Traumatic Brain Injury. Anesth Analg. 2006 Oct;103(4):869-
75.
27. Rozet, I., Vavilala, M.S., Lam, A.M.: Clinical Experience with Dexmedetomidine for Implantation of Deep
Brain Stimulators in Parkinson's Disease. Anesth Analg. 103(5):1224-8, 2006.
28. Vavilala, M.S., Muangman, S., Waitayawinyu, P., Fisk, D., Jaffe, K., Mitchell, P., Kirkness, C.,
Zimmerman, J., Ellenbogen, R., Lam, A.: Neurointensive Care; Impaired Cerebral Autoregulation in
Infants and Young Children Early After Inflicted TBI: A Preliminary Report. Pediatric Brain Injury. J
Neurotrauma. 24(1):87-96, 2007.
29. Tontisirin, N., Muangman, S.L., Suz, P., Pihoker, C., Fisk, D., Moore, A., Lam, A.M., Vavilala, M.S.:
Early Childhood Gender Differences in Anterior and Posterior Cerebral Blood Flow Velocity and
Autoregulation. Pediatrics. Mar;119(3):e610-5, 2007.
30. Vavilala, M.S. Cerebral Oximetry Patience is a Virtue but not a Virtue for the Patient, Yet?. Editorial.
Pediatr Crit Care Med. March;8(2):192-3, 2007.
31. Hollingworth, W., Vavilala M.S., Jarvik, J.G., Chaudhry, S., Johnston, B.D., Layman, S., Tontisirin, N.,
Wang, M.: The use of Repeated Head Computed Tomography in Pediatric Blunt Head Trauma: Factors
Predicting New and Worsening Brain Injury. Pediatr Crit Care Med. July:8(4):348-56, 2007.
32. Tontisirin, N., Armstead, W., Waitayawinyu, P., Moore, A., Udomphorn, Y., Zimmerman, J.J., Chesnut,
R., Vavilala, M.S.: Change in Cerebral Autoregulation as a Function of Time In Children after Severe
Traumatic Brain Injury: A Case Series. Child’s Nerv Syst. Oct;23(10):1163-9, 2007.
33. Rozet, I., Vavilala, M.S.: Risks and Benefits of Patient Positioning During Neurosurgical Care. Anesthesiol
Clin. Sep;25(3):631-53, 2007.
34. Armstead, W.M., Vavilala, M.S.: Adrenomedullin Reduces Gender-dependent Loss of Hypotensive
Cerebrovasodilation after Newborn Brain Injury through Activation of ATP-dependent K Channels. J
Cereb. Blood Flow Metab. Oct;27(10):1702-9, 2007.
35. Olivar, H., Bramhall, J.S., Rozet, I., Vavilala, M.S., Souter, M.J., Lee, L.A., Lam, A.M.: Subarachnoid
Lumbar Drains: a Case Series of Fractured Catheters and a Near Miss. Can J Anaesth. 54(10):829-34,
2007.
36. Brown, J.M., Udomphorn, Y., Suz, P., Vavilala, M.S.: Antipyretic Treatment of Noninfectious Fever in
Children with Severe Traumatic Brain Injury. Childs Nerv Syst. 2008 Apr;24(4):477-83. Epub 2007 Oct 5.
37. Rozet, I., Tontisirin, N., Muangman, S., Vavilala, M.S., Souter, M.J., Lee, L.A., Kincaid, M.S., Britz,
G.W., Lam, A.M. Effect of Equiosmolar Solutions of Mannitol Versus Hypertonic Saline on Intraoperative
Brain Relaxation and Electrolyte Balance. Anesthesiology. 2007 Nov;107(5):697-704.
38. Freeman, S., Udomphorn, Y., Armstead, W.M., Vavilala, M.S. Young Age as a Risk Factor for Impaired
Cerebral Autoregulation in Children after Moderate to Severe Pediatric Traumatic Brain Injury.
Anesthesiology. 2008 Apr;108(4):588-95.
39. Samant, U.B., Mack, C.M., Koepsell, T., Rivara, F.P., Vavilala, M.S. Time of Hypotension and Discharge
Outcome after Severe Pediatric Traumatic Brain Injury. J Neurotrauma. 2008 May;25(5):495-502.
PHS 398/2590 (Rev. 05/01) Page _______ Biographical Sketch Format Page

