list of participants biobanks bil final
list of participants biobanks bil final
list of participants biobanks bil final
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Symposium<br />
Biobanks and biomedical collections<br />
An ethical framework for future research<br />
19-20 June 2012<br />
Palais de l’Europe, Strasbourg, France<br />
Event organised by<br />
the Committee on Bioethics (DH-BIO) <strong>of</strong> the Council <strong>of</strong> Europe<br />
List <strong>of</strong> <strong>participants</strong><br />
Symposium<br />
Biobanques et collections biomédicales<br />
Un cadre éthique pour les recherches futures<br />
19-20 juin 2012<br />
Palais de l’Europe, Strasbourg, France<br />
Evènement organisé par<br />
le Comité de Bioéthique (DH-BIO) du Conseil de l’Europe<br />
Liste des <strong>participants</strong><br />
Final <strong>list</strong> / Liste <strong>final</strong>e
SESSION CHAIRS / PRESIDENTS DE SESSION<br />
Dr Javier ARIAS-DIAZ<br />
Member <strong>of</strong> the Coordination Group for the organisation <strong>of</strong> the Symposium/Membre du Groupe de<br />
Coordination pour l’organisation du symposium<br />
Terapia Celular y Medicina Regenerativa<br />
Instituto de Salud Carlos III<br />
Avda. Monforte de Lemos 5<br />
28029 Madrid<br />
Spain<br />
Pr<strong>of</strong>. Dr. Elmar DOPPELFELD<br />
Member <strong>of</strong> the Coordination Group for the organisation <strong>of</strong> the Symposium/Membre du Groupe de<br />
Coordination pour l’organisation du symposium<br />
Union des Comités d'Ethique Allemands<br />
Bachemer Strasse 29-33<br />
50931 KÖLN<br />
Germany<br />
Dr Anne FORUS<br />
Chair <strong>of</strong> the Coordination Group for the organisation <strong>of</strong> the Symposium/Présidente du Groupe de Coordination<br />
pour l’organisation du Symposium<br />
Biotechnology and health legislation department<br />
The Norwegian Directorate for Health<br />
Division <strong>of</strong> specialised health care services<br />
P.O. Box 7000 St. Olavs plass<br />
0130 OSLO<br />
Norway<br />
Pr<strong>of</strong>. Eugenijus GEFENAS<br />
Chair <strong>of</strong> the Committee on Bioethics (DH-BIO)/Président du Comité de Bioéthique (DH-BIO)<br />
Lithuanian Bioethics Committee<br />
Vilnius str. 33<br />
2001 Vilnius<br />
Lithuania<br />
Dr Jane KAYE<br />
Rapporteur <strong>of</strong> the European Commission Expert Group on <strong>biobanks</strong>/Rapporteur du Groupe<br />
d’experts de la Commission européenne sur les biobanques<br />
Department <strong>of</strong> Public Health<br />
University <strong>of</strong> Oxford<br />
Old Road Campus<br />
Oxford OX3 7LF<br />
United Kingdom<br />
Mr Jan KAŹMIERCZAK<br />
General Rapporteur on Science and Technology Impact Assessment (Parliamentary Assembly <strong>of</strong> the<br />
Council <strong>of</strong> Europe)/Rapporteur général sur l’évaluation de l’impact de la science et de la technologie<br />
(Assemblée Parlementaire du Conseil de l’Europe)<br />
Sejm, ul. Wiejska 4/6/8<br />
00-902 Warsaw<br />
Poland
Pr<strong>of</strong>. Graeme LAURIE<br />
Director <strong>of</strong> Research, School <strong>of</strong> Law/Directeur de la recherche<br />
School <strong>of</strong> Law<br />
University <strong>of</strong> Edinburgh<br />
Old College<br />
South Bridge<br />
Edinburgh EH8 9YL<br />
United Kingdom<br />
Dr Siobhán O'SULLIVAN<br />
Member <strong>of</strong> the Coordination Group for the organisation <strong>of</strong> the Symposium/Membre du Groupe de<br />
Coordination pour l’organisation du symposium<br />
Chief Bioethics Officer<br />
Dept. <strong>of</strong> Health<br />
Hawkins House<br />
Dublin 2<br />
Ireland<br />
Dr Lino PAULA<br />
Directorate-General for Research and Innovation/Direction Générale de la Recherche et de<br />
l’Innovation<br />
European Commission<br />
European Research Area<br />
Ethics and Gender Unit<br />
Office SDME 3/14<br />
1049 Brussels<br />
Belgium<br />
Dr Emmanuelle RIAL-SEBBAG<br />
Member <strong>of</strong> the European Commission Expert Group on <strong>biobanks</strong>/Membre du Groupe d’experts de<br />
la Commission européenne sur les biobanques<br />
Chargée de recherches INSERM<br />
UMR U 1027, Inserm, Université de Toulouse - Université Paul Sabatier -Toulouse III<br />
Equipe 4: "Génomique, biothérapies et santé publique : approche interdisciplinaire" Plateforme<br />
Sociétale "Génétique et Société", GIS Genotoul, Génopole Toulouse Midi-Pyrénées<br />
37, allées Jules Guesdes<br />
31073 Toulouse Cedex<br />
France<br />
OPENING SESSION / SESSION D’OUVERTURE<br />
Mr Philippe BOILLAT<br />
Director General, Directorate General Human Rights and Rule <strong>of</strong> Law<br />
Council <strong>of</strong> Europe<br />
Directeur Général, Direction Générale Droits de l’Homme et Etat de droit<br />
Conseil de l’Europe<br />
Dr Octavi QUINTANA TRIAS<br />
Director <strong>of</strong> the European Research Area<br />
European Commission<br />
Directeur de l’Espace européen de la recherche<br />
Commission européenne<br />
2
SPEAKERS / INTERVENANTS<br />
Pr<strong>of</strong>. Christian CHABANNON<br />
Director <strong>of</strong> the Cancer Biobank/Directeur de la Biobanque du cancer<br />
Coordination du Canceropôle PACA<br />
Institut Paoli-Calmettes<br />
Faculté de Médecine - Site Timone<br />
27 Boulevard Jean Moulin<br />
13385 MARSEILLE Cedex 05<br />
France<br />
Pr<strong>of</strong>. Martina CORNEL<br />
Pr<strong>of</strong>essor <strong>of</strong> Community Genetics and Public Health Genomics/Pr<strong>of</strong>esseur de génétique et génomique<br />
communautaire de santé publique<br />
VU University Medical Center<br />
Van der Boechorststraat 7<br />
1081 BT Amsterdam<br />
The Netherlands<br />
Dr Anne FORUS<br />
Chair <strong>of</strong> the Coordination Group for the organisation <strong>of</strong> the Symposium/Présidente du Groupe de Coordination<br />
pour l’organisation du Symposium<br />
Biotechnology and health legislation department<br />
The Norwegian Directorate for Health<br />
Division <strong>of</strong> specialised health care services<br />
P.O. Box 7000 St. Olavs plass<br />
0130 OSLO<br />
Norway<br />
Pr<strong>of</strong>. Herbert GOTTWEIS, apologised/excusé<br />
Chair <strong>of</strong> the European Commission Expert Group on <strong>biobanks</strong>/Président du Groupe d'experts de la<br />
Commission européenne sur les biobanques<br />
Department <strong>of</strong> Political Science<br />
University <strong>of</strong> Vienna<br />
Neues Institutsgebäude<br />
