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July 2022 Parenta magazine

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Supporting parents with<br />

SEN children<br />

Most settings will already be catering for<br />

some children with special educational<br />

needs (SEN) to help them access your<br />

services and curriculum. However, are<br />

you also finding ways to support their<br />

parents? Being a parent of a child with SEN<br />

can be lonely and confusing as they try to<br />

understand their children more fully, and<br />

then get them the help they need. Read on<br />

to find how you can help them by making<br />

some small changes, which can have a<br />

big impact.<br />

SEN children and their<br />

parents are unique<br />

Everyone is different, and children with<br />

special needs cannot be grouped into one<br />

homogenous group. Often, what works<br />

well for one person - (such as having<br />

a non-stimulating environment due to<br />

sensory overload), - is the opposite of<br />

what’s needed for others, who may need<br />

a more uplifting, colourful and visually<br />

engaging environment. Some people need<br />

a quiet space, others crave attention and<br />

may have trouble regulating their volume<br />

or energy. The phrase “one size fits all”<br />

does definitely NOT apply when you are<br />

discussing children with special needs.<br />

The same is true of their parents. There<br />

is not one ‘type’ of parent whose child<br />

has special needs, and it is not down to<br />

a ‘parenting fault’ or challenge either,<br />

although this is often a misconception and<br />

myth that many parents face.<br />

Understand parents’<br />

point of view<br />

One of the first things you can do, is to<br />

develop an empathy for parents. If you<br />

have ever stood in a supermarket whilst<br />

your toddler has a tantrum, and felt the<br />

‘judging eyes’ upon you as you try to calm<br />

them down, you will know what we mean.<br />

Now imagine that you are standing in the<br />

same supermarket, but your toddler is<br />

now age 10 and having the same tantrum.<br />

You know that it is because they have<br />

become overwhelmed by something that<br />

is out of their control, and this is their only<br />

way of emotionally releasing their fears/<br />

anxiety/stress. But for other observers, this<br />

fact is ‘hidden’, and instead of getting the<br />

sympathy and understanding you need,<br />

you feel the weight of their judgement as<br />

they silently (or not!) condemn you and<br />

your parenting.<br />

Listen to what parents<br />

say<br />

Listening to parents is key. They will<br />

understand their situation and their child;<br />

they have found what works for them, and<br />

things that don’t. Parents will hopefully<br />

have tried numerous different approaches,<br />

learning through trial and error, experience<br />

and hopefully some professional input<br />

too. So it is important to listen to what<br />

they say, and try to accommodate things<br />

if you can. If they say that their child is<br />

upset by certain textures, sounds or tastes,<br />

then disseminate this information to your<br />

staff and make sure they are aware.<br />

A lot of children with SEN find physical<br />

contact difficult. They may find it difficult to<br />

look people in the eye or they may have<br />

sensory needs which mean they can’t<br />

bear certain materials close to their skin or<br />

particular smells.<br />

Many neurotypical people often find these<br />

needs difficult to understand and instead,<br />

think that the person is being deliberately<br />

difficult or ‘naughty’. However, almost all<br />

of us visibly tense at the sound of nails<br />

scraping down a blackboard. The noise<br />

seems to go through us, vibrating our<br />

very bones and we quickly cover our ears<br />

and call for it to stop. This is how many<br />

people with sensory needs feel about<br />

some of the sounds, touch, tastes and<br />

smells that many of us love. It is not a<br />

question of one person being ‘right’ and<br />

the other person be ‘wrong’ – it’s just<br />

that we are all different. If we approach<br />

the situation with more understanding,<br />

patience and tolerance, then we will go a<br />

long way to helping support the parents of<br />

SEN children, because they will feel more<br />

validated and understood.<br />

Meet the children’s<br />

individual needs and<br />

share what works<br />

It is the duty of settings to try to meet the<br />

needs of SEN children. Depending on the<br />

need, this is not always possible and so<br />

specialist provisions for children with some<br />

severe disabilities or learning difficulties<br />

exist. However, many children with SEN<br />

can cope in mainstream establishments<br />

so long as their needs are considered, and<br />

adaptations made.<br />

Having a SENCo draw up a list of needs<br />

and a provision map will mean that<br />

you can document the provisions and<br />

adaptations you are providing for that<br />

child. Many SENCos will also draw up and<br />

individual child profile and share it with<br />

staff. These give details of what the child<br />

needs and what works well. Remember<br />

to update these as children grow and<br />

develop and help parents and councils<br />

maintain up-to-date EHCPs. In early years,<br />

children are growing and developing at<br />

an amazing rate, and what they need will<br />

develop with them helping parents get the<br />

provision their children need, especially as<br />

children transition to school or between<br />

school key stages.<br />

Train your staff<br />

Another simple way to help parents with<br />

SEN children is to train your staff on how<br />

best to deal with that child. You could do<br />

this as part of your annual CPD work or<br />

have key people undertake specific special<br />

needs training. There are some free and/<br />

or inexpensive CPD courses that staff can<br />

take ranging from a short one- or twohour<br />

online course, to more in-depth, Level<br />

2 courses. <strong>Parenta</strong> offer a number of CPD<br />

courses which may be of interest which<br />

you can access here and include Asperger<br />

Syndrome, Autism Awareness and<br />

Disability Awareness to name but a few.<br />

Offer support and be an<br />

advocate<br />

Many children in early years may only be<br />

starting to show signs of having special<br />

needs as they join your setting, so it may<br />

be a shared journey of discovery for<br />

both the setting and the parents as you<br />

investigate some of the issues you witness<br />

in the nursery. You can help parents by<br />

offering information and advice about<br />

different conditions, and point them in<br />

the direction of support groups or other<br />

advocacy organisations.<br />

Other ways to help<br />

Encourage children to get involved in<br />

everything in your setting<br />

Keep reviewing your own policies and<br />

procedures<br />

Consider if you can offer extended<br />

hours or respite services<br />

Supporting parents with SEN children<br />

will not only help them, but it will help<br />

the children too, as their home life is an<br />

important aspect which will contribute to<br />

their success in your setting.<br />

Further information<br />

https://www.kids.org.uk/<br />

https://www.understood.org/<br />

https://www.family-action.org.uk/whatwe-do/children-families/send/send-info/<br />

22 <strong>July</strong> <strong>2022</strong> | parenta.com<br />

parenta.com | <strong>July</strong> <strong>2022</strong> 23

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