Voices of Disability
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VOICES OF<br />
DISABILITY<br />
our message to you
S I A N<br />
Hi my name is Sian and as my t-shirt says “this is me “ I have a<br />
condition called mitochondrial disease. At the moment it’s being<br />
highlighted in a story line in Coronation Street. I was born with it,<br />
it’s a degenerative thing. In the last few years, I have also started<br />
having fits, which always has me rushed into resus at the local<br />
general hospital. I HATE the epilepsy side <strong>of</strong> things but refuse to<br />
let it define who I am. I love musicals and go whenever I can.<br />
Lockdown has got in the way this year but they are so far<br />
postponed… phew !<br />
"this is me!"<br />
I live with my mum and I have a fantastic westie called Percy. I<br />
have two fantastic carers who are now part <strong>of</strong> our family. I belong<br />
to different groups ranging from keeping fit and exercise to music<br />
and drama at zone club Bradford on Avon. I have a great bunch <strong>of</strong><br />
friends, we are always out and about meeting up or enjoying BBQs.<br />
I also love a game <strong>of</strong> bingo Because <strong>of</strong> my fabulous mum,<br />
carers, and friends I don’t see myself as being disabled as long as<br />
I’m in bed by ten pm
J O R D A N N E<br />
My name is Jordanne.<br />
I love to take my son Jackson on<br />
outings to the farm or zoo.<br />
I would say, your disability is part<br />
<strong>of</strong> who you are so embrace and<br />
accept it but remember it doesn’t<br />
define you.<br />
M A R C<br />
My name is Marc and I love to watch<br />
and play sports, in particular Arsenal!<br />
I would say that you can either dwell<br />
on your disability and think about what<br />
you can’t do or accept that that’s the<br />
way things are and think about all the<br />
amazing things you can achieve.
S A M<br />
Hi. I'm Sam.<br />
I am 21 years old and am a student <strong>of</strong> Computer Science alongside<br />
being a Musician and Game Streamer. I spend a lot <strong>of</strong> my time in the<br />
digital world with friends from across the globe. Some days my disability<br />
is blindingly obvious, when I have to use a wheelchair for example.<br />
However, I do not always need it so some days my disability is hidden.<br />
Even though I am not able to do everything I want I am still happy and<br />
content with life and that's the biggest thing I want to break the myth <strong>of</strong>. Just<br />
because I am disabled and have to do things differently doesn't mean my<br />
life is 'worse' or 'bad. My life is just different. I am still the same bubbly<br />
character always up for a chat and I love my life, even if some people think<br />
the opposite because <strong>of</strong> the adjustments I have to make to my daily life.
D A N A<br />
Hi everyone!<br />
My name is Dana. I love to play wheelchair tennis, play with my new<br />
puppy Riley, bake and see my friends. I also love escape rooms!!<br />
One thing I’d really like to let people know about disability is that it’s<br />
just another facet <strong>of</strong> a person, not their entire being.<br />
"a whole new<br />
world <strong>of</strong> sports,<br />
friends and<br />
opportunities"<br />
Although having a disability makes some things inaccessible, it<br />
actually allows us to access a whole new world <strong>of</strong> sports, friends,<br />
and opportunities.<br />
To the naked eye, a disability may seem like a negative, but it’s<br />
actually been one <strong>of</strong> the positive things in my life. All it takes is a little<br />
change in perspective to see the beauty in it
P A T<br />
" A B L E T O D O B E T T E R<br />
T H I N G S "<br />
Hey, my name is Pat.<br />
I have a spinal cord injury (c3 & c4)<br />
which affects all 4 limbs. I use a<br />
wheelchair indoors and a mobility<br />
scooter to get about outdoors. I love all<br />
sports, especially motorsport which has<br />
always been a part <strong>of</strong> my life, and<br />
sailing. I’ve been sailing at Whitefriars<br />
Sailing Club for a few years.<br />
I love the freedom and control it gives me out on the<br />
water. It gives me that independence sensation I felt before my<br />
injury. I had no knowledge prior and I’m so glad I’ve taken the<br />
opportunity to try it. I also enjoy graphic design & blogging.<br />
Even though I may not be able to physically do what I did<br />
before, I’m able to do better things I’d never <strong>of</strong> done if I didn’t<br />
have this disability. I’m a far more focused, knowledgeable and<br />
better person than I was. There are no limits in life, only the<br />
limits we place in our minds.
