Annual Report of Tuberous Sclerosis Australia 2016/17

More documents

Recommendations

Info

hank kyou Together, we have had a major impact on the TSC Community. Thanks to your generosity TSA of pride for the work we have done supporting individuals living with TSC now and for the future. This wouldn`t have been possible without your help. TSC Heroes Thank you to all the TSC Heroes who raised funds and awareness for TSA by joining in these events. Western Sydney Ironman 70.30 Heroes, was proud to bring the team back together for a half ironman: 1.9km swim; 90km bike ride and 20km run. They raised Anthony, are fathers of children with TSC. City2Surf 2016 Belinda Allchin, who has two sisters with TSC, ran in Sydney’s iconic City 2 Surf in August and raised $791.75. Bridge to Brisbane 2016 TSA supporters, led by Isabella and Miranda, took on the Bridge to Brisbane Day in August and raised $715. #imovebeCAUSE Peta and Christy moved every day in May and raised almost $200. TSC Champions donate $6,014 Our regular givers, known as TSC Champions, make monthly contributions to TSA. These are vital donations we can rely upon each month to carry out our work. TSC Members contribute $11,436 We are incredibly grateful to our Gold, Silver and Bronze members who each year give so generously by renewing their membership and making a valuable contribution in support of TSA. Special Events Our Suppliers Pictured above: TSC Heroes in the 2017 Bridge to Brisbane We wish to thank all our generous partners who work with us to provide free goods and services. Belinda The Design Web Anchor Web Hosting NextPrint in Castle Hill, NSW Magazines By Design Orange Clothing Company Caz Nowaczyk for your graphic design help over the last three years Lizzies Lunch 2017 Raised over $16,000. That’s our biggest and best yet. Enormous thanks to Sue and Ross Pinkerton for being the driving force in running this successful fundraiser each year. Thanks to the generosity of Diana Ferrari just under $1,000 was raised at a fabulous shopping night fundraiser held at the Diana Ferrari Castle Hill store. Bunnings AFL Party The team at the Bunnings celebration to raise funds for TSA. We’re grateful for the $2,269 they raised. Daphna`s 40 for FOURTY Celebrated Daphna $2,000 to TSA’s work. In memory of Sienna Goong Over $1,800 was donated to TSA to honour Sienna’s life. Sienna will be forever in our thoughts. 12
Our Partners TSA works closely with many organisations to ensure individuals with TSC in Australia have access to world-class treatment opportunities and information. We are an active member of TSC International and regularly collaborate with TSC NZ. We advocate for people with TSC through our work with the Consumers We are thankful for our collaborative partnerships with these organisations. Regional Contacts Our regional contacts work with local families to share information and experiences. They help make sure everyone with TSC has someone close by they can turn to. • Sally Nicholson New South Wales • Dawn Bowra Australian Capital Territory • Nicole Stone Western Australia • Fiona Hiatt Queensland • Christy Herbert Queensland • Fiona Crocker Queensland • Narelle Kerr • Alison McIvor • Georgina Schilg Tasmania Volunteers To all our wonderful volunteers around Australia, what would we do without you! Special mentions to Teresa Llewellyn-Evans, Editor of Reach Out and Filipa Ottley, for her assistance with risk management. We couldn`t do what we do Our TSC Families without you. by TSC who come along to our educational events, picnics and fundraisers and support our work by sharing your experiences with us. You help inspire and motivate people to support us – thank you so much! We are also incredibly thankful to all the families who share their stories and photos with us. Your willingness to share your journey helps others know they are not alone in their experiences. Our TSC Professionals Network Thank you to all the medical specialists who worked with us to improve and grow TSA’s information and support services this year. We couldn’t do it without you! This year we recognised the dedication of Dr Simon Harvey to his TSC patients and their families by awarding him the 2017 Elizabeth Pinkerton Memorial Award. Dr Harvey is a paediatric neurologist and epilepsy specialists at The Royal Children’s Hospital in Melbourne and has an active research program into surgical treatment options for children with TSC and epilepsy. Donations We would like to thank each and every donor who has so kindly supported TSA. Every dollar no matter how big or small helps. Pictured above: 13
Page 1 and 2: Annual Report Together we can creat
Page 3 and 4: uberous Sclerosis ustralia a (TSA)
Page 5 and 6: SA'S chievements A summary of the a
Page 7 and 8: Gorgeous Greta is 9 years old and h
Page 9 and 10: When Oscar was seven months old, he
Page 11: Overcome barriers: Identify barrier
Page 15 and 16: In honour of Oliver Lumby $100 and
Page 17 and 18: Financial statements Balance Sheet
Page 19 and 20: Where funds came from Community Fun

Annual Report of Tuberous Sclerosis Australia 2016/17

You also want an ePaper? Increase the reach of your titles

Delete template?

Save as template?