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WELLNESS STARTS WITH AWARENESS - CD8 T cells - The Body

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and I told them, “Nelson has this really<br />

great information that we need to make<br />

more public and we need to help people<br />

access these supplements. This was my<br />

experience.”<br />

I sat down with them and they said<br />

great, I think that’s a great idea. I said,<br />

I’ve never run a business before. I have<br />

dreams of running a coffeehouse one day<br />

but I don’t really know anything about<br />

this stuff. <strong>The</strong>y all helped push me along<br />

the maze, so to speak, and gave me support<br />

and helped me out because I didn’t<br />

know anything about protein powder,<br />

what brands were good, how much protein<br />

should be in a serving. I kept my day<br />

job, and I was providing six nutritional<br />

supplements to six people. <strong>The</strong>y were the<br />

basic multivitamins, vitamin E, vitamin<br />

C, protein powder, and maybe one or two<br />

other ones. Maybe NAC was part of them?<br />

And if a bottle of NAC cost 10 dollars, it<br />

was sold for 10. And I kept these supplements<br />

on a shelf in my closet at home.<br />

Pretty soon I realized that I wanted to<br />

fulfill my lifelong dream of roasting coffee<br />

or selling coffee beans. It was a real<br />

small idea. I got a thousand dollars from<br />

some friends to start, and with that money<br />

I bought a credit card machine and coffee<br />

beans. Well, what ended up happening is<br />

I developed a very small but loyal group of<br />

people who loved coffee beans within 48<br />

hours of roasting. And I was also helping<br />

people gain access to nutritional supplements.<br />

But the drive for the nutritional<br />

supplements from people living with HIV<br />

very quickly overpowered all my coffeeloving<br />

friends. I decided I would have to<br />

give up the coffee because I was already<br />

working 70 hours a week taking orders for<br />

coffee, roasting it, delivering it, still doing<br />

the nutritional supplements, delivering<br />

those, running credit cards, and I just<br />

couldn’t do it. At that time Starbucks was<br />

just moving to town and you know, there’s<br />

not a buyers club within four states of<br />

Texas but we’re going to have a Starbucks<br />

44<br />

every quarter mile. So I decided to let the<br />

coffee business go.<br />

JB: You said that time in your life was<br />

embarrassing? Could you elaborate<br />

on that?<br />

FW: I was dealing with being gay and<br />

then on top of that now being HIV-positive.<br />

When I said it was embarrassing for<br />

me, it was embarrassing number one, that<br />

people would find out I was positive and/<br />

or gay. But I think the embarrassing part<br />

for me—the heart of it—here I was this<br />

educated individual and now I was contemplating<br />

thoughts of suicide because<br />

of the HIV. So my life was over … those<br />

kinds of very negative thoughts that occur<br />

when the community has not yet dealt<br />

We’re saying to people, “Here’s<br />

a good range, a therapeutic dose<br />

range that should be helpful to<br />

you with this condition.”<br />

with the issue. I felt like I had the scarlet<br />

letter on my chest. So here I was dealing<br />

with a hard enough issue, being gay, and<br />

then on top of that I have to deal with being<br />

HIV-positive. And that was hard.<br />

JB: Yeah. And then you founded—it’s<br />

called the Houston Buyers Club but<br />

it has a different name?<br />

FW: Our legal name is Program for<br />

Side Effect Management. We started<br />

unofficially in 1996, but officially recognized<br />

by the IRS, I think, in 2002.<br />

JB: So how many clients do you serve?<br />

FW: We don’t take federal money so<br />

we’re not required to keep client demographics.<br />

We don’t get the indigent or<br />

destitute population coming through because<br />

the funding isn’t here. If I had to tell<br />

you the number of clients—every year we<br />

serve about 2,000 individuals. And that<br />

is ranging from HIV to hepatitis B and C,<br />

cancer, and diabetes.<br />

JB: So what other kind of services do<br />

you provide? Do you have speakers<br />

programs?<br />

FW: Yes, we have this program that is<br />

community-centered. We’ll bring in pro-<br />

fessional speakers to speak on HIV side<br />

effects, or hepatitis B and C, or diabetes.<br />

We found this wonderful man to underwrite<br />

the filming costs associated with<br />

these events. <strong>The</strong>re’s this company that<br />

we got to film our events, called Cool Arrow<br />

Films. <strong>The</strong>y film not just the speakers,<br />

like Lark Lands, Jon Kaiser, or Nelson<br />

Vergel, but they also interview the people<br />

attending the conference, and make it fun<br />

to watch.<br />

<strong>The</strong> other thing that we’re going to<br />

pursue is the Discovery Health Network,<br />

because the information that we’re doing<br />

is not just going to be about HIV. It’s<br />

going to be about hepatitis, and diabetes.<br />

We don’t ever hear people talking about<br />

milligrams when it comes to nutritional<br />

l to r: Ricky O’Neill and Fred Walters, Jr.<br />

supplements. <strong>The</strong>y don’t ever talk about<br />

amounts. <strong>The</strong>y just mention the supplements<br />

and the herbs. No one is putting—<br />

I hate to say this—their balls on the line<br />

and giving the ranges and dosing. And we<br />

are.<br />

So what they do with these other programs<br />

is teasing these people with really<br />

great solutions and hope, but they’re<br />

leaving them in the dark. So they’re left<br />

with going into the health food store with<br />

people who may not know anything about<br />

chronic illness, and whoever they happen<br />

to get on the sales floor is who they get<br />

stuck with. Here’s a good example. Physicians<br />

all the time will tell their patients,<br />

“Go out to the store and get some fish oils,<br />

and that will keep your cholesterol under<br />

control.” Physicians who do that do their<br />

patients a disservice because they should<br />

be saying, “Your triglycerides are 50 points<br />

out of range and I think 2,000 mg a day of<br />

fish oils could help. Go and buy these at<br />

a health food store, and I’m giving you a<br />

prescription.” Instead, they’re doing like<br />

all these other shows are doing. <strong>The</strong>y’re<br />

not giving specifics. We are. We’re saying<br />

to people, “Here’s a good range, a thera-<br />

PA • September / October 2008 • tpan.com • positivelyaware.com<br />

Positively Aware<br />

Photos by Ron Baker

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