Volume 11, Issue 2 - Barth Syndrome Foundation

(Cont’d from page 24)
Thank you, thank you, thank you!
Donations from Europe, UK and Worldwide
‘In memory of Oscar and to help others like him’; ‘In support of your foundation for Jules and all the other boys’; ‘Thanks
to NHS Barth Syndrome Service staff, special thanks to Michaela and her family and to Susanna;’ ‘Brilliant cause!’; ‘…an
excellent charity’. These are some of the very moving comments we have received with donations.
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taxpayers, please consider gift aiding your donation and help us reclaim tax you have paid
(25p on every pound you donate). You must pay an amount of Income Tax and/or Capital
Gains Tax for each tax year that is at least equal to the amount of tax that charities will reclaim
on your behalf for that tax year.
Why not donate to BST on line?
Swimming Fundraiser: Eden (16) with his brother, Jack (5)
(Photo courtesy of BSTrust ~ 2011)
www.bmycharity.com provides an easy online donation and fundraising facility. If you are
planning a fundraiser you can set up a page, ask people to donate online and track progress.
We have a number of sponsorship pages there now. Rachel Farrow arranged a virtual lunch with
donations to BST; Kevin and Lizzie Stagg plan to run in the BUPA London 10,000 on 27 th May
2012; Eden Amos is swimming 22 miles (equal in distance to the English Channel) over three
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plan a Cycle Ride from Land’s End to John O’Groats in August 2012. Hats off to all of you!
Collecting boxes
We are always amazed by our static collecting boxes in UK. They sit on counters in pubs and
shops and people drop in their donations — anything from coppers to, on rare occasions,
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we began this scheme in mid- 2007. Would you like to raise money and awareness locally
and try a box in a friendly shop in your neighbourhood?
Internet shopping?
You can raise money for BST just by doing what you would normally do. Our page at the
Simple Fundraising website includes many major shops including supermarkets, Amazon
and Argos, who will pay a commission to BST for the additional custom. It doesn't cost
anything. Go to www.simplefundraising.co.uk/2120 , register your email address and a
password, and start shopping.
Best of friends, Dillon (5) and distance walker, Wilf Smith
(Photo courtesy of BSTrust ~ 2011)
Barth Syndrome Journal ~ Volume 11, Issue 2 Page 25