Principal Investigator/Program Director (Last, first, middle):
40. King MA, Garrison MM, Vavilala MS, Zimmerman JJ, Rivara FP. Complications associated with arterial
catheterization in children. Pediatr Crit Care Med. 2008 May 19. [Epub ahead of print]
41. Curry R, Hollingworth W, Ellenbogen RG, Vavilala MS. Incidence of hypo- and hypercarbia in severe
traumatic brain injury before and after 2003 pediatric guidelines. Pediatr Crit Care Med. 2008;9(2):141-6.
42. Vavilala MS, Tontisirin N, Udomphorn Y, Armstead W, Zimmerman JJ, Chesnut R, Lam AM.
Hemispheric Differences in Cerebral Autoregulation in Children with Moderate and Severe Traumatic
Brain Injury. Neurocrit Care. 2008. 2008;9(1):45-54.
43. Sharma D, Jelacic J, Chaiwat O, Chandler W, Vavilala M.S. Perioperative Hyperglycemia in Pediatric
Traumatic Brain Injury. Anesth & Analg 2009; 108(1):81-9
44. Chaiwat O, Lang J, Wang J, Jurkovich GJ, Rivara FP, Vavilala M.S. Effect of Red Blood Cell Transfusion
on ARDS in Trauma Patients. Anesthesiology. 2009; 110:351-60.
45. Relyea-Chew AM, King M, Vavilala, M.S. Hollingworth W. Radiation Risk and Cancer Estimates in
Pediatric Traumatic Brain Injury. Ped Radiol. 2008 (in-press).
46. Chaiwat O, Sharma D, Udomphorn Y, Armstead WM, Vavilala M.S. Cerebral Hemodynamic Predictors of
Poor 6 month Glasgow Outcome Score in Severe Pediatric Traumatic Brain Injury. J Neurotrauma. 2009;
26:1–7..
47. Philip S, Chaiwat O, Udomphorn Y, Zimmerman JJ, Armstead WM, Vavilala MS. Variability in Cerebral
Blood Flow Velocity with Cerebral Perfusion Pressure > 40mmHg in 42 Children with Traumatic Brain
Injury. Crit Care Med. (in-press).
Book Chapters: Selected of 12
1. Udomphorn Y, Armstead WM, Vavilala M.S.: Cerebral Autoregulation in Pediatric Traumatic Brain Injury.
Ped Neurology. 2008 Apr;38(4):225-34.
C. Research Support
Ongoing Research Support
CDC/R49 CE0010210-02 (PI Rivara, F.P.) 09/01/2006 – 08/30/2011
Center for Disease Control $ 3,200,000
Disability from Pediatric Trauma Brain Injury
The purpose is to examine disability after pediatric traumatic brain injury. Role: Co-investigator
CDC/R49 CE000197-05 (PI Ebel, Beth) 08/01/2004 – 07/31/2009
Center for Disease Control $ 4,500,000
Harborview Injury Prevention & Research Center
The purpose is to examine trauma care delivery and outcome.
Role: Co-investigator
0006876A.UW (Vavilala) 3/1/09-2/28/12 .
UTexas/NIH $21,094
Resource Over-Utilization due to Serious Alcohol Related Injuries
The current study will estimate the extra-burden of injuries imposed by individuals with high blood alcohol
concentrations in the ED and/or dependence to alcohol on emergency medical service (EMS) system and the
hospital health care system. We will place special emphasis on sex and race/ethnicity. The main specific aims
are to compare: 1) pre-hospital resource utilization between alcohol- and non-alcohol involved injuries; 2) the
cost of pre-hospital care between alcohol- and non-alcohol involved injuries; 3) early vs. late hospital resource
utilization (i.e., procedures conducted in the first twenty four hours following admission vs. thereafter) between
alcohol- and non-alcohol involved injuries; 4) cost of hospital care between alcohol-and non-alcohol involved
injuries.
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Principal Investigator/Program Director (Last, first, middle):
NICHD/NIH/R21 HD049832-02 (PI Vavilala, M.S.) 04/01/2005 – 05/31/2009
National Institute of Child Health and Human Development $ 275,000 ---no cost extension
Cerebral Edema in Pediatric Diabetic Ketoacidosis
The purpose is to examine the relationship between cerebral blood flow velocity, autoregulation and
oxygenation and the development of cerebral edema in children with diabetic ketoacidosis.
Completed Research Support (Selected Funding described)
RRF (Vavilala, M.S.) 03/01/02-8/31/03
Royalty Research Fund $30,056
“Cerebral Autoregulation Following Pediatric Traumatic Brain Injury”
The specific aims of this proposal are to determine: 1) the effects of age on cerebral autoregulation in
unanesthetized children without neurological injury, 2) whether Traumatic Brain Injury (TBI) induced
impairment of cerebral autoregulation is age dependent, and 3) if impaired cerebral autoregulation is associated
with poor outcome. The results of our study can help form practice guidelines for the hemodynamic
management of children with TBI.
AHA NW Affiliate (Vavilala, M.S.) 07/01/02-06/30/04
AHA Beginning Grant In Aid $80,000
Cerebral Autoregulation During Sevoflurane Anesthesia in Children with Traumatic Brain Injury
The specific aims of this proposal are to determine the effects of age on cerebral autoregulation in healthy
anesthetized children, whether Traumatic Brain Injury (TBI) impairs cerebral autoregulation in children during
general anesthesia, if the incidence of TBI induced impairment of cerebral autoregulation is age dependent and
if impaired cerebral autoregulation during general anesthesia is associated with poor outcome.
WSSA (Vavilala, M.S.) 01/01/03-12/31/03
Washington State Society of Anesthesiologists $9,600
Cerebral Perfusion Pressure and Outcome Following Severe Pediatric Traumatic Brain Injury
The goal is to prospectively characterize cerebral hemodynamics following severe TBI and to determine the
relationship between cerebral hemodynamics and outcome following severe pediatric TBI.
Department Start up Fund (Vavilala, M.S.) 01/01/02-12/31/03
Anesthesia Research & Training $8,640
Cerebral Autoregulation and Cerebral Oxygenation in Cerebral Edema due to Pediatric Diabetic Ketoacidosis
The specific aims of this proposal are: 1) to examine the relationship between impaired cerebral autoregulation
and cerebral edema associated with diabetic ketoacidosis (DKA), 2) to examine the relationship between middle
cerebral artery flow velocity (Vmca) and cerebral edema in children with DKA, and 3) to examine the
association between cerebral edema secondary to DKA and cerebral oxygen desaturation.
HIPRC (Vavilala, M.S.) 08/01/2003 - 07/31/2004
Harborview Injury Prevention & Research Center $2,000
Pre-hospital Hypotension and Outcome in Children with Traumatic Brain Injury
The overall goals are to: 1) characterize the incidence of pre-hospital hypotension following pediatric TBI and
2) determine the relationship between pre-hospital blood pressure and outcome following TBI in children.
Departmental RFA (Vavilala, M.S.) 02/13/2004
Anesthesia Research & Training $34,972
Departmental RFA for shared equipment: Purchase of Research Equipment (Transcranial Doppler
Ultrasonography) for Collaborative Departmental Use.
NINR/NIH/R01 (Vavilala, M.S. Co-Investigator with 5% effort) 04/01/2004 – 03/31/2008
National Institute of Nursing Research $1,295, 635
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Principal Investigator/Program Director (Last, first, middle):
The purpose of this study is to evaluate the effect of CPP monitoring on Nursing Practice.
NICHD/NIH/ K23 (Vavilala, M.S) 09/01/2003- 08/31/2008
National Institute of Child Health and Human Development $638,000
The purpose of the study is to examine the: 1) relationship between cerebral perfusion pressure and outcome, 2)
relationship between persistent impairment of cerebral autoregulation and outcome, and 3) the age-related
incidence of hyperemia. We will also examine the relationship between hyperemia and impaired cerebral
autoregulation and the relationship between persistent hyperemia and outcome following severe pediatric TBI.
PHS 398/2590 (Rev. 05/01) Page _______ Biographical Sketch Format Page

Sarah Jane Brain Family State Lead Center of Excellence
For the state of
West Virginia
West Virginia Brain Injury Association
www.biausa.org/WVirginia/
REGION: Mid‐Atlantic CATEGORY OF CARE: Rural/Tele‐health
Program Director: Michael Davis, CBIS‐CE Position Title: President and Senior Case Manager
Address: 405 Capitol Street, suite 612, Charleston, WV 25301
Phone: 304‐345‐7757
Email: mdavis@brainman.com
Level 1 Center(s): Morgantown, Charleston
Level 2 Center(s): Huntington, Parkersburg, Wheeling
Level 3 Center(s): 0
Number of jobs PABI Grant creates in West Virginia: 99
Budget Overview for State Lead Center
State Lead Center Management Sub‐total: $ 4,940,653
Category of Care Management Sub‐total: $ 3,436,767
Case Management Sub‐total: $ 3,155,704
State Lead Center Sub‐total: $ 11,565,125
Indirect Cost to Institution (20%): $ 2,313,025
Administrative Cost to SJBF (2%): $ 231,302
SUB‐TOTAL AMOUNT OF GRANT PROPOSAL: $ 14,109,452