Universitätsstr. 7/2. Stock<br />
1010 Vienna<br />
Austria<br />
Pr<strong>of</strong>. Kristian HVEEM<br />
Director <strong>of</strong> the HUNT Biobank - leader <strong>of</strong> Biobank Norway/Directeur de la Biobanque “HUNT” - responsable<br />
de Biobank Norway<br />
Faculty <strong>of</strong> Medicine<br />
Norwegian University <strong>of</strong> Science and Technology<br />
7491 Trondheim<br />
Norway<br />
Pr<strong>of</strong>. Bartha Maria KNOPPERS<br />
Director <strong>of</strong> the Centre <strong>of</strong> Genomics and Policy/Directrice du Centre de Génomique et Politiques<br />
Canada Research Chair in Law and Medicine<br />
Director, Centre <strong>of</strong> Genomics and Policy<br />
Faculty <strong>of</strong> Medicine, Dept. <strong>of</strong> Human Genetics McGill University,<br />
740 Dr. Penfield Avenue,Rm 5214 Montreal, QC. H3A 1A4<br />
Canada<br />
3
Dr Roberto LATTANZI<br />
Head <strong>of</strong> Unit, Italian Data Protection Authority, Member <strong>of</strong> the European Commission Expert Group<br />
on <strong>biobanks</strong>/Chef de Département, Autorité italienne de protection des données, Membre du<br />
Groupe d’experts de la Commission européenne sur les biobanques<br />
Garante per la protezione dei dati personali<br />
Via Merulana 76<br />
00186 Roma<br />
Italy<br />
Pr<strong>of</strong>. Graeme LAURIE<br />
Director <strong>of</strong> Research, School <strong>of</strong> Law/Directeur de la recherche<br />
School <strong>of</strong> Law<br />
University <strong>of</strong> Edinburgh<br />
Old College<br />
South Bridge<br />
Edinburgh<br />
EH8 9YL<br />
United Kingdom<br />
Pr<strong>of</strong>. Milan MACEK<br />
Head <strong>of</strong> the Department <strong>of</strong> Biology and Medical Genetics, Member <strong>of</strong> the European Commission Expert<br />
Group on <strong>biobanks</strong>/Chef du Service de biologie et génétique médicale, Université Charles de<br />
Prague, Membre du Groupe d'experts de la Commission européenne sur les biobanques<br />
Head <strong>of</strong> the National Center for Cystic Fibrosis<br />
University Hospital Motol and 2nd School <strong>of</strong> Medicine<br />
Charles University<br />
V Uvalu 84, Praha 5<br />
150 06 Prague<br />
Czech Republic<br />
Pr<strong>of</strong>. Andres METSPALU<br />
Head <strong>of</strong> the Estonian Genome Center/Chef du Centre de génomique d’Estonie<br />
University <strong>of</strong> Tartu<br />
23 Riia St.<br />
Tartu 51010<br />
Estonia<br />
Dr Pilar NICOLAS<br />
Research projects co-ordinator, Inter-University Chair in Law and the Human Genome/Coordinatrice<br />
des projets de recherche, Chaire Inter-universitaire de Droit et Génome Humain<br />
Universidad de Deusto<br />
Avenida Universidades, 24<br />
48007-BILBAO Bizkaia<br />
Spain<br />
Pr<strong>of</strong>. Elisabeth RYNNING<br />
Pr<strong>of</strong>essor <strong>of</strong> Medical Law/Pr<strong>of</strong>esseur de droit médical<br />
Department <strong>of</strong> Law<br />
Uppsala University<br />
Box 512<br />
75120 Uppsala<br />
Sweden<br />
Pr<strong>of</strong>. Christian SCERRI<br />
Associate Pr<strong>of</strong>essor, Department <strong>of</strong> Physiology and Biochemistry/Pr<strong>of</strong>esseur agrégé, Service de<br />
physiologie et de biochimie<br />
Laboratory <strong>of</strong> Molecular Genetics, Biomedical Sciences Building<br />
University <strong>of</strong> Malta<br />
2080 Malta<br />
4
Pr<strong>of</strong>. Kurt ZATLOUKAL<br />
Coordinator <strong>of</strong> BBMRI/Coordinateur du BBMRI<br />
Institute <strong>of</strong> Pathology<br />
Medical University <strong>of</strong> Graz<br />
Auenbruggerplatz 25<br />
8036 Graz<br />
Austria<br />
GENERAL ROUNDTABLE / TABLE RONDE GENERALE<br />
MODERATOR / MODERATEUR<br />
Mr Dick AHLSTROM<br />
Science Editor <strong>of</strong> the Irish Times/Rédacteur scientifique en chef du Irish Times<br />
The Irish Times<br />
Irish Times Building<br />
Tara Street<br />
Dublin 2<br />
Ireland<br />
PARTICIPANTS<br />
Dr Björn DAHLLÖF<br />
Executive Director, Biobanking & Sample Management/Directeur exécutif, Gestion des biobanques &<br />
des échantillons<br />
Novartis<br />
Basel<br />
Switzerland<br />
Dr Monica ENSINI<br />
Registers and Biobanks Senior Manager/Responsable des projets registres et biobanques<br />
EURORDIS<br />
Plateforme Maladies Rares<br />
96, Rue Didot<br />
75014 Paris<br />
France<br />
Dr Martin GÖTZ<br />
Scientific expert/Expert scientifique<br />
Office fédérale de la santé publique<br />
Division Biomédecine<br />
Seilerstrasse 8<br />
3003 Bern<br />
Suisse<br />
Pr<strong>of</strong>. Bartha Maria KNOPPERS<br />
Director <strong>of</strong> the Centre <strong>of</strong> Genomics and Policy/Directrice du Centre de Génomique et Politiques<br />
Canada Research Chair in Law and Medicine<br />
Director, Centre <strong>of</strong> Genomics and Policy<br />
Faculty <strong>of</strong> Medicine, Dept. <strong>of</strong> Human Genetics McGill University,<br />
740 Dr. Penfield Avenue,Rm 5214 Montreal, QC. H3A 1A4<br />
Canada<br />
5
Dr Bob PHILIPPS<br />
Director General <strong>of</strong> Integrated BioBank <strong>of</strong> Luxembourg (IBBL)/Directeur général de Biobanque<br />
intégrée de Luxembourg (IBBL)<br />
35, rue Michel Engels<br />
1465 Luxembourg<br />
Luxembourg<br />
Pr<strong>of</strong>. Alexander TONEVITSKY, apologised/excusé<br />
Head <strong>of</strong> the Laboratory <strong>of</strong> Molecular Physiology/Chef du Laboratoire de physiologie moléculaire<br />
Institute <strong>of</strong> General Pathology and Pathophysiology<br />
Russian Academy <strong>of</strong> Medical Sciences<br />
Solyanka, 14<br />
109240 Moscow<br />
Russian Federation<br />
Dr Anneli TÖRRÖNEN<br />
Ministerial Advisor/Conseillère ministérielle<br />
Ministry <strong>of</strong> Social Affairs and Health<br />
P.O. Box 33<br />
00023 Government<br />
Finland<br />
Pr<strong>of</strong>. Erich WICHMANN<br />
Spokesperson <strong>of</strong> the Epidemiological Planning Committee (EPC) <strong>of</strong> the German National Cohorte,<br />
German Coordinator <strong>of</strong> the European Biobanking and Biomolecular Resources Research Infrastructure<br />
(BBMRI)/Porte-parole du Comité de planification épidémiologique (EPC) de la Cohorte nationale<br />
allemande, Coordinateur allemand de l'Infrastructure de la recherche relative aux biobanques et aux<br />
ressources biomoléculaires (BBMRI)<br />
Director<br />
Helmholtz Center Munich<br />
