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NEW ZEALAND SPINAL TRUST 28 Telling it Like it is Teina Boyd, a former patient of the Burwood Spinal Unit, describes the pressures of a too busy life. Man I’m getting fat. My belly is huuuuuuge. I wonder how my family are. I wonder if they care how I am and think of me as well. Covid has really pulled us apart. Oh well. 380 emails, I wonder how many of those are important. I really wish I could use my hands, I just feel like seeing my own handwriting again. Speaking of … I should really book my next hand surgery. What trainings do I need to organise for my care team? I’m sick of being limited on certain shifts. Hey I learn how to drive this year! I hope I don’t cause any crashes. Can’t help thinking I might with all of my spasms. All Smiles—Teina Boyd and her son William share a special bond. Goddamn. Sometimes I just don’t know where to start. I need to find an architect. Hopefully one with experience building accessible. Jesus, I REALLY need to organise thank you gifts for my lawyers and accountants … I should have done that weeks ago. I haven’t heard from the builder in six weeks either … Might be time to just turn up at his house. Oh no … Am I too late to apply for my rates rebate? Is the dog’s registration due? I wonder where my new manual chair has gone to … We finished scripting that thing months ago. My butt's going to be too big for it by the time it gets here. I need to do my German lesson for the day … Should I do that quickly before I run the dog? The dog … Gosh I really need to check when her registration is due. I wonder if I should start offering to train people’s dogs to help them with disability? My pup being able to pick up my phone for me when I drop it is a huge help. Maybe that will be helpful for other people as well. I wonder if Bradley and I will actually get this business idea of mine off the ground. He’s so busy and I’m so disabled, I can’t do it on my own and I know he’s time poor. Gosh I miss my mum. I wish I could find time to sit down and write my book. What appointments do I have today? I think I’ve gone way overdue on my catheter changes … Jesus how’s Willie doing? He’s so busy running around between his sports, school and mates I feel like I’ve hardly seen him lately. I need to get more meat and veggies into him. I wonder how my sister is, I’ve really been dropping the ball on keeping in contact with people lately. I hope life calms down soon … But then I kind of don’t because then I'll have to address my weight gain and how much I miss everyone overseas. My wedding … What kind of dress will I wear? I hope I look nice. The person in the mirror doesn’t really look like me anymore, I need to find me again. That thing looks like a lump with eyes. At least my ponytail is nice and long, there is that. Oh no … My column's due at the end of the week and I haven’t even started. No regrets though, I’m glad I’m putting Aunty Barb and her injuries first. Visiting her for wheelchair aerobics every day has been fun. Man … I haven’t read a school email in months. I hope I’m not missing anything important. I really need to cut down that nectarine tree in the front yard before it gives curly leaf to all of the other fruit trees. I wonder if William and I can go a couple of weeks living off our fruit trees and the pantry, would be cool to see how much money we could save. Have I paid the water rates? Nope, I better jump online and do that. Phone is ringing … No caller ID. It could be my case manager, one of the carpet companies I’m waiting on quotes from, my nurse or Greenpeace. I’ll let It go to voicemail. ... looking up from my phone I think, ‘What was I doing again?’ ——— Anybody else’s days start with mental rambling like this? I really do find my disability and care team are a full-time job on top of my full-time job, on top of my part time jobs, on top of parenting on top of study. Not to mention all the family, running the house and social side of life. Can get a little crazy sometimes … but I hope you’re all out there keeping warm and handling it all as well as you can. (And taking lots of breaks for croissants, friends and puppy hugging Xx) Nga mihi, Teina Boyd
SPINAL NETWORK NEWS 29 ic Ergonomic Radial Radial Control. Hand Control. diel Italiana By Fadiel Italiana Lever Grip Palm Grip Lever Grip ty.com.au totalability.com.au
Page 1 and 2: July 2021 Volume 24 / Issue 2 SNNSp
Page 3 and 4: SPINAL NETWORK NEWS 3 Don’t Pract
Page 5 and 6: SPINAL NETWORK NEWS 5 Supporting Po
Page 7 and 8: SPINAL NETWORK NEWS 7 Tour of Duty
Page 9 and 10: SPINAL NETWORK NEWS 9 My turn for c
Page 11 and 12: SPINAL NETWORK NEWS 11 Back on Top
Page 13 and 14: SPINAL NETWORK NEWS 13 “I found a
Page 15 and 16: SPINAL NETWORK NEWS 15 How has the
Page 17 and 18: SPINAL NETWORK NEWS 17 Woman’s Be
Page 19 and 20: SPINAL NETWORK NEWS 19 Mustang V8 E
Page 21 and 22: SPINAL NETWORK NEWS 21 —Rhys Benn
Page 23 and 24: SPINAL NETWORK NEWS 23
Page 25 and 26: SPINAL NETWORK NEWS 25 consumed by
Page 27: SPINAL NETWORK NEWS 27 “You Will
Page 31 and 32: SPINAL NETWORK NEWS 31 Other new bo
Page 33 and 34: SPINAL NETWORK NEWS 33 The grant en
Page 35 and 36: SPINAL NETWORK NEWS 35 Thank you to

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