West Virginia Brain Injury Association Profile continued
Title/Description Sub‐total Amount for Grant
STATE LEAD CENTER MANAGEMENT
Program Director: $ 68,250
Program Director Assistant: $ 79,675
State Director: $ 265,582
Associate State Director: $ 115,085
State Epidemiologist: $ 177,054
State Epidemiologist Assistant: $ 79,675
State Scientific Investigation Research Coordinator: $ 150,496
State Scientific Investigation Research Assistant: $ 150,496
State Education/Training Coordinator (plus materials): $ 193,382
State General Counsel: $ 212,465
State IT Manager: $ 168,202
State Family Support Coordinator: $ 132,791
State Prevention/Awareness Coordinator: $ 132,791
State Acute Care Coordinator: $ 132,791
State Reintegration Coordinator: $ 132,791
State Adult Transition Coordinator: $ 132,791
State Mild TBI Coordinator: $ 132,791
State Mental Health Coordinator: $ 115,085
State Assistive/Emerging Technology Coordinator: $ 115,085
State Correctional System Coordinator: $ 115,085
State MISC Coordinator: $ 115,085
State Veterans Coordinator: $ 115,085
State Data Manager: $ 115,085
State Public Policy Manager: $ 132,791
State Community Relations Manager: $ 115,085
State Administrative Support: $ 478,047
Charity care: $ 272,391
Human Resources Support: $ 99,000
Training Support: $ 24,750
State Lead Center Office Space Cost: $ 261,768
State Lead Center Transportation/Travel: $ 88,255
State Lead Center Office Equipment/Communications: $ 197,500
State Lead Center Supplies: $ 84,441
Annual and Regional Conferences: $ 32,000
State Brain Injury Association Pediatric Programs: $ 77,826
STATE LEAD CENTER MANAGEMENT SUB‐TOTAL: $ 4,940,653

West Virginia Brain Injury Association Profile continued
Title/Description Sub‐total Amount for Grant
CATEGORY OF CARE RESPONSIBILITY: Rural/Tele‐health
Regional Category Director: $ 265,582
Regional Category Epidemiologist: $ 212,465
Regional Category Education/Training Coordinator: $ 177,054
Regional Category Scientific Investigation Research: $ 177,054
Regional Category Administrative Support: $ 318,698
Regional Category Office Space Cost: $ 75,997
Regional Category Transportation/Travel: $ 157,500
Regional Category Office Equipment/Communications: $ 27,900
Regional Category Supplies: $ 24,515
CATEGORY OF CARE SUB‐TOTAL: $ 3,436,767

West Virginia Brain Injury Association Profile continued
Title/Description Sub‐total Amount for Grant
CASE MANAGEMENT RESPONSIBILITY
Level 1 Center Manager(s): $ 252,935
Level 1 Center Field Specialist(s): $ 202,348
Level 1 Center SJB Family Specialist(s): $ 1,381,025
Level 1 Center Administrative Support: $ 227,641
Level 1 Office Space Cost: $ 40,859
Level 1 Transportation/Travel: $ 53,804
Level 1 Office Equipment/Communications: $ 61,600
Level 1 Supplies: $ 73,935
Level 2 Center Field Specialist(s): $ 182,113
Level 2 Center SJB Family Specialist(s): $ 591,868
Level 2 Transportation/Travel: $ 23,161
Level 2 Office Equipment/Communications: $ 39,900
Level 2 Supplies: $ 24,515
CASE MANAGEMENT SUB‐TOTAL: $ 3,155,704
STATE LEAD CENTER SUB‐TOTAL: $ 11,565,125
INDIRECT COST TO INSTITUTION: $ 2,313,025
ADMINISTRATIVE FEE TO SJBF: $ 231,302
STATE LEAD CENTER SUB‐TOTAL: $ 14,109,452
TOTAL JOBS CREATED IN West Virginia: 99

MICHAEL W. DAVIS, CBIS-CE
President and Senior Case Manager
Neurological Case Management Associates, LLC
Michael Davis is a Certified Brain Injury Specialist and an independent case
manager specializing in traumatic brain and spinal injury cases. Since 1985
Mr. Davis has been a consultant to attorneys, insurance companies, families,
survivors and service providers lending his expertise in the areas of case
reviews, rehabilitation needs assessment, educational/vocational planning,
access to resources and life care plan implementation. He has been actively
involved in public education, program development and advocacy
throughout his many years of service in the field of rehabilitation.
Mr. Davis is the current President, Co-Founder and past Executive Director
of the Brain Injury Association of West Virginia (formerly the West Virginia
Head Injury Foundation). He serves on the Board of Directors of the Brain
Injury Association of West Virginia and is former Chairperson of the Ethics
and Standards Committee of the Brain Injury Association (formerly the
National Head Injury Foundation). Over the years Mr. Davis has served on
the Advisory Boards of several rehabilitation facilities as well as other health
related organizations including the West Virginia Traumatic Brain & Spinal
Injury Rehabilitation Fund Board and the North American Brain Injury
Society.
Mr. Davis has been instrumental in promoting quality assurance criteria in
areas including programming and ethical marketing practices while
emphasizing the rights of survivors and families. Through his professional
career and personal experience, Mr. Davis has earned respect for his
expertise on the educational and psychosocial problems inherent to survivors
of traumatic injuries and their families. In 1988 Mr. Davis received
the’Distinguished West Virginian Award’ for his dedication to the rights of
people with disabilities and his legislative advocacy for the West Virginia
Safety Belt Law and the Americans With Disabilities Act.
Mr. Davis is distinguished Vietnam Veteran who studied Business
Administration, Public Relations and Marketing at West Virginia State
University. He continues to further his experience and expertise in the field
of Rehabilitation and Case Management through his attendance at national
and local conferences and his presentation of numerous professional
inservices.

Phone: (304) 345-7757 405 Capitol Street, St. 612 Website: www.brainman.com
Fax: (304) 345-1009 Charleston, WV 25301 Email: mdavis@brainman.com

Sarah Jane Brain Family State Lead Center of Excellence
For the state of
Wisconsin
Children's Hospital of Wisconsin
www.chw.org
REGION: Midcentral CATEGORY OF CARE: Prevention
Program Director: Elizabeth Moberg‐Wolff, MD Position Title: Associate Professor
Department: Department of Physical Medicine & Rehabilitation
Address: 9000 W. Wisconsin Avenue, Wauwatosa, WI 53226
Phone: 414‐266‐3085
Email: emoberg@chw.org
Level 1 Center(s): Milwaukee
Level 2 Center(s): Marshfield, Lacrosse, Madison, Eau Claire, Wausau, Green Bay/Appleton
Level 3 Center(s): 0
Number of jobs PABI Grant creates in Wisconsin: 112
Budget Overview for State Lead Center
State Lead Center Management Sub‐total: $ 5,683,796
Category of Care Management Sub‐total: $ 1,605,237
Case Management Sub‐total: $ 3,459,371
State Lead Center Sub‐total: $ 10,780,404
Indirect Cost to Institution (20%): $ 2,156,081
Administrative Cost to SJBF (2%): $ 215,608
SUB‐TOTAL AMOUNT OF GRANT PROPOSAL: $ 13,152,093