German Research Center for Environmental Health<br />
Ingolstädter Landstr. 1<br />
85764 Neuherberg<br />
Germany<br />
Dr Nikolajs ZEPS<br />
Research group leader, member <strong>of</strong> the Australian health ethics committee/Responsable de recherche,<br />
membre du comité australien d'éthique de la santé<br />
St John <strong>of</strong> God Subiaco Hospital<br />
Level 5, Bendat Family Comprehensive Cancer Centre<br />
12 Salvado Road<br />
SUBIACO WA 6008<br />
Australia<br />
6
ARMENIA / ARMENIE<br />
PARTICIPANTS<br />
Pr<strong>of</strong>. Tamara SARKISIAN<br />
Director <strong>of</strong> CMG, Head specia<strong>list</strong> <strong>of</strong> Ministry <strong>of</strong> Health <strong>of</strong> Armenia, Head <strong>of</strong> department <strong>of</strong> medical<br />
genetics <strong>of</strong> State medical university<br />
Center <strong>of</strong> medical genetics and primary health care (CMG)<br />
34/3 Abovyan street , Yerevan, 375001<br />
tamsar@sci.am<br />
AUSTRIA / AUTRICHE<br />
Dr Alexander HOENEL<br />
Head Institute for Inspections, Medical Devices and Hemovigilance<br />
Federal Office for Safety in Health Care, Institute for Inspections, Medical Devices and Hemovigilance<br />
Traisengasse 5, 1200 Vienna<br />
alexander.hoenel@basg.gv.at<br />
BELGIUM / BELGIQUE<br />
Dr Fadi ABDULSATER<br />
Coordinateur de la Biobanque IPG<br />
institut de pathologie et génétique<br />
25, avenue Georges lemaître<br />
6041-Gosselies<br />
fadi.abdulsater@ipg.be<br />
Dr Julian COCKBAIN<br />
Consultant European Patent Attorney<br />
Independent/Patent attorney<br />
Hoogpoort 28A101<br />
9000 Gent<br />
julian.cockbane@btopenworld.com<br />
Dr Ligia CRACIUN<br />
Biobank manager, Anatomical Pathology Department<br />
Jules Bordet Institute<br />
125 Boulevard de Waterloo<br />
Brussels 1000<br />
ligia.craciun@bordet.be<br />
Mrs Céline DEGAILLIER<br />
Assistant de projet pour la Tumorothèque Virtuelle Belge<br />
Registre du Cancer<br />
Rue Royale 215 / 7<br />
1210 Bruxelles<br />
celine.degaillier@kankerregister.org<br />
7
Pr<strong>of</strong>. Nadine ECTORS<br />
Coordinator Activity Center Biobanking University<br />
University / University Hospitals Leuven - Belgium ; participating in Flemish initiative and National Belgian<br />
initiative for biobanking ; Coordinator AC Biobanking University<br />
University Hospitals Leuven<br />
Herestraat 49<br />
3000 Leuven<br />
Nadine.Ectors@uzleuven.be<br />
Ms Ilse GUTIERREZ-ROELENS<br />
Gestionnaire de la biobanque de l'UCL, Service d'Anatomie Pathologique<br />
Université catholique de Louvain<br />
Tour Franklin<br />
1, Avenue Hippocrate, 10<br />
1200 Bruxelles<br />
ilse.gutierrez@uclouvain.be<br />
Dr Isabelle HUYS<br />
Docent patent law, faculty <strong>of</strong> pharmaceutical sciences, KULeuven<br />
Katholieke Universiteit Leuven<br />
Herestraat 49, box 521<br />
3000 Leuven<br />
isabelle.huys@pharm.kuleuven.be<br />
Ms Marion MAETENS<br />
Translational Research Manager<br />
Jules Bordet Institute<br />
Bd de Waterloo 127<br />
1000 Brussels<br />
marion.maetens@bordet.be<br />
Pr<strong>of</strong>. Myriam REMMELINK<br />
Clinical Head, Department <strong>of</strong> Pathology<br />
HOPITAL ERASME, Pathology Department<br />
808 Route de Lennik<br />
1070 Brussels<br />
myriam.remmelink@erasme.ulb.ac.be<br />
Pr<strong>of</strong>. Isabelle SALMON<br />
Head <strong>of</strong> Department, Department <strong>of</strong> Pathology<br />
HOPITAL ERASME, Pathology Department<br />
808 Route de Lennik<br />
1070 Brussels<br />
isabelle.salmon@erasme.ulb.ac.be<br />
Pr<strong>of</strong>. Elke SMITS<br />
Liaison Officer Clinical Research Center Antwerp<br />
Antwerp Univesity Hospital<br />
Wilrijkstraat 10<br />
2650 Edegem<br />
elke.smits@uza.be<br />
Mr Alex SPINETTE<br />
Laborantin<br />
Institut Jules Bordet<br />
121, BD Waterloo<br />
Bruxelles, 1000<br />
8
Pr<strong>of</strong>. Sigrid STERKCX<br />
Pr<strong>of</strong>essor <strong>of</strong> Ethics, Department <strong>of</strong> Philosophy & Moral Sciences<br />
Ghent University, Bioethics Institute Ghent, Bioethics (expertise on, inter alia, biobanking, patenting <strong>of</strong><br />
human body material, ethical and legal aspects <strong>of</strong> therapeutic and research uses <strong>of</strong> human body material)<br />
Hoogpoort 28 A101<br />
9000 Gent<br />
sigrid.sterckx@ugent.be<br />
Mr Michiel VERLINDEN<br />
Doctorandus, Faculty <strong>of</strong> Pharmaceutical Sciences<br />
KU Leuven - Expertise in legal framework <strong>of</strong> <strong>biobanks</strong><br />
Herestraat 49, box 521<br />
3000 Leuven<br />
michiel.verlinden@pharm.kuleuven.be<br />
Ms Malvika VYAS<br />
Policy Analyst<br />
Rohde Public Policy<br />
Rohde Public Policy, Avenue Michel-Ange 86<br />
Brussels 1000<br />
DENMARK / DANEMARK<br />
Mr Morten ANDREASEN<br />
Project leader<br />
The Danish Council <strong>of</strong> Ethics / MSc Biology/philosophy and PhD Public Health<br />
Rentemestervej 8<br />
2400 Copenhagen NV<br />
moa@etiskraad.dk<br />
FINLAND / FINLANDE<br />
Dr Riitta BURRELL<br />
Senior Officer, Legal Affairs<br />
National Supervisory Authority for Welfare and Health<br />
Valvira, P.O. Box 210<br />
FI-00531 Helsinki<br />
riitta.burrell@valvira.fi<br />
Dr Pirjo PENNANEN<br />
Head <strong>of</strong> Unit, Medical Counsellor<br />
National Supervisory Authority for Welfare and Health, Valvira<br />
PB 210<br />
00531 Helsinki<br />
pirjo.pennanen@valvira.fi<br />
Pr<strong>of</strong>. Heikki RUSKOAHO<br />
Chairperson <strong>of</strong> the National Committee on Medical Research Ethics, TUKIJA<br />
National Committee on Medical Research Ethics (TUKIJA, acronym)<br />
Pr<strong>of</strong>essor in University <strong>of</strong> Oulu<br />
Department <strong>of</strong> Pharmacology and Toxicology<br />
P.O. BOX 5000<br />
90014 University <strong>of</strong> Oulu<br />
heikki.ruskoaho@oulu.fi<br />
9
Ms Soini SIRPA<br />
Senior legal adviser<br />
Institute for Health and Welfare (THL) & BBMRI Finland<br />
Mannerheimintie 166, POB 30<br />
00271 Helsinki<br />
sirpa.soini@thl.fi<br />
Dr Juha Pekka TURUNEN, apologised/excusée<br />
Secretary<br />
Advisory Board on Biotechnology<br />
c/o The Finnish Medical Society Duodecim<br />
PO Box 713, Kalevankatu 11 A<br />
00101 Helsinki<br />
juha.turunen@duodecim.fi<br />
FRANCE<br />
Mr Mohamad ALI<br />
Doctorant en neurosciences<br />
Laboratoire d'imagerie et des neurosciences cognitives<br />
17 rue des mineurs<br />
67000 Strasbourg<br />
