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Palliative Care Strategy for HIV and other diseases - FHI 360

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<strong>HIV</strong>/AIDS <strong>and</strong> ART<br />

<strong>other</strong> chronic <strong>diseases</strong> (e.g., diabetes, cardiovascular disease)<br />

human sexuality <strong>and</strong> family planning<br />

nutrition<br />

substance use prevention, harm reduction, <strong>and</strong> treatment<br />

care of caregivers<br />

appropriate care of children <strong>and</strong> adolescents<br />

spiritual support<br />

future planning<br />

social support<br />

universal precautions<br />

referral system <strong>and</strong> community resources<br />

counseling/emotional support<br />

death <strong>and</strong> dying<br />

grief <strong>and</strong> bereavement<br />

QA/QI<br />

3. Skills<br />

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goal setting in physical, psychological, social, <strong>and</strong> spiritual dimensions<br />

development of a family care plan<br />

communication <strong>and</strong> counseling<br />

promotion of patient self-care <strong>and</strong> wellness<br />

assessing <strong>and</strong> treating pain <strong>and</strong> symptom management<br />

adherence support <strong>and</strong> client empowerment in adherence <strong>and</strong> self-care<br />

making <strong>and</strong> monitoring referrals<br />

problem solving <strong>and</strong> patient advocacy<br />

monitoring <strong>and</strong> evaluation<br />

teaching caring skills to <strong>other</strong>s<br />

Team Member Support<br />

Training is often essential but rarely sufficient: it should be ongoing <strong>and</strong> rein<strong>for</strong>ced<br />

through supportive supervision,* mentorship, <strong>and</strong> team meetings. When much of the care<br />

is provided by trained community caregivers, weekly supervision should be provided by a<br />

nurse or <strong>other</strong> health professional. St<strong>and</strong>ard checklists—based on commonly agreed upon<br />

st<strong>and</strong>ard operating procedures—should be used to assess the quality of care provided by<br />

palliative care workers. Areas of weakness should be addressed using a supportive supervision<br />

approach.<br />

* Supportive supervision means skills building with the aim of empowerment.

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