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Voices of Disability

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VOICES OF<br />

DISABILITY<br />

our message to you


S I A N<br />

Hi my name is Sian and as my t-shirt says “this is me “ I have a<br />

condition called mitochondrial disease. At the moment it’s being<br />

highlighted in a story line in Coronation Street. I was born with it,<br />

it’s a degenerative thing. In the last few years, I have also started<br />

having fits, which always has me rushed into resus at the local<br />

general hospital. I HATE the epilepsy side <strong>of</strong> things but refuse to<br />

let it define who I am. I love musicals and go whenever I can.<br />

Lockdown has got in the way this year but they are so far<br />

postponed… phew !<br />

"this is me!"<br />

I live with my mum and I have a fantastic westie called Percy. I<br />

have two fantastic carers who are now part <strong>of</strong> our family. I belong<br />

to different groups ranging from keeping fit and exercise to music<br />

and drama at zone club Bradford on Avon. I have a great bunch <strong>of</strong><br />

friends, we are always out and about meeting up or enjoying BBQs.<br />

I also love a game <strong>of</strong> bingo Because <strong>of</strong> my fabulous mum,<br />

carers, and friends I don’t see myself as being disabled as long as<br />

I’m in bed by ten pm


J O R D A N N E<br />

My name is Jordanne.<br />

I love to take my son Jackson on<br />

outings to the farm or zoo.<br />

I would say, your disability is part<br />

<strong>of</strong> who you are so embrace and<br />

accept it but remember it doesn’t<br />

define you.<br />

M A R C<br />

My name is Marc and I love to watch<br />

and play sports, in particular Arsenal!<br />

I would say that you can either dwell<br />

on your disability and think about what<br />

you can’t do or accept that that’s the<br />

way things are and think about all the<br />

amazing things you can achieve.


S A M<br />

Hi. I'm Sam.<br />

I am 21 years old and am a student <strong>of</strong> Computer Science alongside<br />

being a Musician and Game Streamer. I spend a lot <strong>of</strong> my time in the<br />

digital world with friends from across the globe. Some days my disability<br />

is blindingly obvious, when I have to use a wheelchair for example.<br />

However, I do not always need it so some days my disability is hidden.<br />

Even though I am not able to do everything I want I am still happy and<br />

content with life and that's the biggest thing I want to break the myth <strong>of</strong>. Just<br />

because I am disabled and have to do things differently doesn't mean my<br />

life is 'worse' or 'bad. My life is just different. I am still the same bubbly<br />

character always up for a chat and I love my life, even if some people think<br />

the opposite because <strong>of</strong> the adjustments I have to make to my daily life.


D A N A<br />

Hi everyone!<br />

My name is Dana. I love to play wheelchair tennis, play with my new<br />

puppy Riley, bake and see my friends. I also love escape rooms!!<br />

One thing I’d really like to let people know about disability is that it’s<br />

just another facet <strong>of</strong> a person, not their entire being.<br />

"a whole new<br />

world <strong>of</strong> sports,<br />

friends and<br />

opportunities"<br />

Although having a disability makes some things inaccessible, it<br />

actually allows us to access a whole new world <strong>of</strong> sports, friends,<br />

and opportunities.<br />

To the naked eye, a disability may seem like a negative, but it’s<br />

actually been one <strong>of</strong> the positive things in my life. All it takes is a little<br />

change in perspective to see the beauty in it


P A T<br />

" A B L E T O D O B E T T E R<br />

T H I N G S "<br />

Hey, my name is Pat.<br />

I have a spinal cord injury (c3 & c4)<br />

which affects all 4 limbs. I use a<br />

wheelchair indoors and a mobility<br />

scooter to get about outdoors. I love all<br />

sports, especially motorsport which has<br />

always been a part <strong>of</strong> my life, and<br />

sailing. I’ve been sailing at Whitefriars<br />

Sailing Club for a few years.<br />

I love the freedom and control it gives me out on the<br />

water. It gives me that independence sensation I felt before my<br />

injury. I had no knowledge prior and I’m so glad I’ve taken the<br />

opportunity to try it. I also enjoy graphic design & blogging.<br />

Even though I may not be able to physically do what I did<br />

before, I’m able to do better things I’d never <strong>of</strong> done if I didn’t<br />

have this disability. I’m a far more focused, knowledgeable and<br />

better person than I was. There are no limits in life, only the<br />

limits we place in our minds.