Mrs Nadia AUBIN-MOUGIN<br />
Directrice<br />
Forum Européen de Bioéthique<br />
9, place Kléber<br />
67000 Strasbourg<br />
nadia.aubin@febs.fr<br />
Mrs Sylvie BACH<br />
Pr<strong>of</strong>esseur Agrégé de Philosophie<br />
Lycée Jean Rostand<br />
5 Rue Edmond Labbe<br />
67084 Strasbourg<br />
sylvbach@gmail.com<br />
Melle Anne BAHR<br />
Directeur-Adjoint<br />
Protection des données personnelles R&D<br />
San<strong>of</strong>i<br />
1 avenue Pierre Brossolette<br />
91385 Chilly-Mazarin Cedex<br />
Mr François BONNAY<br />
Doctorant (Université de Strasbourg)<br />
UPR9022 CNRS<br />
15, rue René Descartes<br />
67084 Strasbourg<br />
f.bonnay@ibmc-cnrs.unistra.fr<br />
Ms Georgia BUSCAGLIA<br />
Student<br />
Syracuse University<br />
Strasbourg<br />
10
Ms Amanda FUHR<br />
Student<br />
Syracuse University<br />
Strasbourg<br />
Ms Jasjote GREWAL<br />
Masters Student in Ethics<br />
Centre Européen d'Enseignement et de Recherche en Éthique (CEERÉ) de l'Université de Strasbourg<br />
37 Rue de St-Dié<br />
67100 Strasbourg<br />
jasjotegrewal@yahoo.com<br />
Ms Samantha HALLER<br />
Doctorante (Université de STRASBOURG)<br />
UPR9022 CNRS<br />
15 rue René Descartes<br />
67084 Strasbourg<br />
s.haller@ibmc-cnrs.unistra.fr<br />
Pr<strong>of</strong>. Michel HASSELMANN<br />
Pr<strong>of</strong>esseur des Université-Praticien Hospitalier<br />
Chef de servicede réanimation NHC -Hôpitaux Universitaires -Président de l'Espace Ethique Régional<br />
Hôpitaux Universitaires - Université de Strasbourg. Réanimation - Ethique<br />
Rénimation Médicale - NHC - CHRU<br />
1 place de l'hôpital<br />
67091 Strasbourg Cedex<br />
m.hasselmann@unistra.fr<br />
Mr Romain HOFFMANN<br />
Etudiant<br />
Strasbourg<br />
h<strong>of</strong>fmann.romain@yahoo.fr<br />
Dr Daria JULKOWSKA<br />
Project manager<br />
GIS Institut des Maladies Rares<br />
Plateforme Maladies Rares<br />
96 Rue Didot<br />
75014 Paris<br />
djulkowska@gis-maladiesrares.net<br />
Ms Laura JUNG<br />
Doctorant (équipe Pr<strong>of</strong>. Stéphane Viville)<br />
IGBMC Programmme Biologie du développement et cellules souches<br />
1 rue Laurent Fries<br />
67400 Illkirch<br />
laura.jung@igbmc.fr<br />
Mr Hye Lee KIM<br />
Student<br />
Syracuse University<br />
Strasbourg<br />
Ms Séverine KUPFER<br />
Responsable Propriété Intellectuelle et Contrefacon<br />
Leem - Les Entreprises du Médicament<br />
88 rue de la Faisanderie<br />
75116 Paris<br />
skupfer@leem.org / djf@leem.org<br />
11
Mrs Véronique LEGENDRE<br />
Praticien Hospitalier Hopitaux Universitaires de Strasbourg / Chercheur Associé<br />
Laboratoire Ethique et Pratiques Médicales IRIST EA 3424<br />
Pôle de Psychiatrie et Santé Mentale, clinique Psychiatrique<br />
1 place de l'Hôpital<br />
67091 Strasbourg Cedex<br />
veronique.legendrechru-strasbourg.fr<br />
Mr Eder MANCERA<br />
PhD Student<br />
Institut de Biologie Moléculaire de Plantes<br />
Université de Strasbourg<br />
12 Général Zimmer<br />
67084 Strasbourg<br />
eder.mancera@ibmp-cnrs.unistra.fr<br />
Mr Damien MARECHAL<br />
PhD student<br />
Recherche fondamentale<br />
1 rue Laurent Fries<br />
67404 Illkirch Cedex<br />
marechal@igbmc.fr<br />
Mrs Sandra MEYER<br />
PhD 1st year<br />
EA4438-Equipe signalisation et cancer de la prostate<br />
1 place de l'hôpital<br />
67000 strasbourg<br />
sandra883@msn.com<br />
Mr Gregory OWCARZ<br />
Pr<strong>of</strong>essor<br />
Syracuse University<br />
Strasbourg<br />
gregory.owcarz@csun.edu<br />
Dr Muhammad RAFIQ<br />
Student<br />
INSERM/Physiopathology<br />
Faculté de médecine<br />
11 rue Humann<br />
67000 Strasbourg<br />
rafiqdar@hotmail.com<br />
Pr<strong>of</strong>. Jean-Christophe WEBER<br />
Pr<strong>of</strong>esseur à la Faculté de Médecine - Chef de service Hospitalier / Service de Médecine Interne -<br />
Hôpitaux Universitaires de Strasbourg<br />
Centre Européen d'Enseignement et de Recherche en Ethique / Université de Strasbourg / Ethique<br />
clinique<br />
Service de Médecine interne<br />
Nouvel Hôpital Civil<br />
1, place de l'hôpital - BP 426<br />
67091 Strasbourg Cedex<br />
jean-christophe.weber@chru-strasbourg.fr<br />
12
GERMANY / ALLEMAGNE<br />
Dr Joachim VETTER<br />
Head <strong>of</strong> Office<br />
German Ethics Council<br />
Jaegerstrasse 22/23<br />
10117 Berlin<br />
vetter@ethikrat.org<br />
Pr<strong>of</strong>. Matthias WJST<br />
PI, CPC/ILBD<br />
Helmholtz Zentrum München<br />
Ingolstädter Landstr 1<br />
85764 München-Oberschleissheim<br />
wjst@helmholtz-muenchen.de<br />
GREECE / GRECE<br />
Dr Catherine STAVROPOULOS-GKIOKAS<br />
Pr<strong>of</strong>essor, Department <strong>of</strong> Pharmacology and Toxicology<br />
University <strong>of</strong> Oulu<br />
Cord Blood Bank and Bioibank, Biomedical Foundation<br />
Academy <strong>of</strong> Athens<br />
cstavrop@bioacademy.gr<br />
HUNGARY / HONGRIE<br />
Ms Szilvia MAGYAROSI<br />
Biobank Coordinator<br />
Semmelweis University, University Biobank Network Coordinator<br />
Budapest<br />
szilvia.magyarosi@gmail.com<br />
Pr<strong>of</strong>. Maria Judit MOLNAR<br />
Director <strong>of</strong> Department<br />
Semmelweis University, Clinical and Research Centre for Molecular Neurology<br />
Budapest<br />
molnarmj@gmail.com<br />
Pr<strong>of</strong>. Judit SANDOR<br />
Pr<strong>of</strong>essor, Director <strong>of</strong> CELA<br />
Central European University, Center for Ethics and Law in Biomedicine (CELAB) medical law, bioethics<br />
9 Nador<br />
CEU<br />
Budapest 1051<br />
sandorj@ceu.hu<br />
ITALY / ITALIE<br />
Dr Angelo DEI TOS, apologised/excusé<br />
Director, Department <strong>of</strong> Oncology; Director <strong>of</strong> Anatomic Pathology<br />
General Hospital <strong>of</strong> Treviso, Oncology - Anatomic Pathology<br />
Piazza Ospedale, 1<br />
31100 Treviso<br />
apdeitos@ulss.tv.it<br />
13
Dr Marilena MISSORICI<br />
International and Community Matters<br />
Garante per la protezione dei dati personali<br />
76 via Merulana<br />
00185 Roma<br />
JAPAN / JAPON<br />
Dr Yusuke INOUE<br />
Assistant Pr<strong>of</strong>essor<br />
Department <strong>of</strong> Public Policy<br />
Institute <strong>of</strong> Medical Science<br />
University <strong>of</strong> Tokyo, Japan/Research ethics, medical law<br />
4-6-1, Shirokanedai, Minato-ku<br />
Tokyo 108-8639<br />
yinoue-kyt@umin.ac.jp<br />
LITHUANIA / LITUANIE<br />
Mr Meškys EDVINAS<br />
PhD Candidate<br />
Vilnius University Law Faculty<br />
Jogailos str. 9 / 1<br />
01116 Vilnius<br />
