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By Logan and Sonja Bristow - Bridgelin

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<strong>By</strong> <strong>Logan</strong> <strong>and</strong><br />

<strong>Sonja</strong> <strong>Bristow</strong><br />

<strong>Logan</strong>’s<br />

Cleft Lip<br />

<strong>and</strong><br />

Palate Story<br />

��� �


Baby <strong>Logan</strong> born July 23, 1988<br />

8 lbs 6 oz<br />

It was a hot day in July, <strong>and</strong> after a normal<br />

pregnancy <strong>and</strong> a quick five-hour delivery,<br />

I was born at St Paul’s Hospital in<br />

Vancouver, British Columbia!


I love my<br />

mummy!<br />

My sweet<br />

baby!<br />

My mom tried hard<br />

to nurse me, but I<br />

couldn’t suck well<br />

enough. My mom<br />

pumped breast milk<br />

to feed me, but I<br />

had a difficult time<br />

<strong>and</strong> found that I<br />

could drink formula<br />

more easily because<br />

it was thick!


Eating<br />

is hard<br />

work!<br />

At first, every waking<br />

moment was a feeding<br />

moment!<br />

I had to learn to use<br />

a special cross-hatch<br />

nipple to drink my<br />

milk because I had<br />

no suction with my<br />

cleft palate. I lost a<br />

lot of weight before I<br />

caught on! The bottle<br />

was soft <strong>and</strong> my parents<br />

helped me by<br />

squeezing it gently.<br />

I had a great trick<br />

of shooting milk out<br />

of my nose when I<br />

choked or sneezed!


�<br />

After lip surgery...<br />

You’ll be<br />

hearing<br />

from my lawyer!<br />

Surgery was hardest on my mom. After my lip surgery, I had to<br />

wear splints on my arms so that I wouldn’t rub at the stitches.<br />

The splints were made of tongue-depressors! My hospital stay<br />

was for two nights, but some kids stay only one night.


There can be a lot of different specialists that make up the<br />

building blocks of a team. These are just some of them:<br />

Audiologist<br />

Nurse<br />

Oral Surgeon<br />

Orthodontist<br />

Pediatrician<br />

Pedodontist<br />

Plastic Surgeon<br />

Speech-language Pathologist<br />

Evaluates your child’s hearing from infancy.<br />

Monitors health. Provides support for anxious<br />

parents. Offers skilled caring.<br />

Performs palate <strong>and</strong> bone graft surgery.<br />

Monitors facial growth <strong>and</strong> development<br />

<strong>and</strong> braces.<br />

Monitors health, growth <strong>and</strong> maturation.<br />

Children’s dental specialist. Dental care<br />

is so important!<br />

Performs lip <strong>and</strong> nose surgery.<br />

Assesses speech development.<br />

Cleft lip <strong>and</strong> palate children will undergo a thorough evaluation by many of the team specialists. The assessment<br />

may take place in one long day or over several days on an outpatient basis. The team members then meet <strong>and</strong><br />

discuss all aspects of the child’s condition <strong>and</strong> make recommendations regarding treatment.


Hi, <strong>Logan</strong>!<br />

I’m Dr Rosen.<br />

I’m your<br />

anesthetist.<br />

The next doctor to come in is<br />

Dr Rosen. He is my anesthetist.<br />

He tells me all about what is going<br />

to happen in the operating room.<br />

He explains the IV <strong>and</strong> how I will<br />

fall asleep. I am kind of scared.<br />

…my an..<br />

eestha…<br />

whatt!!?<br />

An anesthetist<br />

is a special doctor<br />

who gives the<br />

drugs that put<br />

you to sleep<br />

before your<br />

operation.


