Information for Malone/ MACE/ Appendicostomy - Disabled Living

Misc:
solid stuff behind. Particularly if what is coming out is smooth
liquid without much texture. I would suggest you slow it down going
in, by putting in say a quarter of the flush then waiting a few
minutes, then another quarter and so on. Putting in a smaller
amount to start with will hopefully give a bit of soak time so that it
softens it all up before the rest comes along and takes it all
through.
• I also agree that it might be helpful to have the child try to
squeeze and hold for as long as they can when the flush is starting
so that the saline has time to soften the stool throughout the
colon.
• Little trouble with the flow backing up or stopping in the tube...we
learned to start the flow going in the sink or bathtub before
hooking it up.
• My child’s recipe is 20ml of glycerine with 80ml of saline drawn
up equally into two 50ml syringes. Prior to connecting the end to
the catheter we hold the syringe tip up and pull the plunger down
to add air to the syringe. The air pushes all the solution through
the catheter. If the syringe tip points down after adding air and
before it's connected to the catheter the solution will drip out.
Mucous usually indicates that the bowel is empty, I then put
through a 20ml 'chaser' of saline. I flush the toilet at this point.
This means the toilet is less smelly and he doesn't mind the toilet
being flushed while he's sitting on it.
• Certain foods e.g. popcorn, corn, oranges caused my child to block.
Unfortunately I had to learn what foods by studying his stools!
• My child started with a Chait in the Malone channel (it’s an
Australian/New Zealand thing), which can be hard to open. My
solution was to put KY on the stalky bit every time I closed it.
• When we put the catheter into the Malone, we find the hole (we
can't actually see it), gently push the catheter in, remove it and
get a little more lubricant on the tip, and put it in. We often do
this a few times and it makes it easier and the catheter slides
easier.
• Our biggest problem was his extreme fear of having the catheter
inserted. He was afraid it would hurt and would fight us. We ended
up, during those first six-eight weeks, working with a child
psychologist, who specializies in children with medical problems, to
come up with some strategies for calming him & getting him to stop
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