edvinas.meskys@lawin.lt<br />
LUXEMBOURG<br />
Ms Dianne GOVE<br />
Information Officer<br />
Alzheimer Europe<br />
145 route de Thionville<br />
2611 Luxembourg<br />
dianne.gove@alzheimer-europe.org<br />
NETHERLANDS / PAYS-BAS<br />
Dr Jasper BOVENBERG<br />
Director<br />
Legal Pathways<br />
Klapheklaan 8, 2111 XS Aerdenhout<br />
jabovenberg@xs4all.nl<br />
Pr<strong>of</strong>. Henriette ROSCAM ABBING<br />
Vice-Chair European Association <strong>of</strong> Health Law; Editor European Journal <strong>of</strong> Health Law<br />
Health Law<br />
46 Oosterpark<br />
Amsterdam, 1092 An<br />
roscamabbing@zonnet.nl<br />
14
Mr Evert-Ben van VEEN<br />
Director/Senior consultant<br />
MedLawconsult, also participating on behalf <strong>of</strong> FEDERA<br />
PO Box 11500, 2502 AM,<br />
The Hague<br />
consult@medlaw.nl<br />
Dr Eric VERMEULEN<br />
Postdoc<br />
Vumc Medical Centre/The Netherlands Cancer Institute (NKI)/BBMRI.NL<br />
NKI-AVL, Division <strong>of</strong> Psychosocial Research and Epidemiology<br />
Plesmanlaan 121, 1066 CX Amsterdam<br />
PO Box 90203, 1006 BE Amsterdam<br />
e.vermeulen@vumc.nl<br />
NORWAY / NORVEGE<br />
Pr<strong>of</strong>. Kjersti BAKKEN<br />
Associate pr<strong>of</strong>essor, Department <strong>of</strong> Community Medicine, University <strong>of</strong> Tromso<br />
National Committee for Medical and Health Research Ethics (NEM)<br />
9037 Tromso<br />
kjersti.bakken@uit.no<br />
Mr Per Holger BROCH<br />
Lawyer<br />
NTNU<br />
Oskar Braatens vei 5<br />
7024 Trondheim<br />
perholger@helseradgiveren.no<br />
Pr<strong>of</strong>. Dag BRUUSGAARD<br />
Chair National Committee for Medical Research Ethics<br />
National Committee for Medical Research Ethics<br />
Department <strong>of</strong> Health and Society, University <strong>of</strong> Oslo, Box 1130 Blindern<br />
0318 Oslo<br />
dag.bruusgaard@medisin.uio.no<br />
Dr Hilde EIKEMO<br />
Advisor, Regional committee for medical and health research ethics - Central Norway<br />
REK Midt-Norge<br />
NTNU, Det Medisinske Fakultet<br />
Pb. 8905<br />
7491 Trondheim<br />
hilde.eikemo@ntnu.no<br />
Dr Grethe FOSS, apologised/excusée<br />
Senior Advisor, The Norwegian Biotechnology Advisory Board<br />
The Norwegian Biotechnology Advisory Board<br />
Stortingsgaten 10<br />
0105 Oslo<br />
grethe.foss@bion.no<br />
Dr Jacob HOLEN<br />
Director<br />
Norwegian National Committee for Medical Research Ethics<br />
Prinsens gate 18<br />
0105 Oslo<br />
Jacob.Holen@etikkom.no<br />
15
Pr<strong>of</strong>. Dr Knut RUYTER<br />
Director<br />
Regional Ethics for Medical and Healthcare Ethics<br />
Faculty <strong>of</strong> Medicine<br />
University <strong>of</strong> Oslo<br />
P.O. Box 1130, Blindern<br />
0318 Oslo<br />
k.w.ruyter@medisin.uio.no<br />
Mrs Kristin Solum STEINSBEKK<br />
PhD Candidate / Assistant pr<strong>of</strong>essor<br />
NTNU and HIST Trondheim, Norway / Bioethics - Biomedical science<br />
NTNU, Det medisinske fakultet<br />
Institut for samfunnsmedisin, Postboks 8905<br />
7491 Trondheim<br />
POLAND / POLOGNE<br />
Dr Jakub PAWLIKOWSKI<br />
Scholar, Lecturer, Department <strong>of</strong> Ethics and Human Philosophy<br />
Medical University <strong>of</strong> Lublin, Poland;Expert Group for Genetic Molecular Research and Biobanking<br />
Ministry <strong>of</strong> Science and Higher Education<br />
Zaklad Etyki i Filoz<strong>of</strong>ii Czlowieka Uniwersytetu Medycznego<br />
ul. Szkolna 18<br />
20-124 Lublin<br />
jpawlikowski@wp.pl<br />
Pr<strong>of</strong>. Michal WITT<br />
Pr<strong>of</strong>essor, Scientific Deputy Director<br />
International Institute <strong>of</strong> Molecular and Cell Biology<br />
Trojdena 4<br />
02-109 Warsaw<br />
wittmich@man.poznan.pl<br />
PORTUGAL<br />
Pr<strong>of</strong>. Henrique BARROS<br />
Pr<strong>of</strong>essor/Director Department <strong>of</strong> Clinical Epidemiology<br />
Predictive Medicine and Public Health<br />
University <strong>of</strong> Department <strong>of</strong> Clinical Epidemiology, Predictive Medicine and Public Health<br />
University <strong>of</strong> Porto Medical School<br />
Alameda Pr<strong>of</strong>. Hernani Monteiro<br />
4200-319 Porto<br />
hbarros@med.up.pt<br />
ROMANIA / ROUMANIE<br />
Dr Aurora DRAGOMIRISTEANU<br />
Director <strong>of</strong> Romanian Registry <strong>of</strong> Hematopoietic Stem Cells Donors<br />
Romanian Registry <strong>of</strong> Hematopoietic Stem Cells Donors/Health Ethics<br />
2-8 Constantin Caracas St, Sector 1<br />
Bucharest, 011155<br />
aurora.dragomiristeanu@rndvcsh.ro<br />
16
RUSSIAN FEDERATION / FEDERATION DE RUSSIE<br />
Pr<strong>of</strong>. Vera IZHEVSKAYA<br />
Deputy Director<br />
Federal State Budgetary Institution "Research Centre for Medical Genetics"<br />
Russian Academy <strong>of</strong> Medical Sciences<br />
1, Moskvorechie st.<br />
Moscow 115478<br />
izhevskaya@med-gen.ru<br />
SPAIN / ESPAGNE<br />
Dr Manuel MORENTE<br />
Coordinator <strong>of</strong> the Spanish National Biobank Network - ISCIII (Bbmri.Es)<br />
Scientific Director <strong>of</strong> the Spanish National Cancer Centre Biobank<br />
Member <strong>of</strong> the Spanish National Institute <strong>of</strong> Health Charles III Ethic Committee<br />
Spanish National Cancer Centre -CNIO;Spanish National Biobank Network - ISCIII (BBMRI.ES)<br />
Spanish National Institute <strong>of</strong> Health Carles III - ISCIII<br />
Melchor Fernandez Almagro, 3<br />
28029 - Madrid<br />
mmorente@cnio.es<br />
Dr Francesc PALAU, apologised/excusé<br />
Ciberer Scientific Director / Research Pr<strong>of</strong>essor at the Spanish National Research Council (CSIC)<br />
Centre for Biomedical Network Research on Rare Diseases (Ciberer) /Neuromuscular Diseases-Rare<br />
Diseases-Genetics<br />
C/ Jaime Roig, 11<br />
46010 Valencia<br />
fpalau@ibv.csic.es<br />
SWITZERLAND / SUISSE<br />
Ms Flora COLLEDGE<br />
PhD Candidate<br />
Institute for Biomedical Ethics<br />
University <strong>of</strong> Basel<br />
Missionstrasse 24<br />
4055 Basel<br />
flora.colledgenibas.ch<br />
Dr Heidi HOWARD<br />
Senior research fellow/marie curie fellow<br />
University <strong>of</strong> Basel<br />
Institute for Biomedical Ethics, Ethical, Legal and Social Issues in genomics and biobanking<br />
Missionsstrasse 64<br />
Basel, 4055<br />
heidi.howard@unibas.ch<br />
Mrs Julie KUDYBA<br />
Global Data Privacy Officer<br />
Novartis Pharma AG/ Global Data Privacy Officer<br />
Novartis Campus WSJ-210 13.36<br />
4002 Basel<br />
