Jeffrey Modell Foundation Overview (PDF, 6.4MB) - California ...

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44.7 12.6 Undiagnosed Patients Diagnosed Patients 19.2 Quality of Life Impact (Continued…) Number of Days with Chronic Infections 5.1 Undiagnosed Patients Diagnosed Patients Number of Days in Hospital 36 166.2 72.9 Undiagnosed Patients Diagnosed Patients 33.9 Number of Days on Antibiotics Number of School/Work Days Missed 8.9 Undiagnosed Patients Diagnosed Patients
What is the Economic Impact? Condition Cost per patient per episode/day Chronic infections Acute infections Severe infections Bacterial pneumonias Hospitalizations Physician/Hosp- ital/ER visits Antibiotics School/Work days missed $36.33 (per day) $2,950 (per episode) $5,708 (per episode) $7,529 (per episode) $1,158 (per day) $125 (per visit) $4.25 (per day) $136.40 (per day) Pre Diagnosis Post Diagnosis # of episodes Annual cost per patient 37 # of episodes Annual cost per patient Annual savings per patient 44.7 $1,623 12.6 $457 $1,166 6.4 $18,880 1.8 $5,310 $13,570 4.3 $25,544 0.6 $3,424 $21,119 2.8 $21,081 0.6 $4,517 $16,564 19.2 $22,223 5.1 $5,905 $16,328 70.9 $8,862 11.8 $1,475 $7,387 166.2 $706 72.9 $309 $397 33.9 $4,632 8.9 $1,213 $3,410 Totals per patient $102,552 $22,610 $79,942
Page 2 and 3: Primary Immunodeficiency Diseases R
Page 4 and 5: Primary Immunodeficiency The Issue:
Page 6 and 7: Who Do We Reach and How Do We Reach
Page 8 and 9: Educational Posters to Physicians 8
Page 10 and 11: 10 Warning Signs Posters Around the
Page 12 and 13: Brochures for Patients AND 12
Page 14 and 15: As Seen In… 14
Page 16 and 17: Airports, Shopping Malls, and High
Page 18 and 19: The Jeffrey Modell Centers Network
Page 20 and 21: Where are the JMF Centers in the U.
Page 22 and 23: AFRICA CANADA EUROPE Kuwait Algeria
Page 24 and 25: 2010 Jeffrey Modell Centers Survey
Page 26 and 27: Survey of Jeffrey Modell Centers Gl
Page 28 and 29: Survey of Jeffrey Modell Centers In
Page 30 and 31: 2010 - 8 Major Immunodeficiency Gro
Page 32 and 33: JMCN Comparison with ESID 32 32
Page 34 and 35: What about the Quality of Life for
Page 38 and 39: Sources for Economic Study • Hosp
Page 40 and 41: Physicians’ Conclusion on Quality
Page 42 and 43: JMF Program Accomplishments in the
Page 44 and 45: JMF Program Accomplishments in the
Page 46 and 47: EU Parliament • JMF’s initiativ
Page 48: Newborn Screening • Late diagnosi
Page 51 and 52: TRACE Program Studies I. The TRACE
Page 53 and 54: NEW! NEW! TRACE Program Studies Con
Page 55 and 56: Genome-wide Sequencing in the Newbo
Page 57 and 58: What is Software for Primary I mmun
Page 59 and 60: What Data Will Generate? HIPAA-comp
Page 61 and 62: Analyzer Data Summary From Beta Ben
Page 63 and 64: Analyzer Data Summary From Beta Ben
Page 65 and 66: Anticipated Outcomes for “High Ri
Page 67 and 68: Analyzer When Surveyed, participant
Page 69 and 70: Why is Right for you? • Technical
Page 71 and 72: How to Begin ? There are two ways t

Jeffrey Modell Foundation Overview (PDF, 6.4MB) - California ...

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