Ethics in HCI - Molar

SOURCES OF INFORMATION ON MEDICAL ETHICS
Links collected by Francie Fleek
Online Articles
Human Error: Designing for Error in Medical
Information Systems or "Don't worry--it always beeps
when you do that!" by Ramon M. Felciano, Stanford
University, 1995
http://camis.stanford.edu/people/felciano/research/humanerro
r/humanerrortalk.html
Human Error in Medicine bibliography:
http://camis.stanford.edu/people/felciano/research/humanerro
r/humanerrorbib.html
The paper includes suggestions for what a developer can
do to improve the situation:
• Have “error awareness”
• Take a systemic view
• Use errors as tools to analyze your design.
• Be willing to redesign.
• Use simulations when possible.
• Automate data collection for error analysis.
• Perform structured evaluations to estimate human
performance.
• Anticipate error through better coding.
Critical Legal Issues of the Patient Record by Elizabeth
Bowman and Mary McCain, The University of
Tennessee-Memphis, 1998 (abstract only from EEI21 -
The Ethics of Electronic Information in the 2st Century
conference). Note the next conference will be October 18-
21, 2001 in Memphis
http://www.memphis.edu/ethics21/98eei/98abs.htm
Open-Source Medical Information Management by
Daniel L. Johnson, 1999
An outpatient physician makes a case for open software
for the electronic patient record.
http://lorenzo.uwstout.edu/QQMIM/medicalfreesource.html
Practical Software Engineering – Social, Ethical and
Professional Issues. Course outline by Rob Kremer
http://www.cpsc.ucalgary.ca/~kremer/courses/451/Ethics.html
Includes outlines of the ACM and IEEE codes of ethics,
including brief case studies. This article includes a reprint
of those codes in a relatively easy to read format.
Bibliography includes references from CACM and IEE.
This article includes a reprint of those codes.
Ethics On The World Wide Web – bibliography of
medical ethics web sites
http://commfaculty.fullerton.edu/lester/ethics/medical.html
Also related pages on computers and other ethical areas
http://commfaculty.fullerton.edu/lester/ethics/ethics_list.html
Towards ethical guidelines for e-health: JMIR (Journal
of Medical Internet Research) Theme Issue on eHealth
Ethics – January 2001
http://www.jmir.org/2000/1/e7/index.htm
Their editorial outlines issues in online medical ethics,
including a swipe at the HONCode (which is answered on
the HON site at:
http://www.hon.ch/HONcode/jeers/jmir_hon_reply.html
EHealth Code of Ethics
On Wednesday, May 24, 2000 the eHealth Ethics
Initiative introduced an International Code of Ethics for
health care sites and services on the Internet. The event
took place at the Dirksen Senate Building in Washington,
DC.
Internet Healthcare Coalition home page -
http://www.ihealthcoalition.org/index.html
EHealth Ethics Initiative -
http://www.ihealthcoalition.org/ethics/ethics.html
Code of Ethics -
http://www.ihealthcoalition.org/ethics/ehcode.html
(PDF download in English and Spanish from this page)
Summary
Anyone who users the Internet for health-related reasons
has a right to expect that organizations and individuals who
provide health information, products or services online will
uphold the following guiding principles
1. Candor: Disclose information that if known by
consumers would likely affect consumers’
understanding or use of the site or purchase or use of a
product or service.
2. Honesty: Be truthful and not deceptive
3. Quality: Provide health information that is accurate,
easy to understand,and up-to-date.
And
Provide the information users need to make their own
judgements about the health information, products or
services provided by the site.
4. Informed Consent: Respect users’ right to determine
whether or how their personal information may be
collected, used, or shared.
5. Privacy: Respect the obligation to protect users’
privacy.
6. Professionalism in Online Health Care: Respect
fundamental ethical obligations to patients and clients.
CHI2001 Panel Proposal Page 9 Ethics in HCI