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Sefton Carers Centre _Carer Awareness Understanding the Caring Role 2019

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<strong>Understanding</strong> The <strong>Caring</strong><br />

<strong>Role</strong><br />

Supporting frontline <strong><strong>Carer</strong>s</strong><br />

Who are<br />

<strong><strong>Carer</strong>s</strong><br />

Supporting<br />

<strong><strong>Carer</strong>s</strong><br />

Young<br />

<strong><strong>Carer</strong>s</strong>


Who are carers<br />

This training presentation will help you in your work when you may come<br />

across or need to support people who are looking after a loved one. You<br />

may be a social worker, a hospital or community nurse, an occupational<br />

<strong>the</strong>rapist, a GP, a domiciliary or residential care worker or a community<br />

volunteer.<br />

Whatever your role, if you are working with people who are living with <strong>the</strong><br />

challenges of caring, unpaid, for a family member or friend who is ill, frail,<br />

disabled or has mental health or addiction problems.<br />

They can need your help too, and this training presentation will help you<br />

understand what <strong>the</strong>y need and how you and <strong>Sefton</strong> <strong><strong>Carer</strong>s</strong> <strong>Centre</strong> can<br />

support <strong>the</strong>m more effectively.


Learning Goals<br />

• Identify <strong><strong>Carer</strong>s</strong><br />

• Define what it is to be a carer<br />

• Describe some facts about carers


Who is a carer<br />

Consider <strong>the</strong> people you encounter in your daily<br />

life? Are any of <strong>the</strong>m carers? Do <strong>the</strong>y provide<br />

unpaid care to a friend, neighbour, or family<br />

member who couldn’t manage alone?<br />

Is this person in need of help due to frailty, age,<br />

physical illness, mental health condition, or<br />

addiction?<br />

If you encounter anyone who answers yes to<br />

ei<strong>the</strong>r, or both, of <strong>the</strong> questions above, it is<br />

extremely likely that <strong>the</strong>y will be classed as a<br />

carer.<br />

While being a carer doesn’t define you, it may<br />

mean that <strong>the</strong>y have important legal rights<br />

including <strong>the</strong> right to certain types of financial<br />

support, practical help, assistance technology and<br />

rights in <strong>the</strong> workplace.<br />

In this exercise type a list of people you know<br />

who you think should be identified as carers.


Who Do<br />

<strong><strong>Carer</strong>s</strong> Care<br />

For?<br />

5%<br />

Young Adult<br />

40%<br />

Parents<br />

26%<br />

Spouse/Partner<br />

4%<br />

Grandparents<br />

7%<br />

O<strong>the</strong>r Relative<br />

9%<br />

Friend or<br />

Neighbour<br />

8%<br />

Disabled Child


What do<br />

carers do<br />

Emotional Support<br />

Seeing someone for a meal or<br />

a chat<br />

Practical Support<br />

Help with household<br />

chores like cleaning,<br />

shopping, gardening<br />

Financial Support<br />

Help with banking<br />

& payments<br />

Personal or<br />

Medical<br />

Help with moving<br />

around e.g.<br />

getting in and out<br />

of bed<br />

Telephoning to find out how<br />

someone is<br />

Arranging & coordinating<br />

care and<br />

support<br />

Help with applying<br />

for benefits<br />

Help with<br />

washing &<br />

dressing<br />

The table to <strong>the</strong> right contains<br />

four lists of typical carer<br />

activities. The titles from <strong>the</strong><br />

bottom of <strong>the</strong> screen will fit<br />

into <strong>the</strong> table to identify<br />

which categories of support<br />

each listings belong too.<br />

Finding befriending services<br />

Keeping in touch remotely, for<br />

e.g. Skype<br />

Supporting leisure<br />

activities<br />

Going to doctors or<br />

hospital appointments<br />

Sorting out<br />

payment for care<br />

Finding out about<br />

or applying for<br />

power of attorney<br />

Administering or<br />

checking that<br />

someone has<br />

taken <strong>the</strong>ir<br />

medication<br />

Providing<br />

specialist care e.g.<br />

peg feeding or<br />

ca<strong>the</strong>ter changing<br />

Emotional Support Practical Support Financial Support Personal or Medical Support