J O N A H<br />
" I L O V E P L A Y I N G B O C C I A "<br />
Hi, my name is Jonah<br />
I love playing Boccia, which is<br />
bowls for the disabled<br />
people.<br />
I’m just as normal as any<br />
able-body person, just I’m in<br />
the wheelchair. I like to be<br />
talked to like a normal<br />
person, not like a baby, and I<br />
like to be seen with my<br />
wheelchair because my<br />
wheelchair is my legs.
J A C K<br />
Hi, my name is Jack, a young man with a positive outlook on life. I would<br />
say that I am very kind-hearted, with a determined attitude.<br />
I have cerebral palsy. I feel that this has made me into the person I am<br />
today. While some people may see it as a disadvantage, I see it as an<br />
advantage, in meeting great people and having opportunities along the<br />
way.<br />
I enjoy being around people, watching all sports mainly, watching football<br />
if that is my local team or Arsenal. I enjoy going out with family and<br />
friends to eat and have a meal. When the<br />
weather allows, I enjoy going to the seaside.<br />
I enjoy meditation.<br />
I have a job in a college working with students<br />
with additional needs preparing the student<br />
for adulthood.<br />
"we all have<br />
something to <strong>of</strong>fer<br />
this world"<br />
While I do not let my disability stop me from living my life. I want people to<br />
understand that with a disability, this can add additional challenges. My<br />
biggest challenge I face is I expend more physical energy which, then<br />
impacts other areas <strong>of</strong> my life. Even though I manage always be kind and<br />
compassionate to people because they are doing their best, everyone's<br />
best is all different. We all have something to <strong>of</strong>fer this world. We are<br />
amazing. There should be more support for people who are disabled to feel<br />
comfortable with their disability. Starting conversations in society about<br />
disability, to develop a greater understanding and a more inclusive world.
D A V I D<br />
" D O N ' T J U D G E "<br />
My name is David. I love to play sport and work on<br />
my car. One thing about disabilities is that you can’t<br />
always judge a book by its cover.<br />
I do all my work on my car and most people think<br />
disabled people can’t do anything for themselves. So<br />
next time you see a disabled person, don’t judge<br />
with your eyes.
K G<br />
My name is Kgothatso Montjane,<br />
I love reading and listening to<br />
music.<br />
The one thing I wish people<br />
would understand is that<br />
disability doesn’t define the<br />
abilities one has.<br />
R I C H A R D<br />
My name is Richard.<br />
I love to play wheelchair tennis and go<br />
hand cycling.<br />
Life with a disability is not easy but you<br />
can overcome obstacles and achieve<br />
great things if you want to and you try<br />
hard enough.
L O U I S E<br />
Hello, My name is Louise I love doing anything which relates to<br />
music. I play the piano which is my favourite hobby and going<br />
to gigs and seeing musicals never fails to make me smile. I also<br />
love competing (I play wheelchair tennis) as it makes me feel<br />
like I’m breaking down external perceptions <strong>of</strong> disability as well<br />
as keeping fit and healthy doing something I love.<br />
"It's your<br />
choice how<br />
you decide to<br />
live your life"<br />
The one message I would love for people to understand about<br />
disability is that it does not automatically mean I’m at a<br />
disadvantage and that it has a negative impact on my life/or<br />
others. It’s your choice how you decide to live you life and take on<br />
any challenges, and I chose to embrace every day as it comes and<br />
not allow my disability to define me.
