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Story<br />
Andrews’s<br />
I’ll start at the<br />
end. It’s just over<br />
12 months since my<br />
treatment for HPV 16+<br />
Oropharyngeal Squamous<br />
Cell Carcinoma of an Unknown<br />
Primary ended, and I am happy to<br />
report that I am entirely cancer free<br />
at this time. The most amazing thing is<br />
that I am an even more positive and healthy<br />
person than I was before the Big C landed –<br />
with a few little kinks! The journey to get to where I<br />
am now has been far from easy though.<br />
I had little or no experience of cancer except for my<br />
mother dying of an untreated melanoma in 2015.<br />
I had certainly never heard of Squamous or throat<br />
cancer and had absolutely zero idea of how it was<br />
treated and what that treatment would do to me.<br />
It’s the knock on effects of the treatment that the<br />
awesome folk at the NHS don’t really want to<br />
expose to you and for very good reason. Of course,<br />
everyone wants to be cured, I am pretty sure the<br />
survival percentages would drop dramatically if every<br />
throat cancer patient could really understand what 6<br />
weeks of daily radiotherapy of the neck does to you.<br />
I am<br />
just an<br />
ordinary<br />
56-year-old<br />
English guy who<br />
was diagnosed<br />
with throat cancer out<br />
of the blue in November<br />
2016. Having gone through<br />
the last 18 months, what I<br />
want to share with this story is<br />
simply this:<br />
“Keep battling and stay positive -<br />
the power of the human mind and the<br />
strength of those around you will make<br />
your journey easier, whatever the outcome”<br />
I remember distinctly the moment that my quiet,<br />
unassuming but amazing ENT surgeon told me that<br />
I had a cancer of unknown origin somewhere in my<br />
mouth or neck. I was already 95% certain he was<br />
going to tell me the worst, so I was not surprised at<br />
all. I was with my wife of 30 years and on being told,<br />
my first words were:<br />
“I don’t care what you do to me even if it means<br />
being dipped in a vat of acid, let’s get this thing<br />
sorted!”<br />
A tiny smile flitted across his face but all he said<br />
was that he would give me a Radical Right Neck<br />
Dissection to remove the tumour and then I would<br />
have 6 weeks of chemo and radiation therapy. How<br />
little did I know…<br />
I had a PEG (tummy feed tube) fitted which was not<br />
a pleasant experience, boy was I glad of it after four<br />
weeks of radiation.<br />
I had an Unknown Primary cancer, meaning no-one<br />
knew where its exact origin was, I had to have<br />
“shotgun” radiation treatment for my entire neck<br />
area. This caused more trauma to the throat than if<br />
say they targeted just your tonsils. And by week four<br />
my taste was going, saliva was turning to a shitty<br />
28 24/7 Patient and Carer support line and text service: 07504 725 059 theswallows.org.uk