J O N A H<br />

" I L O V E P L A Y I N G B O C C I A "<br />

Hi, my name is Jonah<br />

I love playing Boccia, which is<br />

bowls for the disabled<br />

people.<br />

I’m just as normal as any<br />

able-body person, just I’m in<br />

the wheelchair. I like to be<br />

talked to like a normal<br />

person, not like a baby, and I<br />

like to be seen with my<br />

wheelchair because my<br />

wheelchair is my legs.


J A C K<br />

Hi, my name is Jack, a young man with a positive outlook on life. I would<br />

say that I am very kind-hearted, with a determined attitude.<br />

I have cerebral palsy. I feel that this has made me into the person I am<br />

today. While some people may see it as a disadvantage, I see it as an<br />

advantage, in meeting great people and having opportunities along the<br />

way.<br />

I enjoy being around people, watching all sports mainly, watching football<br />

if that is my local team or Arsenal. I enjoy going out with family and<br />

friends to eat and have a meal. When the<br />

weather allows, I enjoy going to the seaside.<br />

I enjoy meditation.<br />

I have a job in a college working with students<br />

with additional needs preparing the student<br />

for adulthood.<br />

"we all have<br />

something to <strong>of</strong>fer<br />

this world"<br />

While I do not let my disability stop me from living my life. I want people to<br />

understand that with a disability, this can add additional challenges. My<br />

biggest challenge I face is I expend more physical energy which, then<br />

impacts other areas <strong>of</strong> my life. Even though I manage always be kind and<br />

compassionate to people because they are doing their best, everyone's<br />

best is all different. We all have something to <strong>of</strong>fer this world. We are<br />

amazing. There should be more support for people who are disabled to feel<br />

comfortable with their disability. Starting conversations in society about<br />

disability, to develop a greater understanding and a more inclusive world.


D A V I D<br />

" D O N ' T J U D G E "<br />

My name is David. I love to play sport and work on<br />

my car. One thing about disabilities is that you can’t<br />

always judge a book by its cover.<br />

I do all my work on my car and most people think<br />

disabled people can’t do anything for themselves. So<br />

next time you see a disabled person, don’t judge<br />

with your eyes.


K G<br />

My name is Kgothatso Montjane,<br />

I love reading and listening to<br />

music.<br />

The one thing I wish people<br />

would understand is that<br />

disability doesn’t define the<br />

abilities one has.<br />

R I C H A R D<br />

My name is Richard.<br />

I love to play wheelchair tennis and go<br />

hand cycling.<br />

Life with a disability is not easy but you<br />

can overcome obstacles and achieve<br />

great things if you want to and you try<br />

hard enough.


L O U I S E<br />

Hello, My name is Louise I love doing anything which relates to<br />

music. I play the piano which is my favourite hobby and going<br />

to gigs and seeing musicals never fails to make me smile. I also<br />

love competing (I play wheelchair tennis) as it makes me feel<br />

like I’m breaking down external perceptions <strong>of</strong> disability as well<br />

as keeping fit and healthy doing something I love.<br />

"It's your<br />

choice how<br />

you decide to<br />

live your life"<br />

The one message I would love for people to understand about<br />

disability is that it does not automatically mean I’m at a<br />

disadvantage and that it has a negative impact on my life/or<br />

others. It’s your choice how you decide to live you life and take on<br />

any challenges, and I chose to embrace every day as it comes and<br />

not allow my disability to define me.


