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KIDS WHO CARE<br />

Sophia Malone<br />

Sarah Rein<br />

WHEN SOPHIA MALONE’S<br />

PARENTS, ROMAN & TONYA,<br />

WELCOMED THEIR FIRST<br />

CHILD AFTER FIVE YEARS<br />

OF MARRIAGE, THEY WERE<br />

THRILLED TO ENJOY THEIR<br />

NEW ARRIVAL. The months of<br />

pregnancy and anticipation were filled with<br />

excitement, nerves, and expectations. Then, a<br />

few days after birth, Sophia was diagnosed with<br />

a hemangioma - a benign blood-filled tumor not<br />

uncommon among infants. Often referred to as<br />

a “strawberry” birthmark, they are typically minor<br />

and shrink or even disappear after a child’s first<br />

year. However, Sophia’s hemangioma was<br />

compound, meaning it affected both the skin’s<br />

surface and extended underneath, affecting her<br />

cartilage and bone structure. Unlike the usual<br />

pattern of these tumors, hers grew dramatically<br />

after her first year and began affecting her vision<br />

and nasal structure. Sophia had to have her most<br />

extensive operation at the age of eighteen months<br />

when the size of the growth began to threaten<br />

her eyesight. Over the years, she has had more<br />

than twenty surgeries to remove her tumor as<br />

well as correct some of the damage done to her<br />

underlying facial structures.<br />

While it would be easy to be bitter or<br />

frustrated at what she has endured, on the<br />

contrary, Sophia has embraced her journey.<br />

“I remember growing up very comfortable with<br />

myself,” Sophia shares. “I’ve always been confident<br />

and had an easy time making friends. Starting<br />

school did feel a little scary, but I’ve never been<br />

insecure about my hemangioma. I’ve always<br />

welcomed people talking to me about it.”<br />

Tonya admits that she initially was challenged<br />

by Sophia’s diagnosis. She felt worried<br />

about all the things she might not get to do or<br />

how her life might be harder. What she did not<br />

expect was what a gift Sophia’s journey would be<br />

to those around her.<br />

After an excellent elementary experience at<br />

First Presbyterian Day School, Sophia transitioned<br />

to Jackson Prep where she has excelled<br />

personally and socially. Sophia danced for years<br />

before transitioning to Prep’s award-winning<br />

Réveillon Show Choir. “They have really become<br />

like a family,” Sophia relates. “I’ve learned and<br />

grown so much in that program.” She has also<br />

served as a student ambassador and in Prep’s<br />

Service Club.<br />

One of her most colorful memories during<br />

high school was getting to be part of the Prep<br />

sailing team that won the Mississippi Sailing<br />

Championship her tenth-grade year.<br />

Since the age of thirteen, she has worked in<br />

her father’s family’s roofing business and, later,<br />

her aunt’s clothing boutique. Sophia explains that<br />

there has always been an expectation in her family<br />

that the kids would work. “Yes, we learned<br />

something about the business, but it was mainly<br />

to teach us responsibility and discipline. We have<br />

been encouraged to be people who give back.”<br />

Church membership has always been<br />

important in her family, and Sophia has also<br />

become involved in the Young Life organization<br />

where she has made close friends and been<br />

involved in weekly Bible studies. Last summer,<br />

she had the opportunity to work as a Young Life<br />

Capernaum Buddy, where the camps are created<br />

with teens and young adults with disabilities in<br />

mind. “I think, because I don’t look like the average<br />

person who has it all together, people find me<br />

more approachable. So, I’m able to use my birth<br />

defect as a blessing.” When asked how she feels<br />

she has grown from her struggles, Sophia<br />

expresses that, while her hemangioma has been a<br />

big part of her story, God has taught her that it<br />

doesn’t define her. Tonya agrees, “God has<br />

opened doors through this that wouldn’t have<br />

happened otherwise. I mean, even kids who have<br />

no disabilities feel insecure about themselves,<br />

and because Sophia accepts herself just like she<br />

is, she shines a light when she goes places.”<br />

Sophia recently found out that her next<br />

opportunity to do that will be at Samford, where<br />

she has been accepted into their nursing<br />

program. She is following in her mother’s<br />

footsteps (Tonya is a long-time surgical nurse)<br />

as well as honoring all the nurses who have made<br />

an impact on her during her health journey.<br />

As Sophia considers the blessings that have<br />

come from her trials, she thinks about the people<br />

who have been the biggest influence on her.<br />

She is quick to mention her mother, who is her<br />

biggest cheerleader. Her mentor, Amanda Slack<br />

from Prep, also comes to mind. She poured into<br />

Sophia through Bible study and their relationship<br />

for years. She particularly recalls a nurse<br />

anesthetist she had in Arkansas who brought<br />

Sophia stuffed animals from her travels. The<br />

woman would line them up around Sophia as<br />

she woke from her surgeries, so she felt immediately<br />

surrounded and loved. Reflecting on her<br />

future plans, Sophia wonders aloud if she may<br />

also want to pursue pediatric nursing and,<br />

perhaps, work with children with disabilities.<br />

After all the challenges Sophia has faced, she<br />

believes in God’s ability to use them for His glory<br />

and her good. As Romans 5:3-4 reminds the<br />

Christian - “We rejoice in our sufferings,<br />

knowing that suffering produces endurance,<br />

and endurance produces character, and<br />

character produces hope, and hope does not put<br />

us to shame, because God’s love has been poured<br />

into our hearts through the Holy Spirit who has<br />

been given to us.” Sophia has faced her suffering<br />

with joy and hope and is confident in the God<br />

who holds her future and looks forward to<br />

continuing to be a light to others.<br />

Hometown RANKIN • 49

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