R U T H<br />
My name is Ruth.<br />
I love to write and I run my own<br />
blog ‘the.rolling.twenties.’ I love to<br />
read and be creative. At the<br />
moment I am working on making<br />
things for my home, including a<br />
drawing <strong>of</strong> a butterfly.<br />
I also love to exercise which includes<br />
yoga, rowing and walks in the<br />
countryside.<br />
I have one degree already but I am<br />
loving studying for my second one.<br />
The other main loves in my life is my<br />
family, my partner and our boys<br />
and my friends.<br />
"powerful<br />
and<br />
positive"<br />
The things I want people to know is disabilities don’t hold you back.<br />
I have walked many miles, travelled around the globe and seen<br />
many sights.<br />
I see my disability as an ability. It pushes me to overcome things,<br />
such as struggling to walk. Disabilities don’t hold us back, they<br />
make us stronger, more powerful and positive. I am proud <strong>of</strong> who I<br />
am.
M A R Y<br />
Hi, my name is Mary and I love climbing! If I could, I<br />
would spend all my time at the climbing wall. I also like<br />
watching other sports like wheelchair rugby.<br />
I have EDS which affects all sorts <strong>of</strong> things, from my<br />
joints to my stomach. Some days it may be obvious that<br />
I have a disability, like when I am using my wheelchair or<br />
crutches. But at other times, like when I am halfway up a<br />
wall, it is less obvious.<br />
I want people to understand that just because you may<br />
not be able to see someone’s disability, it does not make<br />
it any less real. I want people to understand that<br />
sometimes a disability can look different each day, and<br />
rather than judging each other for it, we should all just<br />
be a little bit kinder and more considerate to each other.<br />
P A T<br />
Hello, I'm Pat and my passion is horses. I've<br />
been around them all my life, both before<br />
and after my accident in the 1950's. I still do<br />
horse carriage driving - it gives me<br />
wonderful views and takes me close to<br />
nature.<br />
As a disabled person I would say "work on<br />
what you can do. Don't think too much<br />
about what you can't, and take every<br />
opportunity that comes your way"
C H R I S<br />
" N O T A L L<br />
D I S A B I L I T I E S<br />
A R E V I S I B L E "<br />
Hi, I’m Chris. I love going to see west end shows with<br />
my girlfriend, seeing my friends and gardening.<br />
Not all disabilities are visible (I’m visually impaired<br />
which you can’t physically see) I want people to<br />
understand the variety <strong>of</strong> disabilities that are out<br />
there and not judge people based on what first meets<br />
the eye.
ABBIE<br />
“<strong>Disability</strong>....<br />
what<br />
disability?”<br />
Hey, my name is Abbie, I live with my husband Tom and daughters Summer and<br />
Jorgie. I have Cerebral Palsy which affects all 4 limbs and my speech.<br />
One <strong>of</strong> my passions in life is Water skiing. I have been doing this for over 10<br />
years and ski as part <strong>of</strong> British Disabled Waterski & Wakeboard Association. I<br />
absolutely love doing this as it’s something I ‘can do’ without relying on family to<br />
help me, it gives me some independence away from them.<br />
My disability doesn’t stop me from doing anything. Of course, it can be an<br />
inconvenience, but I love how I’m always being surprised at what I can achieve if<br />
I put my mind to it and if I want it bad enough. I believe I am more determined<br />
(stubborn) because <strong>of</strong> it and it has certainly made me more driven. Most <strong>of</strong> all, it<br />
isn’t my life, it isn’t the centre <strong>of</strong> my universe. You learn to live and work with it<br />
and not against it.<br />
Of course, I have my <strong>of</strong>f/down days, but I allow myself to have these and then I<br />
give myself a good talking to and get on with it. <strong>Disability</strong>……. what disability?
M A T T<br />
" M Y J O B I S I M P O R T A N T T O<br />
M E . I L O V E I T ! "<br />
Hi I’m Matt. I love to spend time with my family. I love going to<br />
football and gigs. My subculture is important to me, spending<br />
time with my mates.<br />
My job is important to me, I love it!<br />
Having cerebral palsy hasn’t stopped me living my life to the full.<br />
I live in my own bungalow with my wife and son, I have a paid job.<br />
I live like any non-disabled person does. I have a good network <strong>of</strong><br />
a support worker and friends and family. My disability doesn’t<br />
define who I am.
VOICES OF<br />
DISABILITY<br />
our message to you