Interstitial Cystitis Network Resource List

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Pain Management & Stress Reduction Pain is daunting. IC patients often forget that pain control begins at home and with early recognition. If you’re struggling with pain, these books can help! Remember, even stress can trigger more pain because it can cause muscles to tense and spasm. Hypnotize Yourself Out of Pain - B. Eimer, Ph.D. 0.8• $14.95 The Relaxation & Stress Reduction Workbook - M. Davis, Ph.D. 1.6• $19.95 Related Conditions IC patients often struggle with a host of related conditions, especially IBS, Vulvodynia and Prostatodynia. We hope that the books below help if you’re living with any of these conditions. Coping With Anxiety – E. Bourne, PhD - It’s very normal to experience anxiety when faced with a new, confusing and painful condition. But, it’s not normal to let it dominate our lives. This new book offers ten simple ways to relieve anxiety, fear & worry! Don’t let anxiety dominate your life! Do something about it today! 0.5• $10.99 Sjogren’s Syndrome Survival Guide - Rumpf, Ph.D. - Some IC patients have very dry eyes, dry mouth and dry skin, which could be Sjogren’s Syndrome. 0.8• $15.95 Mitral Valve Prolapse Survival Guide - J. & C. Durante, J. Furiasse, MD 0.6• $14.95 Overcoming Overactive Bladder – D. Newman, A. Wein, MD 0.5• $16.95 The Vulvodynia Survival Guide - H. Glazer, Ph.D. - Vulvodynia is a common related condition for women with IC. Patients often experience discomfort, irritation and pain on their vulva. Learn more with this great book! 0.7• $15.95 Breaking the Bonds of IBS - B. Bolen, Ph.D. - IC patients are 9 times more likely than the normal population to have Irritable Bowel Syndrome (IBS). From diarrhea to constipation, it can exacerbate our IC. This is the best-written resource on IBS. 0.8• $14.95 Self Care Admit it! You probably don’t tell your family that you’re in pain. You put everyone else’s needs ahead of your own. For some reason, you feel that if you ask for help, you aren’t a good parent or spouse. Wrong! We all have to take care of ourselves. From sleep deprivation to anger management, IC patients really struggle. Worse, we can take our anger and stress out on our family. Not good! These resources below can help! Use them often! The Women’s Book of Sleep - A. Wolfson, Ph.D. 0.7• $14.95 Lift Your Mood Now – J. Preston, PsyD – Simple things you can do to beat the blues! 0.6• $12.95 Stop The Anger Now – R. Potter-Efron, Ph.D. - If you’re struggling with anger, don’t take it out on your family and friends. Find a better way to let the anger go with this great book. 0.8 $15.95 Daily Relaxer – M. McKay, Ph.D. - Filled with daily tips and strategies to reduce stress and RELAX! Perfect for patients struggling with muscle tension! 0.6• $12.95 Self-Nourishment Companion - M. McKay, Ph.D. - This delightful guide offers 52 inventive and easy-to-follow recipes for relaxation and rejuvenation. This makes a wonderful gift too, especially when combined with our relaxation audiotapes and kokum butter body balm! 0.6• $12.95 Work and Disability Social Security disability is an enormous program with hundreds of thousands of people participating each year. Consequently, it's easy for both participants and first-time applicants to get lost in the system's bureaucracy. We've found the best resources that we can to guide patients as they venture through the SSA application process! Nolo Guide to Social Security Disability: How to Get & Keep Your Benefits - This comprehensive and compassionate book, packed with tear-out forms and a sample disability application, covers both SSDI, SSI & Medicare. 2 3.1 $27.99 ICN Transcripts, Newsletters & Other Printed Materials While the great majority of our materials are free via the web site, we receive numerous requests for printed information. In the next six months, we will be adding a wide variety of resources, articles, fact sheets, brochures...that can be purchased by patients who do not have access to the internet. The IC Medical Records File - This medical records file solves the problem of trying to explain IC over and over and over again to new care providers with a brief yet thorough record of your IC. 0.2• $3.50 Spring 2004 Newsletter – The IC Optimist – One Time Review Offer 0.1• $7.00 Summer 2004 SPECIAL REPORT ON DIET 0.1• $10.00 Exercise & Fitness When IC patients flare, it can be quite overwhelming to walk, much less embark on a fitness program. Running and/or typical aerobics classes, for example, can exacerbate symptoms. Luckily, there are new options available! The Hatha Yoga Program for <strong>Interstitial</strong> <strong>Cystitis</strong> Patients - E Ripoll, MD - A new exercise program that uses the gentle strengthening and stretching of yoga. 0.4• $29.95
