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Carer Awareness

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<strong>Carer</strong> <strong>Awareness</strong><br />

Supporting <strong>Carer</strong>s on the<br />

frontline<br />

Who are<br />

<strong>Carer</strong>s<br />

Supporting<br />

<strong>Carer</strong>s<br />

Young<br />

<strong>Carer</strong>s


Who are carers<br />

This training presentation will help you in your work when you may come<br />

across or need to support people who are looking after a loved one. You<br />

may be a social worker, a hospital or community nurse, an occupational<br />

therapist, a GP, a domiciliary or residential care worker or a community<br />

volunteer.<br />

Whatever your role, if you are working with people who are ill, older or<br />

disabled, then you will be working with the people who support themwhether<br />

that is a family member, friend or neighbour. They can need your<br />

help too, and this training presentation will help you understand what they<br />

need and how you and Sefton <strong>Carer</strong>s Centre can support them more<br />

effectively.


Learning Objectives<br />

• Identify <strong>Carer</strong>s<br />

• Define what it is to be a carer<br />

• Describe some facts about carers


Who is a carer<br />

Consider the people you encounter in your daily<br />

life? Are any of them carers? Do they provide<br />

unpaid care to a friend, neighbour, or family<br />

member who couldn’t manage alone?<br />

Is this person in need of help due to frailty, age,<br />

physical illness, mental health condition, or<br />

addiction?<br />

If you encounter anyone who answers yes to<br />

either, or both, of the questions above, it is<br />

extremely likely that they will be classed as a<br />

carer.<br />

While being a carer doesn’t define you, it may<br />

mean that they have important legal rights<br />

including the right to certain types of financial<br />

support, practical help, assistance technology and<br />

rights in the workplace.<br />

In this exercise type a list of people you know<br />

who you think should be identified as carers.


Who Do<br />

<strong>Carer</strong>s Care<br />

For?<br />

5%<br />

Young Adult<br />

40%<br />

Parents<br />

26%<br />

Spouse/Partner<br />

4%<br />

Grandparents<br />

7%<br />

Other Relative<br />

9%<br />

Friend or<br />

Neighbour<br />

8%<br />

Disabled Child


What do<br />

carers do<br />

Seeing someone for a meal or<br />

a chat<br />

Help with household<br />

chores like cleaning,<br />

shopping, gardening<br />

Help with banking<br />

& payments<br />

Help with moving<br />

around e.g.<br />

getting in and out<br />

of bed<br />

Telephoning to find out how<br />

someone is<br />

Arranging & coordinating<br />

care and<br />

support<br />

Help with applying<br />

for benefits<br />

Help with<br />

washing &<br />

dressing<br />

The table to the right contains<br />

four lists of typical carer<br />

activities. Click and drag the<br />

titles from the bottom of the<br />

screen into the table to<br />

identify which categories of<br />

support each listings belong<br />

too.<br />

Finding befriending services<br />

Keeping in touch remotely, for<br />

e.g. Skype<br />

Supporting leisure<br />

activities<br />

Going to doctors or<br />

hospital appointments<br />

Sorting out<br />

payment for care<br />

Finding out about<br />

or applying for<br />

power of attorney<br />

Administering or<br />

checking that<br />

someone has<br />

taken their<br />

medication<br />

Providing<br />

specialist care e.g.<br />

peg feeding or<br />

catheter changing


How does Caring Affect Someone's Life<br />

People want to support their loved ones and caring can<br />

be a great source of satisfaction. It can strengthen<br />

relationships and help people develop new skills and<br />

manage challenging situations. But evidence shows that<br />

when caring is full on and without support carers can<br />

struggle to get a good nights sleep, to stay healthy, to<br />

maintain relationships with friends and family, to hold<br />

down a job and have a life outside of the caring role


What are the<br />

Factors That Make a<br />

Difference to Caring<br />

You might need to find out about someone's<br />

situation to identify their needs for support.<br />

Here are some examples of factors that can<br />

make a difference and some questions you<br />

maybe could ask.<br />

The relationship to the person cared for: this<br />

will have an emotional and practical impact<br />

on the carer<br />

• Who is the carer looking after?<br />

• A parent?<br />

• A disabled child?<br />

• A spouse or partner?<br />

• An in- law?


What are the Factors That<br />

Make a Difference to<br />

Caring?<br />

The nature of the condition , disability or illness;<br />

there is a world of difference between caring for<br />

someone with dementia and someone with a spinal<br />

injury; or someone who has had a stroke and<br />

someone with schizophrenia<br />

• What Is the illness or condition of the cared for?<br />

• Is it long term and/or degenerative?<br />

• Is it short term and/or acute?<br />

• Is it a mental health problem?<br />

• Does it involve physical care?


What are the Factors That<br />

Make a Difference to Caring?<br />

Whether the carer is alone or sharing<br />

care; this can determine the level of care<br />

provided or how able the carer is to cope.<br />

Is there only one person providing care?<br />

Are they sharing the care with other<br />

family members, friends or neighbours?<br />

Does the carer have additional help from<br />

care and support services?