How does <strong>Caring</strong> Affect Someone's Life<br />

People want to support <strong>the</strong>ir loved ones and caring can<br />

be a great source of satisfaction. It can streng<strong>the</strong>n<br />

relationships and help people develop new skills and<br />

manage challenging situations. But evidence shows that<br />

when caring is full on and without support carers can<br />

struggle to get a good nights sleep, to stay healthy, to<br />

maintain relationships with friends and family, to hold<br />

down a job and have a life outside of <strong>the</strong> caring role


What issues do we<br />

have to consider that<br />

Make a Difference in<br />

<strong>the</strong> <strong>Caring</strong> <strong>Role</strong><br />

You might need to find out about someone's<br />

situation to identify <strong>the</strong>ir needs for support.<br />

Here are some examples of factors that can<br />

make a difference and some questions you<br />

maybe could ask.<br />

The relationship to <strong>the</strong> person cared for: this<br />

will have an emotional and practical impact<br />

on <strong>the</strong> carer<br />

• Who is <strong>the</strong> carer looking after?<br />

• A parent?<br />

• A disabled child?<br />

• A spouse or partner?<br />

• An in- law?


What issues do we have to<br />

consider that Make a<br />

Difference in <strong>the</strong> <strong>Caring</strong> <strong>Role</strong><br />

The nature of <strong>the</strong> condition , disability or illness;<br />

<strong>the</strong>re is a world of difference between caring for<br />

someone with dementia and someone with a spinal<br />

injury; or someone who has had a stroke and<br />

someone with schizophrenia<br />

• What Is <strong>the</strong> illness or condition of <strong>the</strong> cared for?<br />

• Is it long term and/or degenerative?<br />

• Is it short term and/or acute?<br />

• Is it a mental health problem?<br />

• Does it involve physical care?


What issues do we have to<br />

consider that Make a<br />

Difference in <strong>the</strong> <strong>Caring</strong> <strong>Role</strong><br />

Whe<strong>the</strong>r <strong>the</strong> carer is alone or sharing<br />

care; this can determine <strong>the</strong> level of care<br />

provided or how able <strong>the</strong> carer is to cope.<br />

Is <strong>the</strong>re only one person providing care?<br />

Are <strong>the</strong>y sharing <strong>the</strong> care with o<strong>the</strong>r<br />

family members, friends or neighbours?<br />

Does <strong>the</strong> carer have additional help from<br />

care and support services?


What issues do we have to consider that Make a Difference<br />

in <strong>the</strong> <strong>Caring</strong> <strong>Role</strong><br />

What else is going on in <strong>the</strong> carers family life: one in six middle<br />

aged carers is also juggling o<strong>the</strong>r family responsibilities or<br />

caring for more than one person, often called “sandwich<br />

caring”<br />

Is <strong>the</strong> carer single or married?<br />

Do <strong>the</strong>y have o<strong>the</strong>r children or grandchildren?<br />

Are <strong>the</strong>y caring for more than one person?


What issues do we have to consider that Make a Difference in <strong>the</strong><br />

<strong>Caring</strong> <strong>Role</strong><br />

What else is going on in a <strong><strong>Carer</strong>s</strong> working life; over three million<br />

people in England & Wales work and care, and may need<br />

support from <strong>the</strong>ir employers or from external agencies to<br />

manage both.<br />

Does <strong>the</strong> carer work full time?<br />

Is <strong>the</strong>ir employer supportive<br />

Have <strong>the</strong>y had to change <strong>the</strong>ir job or working hours<br />

Are <strong>the</strong>y self- employed<br />

Do <strong>the</strong>y need flexible care and support services


What issues do we have to consider that Make a Difference in <strong>the</strong><br />

<strong>Caring</strong> <strong>Role</strong><br />

Someone's character, finding a way through <strong>the</strong> maze of health<br />

and care support services can be daunting, and many carers<br />

end up having to fight for support <strong>the</strong>y need both for <strong>the</strong><br />

person <strong>the</strong>y care for and <strong>the</strong>mselves.<br />

Is <strong>the</strong> carer confident and assured?<br />

Are <strong>the</strong>y shy not so good at speaking up for <strong>the</strong>mselves or<br />

confident in asking for help?<br />

Are <strong>the</strong>y intimidated by professionals?<br />

Are <strong>the</strong>y comfortable asking questions?


