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Heartbeat August 2019

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Lupus clinic is centre of excellence<br />

CORPORATE AND GENERAL<br />

NEWS<br />

Professor Caroline Gordon<br />

The lupus unit at City Hospital has been<br />

reconfirmed as a centre of excellence by<br />

national charity Lupus UK.<br />

Vice Chair and Trustee Yvonne Norton MBE<br />

commented: “The facility at City Hospital<br />

continues to fulfil all the criteria required to<br />

remain a Lupus UK Centre of Excellence. We<br />

are pleased that the relationship between<br />

City Hospital lupus unit and the renal lupus<br />

unit clinic at the Queen Elizabeth Hospital<br />

continues to work so well.<br />

“Considering the age and cramped<br />

conditions of the hospital building, you are<br />

doing an admirable job in conducting clinics<br />

and consultations and the harmonious<br />

relationship that is evident between all team<br />

members is far above that found in many<br />

more modern centres.”<br />

Lupus is a debilitating disorder of the<br />

immune system known as an autoimmune<br />

disease. Patients with lupus typically<br />

experience their immune system turning<br />

against parts of the body it is designed<br />

to protect, leading to inflammation and<br />

damage to various body tissues. Currently<br />

there is no cure for lupus, however effective<br />

treatments can ensure people with the<br />

disease can lead active, healthy lives.<br />

Birmingham lupus clinics (including City,<br />

Queen Elizabeth Hospital and Birmingham<br />

Women's Hospital) were appointed the first<br />

Lupus UK Centre of Excellence in 2005.<br />

Professor Caroline Gordon recalled the<br />

excitement that generated for staff. She<br />

said: “Patient safety is our number one<br />

priority, and all our staff were delighted<br />

then to be recognised as working for a<br />

centre of excellence, as much as we are to<br />

have our status reconfirmed today. We are<br />

proud to provide both an excellent clinical<br />

service and active research unit, aiming to<br />

improve outcomes of the disease.<br />

“Our patients always come first and with<br />

lupus being a lifetime condition, we are<br />

able to form lasting relationships with our<br />

patients as we see them through the highs<br />

and lows of their symptoms. As we work<br />

with them to continue our research into the<br />

condition we hope to improve treatments<br />

which will enhance quality of life for those<br />

living with the disorder.”<br />

“Following my retirement I am still<br />

providing support for research and<br />

clinical advice if needed as Emeritus<br />

Professor of Rheumatology whilst John<br />

Reynolds - our new Senior Clinical<br />

Lecturer - continues my routine NHS<br />

clinical work.<br />

“However there are many other<br />

people involved in the care of lupus<br />

patients (too many to name), and I am<br />

most grateful to everyone for all their<br />

contributions to clinical management<br />

and research and for making our lupus<br />

service such a success.”<br />

Rebecca Gilman, Lupus Research Clinical<br />

Nurse Specialist added: It's hugely<br />

important to be a Lupus UK Centre of<br />

Excellence because it matters to lupus<br />

patients. Our patients tell us it is difficult<br />

having an unpredictable condition, and<br />

so it is important that their condition<br />

is managed well. They tell us they<br />

want experienced clinicians using well<br />

established treatments in a logical and<br />

standardised way.<br />

“As lupus is not common it takes time<br />

to build up this experience, and patients<br />

tell us they want to be able to come<br />

to a centre that has been checked<br />

independently. Lupus UK do this with<br />

their Centre of Excellence assessment,<br />

and if awarded, this status independently<br />

validates that staff at the awarded centre<br />

really do understand the condition, lupus<br />

patients and they will be giving them the<br />

best possible care and treatment.<br />

“I'm proud that we continue to offer<br />

nationally and internationally renowned<br />

care locally to the Birmingham<br />

population, as well as to those patients<br />

who choose to travel from across the UK<br />

to us. I'm also proud to be working in a<br />

team that continues to offer best lupus<br />

practice and care, is at the forefront<br />

of research for care and treatments<br />

to continue to improve patients’<br />

futures, and in teaching clinicians and<br />

practitioners of the future, as it has done<br />

since first receiving Clinical Excellence<br />

status in 2005.”<br />

Long-time patient Angela McNab<br />

who has lived with lupus for nearly 30<br />

years agrees, as she explained: “The<br />

experience of being treated at City<br />

Hospital is a positive one, because they<br />

allow me to be part of the management<br />

of my disease.”<br />

15

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