Heartbeat August 2019
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Lupus clinic is centre of excellence<br />
CORPORATE AND GENERAL<br />
NEWS<br />
Professor Caroline Gordon<br />
The lupus unit at City Hospital has been<br />
reconfirmed as a centre of excellence by<br />
national charity Lupus UK.<br />
Vice Chair and Trustee Yvonne Norton MBE<br />
commented: “The facility at City Hospital<br />
continues to fulfil all the criteria required to<br />
remain a Lupus UK Centre of Excellence. We<br />
are pleased that the relationship between<br />
City Hospital lupus unit and the renal lupus<br />
unit clinic at the Queen Elizabeth Hospital<br />
continues to work so well.<br />
“Considering the age and cramped<br />
conditions of the hospital building, you are<br />
doing an admirable job in conducting clinics<br />
and consultations and the harmonious<br />
relationship that is evident between all team<br />
members is far above that found in many<br />
more modern centres.”<br />
Lupus is a debilitating disorder of the<br />
immune system known as an autoimmune<br />
disease. Patients with lupus typically<br />
experience their immune system turning<br />
against parts of the body it is designed<br />
to protect, leading to inflammation and<br />
damage to various body tissues. Currently<br />
there is no cure for lupus, however effective<br />
treatments can ensure people with the<br />
disease can lead active, healthy lives.<br />
Birmingham lupus clinics (including City,<br />
Queen Elizabeth Hospital and Birmingham<br />
Women's Hospital) were appointed the first<br />
Lupus UK Centre of Excellence in 2005.<br />
Professor Caroline Gordon recalled the<br />
excitement that generated for staff. She<br />
said: “Patient safety is our number one<br />
priority, and all our staff were delighted<br />
then to be recognised as working for a<br />
centre of excellence, as much as we are to<br />
have our status reconfirmed today. We are<br />
proud to provide both an excellent clinical<br />
service and active research unit, aiming to<br />
improve outcomes of the disease.<br />
“Our patients always come first and with<br />
lupus being a lifetime condition, we are<br />
able to form lasting relationships with our<br />
patients as we see them through the highs<br />
and lows of their symptoms. As we work<br />
with them to continue our research into the<br />
condition we hope to improve treatments<br />
which will enhance quality of life for those<br />
living with the disorder.”<br />
“Following my retirement I am still<br />
providing support for research and<br />
clinical advice if needed as Emeritus<br />
Professor of Rheumatology whilst John<br />
Reynolds - our new Senior Clinical<br />
Lecturer - continues my routine NHS<br />
clinical work.<br />
“However there are many other<br />
people involved in the care of lupus<br />
patients (too many to name), and I am<br />
most grateful to everyone for all their<br />
contributions to clinical management<br />
and research and for making our lupus<br />
service such a success.”<br />
Rebecca Gilman, Lupus Research Clinical<br />
Nurse Specialist added: It's hugely<br />
important to be a Lupus UK Centre of<br />
Excellence because it matters to lupus<br />
patients. Our patients tell us it is difficult<br />
having an unpredictable condition, and<br />
so it is important that their condition<br />
is managed well. They tell us they<br />
want experienced clinicians using well<br />
established treatments in a logical and<br />
standardised way.<br />
“As lupus is not common it takes time<br />
to build up this experience, and patients<br />
tell us they want to be able to come<br />
to a centre that has been checked<br />
independently. Lupus UK do this with<br />
their Centre of Excellence assessment,<br />
and if awarded, this status independently<br />
validates that staff at the awarded centre<br />
really do understand the condition, lupus<br />
patients and they will be giving them the<br />
best possible care and treatment.<br />
“I'm proud that we continue to offer<br />
nationally and internationally renowned<br />
care locally to the Birmingham<br />
population, as well as to those patients<br />
who choose to travel from across the UK<br />
to us. I'm also proud to be working in a<br />
team that continues to offer best lupus<br />
practice and care, is at the forefront<br />
of research for care and treatments<br />
to continue to improve patients’<br />
futures, and in teaching clinicians and<br />
practitioners of the future, as it has done<br />
since first receiving Clinical Excellence<br />
status in 2005.”<br />
Long-time patient Angela McNab<br />
who has lived with lupus for nearly 30<br />
years agrees, as she explained: “The<br />
experience of being treated at City<br />
Hospital is a positive one, because they<br />
allow me to be part of the management<br />
of my disease.”<br />
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