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4 | April 25, 2019 | the new lenox patriot news<br />

newlenoxpatriot.com<br />

New Lenox woman nearing Stage 5 kidney failure<br />

Jessie Molloy<br />

Freelance Reporter<br />

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Susan Willenborg did<br />

not expect to receive bad<br />

news when she saw her<br />

doctor for a routine checkup<br />

in 2008. Aside from<br />

her slight anemia, the New<br />

Lenox resident had no<br />

known health complications<br />

or symptoms of illness,<br />

yet after reviewing<br />

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the results of a blood test<br />

her doctor recommended<br />

she see a specialist. She<br />

had been diagnosed with<br />

Kidney Disease.<br />

For over 10 years Willenborg<br />

has done her best<br />

to live a normal lifestyle<br />

with the disease, continuing<br />

to go to her job in Chicago<br />

everyday and taking<br />

up cooking to adhere to her<br />

doctor-recommended diet.<br />

“I’m on a restricted<br />

diet so I’ve gotten really<br />

into cooking,” she said. “I<br />

have to watch my intake<br />

of sodium, protein, potassium,<br />

and phosphorous so<br />

prepared foods just really<br />

don’t work for me. I also<br />

can’t have much cheese, so<br />

I haven’t been able to eat a<br />

pizza in years.”<br />

Willenborg has to also<br />

keep a close eye on how<br />

much she drinks, as too<br />

much water can be problematic,<br />

but her impaired<br />

kidney function also puts<br />

her at risk for severe dehydration.<br />

“I was doing a charity<br />

hike last summer and<br />

started to feel overheated<br />

and light headed” she said.<br />

“They told me I passed<br />

out from dehydration, and<br />

I had to do an overnight<br />

stay at Silver Cross hospital<br />

while I received fluids.<br />

It’s a very difficult thing to<br />

balance.”<br />

When Willenborg was<br />

diagnosed she had Stage 3,<br />

or moderate, kidney failure<br />

which means her kidney<br />

function, or Glomerular<br />

Filtration Rate (GFR)<br />

was at about 40 percent.<br />

By 2012 she had reached<br />

Stage 4 failure, which includes<br />

a GFR between 29<br />

and 15 percent.<br />

“In 2016 I hit 20 percent<br />

and I was told I would either<br />

need a donor or dialysis<br />

soon,” said Willenborg.<br />

Dialysis or a transplant<br />

becomes necessary when<br />

a patient reaches Stage 5,<br />

when the GFR drops below<br />

15 percent. Willenborg<br />

was put on the transplant<br />

list through University of<br />

Chicago in April of 2017.<br />

Since then Willenborg<br />

said some of her friends<br />

and her sister have offered<br />

to be a living donor for her,<br />

but unfortunately, none of<br />

them have been able to.<br />

“If someone wants to be<br />

a donor they first get interviewed<br />

about their health,<br />

then they do tests to make<br />

sure they’re a match for<br />

the recipient,” Willenborg<br />

explained. “They really<br />

make sure to look out for<br />

the donor’s health.<br />

“Donor’s medical bills<br />

are covered by the recipient’s<br />

insurance and the<br />

operation is minimally invasive<br />

at this point, but if<br />

it could cause health problems<br />

later on they will disqualify<br />

you.”<br />

Shortly after being put<br />

on the donor list, Willenborg<br />

attended a conference<br />

on kidney disease<br />

and heard that it was not<br />

uncommon for individuals<br />

to wait seven years<br />

before receiving an organ.<br />

In that time, many patients<br />

have to undergo constant<br />

dialysis, which can wreak<br />

havoc on their ability to<br />

work regular schedules.<br />

Additionally, Willenborg<br />

has blood drawn and sent<br />

in to an organ sharing network<br />

each month so they<br />

can test accurately for<br />

matches.<br />

Willenborg could need<br />

to start at-home dialysis<br />

as soon as June. She has<br />

an appointment with her<br />

doctor in late May where<br />

she may need to have the<br />

catheter placed to enable<br />

the treatment.<br />

“It’s going to depend<br />

on the test results at the<br />

appointment, but I could<br />

have to start soon,” she<br />

said.<br />

While Willenborg noted<br />

that the at home process<br />

she would be undergoing<br />

is the “easiest” type of<br />

dialysis and can be done<br />

while she sleeps with a<br />

machine in her house, she<br />

is afraid of how it will impact<br />

her schedule.<br />

“With how long it takes<br />

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