What are the Factors That Make a Difference to Caring?<br />

What else is going on in the carers family life: one in six middle<br />

aged carers is also juggling other family responsibilities or<br />

caring for more than one person, often called “sandwich<br />

caring”<br />

Is the carer single or married?<br />

Do they have other children or grandchildren?<br />

Are they caring for more than one person?


What are the Factors That Make a Difference to Caring?<br />

What else is going on in a <strong>Carer</strong>s working life; over three million<br />

people in England & Wales work and care, and may need<br />

support from their employers or from external agencies to<br />

manage both.<br />

Does the carer work full time?<br />

Is their employer supportive<br />

Have they had to change their job or working hours<br />

Are they self- employed<br />

Do they need flexible care and support services


What are the Factors That Make a Difference to Caring?<br />

Someone's character, finding a way through the maze of health<br />

and care support services can be daunting, and many carers<br />

end up having to fight for support they need both for the<br />

person they care for and themselves.<br />

Is the carer confident and assured?<br />

Are they shy not so good at speaking up for themselves or<br />

confident in asking for help?<br />

Are they intimidated by professionals?<br />

Are they comfortable asking questions?


What are the Factors That Make a Difference to Caring?<br />

Where the carer is from; cultural or social background can have<br />

an effect on what is expected of someone.<br />

Does the carer have family around them?<br />

Does the rest of the family expect them to care?<br />

Will there be disapproval from other families or their<br />

community if they do not take on the caring role?<br />

Will they be expected to give up work to continue in the caring<br />

role?


What are the Factors That Make a Difference to Caring?<br />

Where the carer lives; support services differ around the<br />

country, and caring at the end of the motorway bring its own<br />

challenges.<br />

Does the carer live with the person they care for?<br />

If not, how far away does the carer-for live?<br />

Are they in the same town or do they live in another part of the<br />

country?<br />

Are there any other family members who live closer who could<br />

help out?


Facts About<br />

<strong>Carer</strong>s<br />

How many carers are there in the<br />

UK<br />

6,826,752


Sefton Young <strong>Carer</strong>s<br />

What are young carers?<br />

There are about 700,000 young carers in the UK. Being a young carer<br />

often means looking after a family member who is ill or helping them<br />

by looking after the other members of the family while they can’t.<br />

Young carers often do more chores than other children would. On top<br />

of providing emotional support to the person they are caring for they<br />

may also have to learn how to nurse them or look after their personal<br />

needs like bathing and dressing.<br />

It can be hard work being a young carer. Sometimes other children<br />

don’t understand your responsibilities and you have less free time than<br />

others.<br />

Many young cope well with caring, especially if you have support from<br />

other family members and it’s important to look after yourself. You<br />

have the right to be looked after too and there are lots of places and<br />

people you can go to get help.


Sefton Young <strong>Carer</strong>s Team<br />

Ruth, Eve & Scott Sefton Young <strong>Carer</strong>s Team


What if You<br />

Are you a<br />

Young <strong>Carer</strong><br />

If you are aged between 5 and 17 years<br />

of age and looking after someone in your<br />

family who couldn’t manage without<br />

you, then you are one of the 4,000 or<br />

more young carers that we estimate live<br />

in Sefton.<br />

Help is available<br />

If you would like to talk to someone you<br />

can contact a member of Sefton Young<br />

<strong>Carer</strong>s team on 0151 288 6060


Supporting <strong>Carer</strong>s<br />

Sefton <strong>Carer</strong>s Centre provides free advice and guidance, emotional and practical<br />

support, training and a range of holistic therapies for unpaid carers living in<br />

Sefton.<br />

In order to access all of our services for free you will need to register with us. By<br />

providing us with your details you will receive information and support which is<br />

tailored to your individual needs.<br />

ANYONE could be a carer, a 15-year-old girl looking after a parent with a long<br />

term health condition, a 40-year-old man caring for his partner who has terminal<br />

cancer or an 80-year-old woman looking after her husband who has Alzheimer's<br />

disease.<br />

We link into a variety of services, both statutory and voluntary. With our network<br />

partners we aim to ensure that the information and advice we provide is current<br />

and purposeful, to help keep carers caring in Sefton.<br />

As part of our <strong>Carer</strong> Support Team we have a dedicated <strong>Carer</strong> Support Officer<br />

who can provide advice to carers by telephone - 0151 288 6060 or at the centre,<br />

27-37 South Road, Waterloo, L22 5PE.