Children's Hospital of Wisconsin Profile continued
Title/Description Sub‐total Amount for Grant
STATE LEAD CENTER MANAGEMENT
Program Director: $ 102,375
Program Director Assistant: $ 90,401
State Director: $ 301,337
Associate State Director: $ 130,579
State Epidemiologist: $ 200,891
State Epidemiologist Assistant: $ 90,401
State Scientific Investigation Research Coordinator: $ 170,757
State Scientific Investigation Research Assistant: $ 170,757
State Education/Training Coordinator (plus materials): $ 303,776
State General Counsel: $ 241,069
State IT Manager: $ 190,847
State Family Support Coordinator: $ 150,668
State Prevention/Awareness Coordinator: $ 150,668
State Acute Care Coordinator: $ 150,668
State Reintegration Coordinator: $ 150,668
State Adult Transition Coordinator: $ 150,668
State Mild TBI Coordinator: $ 150,668
State Mental Health Coordinator: $ 130,579
State Assistive/Emerging Technology Coordinator: $ 130,579
State Correctional System Coordinator: $ 130,579
State MISC Coordinator: $ 130,579
State Veterans Coordinator: $ 130,579
State Data Manager: $ 130,579
State Public Policy Manager: $ 150,668
State Community Relations Manager: $ 130,579
State Administrative Support: $ 542,406
Charity care: $ 309,063
Human Resources Support: $ 112,000
Training Support: $ 28,000
State Lead Center Office Space Cost: $ 297,010
State Lead Center Transportation/Travel: $ 100,136
State Lead Center Office Equipment/Communications: $ 197,500
State Lead Center Supplies: $ 95,810
Annual and Regional Conferences: $ 32,000
State Brain Injury Association Pediatric Programs: $ 88,304
STATE LEAD CENTER MANAGEMENT SUB‐TOTAL: $ 5,683,796

Children's Hospital of Wisconsin Profile continued
Title/Description Sub‐total Amount for Grant
CATEGORY OF CARE RESPONSIBILITY: Prevention
Regional Category Director: $ 301,337
Regional Category Epidemiologist: $ 241,069
Regional Category Education/Training Coordinator: $ 200,891
Regional Category Scientific Investigation Research: $ 200,891
Regional Category Administrative Support: $ 361,604
Regional Category Office Space Cost: $ 86,229
Regional Category Transportation/Travel: $ 157,500
Regional Category Office Equipment/Communications: $ 27,900
Regional Category Supplies: $ 27,816
CATEGORY OF CARE SUB‐TOTAL: $ 1,605,237

Children's Hospital of Wisconsin Profile continued
Title/Description Sub‐total Amount for Grant
CASE MANAGEMENT RESPONSIBILITY
Level 1 Center Manager(s): $ 143,494
Level 1 Center Field Specialist(s): $ 114,795
Level 1 Center SJB Family Specialist(s): $ 783,475
Level 1 Center Administrative Support: $ 129,144
Level 1 Office Space Cost: $ 46,359
Level 1 Transportation/Travel: $ 27,374
Level 1 Office Equipment/Communications: $ 33,800
Level 1 Supplies: $ 52,982
Level 2 Center Field Specialist(s): $ 413,262
Level 2 Center SJB Family Specialist(s): $ 1,343,100
Level 2 Transportation/Travel: $ 46,888
Level 2 Office Equipment/Communications: $ 79,800
Level 2 Supplies: $ 55,631
Level 3 Center SJB Family Specialist(s): $ 167,888
Level 3 Transportation/Travel: $ 4,680
Level 3 Office Equipment/Communications: $ 11,400
Level 3 Supplies: $ 5,298
CASE MANAGEMENT SUB‐TOTAL: $ 3,459,371
STATE LEAD CENTER SUB‐TOTAL: $ 10,780,404
INDIRECT COST TO INSTITUTION: $ 2,156,081
ADMINISTRATIVE FEE TO SJBF: $ 215,608
STATE LEAD CENTER SUB‐TOTAL: $ 1,3152,093
TOTAL JOBS CREATED IN Wisconsin: 112

Principal Investigator/Program Director (Last, First, Middle):
BIOGRAPHICAL SKETCH
Provide the following information for the key personnel and other significant contributors in the order listed on Form Page 2.
Follow this format for each person. DO NOT EXCEED FOUR PAGES.
NAME
Elizabeth A. Moberg-Wolff, MD
eRA COMMONS USER NAME
emoberg
POSITION TITLE
Associate Professor
EDUCATION/TRAINING (Begin with baccalaureate or other initial professional education, such as nursing, and include postdoctoral training.)
INSTITUTION AND LOCATION
DEGREE
(if applicable)
YEAR(s) FIELD OF STUDY
University of Wisconsin-Eau Claire BS 1986 Biology, Chemistry
University of Wisconsin-Madison MD 1990 Medicine
Medical College of Wisconsin, Milwaukee Resident 1994 Physical Medicine & Rehab
Children’s Hospital, Denver, CO Fellow 1995 Pediatric, PM&R
A. Positions and Honors.
1995-1999 Assistant Clinical Professor, Dept of Pediatrics , Children’s Medical Center, Medical College of Georgia ,
Augusta, GA
1999-2004 Assistant Professor, Dept of Pediatrics and Neurology,
Chief, Section of PM&R, Dept of Pediatrics, Children’s Medical Center, Medical College of Georgia, Augusta,
GA
2004-2005 Associate Professor, Dept of Pediatrics and Neurology
Chief, Section of PM&R, Dept of Ped, Children’s Medical Center, Medical College of Georgia, Augusta, GA
1996-2005 Consulting Physician
St Mary’s Hospital, Dept of Pediatrics, Athens, GA, Children’s Medical Services, State of GA
Anderson Area Medical Center, Dept of Pediatrics, Anderson, SC, Children’s Rehabilitation Services, SC
2005- Associate Professor, Department of Physical Medicine and Rehabilitation
Director, Tone Management and Mobility,
Director Ped PM&R Fellowship, Children’s Hospital of WI, Medical College of Wisconsin
PROFESSIONAL SOCIETY MEMBERSHIPS
Am. Association of Academic Physiatrists 1990-2000
Am. Academy Physical Medicine & Rehabilitation 1990–present
Am. Acad. of Dev. Med. and Child Neurology 1997–present
Administrative/Committee Appointments
1997–2002 Secretary, Women’s Special Interest Group (SIG), American Academy of PM&R
1999-2002 Program Planning Committee, Pediatric SIG, American Academy of PM&R
2003-2004 Secretary, Pediatrics Special Interest Group, American Academy of PM&R
2004-2006 Vice Chair, Pediatrics Special Interest Group, American Academy of PM&R
2007-2008 Chair, Pediatrics Special Interest Group, American Academy of PM&R
2004-2007 Oral Board Examiner, American Board of Physical Medicine and Rehabilitation
2005-2008 Ped PRM exam question writer American Board of Physical Medicine and Rehabilitation
2000-current Chapter Editor, eMedicine PM&R textbook
2001-2004 Consulting Board Member Children’s Hemiplegia and Stroke Association (CHASA)
2005-curent Board Member, United Cerebral Palsy, Milwaukee, WI
2008- 2010 AAPMR Study Guide Committee Pediatric Rehabilitation
2008-2011 Vice Chair, Communications Committee, Pediatric Council, AAPMR
B. Selected peer-reviewed publications (in chronological order).
1. Moberg-Wolff, E., Kosasih, K. Journal clubs. Prevalence, format, and efficacy in PM&R. Am J Phys Med Rehabil.
74(3):224-9, 1995 May-Jun
2. Moberg-Wolff, E. An Aggressive Approach to Limb Dystonia: A Case Report, Arch Phys Med Rehabil. 79(5):589-90.
PHS 398/2590 (Rev. 09/04) Page Biographical Sketch Format Page