What issues do we have to consider that Make a Difference in <strong>the</strong><br />

<strong>Caring</strong> <strong>Role</strong><br />

Where <strong>the</strong> carer is from; cultural or social background can have<br />

an effect on what is expected of someone.<br />

Does <strong>the</strong> carer have family around <strong>the</strong>m?<br />

Does <strong>the</strong> rest of <strong>the</strong> family expect <strong>the</strong>m to care?<br />

Will <strong>the</strong>re be disapproval from o<strong>the</strong>r families or <strong>the</strong>ir<br />

community if <strong>the</strong>y do not take on <strong>the</strong> caring role?<br />

Will <strong>the</strong>y be expected to give up work to continue in <strong>the</strong> caring<br />

role?


What issues do we have to consider that Make a Difference in <strong>the</strong><br />

<strong>Caring</strong> <strong>Role</strong><br />

Where <strong>the</strong> carer lives; support services differ around <strong>the</strong><br />

country, and caring at <strong>the</strong> end of <strong>the</strong> motorway bring its own<br />

challenges.<br />

Does <strong>the</strong> carer live with <strong>the</strong> person <strong>the</strong>y care for?<br />

If not, how far away does <strong>the</strong> carer-for live?<br />

Are <strong>the</strong>y in <strong>the</strong> same town or do <strong>the</strong>y live in ano<strong>the</strong>r part of <strong>the</strong><br />

country?<br />

Are <strong>the</strong>re any o<strong>the</strong>r family members who live closer who could<br />

help out?


Facts About<br />

<strong><strong>Carer</strong>s</strong><br />

How many carers are <strong>the</strong>re in <strong>the</strong><br />

UK<br />

6,826,752


<strong>Sefton</strong> Young <strong><strong>Carer</strong>s</strong><br />

What are young carers?<br />

There are about 700,000 young carers in <strong>the</strong> UK. Being a young carer<br />

often means looking after a family member who is ill or helping <strong>the</strong>m<br />

by looking after <strong>the</strong> o<strong>the</strong>r members of <strong>the</strong> family while <strong>the</strong>y can’t.<br />

Young carers often do more chores than o<strong>the</strong>r children would. On top<br />

of providing emotional support to <strong>the</strong> person <strong>the</strong>y are caring for <strong>the</strong>y<br />

may also have to learn how to nurse <strong>the</strong>m or look after <strong>the</strong>ir personal<br />

needs like bathing and dressing.<br />

It can be hard work being a young carer. Sometimes o<strong>the</strong>r children<br />

don’t understand your responsibilities and you have less free time than<br />

o<strong>the</strong>rs.<br />

Many young cope well with caring, especially if you have support from<br />

o<strong>the</strong>r family members and it’s important to look after yourself. You<br />

have <strong>the</strong> right to be looked after too and <strong>the</strong>re are lots of places and<br />

people you can go to get help.


<strong>Sefton</strong> Young <strong><strong>Carer</strong>s</strong> Team<br />

Ruth, Eve & Scott <strong>Sefton</strong> Young <strong><strong>Carer</strong>s</strong> Team


What if You<br />

Are you a<br />

Young <strong>Carer</strong><br />

If you are aged between 5 and 17 years<br />

of age and looking after someone in your<br />

family who couldn’t manage without<br />

you, <strong>the</strong>n you are one of <strong>the</strong> 4,000 or<br />

more young carers that we estimate live<br />

in <strong>Sefton</strong>.<br />

Help is available<br />

If you would like to talk to someone you<br />

can contact a member of <strong>Sefton</strong> Young<br />

<strong><strong>Carer</strong>s</strong> team on 0151 288 6060


Supporting <strong><strong>Carer</strong>s</strong><br />

<strong>Sefton</strong> <strong><strong>Carer</strong>s</strong> <strong>Centre</strong> provides free advice and guidance, emotional and practical<br />

support, training and a range of holistic <strong>the</strong>rapies for unpaid carers living in<br />