Supporting <strong>Carer</strong>s-<strong>Carer</strong>s Needs Assessment<br />

<strong>Carer</strong>’s Assessment looks at the different ways that your caring<br />

role affects your life. We look at how you can carry on doing<br />

the things that are important to you and enable you to feel that<br />

you still have quality of life.<br />

The assessment covers the impact of your caring role, how you<br />

feeling about caring, your physical, mental and emotional<br />

health and how caring may affect your ability to access, work,<br />

leisure, education, wider family and relationships. As a carer<br />

your physical, mental and emotional wellbeing is at the heart<br />

of this assessment, demonstrating the impact & need for<br />

services.<br />

If you decline an assessment we will still be able to access<br />

information and advice, including what in-house services we<br />

can offer as well as any other support and help from local<br />

organisations that may benefit you in your caring role.


Sefton <strong>Carer</strong>s Centre realise that carers and those who they<br />

care for are often at a disadvantage financially.<br />

Welfare<br />

Benefits<br />

Advice<br />

<strong>Carer</strong>s may have to reduce or give up work to fulfil the caring<br />

role and those who are cared for also may have had to give up<br />

work, or be reliant on benefits, and may well have additional<br />

household expenses as a result of their disabilities.<br />

We provide information and help to understand benefit<br />

rules/law and identify possible entitlement, as well as help with<br />

applications for relevant benefits and support with appeals<br />

against unsatisfactory decisions.<br />

To access this service for free we require you to register with<br />

the organisation and an appointment can then be arranged via<br />

reception on 0151 288 6060


At Sefton <strong>Carer</strong>s Centre we recognise that the impact of<br />

your caring role may affect your mental and physical wellbeing.<br />

Holistic<br />

Therapies<br />

We offer a number of free services to help promote rest<br />

and relaxation - including Hand and Arm Massage,<br />

Reflexology, Reiki, Guided Meditation and Facial.<br />

All of our therapists are fully qualified and maintain a high<br />

professional standard of care. In order to access all of our<br />

services for free you will need to register with us. By<br />

providing us with your details you will receive information<br />

and support which is tailored to your individual needs.


Our Listening Ear project is run by trained volunteers many of whom have<br />

been carers themselves.<br />

Listening Ear<br />

The project provides informal and confidential support to unpaid carers<br />

who are suffering bereavement, loss, anxiety, depression and isolation or<br />

just need someone to offload and talk too.<br />

At Sefton <strong>Carer</strong>s Centre we offer a free and confidential service to help you<br />

deal with the day to day stresses of your caring role.<br />

In order to access all of our services for free you will need to register with<br />

us. By providing us with your details you will receive information and<br />

support which is tailored to your individual needs. We will make<br />

appointments to call you so that you don’t have to worry about phone bills


<strong>Carer</strong>s<br />

Emergency<br />

Card<br />

The free <strong>Carer</strong>s Emergency Card gives peace of mind by<br />

providing access to emergency assistance 24 hours a day.<br />

The <strong>Carer</strong>s Emergency Card is a pocket sized card that can be<br />

carried as a source of identification in the event of an accident<br />

or illness. The registration and telephone numbers on the card<br />

are linked to a database held by Sefton Careline at Sefton Arc<br />

(Sefton Metropolitan Borough Council’s Control Centre) where<br />

help can be co-ordinated to assist the cared for person while<br />

the carer is receiving attention.<br />

To be eligible for a free emergency card the carer or the person<br />

who is being cared for must reside in Sefton and be registered<br />

with Sefton <strong>Carer</strong>s Centre - call 0151 288 6060 to register.


Counselling<br />

Sefton <strong>Carer</strong>s Centre provides a free<br />

Person- centred Counselling service to<br />

unpaid <strong>Carer</strong>s, delivered by qualified or<br />

partially qualified volunteers.<br />

If there are any issues that you feel you<br />

need to discuss then talking to a counsellor<br />

might be a positive way to enhance your<br />

emotional wellbeing.<br />

Person Centred Counsellors work to help<br />

clients lead full lives of self-understanding<br />

and reduce defensiveness, guilt, and<br />

insecurity.<br />

As well as helping to have more positive<br />

and comfortable relationships with others,<br />

and an increased capacity to experience<br />

and express their feelings.


If you care for a child or young person<br />

who is under 18 and has a physical<br />

disability, learning disability or<br />

emotional/behavioral condition, either<br />

diagnosed or undiagnosed, then Sefton<br />

<strong>Carer</strong>s Centre can provide free support.<br />

We currently offer the following services<br />

to all parent carers living in Sefton:<br />

The <strong>Carer</strong>s Support Team currently<br />

facilitates groups for parent carers at<br />

Netherton Family Wellbeing Centre<br />

(Thursdays) and at The Life Rooms<br />

(Wednesdays) in Southport (term time<br />

only).<br />

These groups are a great way to get<br />

support, information, and hear about<br />

other people's experiences - guidance<br />

can be given around assessment<br />

pathways and access to services through<br />

comprehensive signposting.<br />

Parent <strong>Carer</strong> Support<br />

The purpose of these support groups is to<br />

improve the health and wellbeing of<br />

parent carers as well as provide<br />

information and advice from other<br />

organisations that work with parent<br />

carers and their children in Sefton.

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