<strong>Logan</strong>’s<br />

dental x-ray<br />

Welcome to the<br />

operating room.<br />

We’re glad you<br />

didn’t get lost<br />

getting here!<br />

Here<br />

I go!<br />

Dr Rosen is already here waiting for me <strong>and</strong> so are the others who<br />

will be helping. Dr MacDonald is my surgeon <strong>and</strong> he will be here<br />

soon. My mom takes pictures with her camera until it is time for me<br />

to be put to sleep for my operation. I blow soap bubbles while they<br />

put in my IV <strong>and</strong> I don’t feel a thing! I lie down <strong>and</strong> hold my mom’s<br />

h<strong>and</strong> as they put in the anesthetic. Sometimes they get you to<br />

count backwards from 20, but I’m already…..ZZZZZZZZZZ!!!!!


Tadah!<br />

I’m all done<br />

(for a while).<br />

I feel really good when I smile! After all the surgeries<br />

I’ve had, I totally think it’s worth it! I like the way I look<br />

(except sometimes when I get up in the morning, I look<br />

kind of scary).


I have some growing up to do.<br />

When my baby tooth falls out,<br />

I will have a space that will<br />

need to be kept open for an<br />

eventual false tooth. When I’m<br />

18, I will get a tooth implant.<br />

So here I am in all my glory!<br />

It’s now a waiting game until<br />

my braces come off, <strong>and</strong><br />

I suppose there is<br />

rhinoplasty (a nose job)<br />

in a few years.


Before …<br />

I am pretty laid-back<br />

about this surgery.<br />

The changes will be<br />

relatively minor. There<br />

will be swelling <strong>and</strong><br />

discolouration, but<br />

I can h<strong>and</strong>le that!<br />

Ready <strong>and</strong> waiting …<br />

reading outdated<br />

magazines <strong>and</strong> trying<br />

to envision my “after.”<br />

… after


<strong>Logan</strong> <strong>and</strong> her<br />

technicolour face<br />

I feel terrible.<br />

I can’t believe<br />

I went into this<br />

so positively!<br />

Dr Son-Hing removes<br />

my nose splint<br />

I am experiencing a lot of swelling <strong>and</strong> I am nauseated from the<br />

anesthetic. I have my splint on for 5 days <strong>and</strong> then it is removed.<br />

This is not a pleasant experience! I am having a hard time shaking<br />

the anesthetic <strong>and</strong> this makes my recovery rocky. I feel gross!


Helping a CHild prepare For a Hospital stay:<br />

WHat parents Can do<br />

Having a child hospitalized can be unsettling for the whole family. There are things that parents can do that will make the experience<br />

easier for the child, siblings, other family members <strong>and</strong> parents, too! Here are a few tips that families have found helpful.<br />

Preparing Yourself<br />

A prepared parent is best able to prepare <strong>and</strong> support a child through a hospital experience. Find out all you can about the particular<br />

hospital’s routines <strong>and</strong> procedures before your child is admitted. Ask if there is a hospital guidebook for parents <strong>and</strong> children. The<br />

hospital’s public affairs department or patient representative’s office should be able to direct you to someone who can answer your<br />

questions. It is a good idea to make a list. Here are a few questions that most parents need to ask:<br />

1. What should I bring with me for my child? For me?<br />

2. Can I stay overnight?<br />

3. When can siblings, gr<strong>and</strong>parents <strong>and</strong> friends visit?<br />

4. Will there be times when I will be separated from my child? Why? For how long? Who will be with my child?<br />

5. How can I be involved in my child’s care? If I am unable to be at the hospital, can my child’s gr<strong>and</strong>mother, uncle or babysitter<br />

stay with my child?<br />

6. Where do we go when we first arrive at the hospital?<br />

Preparing Your Child<br />

Give your child a simple, honest explanation of the need for a hospital stay. The words you use will depend upon the age of the<br />

child. Try to include “to help you grow” or “to help you stay strong <strong>and</strong> healthy” or “to help that part of your body do its job” in your<br />

explanation. Children younger than 6 years of age should be told about a hospital stay a few days in advance. Older children should<br />

be informed 1 to 2 weeks ahead of time.<br />

Encourage your child to talk about going to the hospital. Answer questions honestly, being careful to answer only what is being<br />

asked. If you are unsure, tell your child that you will write down that question <strong>and</strong> find the answer for him.<br />

Check to see if the hospital offers a program to prepare your child for hospitalization. If there is one, try to have the whole family<br />

attend. Take your questions with you!<br />

Talk to your child about getting ready to go to the hospital. Favourite pajamas, stuffed toys, blanket, books <strong>and</strong> family pictures<br />

can all be taken along.