R U T H<br />

My name is Ruth.<br />

I love to write and I run my own<br />

blog ‘the.rolling.twenties.’ I love to<br />

read and be creative. At the<br />

moment I am working on making<br />

things for my home, including a<br />

drawing <strong>of</strong> a butterfly.<br />

I also love to exercise which includes<br />

yoga, rowing and walks in the<br />

countryside.<br />

I have one degree already but I am<br />

loving studying for my second one.<br />

The other main loves in my life is my<br />

family, my partner and our boys<br />

and my friends.<br />

"powerful<br />

and<br />

positive"<br />

The things I want people to know is disabilities don’t hold you back.<br />

I have walked many miles, travelled around the globe and seen<br />

many sights.<br />

I see my disability as an ability. It pushes me to overcome things,<br />

such as struggling to walk. Disabilities don’t hold us back, they<br />

make us stronger, more powerful and positive. I am proud <strong>of</strong> who I<br />

am.


M A R Y<br />

Hi, my name is Mary and I love climbing! If I could, I<br />

would spend all my time at the climbing wall. I also like<br />

watching other sports like wheelchair rugby.<br />

I have EDS which affects all sorts <strong>of</strong> things, from my<br />

joints to my stomach. Some days it may be obvious that<br />

I have a disability, like when I am using my wheelchair or<br />

crutches. But at other times, like when I am halfway up a<br />

wall, it is less obvious.<br />

I want people to understand that just because you may<br />

not be able to see someone’s disability, it does not make<br />

it any less real. I want people to understand that<br />

sometimes a disability can look different each day, and<br />

rather than judging each other for it, we should all just<br />

be a little bit kinder and more considerate to each other.<br />

P A T<br />

Hello, I'm Pat and my passion is horses. I've<br />

been around them all my life, both before<br />

and after my accident in the 1950's. I still do<br />

horse carriage driving - it gives me<br />

wonderful views and takes me close to<br />

nature.<br />

As a disabled person I would say "work on<br />

what you can do. Don't think too much<br />

about what you can't, and take every<br />

opportunity that comes your way"


C H R I S<br />

" N O T A L L<br />

D I S A B I L I T I E S<br />

A R E V I S I B L E "<br />

Hi, I’m Chris. I love going to see west end shows with<br />

my girlfriend, seeing my friends and gardening.<br />

Not all disabilities are visible (I’m visually impaired<br />

which you can’t physically see) I want people to<br />

understand the variety <strong>of</strong> disabilities that are out<br />

there and not judge people based on what first meets<br />

the eye.


ABBIE<br />

“<strong>Disability</strong>....<br />

what<br />

disability?”<br />

Hey, my name is Abbie, I live with my husband Tom and daughters Summer and<br />

Jorgie. I have Cerebral Palsy which affects all 4 limbs and my speech.<br />

One <strong>of</strong> my passions in life is Water skiing. I have been doing this for over 10<br />

years and ski as part <strong>of</strong> British Disabled Waterski & Wakeboard Association. I<br />

absolutely love doing this as it’s something I ‘can do’ without relying on family to<br />

help me, it gives me some independence away from them.<br />

My disability doesn’t stop me from doing anything. Of course, it can be an<br />

inconvenience, but I love how I’m always being surprised at what I can achieve if<br />

I put my mind to it and if I want it bad enough. I believe I am more determined<br />

(stubborn) because <strong>of</strong> it and it has certainly made me more driven. Most <strong>of</strong> all, it<br />

isn’t my life, it isn’t the centre <strong>of</strong> my universe. You learn to live and work with it<br />

and not against it.<br />

Of course, I have my <strong>of</strong>f/down days, but I allow myself to have these and then I<br />

give myself a good talking to and get on with it. <strong>Disability</strong>……. what disability?


M A T T<br />

" M Y J O B I S I M P O R T A N T T O<br />

M E . I L O V E I T ! "<br />

Hi I’m Matt. I love to spend time with my family. I love going to<br />

football and gigs. My subculture is important to me, spending<br />

time with my mates.<br />

My job is important to me, I love it!<br />

Having cerebral palsy hasn’t stopped me living my life to the full.<br />

I live in my own bungalow with my wife and son, I have a paid job.<br />

I live like any non-disabled person does. I have a good network <strong>of</strong><br />

a support worker and friends and family. My disability doesn’t<br />

define who I am.


VOICES OF<br />

DISABILITY<br />

our message to you

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