Principal Investigator/Program Director (Last, First, Middle): PI Name
3. Moberg-Wolff, E. Spasticity Management, Chapter Emedicine, PM&R Textbook, December 2001, 2007
4. Moberg-Wolff E, Dystonia, Chapter Emedicine, PM&R Textbook,
5. Moberg-Wolff EA, Kiesling S. Adapted Recreational and Sports Programs for Children with Disabilities: Then and Now.
J of Ped Rehab Med 2008: 1(2) p.155-61.
6. Ocasio M, McBride A, Moberg-Wolff E “Cerebral Palsy Masking Spinal Muscular Atrophy: A Case Report”
J of Ped Rehab Med 2008 :1(179-183)
7.Moberg-Wolff, E. The Potential Clinical Impact of Compounded vs Non-Compounded Intrathecal Baclofen. Archives of Phys Med
Rehab.In press.
Abstracts
1. Moberg-Wolff, E, Epner, M., McGrath, M. Welshofer, J. Kosasih, J. "Electric Stimulation in the Treatment of Chronic
Pressure Ulcers" Archives of PM&R, November 1993
2. Moberg-Wolff, E. and Nussbaum,S. “Adult Onset Tay Sachs: A Case Report" Archives of PM&R September 1994
3. Moberg-Wolff, E “An Aggressive Approach to Limb Dystonia” Archives of PM&R, November 1997
4. Moberg-Wolff, E., and Stempien, L., Recurrent Tethered Cord and Myelomeningoceole” American Academy of PM&R
National Meeting October 1996
5. Moberg-Wolff, E, Devries, C, Eubanks, L, Watson, T. “The Effect of Intrathecal Baclofen on Bladder Function in
Children with Cerebral Origin Spasticity American Academy of PM&R National Meeting November 1999
6. Moberg-Wolff, E, and Walke, K. “Use of Botulinum Type B in the Pediatric Population” Archives of PM&R, Vol 83:1673,
2002
7. Nowacki M, Lee, M , Mani C, Moberg-Wolff E, Woeltje K. ‘An Analysis of Post Operative Baclofen Pump Infections”
Association of Practitioners of Infection Control and Epidemiology. March 2003
8. Martin R, Howell E, McClain M, Miles B, Moberg-Wolff E.“Imaging Features of Intrathecal Baclofen Delivery Systems”
Pediatric Radiology, Vol 33:S114, 2003
9. Moberg E, Iwin N, McGuire J “ITB and the H Reflex in Pediatric Patients with CP” October 2005 American Academy
of PM&R National Meeting
10. Moberg, EIntrathecal Vancomycin in the Treatment of Meningitis in ITB Patients” American Academy of PM&R National Meetin
October 2005
11. Taylor C, Irwin N, Moberg E, Klingbeil F Recovery from Rabies Encephalopathy: A Case Report”
American Academy of PM&R National Meeting October 2005
12. Moberg E, Wendt C. Tolerance or non-Responder? An ITB Case Report American Academy of PM&R National Meeting Octob
13. Moberg E, To Compound or not to Compound: Intrathecal Baclofen American Academy of PM&R National Meeting October 20
14. Ocasio-Silva MA, Moberg-Wolff EA, Dillingham TR, Rice JB: Spasticity treatment services in patients with cerebral
palsy in the United States. Arc Phys Med Rehabil 2007; 88: E78
15. Moberg-Wolff EA, Ocasio-Silva MA, Nelson ME: A Longitudinal look at intrathecal baclofen dosing. Arc Phys Med Rehabil 2007
E78
16. Moberg E, Ocasio M.Pediatric ITB Dosing Over Time Arc Phys Med Rehabil 2007; 88: American Academy of PM&R National
17. Ocasio M, Moberg-Wolff E. Intrathecal Baclofen and Speech in Children with Cerebral Palsy. Arch Phy Med Rehab 2008:E3
18. Moberg E, Zetley L, Urban M, BrownJ, Altstadt D, Cohn J. “Medically Fragile Child: Fostering Outcomes through Community
Collaborations. Dev Med Child Neuro Sept 2009.
19. K.Kolaski, L.Krach, D.Gaebler, D.Fehlings, E.Hurvitz, M Kuroda, E.Moberg, L. Thornton, M.Msall. “Cerebral Palsy
Outcomes Project” Dev Med Child Neuro, Sept 2009.
(Non-Refereed Journals)
1. Moberg-Wolff, E. and Rogers, T. Taming Limb Dystonia” Advance for Directors in Rehabilitation March 1998
2. Moberg-Wolff, E“Have a ball, and a racket, and a glove..... Creating adaptive sports programs” Advance for Directors in
Rehabilitation January 1999
3. Moberg-Wolff, E “Alternative Medicine Overview” “Return to School after TBI” Brain Injury Association of Georgia,
Virtual Case Management Online Resource September 2003
C. Research Support.
Completed
“Medically Fragile Foster Child Improving Health Status through Education and Community Linkages 2008-2009
Primary Investigator, $50,000 Healthier Wisconsin Partnership Program Award
Cerebral Palsy Outcomes Project – Multicenter Pilot Study
Co-Investigator $50,000 funded by American Academy of Cerebral Palsy and Developmental Medicine
“Special Needs Child – Medical, Therapeutic and Educational Interventions” Conference
PHS 398/2590 (Rev. 09/04) Page Continuation Format Page

Principal Investigator/Program Director (Last, First, Middle): PI Name
E Moberg-Wolff
$10,000 funded by Allergan 2008, 2006
“Children’s Rehabilitation Program Development”
R McCabe, E. Moberg-Wolff
$10,000 Funded by Kiwanis
“Bladder Function Alterations by Intrathecal Baclofen Administration”
E. Moberg-Wolff. C. Devries, L. Eubanks
$30,000, Funded by Medtronic,1998
“Special Needs Car Seat Program Development”
E. Moberg-Wolff
$3,500 Funded by DePuy 1999
“Rural Rehabilitation Clinic Development grant”
E Moberg-Wolff, J Geer
$4,000 annually Allergan/Medtronic 1999 – 2003
PHS 398/2590 (Rev. 09/04) Page Continuation Format Page

Sarah Jane Brain Family State Lead Center of Excellence
For the state of
Wyoming
Brain Injury Association of Wyoming
www.biausa.org/Wyoming
REGION: Rocky Mountain CATEGORY OF CARE: Prevention
Program Director: Dorothy Worrell, ED Position Title: President
Address: 111 West 2nd Street, suite 106, Casper, WY 82601
Phone: (307) 473‐1767
Email: doceykins@yahoo.com
Level 1 Center(s): Casper
Level 2 Center(s): Cheyenne, Gillette
Level 3 Center(s): Green River, Cody
Number of jobs PABI Grant creates in Wyoming: 84
Budget Overview for State Lead Center
State Lead Center Management Sub‐total: $ 4,937,023
Category of Care Management Sub‐total: $ 1,452,643
Case Management Sub‐total: $ 1,946,275
State Lead Center Sub‐total: $ 8,367,941
Indirect Cost to Institution (20%): $ 1,673,588
Administrative Cost to SJBF (2%): $ 167,359
SUB‐TOTAL AMOUNT OF GRANT PROPOSAL: $ 10,208,888