<strong>Sefton</strong>.<br />

In order to access all of our services for free you will need to register with us. By<br />

providing us with your details you will receive information and support which is<br />

tailored to your individual needs.<br />

ANYONE could be a carer, a 15-year-old girl looking after a parent with a long<br />

term health condition, a 40-year-old man caring for his partner who has terminal<br />

cancer or an 80-year-old woman looking after her husband who has Alzheimer's<br />

disease.<br />

We link into a variety of services, both statutory and voluntary. With our network<br />

partners we aim to ensure that <strong>the</strong> information and advice we provide is current<br />

and purposeful, to help keep carers caring in <strong>Sefton</strong>.<br />

As part of our <strong>Carer</strong> Support Team we have a dedicated <strong>Carer</strong> Support Officer<br />

who can provide advice to carers by telephone - 0151 288 6060 or at <strong>the</strong> centre,<br />

27-37 South Road, Waterloo, L22 5PE.


Supporting <strong><strong>Carer</strong>s</strong>-<strong><strong>Carer</strong>s</strong> Needs Assessment<br />

<strong>Carer</strong>’s Assessment looks at <strong>the</strong> different ways that your caring<br />

role affects your life. We look at how you can carry on doing<br />

<strong>the</strong> things that are important to you and enable you to feel that<br />

you still have quality of life.<br />

The assessment covers <strong>the</strong> impact of your caring role, how you<br />

feeling about caring, your physical, mental and emotional<br />

health and how caring may affect your ability to access, work,<br />

leisure, education, wider family and relationships. As a carer<br />

your physical, mental and emotional wellbeing is at <strong>the</strong> heart<br />

of this assessment, demonstrating <strong>the</strong> impact & need for<br />

services.<br />

If you decline an assessment we will still be able to access<br />

information and advice, including what in-house services we<br />

can offer as well as any o<strong>the</strong>r support and help from local<br />

organisations that may benefit you in your caring role.


<strong>Sefton</strong> <strong><strong>Carer</strong>s</strong> <strong>Centre</strong> realise that carers and those who <strong>the</strong>y<br />

care for are often at a disadvantage financially.<br />

Welfare<br />

Benefits<br />

Advice<br />

<strong><strong>Carer</strong>s</strong> may have to reduce or give up work to fulfil <strong>the</strong> caring<br />

role and those who are cared for also may have had to give up<br />

work, or be reliant on benefits, and may well have additional<br />

household expenses as a result of <strong>the</strong>ir disabilities.<br />

We provide information and help to understand benefit<br />

rules/law and identify possible entitlement, as well as help with<br />

applications for relevant benefits and support with appeals<br />

against unsatisfactory decisions.<br />

To access this service for free we require you to register with<br />

<strong>the</strong> organisation and an appointment can <strong>the</strong>n be arranged via<br />

reception on 0151 288 6060


At <strong>Sefton</strong> <strong><strong>Carer</strong>s</strong> <strong>Centre</strong> we recognise that <strong>the</strong> impact of<br />

your caring role may affect your mental and physical wellbeing.<br />

Holistic<br />

Therapies<br />

We offer a number of free services to help promote rest<br />

and relaxation - including Hand and Arm Massage,<br />

Reflexology, Reiki, Guided Meditation and Facial.<br />

All of our <strong>the</strong>rapists are fully qualified and maintain a high<br />

professional standard of care. In order to access all of our<br />

services for free you will need to register with us. By<br />

providing us with your details you will receive information<br />

and support which is tailored to your individual needs.


