Reach Out October 2018

Fundraising
Emma
Christmas in July
Little Emma’s journey with TSC
inspired her local community to
raise funds for TSA at a Christmas in July
fundraiser on 21 July at Padstow Bowling
and Snooker Club. Special thanks to
Emma’s grandparents, John and Donna,
for rallying over 150 people to get together
and support people living with TSC. Just
over $11,000 was donated to TSA. Well
done and thank you so much.
Lizzie’s Lunch
Thank you
massive thank you to everyone
A who so generously supported our
tax time appeal. Brody’s gorgeous face
helped spread our message and we thank
his family for sharing his photo and
their story with us. Over $13,000 was
donated in June. This will greatly assist
us in our work helping individuals and
families affected by TSC. We especially
welcome our new members who joined
TSA as part of this appeal. Thank you!
Brody
Lizzie’s Lunch
We celebrated the fifth annual
Lizzie’s Lunch fundraiser on
Sunday 3 June at the Hills Lodge, Castle
Hill. Thank you to Sue Pinkerton and
everyone who came along and helped raise
just over $19,000. It was wonderful to have
our TSC paralympian Taylor Doyle and
her mum Shireen join us this year. Our
thanks to Shireen for sharing her story
about her family’s life with TSC.
Treatment Trial
Treatment trial publication
To celebrate the publication of the topical rapamycin treatment trial TSA
hosted a small thank you event at Sydney Children’s Hospital. We would
like to thank everyone who was involved in this research, especially Dr David
Mowat and Dr Orli Wargon and the rest of the TSC multidisciplinary team at
Sydney Children’s Hospital, Randwick.
It was the combined efforts of our TSC community in raising
over $200,000 that ensured Australia could participate in this ground
breaking research.
IBM alumni luncheon
group of his former colleagues joined our Treasurer and TSC grandfather, Patrick
A Norris, for lunch recently. The group generously made a donation of $400 to TSA.
Thanks IBM old boys!
Join TSA
I
f running marathons isn’t your thing, please consider making an annual contribution
through a membership of TSA. Thank you to everyone who already supports TSA in this way.
Memberships start from just $25 per year and all of our members receive a printed copy
of Reach Out. Plus you get to experience that wonderful feeling of knowing you’ve joined an
organisation dedicated to helping Australians living with this devastating rare disease. It’s
easy to become a member today at www.tsa.org.au/join
Thanks Rotary
We are thrilled to have received a
generous contribution of $2,000
from the Rotary Club of Orange Daybreak
following Clare Stuart’s presentation
on TSC Global Awareness Day. If you
know anyone in your local Rotary or
Lions Club, please consider approaching
them to talk about your experiences
with TSC. These service clubs are
wonderful supporters of so many worthy
organisations – help us throw our hat in
the ring.
Thank you again to all our supporters for your extraordinary help. YOU make a
difference to people living with TSC. We couldn’t do it without you.
23