Reach Out April 2018
Information about tuberous sclerosis and news from Tuberous Sclerosis Australia. This issue includes a special focus on siblings.
Information about tuberous sclerosis and news from Tuberous Sclerosis Australia. This issue includes a special focus on siblings.
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Personal Stories<br />
Cooper’s story<br />
am ten years old and since my brother was born, it’s been<br />
I a twisted life. Lachlan is now six years old and has tuberous<br />
sclerosis complex (TSC). He’s had brain surgery and also<br />
has autism.<br />
It’s not often that you get a good kind of Lachie, but I think<br />
you’ve got to love what you’ve got. We get to play games together,<br />
we love adventures and we love tickling each other.<br />
One of the hardest parts of being Lachie’s big brother is being<br />
woken up early in the morning to be played with. You don’t get<br />
much shut eye with Lachie in the house.<br />
I know that TSC means that Lachie sometimes doesn’t behave<br />
himself. Sometimes he’ll give kisses and hugs; other times he’ll<br />
smack or scratch. It’s his choice, but his brain makes different<br />
choices than our brains.<br />
I talk about Lachie and about how he’s had brain surgery and<br />
how tough it is with him sometimes. I explain that he’s the reason<br />
I don’t always get to school on time and don’t get to play with my<br />
friends a lot. Now that my friends understand, they do play with<br />
Lachie sometimes. I tell them to be careful when touching Lachie.<br />
When I play soccer Lachie sometimes interrupts the game. He<br />
screams out loud and claps. He joins in with our family activities.<br />
My teacher’s brother also has autism but he’s different to<br />
Lachie. I’ve learnt some new things about autism from chatting<br />
with my teacher, like how people with autism can learn things,<br />
but they may need to be shown something a lot of times for them<br />
to learn it.<br />
Having a difficult life means I get to learn how to cope. I get to<br />
teach Lachie things and he teaches me stuff back.<br />
Cooper & Lachlan<br />
One of the hardest parts of being Lachie’s big<br />
brother is being woken up early in the morning to be<br />
played with. You don’t get much shut eye with Lachie<br />
in the house.<br />
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