Our Listening Ear project is run by trained volunteers many of whom have<br />

been carers <strong>the</strong>mselves.<br />

Listening Ear<br />

The project provides informal and confidential support to unpaid carers<br />

who are suffering bereavement, loss, anxiety, depression and isolation or<br />

just need someone to offload and talk too.<br />

At <strong>Sefton</strong> <strong><strong>Carer</strong>s</strong> <strong>Centre</strong> we offer a free and confidential service to help you<br />

deal with <strong>the</strong> day to day stresses of your caring role.<br />

In order to access all of our services for free you will need to register with<br />

us. By providing us with your details you will receive information and<br />

support which is tailored to your individual needs. We will make<br />

appointments to call you so that you don’t have to worry about phone bills


<strong><strong>Carer</strong>s</strong><br />

Emergency<br />

Card<br />

The free <strong><strong>Carer</strong>s</strong> Emergency Card gives peace of mind by<br />

providing access to emergency assistance 24 hours a day.<br />

The <strong><strong>Carer</strong>s</strong> Emergency Card is a pocket sized card that can be<br />

carried as a source of identification in <strong>the</strong> event of an accident<br />

or illness. The registration and telephone numbers on <strong>the</strong> card<br />

are linked to a database held by <strong>Sefton</strong> Careline at <strong>Sefton</strong> Arc<br />

(<strong>Sefton</strong> Metropolitan Borough Council’s Control <strong>Centre</strong>) where<br />

help can be co-ordinated to assist <strong>the</strong> cared for person while<br />

<strong>the</strong> carer is receiving attention.<br />

To be eligible for a free emergency card <strong>the</strong> carer or <strong>the</strong> person<br />

who is being cared for must reside in <strong>Sefton</strong> and be registered<br />

with <strong>Sefton</strong> <strong><strong>Carer</strong>s</strong> <strong>Centre</strong> - call 0151 288 6060 to register.


Counselling<br />

<strong>Sefton</strong> <strong><strong>Carer</strong>s</strong> <strong>Centre</strong> provides a free<br />

Person- centred Counselling service to<br />

unpaid <strong><strong>Carer</strong>s</strong>, delivered by qualified or<br />

partially qualified volunteers.<br />

If <strong>the</strong>re are any issues that you feel you<br />

need to discuss <strong>the</strong>n talking to a counsellor<br />

might be a positive way to enhance your<br />

emotional wellbeing.<br />

Person <strong>Centre</strong>d Counsellors work to help<br />

clients lead full lives of self-understanding<br />

and reduce defensiveness, guilt, and<br />

insecurity.<br />

As well as helping to have more positive<br />

and comfortable relationships with o<strong>the</strong>rs,<br />

and an increased capacity to experience<br />

and express <strong>the</strong>ir feelings.


If you care for a child or young person<br />

who is under 18 and has a physical<br />

disability, learning disability or<br />

emotional/behavioral condition, ei<strong>the</strong>r<br />

diagnosed or undiagnosed, <strong>the</strong>n <strong>Sefton</strong><br />

<strong><strong>Carer</strong>s</strong> <strong>Centre</strong> can provide free support.<br />

We currently offer <strong>the</strong> following services<br />

to all parent carers living in <strong>Sefton</strong>:<br />

The <strong><strong>Carer</strong>s</strong> Support Team currently<br />

facilitates groups for parent carers at<br />

Ne<strong>the</strong>rton Family Wellbeing <strong>Centre</strong><br />

(Thursdays) and at The Life Rooms<br />

(Wednesdays) in Southport (term time<br />

only).<br />

These groups are a great way to get<br />

support, information, and hear about<br />

o<strong>the</strong>r people's experiences - guidance<br />

can be given around assessment<br />

pathways and access to services through<br />

comprehensive signposting.<br />

Parent <strong>Carer</strong> Support<br />

The purpose of <strong>the</strong>se support groups is to<br />

improve <strong>the</strong> health and wellbeing of<br />

parent carers as well as provide<br />

information and advice from o<strong>the</strong>r<br />

organisations that work with parent<br />

carers and <strong>the</strong>ir children in <strong>Sefton</strong>.

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