Evidence Based Practice Symposium - McMaster University

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PROJECT TITLE Beyond silence: Building support for peer education in a healthcare workplace STUDENT PRESENTERS Jessica Beaudoin Nicole Enser Adult / Older Adult Physical Health Social participation challenges for women aging with HIV Lisa Blenkhorn Jennifer Siemon Participation limitations after distal radius fractures: Linking with the ICF The psychometric properties of the MacHANd Performance Assessment (MPA) Expert panel review of a community-based exercise programme for individuals living with chronic obstructive pulmonary disease (COPD) Age friendly transit in Hamilton: Assessment using a travel chain perspective Technology Dyan Beavis Chantelle Glenn Nikki Lord Sarah Salter Elizabeth Landman Annemarie Muhic PROJECT SUPERVISORS Sandra Moll Patty Solomon Seanne Wilkins Joy MacDermid Tara Packham Katie Fisher Kirsti Reinikka Amanda Enns Brittany Strauss Mobile health strategies and occupational therapy Teresa Couto Lauren Harris The use of social media by occupational therapists: Recommendations for the College of Occupational Therapists of Ontario Accessibility of the teaching and learning environment at McMaster University as perceived by students with disabilities Program evaluation of an interprofessional event: Are we making a difference at McMaster? Reflective journaling: A learning tool for McMaster University student occupational therapists in the practicum setting Through the lens of the male OT student: Motivation factors to enter the OT profession Education Community Leanne Fernandez Jessica Yu Kanishka Baduge Csilla Gresku Kait Hammel Katie Rincker Kait Toohey Ashlen Kain Jackie Bull Katelin Wakefield Gawain Tang Patrick Whalen Exploring occupational community Erich Bogensberger Kent Tsui Lori Letts Christy Taberner PAGE 27 29 31 33 35 37 39 Elinor Larney Bonny Jung 41 Beth Marquis Bonny Jung Lorie Shimmell Bonny Jung Bonny Jung Michael Chan Joyce Tryssenaar 43 45 47 49 51
Transition to Adulthood with Cyberguide Evaluation (TRACE) 2 Research Project Qualitative study of the use and impact of a transition coordinator and Youth KIT among adolescents with chronic health conditions. Authors Dana Henderson, Shannon Hudson, & Evelyn Kosteltz, MScOT Candidates 2012, McMaster University Supervisor: Deb Stewart, MScOT Reg. (Ont.) Acknowledgements We would like to acknowledge the assistance of Elena Skoreyko Wagner, Deb Stewart, and members of the TRACE 2 study team for their contributions to our research project. Abstract Background There is evidence indicating that the transition from pediatric to adult health care for youth with chronic medical conditions often results in negative outcomes for this population, including poor health care or getting lost in the system. This evidence demonstrates the current need to enable youth with chronic medical conditions to effectively transition from the pediatric healthcare setting to the adult healthcare setting. The Transition to Adulthood with Cyberguide Evaluation (TRACE) study was developed to evaluate the use, utility and impact of two healthcare transition interventions: the Youth KIT (Keeping it Together for Youth) and an online mentor (called ‘TRACE’) to aid in improving the health care transition planning and practice for youth with chronic medical conditions. Methods A qualitative phenomenological approach was used to explore the experiences and perceptions of youth and their caregivers about the Youth KIT© and TRACE mentor in helping the youth transition from pediatric to adult services. A total of eleven youth and seven caregivers were interviewed. An inductive content analysis process was used for data analysis using the guidelines of Elo & Kyngas (2007). Results Analysis of the interview transcripts yielded 9 superordinate themes and related subthemes. Themes included: About the study, Experiences, Supports, Barriers, Self-management, Parent role, Perceived need, Recommendations, and Overarching themes of transition . Conclusion Participants did not appear to benefit from the TRACE interventions in relation to their health care transition. However, there were some benefits regarding general life transitions such as budgeting and going to school. Revisions to the interventions were recommended by youth and caregivers. Introduction There is evidence indicating that for youth with chronic medical conditions the transition from the pediatric healthcare setting into the adult healthcare setting often results in negative outcomes for this population, including poor health care or getting lost in the system (Gorter, Stewart, & Woodbury-Smith, 2011; Grant & Pan, 2011). The Transition to Adulthood with Cyberguide Evaluation (TRACE) study was developed to evaluate the use, utility and impact of two healthcare transition interventions: the Youth KIT (Keeping it Together for Youth) and TRACE (CanChild, 2012). The Youth KIT is a tool to aid youth with chronic conditions in obtaining, organizing, and sharing personal information to promote self-management as they transition into adulthood (CanChild, 2012; Gorter et al., 2011). TRACE is an online “cyber guide” or mentor that is available to interact with the participants through Ability Online (CanChild, 2012). The TRACE study is now in its second phase (TRACE 2) and this student project focused on the qualitative component to evaluate how youth with various chronic medical conditions utilize the two transition interventions throughout their transition into the adult health care system. This was done by exploring the experiences and perceptions of the youth and caregivers regarding the TRACE mentor and the Youth KIT, while also exploring their overall experiences during the transition into the adult health care services (CanChild, 2012). Literature Review For youth with chronic conditions, the move from pediatric to adult services, while generally seen as a logical and welcome aspect of their emerging autonomy (van Staa, Jedeloo, vanMeteren, & Latour, 2011), is often experienced as a time of adjustment characterized by uncertainty and lack of information and support (van Staa et al., 2011; Kirk, 2008; Young, Barden, Mills, Burke, Law, & Boydell, 2009). Parents and caregivers of youth with chronic medical conditions or disabilities express challenges in this transition including feeling unprepared for and uninvolved in their child’s service transition, and they have concerns regarding continuity of support and expertise in adult services (Kirk, 2008). Both youth and caregivers have also reported that they feel there is a lack of access to a variety of health care professionals, lack of professional knowledge, lack of information provided, uncertainty regarding the transition process, and a need for more information and more support in transitioning to adult care (Young et al., 2009). Evidence reflects that parents are frequently concerned about this transition, as they find it challenging to step aside and shift roles to allow their youth to accept more responsibility for their self-management, and feel safer in the pediatric services (Allen, Channon, Lowes, Atwell, & Lane, 2011; van Staa et al., 2011).
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Evidence Based Practice Symposium - McMaster University

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