Julie.Kudyba@novartis.com<br />
17
Dr Delphine LAGARDE<br />
Head <strong>of</strong> Roche Basel Repository<br />
Biosample and Repository Management<br />
F. H<strong>of</strong>fmann-La Roche<br />
Grenzachertrasse 124<br />
4070, Basel<br />
delphine.lagarde@roche.com<br />
Dr Isabell VERDIER-BÜSCHEL<br />
Post-Doctoral Researcher<br />
Institute for Biomedical Ethics (IBMB)<br />
Universität Basel<br />
Missionsstrasse 24<br />
4055 Basel<br />
i.verdier@unibas.ch<br />
Ms Aurélie VIVET, apologised/excusée<br />
Global Regulatory Affairs Manager<br />
CRO: Outcome, a Quintiles company<br />
Chemin du Glapin 6<br />
1162 St-Prex<br />
Dr Rainer WARTH<br />
Chief Executive Officer<br />
Biobank suisse<br />
Effingerstrasse 40<br />
Bern 3001<br />
TURKEY / TURQUIE<br />
Pr<strong>of</strong>. Berna ARDA<br />
Pr<strong>of</strong>essor, History <strong>of</strong> Medicine and Ethics Department<br />
Ankara University Faculty <strong>of</strong> Medicine<br />
Morphology Campus, 2.nd Floor,Sıhhiye<br />
06100 Ankara<br />
berna.arda@medicine.ankara.edu.tr<br />
UNITED KINGDOM / ROYAUME-UNI<br />
Dr Alan CLAMP<br />
Porto Medical School<br />
Human Tissue Authority<br />
151 Buckingham Palace Road<br />
London SW1W 9SZ<br />
alan.clamp@hta.gov.uk<br />
Pr<strong>of</strong>. Søren HOLM<br />
Pr<strong>of</strong>essor <strong>of</strong> Bioethics, Centre for Social Ethics and Policy, School <strong>of</strong> Law<br />
UK Biobank Ethics and Governance Council<br />
University <strong>of</strong> Manchester<br />
Williamson Building, Oxford Road<br />
Manchester M13 9PL<br />
soren.holm@manchester.ac.uk<br />
18
UKRAINE<br />
Pr<strong>of</strong>. Andriy POPANDOPULO<br />
Director <strong>of</strong> Laboratory <strong>of</strong> Cell and Tissue Cultivation<br />
Gusak's Institute <strong>of</strong> Urgent and Recovery Surgery NAMS <strong>of</strong> Ukraine<br />
Leninskiy avenue, 47<br />
Donetsk 83045<br />
pag.lctc@mail.ru<br />
EUROPEAN SCIENCE FOUNDATION / FONDATION EUROPEENNE DE LA SCIENCE (ESF)<br />
Mr Paul BECKERS<br />
MERIL Project Coordinator<br />
European Science Foundation<br />
1 quai Lezay-Marnesia<br />
67000 Strasbourg<br />
France<br />
pbeckers@esf.org<br />
Dr Kirsten STEINHAUSEN<br />
Science Officer, Medical Science Unit<br />
European Science Foundation<br />
1 Quai Lezay Marnesia<br />
67000 Strasbourg<br />
France<br />
ksteinhausen@esf.org<br />
Dr Stéphanie WYSS<br />
Head <strong>of</strong> Unit basic research, Division biology and medicine<br />
Swiss National Science Foundation (SNSF)<br />
Wildhainweg 21<br />
3012 Bern<br />
Switzerland<br />
swyss@snf.ch<br />
Dr Ayşim YILMAZ<br />
Head <strong>of</strong> Division biology and medicine<br />
Swiss National Science Foundation (SNSF)<br />
Wildhainweg 21<br />
3012 Bern<br />
Switzerland<br />
ayilmaz@snf.ch<br />
WHO / OMS<br />
Dr Stefano CRETIER<br />
Interne<br />
Organisation mondiale de la santé<br />
Unité Ethique et santé<br />
OMS/IER/ETH 3158<br />
Avenue Appia 20<br />
1211 Genève 27<br />
Switzerland<br />
cretiers@who.int<br />
19
Dr Lynn WOODWARD<br />
Intern<br />
WHO<br />
Dept. <strong>of</strong> Ethics,Equity, Trade and Human Rights<br />
20 Avenue Appia<br />
Geneva 1211<br />
Switzerland<br />
woodwardl@who.int<br />
EUROPEAN COURT OF HUMAN RIGHTS / COUR EUROPÉENNE DES DROITS DE L’HOMME<br />
Mr Marc HEIDKAMP<br />
Registry <strong>of</strong> the European Court <strong>of</strong> Human Rights/Greffe de la Cour européenne des Droits de<br />
l’Homme<br />
20
PERMANENT REPRESENTATIONS / REPRESENTATIONS<br />
PERMANENTES<br />
BOSNIA AND HERZEGOVINA / BOSNIE-HERZEGOVINE<br />
Mr Branko BABIC, Deputy to the Permanent Representative/Adjoint au Représentant permanent<br />
BULGARIA / BULGARIE<br />
Mr Andrey TEHOV, Ambassador and Permanent Representative/Ambassadeur et Représentant<br />
Permanent<br />
CROATIA / CROATIE<br />
Mr Ivan MINTAS, Deputy to the Permanent Representative/Adjoint à la Représentante permanente<br />
GEORGIA / GEORGIE<br />
Ms Ana DOBORJGINIDZE, Deputy to the Permanent Representative/Adjointe au Représentant<br />
permanent<br />
ITALY / ITALIE<br />
Mr Sergio BUSETTO, Ambassador and Permanent Representative/Ambassadeur et Représentant<br />
Permanent<br />
SWITZERLAND / SUISSE<br />
Mr Charles-Edouard HELD, Ambassador and Permanent Representative/Ambassadeur et<br />
Représentant Permanent<br />
TURKEY / TURQUIE<br />
Ms Gönül ERÖNEN, Deputy to the Permanent Representative/Adjointe au Représentant permanent<br />
Mr Basri YILDIZ, Deputy to the Permanent Representative/Adjointe au Représentant permanent<br />
MEXICO / MEXIQUE<br />
Mrs Lydia MADERO, Permanent Observer a.i./Observateur Permanent a.i.<br />
Mtro. Alejandro MARTÍNEZ PERALTA, Deputy to the Permanent Observer/Adjoint à l'Observateur<br />
Permanent<br />
21
FRANCE<br />
Mr Denis DURAND de BOUSINGEN<br />
Le Quotidien du Médecin<br />
ITALY / ITALIE<br />
Mrs Samatha AGRO<br />
Agence ANSA<br />
SPAIN / ESPAGNE<br />
Mr Javier AGUILAR<br />
Agence EFE + El País<br />
PRESS / PRESSE<br />
22
ANDORRA / ANDORRE<br />
DH-BIO MEMBERS / MEMBRES DU DH-BIO<br />
MEMBER STATES / ETATS MEMBRES<br />
Mr Pere PASTOR VILANOVA<br />
Juge, Cour Suprême de Justice, Avda de Tarragona, AD 500 Andorra la Vella, Andorra<br />
ARMENIA / ARMENIE<br />
Mr Igor MADOYAN<br />
President <strong>of</strong> National Center <strong>of</strong> Bioethics, n.24, ave Sayat-Nova, apt. 14, entrance 1, 0001 Yerevan<br />
AUSTRIA / AUTRICHE<br />
Dr Renate FALLY-KAUSEK<br />
Medical Officer, Federal Ministry for Health, Department III/6, Radetzkystrasse 2, 1030 Wien<br />
Dr Doris WOLFSLEHNER<br />
Head <strong>of</strong> the division “Bioethics” at the Federal Chancellery <strong>of</strong> the Republic <strong>of</strong> Austria, Ballhausplatz 2,<br />
1014 Wien<br />
BELGIUM / BELGIQUE<br />
Mme Régine WILMOTTE<br />
Juriste au sein de la direction générale des Etablissements de Soins du Service public fédéral « Santé<br />
publique », Place Victor Horta 40, boite 10, 1060 Bruxelles<br />
BOSNIA AND HERZEGOVINA / BOSNIE-HERZEGOVINE<br />
Dr Serifa GODINJAK<br />
Head <strong>of</strong> Department for European Integration and International Cooperation, Sector for Health Ministry<br />
<strong>of</strong> Civil Affairs, Trg BiH 1, 71000 Sarajevo<br />
CROATIA / CROATIE<br />
Dr Vanja NIKOLAC<br />
Head <strong>of</strong> Service, Service for blood, tissues and cells inspection, Inspection Sector, Ministry <strong>of</strong> Health,<br />
Ksaver 200a, 10 000 Zagreb<br />
CZECH REPUBLIC / REPUBLIQUE TCHEQUE<br />
