Information for Malone/ MACE/ Appendicostomy - Disabled Living

If you were doing every other day (second daily)
rectal enemas, did you need to change the
frequency once the Malone was in place?
• We were able to continue daily and skip every Friday.
• Rectal enemas were only sporadic (and unsuccessful). We did daily
flushes with the ACE.
• NA - we've always done daily enemas.
• We skip either Friday or Saturday pretty regular now with no
problems... we never skipped with rectal enemas (at least I don't
remember).
If you were doing rectal enemas, did you need to
adjust your recipe?
• We needed to increase the saline solution once we switched to
retrograde.
• We did. Not sure if it was inevitable anyway due to growth spurt
(we increased and in the end changed to a whole new recipe due to
the dangers of fleet).
• Our recipe is exactly the same. With both we have done, and
currently do 700 mls saline + 30 mls glycerine.
• We learned that after the surgery, there is so much change going
on the body that it is hard to determine what recipe to use. I
switched it all over the place and after months ended up with the
same recipe we had for the rectals. So my advice would be keep
everything the same for several months until the body has had time
to regulate itself and then if you have to change things, do so at a
later time to save yourself some frustration.
• Yes it needed to be stronger. We added fleet. We have been able
to take the fleet out and have been using Castile soap.
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