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Story<br />

Andrews’s<br />

I’ll start at the<br />

end. It’s just over<br />

12 months since my<br />

treatment for HPV 16+<br />

Oropharyngeal Squamous<br />

Cell Carcinoma of an Unknown<br />

Primary ended, and I am happy to<br />

report that I am entirely cancer free<br />

at this time. The most amazing thing is<br />

that I am an even more positive and healthy<br />

person than I was before the Big C landed –<br />

with a few little kinks! The journey to get to where I<br />

am now has been far from easy though.<br />

I had little or no experience of cancer except for my<br />

mother dying of an untreated melanoma in 2015.<br />

I had certainly never heard of Squamous or throat<br />

cancer and had absolutely zero idea of how it was<br />

treated and what that treatment would do to me.<br />

It’s the knock on effects of the treatment that the<br />

awesome folk at the NHS don’t really want to<br />

expose to you and for very good reason. Of course,<br />

everyone wants to be cured, I am pretty sure the<br />

survival percentages would drop dramatically if every<br />

throat cancer patient could really understand what 6<br />

weeks of daily radiotherapy of the neck does to you.<br />

I am<br />

just an<br />

ordinary<br />

56-year-old<br />

English guy who<br />

was diagnosed<br />

with throat cancer out<br />

of the blue in November<br />

2016. Having gone through<br />

the last 18 months, what I<br />

want to share with this story is<br />

simply this:<br />

“Keep battling and stay positive -<br />

the power of the human mind and the<br />

strength of those around you will make<br />

your journey easier, whatever the outcome”<br />

I remember distinctly the moment that my quiet,<br />

unassuming but amazing ENT surgeon told me that<br />

I had a cancer of unknown origin somewhere in my<br />

mouth or neck. I was already 95% certain he was<br />

going to tell me the worst, so I was not surprised at<br />

all. I was with my wife of 30 years and on being told,<br />

my first words were:<br />

“I don’t care what you do to me even if it means<br />

being dipped in a vat of acid, let’s get this thing<br />

sorted!”<br />

A tiny smile flitted across his face but all he said<br />

was that he would give me a Radical Right Neck<br />

Dissection to remove the tumour and then I would<br />

have 6 weeks of chemo and radiation therapy. How<br />

little did I know…<br />

I had a PEG (tummy feed tube) fitted which was not<br />

a pleasant experience, boy was I glad of it after four<br />

weeks of radiation.<br />

I had an Unknown Primary cancer, meaning no-one<br />

knew where its exact origin was, I had to have<br />

“shotgun” radiation treatment for my entire neck<br />

area. This caused more trauma to the throat than if<br />

say they targeted just your tonsils. And by week four<br />

my taste was going, saliva was turning to a shitty<br />

28 24/7 Patient and Carer support line and text service: 07504 725 059 theswallows.org.uk

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