Pr<strong>of</strong>. Pavel MARTASEK<br />
Pr<strong>of</strong>essor <strong>of</strong> Medicine, Expert on Genetics, Dept. <strong>of</strong> Pediatrics, Center for Applied Genomics, 1st School<br />
<strong>of</strong> Medicine, Charles University, Ke Karlovu 2, Building D /2nd floor, 128 08 Prague 2<br />
23
DENMARK / DANEMARK<br />
Mrs Anna Skat NIELSEN, apologised/excusée<br />
Special Advisor, Center for Hospital Policy, The Ministry <strong>of</strong> the Interior and Health, 10-12 Slotsholmsgade,<br />
1216 Copenhagen K<br />
ESTONIA / ESTONIE<br />
Pr<strong>of</strong>. Hele EVERAUS<br />
Head <strong>of</strong> the Clinic, Haematology and Oncology Clinic, Tartu University, Tartu University Hospital,<br />
Puusepa 8, 51014 Tartu<br />
FINLAND / FINLANDE<br />
Jaakko HALTTUNEN<br />
Counsellor, Ministry for Foreign Affairs, Legal Service, Unit for Human Rights Courts and Conventions,<br />
PO Box 441, 00023 Government<br />
FRANCE<br />
M. André ALBERT<br />
Magistrat, Ministère de la Justice, Direction des Affaires Civiles et du Sceau, 13 Place Vendôme, 75001<br />
Paris<br />
Mme Isabelle ERNY<br />
Attachée principale d'administration centrale, Ministère de la Santé, Direction Générale de la Santé,<br />
Secrétariat Général, Division droit, éthique et appui juridique, 14 avenue Duquesne, 75350 Paris 07<br />
SP<br />
M. Emmanuel JAUFFRET<br />
Sous-direction des droits de l'homme, Direction des affaires juridiques, Ministère des affaires étrangères<br />
et européennes, 57, bd des Invalides, 75700 07 SP Paris<br />
Dr Jacques MONTAGUT<br />
Directeur de l'IFREARES, 20 route de Revel, 31400 Toulouse<br />
GEORGIA / GEORGIE<br />
Dr Givi JAVASHVILI<br />
Head <strong>of</strong> Family Medicine Department, State Medical Academy <strong>of</strong> Georgia, Chairman <strong>of</strong> the National<br />
Council on Bioethics, 29 I. Chachavadze Avenue, 0179 T<strong>bil</strong>isi<br />
GERMANY / ALLEMAGNE<br />
Dr Karen BREMS<br />
Federal Ministry <strong>of</strong> Justice, Division III B 2, Mohrenstraße 37, 10117 Berlin<br />
Dr Daniela von BUBNOFF<br />
Federal Ministry <strong>of</strong> Education and Research, Division 612, Friedrichstraße 130 B, 10117 Berlin<br />
Pr<strong>of</strong>. Elmar DOPPELFELD<br />
Président de l'Union des Comités d'Ethique, Ottostraße 12, 50859 Köln<br />
Dr Ingo HÄRTEL<br />
Federal Ministry <strong>of</strong> Health - Deputy Head Molecular Medicine & Bioethics Unit, Friedrichstraße 108,<br />
10117 Berlin<br />
24
Pr<strong>of</strong>. Dr. Dr. Thomas HEINEMANN<br />
Philosophisch-Theologische Hochschule Vallendar, Lehrstuhl für Ethik, Theorie und Geschichte der<br />
Medizin, Pallottistraße 3, 56179 Vallendar<br />
Mrs Andrea MITTELSTÄDT<br />
Federal Ministry <strong>of</strong> Justice, Division III B 2, Mohrenstraße 37, 10117 Berlin<br />
GREECE / GRECE<br />
Dr Stamatia GARANI-PAPADATOS<br />
Senior Lecturer, National School <strong>of</strong> Public Health, Avenue Alexandras 196, 11521 Athens<br />
HUNGARY / HONGRIE<br />
Dr Dorottya MOGYOROSI<br />
MD JD, head-counsellor pr<strong>of</strong>essional, Secretariat <strong>of</strong> Minister <strong>of</strong> State <strong>of</strong> Health, Ministry <strong>of</strong> National<br />
Resources, Arany János u. 6-8., 1051 Budapest<br />
ICELAND / ISLANDE<br />
Laufey Helga GUDMUNDSDOTTIR<br />
Specia<strong>list</strong>, Department <strong>of</strong> Protection <strong>of</strong> Rights, Ministry <strong>of</strong> Welfare, Reykjavic<br />
IRELAND / IRLANDE<br />
Ms Angela O'FLOINN<br />
Dept <strong>of</strong> Health, Hawking House, Dublin 2<br />
ITALY / ITALIE<br />
Pr<strong>of</strong>. Adriano BOMPIANI<br />
Université catholique Polyclinique "A. Gemelli", Largo Gemelli 1, 00197 Roma<br />
LATVIA / LETTONIE<br />
Dr Vents SĪLIS<br />
Assistant Pr<strong>of</strong>essor at Riga Stradins University, Department <strong>of</strong> Humanities, Dzirciema street 16, Riga<br />
1007<br />
LITHUANIA / LITUANIE<br />
Ms Jurate ZEREPKAITE<br />
Chief specia<strong>list</strong>, Lithuanian Bioethics Committee, Vilnius str. 33, 2001 Vilnius<br />
LUXEMBOURG<br />
Mr Jean-Paul HARPES<br />
membre du Comité National d'Ethique de la Recherche, 119, Val des Bons Malades, 2121<br />
Luxembourg<br />
MALTA / MALTE<br />
Mme Mary Anne CIAPPARA<br />
B. Pharm., M. Phil. Pharmacist, Hon. Secretary, Bioethics Consultative Committee, Palazzo Castellania,<br />
15 Merchant Street, Valleta<br />
25
REPUBLIC OF MOLDOVA / REPUBLIQUE DE MOLDOVA<br />
Lucia TURCAN<br />
Assistant Pr<strong>of</strong>essor, PhD.<br />
State University <strong>of</strong> Medicines and Pharmacy "Nicolae Testemitanu", Clinical Pharmacology Department,<br />
Chisinau<br />
MONTENEGRO<br />
Dr Omer ADZOVIC<br />
Institute for Childhood Diseases, Medical Centre <strong>of</strong> Montenegro, Krusevac BB, 81000 Podgorica<br />
NETHERLANDS / PAYS-BAS<br />
Mr Arjan van DRIELEN, apologised/excusé<br />
Ministry <strong>of</strong> Health, Welfare and Sport, Directorate Public Health, Section Ethics, PO Box 20350, 2500 EJ<br />
Den Haag<br />
NORWAY / NORVEGE<br />
Camilla CLOSS WALMANN<br />
Senior Adviser, Department for Biotechnology and Health Law, Norwegian Directorate <strong>of</strong> Health,<br />
P.O.Box 7000 St Olavs plass, 0130 Oslo<br />
POLAND / POLOGNE<br />
Dr Jerzy UMIASTOWSKI<br />
Chairman <strong>of</strong> the Medical Ethics Committee <strong>of</strong> the Polish Medical Board, Local Medical Board, Ul.<br />
Sniadeckich 33, 80-204 Gdansk<br />
ROMANIA / ROUMANIE<br />
Pr<strong>of</strong>. Dr. Vasile ASTARASTOAE<br />
Institutul de Medicina Legala, Buna Vestire nr. 4, 700455 Iasi<br />
Mr Gheorghe BORCEAN<br />
Vice-President <strong>of</strong> the Romanian College <strong>of</strong> Physicians, Spitalul Municipal Caransebes, str. Gradinilor nr.<br />
36ª, CARANSEBES, jud. CARAS-SEVERIN 325400<br />
Mrs Beatrice Gabriela IOAN<br />
Associate Pr<strong>of</strong>essor, President <strong>of</strong> the Bioethics Commission <strong>of</strong> the Romanian College <strong>of</strong> Physicians,<br />
Institutul de Medicina Legala, str. Bunavestire nr. 4, Iasi<br />
RUSSIAN FEDERATION / FEDERATION DE RUSSIE<br />
Mr Boris YUDIN<br />
Director, Institute <strong>of</strong> Human Studies, Russian Academy <strong>of</strong> Sciences, Volkhonka 14, Moscow 119992<br />
SAN MARINO / SAINT-MARIN<br />
Dr Luisa BORGIA<br />
Vice-President <strong>of</strong> National Committee <strong>of</strong> Bioethics <strong>of</strong> San Marino, Contrada Le Grazie, n.3, 62029<br />
