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Volume 11, Issue 2 - Barth Syndrome Foundation

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Funding Opportunities Relevant to<br />

<strong>Barth</strong> <strong>Syndrome</strong> Research<br />

(Cont’d from page <strong>11</strong>)<br />

National Institutes of Health (NIH)<br />

Innovative Therapies and Tools for Screenable Disorders in<br />

Newborns (R01)<br />

Program Announcement (PA) Number: PAR-10-230<br />

Page 12 <strong>Barth</strong> <strong>Syndrome</strong> Journal ~ <strong>Volume</strong> <strong>11</strong>, <strong>Issue</strong> 2<br />

Opening Date: September 5, 2010<br />

Letters of Intent Receipt Date: 30 days prior to application due<br />

date<br />

Application Due Date: See http://grants1.nih.gov/grants/funding/<br />

submissionschedule.htm<br />

Expiration Date: September 8, 2013<br />

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Purpose: This FOA, issued by the Eunice Kennedy Shriver National Institute of Child Health and Human Development, the National Institute<br />

of Diabetes and Digestive and Kidney Disease, the National Institute of Neurological Disorders and Stroke, and the National Institute<br />

on Deafness and Other Communication Disorders encourages Research Project Grant applications from institutions/ organizations that<br />

propose research relevant to the basic understanding and development of therapeutic interventions for currently screened conditions<br />

and “high priority” genetic conditions for which screening could be possible in the near future. In this FOA, a “high priority” condition is<br />

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American Society of Hematology<br />

Patient Group Research Grant Opportunities<br />

To draw together the multitude of hematology-related research grant opportunities that are available through patient groups, the<br />

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topics. (http://www.hematology.org/Research/2874.aspx)<br />

Children’s Cardiomyopathy <strong>Foundation</strong><br />

The Children´s Cardiomyopathy <strong>Foundation</strong> (CCF) offers two annual grant programs to support innovative basic, clinical, population,<br />

or translational studies relevant to the cause, diagnosis, or treatment of cardiomyopathy (Dilated, Hypertrophic, Restrictive, Left<br />

Ventricular Non-Compaction, or Arrhythmogenic Right Ventricular Cardiomyopathy) in children under the age of 18 years. The goal<br />

of CCF´s grant programs is to advance medical knowledge of the basic mechanism of the disease and to develop more accurate<br />

diagnostic methods and improved therapies for children affected by cardiomyopathy. (http://www.childrenscardiomyopathy.org/site/<br />

grants.php)<br />

United Mitochondrial Disease <strong>Foundation</strong><br />

The United Mitochondrial Disease <strong>Foundation</strong> (UMDF) Research Grant Program began in 1997 out of a desire to fund research<br />

toward diagnoses, treatments, and cures for mitochondrial disease. (http://www.umdf.org/site/c.dnJEKLNqFoG/b.3790285/k.6CE6/<br />

Research_Grant_Program.htm)<br />

UMDF Clinical Research Fellowship Training Award<br />

Application Due Date: February 15, 2012<br />

Statement of Intent Receipt Date: July 1, 2012<br />

Statement of Intent Application Form<br />

The UMDF clinical fellowship award is a one or two year award designed to support the training of physician scientists who plan to<br />

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of mitochondrial medicine.<br />

Purpose: The primary goal of the UMDF clinical research fellowship training award is to expand the number of clinicians and<br />

physician scientists practicing clinical management of patients with mitochondrial disorders AND conducting clinically (patient)<br />

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