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4 | April 25, 2019 | the new lenox patriot news<br />
newlenoxpatriot.com<br />
New Lenox woman nearing Stage 5 kidney failure<br />
Jessie Molloy<br />
Freelance Reporter<br />
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Susan Willenborg did<br />
not expect to receive bad<br />
news when she saw her<br />
doctor for a routine checkup<br />
in 2008. Aside from<br />
her slight anemia, the New<br />
Lenox resident had no<br />
known health complications<br />
or symptoms of illness,<br />
yet after reviewing<br />
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the results of a blood test<br />
her doctor recommended<br />
she see a specialist. She<br />
had been diagnosed with<br />
Kidney Disease.<br />
For over 10 years Willenborg<br />
has done her best<br />
to live a normal lifestyle<br />
with the disease, continuing<br />
to go to her job in Chicago<br />
everyday and taking<br />
up cooking to adhere to her<br />
doctor-recommended diet.<br />
“I’m on a restricted<br />
diet so I’ve gotten really<br />
into cooking,” she said. “I<br />
have to watch my intake<br />
of sodium, protein, potassium,<br />
and phosphorous so<br />
prepared foods just really<br />
don’t work for me. I also<br />
can’t have much cheese, so<br />
I haven’t been able to eat a<br />
pizza in years.”<br />
Willenborg has to also<br />
keep a close eye on how<br />
much she drinks, as too<br />
much water can be problematic,<br />
but her impaired<br />
kidney function also puts<br />
her at risk for severe dehydration.<br />
“I was doing a charity<br />
hike last summer and<br />
started to feel overheated<br />
and light headed” she said.<br />
“They told me I passed<br />
out from dehydration, and<br />
I had to do an overnight<br />
stay at Silver Cross hospital<br />
while I received fluids.<br />
It’s a very difficult thing to<br />
balance.”<br />
When Willenborg was<br />
diagnosed she had Stage 3,<br />
or moderate, kidney failure<br />
which means her kidney<br />
function, or Glomerular<br />
Filtration Rate (GFR)<br />
was at about 40 percent.<br />
By 2012 she had reached<br />
Stage 4 failure, which includes<br />
a GFR between 29<br />
and 15 percent.<br />
“In 2016 I hit 20 percent<br />
and I was told I would either<br />
need a donor or dialysis<br />
soon,” said Willenborg.<br />
Dialysis or a transplant<br />
becomes necessary when<br />
a patient reaches Stage 5,<br />
when the GFR drops below<br />
15 percent. Willenborg<br />
was put on the transplant<br />
list through University of<br />
Chicago in April of 2017.<br />
Since then Willenborg<br />
said some of her friends<br />
and her sister have offered<br />
to be a living donor for her,<br />
but unfortunately, none of<br />
them have been able to.<br />
“If someone wants to be<br />
a donor they first get interviewed<br />
about their health,<br />
then they do tests to make<br />
sure they’re a match for<br />
the recipient,” Willenborg<br />
explained. “They really<br />
make sure to look out for<br />
the donor’s health.<br />
“Donor’s medical bills<br />
are covered by the recipient’s<br />
insurance and the<br />
operation is minimally invasive<br />
at this point, but if<br />
it could cause health problems<br />
later on they will disqualify<br />
you.”<br />
Shortly after being put<br />
on the donor list, Willenborg<br />
attended a conference<br />
on kidney disease<br />
and heard that it was not<br />
uncommon for individuals<br />
to wait seven years<br />
before receiving an organ.<br />
In that time, many patients<br />
have to undergo constant<br />
dialysis, which can wreak<br />
havoc on their ability to<br />
work regular schedules.<br />
Additionally, Willenborg<br />
has blood drawn and sent<br />
in to an organ sharing network<br />
each month so they<br />
can test accurately for<br />
matches.<br />
Willenborg could need<br />
to start at-home dialysis<br />
as soon as June. She has<br />
an appointment with her<br />
doctor in late May where<br />
she may need to have the<br />
catheter placed to enable<br />
the treatment.<br />
“It’s going to depend<br />
on the test results at the<br />
appointment, but I could<br />
have to start soon,” she<br />
said.<br />
While Willenborg noted<br />
that the at home process<br />
she would be undergoing<br />
is the “easiest” type of<br />
dialysis and can be done<br />
while she sleeps with a<br />
machine in her house, she<br />
is afraid of how it will impact<br />
her schedule.<br />
“With how long it takes<br />
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