Tolentino (MC)<br />
SERBIA / SERBIE<br />
Pr<strong>of</strong>. Dr Zvonko MAGIC<br />
Military Medical Academy in Belgrade, 11000 Belgrade<br />
26
SLOVAKIA / SLOVAQUIE<br />
Pr<strong>of</strong>. Jozef GLASA<br />
MD, PhD, PhD; Institute <strong>of</strong> Pharmacology and Clinical Pharmacology, Slovak Medical University;<br />
National Reference Centre for Management <strong>of</strong> Chronic Hepatitis; Institute <strong>of</strong> Medical Ethics and<br />
Bioethics n.f.*; Ethics Committee, Ministry <strong>of</strong> Health SR; Limbová 12, 83303 Bratislava<br />
SLOVENIA / SLOVENIE<br />
Urh GROSELJ<br />
University Children's Hospital, University Medical Center Ljubljana, Bohoriceva 20, 1000 Ljubljana<br />
SPAIN / ESPAGNE<br />
Carlos ALONSO BEDATE<br />
Centro de Biología Molecular, Member <strong>of</strong> the National Committee for Bioethics, C/ Alberto Aguilera<br />
21, 28015 Madrid<br />
Mª Concepción MARTIN ARRIBAS<br />
Subdirección General de Investigación en Terapia Celular y Medicina Regenerativa – Instituto de Salud<br />
Carlos III – ISCIII, Avda. Monforte de Lemos 5, 28029 Madrid<br />
Pr<strong>of</strong>. Carlos M. ROMEO – CASABONA<br />
Pr<strong>of</strong>essor <strong>of</strong> Penal Law, Head, Inter-University Chair in Law and the Human Genome, Avda. de las<br />
Universidades 24, 48007 Bilbao<br />
Asier URRUELA MORA<br />
Pr<strong>of</strong>essor for Criminal Law, Facultad de Derecho, Universidad de Zaragoza, C/ Pedro Cerbuna, 12,<br />
50009 Zaragoza<br />
SWEDEN / SUEDE<br />
Ms. Tesi ASCHAN<br />
Legal Adviser, The National Board <strong>of</strong> Health and Welfare, Socialstyrelsen, 106 30 Stockholm<br />
TURKEY / TURQUIE<br />
Pr<strong>of</strong>. Ergun ÖZSUNAY<br />
Pr<strong>of</strong>essor <strong>of</strong> Civil, Comparative Law and EU Private law, Istanbul Culture University, Faculty <strong>of</strong> Law,<br />
Đstiklal cad. 233/1, Tunca Apt. Daire 7, 34430 Istanbul<br />
UKRAINE<br />
Pr<strong>of</strong> Zoreslava SHKIRYAK-NYZHNYK<br />
Vice-president <strong>of</strong> Bioethics Committee <strong>of</strong> Academy <strong>of</strong> Medical Sciences, Chief <strong>of</strong> the Department <strong>of</strong><br />
Family Health Problems, Academy <strong>of</strong> Postgraduate Education, Institute <strong>of</strong> Paediatrics, Obstetrics and<br />
Gynaecology, Manuilsky str., 8, 04050 Kyiv<br />
UNITED KINGDOM / ROYAUME-UNI<br />
Dr Mark BALE<br />
Principal administrator, Head <strong>of</strong> Genetics Branch; Scientific Development & Bioethics Division, Department<br />
<strong>of</strong> Health, Wellington House, Waterloo Road, London Road, London SE1 6LH<br />
27
PARTICIPANTS<br />
STEERING COMMITTEE FOR HUMAN RIGHTS / COMITE DIRECTEUR POUR LES DROITS DE<br />
L’HOMME (CDDH)<br />
Mme Brigitte KONZ<br />
Vice-Présidente du tribunal d'arrondissement de Luxembourg, Cité judiqiaire, Bâtiment T.L, B.P. 15,<br />
2080 Luxembourg<br />
EUROPEAN COMMITTEE (PARTIAL AGREEMENT) ON ORGAN TRANSPLANTATION / COMITE<br />
EUROPEEN (ACCORD PARTIEL) SUR LA TRANSPLANTATION D’ORGANES (CD-P-TO)<br />
Mme Eleni ZACHARI<br />
Consultant, 4 rue Jules Rathgeber, 67100 Strasbourg, France<br />
PARLIAMENTARY ASSEMBLY / ASSEMBLEE PARLEMENTAIRE<br />
Mr Luca VOLONTE<br />
Chairperson <strong>of</strong> the Group <strong>of</strong> the European’s people party (PPE/DC), to the Parliamentary Assembly <strong>of</strong><br />
the Council <strong>of</strong> Europe, Camera dei deputati, Palazzo Montecitorio, 00186 Roma, Italy<br />
HOLY SEE / SAINT-SIEGE<br />
OTHER PARTICIPANTS / AUTRES PARTICIPANTS<br />
Mgr. Jacques SUAUDEAU<br />
Académie Pontificale pour la Vie, Via della Conciliazione, 3, I – 00193 Rome, Italy<br />
UNESCO<br />
Mrs Dafna FEINHOLZ KLIP<br />
Section de la bioéthique, Division de l'éthique des sciences et des technologies, UNESCO, 1 rue Miollis,<br />
75732 Paris Cedex 15, France<br />
OECD / OCDE<br />
Mr Frédéric SGARD<br />
Project Administrator, Global Science Forum, OECD, 2, rue André-Pascal, 75775 Paris Cedex, France<br />
Mr James PHILP<br />
Administrator, Science and Technology Policy, OECD, 2, rue André-Pascal, 75775 Paris Cedex,<br />
France<br />
WHO / OMS<br />
Dr Marie-Charlotte BOUËSSEAU<br />
Technical <strong>of</strong>ficer, Ethics, Trade, Human Rights and Health Law, WORLD HEALTH ORGANIZATION, 20<br />
Avenue Appia, CH-1211 Geneva 27, Switzerland<br />
28
AUSTRALIA / AUSTRALIE<br />
OBSERVERS / OBSERVATEURS<br />
Samantha ROBERTSON<br />
Executive Director, Research Translation, National Health and Medical Research Council (NHMRC)<br />
National Health and Medical Research Council, GPO Box 1421, Canberra ACT 2601<br />
EUROPEAN SCIENCE FOUNDATION / FONDATION EUROPEENNE DE LA SCIENCE (ESF)<br />
Pr<strong>of</strong>. Isabel VARELA-NIETO<br />
Instituto Investigaciones Biomédicas "Alberto Sols", Neurobiology <strong>of</strong> Hearing Group, Arturo Duperier<br />
4, 28029 Madrid, Spain<br />
CHURCH AND SOCIETY COMMISSION OF THE CONFERENCE OF EUROPEAN<br />
CHURCHES/COMMISSION EGLISE ET SOCIETE DE LA CONFERENCE DES EGLISES<br />
EUROPEENNES (KEK)<br />
Pasteur Richard FISCHER<br />
Secrétaire Exécutif, 8 rue du Fossé des Treize, 67000 Strasbourg, France<br />
29
SECRETARIAT / SECRÉTARIAT<br />
Directorate General Human Rights and Rule <strong>of</strong> Law<br />
Direction Générale Droits de l’Homme et Etat de Droit<br />
Bioethics Department / Service de la Bioéthique<br />
bioethics.<strong>biobanks</strong>@coe.int<br />
Mr Carlos de SOLA, Head <strong>of</strong> Bioethics Department / Chef du Service de la Bioéthique, Tel: +33 (0) 388<br />
41 24 38, E-mail: carlos.desola@coe.int<br />
Ms Laurence LWOFF, Secretary <strong>of</strong> the DH-BIO / Secrétaire du DH-BIO, Tel: +33 (0) 388 41 22 68, Email:<br />
laurence.lw<strong>of</strong>f@coe.int<br />
Ms Lindsay YOUNGS, Administrator / Administratrice, Tel: +33 (0) 388 41 21 63, E-mail:<br />
lindsay.youngs@coe.int<br />
Mr Krist<strong>of</strong> VAN ASSCHE, Administrator / Administrateur, Tel: +33 (0) 390 21 42 09, E-mail:<br />
krist<strong>of</strong>.vanassche@coe.int<br />
Ms Tatiana WINTER, Assistant / Assistante, Tel : +33 (0) 388 41 33 67, E-mail: tatiana.winter@coe.int<br />
Ms Catherine FORNÉ, Assistant / Assistante, Tel: +33 (0) 388 41 22 20, E-mail:<br />
catherine.forne@coe.int<br />
Mr Sébastien SERVE, Trainee / Stagiaire<br />
Mrs Amanda BEDDOWS-LARIVIERE<br />
Mrs Sylvie BOUX<br />
Mr William VALK<br />
Interpreters / Interprètes<br />
30
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