UTI Supplies There is no doubt that IC patients often struggle with UTI's. Sometimes it's just a matter of determining whether our symptoms are related to a UTI or just an IC flare. In this case, having a UTI Test Kit on hand can certain ease your mind. We're also now carrying some other products which may be helpful, including the OTC version of pyridium. UTI Home Test Kit by Consumers Choice Systems, Inc. 0.1• $9.95 UTI Relief by Consumers Choice Systems, Inc. 0.1• $5.95 UTI Cranberry Plus Blueberry by Consumers Choice Systems, Inc. 0.1• $9.95 Foods - IC Friendly Fruit Products Why didn't we think of this earlier??? IC patients LOVE fruit but our sensitive bladders sure don't. For some of us, even simple fruits can be irritating. Pears are the most IC friendly and we've found a lovely new selection of pear products. NEW! Pear Wafers - These extremely thin slices of dried pear are produced by air drying with NO preservatives used. Pear wafers are delicious alone, with cheeses and dips and creative accents in salads. INGREDIENTS: bartlett pears Net Weight: 1 oz NEW! Cinnamon Pear Jelly - A beautifully translucent jelly with a cinnamon stick right inside the jar, this jelly has just the right consistency with a bright pear and cinnamon flavor. INGREDIENTS: pear juice concentrate, sugar, pectin, pear flavor, cinnamon stick. Net Weight: 8 oz NEW! Pear Fig Jam - A simple yet complex blending of two distinctive fruits - pear and fig - that creates a nicely textured chunky jam. INGREDIENTS: sugar, organic pear puree, figs, lemon juice and pectin. Net Weight: 8.5 oz. Pear Pear Bar - A 100% natural all-fruit snack bar that contains no artificial ingredients, flavorings or preservatives. High in potassium and vitamin C, this bar is the equivalent of eating two fresh pears! INGREDIENTS: pear puree, pear concentrate, pear pieces . 1.4 oz. Also available in boxes of 16! Pear Blueberry Bar - A 100% natural all-fruit snack bar that contains no artificial ingredients, flavorings or preservatives - this bar is the equivalent of eating two fresh pears! INGREDIENTS: pear puree, pear concentrate, blueberries. 1.4 oz. Also available in boxes of 16! 3 0.2• $5.99 1.0 $6.99 1.0 $6.99 0.1• 1.6 0.1• 1.6 $1.29 $16.99 (box of 16) $1.29 $16.99 (box of 16) Foods - IC Friendly Cookies & Crackers We've looked long and hard for some IC friendly snacks that can satisfying those sweet cravings that you might be struggling with. We hope you enjoy these! Cheddar Bunnies baked snack crackers – Annie’s Homegrown - Baked with organic wheat flour and real Wisconsin cheddar, these bunnies are great tasting and wholesome. NO hydrogenated oils and NO artificial flavors. INGREDIENTS: organic wheat flour, safflower oil, cheddar cheese, salt, yeast extract, paprika, annatto extract, ground celery seed, onion powder, yeast. Packed in a box containing 6 1 oz pouches. Anna’s Almond Cinnamon Thins - A classic cookie from Sweden now being made in Canada. Subtle flavor of almond and cinnamon AND only 22 calories per cookie thin. INGREDIENTS: wheat flour, margarine, sugar, sugar beet syrup, water, almonds, sodium bicarbonate, cinnamon and almond flavor. Weight - 5 oz. Anna’s Blueberry Thins - Another great flavor! INGREDIENTS: wheat flour, margarine, sugar, sugar beet syrup, water, blueberry flavor, sodium bicarbonate. Net Weight - 5 oz. Too Good Gourmet Peppermint Cookies- A simple but satisfyingly minty tea cookie that melts in your mouth! Made by Too Good Gourmet cookies in California - these were an instant favorite when we tasted them. INGREDIENTS: flour, butter, powdered sugar, peppermint extract, vanilla, salt. Net weight - 7 oz. Too Good Gourmet Snickerdoodle Cookies - Who doesn't like snickerdoodles? These bite size tea cookies are the real thing - lots of pure ingredients with a touch of cinnamon - scrumptious! INGREDIENTS: flour, butter, sugar, eggs, vanilla, soda, salt, cream of tartar, cinnamon. Net weight - 7 oz. 0.5 $4.99 0.4 $3.99 0.4 $3.99 0.4 $5.99 0.4 $3.99 Foods - IC Friendly Nuts & Snacks & Herbs You’re desperate for a snack and it must be IC friendly! Enter our new Nut and Snack section. While many nuts can irritate the bladder, almonds are considered very IC friendly. We’re delighted to share this new selection of tasty nuts and snacks. Yum! Almond Butter – Zinke Orchards What do you do when you have a craving for peanut butter but can't tolerate the acid of the peanuts? You use Almond Butter. We've tried several brands and have found that the Zinke Orchards almond butter has a wonderful roasted nut flavor. INGREDIENTS: Dry Roasted Almonds. Crunchy Style - 16 oz. Marcona Almonds – Sunridge Farms . INGREDIENTS: Marcona Almonds, sunflower oil, sea salt. Net Weight - 8 oz. Herbs de Sonoma A great selection of herbs to season seafood, poultry, pork and beef. INGREDIENTS: bay, fennel, marjoram, rosemary, sage thyme, winter savory and lavender. Net Weight - 2 oz. 1.0 $6.25 0.5 $6.25 0.3 $14.99
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