Brain Injury Association of Wyoming Profile continued
Title/Description Sub‐total Amount for Grant
STATE LEAD CENTER MANAGEMENT
Program Director: $ 56,875
Program Director Assistant: $ 80,685
State Director: $ 268,951
Associate State Director: $ 116,545
State Epidemiologist: $ 179,301
State Epidemiologist Assistant: $ 80,685
State Scientific Investigation Research Coordinator: $ 152,406
State Scientific Investigation Research Assistant: $ 152,406
State Education/Training Coordinator (plus materials): $ 164,995
State General Counsel: $ 215,161
State IT Manager: $ 170,336
State Family Support Coordinator: $ 134,476
State Prevention/Awareness Coordinator: $ 134,476
State Acute Care Coordinator: $ 134,476
State Reintegration Coordinator: $ 134,476
State Adult Transition Coordinator: $ 134,476
State Mild TBI Coordinator: $ 134,476
State Mental Health Coordinator: $ 116,545
State Assistive/Emerging Technology Coordinator: $ 116,545
State Correctional System Coordinator: $ 116,545
State MISC Coordinator: $ 116,545
State Veterans Coordinator: $ 116,545
State Data Manager: $ 116,545
State Public Policy Manager: $ 134,476
State Community Relations Manager: $ 116,545
State Administrative Support: $ 484,112
Charity care: $ 275,847
Human Resources Support: $ 84,000
Training Support: $ 21,000
State Lead Center Office Space Cost: $ 265,089
State Lead Center Transportation/Travel: $ 89,375
State Lead Center Office Equipment/Communications: $ 197,500
State Lead Center Supplies: $ 85,513
Annual and Regional Conferences: $ 32,000
State Brain Injury Association Pediatric Programs: $ 78,814
STATE LEAD CENTER MANAGEMENT SUB‐TOTAL: $ 4,937,023

Brain Injury Association of Wyoming Profile continued
Title/Description Sub‐total Amount for Grant
CATEGORY OF CARE RESPONSIBILITY: Prevention
Regional Category Director: $ 268,951
Regional Category Epidemiologist: $ 215,161
Regional Category Education/Training Coordinator: $ 179,301
Regional Category Scientific Investigation Research: $ 179,301
Regional Category Administrative Support: $ 322,741
Regional Category Office Space Cost: $ 76,961
Regional Category Transportation/Travel: $ 157,500
Regional Category Office Equipment/Communications: $ 27,900
Regional Category Supplies: $ 24,826
CATEGORY OF CARE SUB‐TOTAL: $ 1,452,643

Brain Injury Association of Wyoming Profile continued
Title/Description Sub‐total Amount for Grant
CASE MANAGEMENT RESPONSIBILITY
Level 1 Center Manager(s): $ 128,072
Level 1 Center Field Specialist(s): $ 102,458
Level 1 Center SJB Family Specialist(s): $ 699,273
Level 1 Center Administrative Support: $ 115,265
Level 1 Office Space Cost: $ 41,377
Level 1 Transportation/Travel: $ 26,947
Level 1 Office Equipment/Communications: $ 33,800
Level 1 Supplies: $ 47,288
Level 2 Center Field Specialist(s): $ 122,949
Level 2 Center SJB Family Specialist(s): $ 399,585
Level 2 Transportation/Travel: $ 15,459
Level 2 Office Equipment/Communications: $ 26,600
Level 2 Supplies: $ 16,551
Level 3 Center SJB Family Specialist(s): $ 149,844
Level 3 Transportation/Travel: $ 4,680
Level 3 Office Equipment/Communications: $ 11,400
Level 3 Supplies: $ 4,729
CASE MANAGEMENT SUB‐TOTAL: $ 1,946,275
STATE LEAD CENTER SUB‐TOTAL: $ 8,367,941
INDIRECT COST TO INSTITUTION: $ 1,673,588
ADMINISTRATIVE FEE TO SJBF: $ 167,359
STATE LEAD CENTER SUB‐TOTAL: $ 10,208,888
TOTAL JOBS CREATED IN Wyoming: 84

EDUCATION
Dorothy Worrell
2302 Sagewood
Casper, Wyoming 82601
307-262-5996
VITA
ONGOING CONFERENCES
Behavior modification, behavior management, non-aversive behavior strategies, job coaching
strategies, guardianship and its alternatives, Case Management, Social Security PASS plan and work
incentives, Supported Employment, adaptive equipment, Traumatic Brain Injury Research and
Treatment, Patient Advocacy, BIAUSA Leadership conferences, NASHIA brain injury conferences,
Social Security Ticket to Work, Medicare Part D, TBI & Substance Abuse, aging, pre-hospital
management of TBI, Native American Brain Injury, grant writing, children with special health needs,
Emergency Summit for Brain Injured Veterans, Association for People in Rural Independent Living,
National Council on Independent Living.
ADDITIONAL COLLEGE COURSES
Psychology, Drugs & Psychology, Computer Graphics, philosophy
DEGREE
A.A. Casper College: Commercial Art
Graduation: May 1986
LICENSES AND CREDENTIALS
Certified Brain Injury Specialist AACBIS
Notary Public Wyoming
PROFESSIONAL EXPERIENCE
2002 To Present Executive Director, Brain Injury Association of Wyoming, Casper, Wyoming
Responsibilities: Administrator for a small non-profit organization providing support groups,
information and referral services, educational opportunities, a resource library, prevention programs
and a link to national organizations all focused on the mission of providing advocacy for survivors,
family/friends and professionals; securing and developing information and referral services, respite
and support groups, and promoting prevention of brain injury. Duties include day-to-day
operations, bookkeeping, grant writing, staff management, public presentations, council and
committee work, advertising, public service announcements, coordination of events and support
groups, outreach, and community education.
2001-2002 Children’s Advocate, Self Help Center, Inc.
Casper, Wyoming
Supervise Safe-house residents, check in new residents, offer activities to occupy children, peercounseling,
lead domestic violence group, monitor track and update food inventory, plan develop
and implement summer art camp, household management, design new company brochure and