Once you know about the routines of your particular hospital, books can be helpful in preparing your child for a hospital stay.<br />

Because it is important for you to be able to point out things in the book that may be different from what your child may experience,<br />

read the book yourself before reading it with your child. A toy medical kit can be used to encourage your child to show you what he<br />

thinks will happen to him when he goes into the hospital.<br />

Preparing Siblings <strong>and</strong> Other Family Members<br />

It is important that everyone in the family is included in preparing for a child’s hospital stay. Siblings will want to know why a brother<br />

or a sister <strong>and</strong> mom <strong>and</strong> dad will be away from home. Knowing who will be looking after them <strong>and</strong> how they can keep in touch with<br />

their parents <strong>and</strong> brother or sister helps siblings feel included. Phone calls, letters, homemade cards <strong>and</strong> pictures all help siblings<br />

stay in touch. If possible, arrange for siblings <strong>and</strong> other close family members to visit. Ask your child’s nurse to help you prepare<br />

brothers <strong>and</strong> sisters for what to expect when they come to visit at the hospital. It will be helpful for your children’s teachers to know<br />

that a child in the family is going to have a hospital stay. Cards <strong>and</strong> letters from classmates do wonders to cheer up a child in the<br />

hospital!<br />

Helping a child prepare for a hospital stay can be fun! You as a parent are your child’s most important source of support. Prepare<br />

yourself first <strong>and</strong> be sure to ask for help with the unpredictable questions that all children ask!<br />

Helping CHildren prepare For a Hospital stay or Visit:<br />

WHat parents HaVe done<br />

<strong>By</strong> Margaret, Texas<br />

Our seven-year-old son, Matthew, was born with bilateral porencephaly <strong>and</strong> hospitalized frequently in the early years. Although he is<br />

quite stable <strong>and</strong> progressing, there is still a multitude of follow-up medical visits every few months. Matthew learned a long time ago<br />

that a doctor’s office is unpleasant for him. He hated blood pressure cuffs <strong>and</strong> little flashlights, <strong>and</strong> going for a computed tomography<br />

(CT) scan of his head was a major ordeal. We have now progressed to the point where none of this bothers him anymore. This<br />

is what we did:<br />

Approximately one day before an examination, we would “rehearse”. We would wrap him in bath towels, “pad” his head with<br />

smaller towels to keep it immobile (just like the technicians do in radiology) <strong>and</strong> gently talk to him, reassuring him that the procedure<br />

would not hurt. We would put “floaties” (swim aids for children) on his arm <strong>and</strong> practice taking his blood pressure. Lying flat on the<br />

kitchen table to simulate the examination table was also helpful. If he didn’t like the game, we stopped <strong>and</strong> tried again later. Amazingly,<br />

he cooperated very well for a procedure that had been rehearsed.<br />

This is simple to try. Don’t expect a child’s anxiety to disappear overnight <strong>and</strong> remember that sometimes there are procedures that<br />

do hurt. However, young children can still learn that some examinations don’t hurt <strong>and</strong> it’s great when you can calm their fears.


About the Author:<br />

<strong>Logan</strong> <strong>Bristow</strong> is a Trinity<br />

Western University student<br />

who lives in Langley, BC.<br />

She is active with many interests<br />

such as: snowboarding, dancing,<br />

photography, scrapbooking,<br />

drawing, drama, working with<br />

kids, soccer, hiking, <strong>and</strong> hanging<br />

with friends. She is especially<br />

keen to share her cleft lip &<br />

palate experiences with others<br />

in the hopes that it can support<br />

<strong>and</strong> educate those facing the<br />

same journey.

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