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Box 17 4.2.8 Build the capacity of people with mental health conditions to participate in public affairs “Nothing about us without us” —Motto used by Disabled Peoples Organizations and other rights organizations as part of the global movement to achieve the full participation and equalization of opportunities for, by and with persons with disabilities. As discussed earlier in this report, civil society’s response to mental health issues currently is insufficient. Most countries lack mental health service user groups. Embryonic movements, such as those described in Box 17, are starting in some low- and middle-income countries, but organizations such as these are unfortunately few and far between; they must be further encouraged, supported, and multiplied. Country experiences: fostering consumer organizations for people with mental health conditions InGauteng,SouthAfrica,theConsumerAdvocacyMovementadvocatesfor theneedsandrightsofmentalhealthcareusers.Itsexecutivecommittee consistsofsixmentalhealthcareusers.Sinceitscreationin2006,ithas grownrapidlyintoanactivemovementof280members.Thecommittee playsavitalroleinraisingawarenessofmentalhealthissues,andin supportingmentalhealthcareusersandtheirfamilies.Themovementalso issuesabiannualconsumeradvocacyjournal,whichiswrittenbymental healthcareusers. 232 InZambia,theMentalHealthUsersNetworkofZambiaprovidesaforum throughwhichusersofmentalhealthservicescansupporteachotherand exchangeideasandinformation.Theorganizationchampionsthehuman rightsofpeoplewithmentalhealthconditions,andworkswithgovernment departments,nationalandinternationalnongovernmentalorganizations, andthemediatofulfilitsobjectives.Activitiesinclude:identifyingneedsand lobbyingforrightsandservicesforpeoplewithmentalhealthconditions; contributingtotherevisionofmentalhealthlegislation;mobilizingand sensitizingcommunitiesaroundmentalhealthissues;helpingtomitigate theimpactofHIV/AIDSonpeoplewithmentalhealthconditions;visitingthe homesofpeoplewithmentalhealthconditionsandsensitizingtheirfamily andcommunitymembers;andparticipatingonradioshows. 233 52 MentalHealthandDevelopment:Targetingpeoplewithmentalhealthconditionsasavulnerablegroup
The right to associate is important for people with mental health conditions, because membership in advocacy and peer support groups can foster skills development, empowerment, and autonomy. User-driven self-help and support networks improve the mental health of both participants and families, and result in reduced health care utilization, enhanced self-management, and improved mental health outcomes. 230 A strong civil society also helps create more effective, efficient, and accountable programmes and services. Organizations of people with mental health conditions, as well as others representing their interests, hold a unique perspective that can help ensure that laws, policies, and programmes address their needs and respect their human rights. As such, develop- 4.Improvingdevelopmentoutcomes:principlesandactions Service users and carers take action: a strong civil society is a driving force for positive change. ment stakeholders have a responsibility to ensure that representatives of people with mental health conditions are involved in the design of their own programmes and strategies. They also should encourage governments to involve mental health service user groups at national and local levels. Advocacy associations in particular give individuals a collective political voice to lobby for policy and legislative protection reform. Development stakeholders have important roles in enabling people with mental health conditions to self-organize and advocate for their interests and needs. They can encourage governments to support the establishment of mental health services user groups, and provide financial resources for this purpose. It is crucially important, however, that these organizations maintain their autonomy and independence from government and funders. Development stakeholders also can support capacity building initiatives that help people with mental health conditions understand their rights and provide them with information and skills required to influence decision-making processes. Building the capacity of those involved in development programming also is important. International and national development agencies, relevant government 53 WHO/Edwige Faydi
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Executive summary . . . . . . .
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This report on mental health and de
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Supportingstatements The report
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Executivesummary Two development
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Page 37 and 38: 1.Introduction community, to ens
Page 39 and 40: 2. People with mental health condit
Page 41 and 42: assumed to be lazy, weak, unintelli
Page 43 and 44: Box 1 Prisons - unsuitable holding
Page 45 and 46: In many countries, people cannot co
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Page 49 and 50: Some country examples: • In Argen
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Page 57 and 58: health conditions, including diabet
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Page 61 and 62: Box 3 How does vulnerability lead t
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Page 71 and 72: 4.2.2 Integrate mental health issue
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Page 75 and 76: Box 10 AYouthLinkclient,21
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Page 81 and 82: 4.2.7 Strengthen human rights prote
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Page 95 and 96: Conclusion Conclusion Many people w
Page 97 and 98: References References 1 Reducing po
Page 99 and 100: References 46 South Central Somalia
Page 101 and 102: References 93 Alonso J et al. Popul
Page 103 and 104: References 144 Meade CS. Sexual ris
Page 105 and 106: References 192 What works! Employme
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