webpage, computerize forms, correspondence, track petty cash, identify community resources for
clients and make referrals, documentation, daily/monthly statistics, household maintenance.
1999-2002 Vice President, Board of Directors, BIAW
Casper, Wyoming
Assist and support Executive Director in management of a non-profit, supervise Executive Director,
provide annual evaluation of performance, set policy & procedure, oversight of fiscal responsibility,
annual budget approval.
1999-2002 Legal Secretary, McCrary Law Offices
Casper, Wyoming
Interview, hire, train and supervise new employees; quality assurance of other employee’s work;
document production; maintenance of company webpage; data entry; computer software installation
and upgrades, including manual revision of text in automated documents programs; customer
service; ordering supplies; correspondence-electronic and hard copy; deed writing and tracking;
organization of workplace, case files, computer files; development of training tools; notary public
certification.
1997-1999 Case Management Services, Self Employed
Casper, Wyoming
Provide case management, and evaluation services for as many as 23 developmentally disabled
and/or brain injured individuals including: locate and access community resources; coordinate
services: develop, monitor and implement individual care plans; evaluate community living,
employment, and transition skills; data collection and report writing; payee-ship services for Social
Security recipients; computer data entry, report generation for State of Wyoming Division of
Developmental Disabilities; represent clientele with NCSD #1 transition teams; advocate for client
and family rights; make referrals to appropriate social service agencies; assist new clients in
accessing services through Division of Developmental Disabilities; complete billing through
Medicaid, State of Wyoming DDD Contract services, DVR and private pay sources; bookkeeping
for self-employment; outcomes measurement, and demographics analysis.
1992-1997 Case Manager/Evaluator, NOWCAP Services, Inc.
Casper, Wyoming
Provide in-depth case management for up to 25 individuals with developmental, physical, and/or
mental disabilities including; locate and access community resources; coordinate services,
develop and implement individual care plans, monitor progress, and bill for assessments and
applicable services; evaluate community living, employment, and transition skills; report
writing; in-service training of staff; develop, implement and monitor PASS plans, and oversee
payee-ship services for Social Security recipients; computer data entry, computer training for coworkers,
report generation for various computer programs; represent NOWCAP at NCSD #1
transition team meetings and with Central Wyoming Rescue Mission Advisory Committee;
advocate for client and family rights and make referrals to appropriate social service agencies;
Level II screening for appropriate nursing home placements for the State of Wyoming Division

of Developmental Disabilities; assist new clients in accessing services through intake and
admissions process.
1990-1992 Lead Case Manager, MAXIMUS/WOW
(Contractor to the State of Wyoming Department of Family Services)
Casper, Wyoming
Supervise and manage office staff providing supports and services aimed at promoting self
sufficiency through employment; case management for a caseload of 72 AFDC recipients
consisting of: office set up; assignment of job duties; supervising ordering of office supplies, cost
estimates; assessment of barriers to employment; locating and accessing community resources
and/or funding through Department of Family Services; report writing; supervisory training; staff
training; staff meetings; presentation of services available to potential clients; quality control of
services provided; computer tracking of client progress; data entry; case file setup, maintenance,
and review; quality review of local and other Wyoming MAXIMUS service offices; liaison to
Curtis and Associates, and Department of Family Services; community presentation of available
services to other social service agencies; provide feedback to the State of Wyoming regarding
data collection devices, reports available, and data comparison between report sources and
viability of available computer reports; ongoing computer training; program evaluation; forms and
program development and implementation.
PRESENTER
Montana Brain Injury Conference 2009, Team building and organization of support groups.
Presented in Billings, Mt.
NASHIA 2008, Co-presenter on brain injury surveys for prison populations. Presented in
Williamsburg, VA.
Brain Injury Association of America 2008, Round table discussion regarding surveys for brain
injured prison populations.
HRSA Leadership Conference 2007, Co-presenter on creative outreach and brain injury prevention
in children. Presented in Washington D.C.
Wyoming Brain Injury Conference 2007, How to locate community resources for your brain injured
family member. Presented in Douglas, Wyoming.
Oregon Brain Injury Conference 2007, How to locate community resources for your clientele.
Undiagnosed Brain Injuries in Wyoming Prison Populations 2007, Acquired Brain Injury Task
Force, presented in Afton, Wyoming.
WYAPSE Conference 2006, Panelist on obstacles and barriers for people with disabilities. Presented
in Sheridan, Wyoming.
BIAUSA Leadership Conference 2006, Panelist on Innovative Ideas, related to Project B.R.A.I.N.
Presented in Bethesda, Maryland.

Wyoming Brain Injury Conference 2006, Targeted Case Management, how to get the most for your
client. Presented in Cheyenne, Wyoming.
Nutrition and Child Development Center 2006, Proper use and fitting of bicycle helmets for
maximum safety. Presented in Sheridan, Wyoming.
Patient Advocacy Workshop 2006, How to locate community resources for your clientele. Presented
in Cheyenne, Wyoming.
NASHIA 2005, Panelist on interstate cooperative activities. Presented in Washington, D.C.
MEGA Conference 2005, Panel discussion on services most frequently used by brain injury
survivors. Presented in Cheyenne, Wyoming.
Wyoming Brain Injury Conference 2004, Panelist on current brain injury services and gaps in
Wyoming. Presented in Casper, Wyoming.
BIAUSA Leadership Conference 2004, Panelist on successful expansion of brain injury support
groups in Wyoming. Presented in Nashville, Tennessee.
Home Health Care Alliance 2004, Motivation and Injury Prevention in Senior & Disabled
Populations. Presented in Casper, Wyoming.
Wyoming Medical Center Social Workers 2004 & 2006, discussion of BIAW’s role in Wyoming.
Presented in Casper, Wyoming.
Natrona County School District 2003, Brain Injury 101 for teachers. Presented in Casper,
Wyoming
Casper Housing Authority 2003, How to work with the brain injured population, and helpful
accommodations. Presented in Casper, Wyoming.
PROFESSIONAL AFFILIATIONS
Core Member of Wyoming ABI Task Force
Member of NASHIA, and NASHIA’s 2006 conference planning committee (National
Association of State Head Injury Administrators)
Affiliate of BIAUSA (Brain Injury Association of America) and member of Executive
Director’s Society
Member of BIAUSA’s 2008 conference planning committee
Member of Wyoming Trauma Coalition
Member of NCAPT (Natrona County Adult Protection Team)
Member of Natrona County Transition Team (school to adult services)
Member of WANO (Wyoming Association of Non-profit Organizations)
Member of Natrona County Affordable Housing Committee
Member of Safe Kids Wyoming, and Safe Kids of Central Wyoming
Governor’s appointee & Former Chairperson for Wyoming State Independent Living
Council, now Vice-Chair
Director for Project BRAIN-DVR (Dept. of Vocational Rehabilitation)

