Jeffrey Modell Foundation Overview (PDF, 6.4MB) - California ...

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JMF Program Accomplishments in the Past 12 Months • 52% increase in the number of funded <strong>Jeffrey</strong> <strong>Modell</strong> Diagnostic and Research Centers, expanding from 50 to 76. • 25% increase in the number of physicians participating in the JMCN from 357 to 448 • The number of academic institutions in the network increased from 157 to 189 • 27% increase in the number of patients identified in the network with specific defects from 35, 695 to 45,590. 42
JMF Program Accomplishments in the Past 12 Months • $18 million of donated media contributed to the Awareness Campaign with an overall average of $1.5 million per month. • Production of new 10 Warning Signs Poster, Adult 10 Warning Signs Poster, “Cartoon Version” in English and Spanish, Slim Jim, Accordion Folder in English and Spanish and New Immune System Poster Kit. • Distribution of newly published materials to 30,000 pediatricians, as well as sub specialists in emergency medicine, infectious disease, and pulmonary disease. • Distribution of newly published materials to 18,000 physicians in internal medicine and family practitioners, as well as 15,000 school nurses and day care centers, nationwide. 43
Page 2 and 3: Primary Immunodeficiency Diseases R
Page 4 and 5: Primary Immunodeficiency The Issue:
Page 6 and 7: Who Do We Reach and How Do We Reach
Page 8 and 9: Educational Posters to Physicians 8
Page 10 and 11: 10 Warning Signs Posters Around the
Page 12 and 13: Brochures for Patients AND 12
Page 14 and 15: As Seen In… 14
Page 16 and 17: Airports, Shopping Malls, and High
Page 18 and 19: The Jeffrey Modell Centers Network
Page 20 and 21: Where are the JMF Centers in the U.
Page 22 and 23: AFRICA CANADA EUROPE Kuwait Algeria
Page 24 and 25: 2010 Jeffrey Modell Centers Survey
Page 26 and 27: Survey of Jeffrey Modell Centers Gl
Page 28 and 29: Survey of Jeffrey Modell Centers In
Page 30 and 31: 2010 - 8 Major Immunodeficiency Gro
Page 32 and 33: JMCN Comparison with ESID 32 32
Page 34 and 35: What about the Quality of Life for
Page 36 and 37: 44.7 12.6 Undiagnosed Patients Diag
Page 38 and 39: Sources for Economic Study • Hosp
Page 40 and 41: Physicians’ Conclusion on Quality
Page 44 and 45: JMF Program Accomplishments in the
Page 46 and 47: EU Parliament • JMF’s initiativ
Page 48: Newborn Screening • Late diagnosi
Page 51 and 52: TRACE Program Studies I. The TRACE
Page 53 and 54: NEW! NEW! TRACE Program Studies Con
Page 55 and 56: Genome-wide Sequencing in the Newbo
Page 57 and 58: What is Software for Primary I mmun
Page 59 and 60: What Data Will Generate? HIPAA-comp
Page 61 and 62: Analyzer Data Summary From Beta Ben
Page 63 and 64: Analyzer Data Summary From Beta Ben
Page 65 and 66: Anticipated Outcomes for “High Ri
Page 67 and 68: Analyzer When Surveyed, participant
Page 69 and 70: Why is Right for you? • Technical
Page 71 and 72: How to Begin ? There are two ways t

Jeffrey Modell Foundation Overview (PDF, 6.4MB) - California ...

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