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Reach Out April 2018

Information about tuberous sclerosis and news from Tuberous Sclerosis Australia. This issue includes a special focus on siblings.

Information about tuberous sclerosis and news from Tuberous Sclerosis Australia. This issue includes a special focus on siblings.

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Personal Stories<br />

Cooper’s story<br />

am ten years old and since my brother was born, it’s been<br />

I a twisted life. Lachlan is now six years old and has tuberous<br />

sclerosis complex (TSC). He’s had brain surgery and also<br />

has autism.<br />

It’s not often that you get a good kind of Lachie, but I think<br />

you’ve got to love what you’ve got. We get to play games together,<br />

we love adventures and we love tickling each other.<br />

One of the hardest parts of being Lachie’s big brother is being<br />

woken up early in the morning to be played with. You don’t get<br />

much shut eye with Lachie in the house.<br />

I know that TSC means that Lachie sometimes doesn’t behave<br />

himself. Sometimes he’ll give kisses and hugs; other times he’ll<br />

smack or scratch. It’s his choice, but his brain makes different<br />

choices than our brains.<br />

I talk about Lachie and about how he’s had brain surgery and<br />

how tough it is with him sometimes. I explain that he’s the reason<br />

I don’t always get to school on time and don’t get to play with my<br />

friends a lot. Now that my friends understand, they do play with<br />

Lachie sometimes. I tell them to be careful when touching Lachie.<br />

When I play soccer Lachie sometimes interrupts the game. He<br />

screams out loud and claps. He joins in with our family activities.<br />

My teacher’s brother also has autism but he’s different to<br />

Lachie. I’ve learnt some new things about autism from chatting<br />

with my teacher, like how people with autism can learn things,<br />

but they may need to be shown something a lot of times for them<br />

to learn it.<br />

Having a difficult life means I get to learn how to cope. I get to<br />

teach Lachie things and he teaches me stuff back.<br />

Cooper & Lachlan<br />

One of the hardest parts of being Lachie’s big<br />

brother is being woken up early in the morning to be<br />

played with. You don’t get much shut eye with Lachie<br />

in the house.<br />

11

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