PUBLICATIONS
Member of VISIONS Admissions team (State of Wyoming)
Casper Housing Authority Hearing Officer
Governor’s appointee to Wyoming State Rehabilitation Council
Governor’s appointee to Mental Health Planning Council
Certified Brain Injury Specialist (CBIS) since 2004
1. Series of 3 posters for the Natrona County Adult Protection Team; Financial Abuse, Elder
Abuse and Emotional Abuse.
2. Booster Seat Poster for Safe Kids of Wyoming.
3. Used Helmets Not a Good Idea, Poster for BIAW.
4. Wyoming Homes and Living Magazine, 2 full-color ads for brain injury
awareness.
5. ½ page Editorial Opinion for Casper Star Tribune on brain injury services and gaps in
Wyoming.
6. Waiver Comparison Chart for BIAW, NCAPT and ABI Task Force.
7. BIAW Newsletters from 2002-2007.
8. Webpages for Self Help Center Inc., A-1 Private Investigations, Wyoming SILC,
and BIAW.
9. The Fence Post, ¼ page ad
10.Non-military Resources for Wyoming Veterans
MAJOR ACCOMPLISHMENTS
Expansion of support groups in Wyoming from 1 to 22; development of BIAW library; change from
support role for Wyoming’s annual brain injury conference to leadership of the conference;
development of BIAW newsletter; increase in volunteerism from 1 in 2002, to 76 volunteers in
2007; change in funding for BIAW from $68,475 in 2002, to $376,000.00 in 2007.
GRANTS MANAGEMENT
Department of Vocational Rehabilitation $5,000,$500,000, $4,000,
Division of Developmental Disabilities $5,000
HRSA Grant $20,000, $80,000, $118,600 (per yr x 3 yrs)
Wyoming Independent Living Rehabilitation $68,400, $68,400, $68,400, $70,400, $72,737,
$72,737, $72,237, $72,237
Storer Foundation $25,000
McMurry Foundation $2,000, $10,000, $5,000
Wyoming Community Foundation $3,000, $4,300, $10,000
Tonkin Foundation $3,200, $4,400, $5,400, $3,179
BIAUSA $4,000
Myra Fox Skelton Foundation $1,000
Fitzgerald Foundation for Children $1,000, $1,000, $1,500
City of Casper $2,400
Casper Star Tribune $1,000 advertising grant
Christopher Reeve Foundation $14,000
Ellbogen Foundation $2,500, &2,500
KM For Kids $1,000, $1,080

State Farm $1,000, $1,000
Walmart $1,000, $2,000, $1,000, $1,000
Covenant Insurance $1,000
Wyoming Trial Lawyers $1,980, $1,000, $1,500
Pharmaceutical Prescription Assistance $2,000, $4,000, $3,000
American Petroleum Institute $2,000, $4,000, $4,000, $3000
Mattel Toys $3,000, $3,000
Total $1,684,315.00

Sarah Jane Brain Family State Lead Center of Excellence
For the state of
TOTALS
Budget Overview for State Lead Center
State Lead Center Management Sub‐total: $ 324,126,920
Category of Care Management Sub‐total: $ 150,445,553
Case Management Sub‐total: $ 285,992,508
State Lead Center Sub‐total: $ 762,228,981
Indirect Cost to Institution (20%): $ 152,445,796
Administrative Cost to SJBF (2%): $ 15,244,580
SUB‐TOTAL AMOUNT OF GRANT PROPOSAL: $ 929,919,357

Title/Description Sub‐total Amount for Grant
STATE LEAD CENTER MANAGEMENT
Program Director: $ 5,605,499
Program Director Assistant: $ 5,212,523
State Director: $ 17,375,076
Associate State Director: $ 7,529,200
State Epidemiologist: $ 11,583,384
State Epidemiologist Assistant: $ 5,212,523
State Scientific Investigation Research Coordinator: $ 9,845,877
State Scientific Investigation Research Assistant: $ 9,845,877
State Education/Training Coordinator (plus materials): $ 17,366,876
State General Counsel: $ 13,900,061
State IT Manager: $ 11,004,215
State Family Support Coordinator: $ 8,687,538
State Prevention/Awareness Coordinator: $ 8,687,538
State Acute Care Coordinator: $ 8,687,538
State Reintegration Coordinator: $ 8,687,538
State Adult Transition Coordinator: $ 8,687,538
State Mild TBI Coordinator: $ 8,687,538
State Mental Health Coordinator: $ 7,529,200
State Assistive/Emerging Technology Coordinator: $ 7,529,200
State Correctional System Coordinator: $ 7,529,200
State MISC Coordinator: $ 7,529,200
State Veterans Coordinator: $ 7,529,200
State Data Manager: $ 7,529,200
State Public Policy Manager: $ 8,687,538
State Community Relations Manager: $ 7,529,200
State Administrative Support: $ 31,275,137
Charity care: $ 17,313,204
Human Resources Support: $ 6,150,000
Training Support: $ 1,537,500
State Lead Center Office Space Cost: $ 16,658,968
State Lead Center Transportation/Travel: $ 5,682,633
State Lead Center Office Equipment/Communications: $ 10,270,000
State Lead Center Supplies: $ 5,373,861
Annual and Regional Conferences: $ 1,664,000
State Brain Injury Association Pediatric Programs: $ 4,836,694
STATE LEAD CENTER MANAGEMENT SUB‐TOTAL: $ 324,126,920

n/a Profile continued
Title/Description Sub‐total Amount for Grant
CATEGORY OF CARE RESPONSIBILITY:
National Category Director: $ 3,746,260
National Category Epidemiologist: $ 2,877,840
National Category Education/Training Coordinator: $ 2,302,272
National Category Scientific Investigation Research: $ 2,302,272
National Category Additional: $ 3,245,200
National Additional Tech: $ 29,700,000
Regional Category Director: $ 17,375,076
Regional Category Epidemiologist: $ 13,900,061
Regional Category Education/Training Coordinator: $ 11,583,384
Regional Category Scientific Investigation Research: $ 11,583,384
Regional Category Additional: $ 6,847,752
Regional Additional Tech
Regional Category Administrative Support: $ 20,850,092
Regional Category Office Space Cost: $ 5,280,678
Regional Category Transportation/Travel: $ 8,347,500
Regional Category Office Equipment/Communications: $ 1,553,100
Regional Category Supplies: $ 1,703,445
CATEGORY OF CARE SUB‐TOTAL: $ 150,445,553

n/a Profile continued
Title/Description Sub‐total Amount for Grant
CASE MANAGEMENT RESPONSIBILITY
Level 1 Center Manager(s): $ 22,121,920
Level 1 Center Field Specialist(s): $ 17,697,536
Level 1 Center SJB Family Specialist(s): $ 123,135,097
Level 1 Center Administrative Support: $ 19,909,728
Level 1 Office Space Cost: $ 2,620,067
Level 1 Transportation/Travel: $ 3,800,764
Level 1 Office Equipment/Communications: $ 3,926,000
Level 1 Supplies: $ 5,881,926
Level 2 Center Field Specialist(s): $ 14,405,733
Level 2 Center SJB Family Specialist(s): $ 48,366,105
Level 2 Transportation/Travel: $ 1,510,362
Level 2 Office Equipment/Communications: $ 2,340,800
Level 2 Supplies: $ 1,875,902
Level 3 Center SJB Family Specialist(s): $ 16,616,665
Level 3 Transportation/Travel: $ 403,650
Level 3 Office Equipment/Communications: $ 883,500
Level 3 Supplies: $ 496,752
CASE MANAGEMENT SUB‐TOTAL: $ 285,992,508
STATE LEAD CENTER SUB‐TOTAL: $ 762,228,981
INDIRECT COST TO INSTITUTION: $ 152,445,796
ADMINISTRATIVE FEE TO SJBF: $ 15,244,580
STATE LEAD CENTER SUB‐TOTAL: $ 929,919,357
TOTAL JOBS CREATED IN TOTALS: 6,150

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