Information for Malone/ MACE/ Appendicostomy - Disabled Living

flush has a toilet w/ access to our bedroom. So flush time is now
when the kids watch TV - usually around 5:00 pm or so - while
hubby & I are starting on dinner. Hubby found a table with wheels,
so we wheel that in every night and he can do homework or color or
eat snacks while he sits there. His sibling sits on our bed, so they
talk about what they are watching, etc. I'm glad it's a very "family
friendly" event, considering its frequency. Oh, and, I don't know if
you have other children - but we have a rule that our other child
can't be outside with the neighbors/friends during flush time, as
that made the one doing the flush feel left out.
• Use of Movicol/MiraLax 12-24 hrs prior to washout helps my child
have a better result.
• If I don't think my child’s washout has been very effective I mix
another 5ml of glycerine with 45mL of saline and put that through.
• I usually sit on the toilet floor while administering the solution and
stay there chatting to him while it takes effect. I encourage him
to 'push' once the poo has started (and at several intervals during
his toilet sit). I can see the stool go into the toilet and note the
colour and consistency of it. I can see how much poo there is and
use this to gauge the effectiveness of the washout.
• When my child starts having diarrhea the Malone starts leaking.
Enema or not. I figured that if I could leave a Malone Plug in that
I could leave the feeding tube used to give the enema in and just
cap it. So, when he has bad leakage, instead of irritating his skin
w/ the constant change of the band aid, I just put the tube in
and cap it. Also, they left it in for several weeks after surgery, so
I figure a few days couldn't hurt.
• Invest in a mini DVD player. Try to keep to a routine, but don’t
feel totally bound by it. You and your child should try to live as
normal a life as possible. We move the enema to adjust to other
activities in our lives and even up the solution if we have to go 48
hours between times. Usually we have a pretty regular routine
though.
• Don't change your recipe often. You should have the same person
mix the recipe so it is always consistent.
• When travelling, buy a stick-on hook for the bathroom. They’re
great for hanging the bag, so you don’t have to hold it. It works at
home, too.
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