MDF Magazine Issue 53 August 2017
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Subscription and contributions to<br />
the magazine<br />
We publish three issues of <strong>MDF</strong> <strong>Magazine</strong><br />
a year and you can subscribe online<br />
to the magazine or by calling your nearest<br />
branch.<br />
If you have any feedback on our publications,<br />
please contact the National Office<br />
by email at national@mdsa.org.za<br />
or call 011 472-9703.<br />
Get all the latest news on the fight<br />
against muscle-wasting conditions and<br />
the latest research updates. It is our editorial<br />
policy to report on developments<br />
regarding the different types of dystrophy<br />
but we do not thereby endorse any<br />
of the drugs, procedures or treatments<br />
discussed. Please consult with your own<br />
physician about any medical interventions.<br />
If you are interested in sharing your inspirational<br />
stories, please let us know<br />
and we’ll be in touch to discuss this<br />
with you.The Foundation would love<br />
to hear from affected members, friends,<br />
family, doctors, researchers or anyone<br />
interested in contributing to the magazine.<br />
Articles may be edited for space<br />
and clarity.<br />
<strong>MDF</strong> SA database<br />
If you know people affected by muscular<br />
dystrophy or neuromuscular disorders<br />
who are not members, please<br />
ask them to contact us so that we can<br />
register them on our database. If we do<br />
not have your current e-mail and postal<br />
address, please contact your branch so<br />
that we can update your details on our<br />
database.<br />
How can you help?<br />
Branches are responsible for doing their<br />
own fundraising to assist members with<br />
specialised equipment. Contact your<br />
nearest branch of the Muscular Dystrophy<br />
Foundation of South Africa to find<br />
out how you can help with fundraising<br />
events for those affected with muscular<br />
dystrophy.<br />
Fundraising<br />
Crossbow Marketing Consultants (Pty)<br />
Ltd are doing invaluable work through<br />
the selling of annual forward planners.<br />
These products can be ordered from<br />
Crossbow on 021 700-6500. For enquiries<br />
contact National Office by email at<br />
national@mdsa.org.za or call 011 472-<br />
9703.<br />
<strong>MDF</strong> ::<br />
<strong>MDF</strong> support information<br />
For more information about the Muscular Dystrophy Foundation, the benefits of<br />
being a member and details on how to become a member, call your nearest branch.<br />
CAPE BRANCH (Western Cape,<br />
Northern Cape & part of Eastern<br />
Cape)<br />
E-mail: cape@mdsa.org.za<br />
Tel: 021 592-7306<br />
Fax: 086 <strong>53</strong>5 1387<br />
Address: 3 Wiener Street, Goodwood,<br />
7460<br />
Banking details: Nedbank, current<br />
account no. 2011007631<br />
branch code 101109<br />
GAUTENG BRANCH (Gauteng,<br />
Free State, Mpumalanga, Limpopo<br />
& North West)<br />
E-mail: gauteng@mdsa.org.za<br />
Website: www.mdfgauteng.org<br />
Website: www.muscleriders.co.za<br />
Tel: 011 472-9824<br />
Fax: 086 646 9118<br />
Address: 12 Botes Street, Florida Park,<br />
1709<br />
Banking details: Nedbank, current<br />
account no. 1958323284<br />
branch code 192841<br />
Pretoria Office<br />
E-mail: swpta@mdsa.org.za<br />
Tel: 012 323-4462<br />
Address: 8 Dr Savage Road, Prinshof,<br />
Pretoria<br />
KZN BRANCH (KZN & part of<br />
Eastern Cape)<br />
E-mail: kzn@mdsa.org.za<br />
Tel: 031 332-0211<br />
Address: Office 7, 24 Somtseu Road,<br />
Durban, 4000<br />
Banking details: Nedbank, current<br />
account no. 1069431362<br />
branch code 198765<br />
General MD Information<br />
Cape Town<br />
Lee Leith<br />
Tel: 021 794-5737<br />
E-mail: leeleith@mweb.co.za<br />
Gauteng<br />
Pieter Joubert<br />
Tel: 011 472-9824<br />
E-mail: gauteng@mdsa.org.za<br />
General Support Group Gauteng<br />
East Rand<br />
Zigi Kerstholt<br />
Cell: 082 499 9384<br />
E-mail: z.kerstholt@gmail.com<br />
Duchenne MD<br />
Cape<br />
Win van der Berg (Support Group)<br />
Tel: 021 557-1423<br />
Penny Cato<br />
Tel: 021 671-8702<br />
KZN<br />
Maxine Strydom (Support Group)<br />
Tel: 031 762-1592<br />
Cell: 083 290 6695<br />
Gauteng<br />
Jan Ferreira (Support Group – Pretoria)<br />
Tel: 012 998-0251<br />
Estelle Fichardt<br />
Tel: 012 667-6806<br />
Christine Winslow<br />
Cell: 082 608 4820<br />
Charcot Marie Tooth (CMT)<br />
Hettie Woehler<br />
Cell: 084 581 0566<br />
E-mail: hettie@leefvoluit.co.za<br />
Facioscapulohumeral (FSHD)<br />
Francois Honiball<br />
Tel: 012 664-3651<br />
Barry Snow<br />
Cell: 083 66 66 270<br />
E-mail: barry.snow@worleyparsons.<br />
com<br />
Friedreich Ataxia (FA)<br />
Linda Pryke<br />
Cell no: 084 405 1169<br />
Nemaline Myopathy<br />
Adri Haxton<br />
Tel: 011 802-7985<br />
Spinal Muscular Atrophy (SMA)<br />
Zeta Starograd<br />
Tel: 011 640-1<strong>53</strong>1<br />
Lucie Swanepoel<br />
Tel: 017 683-0287<br />
Spinal Muscular Atrophy (Adult<br />
SMA)<br />
Justus Scheffer<br />
Tel: 012 331-3061<br />
E-mail: justusscheffer@gmail.com<br />
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